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L
7 years ago
ORotate referred to the magnesium…..misplaced modifier 🙂
joanneg
7 years ago
Hi Everybody,
I’ve been dealing with a lot of stomach issues with this last flare up, and my regular supplements, that usually help pretty good, aren’t giving me much relief. So I ordered some Siberian Pine Nut Oil to see if it will help. I will post if it gives me good relief.
charlottejacobs17@yahoo.com
7 years ago
Has anyone ever heard of or tried a cream called magnilife for nerve damage?
Tristine
7 years ago
Hello everyone. I am a newbie to the floxie community. After a trying year for me medically, I had finished out 2016 with being floxed (officially as of Christmas Eve). I have been struggling since for relief from my pain, but haven’t found much relief. I’ve begun to go down the rabbit hole of researching my condition and what I can do to help myself through this.
On top of being floxed myself, I am extremely worried as my newborn daughter (currently 3 months) was exposed through nursing/breast milk.
Does anyone know or have any information related to exposure through breast milk? I haven’t been able to find any solid information or at least anything useful. My daughter doesn’t appear to be exhibiting any issues, but its not like she can tell me if she is.
I am currently in process of evaluating my treatment options and of course what extra limitations I may encounter due to nursing.
If anyone has any information on these topics, I would greatly appreciate it.
Barbara Arnold
7 years ago
Charlotte,
Thanks for the info on the lumps on my achilles. I looked it up and it could very well be a ganglion. Suppose I’ll show it to my Doc next time I see him. I will probably have to tell him what it is as he’s useless. But hey ho, compared to everything else it’s nothing. Thanks again
charlottejacobs17@yahoo.com
7 years ago
Faisal I am sorry to read that you too have been floxed. I found this link to drugs that contain fluoride. Have you taken any other medications apart from the antibiotics.
I just read on another website that topical magnesium cleared up peripheral neuropathy within a few days!!!!! I am unsure if that was the case but it is a bit of hope.
Tristine
7 years ago
Wanted to share some other supplements that I’ve considered taking, but due to nursing my 3 month old I’m a little more limited.
They can be found by searching for Protandim. They have a couple of types that I would try if I weren’t nursing. One of them is used to deal with oxidative stress. I am taking this one as the ingredient that isn’t nursing friendly would clear out between babies nighttime and morning feeding. The other is meant to help repair and replenish mitochondrial DNA.
I have taken the oxidative stress supplements a few years back and happened to still have them around so they came back to mind during my research. I’ve only been taking for about 2 weeks, so it is tough for me to notice the impact yet.
I haven’t tried their other supplement, but would love to hear if anyone has tried it and the result. Might be something to consider…
Amy
7 years ago
I swore off Ibuprofen back when my initial floxing happened, it gave me crazy hot flashes & no docs believed it. So I thought Tylenol was ok for some reason. I took one Tylenol for a headache & it triggered a week long episode of my ususal weakness & aches. I also made the mistake of having a glass of wine not long after I took it. Can’t be a coincidence. I didn’t believe it could have such an effect, omg was I wrong…
Susan
7 years ago
Adamswillson, your letter is inappropriate. Please keep on topic.
AColeman
7 years ago
Hi everybody,
I have been lurking on Floxie Hope for over a year now and this is my first post. I was floxed in September of 2015 and was thinking that I might be about ready to post a recovery story soon back in October of 2016. Then came my first true relapse. Sure my path to recovery was rocky like all of ours; almost as many down days as up, but I was getting really close – then WHAM.
My primary issues when first floxed were digestive and neuropathic. I had battled the digestive issues for about 8 to 9 months and was 99% better in that area. I never treated it with anything other than digestive enzymes, probiotics (including living foods), and Aloe vera juice, but it was so bad that I had endoscopies, gastric emptying studies, colonoscopies – all were normal; well the gastric emptying study I passed, but just barely. Nonetheless, time the only real answer for floxies, led to healing. My peripheral neuropathy was getting much better too and my other nagging issues were less.
Acupuncture was my panacea, which I started around month 2 post floxing. About 4 months in I found an Integrative medicine specialist who believed I had been floxed when I suggested it, although she took a while to come around, but she has offered little help other than discovering I was extremely low in Vitamin D and Iron.
I still had some pain in the connective tissue between my ribs though and lingering digestive issues on rare days. I started eating mostly organic and whole foods after being floxed. I read about the Whole 30 diet (think strict Paleo) which challenges you to eat only whole foods for 30 days (no dairy, sugar, grains, legumes) and then reintroduce slowly to find food triggers. I completed the diet with no real discoveries, but about half way through a new bout of peripheral neuropathy began and I started into my first real relapse.
I had exercised steadily when I wasn’t in too much pain starting about 3 months post floxing and hoped that this approach would leave me free of relapses. I can’t figure out anything else other than the stress of the Whole 30 diet on my system that could have caused my relapse, but once it started it opened the flood gates.
The neuropathy subsided after 10 days or so, and I thought okay it was just a flare. In fact since then I have experienced only a few days of neuropathy with most days normal. But, that’s when the digestive issues started again. It started with heartburn, something I never experienced during my initial symptoms. It was strange in its presentation – only when I burped, usually on an empty stomach, and worse between 4-6 PM. This was my only symptom for around 6 weeks other than swollen lymph nodes and extreme fatigue, which hit after about a month.
I tried treating it as other floxies have with Betaine HCL and Deglycerized licorice in addition to Aloe vera juice. Just as the heartburn started to decrease all my old stomach problems came back. They are not as bad as before, but still an issue. I had tests for H.pylori – negative and thyroid – negative. Also tested for mono (Epstein Barr) and results indicated I may have suffered an adult relapse, but my doctor felt they were unequivocal.
Then after about 10 days of the stomach problems all my old symptoms started randomly firing. I would get neuropathy – but only for a day, then next day, the muscle and tendon problems I suffered in my leg would come back. Then the next day I would have horrible insomnia, or should I say night? You get the idea. This has been going on for around 2 weeks now with the digestive issues constantly waxing and waning. I even have had three days I would describe myself as normal during this time frame (first time in nearly 18 months), but the randomness of symptoms and continued relapse has me down. This relapse is entering its fourth month and while not nearly as severe physically as my initial floxing it is almost worse in some ways.
Any feedback from the community would be appreciated. Just an FYI. I, like many floxies was extremely healthy prior to being floxed (for a UTI I didn’t even have). I currently have no real health issues according to Western medicine. I take Vitamin D, Vitamin K2, Vitamin E, Vitamin B complex, digestive enzymes, HCL with high protein meals, Mg (200 mg daily), and ProImmune a Glutithoine precursor blend (which really works BTW, but that’s for another post, when I can deal with the down turn it brings prior to healing), but haven’t felt up to this for over two months.
Thanks for you time and comments.
Andrew Collins
7 years ago
L,
Thanks for the Restore suggestion. I read up on the product and will add it to my list of possible tools, but their website claims that you have to continue use for the rest of your life, with only 20% of people successfully stopping use even after 9 months. As my digestive system eventually got better before, I think I will hold off on adopting a treatment that may make me dependent on the treatment until I am a bit more desperate.
Andrew Collins
7 years ago
Ryan L,
Thank you for your suggestions. I am fairly certain that my heartburn problems were not caused by too much stomach acid but by too little. After I started adding HCL and digestive enzymes is when it started getting better. Also the weird way my heartburn presented even had my integrative doc suggesting I supplement with HCL.
I had been considering taking actions to strengthen my vagus nerve after reading other posts on here that pointed to the same article you shared. Thank you. I like diving into music and losing myself, so if that helps stimulate my vagus nerve I can try that.
I read up on the Elixa probiotics, and while expensive it sounds reasonable. What kind of success did you have with Elixa? I will order some and thanks for the advice to start out slow and then ramp up, but that sounds like it may mitigate the effectiveness too.
I know that part of my problem with probiotics is that I often forget to take them, or stop after a month or so, because I run out and don’t prioritize buying more.
I had my endoscopy and colonscopy over a year ago, so I am sure that recolonization has happened, but probably not with the right strains. My BMs are regular and normal even with my current digestive problems. They were crazy and all colors of the rainbow when initially floxed, so that is another way I know this time is not as bad.
I appreciate all your suggestions and time to reply.
Has anyone had local anaestesia post flox? And if so, did anyone have a negative reaction?
Stephanie
7 years ago
So I have no clue what to do. What tests can a naturopath in the us run that are close to an eeg? I just can’t with these freaking chest pains and spasming it’s getting worse and I caught a cold on top of it which is pushing me over edge of my normal well this sucks but it’s pretty outside focus on that attitude. I am taking two oil of oregano pills daily and washing my sinuses out as much as possible. I just can’t get to a specialist because none of them accept my crappy insurance that I’m stuck with. I just need the pain to dull cause this is now a new level of hell. I normally try super hard to be positive but I’m just on barely and decent sleep and I just can’t. Please no suggestions of going to a western Dr they won’t help me
Catherine P
7 years ago
Does anyone know if it is safe for floxies to take fish oil and evening primrose oil?
Thanks
joanneg
7 years ago
Lisa B. or anyone else,
Are you or anyone on this site familiar with Hepatic Encephalophy in which damage to the liver doesn’t route the ammonia from the gut to the urea to be eliminated by the kidneys, so the serum ammonia levels rise and go to the brain causing inflammation, head pressure, dizziness, brain fog, and a host of mental problems: anxiety, depression, and insomnia, forgetfulness, ect.
Anyhow, If this is part of what we who suffer a lot of brain issues are dealing with, there are some ways in the medical world and less in the natural world to eleviate the brain symptoms. It doesn’t heal you, but it stops the symptoms.
I just started reading on this, and knowing Fluoroquinolones do cause liver damage, I was wondering if anybody floxed has looked into this and/or used the prescription medicine called Lactulose which is supposed to stop all the brain symptoms by causing you to eliminate the ammonia through many bowel movements, and it also stops the bacteria in the gut from making the ammonia.
If any floxy has tried Lactulose and has gotten help for their brain issues, it sure would help a lot of other floxies if you would post your experience.
Any info would be greatly appreciated.
Debs
7 years ago
You might be interested in this recent study on Lactulose joanneg
Forgot to say, I have been on lactose for years, & it also has had no positive impression whatsoever on my horrendous insomnia situation unfortunately
Lebo
7 years ago
Hi Lisa,
Am a black male from South Africa and I believe I have been floxed after taking 500mg cipro two times a day for five days. Prior to that I had taken predisone and had just cold turkeyed from benzos, so I was really hit hard. I lost my job, my family is not offering much support, I wallow in pain on most days, not able to afford any diet, I just eat whatever due to financial constraints and not having the means. Can anybody suggest measures one can take in improving their health naturally, as I do not have the means and I am in constant pain and its affecting me so much.
ORotate referred to the magnesium…..misplaced modifier 🙂
Hi Everybody,
I’ve been dealing with a lot of stomach issues with this last flare up, and my regular supplements, that usually help pretty good, aren’t giving me much relief. So I ordered some Siberian Pine Nut Oil to see if it will help. I will post if it gives me good relief.
Has anyone ever heard of or tried a cream called magnilife for nerve damage?
Hello everyone. I am a newbie to the floxie community. After a trying year for me medically, I had finished out 2016 with being floxed (officially as of Christmas Eve). I have been struggling since for relief from my pain, but haven’t found much relief. I’ve begun to go down the rabbit hole of researching my condition and what I can do to help myself through this.
On top of being floxed myself, I am extremely worried as my newborn daughter (currently 3 months) was exposed through nursing/breast milk.
Does anyone know or have any information related to exposure through breast milk? I haven’t been able to find any solid information or at least anything useful. My daughter doesn’t appear to be exhibiting any issues, but its not like she can tell me if she is.
I am currently in process of evaluating my treatment options and of course what extra limitations I may encounter due to nursing.
If anyone has any information on these topics, I would greatly appreciate it.
Charlotte,
Thanks for the info on the lumps on my achilles. I looked it up and it could very well be a ganglion. Suppose I’ll show it to my Doc next time I see him. I will probably have to tell him what it is as he’s useless. But hey ho, compared to everything else it’s nothing. Thanks again
Faisal I am sorry to read that you too have been floxed. I found this link to drugs that contain fluoride. Have you taken any other medications apart from the antibiotics.
I hope it helps as it contains a list of drugs that contain fluoride.
http://www.slweb.org/ftrcfluoroquinolone.html
I just read on another website that topical magnesium cleared up peripheral neuropathy within a few days!!!!! I am unsure if that was the case but it is a bit of hope.
Wanted to share some other supplements that I’ve considered taking, but due to nursing my 3 month old I’m a little more limited.
They can be found by searching for Protandim. They have a couple of types that I would try if I weren’t nursing. One of them is used to deal with oxidative stress. I am taking this one as the ingredient that isn’t nursing friendly would clear out between babies nighttime and morning feeding. The other is meant to help repair and replenish mitochondrial DNA.
I have taken the oxidative stress supplements a few years back and happened to still have them around so they came back to mind during my research. I’ve only been taking for about 2 weeks, so it is tough for me to notice the impact yet.
I haven’t tried their other supplement, but would love to hear if anyone has tried it and the result. Might be something to consider…
I swore off Ibuprofen back when my initial floxing happened, it gave me crazy hot flashes & no docs believed it. So I thought Tylenol was ok for some reason. I took one Tylenol for a headache & it triggered a week long episode of my ususal weakness & aches. I also made the mistake of having a glass of wine not long after I took it. Can’t be a coincidence. I didn’t believe it could have such an effect, omg was I wrong…
Adamswillson, your letter is inappropriate. Please keep on topic.
Hi everybody,
I have been lurking on Floxie Hope for over a year now and this is my first post. I was floxed in September of 2015 and was thinking that I might be about ready to post a recovery story soon back in October of 2016. Then came my first true relapse. Sure my path to recovery was rocky like all of ours; almost as many down days as up, but I was getting really close – then WHAM.
My primary issues when first floxed were digestive and neuropathic. I had battled the digestive issues for about 8 to 9 months and was 99% better in that area. I never treated it with anything other than digestive enzymes, probiotics (including living foods), and Aloe vera juice, but it was so bad that I had endoscopies, gastric emptying studies, colonoscopies – all were normal; well the gastric emptying study I passed, but just barely. Nonetheless, time the only real answer for floxies, led to healing. My peripheral neuropathy was getting much better too and my other nagging issues were less.
Acupuncture was my panacea, which I started around month 2 post floxing. About 4 months in I found an Integrative medicine specialist who believed I had been floxed when I suggested it, although she took a while to come around, but she has offered little help other than discovering I was extremely low in Vitamin D and Iron.
I still had some pain in the connective tissue between my ribs though and lingering digestive issues on rare days. I started eating mostly organic and whole foods after being floxed. I read about the Whole 30 diet (think strict Paleo) which challenges you to eat only whole foods for 30 days (no dairy, sugar, grains, legumes) and then reintroduce slowly to find food triggers. I completed the diet with no real discoveries, but about half way through a new bout of peripheral neuropathy began and I started into my first real relapse.
I had exercised steadily when I wasn’t in too much pain starting about 3 months post floxing and hoped that this approach would leave me free of relapses. I can’t figure out anything else other than the stress of the Whole 30 diet on my system that could have caused my relapse, but once it started it opened the flood gates.
The neuropathy subsided after 10 days or so, and I thought okay it was just a flare. In fact since then I have experienced only a few days of neuropathy with most days normal. But, that’s when the digestive issues started again. It started with heartburn, something I never experienced during my initial symptoms. It was strange in its presentation – only when I burped, usually on an empty stomach, and worse between 4-6 PM. This was my only symptom for around 6 weeks other than swollen lymph nodes and extreme fatigue, which hit after about a month.
I tried treating it as other floxies have with Betaine HCL and Deglycerized licorice in addition to Aloe vera juice. Just as the heartburn started to decrease all my old stomach problems came back. They are not as bad as before, but still an issue. I had tests for H.pylori – negative and thyroid – negative. Also tested for mono (Epstein Barr) and results indicated I may have suffered an adult relapse, but my doctor felt they were unequivocal.
Then after about 10 days of the stomach problems all my old symptoms started randomly firing. I would get neuropathy – but only for a day, then next day, the muscle and tendon problems I suffered in my leg would come back. Then the next day I would have horrible insomnia, or should I say night? You get the idea. This has been going on for around 2 weeks now with the digestive issues constantly waxing and waning. I even have had three days I would describe myself as normal during this time frame (first time in nearly 18 months), but the randomness of symptoms and continued relapse has me down. This relapse is entering its fourth month and while not nearly as severe physically as my initial floxing it is almost worse in some ways.
Any feedback from the community would be appreciated. Just an FYI. I, like many floxies was extremely healthy prior to being floxed (for a UTI I didn’t even have). I currently have no real health issues according to Western medicine. I take Vitamin D, Vitamin K2, Vitamin E, Vitamin B complex, digestive enzymes, HCL with high protein meals, Mg (200 mg daily), and ProImmune a Glutithoine precursor blend (which really works BTW, but that’s for another post, when I can deal with the down turn it brings prior to healing), but haven’t felt up to this for over two months.
Thanks for you time and comments.
L,
Thanks for the Restore suggestion. I read up on the product and will add it to my list of possible tools, but their website claims that you have to continue use for the rest of your life, with only 20% of people successfully stopping use even after 9 months. As my digestive system eventually got better before, I think I will hold off on adopting a treatment that may make me dependent on the treatment until I am a bit more desperate.
Ryan L,
Thank you for your suggestions. I am fairly certain that my heartburn problems were not caused by too much stomach acid but by too little. After I started adding HCL and digestive enzymes is when it started getting better. Also the weird way my heartburn presented even had my integrative doc suggesting I supplement with HCL.
I had been considering taking actions to strengthen my vagus nerve after reading other posts on here that pointed to the same article you shared. Thank you. I like diving into music and losing myself, so if that helps stimulate my vagus nerve I can try that.
I read up on the Elixa probiotics, and while expensive it sounds reasonable. What kind of success did you have with Elixa? I will order some and thanks for the advice to start out slow and then ramp up, but that sounds like it may mitigate the effectiveness too.
I know that part of my problem with probiotics is that I often forget to take them, or stop after a month or so, because I run out and don’t prioritize buying more.
I had my endoscopy and colonscopy over a year ago, so I am sure that recolonization has happened, but probably not with the right strains. My BMs are regular and normal even with my current digestive problems. They were crazy and all colors of the rainbow when initially floxed, so that is another way I know this time is not as bad.
I appreciate all your suggestions and time to reply.
AColeman
Has anyone had local anaestesia post flox? And if so, did anyone have a negative reaction?
So I have no clue what to do. What tests can a naturopath in the us run that are close to an eeg? I just can’t with these freaking chest pains and spasming it’s getting worse and I caught a cold on top of it which is pushing me over edge of my normal well this sucks but it’s pretty outside focus on that attitude. I am taking two oil of oregano pills daily and washing my sinuses out as much as possible. I just can’t get to a specialist because none of them accept my crappy insurance that I’m stuck with. I just need the pain to dull cause this is now a new level of hell. I normally try super hard to be positive but I’m just on barely and decent sleep and I just can’t. Please no suggestions of going to a western Dr they won’t help me
Does anyone know if it is safe for floxies to take fish oil and evening primrose oil?
Thanks
Lisa B. or anyone else,
Are you or anyone on this site familiar with Hepatic Encephalophy in which damage to the liver doesn’t route the ammonia from the gut to the urea to be eliminated by the kidneys, so the serum ammonia levels rise and go to the brain causing inflammation, head pressure, dizziness, brain fog, and a host of mental problems: anxiety, depression, and insomnia, forgetfulness, ect.
Anyhow, If this is part of what we who suffer a lot of brain issues are dealing with, there are some ways in the medical world and less in the natural world to eleviate the brain symptoms. It doesn’t heal you, but it stops the symptoms.
I just started reading on this, and knowing Fluoroquinolones do cause liver damage, I was wondering if anybody floxed has looked into this and/or used the prescription medicine called Lactulose which is supposed to stop all the brain symptoms by causing you to eliminate the ammonia through many bowel movements, and it also stops the bacteria in the gut from making the ammonia.
If any floxy has tried Lactulose and has gotten help for their brain issues, it sure would help a lot of other floxies if you would post your experience.
Any info would be greatly appreciated.
You might be interested in this recent study on Lactulose joanneg
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5040005/
Forgot to say, I have been on lactose for years, & it also has had no positive impression whatsoever on my horrendous insomnia situation unfortunately
Hi Lisa,
Am a black male from South Africa and I believe I have been floxed after taking 500mg cipro two times a day for five days. Prior to that I had taken predisone and had just cold turkeyed from benzos, so I was really hit hard. I lost my job, my family is not offering much support, I wallow in pain on most days, not able to afford any diet, I just eat whatever due to financial constraints and not having the means. Can anybody suggest measures one can take in improving their health naturally, as I do not have the means and I am in constant pain and its affecting me so much.
Regards