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Ken ward
8 years ago
God bless everyone who this has happened to, it happened to me 4 years ago next month, and I can’t believe a person can feel this bad! Dr’s won’t listen, your entire body mind and soul are malfunctioning and you can’t get your dr to even aknowledge that your sick much less try to help you, it’s like there afraid there going to get sued! Anyway I have found some hope for folks after 3 and a half years of this horrible excistance I went to see my Dr again I was so sick I couldn’t take it anymore, when I was in my appt. I was having the tremors real bad and he could hear me wheezing, from the constant mucus production 24 7 , and he finally said to me oh looks like that stuff destroyed your central nervous system and he put me on a medicine called klonopin, it helped 90 percent of my symptoms the first dose! I don’t want you folks to think I feel normal or great because I dont, every day is still a challenge, but I can FUNCTION AGAIN and even get out of my house and do some fun things again, anyway just wanted folks to know this medicine has really helped alot! It is a sedative that calms the nervous system which in turn calms everything else down! Sadly it does nothing for the horrible tendonitis. Rather you know it or not all those unexplainable symptoms from head to toe your having are because your nervous system has been damaged, destroyed really. Try it your life WILL IMPROVE!
Debs
8 years ago
This link contains a lot of information, including links to various other useful sites, help for withdrawal from psychotropics & more for anyone interested. Also links to various support groups etc & information on many alternative solutions to taking psychotropic drugs.
Hi again
I’ve been ill all week with gastroenteritis, and have just found blood in my urine. I can’t get to see the doctor till Tuesday. If they diagnose an infection I don’t want antibiotics. Is there anything I can do to treat it naturally?
Thanks
Ahmdi
8 years ago
I want to tell you little about me and i need really your help.
4months ago i use 1tablets of cipro for UTI and, 2months ago i use 1tablets of cipro(and now i floxed) for epididymitis but cipro doesn’t heal me, and than my doctor give me Cefixime i try this this helped me around 60% but i have pain in today in my left testicle(mild-normal pain not much pain but i have pain this pain really is so bad, badest that all have pain of floxed syndrome)and i stopped antibiotics i try some natural remediea like yarrow herb, garlic, organic honey etc but doesn’t heal me, i try too oregano oil but i can’t use it cuz make my heart palpilations very hard and now o stay play laugh with my pain i don’t know what to do is anyone suggest me ani natyral remediea or suggest me to take antibiotics or what please really i need your help.
Peace 🙂
Debs
8 years ago
Ahmdi , there is unfortunately no one magic wand for this, in my experience & opinion it is time passing by & time alone which is actually the biggest factor in this whole sorry saga, healing is time related most of all. This will eventually show you how much you have been injured, & also how much you will improve or even potentially feel recovered.
Various things can help along the way yes, but it is different for everyone, for example magnesium can help a lot but it can also harm & some of us cant take it , pain relief is also different for everyone as we all have different tolerance levels to pain & suffer various different types of pain. Kratom has helped some quite a lot with the pain, however in some places it has now been banned, I have no other choice now but to take opioids myself . in regards to your problem with infection right now however, I was just wondering if you belong to the male only flox group on FB ? you might at least get some more specific advice for Epididymitis those testicular symptoms from there.
Hi
I feel that the stomach bug I’ve just had has caused my flox symptoms to flare up in a big way. Gone right back to where I was 3 years ago. Has anyone else experienced this, and is it likely to resolve or have I really gone back to square one?
Faisal
8 years ago
Heart palpitations came back to me these are the biggest problem for me what is the solution, just only one pill of the avelox changed my life
Ellen
8 years ago
Please help me I have fibromyalgia, major depressive disorder, generalized anxiety disorder. I took Ciprofloaxin for 4 days and stopped it and about 3 days later I awoke with stiff muscles, panic attacks (which were not an issue before) and I lost 10lbs in 2nweeks tendons in upper leg are so painful across groin and all of my fibromyalgia issues are unbearable. It’s been 6 weeks and my whole body feels as if muscles are spontaneously contracting. I have become suicidal and NONE of this was going on before the Cipro! I feel as if I’m losing my mind. My dr did a blood test which he said showed no signs of inflammation but something is wrong. Someone please help and tell me if this sounds like a toxicity problem or if something else. I do not want to go to a psychiatric hospital as they will have no regard for the pain. Please help. I do not know where to turn.
L
8 years ago
well, this is rich. The doctor whose signature is at the end of the Bayer letter, Dario F Mirski, is a PSYCHIATRIST. When I think of all the mental anguish, stress, depression, suicides, that this causes, I am fuming even more. I have written a letter now I just need to find an email address for him. May have to actually call his New Jersey office.
L
8 years ago
so…when I look up dario mirski, I can find no email addresses. I called one phone number listed as his office number and got a very obviously private woman’s voice mail. When I look him up on the NJ medical board site, I can not find him in a search. I finally found a street address for a property he owns, so that is where I will send my letter along with dozens of blurbs from different sites and news articles. If you want to send something the address I have is: 15 Bonnell Ln., Randolph, NJ 07869
Stephanie
8 years ago
Has anyone who is severely floxed been forced to go to a physical therapist or had biofeedback? I am being forced to go tomorrow and was wondering from anyone who is like me and can barely walk. I use a cane and have sever spasms.
Has anyone who has these gone to physical therapy or biofeedback? I’m not happy about this but I agreeed to go to one and see how it goes.
Tracy Whiteside
8 years ago
I was just reading that the new head of the FDA, ( Funeral Directors Association) is also a Eugenicist, just like Margaret Hamburg, who needs to be rotting in prison, forever, hideous mass murdering monsters.
Tom
8 years ago
I am 12 days post-floxing (after 3 days 500mgx2 of Cipro). Mainly I have the muscle aches, joint and tendon pains (ankles, wrist, mostly on right side) but now a fun new symptom- insomnia. For the past few nights I just cannot get into a real sleep phase, its like my system is all wired even though I’m exhausted when I lay down in bed. Any tips from those of you who had sleepless nights? I know that lack of sleep will delay my recovery so I really need to get some sleep hours in. Oh yeah, and occasionally I am suddenly really intolerant to cold and get chills. I am of course terrified of what is to come and that I will be a long term victim. Luckily I stopped my prescription when I woke up feeling achy all over like I had the flu.
I am taking magnesium supplements and spraying magnesium oil on my aching tendons nightly, and trying to eat well, lots of fruit and yogurt, fluoride free bottled water, etc. Also taking a probiotic. Very scared as am the sole financial support for my family and just started a new job.
Brandy
8 years ago
My lips have now gone numb, any one else have this. What can I do for it.
Tom
8 years ago
L- how on earth did you function with no sleep? That can destroy your body as badly as floxing. I am determined not to complicate this issue with any other pharmaceutcials, although I’m willing to try supplements.
Andy P
8 years ago
Once the pins and needles and nerve pain take hold of you is there any coming back,I am four months out now doing everything I can but the symptoms keep coming
I can just about walk but with severe pain and muscle loss
I went to a pyhsio who said I have ea low pain threshold and it’s all in my head and I need to excercise.So that’s now on my medical records which screws me for any disability if I need it in the future
The nerve pain is relentless almost like shingles everywhere in my body,even my genitals
Suicidal thoughts fill my every wakening hour now and I’ve lost all hope
Cindy
8 years ago
Apparently according to this link there is a test for connective tissue diseases.
Hello All,
Just wanted to give an update in order to give hope to anyone reading this. I am in month 9 now. Took Cipro for 40! days for a supposed prostate infection. I concede that my reaction to the poison was not as severe as many other people’s reaction. Initial symptoms were numbness and tingling in my face, hands and feet. Constant headaches, dizziness, blurred vision, black specks in my vision. Aches in my abdominal area. Aches in my shins. Carpal tunnel symptoms started in both hands at night. My Dr attributed all of these symptoms to anxiety, but I found it hard to believe that these cluster of symptoms all started during and after the 5+ week course of Cipro.
My anxiety was horrible, made worse by my worry that I may have had Multiple Sclerosis. I went to a Neurologist who ruled out MS. I also subsequently went to a leading Urologist in my city who told me that the vast majority of prostatitis cases are not alleviated by CIPRO and that I shouldnt have been on CIPRO for so long. The Neurologist also said that I was on the medication for way to long.
.During the first few months I started taking Ativan so that I could sleep. . I went through several weeks of insomnia and constant sweating. My Dr. also tried to put me on Paxil. This magnified my symptoms, believe it or not.
One day I woke up very angry and decided to take my life back. I weened myself off of the paxil and ativan. After being prescribed the CIPRO i just didnt trust my doctor anymore, and as a result decided to get off of anything she had prescribed me. It was horrible hell for weeks. I did ween myself off all medication. My doctor refused to attribute my symptoms to CIPRO. Before Cipro I was in excellent health – I kept telling her- what are the chances ALL of these symptoms popped up within weeks of taking CIPRO? Connect the dots, I told her. She refused to concede, even after I showed her print outs of all of the FDA warnings.
Things started to turn around for me after I started taking powerful probiotics. I supplemented with Magnesium, Vitamin C, and the B vitamins. Had daily Magnesium baths at night. I exercised daily. I took my family and went to the Mediterranean for 4 weeks. Daily swims, lying in the sun. Relaxing really helped. Now matter how horrible I felt I pulled myself out of bed, or off of the couch, and started moving. Just move. Stretch, move more. Walk. I learned a lot about myself and what I could endure during the darkest times of my life.
Month 9 now, and I think Im about 90% back to where I was before the poison. I still get some tingling in my legs and face. Carpal tunnel still occurs at night. Im not as dizzy, and there are days where I feel completely normal, other days where i think I have regressed.
This horrible poison destroys lives, it also affects the loved ones of the victim. Anyhow, if you are reading this and you need some hope , this is the best website on the internet. Read all of the stories of all the people here, keep moving, keep taking your vitamins, never give up. Never!
L
8 years ago
That’s great Jim. Sounds like you are doing all the right things. I can remember saying virtually the same thing to so many doctors “so it is just a HUGE coincidence that ALL of these dozens of side effects, all just happened to occur after the Cipro?” Dr Jay Cohen’s book should be mandated reading.
Keep up the good work. As for me, I am now leaving Floxie Hope. I am finding many of the posts (not yours) just too stressful to deal with. I wish everyone a good recovery.
Ahmdi
8 years ago
Hi all,
Can i use Manuka Honey for ma epididymitis
(I use cipro don’t cure me, cefixime also not cure me helped me 60% but not cured me completely) now i have epididymitis for about 2months and is Manuka Honey effective in epididymitis(infection because antibiotic helped me)?
God bless everyone who this has happened to, it happened to me 4 years ago next month, and I can’t believe a person can feel this bad! Dr’s won’t listen, your entire body mind and soul are malfunctioning and you can’t get your dr to even aknowledge that your sick much less try to help you, it’s like there afraid there going to get sued! Anyway I have found some hope for folks after 3 and a half years of this horrible excistance I went to see my Dr again I was so sick I couldn’t take it anymore, when I was in my appt. I was having the tremors real bad and he could hear me wheezing, from the constant mucus production 24 7 , and he finally said to me oh looks like that stuff destroyed your central nervous system and he put me on a medicine called klonopin, it helped 90 percent of my symptoms the first dose! I don’t want you folks to think I feel normal or great because I dont, every day is still a challenge, but I can FUNCTION AGAIN and even get out of my house and do some fun things again, anyway just wanted folks to know this medicine has really helped alot! It is a sedative that calms the nervous system which in turn calms everything else down! Sadly it does nothing for the horrible tendonitis. Rather you know it or not all those unexplainable symptoms from head to toe your having are because your nervous system has been damaged, destroyed really. Try it your life WILL IMPROVE!
This link contains a lot of information, including links to various other useful sites, help for withdrawal from psychotropics & more for anyone interested. Also links to various support groups etc & information on many alternative solutions to taking psychotropic drugs.
https://beyondmeds.com/benzos/
Hi again
I’ve been ill all week with gastroenteritis, and have just found blood in my urine. I can’t get to see the doctor till Tuesday. If they diagnose an infection I don’t want antibiotics. Is there anything I can do to treat it naturally?
Thanks
I want to tell you little about me and i need really your help.
4months ago i use 1tablets of cipro for UTI and, 2months ago i use 1tablets of cipro(and now i floxed) for epididymitis but cipro doesn’t heal me, and than my doctor give me Cefixime i try this this helped me around 60% but i have pain in today in my left testicle(mild-normal pain not much pain but i have pain this pain really is so bad, badest that all have pain of floxed syndrome)and i stopped antibiotics i try some natural remediea like yarrow herb, garlic, organic honey etc but doesn’t heal me, i try too oregano oil but i can’t use it cuz make my heart palpilations very hard and now o stay play laugh with my pain i don’t know what to do is anyone suggest me ani natyral remediea or suggest me to take antibiotics or what please really i need your help.
Peace 🙂
Ahmdi , there is unfortunately no one magic wand for this, in my experience & opinion it is time passing by & time alone which is actually the biggest factor in this whole sorry saga, healing is time related most of all. This will eventually show you how much you have been injured, & also how much you will improve or even potentially feel recovered.
Various things can help along the way yes, but it is different for everyone, for example magnesium can help a lot but it can also harm & some of us cant take it , pain relief is also different for everyone as we all have different tolerance levels to pain & suffer various different types of pain. Kratom has helped some quite a lot with the pain, however in some places it has now been banned, I have no other choice now but to take opioids myself . in regards to your problem with infection right now however, I was just wondering if you belong to the male only flox group on FB ? you might at least get some more specific advice for Epididymitis those testicular symptoms from there.
https://www.facebook.com/groups/595139243905692/
Hi
I feel that the stomach bug I’ve just had has caused my flox symptoms to flare up in a big way. Gone right back to where I was 3 years ago. Has anyone else experienced this, and is it likely to resolve or have I really gone back to square one?
Heart palpitations came back to me these are the biggest problem for me what is the solution, just only one pill of the avelox changed my life
Please help me I have fibromyalgia, major depressive disorder, generalized anxiety disorder. I took Ciprofloaxin for 4 days and stopped it and about 3 days later I awoke with stiff muscles, panic attacks (which were not an issue before) and I lost 10lbs in 2nweeks tendons in upper leg are so painful across groin and all of my fibromyalgia issues are unbearable. It’s been 6 weeks and my whole body feels as if muscles are spontaneously contracting. I have become suicidal and NONE of this was going on before the Cipro! I feel as if I’m losing my mind. My dr did a blood test which he said showed no signs of inflammation but something is wrong. Someone please help and tell me if this sounds like a toxicity problem or if something else. I do not want to go to a psychiatric hospital as they will have no regard for the pain. Please help. I do not know where to turn.
well, this is rich. The doctor whose signature is at the end of the Bayer letter, Dario F Mirski, is a PSYCHIATRIST. When I think of all the mental anguish, stress, depression, suicides, that this causes, I am fuming even more. I have written a letter now I just need to find an email address for him. May have to actually call his New Jersey office.
so…when I look up dario mirski, I can find no email addresses. I called one phone number listed as his office number and got a very obviously private woman’s voice mail. When I look him up on the NJ medical board site, I can not find him in a search. I finally found a street address for a property he owns, so that is where I will send my letter along with dozens of blurbs from different sites and news articles. If you want to send something the address I have is: 15 Bonnell Ln., Randolph, NJ 07869
Has anyone who is severely floxed been forced to go to a physical therapist or had biofeedback? I am being forced to go tomorrow and was wondering from anyone who is like me and can barely walk. I use a cane and have sever spasms.
Has anyone who has these gone to physical therapy or biofeedback? I’m not happy about this but I agreeed to go to one and see how it goes.
I was just reading that the new head of the FDA, ( Funeral Directors Association) is also a Eugenicist, just like Margaret Hamburg, who needs to be rotting in prison, forever, hideous mass murdering monsters.
I am 12 days post-floxing (after 3 days 500mgx2 of Cipro). Mainly I have the muscle aches, joint and tendon pains (ankles, wrist, mostly on right side) but now a fun new symptom- insomnia. For the past few nights I just cannot get into a real sleep phase, its like my system is all wired even though I’m exhausted when I lay down in bed. Any tips from those of you who had sleepless nights? I know that lack of sleep will delay my recovery so I really need to get some sleep hours in. Oh yeah, and occasionally I am suddenly really intolerant to cold and get chills. I am of course terrified of what is to come and that I will be a long term victim. Luckily I stopped my prescription when I woke up feeling achy all over like I had the flu.
I am taking magnesium supplements and spraying magnesium oil on my aching tendons nightly, and trying to eat well, lots of fruit and yogurt, fluoride free bottled water, etc. Also taking a probiotic. Very scared as am the sole financial support for my family and just started a new job.
My lips have now gone numb, any one else have this. What can I do for it.
L- how on earth did you function with no sleep? That can destroy your body as badly as floxing. I am determined not to complicate this issue with any other pharmaceutcials, although I’m willing to try supplements.
Once the pins and needles and nerve pain take hold of you is there any coming back,I am four months out now doing everything I can but the symptoms keep coming
I can just about walk but with severe pain and muscle loss
I went to a pyhsio who said I have ea low pain threshold and it’s all in my head and I need to excercise.So that’s now on my medical records which screws me for any disability if I need it in the future
The nerve pain is relentless almost like shingles everywhere in my body,even my genitals
Suicidal thoughts fill my every wakening hour now and I’ve lost all hope
Apparently according to this link there is a test for connective tissue diseases.
http://www.cityassays.org.uk/Immunology/ANA%20&%20DNA%20test.html
Hello All,
Just wanted to give an update in order to give hope to anyone reading this. I am in month 9 now. Took Cipro for 40! days for a supposed prostate infection. I concede that my reaction to the poison was not as severe as many other people’s reaction. Initial symptoms were numbness and tingling in my face, hands and feet. Constant headaches, dizziness, blurred vision, black specks in my vision. Aches in my abdominal area. Aches in my shins. Carpal tunnel symptoms started in both hands at night. My Dr attributed all of these symptoms to anxiety, but I found it hard to believe that these cluster of symptoms all started during and after the 5+ week course of Cipro.
My anxiety was horrible, made worse by my worry that I may have had Multiple Sclerosis. I went to a Neurologist who ruled out MS. I also subsequently went to a leading Urologist in my city who told me that the vast majority of prostatitis cases are not alleviated by CIPRO and that I shouldnt have been on CIPRO for so long. The Neurologist also said that I was on the medication for way to long.
.During the first few months I started taking Ativan so that I could sleep. . I went through several weeks of insomnia and constant sweating. My Dr. also tried to put me on Paxil. This magnified my symptoms, believe it or not.
One day I woke up very angry and decided to take my life back. I weened myself off of the paxil and ativan. After being prescribed the CIPRO i just didnt trust my doctor anymore, and as a result decided to get off of anything she had prescribed me. It was horrible hell for weeks. I did ween myself off all medication. My doctor refused to attribute my symptoms to CIPRO. Before Cipro I was in excellent health – I kept telling her- what are the chances ALL of these symptoms popped up within weeks of taking CIPRO? Connect the dots, I told her. She refused to concede, even after I showed her print outs of all of the FDA warnings.
Things started to turn around for me after I started taking powerful probiotics. I supplemented with Magnesium, Vitamin C, and the B vitamins. Had daily Magnesium baths at night. I exercised daily. I took my family and went to the Mediterranean for 4 weeks. Daily swims, lying in the sun. Relaxing really helped. Now matter how horrible I felt I pulled myself out of bed, or off of the couch, and started moving. Just move. Stretch, move more. Walk. I learned a lot about myself and what I could endure during the darkest times of my life.
Month 9 now, and I think Im about 90% back to where I was before the poison. I still get some tingling in my legs and face. Carpal tunnel still occurs at night. Im not as dizzy, and there are days where I feel completely normal, other days where i think I have regressed.
This horrible poison destroys lives, it also affects the loved ones of the victim. Anyhow, if you are reading this and you need some hope , this is the best website on the internet. Read all of the stories of all the people here, keep moving, keep taking your vitamins, never give up. Never!
That’s great Jim. Sounds like you are doing all the right things. I can remember saying virtually the same thing to so many doctors “so it is just a HUGE coincidence that ALL of these dozens of side effects, all just happened to occur after the Cipro?” Dr Jay Cohen’s book should be mandated reading.
Keep up the good work. As for me, I am now leaving Floxie Hope. I am finding many of the posts (not yours) just too stressful to deal with. I wish everyone a good recovery.
Hi all,
Can i use Manuka Honey for ma epididymitis
(I use cipro don’t cure me, cefixime also not cure me helped me 60% but not cured me completely) now i have epididymitis for about 2months and is Manuka Honey effective in epididymitis(infection because antibiotic helped me)?