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joanneg
8 years ago
Hi Everyone,
This is just an update of my relapse and what I have tried to get better.
As i posted, in mid July I felt so good I quit all my supplements, which were magnesium, colostrum and probiotics. I did great until the first week in Sept., and ALL my symptoms came back really bad almost like the beginning when it was totally unbearable.
So I thought “ok this sucks I’m not healed”, and I figured I’d just start taking my supplements again and I”ll at least get back to where I was. But I just kept getting worse! I even went to the hospital and my regular Dr., which I haven’t been to either after the first year because I realized they couldn’t help. But I was sooo bad, my head was so soupy/dizzy,my brain was shaking,I was feeling so faint, my vision got extremely blurry, my insomnia came back and my stomach was wrenching again, I couldn’t think, remember, do tasks, I felt I was loosing my mind again and at a very rapid pace.
At the hospital they told me my thyroid was off the charts. I think the acceptable range is 0.5-4.0 and mine was 18.850, which meant I was hypothyroid. So they gave me a Rx for 50mcg of Levothyroxine (generic synthroid).
The first dose worked great! It took a lot of my soupy/dizzy head away but not all of it and only lasted about 8 hours But that night at 3:00 am while sleeping I started to get a migraine and a crazy charlie horse in my right bicep. Anyhow, the migraine was so bad I thought I was going to throw up and it lasted till 7:30 pm. So the next day I went to my regular Dr. and had it switched to Armour thyroid (this is a natural thyroid med from pig thyroid) but long story short I had to stop that one too because even a piece of the smallest dose I was racing out of mind. For example, I’m usually in bed by 10:00pm, well on it I was scrubbing my kitchen floor at 12 midnight and at 3 am I felt like I could go outside and build a house. So I just stopped it for now my Dr. doesn’t even know yet, and I still don’t know what I’m gonna do about that, but I do get another blood test in 6 weeks to check levels and we’ll go from there.
BUT why I’m really posting, is I want everyone to know I was so sick, and tired, and desperate (as I know we all are) that today I tried what feels like the last tool in my box: The Fecal Matter Transplant !!! I used my husband as the donor, i did it at home myself, I was so desperate it didn’t bother me at all, and within a couple hours I felt almost normal. Now this is only my first day, but I already got tremendous relief I just pray it not only continues but that it will ultimately heal me completely.
I will keep you all posted whether it be good or bad news. But, as clear as my head and eyes are and how much better my stomach is I am very hopeful.
Here is the website I was reading on the FMT. http://thepowerofpoop.com/tracy-macs-story/ There are a lot of testimonies of people who’s stomach’s were devastated by antibiotics, and some even mention Cipro.
joanneg
8 years ago
This is an excellent site that explains the destruction of antibiotics and very detailed information of how gut flora, FMT and probiotics help maintain your physical and mental health http://eatsh-tandlive.com/.
I never hear about this FT, but i see this is very effective and very safe to perform this.
But my question is:
I’m floxed with mild60%/40%intermediate reaction and my microbioma it restored automaticlly without FT or without probiotics suppl, only with prebiotics foods and good diet?
Because in my country not have this method FT and i think suppl are not good like medications for human body!
A
8 years ago
Hi Joanneg
Is there s specific test to check for gut problems due to antibiotics.
A
8 years ago
Ryan L
Thanks so much. I’m getting ready to look at the link now.
Faisal
8 years ago
Any idea or new information about heart palpitations , today I’m sick and my heart rate 120
John
8 years ago
Hey Lisa…I would like to write my recover story…how do I go about doing so?
Candice
8 years ago
Do you know any good treatment providers regarding Cipro poisoning. I believe my mother is currently affected. Thank you for your time. Take care.
Cindy
8 years ago
Andy What meds are you taking?
Some people improve after stopping supplements.
Are you exercising to encourage the production of endorphins the bodys natural pain killers and anti depressants?
Have u tried magnesium cream and/or spray ?
Laila
8 years ago
Thank you very much for such a useful information! Just today i was prescribed Levoquin for tonsilitis…..i went to my local Walgreens and filled the script within 5 sec…they didn’t warn me about anything and i am a regular customet there..they just enclosed the regular px pages..as i get i start reading it…my eyes poped…i googled it and was it total shock…..how come my ENT doctor would give me something like this!!!! I am.40 years old single mom of 2 and thise kids need me!
I never take anything without googling it first and this time was no exeption. I just can’ t trust him anymore! Why he wanted to kill me?
There is tonns of other option out there.
I want to warn everybody don’ t just trust your doctors!!!! Do yourself a favor and do ypur own research and this can save your life as it did mine today!!
God Bless!!
Laila
8 years ago
I read all.the comments and my heart is breaking because how many people have been terribly affected and those poison drugs are still on market!!!! Why? Why they keep poisoning us? We turn to doctors sometimes pay our last money..to get relief not not became disable for life…we trust the doctors..for what..for them to kill.us…
I totally lost my trust in doctors after this prescription he handed me with a smile…i wonder if he realized that he handed me poison..which then been dispense by my pharmacist without any warning or caution..
Amy
8 years ago
My primary doc referred me to a functional or integrative doc/specialist. She is finally believing that there truly is something happening with my body. From how she described these docs- it gave me a little hope for some help or new ideas. Has anyone seen these type of doctors?
Laila
8 years ago
Thank you for your reply to my comment Lisa.
I just read the warning its so scary.
When i came to the doctor i was on my 3rd day of Zpack which never gives me sude effects but not that strong…i do have tonsillitis and strep throat occasionally and this time i got sick on the weekend as usual so i started my Zpack. The doctor didn’ t like rhat i started a Zpack but i had no choice i had 102 fever and pain my tonsils were all white from pus.anyway he said he can’t check me for strep now because i been on Zpack. My condition was very much improved but not 100% he checked my throat in special equipment and said its not bad at all…but he will switch me to something BETTER i like that! To spead up my recovery and since i already had a strep throat 2 years ego ( nothinh unusual when you have kids in school) That when i got Levaquin….
I want to thank you very much for all of your efforts because today you literally saved my life!
And i want to wish all of you quick and easy recovery. I will keep you in my prayers!!!!
Hello everyone,
I wanted to share a recent experience of a fellow work mate of my fathers. She came over from the UK to CA USA for a business meeting. While she was here in the states she experienced a reaction her face swelled up and broke out she looked like someone beat her with a club. I think she had a hard time breathing. They rushed her in for medical treatment. They thought she was having anaphylactic shock from sea food in a soup she ate. Nope. Guess what the doctors found out? She ate Chicken here in the US and she had an adverse reaction to antibiotics in the meat! So they treated her and she is doing fine.
Catherine P
8 years ago
Has anyone else experienced extreme vertigo and lightheadedness? Since my flare up earlier this month, these symptoms have been so bad that I cannot lift my head off the pillow.?has anyone else had this, or found anything that helps. I don’t understand why it has suddenly got so bad, and am scared it will never go off.
Thanks
JohnO
8 years ago
Hi everyone I was floxed on August, 25 pills ciprohcl ,you guys are really helping me out recoving kind off hopefully 🙂 here’s a list of supplements I’ve been taking may be some suggestions 2 magnesium glucinate 800mg morning 600 at night helps me sleep,Multivitamins 1 a day, vitc 1000mg,vita8000iu and if I get anxious or depressed I have Ltheanine 200mg if anybody likes junk food like me here’s what I can eat with out flare ups hot Cheetos,tacobell beef not chicken trust me,handmade lemonade not alot of sugar,bbq lays I hope all of us recover fully 🙂
Ahmdi
8 years ago
Hi all,
Today i eat some meat (sausage and organ meats) and my symptoms made worsened, i don’t know there meat are organic but my question is:
For floxed people is it healthy to eat red meats organic(non-organic meat is bad for everyone)?
For floxed people is it healthy to eat organ meats organic?
veteran floxie
8 years ago
Hi folks, I need your help, i have relapsed into sleep myoclonis due to a herpes infection i got three months ago, i have controlled the virus with rectal ozone, I am five years post floxed and my sleep had been soso until now, but not well, i had insomnia but the myoclonic jerks were not that bad.
Last night the jerks kept waking me up all night long so that i could not get any sleep beyond an hour, so i just rest in bed and try to add up hours of intermittent sleep, i go to sleep at 9 p.m. and i get up at 9 a.m. this morning i got up at 10, i feel more tired than usual, after getting floxed the fatigue remained permantly but i try to manage it and live with it.
I have been taking magnesium and melatonin to try and get at least 4 to 5 hours of sleep without waking up, the melatoni had been helping with the jerks, i was taking 1.5 mg if i take more i get nightmares. last night i took 5mg and it did not work.
Before the herpes infection i had managed to eat regular food without too many problems, i try to not eat sugar or gluten, yesterday i had two bananas and some milk, and at lunch i had some chicken (it was salty) i try to stay on a low salt diet, and in the afternoon i ate two popsicles (sugar), it was a hot day and i had been sweating a bit.
I think all these things added up to the imbalance of electrolytes in my body and made the myoclonic jerks flare up,
My question is, does anyone have any ideas, theories, thoughts, advice on how to heal the myoclonic jerks,
I took magnesium last night, but i still could not stop the jerks, and the melatonin whihc had worked before suddenly did not help much, i am thinking of seeing a homeopathic doctor and see if there is something for myoclonus,
Today i am going back on a veggie and fruit diet with some electrolytes to alkalinize my system hoping this will help, it is what i had been doing since i got the herpes infection but i strayed and the myoclonic jerks came on with a vengeance.
Any thoughts or advice would be grealy appreciated,
On a side note i want to add that what jason is warning about glutathione is correct, i am in an ozone group and they explained it also, it moves mercury around and it will create nothing but problems in the long run, why do doctors use it? because they have not studied the data on it very well.
Thank you all for your kindness, and if there is anything i can do to help let me know, we are in this battle alone, we only have each other.
joanneg
8 years ago
Hi Everyone,
Just an update on the FMT.
Well I only did 2, both times it was almost immediate relief of (80-90%) of all symptoms, and it lasted about 12 hrs each time, but then all symptoms came back.
With it being such quick relief (within an hour) and not sustainable, it makes me wonder that it’s probably not the bacteria, but maybe the nutrients in it that were helping me?? I don’t know. But with that thought I was wondering if anybody here has tried the Transdermal Patches by http://www.patchmd.com/ ??
I just ordered the Multi Vitamin Plus, and I will post if they help with any of my symptoms.
Also, I stopped doing the FMT’s (for now) for a few reasons one was because of a fellow floxie who blogged and posted his 5 year journey and the number of things he has tried to overcome this hell, and he’s still battling according to his last post. He mentions FMT in his site, but I haven’t found if he actually did it, and I don’t want to do them just for relief I’m looking for a cure. So in the meantime, I’ll still be searching for a floxie that may have been cured by it.
But I’m so glad I found his site because many of the things he has tried are things I was going to try. Lufenuron being one which is a veterinarian product that some people have used to try and kill candida, and also the probiotic retention enemas was
another thing. I thought maybe it can be used in place of the FMT ?? Still I just don’t know.
But this guy reminds me of myself in regards to what I research and what I want to try to get some healing.
For now, I’m going to stick with the supplements (magnesium, colostrum, and probiotics) that helped me sooo much, before quitting them and getting myself in this horrible relapse. But I’ll also add the transdermal vitamin patch and let everyone know if they help.
Ahmdi
8 years ago
Most say cut gluten cut wheat cut bread,
But really i can’t live without bread.
Today i eat much bread and my body really it feels so much energetic, much happy.
I love my bread till i die ∞ 🙂
Hi Everyone,
This is just an update of my relapse and what I have tried to get better.
As i posted, in mid July I felt so good I quit all my supplements, which were magnesium, colostrum and probiotics. I did great until the first week in Sept., and ALL my symptoms came back really bad almost like the beginning when it was totally unbearable.
So I thought “ok this sucks I’m not healed”, and I figured I’d just start taking my supplements again and I”ll at least get back to where I was. But I just kept getting worse! I even went to the hospital and my regular Dr., which I haven’t been to either after the first year because I realized they couldn’t help. But I was sooo bad, my head was so soupy/dizzy,my brain was shaking,I was feeling so faint, my vision got extremely blurry, my insomnia came back and my stomach was wrenching again, I couldn’t think, remember, do tasks, I felt I was loosing my mind again and at a very rapid pace.
At the hospital they told me my thyroid was off the charts. I think the acceptable range is 0.5-4.0 and mine was 18.850, which meant I was hypothyroid. So they gave me a Rx for 50mcg of Levothyroxine (generic synthroid).
The first dose worked great! It took a lot of my soupy/dizzy head away but not all of it and only lasted about 8 hours But that night at 3:00 am while sleeping I started to get a migraine and a crazy charlie horse in my right bicep. Anyhow, the migraine was so bad I thought I was going to throw up and it lasted till 7:30 pm. So the next day I went to my regular Dr. and had it switched to Armour thyroid (this is a natural thyroid med from pig thyroid) but long story short I had to stop that one too because even a piece of the smallest dose I was racing out of mind. For example, I’m usually in bed by 10:00pm, well on it I was scrubbing my kitchen floor at 12 midnight and at 3 am I felt like I could go outside and build a house. So I just stopped it for now my Dr. doesn’t even know yet, and I still don’t know what I’m gonna do about that, but I do get another blood test in 6 weeks to check levels and we’ll go from there.
BUT why I’m really posting, is I want everyone to know I was so sick, and tired, and desperate (as I know we all are) that today I tried what feels like the last tool in my box: The Fecal Matter Transplant !!! I used my husband as the donor, i did it at home myself, I was so desperate it didn’t bother me at all, and within a couple hours I felt almost normal. Now this is only my first day, but I already got tremendous relief I just pray it not only continues but that it will ultimately heal me completely.
I will keep you all posted whether it be good or bad news. But, as clear as my head and eyes are and how much better my stomach is I am very hopeful.
Here is the website I was reading on the FMT. http://thepowerofpoop.com/tracy-macs-story/ There are a lot of testimonies of people who’s stomach’s were devastated by antibiotics, and some even mention Cipro.
This is an excellent site that explains the destruction of antibiotics and very detailed information of how gut flora, FMT and probiotics help maintain your physical and mental health
http://eatsh-tandlive.com/.
http://www.drdavidwilliams.com/how-to-perform-a-fecal-transplant/
More about Fecal transplant.
I never hear about this FT, but i see this is very effective and very safe to perform this.
But my question is:
I’m floxed with mild60%/40%intermediate reaction and my microbioma it restored automaticlly without FT or without probiotics suppl, only with prebiotics foods and good diet?
Because in my country not have this method FT and i think suppl are not good like medications for human body!
Hi Joanneg
Is there s specific test to check for gut problems due to antibiotics.
Ryan L
Thanks so much. I’m getting ready to look at the link now.
Any idea or new information about heart palpitations , today I’m sick and my heart rate 120
Hey Lisa…I would like to write my recover story…how do I go about doing so?
Do you know any good treatment providers regarding Cipro poisoning. I believe my mother is currently affected. Thank you for your time. Take care.
Andy What meds are you taking?
Some people improve after stopping supplements.
Are you exercising to encourage the production of endorphins the bodys natural pain killers and anti depressants?
Have u tried magnesium cream and/or spray ?
Thank you very much for such a useful information! Just today i was prescribed Levoquin for tonsilitis…..i went to my local Walgreens and filled the script within 5 sec…they didn’t warn me about anything and i am a regular customet there..they just enclosed the regular px pages..as i get i start reading it…my eyes poped…i googled it and was it total shock…..how come my ENT doctor would give me something like this!!!! I am.40 years old single mom of 2 and thise kids need me!
I never take anything without googling it first and this time was no exeption. I just can’ t trust him anymore! Why he wanted to kill me?
There is tonns of other option out there.
I want to warn everybody don’ t just trust your doctors!!!! Do yourself a favor and do ypur own research and this can save your life as it did mine today!!
God Bless!!
I read all.the comments and my heart is breaking because how many people have been terribly affected and those poison drugs are still on market!!!! Why? Why they keep poisoning us? We turn to doctors sometimes pay our last money..to get relief not not became disable for life…we trust the doctors..for what..for them to kill.us…
I totally lost my trust in doctors after this prescription he handed me with a smile…i wonder if he realized that he handed me poison..which then been dispense by my pharmacist without any warning or caution..
My primary doc referred me to a functional or integrative doc/specialist. She is finally believing that there truly is something happening with my body. From how she described these docs- it gave me a little hope for some help or new ideas. Has anyone seen these type of doctors?
Thank you for your reply to my comment Lisa.
I just read the warning its so scary.
When i came to the doctor i was on my 3rd day of Zpack which never gives me sude effects but not that strong…i do have tonsillitis and strep throat occasionally and this time i got sick on the weekend as usual so i started my Zpack. The doctor didn’ t like rhat i started a Zpack but i had no choice i had 102 fever and pain my tonsils were all white from pus.anyway he said he can’t check me for strep now because i been on Zpack. My condition was very much improved but not 100% he checked my throat in special equipment and said its not bad at all…but he will switch me to something BETTER i like that! To spead up my recovery and since i already had a strep throat 2 years ego ( nothinh unusual when you have kids in school) That when i got Levaquin….
I want to thank you very much for all of your efforts because today you literally saved my life!
And i want to wish all of you quick and easy recovery. I will keep you in my prayers!!!!
Hello everyone,
I wanted to share a recent experience of a fellow work mate of my fathers. She came over from the UK to CA USA for a business meeting. While she was here in the states she experienced a reaction her face swelled up and broke out she looked like someone beat her with a club. I think she had a hard time breathing. They rushed her in for medical treatment. They thought she was having anaphylactic shock from sea food in a soup she ate. Nope. Guess what the doctors found out? She ate Chicken here in the US and she had an adverse reaction to antibiotics in the meat! So they treated her and she is doing fine.
Has anyone else experienced extreme vertigo and lightheadedness? Since my flare up earlier this month, these symptoms have been so bad that I cannot lift my head off the pillow.?has anyone else had this, or found anything that helps. I don’t understand why it has suddenly got so bad, and am scared it will never go off.
Thanks
Hi everyone I was floxed on August, 25 pills ciprohcl ,you guys are really helping me out recoving kind off hopefully 🙂 here’s a list of supplements I’ve been taking may be some suggestions 2 magnesium glucinate 800mg morning 600 at night helps me sleep,Multivitamins 1 a day, vitc 1000mg,vita8000iu and if I get anxious or depressed I have Ltheanine 200mg if anybody likes junk food like me here’s what I can eat with out flare ups hot Cheetos,tacobell beef not chicken trust me,handmade lemonade not alot of sugar,bbq lays I hope all of us recover fully 🙂
Hi all,
Today i eat some meat (sausage and organ meats) and my symptoms made worsened, i don’t know there meat are organic but my question is:
For floxed people is it healthy to eat red meats organic(non-organic meat is bad for everyone)?
For floxed people is it healthy to eat organ meats organic?
Hi folks, I need your help, i have relapsed into sleep myoclonis due to a herpes infection i got three months ago, i have controlled the virus with rectal ozone, I am five years post floxed and my sleep had been soso until now, but not well, i had insomnia but the myoclonic jerks were not that bad.
Last night the jerks kept waking me up all night long so that i could not get any sleep beyond an hour, so i just rest in bed and try to add up hours of intermittent sleep, i go to sleep at 9 p.m. and i get up at 9 a.m. this morning i got up at 10, i feel more tired than usual, after getting floxed the fatigue remained permantly but i try to manage it and live with it.
I have been taking magnesium and melatonin to try and get at least 4 to 5 hours of sleep without waking up, the melatoni had been helping with the jerks, i was taking 1.5 mg if i take more i get nightmares. last night i took 5mg and it did not work.
Before the herpes infection i had managed to eat regular food without too many problems, i try to not eat sugar or gluten, yesterday i had two bananas and some milk, and at lunch i had some chicken (it was salty) i try to stay on a low salt diet, and in the afternoon i ate two popsicles (sugar), it was a hot day and i had been sweating a bit.
I think all these things added up to the imbalance of electrolytes in my body and made the myoclonic jerks flare up,
My question is, does anyone have any ideas, theories, thoughts, advice on how to heal the myoclonic jerks,
I took magnesium last night, but i still could not stop the jerks, and the melatonin whihc had worked before suddenly did not help much, i am thinking of seeing a homeopathic doctor and see if there is something for myoclonus,
Today i am going back on a veggie and fruit diet with some electrolytes to alkalinize my system hoping this will help, it is what i had been doing since i got the herpes infection but i strayed and the myoclonic jerks came on with a vengeance.
Any thoughts or advice would be grealy appreciated,
On a side note i want to add that what jason is warning about glutathione is correct, i am in an ozone group and they explained it also, it moves mercury around and it will create nothing but problems in the long run, why do doctors use it? because they have not studied the data on it very well.
Thank you all for your kindness, and if there is anything i can do to help let me know, we are in this battle alone, we only have each other.
Hi Everyone,
Just an update on the FMT.
Well I only did 2, both times it was almost immediate relief of (80-90%) of all symptoms, and it lasted about 12 hrs each time, but then all symptoms came back.
With it being such quick relief (within an hour) and not sustainable, it makes me wonder that it’s probably not the bacteria, but maybe the nutrients in it that were helping me?? I don’t know. But with that thought I was wondering if anybody here has tried the Transdermal Patches by http://www.patchmd.com/ ??
I just ordered the Multi Vitamin Plus, and I will post if they help with any of my symptoms.
Also, I stopped doing the FMT’s (for now) for a few reasons one was because of a fellow floxie who blogged and posted his 5 year journey and the number of things he has tried to overcome this hell, and he’s still battling according to his last post. He mentions FMT in his site, but I haven’t found if he actually did it, and I don’t want to do them just for relief I’m looking for a cure. So in the meantime, I’ll still be searching for a floxie that may have been cured by it.
But I’m so glad I found his site because many of the things he has tried are things I was going to try. Lufenuron being one which is a veterinarian product that some people have used to try and kill candida, and also the probiotic retention enemas was
another thing. I thought maybe it can be used in place of the FMT ?? Still I just don’t know.
But this guy reminds me of myself in regards to what I research and what I want to try to get some healing.
Anyhow here’s his site http://ghn.thegraychannel.com/uncategorized/lufenuron-healing-pots-anxiety-introversion/. It’s very interesting to follow all the things he has tried.
For now, I’m going to stick with the supplements (magnesium, colostrum, and probiotics) that helped me sooo much, before quitting them and getting myself in this horrible relapse. But I’ll also add the transdermal vitamin patch and let everyone know if they help.
Most say cut gluten cut wheat cut bread,
But really i can’t live without bread.
Today i eat much bread and my body really it feels so much energetic, much happy.
I love my bread till i die ∞ 🙂