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Hi Lisa,
earlier i posted something on monopolar radiofrequency as a possible treatment for floxie. it came with links. as that post didn’t show up, i accidentally clicked on “post comment” several times. it hasn’t showed up perhaps need your approval. apologies for several same post! 🙂
Great to hear you are making slow but steadily progress.
I’m going to try Monopolar rf this sat. I will see how it goes. I will need the physio to target my shoulder which is killing me day and night.
I will check on the cartilage if it affects. Thanks.
the only good news is acupuncture seems to help with my ankle/plantar/knee pain. think my 2x a week with thousands of needles is paying off. what matters is long term..and we shall see.
Well I had another IV treatment and I am amazed at the fact as soon as it’s done the pain is gone. The inflammation is still there but it doesn’t hurt to bend my knees and use my ankle.
It only last a few days and then the pain comes back. Most of the inflammation is in my left foot and toes. Has anyone else experienced this? My foot swells so big that it is 3 times bigger then my other foot at times. Any suggestions?
On the bright side my brain is back and I think I have stopped losing weight.
I wish you all the best.
Michael
Casey
10 years ago
Just thought about leaving a little info of my situation. It has been 6 months now since taking cipro. I’ve had inflammation in every other tendon even thought I wasn’t gonna be to walk cuz of my calfes. Got popping almost everywhere in my body or cracking not sure. Every now and again feels like somebody is pulling my ribcage thru my body hate that feeling also cant turn my head left completely little pain. But the worst is that I cant have a proper bowl movement now. So to deal with this I eat gluten free and organic. But my lifesaver has been herbalife, I’ve been taking their gluten free shakes and about to take their 24 hour athlete shakes that has been certified banned from bio-engineered substances. I just happen to past this shop and noticed their card on the ground got curious and now I run their fit camp. Im almost back to the old athletic shape I was thanks to these products. Now it hasn’t been easy I still get the aches and pains and fibromyalgia like symptoms.
Crystal
10 years ago
Hello all!
I have a small victory to announce! My friend texted me this morning, after being prescribed Levaquin. After witnessing my reaction last year, she decided to read the insert – she saw that this antibiotic treats anthrax, and she immediately thought of me. Asked if that’s what I took, and I said “YES PLEASE GOD DON’T TAKE IT” but I also went on to explain there was a chance that she’d be okay but for her to make sure of these things:
don’t have caffeine
don’t have alcohol
don’t take steroids
don’t take NSAIDS
and drink lots of water!
She said her doctor didn’t warn her of any possible interactions, and was frustrated by that especially since she already has other health problems. I am so happy that I was able to prevent the possible life-long suffering of a friend.
Nick
10 years ago
I just wanted to share an epiphany that I have had that i plan to act on. I was flexed in Feb 14 but things were going funky for a while. I just realized that around Jan 2013, I started on a low calorie and low carb diet. I did this for over 7 months. lost weight, lost ton of strength, but felt not good. no energy, depression and fatigue. Sept 13 and oct 13 I started having anxiety and palpitations. went back to low calorie and low carb diet. Not much nutrients, mostly protein and some fiber. Energy was horrible. I wasn’t sure what was going wrong with me. I was hypothyroid before and put on some armor thyroid med but just decided to stop years prior. Feb 2014, 2 weeks after being floxed, my thyroid was way hypo both tsh, free t3, and free t4 were not even on scale. Add onto that a nice dose of poisonous cipro and…voila! I plan on getting my thyroid dealt with immediately. Seeing as it controls everything including cellular metabolism and mitochondria.
Den
10 years ago
I pick up occasional references from floxies to stem cell therapy but I can’t find anything specific. Is anyone here aware of any specific stem cell protocols that might have been tried by any floxies? and any feedback? I wonder specifically where the most promise might lie to aid in the recovery from the neurological damage imposed by fluoroquinolones. If anyone has any ideas/info I’d appreciate hearing from you. Thanks and best healing wishes to all.
Jenny
10 years ago
Yesturday I felt fully healed, today I feel like I fell off of a building. This sucks.
Diego Vasquez
10 years ago
Jenny that happens to me! I think this is the way the healing is! My thinking is that when we don’t sleep, do too much when we do feel good, stress, don’t eat healthy, etc trigger or dictate how we feel the next day! We will get there!!!!
Nick
10 years ago
Does anyone know what the next steps are. How do we get change? How to we get justice? It would seem that
a national politician being floxed or a huge celebrity would get the change we need.
Where do we go from here? How about research why they damage tendons? When does it stop. how do you heal it. Same for neuropathy. The pharmaceutical companies need to find this out for the millions they have hurt.
jimmy
10 years ago
Hi Sweetjan,
you wrote this in an earlier posting:
“Also I read someone in facebook said she has a weak connective tissue. Hobble and limping everywhere and after she supplement with HMB, now she walked with minimal pain and it saved her joint so greatly. always great to hear new recovery story!”
may i ask what supplement “HMB” is?
thanks.
Matt
10 years ago
I was prescribed a 10 day treatment of Cipro for epididymitis in my right testicle. After four or five days, the pain in my right testicle had begun to subside, but I continued the full 10 day cycle as instructed by the doctor. Around day eight, I began to have a dull pain in my left testicle that increased to an almost unbearable pain. I slept maybe an hour one night before using ice to numb the area.
Eventually, I was able to determine that the pain wasn’t actually in my left testicle but was coming from my inner thigh/inner hip region. The pain would radiate down the inside of my hip/thigh and into my left testicle and down my leg. This pain was much worse than the pain originally in my right testicle due to epididymitis. At this point, I started to research Cipro side effects, and I realized that I was experiencing nerve pain. I began taking magnesium supplements immediately, and they were very effective in reducing the nerve pain. In total, the pain lasted for two to three days.
Two weeks after beginning Cipro treatment, the nerve pain in my left thigh/inner hip had subsided, but it would still hurt if I moved my leg a certain way. Then, the tendonitis in my elbows and knees began to set in. This lasted for a few days as well.
After about a month, I was symptom free. I have not had any additional nerve pain or tendonitis since the last instances.
Jenny
10 years ago
Popping*
Debs
10 years ago
Your family as many people are , is completely blind to the fact that all antibiotics are not the same, do not work in the same way & the fact that the FQs are NOT your usual penicillin ,but instead synthetic neurotoxic , ( Classed as chemotherapeutic ) but are actually Chemotherapy, agents which MASQUERADE as antibiotics.
Most people when they hear the words Antibiotic side effect, only think of a possible anaphylactic reaction/rash or an upset stomach, & NOT DNA/Mitochondrial direct damage ( the FQs do not cause side effects in the usual sense, apart from those mentioned above as you cannot get side effects once you have stopped taking a drug). they would never consider irreversible cartilage damage/degeneration, ( which is a class effect of the FQs ), & intractable chronic pain so severe there is not a word in any language ,any dictionary to be found that does it justice. At the end of the day there are non so blind than those who REFUSE to see, & also non so deaf than those who refuse to hear.
We hear this time & time again , Most people will not get it unless they GET it unfortunately
TimF
10 years ago
Hi guys
I have a similar experience to JB in that i have been fine for 5 weeks post Cipro and now i have Brain Fog for a week constantly and occasional Neuropathy and fatigue, i did have brain fog when on Cipro but presumed it was gone for good when i stopped taking the drug.
JB did your brain fog clear up yet and how long did it take?
I feel like brain fog is the scariest, it affects my thinking and makes me very depressed, i just want to be my normal quick thinking fun self again.
What’s the best remedy for brain fog, i feel like i need to flush this stuff out pronto?
or will it go away on it’s own?
Can anyone recommend a brand of cod fish oil they use! I’m going to try this to get my vitamin d levels up! Thanks!
Michelle
10 years ago
Thank you for your story Lisa. Now I know I’m not crazy. I’m really scared. I think it’s the anxiety that is causing it. I’m going to read more of the info you have put out. Thank you…
Jen
10 years ago
Hey everyone. Did anyone go through nights with really bad joint pain/Nerve pain ..I can’t tell the difference. Every part of my body aches I feel like I have arthritis all over and my ribs are even cracking. This isn’t the first time this has happened since being floxed. Does it go away? And what can I do with nights like these. Please help:,( no one believes me.
Hi Lisa,
earlier i posted something on monopolar radiofrequency as a possible treatment for floxie. it came with links. as that post didn’t show up, i accidentally clicked on “post comment” several times. it hasn’t showed up perhaps need your approval. apologies for several same post! 🙂
Hi R,
Great to hear you are making slow but steadily progress.
I’m going to try Monopolar rf this sat. I will see how it goes. I will need the physio to target my shoulder which is killing me day and night.
I will check on the cartilage if it affects. Thanks.
the only good news is acupuncture seems to help with my ankle/plantar/knee pain. think my 2x a week with thousands of needles is paying off. what matters is long term..and we shall see.
Just last night, i got hold of this to help me sleep through the night
http://www.philips.com.sg/c/pain-therapy/infraphil-infrared-lamp-hp3616_01/prd/
i remember you use a infrared lamp in your office, under your desk and it help? i just recalled! 🙂
more on prolo :
http://www.journalofprolotherapy.com/index.php/questions-answers-about-prolotherapy/
Is “R” for Recovery? well named!
Recover well together,
Jarene
Well I had another IV treatment and I am amazed at the fact as soon as it’s done the pain is gone. The inflammation is still there but it doesn’t hurt to bend my knees and use my ankle.
It only last a few days and then the pain comes back. Most of the inflammation is in my left foot and toes. Has anyone else experienced this? My foot swells so big that it is 3 times bigger then my other foot at times. Any suggestions?
On the bright side my brain is back and I think I have stopped losing weight.
I wish you all the best.
Michael
Just thought about leaving a little info of my situation. It has been 6 months now since taking cipro. I’ve had inflammation in every other tendon even thought I wasn’t gonna be to walk cuz of my calfes. Got popping almost everywhere in my body or cracking not sure. Every now and again feels like somebody is pulling my ribcage thru my body hate that feeling also cant turn my head left completely little pain. But the worst is that I cant have a proper bowl movement now. So to deal with this I eat gluten free and organic. But my lifesaver has been herbalife, I’ve been taking their gluten free shakes and about to take their 24 hour athlete shakes that has been certified banned from bio-engineered substances. I just happen to past this shop and noticed their card on the ground got curious and now I run their fit camp. Im almost back to the old athletic shape I was thanks to these products. Now it hasn’t been easy I still get the aches and pains and fibromyalgia like symptoms.
Hello all!
I have a small victory to announce! My friend texted me this morning, after being prescribed Levaquin. After witnessing my reaction last year, she decided to read the insert – she saw that this antibiotic treats anthrax, and she immediately thought of me. Asked if that’s what I took, and I said “YES PLEASE GOD DON’T TAKE IT” but I also went on to explain there was a chance that she’d be okay but for her to make sure of these things:
don’t have caffeine
don’t have alcohol
don’t take steroids
don’t take NSAIDS
and drink lots of water!
She said her doctor didn’t warn her of any possible interactions, and was frustrated by that especially since she already has other health problems. I am so happy that I was able to prevent the possible life-long suffering of a friend.
I just wanted to share an epiphany that I have had that i plan to act on. I was flexed in Feb 14 but things were going funky for a while. I just realized that around Jan 2013, I started on a low calorie and low carb diet. I did this for over 7 months. lost weight, lost ton of strength, but felt not good. no energy, depression and fatigue. Sept 13 and oct 13 I started having anxiety and palpitations. went back to low calorie and low carb diet. Not much nutrients, mostly protein and some fiber. Energy was horrible. I wasn’t sure what was going wrong with me. I was hypothyroid before and put on some armor thyroid med but just decided to stop years prior. Feb 2014, 2 weeks after being floxed, my thyroid was way hypo both tsh, free t3, and free t4 were not even on scale. Add onto that a nice dose of poisonous cipro and…voila! I plan on getting my thyroid dealt with immediately. Seeing as it controls everything including cellular metabolism and mitochondria.
I pick up occasional references from floxies to stem cell therapy but I can’t find anything specific. Is anyone here aware of any specific stem cell protocols that might have been tried by any floxies? and any feedback? I wonder specifically where the most promise might lie to aid in the recovery from the neurological damage imposed by fluoroquinolones. If anyone has any ideas/info I’d appreciate hearing from you. Thanks and best healing wishes to all.
Yesturday I felt fully healed, today I feel like I fell off of a building. This sucks.
Jenny that happens to me! I think this is the way the healing is! My thinking is that when we don’t sleep, do too much when we do feel good, stress, don’t eat healthy, etc trigger or dictate how we feel the next day! We will get there!!!!
Does anyone know what the next steps are. How do we get change? How to we get justice? It would seem that
a national politician being floxed or a huge celebrity would get the change we need.
Where do we go from here? How about research why they damage tendons? When does it stop. how do you heal it. Same for neuropathy. The pharmaceutical companies need to find this out for the millions they have hurt.
Hi Sweetjan,
you wrote this in an earlier posting:
“Also I read someone in facebook said she has a weak connective tissue. Hobble and limping everywhere and after she supplement with HMB, now she walked with minimal pain and it saved her joint so greatly. always great to hear new recovery story!”
may i ask what supplement “HMB” is?
thanks.
I was prescribed a 10 day treatment of Cipro for epididymitis in my right testicle. After four or five days, the pain in my right testicle had begun to subside, but I continued the full 10 day cycle as instructed by the doctor. Around day eight, I began to have a dull pain in my left testicle that increased to an almost unbearable pain. I slept maybe an hour one night before using ice to numb the area.
Eventually, I was able to determine that the pain wasn’t actually in my left testicle but was coming from my inner thigh/inner hip region. The pain would radiate down the inside of my hip/thigh and into my left testicle and down my leg. This pain was much worse than the pain originally in my right testicle due to epididymitis. At this point, I started to research Cipro side effects, and I realized that I was experiencing nerve pain. I began taking magnesium supplements immediately, and they were very effective in reducing the nerve pain. In total, the pain lasted for two to three days.
Two weeks after beginning Cipro treatment, the nerve pain in my left thigh/inner hip had subsided, but it would still hurt if I moved my leg a certain way. Then, the tendonitis in my elbows and knees began to set in. This lasted for a few days as well.
After about a month, I was symptom free. I have not had any additional nerve pain or tendonitis since the last instances.
Popping*
Your family as many people are , is completely blind to the fact that all antibiotics are not the same, do not work in the same way & the fact that the FQs are NOT your usual penicillin ,but instead synthetic neurotoxic , ( Classed as chemotherapeutic ) but are actually Chemotherapy, agents which MASQUERADE as antibiotics.
Most people when they hear the words Antibiotic side effect, only think of a possible anaphylactic reaction/rash or an upset stomach, & NOT DNA/Mitochondrial direct damage ( the FQs do not cause side effects in the usual sense, apart from those mentioned above as you cannot get side effects once you have stopped taking a drug). they would never consider irreversible cartilage damage/degeneration, ( which is a class effect of the FQs ), & intractable chronic pain so severe there is not a word in any language ,any dictionary to be found that does it justice. At the end of the day there are non so blind than those who REFUSE to see, & also non so deaf than those who refuse to hear.
We hear this time & time again , Most people will not get it unless they GET it unfortunately
Hi guys
I have a similar experience to JB in that i have been fine for 5 weeks post Cipro and now i have Brain Fog for a week constantly and occasional Neuropathy and fatigue, i did have brain fog when on Cipro but presumed it was gone for good when i stopped taking the drug.
JB did your brain fog clear up yet and how long did it take?
I feel like brain fog is the scariest, it affects my thinking and makes me very depressed, i just want to be my normal quick thinking fun self again.
What’s the best remedy for brain fog, i feel like i need to flush this stuff out pronto?
or will it go away on it’s own?
Can anyone explain why taking asprin is bad when your Floxed? What does it do?
Some of you have asked about cognitive problems having to do with getting floxed. I think that this post on Hormones Matter may help answer some questions. http://www.hormonesmatter.com/cognitive-testing-post-adverse-reaction-lost-opportunity/
Can anyone recommend a brand of cod fish oil they use! I’m going to try this to get my vitamin d levels up! Thanks!
Thank you for your story Lisa. Now I know I’m not crazy. I’m really scared. I think it’s the anxiety that is causing it. I’m going to read more of the info you have put out. Thank you…
Hey everyone. Did anyone go through nights with really bad joint pain/Nerve pain ..I can’t tell the difference. Every part of my body aches I feel like I have arthritis all over and my ribs are even cracking. This isn’t the first time this has happened since being floxed. Does it go away? And what can I do with nights like these. Please help:,( no one believes me.