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SRM
8 years ago
One of my biggest frustrations is that all of the people around me saw how sick I was. I missed several days of work, dozens of doctor appointments, apparent pain and discomfort, etc. etc. Many formed their own opinions. I was “too stressed”, “metabolic shut down due to being obese”, “psychological”. I had all sorts of opinions. As much as I and my family are convinced that I was floxed, no doctor will touch the idea. Sometimes I feel like a nut case. It is so depressing. But despite the negative comments from others, there is one thing for sure. I have not waivered in my quest to make myself feel better. I continue to try new things. I am soooo much better than I was a year ago. My biggest problem now is my inability to stand long due to pain and numbness, severe sweating and fatigue when I try to exert myself. I remember all to well the horrible nights where I could barely stand the pain in my legs, hips and back when trying to sleep. I could barely stand to roll over. Now I can! Funny how the little things are huge in my eyes. My husband is supportive but I think he has gotten to a point where he feels helpless and doesn’t know what to say anymore. I’m pretty sure it is getting old for my family as it is for me! I just wish I had a doctor to back me.
Ned
8 years ago
Hi all,
Not sure if any of you were aware or whether it was already mentioned on this site, but the WSJ reported last week that HRC was given a course of Levaquin for her pneumonia. Politics aside, anyone adversely affected by a quinolone would be in serious trouble if handling a lot of responsibility….
Ahmdi
8 years ago
Is it good to start using green tea?
Ahmdi
8 years ago
Hi all
Has anyone tried green tea?
Is it make feel better or worse?
Jake
8 years ago
Does cipro toxicity cause permanent damage with regards to magnesium utilization/depletion? I understand that while someone currently taking cipro will have problems with magnesium depletion, but what about post-cipro: 6 months, 1 year, 5 years later will magnesium loss still be a problem if you’ve been floxed?
Ahmdi
8 years ago
I see that fluoridetoxity can cause cancer, it really can cause cancer(i’m floxed, i think i’m floxed with mild reaction with 10days “i used in different time” 1000mg)and can it really cause cancer after you’re recovery 100%?srryforeng
Ahmdi
8 years ago
Hi all
If we fullrecovery100% from flouroquinolone toxity it does mean that now we are normal human with all repair damage like DNA, Mitochondria, muscle etc etc and this will not affect other diseases in future?
Lee
8 years ago
Has any one ever woke from their sleep with a racing heart. My hear rate goes up to 165 and I do some deep breaths and it comes down. I’m so tried of feeling this way. I have two small and children and I feel like all this is keeping me from be the best I can for them. Im almost one year out, I was doing better and then out of no where this starts happening.
A
8 years ago
Has anyone had a ct abdominal scan with contrast dye and if so did you experience negative reactions to it. I have to have one done pretty soon. Thanks for any and all feedback.
A
8 years ago
Thanks Ryan and L. I have myoscopic blood in the urine and they want to check for kidney stones and etc.
Desiray
8 years ago
I recently had a Urogram which is CT with dye to check kidneys, bladder and such. Unfortunately I did have a bad relapse immediately afterwards. The first 3 days afterwards were the worst! I personally will not have another CT w/dye unless it’s absolutely necessary.
A
8 years ago
Thanks Desiray. Those are exactly the areas that they want to check. Are you better now from it? I’m going to use Ryan’s advice and ask her if I could do an Mri instead. I don’t need nor want any added problems on top of everything else.
Desiray
8 years ago
The first 3 days after the CT were miserable with a lot of relapse symptoms. I was so upset and discourage but each day after got A bit better. I will say that I have noticed that I have more mini flare ups now to since having the CT I know everyone is different but if you are able to do a MRI I would definitely try that first. If it’s not necessary it’s not worth the risk! We suffer enough! God bless
A
8 years ago
L, Ryan, and Desiray I greatly appreciate each of you for the information that is beneficial to me. L I will surely ask her about the ultrasound. You guys are great. Again thanks, I do not want to add unnecessarily to what I’m already going through knowing that there are less invasive options. L thanks for the link also very informative.
Jake
8 years ago
What are the best ways to repair the damaged mitochondria/DNA ?
Ahmdi
8 years ago
Hi all,
I’m getting vitamin b12 100mcg,
I’m 17y and is it safe to take this vitamin daily?
Lwd
8 years ago
I have a UTI and the doc wants me to take Bactrim. I was floxed because of a UTI in Aug 2014. The cipro did not get rid of the UTI then and Bactrim did. However, I’m afraid to take any antibiotic. Any suggestions?
Miriah Horn
8 years ago
My 8yo DD was prescribed Ciprofloxicin for complicated UTI pseudomonas. She was prescribed 10 days 500mg twice daily. Here is what happened:
Night 1- 1 pill- sleepwalking this has never ever happened.
Following morning- 1 pill- nothing noted.
Evening- 1 pill- 1 hour later tingling (she says buzzing) in her left hand. Mentions later that her chest feels sick. Both resolve after a few hours.
Morning- 1 pill- no noted incident
Evening- 1 pill- complains of pain behind left knee
Morning-1 pill- schools calls and says her right foot and ankle hurt (she says they are buzzing) she has pain behind right knee.
We call dr. He admits her to do iv antibiotics and says stop cipro.
2 days in hospital on iv antibiotics only complains of mild knee ache 1 time.
Told to resume normal activities including swimming a gymnastics.
3 days after home from hospital she goes to gym. Has foot and ankle pain which subsides that evening.
The following day she is sent home from school with swollen heel complains of achiellies pain and can’t put weight. Ice, wrap, and naproxin for the night. It is sore but better the next day.
That night says she feels like she is sick in the chest like she was being hit and loosing breath. It subsides after 30 min.
So what are your thoughts?
Miriah Horn
8 years ago
My 8yo DD was prescribed Ciprofloxicin for complicated UTI pseudomonas. She was prescribed 10 days 500mg twice daily. Here is what happened:
Night 1- 1 pill- sleepwalking this has never ever happened.
Following morning- 1 pill- nothing noted.
Evening- 1 pill- 1 hour later tingling (she says buzzing) in her left hand. Mentions later that her chest feels sick. Both resolve after a few hours.
Morning- 1 pill- no noted incident
Evening- 1 pill- complains of pain behind left knee
Morning-1 pill- schools calls and says her right foot and ankle hurt (she says are buzzing) she has pain behind right knee.
We call dr. He admits her to do iv antibiotics and says stop cipro.
2 days in hospital on iv antibiotics only complains of mild knee ache 1 time.
Told to resume normal activities including swimming a gymnastics.
3 days after home from hospital she goes to gym. Has foot and ankle pain which subsides that evening.
The followin day she is sent home from school with swollen heel complains of achiellies pain and can’t bare weight. Ice wrap and naproxin for the night and sore but better the next day.
That night says she feels like she is sick in the chest like she was being Hut and loosing breath. It subsides after 30 min.
A fellow floxie recently told me that lots of floxies end up w cancer!!! I have never heard of this before, and of course am very concerned 🙁
Does anyone know if there is a link between flouroquinolones and the dreaded C??
One of my biggest frustrations is that all of the people around me saw how sick I was. I missed several days of work, dozens of doctor appointments, apparent pain and discomfort, etc. etc. Many formed their own opinions. I was “too stressed”, “metabolic shut down due to being obese”, “psychological”. I had all sorts of opinions. As much as I and my family are convinced that I was floxed, no doctor will touch the idea. Sometimes I feel like a nut case. It is so depressing. But despite the negative comments from others, there is one thing for sure. I have not waivered in my quest to make myself feel better. I continue to try new things. I am soooo much better than I was a year ago. My biggest problem now is my inability to stand long due to pain and numbness, severe sweating and fatigue when I try to exert myself. I remember all to well the horrible nights where I could barely stand the pain in my legs, hips and back when trying to sleep. I could barely stand to roll over. Now I can! Funny how the little things are huge in my eyes. My husband is supportive but I think he has gotten to a point where he feels helpless and doesn’t know what to say anymore. I’m pretty sure it is getting old for my family as it is for me! I just wish I had a doctor to back me.
Hi all,
Not sure if any of you were aware or whether it was already mentioned on this site, but the WSJ reported last week that HRC was given a course of Levaquin for her pneumonia. Politics aside, anyone adversely affected by a quinolone would be in serious trouble if handling a lot of responsibility….
Is it good to start using green tea?
Hi all
Has anyone tried green tea?
Is it make feel better or worse?
Does cipro toxicity cause permanent damage with regards to magnesium utilization/depletion? I understand that while someone currently taking cipro will have problems with magnesium depletion, but what about post-cipro: 6 months, 1 year, 5 years later will magnesium loss still be a problem if you’ve been floxed?
I see that fluoridetoxity can cause cancer, it really can cause cancer(i’m floxed, i think i’m floxed with mild reaction with 10days “i used in different time” 1000mg)and can it really cause cancer after you’re recovery 100%?srryforeng
Hi all
If we fullrecovery100% from flouroquinolone toxity it does mean that now we are normal human with all repair damage like DNA, Mitochondria, muscle etc etc and this will not affect other diseases in future?
Has any one ever woke from their sleep with a racing heart. My hear rate goes up to 165 and I do some deep breaths and it comes down. I’m so tried of feeling this way. I have two small and children and I feel like all this is keeping me from be the best I can for them. Im almost one year out, I was doing better and then out of no where this starts happening.
Has anyone had a ct abdominal scan with contrast dye and if so did you experience negative reactions to it. I have to have one done pretty soon. Thanks for any and all feedback.
Thanks Ryan and L. I have myoscopic blood in the urine and they want to check for kidney stones and etc.
I recently had a Urogram which is CT with dye to check kidneys, bladder and such. Unfortunately I did have a bad relapse immediately afterwards. The first 3 days afterwards were the worst! I personally will not have another CT w/dye unless it’s absolutely necessary.
Thanks Desiray. Those are exactly the areas that they want to check. Are you better now from it? I’m going to use Ryan’s advice and ask her if I could do an Mri instead. I don’t need nor want any added problems on top of everything else.
The first 3 days after the CT were miserable with a lot of relapse symptoms. I was so upset and discourage but each day after got A bit better. I will say that I have noticed that I have more mini flare ups now to since having the CT I know everyone is different but if you are able to do a MRI I would definitely try that first. If it’s not necessary it’s not worth the risk! We suffer enough! God bless
L, Ryan, and Desiray I greatly appreciate each of you for the information that is beneficial to me. L I will surely ask her about the ultrasound. You guys are great. Again thanks, I do not want to add unnecessarily to what I’m already going through knowing that there are less invasive options. L thanks for the link also very informative.
What are the best ways to repair the damaged mitochondria/DNA ?
Hi all,
I’m getting vitamin b12 100mcg,
I’m 17y and is it safe to take this vitamin daily?
I have a UTI and the doc wants me to take Bactrim. I was floxed because of a UTI in Aug 2014. The cipro did not get rid of the UTI then and Bactrim did. However, I’m afraid to take any antibiotic. Any suggestions?
My 8yo DD was prescribed Ciprofloxicin for complicated UTI pseudomonas. She was prescribed 10 days 500mg twice daily. Here is what happened:
Night 1- 1 pill- sleepwalking this has never ever happened.
Following morning- 1 pill- nothing noted.
Evening- 1 pill- 1 hour later tingling (she says buzzing) in her left hand. Mentions later that her chest feels sick. Both resolve after a few hours.
Morning- 1 pill- no noted incident
Evening- 1 pill- complains of pain behind left knee
Morning-1 pill- schools calls and says her right foot and ankle hurt (she says they are buzzing) she has pain behind right knee.
We call dr. He admits her to do iv antibiotics and says stop cipro.
2 days in hospital on iv antibiotics only complains of mild knee ache 1 time.
Told to resume normal activities including swimming a gymnastics.
3 days after home from hospital she goes to gym. Has foot and ankle pain which subsides that evening.
The following day she is sent home from school with swollen heel complains of achiellies pain and can’t put weight. Ice, wrap, and naproxin for the night. It is sore but better the next day.
That night says she feels like she is sick in the chest like she was being hit and loosing breath. It subsides after 30 min.
So what are your thoughts?
My 8yo DD was prescribed Ciprofloxicin for complicated UTI pseudomonas. She was prescribed 10 days 500mg twice daily. Here is what happened:
Night 1- 1 pill- sleepwalking this has never ever happened.
Following morning- 1 pill- nothing noted.
Evening- 1 pill- 1 hour later tingling (she says buzzing) in her left hand. Mentions later that her chest feels sick. Both resolve after a few hours.
Morning- 1 pill- no noted incident
Evening- 1 pill- complains of pain behind left knee
Morning-1 pill- schools calls and says her right foot and ankle hurt (she says are buzzing) she has pain behind right knee.
We call dr. He admits her to do iv antibiotics and says stop cipro.
2 days in hospital on iv antibiotics only complains of mild knee ache 1 time.
Told to resume normal activities including swimming a gymnastics.
3 days after home from hospital she goes to gym. Has foot and ankle pain which subsides that evening.
The followin day she is sent home from school with swollen heel complains of achiellies pain and can’t bare weight. Ice wrap and naproxin for the night and sore but better the next day.
That night says she feels like she is sick in the chest like she was being Hut and loosing breath. It subsides after 30 min.
So what are your thoughts?
A fellow floxie recently told me that lots of floxies end up w cancer!!! I have never heard of this before, and of course am very concerned 🙁
Does anyone know if there is a link between flouroquinolones and the dreaded C??