For over a decade this page has been dedicated to enabling the conversation for floxies to talk with one another. Sign up and subscribe to get all the latest comments.
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
I allow to create an account
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
26.5K Comments
Inline Feedbacks
View all comments
Debs
7 years ago
Here you can find a list of numerous antibiotics If you know the bacterial strain involved in your condition it would be very helpful towards seeking out another alternative to Flagyl if there is one available .
Suggestions please!!! Dr prescribed me flagyl for a mild bacterial v and I’m afraid to take it!!! Any other remedies that you may know?
joanneg
7 years ago
John,
I don’t know what know what kind of bacteria or infection you’re dealing with, but since being floxed I’ve used Olive Leaf Extract, and it worked great. I even wound up with the same infection that caused me to have to take cipro, and it took it straight away in about 3 days when not even cipro would kill it.
No Cipro,
Olive Leaf Extract is also an antiviral. I used it while floxed for shingles, and it killed it quick.
Ann
7 years ago
Have any body Heard off eeg off The brain, or have any body did that test? its a test that measure The brains electrical signals. My doctor told me about that test today. Im going to have another mri off The brain Again. And then she said, that if that shows nothing, she thought about that eeg test off The brain. have anybody had that test?
John
7 years ago
Thank you for the feedback, everyone. I suffer from a condition called epididymitis. It is basically an inflammation of the back part of the testicle that causes pain/discomfort 24 hours a day. Most doctors are not only clueless but also lazy when it comes to treatment. I came down with this a year ago after sleeping with the girl I was seeing at the time. I was seen by a “doctor” who was no older than 25 who threw Cipro at me without doing any kind of tests. After 10 days of Cipro, I had slight relief and had minor side effects from the drug but didn’t put 2 and 2 together that the Cipro was the cause of the slight tingling I felt in my leg. I figured this was from the epididymitis spreading as this condition can effect the nerves as well. I went back for a refill as I thought I simply needed more drugs. After a few pills of the second course was when my full fledged Cipro reaction kicked in. My epididymitis temporarily was cleared up due to my body being flooded with Cipro poison but that was the least of my concerns. 7, 8 months of hell ensued in which I lost my job, girlfriend, my ability to be happy, and thousands of dollars. From March – November I had all the symptoms in the book but have largely recovered since and I am thankful for that as I know many others have not been as lucky. I contribute a lot of my recovery to glutathione IV’s and supplementation…mainly 50 billion+ probiotics and heavy Methylcobalamin B12 supplementation. This helped me recover from the nerve damage and mental issues.
I began seeing a new girl in November and after being intimate, my epididymitis returned with a vengeance so now I am back to square one. Pain/discomfort all day, every day. Very frustrating. I feel defeated. I know that the only way to eradicate this is to practically poison yourself half to death with heavy antibiotics as standard antibiotics are not strong enough to penetrate to the testes. The urologist I went to a month ago shrugged his shoulders at me and told me it wasn’t a big deal and prescribed me a worthless antibiotic that did nothing. He even told me it was “non bacterial prostatitis” which is complete nonsense because it came immediately after sleeping with a girl. The research I have done suggests it is unquestionably bacterial and standard antibiotics simply cannot penetrate the area. I asked if it were “non bacterial” then why is he prescribing me an antibiotic? He didn’t have a clear answer and it seemed he was just trying to shove me out of the office. Amazing how a few hours of research and you can know more than these “professionals.” This entire experience has left me completely disillusioned with our health care system. It seems that if you aren’t dying or have a condition that results in forking over thousands to them, they couldn’t care less.
I have tried all the natural alternatives including every antioxidant and natural antibacterial in the book but have had little success. I am debating whether or not to ask my doctor for Flagyl as I have read many reviews that this drug has worked for many people as it kills anaerobic bacteria. I fear that I may experience from the same reaction again, however. It is a tough decision to make.
Has anyone heard of Tindazole? I have read that this is a safer and possibly more effective version of Flagyl. I plan on giving myself another month or two of trying heavy natural supplementation before I try one of these drugs. I have a desk job and sitting down all day with epididymitis is enough to drive a person insane. I am definitely reaching my limit. That being said, this pain is nothing compared to being floxed. I have a new job and cannot afford to lose it due to another antibiotic reaction. Not sure where to go from here. Thanks again to everyone for the recommendations and a special thanks to Lisa for giving us this platform for discussion. Thank you all for listening.
Hello
I have a question about feelings I get at random times. I get sensations of jitters, sliding or moving when I’m not moving. I’m in a relapse situation and I didn’t have these sensations with my initial floxing. I’m looking for suggestions on how I can try to help my body recover from this.
joanneg
7 years ago
I wanted to post again about the Omega Patch because it is helping with all my brain issues so much!!!
I no longer deal with about 95% of the dizziness, shaking, vibrating, manic brain issues that have been with me since June 2014. There is still a very tiny bit of it, but a lot of times it’s not there at all. I can’t express how much this is helping.
There have been other supplements that have helped with the intensity, mainly magnesium and colostrum, but neither were as good or as continuous as this patch. Also, I’ve tried omega pills which were very expensive, supposedly very good quality, and they didn’t help me at all. So I don’t know why these patches help so much, but they do.
So please, if you haven’t tried them, I’m almost begging for you to at least try them to see if they will help you too. My brain issues were the hardest of all my symptoms to deal with because I couldn’t think, remember things, or function properly.
Here is the site http://www.patchmd.com/ so you can see what’s in the patch, and order it if you want, but I get mine from ebay because they’re 15.00 and free shipping instead of 20.00 plus shipping.
Ann
7 years ago
All The muscles waisting away in the body. Is that permanent? Or can it Come back? Very worried. And has anybody had extreme problems with a hard time to swallow and extreme difficulty breathing?
Amy
7 years ago
I read alot of people saying ibuprofen and/or tylenol trigger symptoms. I only noticed after taking tylenol for a headache that the next day I had a few hours of feeling shaky, weak & just weird all over. I’m 9 months out from Levaquin & I literally take no other meds. Could tylenol have affected me the entire next day after taking it? I wonder if it was coincidence- but it was such a weird experience & wonder others thoughts…
Ann
7 years ago
I have a friend that also got hurt from flagyl. She is doing a mri, with contrast. Is it safe to take a mri with contrast? Have some one heard that the contrast can be neurotoxic to?
Mark S
7 years ago
I never thought my left Achilles tendon would recover. 18 months later and it feels like it largely has if not all the way. Happy. I think manganese has really helped it get to this level. Probably MSM too. Honestly who knows for sure. Just glad to see improvement.
Faisal
7 years ago
All all.
Now one year and 2 month from floxed just one pill of avalox Heart palpitations still it will last forever? I was very athletic I’m sad I can not go up the stairs, I am now 29 years old and I feel that I am 80. What happened to us darn! Just one tablet of medicine changed the course of my life and I feel symptoms of neurological different but more cheesed tired heart palpitations continuously Largo healing for all and I hope to someday find a cure for a final nightmare in which we live Thanks to all
Barbara Arnold
7 years ago
I have developed a hard knott on the back of each achilles. This has only happened in the last month or so. Anyone else got this ? I am 27 months in.
Patricia Lawler
7 years ago
Hello, I stumbled across this site while searching for an answer to my symptoms. I’m a 45 year old female and this is mu story.I was diagnosed with an UTI in September of 2016 and put on Cipro. In October I went to the Emergency Room with the worst headache I’ve ever had, after a ct scan I was told I had mastoiditis and perscribed Cipro again. As I was not getting any better and had a whole other list of symptoms I saw my family physician who also perscribed another round of Cipro. I’m absolutely certain I have been floxed. I have so many horrible symptoms and I’m scared to death. I’m looking for help as to what I can do. Any advice will be greatly appreciated as I can’t live like this anymore.
James Stamboni
7 years ago
Having tendon problems in both knees, hamstrings and patella. There is on occasion pain, but mostly it’s just weakness and susceptibility to injury, to the point where I can barely walk on a linoleum floor. Most of these injuries resolve within about two weeks, but I find myself re-injured doing normal daily activities like reaching for something on a shelf or pacing back and forth. This has been going on for three months now, since two days after taking one 750mg levofloxacin pill. I’m a 29 year old high school art teacher, my job requires constant motion and the ability to lift. I’ve been using two knee braces to function, but now even that isn’t covering it. A week ago I was able to stride without wearing the braces, but while reaching for something I felt a pain under the patella of my left (better) leg, and now it’s the weakest it’s ever been/ can barely support weight.
The longest I’ve been off work has been 2 weeks, but thinking of taking up to five now in hopes that rest will allow my knees to heal. I formerly had issues in all my other joints, especially my ankles, but that all went away in the first month and a half. Prior to returning to normal, each joint would begin cracking/ popping readily after use. My patellas have been doing that for a month now, and my hamstrings for about two weeks, to a lesser extent, but they have yet to heal.
I’m taking a multivitamin, liquid magnesium, Bone broth, and just started MitoQ and Alpha Lipoic Acid
Has anyone else had experiences with these kind of symptoms, and their treatment? I fear no longer being able to perform my job.
Kurt
7 years ago
Anyone have ideas for treating sagging skin? My loose skin is mostly on my lower legs.
Catherine P
7 years ago
Does anyone know if colostrum could cause a herx type reaction? I started it a few days ago and am feeling terrible. I have Lyme as well as floxing. Not sure if I should persist with it or not. Thanks
Faisal
7 years ago
Hello all I bought today magnesium ( oxide, gluconate, lactate ) 250 company Jamieson Is this a good thing?
Jon
7 years ago
I’m a healthy 30 year old male. I was recently put on cipro and directed to take 2x500mg pills a day. The very night after I took my second dose I noticed my tendons started “popping”, and by the next day the tendons in my ankles and knees hurt like hell.
I immediately stopped the medication. It’s been about 48 hours since my last does of cipro. My tendons did feel slightly better today than yesterday, but after being on my legs all day I’m having really bad cramping.
You guys think I’m permanently damaged from 2 pills? Has anyone here gotten over the tendinitis quickly after ceasing the medication?
Here you can find a list of numerous antibiotics If you know the bacterial strain involved in your condition it would be very helpful towards seeking out another alternative to Flagyl if there is one available .
https://www.drugs.com/article/antibiotics.html
Suggestions please!!! Dr prescribed me flagyl for a mild bacterial v and I’m afraid to take it!!! Any other remedies that you may know?
John,
I don’t know what know what kind of bacteria or infection you’re dealing with, but since being floxed I’ve used Olive Leaf Extract, and it worked great. I even wound up with the same infection that caused me to have to take cipro, and it took it straight away in about 3 days when not even cipro would kill it.
No Cipro,
Olive Leaf Extract is also an antiviral. I used it while floxed for shingles, and it killed it quick.
Have any body Heard off eeg off The brain, or have any body did that test? its a test that measure The brains electrical signals. My doctor told me about that test today. Im going to have another mri off The brain Again. And then she said, that if that shows nothing, she thought about that eeg test off The brain. have anybody had that test?
Thank you for the feedback, everyone. I suffer from a condition called epididymitis. It is basically an inflammation of the back part of the testicle that causes pain/discomfort 24 hours a day. Most doctors are not only clueless but also lazy when it comes to treatment. I came down with this a year ago after sleeping with the girl I was seeing at the time. I was seen by a “doctor” who was no older than 25 who threw Cipro at me without doing any kind of tests. After 10 days of Cipro, I had slight relief and had minor side effects from the drug but didn’t put 2 and 2 together that the Cipro was the cause of the slight tingling I felt in my leg. I figured this was from the epididymitis spreading as this condition can effect the nerves as well. I went back for a refill as I thought I simply needed more drugs. After a few pills of the second course was when my full fledged Cipro reaction kicked in. My epididymitis temporarily was cleared up due to my body being flooded with Cipro poison but that was the least of my concerns. 7, 8 months of hell ensued in which I lost my job, girlfriend, my ability to be happy, and thousands of dollars. From March – November I had all the symptoms in the book but have largely recovered since and I am thankful for that as I know many others have not been as lucky. I contribute a lot of my recovery to glutathione IV’s and supplementation…mainly 50 billion+ probiotics and heavy Methylcobalamin B12 supplementation. This helped me recover from the nerve damage and mental issues.
I began seeing a new girl in November and after being intimate, my epididymitis returned with a vengeance so now I am back to square one. Pain/discomfort all day, every day. Very frustrating. I feel defeated. I know that the only way to eradicate this is to practically poison yourself half to death with heavy antibiotics as standard antibiotics are not strong enough to penetrate to the testes. The urologist I went to a month ago shrugged his shoulders at me and told me it wasn’t a big deal and prescribed me a worthless antibiotic that did nothing. He even told me it was “non bacterial prostatitis” which is complete nonsense because it came immediately after sleeping with a girl. The research I have done suggests it is unquestionably bacterial and standard antibiotics simply cannot penetrate the area. I asked if it were “non bacterial” then why is he prescribing me an antibiotic? He didn’t have a clear answer and it seemed he was just trying to shove me out of the office. Amazing how a few hours of research and you can know more than these “professionals.” This entire experience has left me completely disillusioned with our health care system. It seems that if you aren’t dying or have a condition that results in forking over thousands to them, they couldn’t care less.
I have tried all the natural alternatives including every antioxidant and natural antibacterial in the book but have had little success. I am debating whether or not to ask my doctor for Flagyl as I have read many reviews that this drug has worked for many people as it kills anaerobic bacteria. I fear that I may experience from the same reaction again, however. It is a tough decision to make.
Has anyone heard of Tindazole? I have read that this is a safer and possibly more effective version of Flagyl. I plan on giving myself another month or two of trying heavy natural supplementation before I try one of these drugs. I have a desk job and sitting down all day with epididymitis is enough to drive a person insane. I am definitely reaching my limit. That being said, this pain is nothing compared to being floxed. I have a new job and cannot afford to lose it due to another antibiotic reaction. Not sure where to go from here. Thanks again to everyone for the recommendations and a special thanks to Lisa for giving us this platform for discussion. Thank you all for listening.
For those considering LDN, here’s a comment from a 60 year old women who was cipro poisoned and was helped by Low Dose Naltrexone http://patient.info/forums/discuss/arms-feeling-heavy-and-dead-404457?page=0#2300090
Hello
I have a question about feelings I get at random times. I get sensations of jitters, sliding or moving when I’m not moving. I’m in a relapse situation and I didn’t have these sensations with my initial floxing. I’m looking for suggestions on how I can try to help my body recover from this.
I wanted to post again about the Omega Patch because it is helping with all my brain issues so much!!!
I no longer deal with about 95% of the dizziness, shaking, vibrating, manic brain issues that have been with me since June 2014. There is still a very tiny bit of it, but a lot of times it’s not there at all. I can’t express how much this is helping.
There have been other supplements that have helped with the intensity, mainly magnesium and colostrum, but neither were as good or as continuous as this patch. Also, I’ve tried omega pills which were very expensive, supposedly very good quality, and they didn’t help me at all. So I don’t know why these patches help so much, but they do.
So please, if you haven’t tried them, I’m almost begging for you to at least try them to see if they will help you too. My brain issues were the hardest of all my symptoms to deal with because I couldn’t think, remember things, or function properly.
Here is the site http://www.patchmd.com/ so you can see what’s in the patch, and order it if you want, but I get mine from ebay because they’re 15.00 and free shipping instead of 20.00 plus shipping.
All The muscles waisting away in the body. Is that permanent? Or can it Come back? Very worried. And has anybody had extreme problems with a hard time to swallow and extreme difficulty breathing?
I read alot of people saying ibuprofen and/or tylenol trigger symptoms. I only noticed after taking tylenol for a headache that the next day I had a few hours of feeling shaky, weak & just weird all over. I’m 9 months out from Levaquin & I literally take no other meds. Could tylenol have affected me the entire next day after taking it? I wonder if it was coincidence- but it was such a weird experience & wonder others thoughts…
I have a friend that also got hurt from flagyl. She is doing a mri, with contrast. Is it safe to take a mri with contrast? Have some one heard that the contrast can be neurotoxic to?
I never thought my left Achilles tendon would recover. 18 months later and it feels like it largely has if not all the way. Happy. I think manganese has really helped it get to this level. Probably MSM too. Honestly who knows for sure. Just glad to see improvement.
All all.
Now one year and 2 month from floxed just one pill of avalox Heart palpitations still it will last forever? I was very athletic I’m sad I can not go up the stairs, I am now 29 years old and I feel that I am 80. What happened to us darn! Just one tablet of medicine changed the course of my life and I feel symptoms of neurological different but more cheesed tired heart palpitations continuously Largo healing for all and I hope to someday find a cure for a final nightmare in which we live Thanks to all
I have developed a hard knott on the back of each achilles. This has only happened in the last month or so. Anyone else got this ? I am 27 months in.
Hello, I stumbled across this site while searching for an answer to my symptoms. I’m a 45 year old female and this is mu story.I was diagnosed with an UTI in September of 2016 and put on Cipro. In October I went to the Emergency Room with the worst headache I’ve ever had, after a ct scan I was told I had mastoiditis and perscribed Cipro again. As I was not getting any better and had a whole other list of symptoms I saw my family physician who also perscribed another round of Cipro. I’m absolutely certain I have been floxed. I have so many horrible symptoms and I’m scared to death. I’m looking for help as to what I can do. Any advice will be greatly appreciated as I can’t live like this anymore.
Having tendon problems in both knees, hamstrings and patella. There is on occasion pain, but mostly it’s just weakness and susceptibility to injury, to the point where I can barely walk on a linoleum floor. Most of these injuries resolve within about two weeks, but I find myself re-injured doing normal daily activities like reaching for something on a shelf or pacing back and forth. This has been going on for three months now, since two days after taking one 750mg levofloxacin pill. I’m a 29 year old high school art teacher, my job requires constant motion and the ability to lift. I’ve been using two knee braces to function, but now even that isn’t covering it. A week ago I was able to stride without wearing the braces, but while reaching for something I felt a pain under the patella of my left (better) leg, and now it’s the weakest it’s ever been/ can barely support weight.
The longest I’ve been off work has been 2 weeks, but thinking of taking up to five now in hopes that rest will allow my knees to heal. I formerly had issues in all my other joints, especially my ankles, but that all went away in the first month and a half. Prior to returning to normal, each joint would begin cracking/ popping readily after use. My patellas have been doing that for a month now, and my hamstrings for about two weeks, to a lesser extent, but they have yet to heal.
I’m taking a multivitamin, liquid magnesium, Bone broth, and just started MitoQ and Alpha Lipoic Acid
Has anyone else had experiences with these kind of symptoms, and their treatment? I fear no longer being able to perform my job.
Anyone have ideas for treating sagging skin? My loose skin is mostly on my lower legs.
Does anyone know if colostrum could cause a herx type reaction? I started it a few days ago and am feeling terrible. I have Lyme as well as floxing. Not sure if I should persist with it or not. Thanks
Hello all I bought today magnesium ( oxide, gluconate, lactate ) 250 company Jamieson Is this a good thing?
I’m a healthy 30 year old male. I was recently put on cipro and directed to take 2x500mg pills a day. The very night after I took my second dose I noticed my tendons started “popping”, and by the next day the tendons in my ankles and knees hurt like hell.
I immediately stopped the medication. It’s been about 48 hours since my last does of cipro. My tendons did feel slightly better today than yesterday, but after being on my legs all day I’m having really bad cramping.
You guys think I’m permanently damaged from 2 pills? Has anyone here gotten over the tendinitis quickly after ceasing the medication?