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Hello Everyone my health is coming around! I am walking better but I always carry a cane.
Ever Gentleman should right! I actually gave a part at my congregation and stood up at the podium for it. I have not been able to stand on the stage for 5 years! So this is Awesome. maybe I will be a recovery story soon , eh Lisa.
Anyway. I have been doing water therapy and I joined a gym with my awesome wife. I am following the advice of my Natural Doctor. Dr, Morgan and my Acupuncturist Tao He and I think this has been helping me the most.
I still have my regular doctors I see two GI specialist now 1 in Cleveland Clinic and 1 at the University of Michigan.
My PCP is a dink and I think I am going to fire him.
I also use my RIFE Machine regularly.
I just wanted to share. I am getting ready for fishing this year! So look out for catch and cook videos on youtube real soon. I love you all and look for a day when all of us on here are not sick anymore.
I wish you all the best.
Mike Out
L
7 years ago
and good you are close to the Cleveland Clinic…they are integrative. Not your standard AMA “health” clinic.
Stephanie
7 years ago
Hey guys thought you would be the best to ask. My fiancé is having lots of hand pain and inflammation he doesn’t want to take NSAIDS and we tried tummeric pills and those didn’t work he is not a floxie but I’m bad with figuring out what’s good for him and he would rather take a pill then cream. This is for when he is working so cbd is not an option.
joanneg
7 years ago
I thought this was interesting and maybe helpful in organizing a supplement plan. But I wonder why magnesium isn’t on their list?? Anyhow, I just wanted you all to be able to read it.
CIPROFLOXACIN (Cipro®, Ciloxan®)
Ciprofloxacin is an antibacterial agent used to treat infections of the urinary tract, lower respiratory tract, sinuses, and other parts of the body.
Which Nutrients Are Robbed
Taking this medicine may deplete your supply of, increase your need for, or interfere with the activity of:
biotin
inositol
thiamin
riboflavin
niacin
vitamin B6
vitamin B12
vitamin K
zinc
Bifidobacteria bifidum
Lactobacillus acidophilus.
Restoring the Nutrient Balance
Speak to your physician about taking 500-1000 mcg of biotin, 250-1000 mg of inositol, 25-200 mg of thiamin, 25-100 mg of riboflavin, 50-100 mg of niacin, 100 mg of vitamin B6, 500-1000 mcg of vitamin B12, 1-10 mg of vitamin K, 50-100 mg of zinc, 15 billion live Bifidobacteria bifidum organisms, and 15 billion live Lactobacillus acidophilus organisms. You can also eat foods that contain the depleted nutrients. https://www.integrativepsychiatry.net/preventing_pharmaceutical_induced_nutritional_deficiencies.html
Steff
7 years ago
Hi everyone, I’ve taken cipro a few times but realised I was floxed the last two to three times (I don’t want to go in all the details as it horrifies me but it is in the past so be it!), the last time where the bomb from hell went off in my body actually helped me to put together all the pieces of what the hell has been happening over the last 6 months. I’m almost 4 weeks out since last flox and experiencing various levels of hell but now I am much more educated now about how to take charge of my health and I am doing so!
We are all really going through the most difficult thing I feel we will ever experience but this experience will truly shape us into better, stronger and more educated people. I feel like this is SUCH a painful lesson but already I have reshaped so many views on health, life and what is really important! Anyway I wanted to make a post for two reasons, 1. If anyone is feeling extremely alone and just needs another mind to chat to via email, to talk about symptoms, discuss treatments they’ve tried and generally just need moral support you could email me at stefflets1@gmail.com. I will try to respond as often as possible. I can’t make any promises but I would like to keep a conversation focused on being positive or proactive and getting through our daily struggles. I’m just putting it out there because thankfully I have my partner and my father who are being great ears to my issues but some of you don’t have that, and it would also be good to give my loved ones a break. There is only so much they can understand or comprehend of this madness. Also note: This is a great website and I am thankful for the positive things people have written and that this feels like a good support network. It really gives us hope! BUT dont spend too much time on here, it can make your anxiety levels go berserk!
2. I have been suffering from a UTI (definite infection) for almost 2 months and as I got floxed recently I had total panic and tried to avoid antibiotics that my doctors have prescribed. I know alot of people here have become very anti-antibiotic. I tried to treat my UTI aggressively with natural methods and it just wouldnt budge, or would slightly disappear and come back. So now I am on Keflex which I think is working fine, and I have been on it for 2 days now without any adverse reactions. Yes I am nervous, as Bactrim caused an FQ reaction in me previously which I didnt fully understand, I don’t want to take anymore pharma medicines but in this case I really felt it was needed, and by avoiding the antibiotic I became EXTREMELY ill and pushing through the pain to the point where I was in total agony and was not able to sleep barely any hours per night. I realised this is not helpful at all, as sleep is really important for us to heal! I am now equipped with many natural supplements to prevent reinfection and high strength womens probiotics to support flora as well when the course is finished. We are in a hard place due to the FQs affects on our bodies but just try to make the best decision for yourself, and get your body supported by good diet and natural therapies to help prevent reinfection later. Really work on making sure you are in the best opportunity to avoid future illnesses so there are no needs to take these antibiotic medicines again. Only now did I start to be aware of my own patterns and how I was putting myself into these situations where I was getting extremely sick, leading to take the antibiotics.
Thanks
Steff
holly
7 years ago
Hi everyone- Can you please tell me how long it took your brain fog/confusion to go away post flox? Thank you.
Deborah Gnegy
7 years ago
I am 53. How can I learn if my joint issues are related to taking Levaquin and Cipro in my 30s for ENT infections. I recall reporting joint fatigue and achiness during a repeat round of Levaquin and it was never prescribed for me again. I have had 11 joint surgeries since and I’m currently recovering from a hip revision. The surgeon commented that I’m “extremely flexible”. I have deveoped issues in other joints while using the walker and cane–and I prepared for surgery with gentle yoga and strength training.
Matt
7 years ago
Hello all, I was given a 10 day prescription for levafloxacin around Christmas. The only side effects I really had was some itching early on and some stomach pain early on. My question is, how long should I be looking for severe reactions to this poison. I’m not real happy with the prescribing doc as none of these issues were every even talked about. Ive been a mess since I’ve learned about all these issues.
Brent Strine
7 years ago
In 2008 I got a serious local infection after a total knee replacement. I was given an IV of Cipro for three days. I also have to take it in pill form every time I go to the Dentist. I do suffer from severe general arthritis and now am wondering if the Cipro exacerbated my symptoms.
E
7 years ago
Hi everyone. Im sorry Im posting here. Not sure what to do. I have neck problems from before cipro, but after cipro things have gotten worse, and I don’t blame the cipro because I have no idea if its related. My biggest problem after cipro has been my achilles tendons, so I can say for sure that cipro did damage that, I cant say for sure it did anything to my neck. So the reason im posting here is because of the pain, i have pain running down both arms and numbness in my right arm, and I have been to multiple doctors with no imagining other than a xray done, (x rays dont show nerve related issues), and no solutions or answers. My guess is its a herniated disc, maybe multiple herniations. I’m really young, only 17, and after having this trauma from being hurt by cipro, I am really scared to take any pharmaceutical pain killers. Even Tylenol scares me. I really don’t know what I’m asking, I know no one has exact answers. Im just getting no help from my doctors and its hard to keep going with this worsening pain. Ive been prescribed gabapentin and told to take Tylenol. Has anyone taken painkillers prior to floxing? Im sorry this was so long. Thanks for reading
Mark Medley
7 years ago
I am suffering from severe insomnia.
Is anyone taking benzos as sleep aids?
I can’t sleep a wink without them
Serequel is possibility as it does not affect gaba a
I believe my husband was floxed by Ciprodex by his ear specialist. He had a cholesteotoma for years before they finally reconstructed his ear canal. They treated it by periodically cleaning out his ear and treating him with Ciprodex (or Ciprofloxacin eye drops and Dexamethasone eye drops depending on what was available.). He’s had a total of 37 surgeries in his lifetime and counting. He’s had a left ankle reconstruction (rupture), 5 shoulder surgeries, left knee replacement, and numerous other joint surgeries. He also has nerve damage to both of his feet and carpal tunnel in both of his hands.
I’ve told ALL of his doctors since day ONE that I believed the Ciprodex was the culprit (I’ve believed it since the Black Box warnings came out on the quinolones. I’m a pharmacist.). I’ve been met with a combination of scoffing, mockery, and outright denial. NOBODY will take us seriously. I’ve even gone as far as trying to get legal counsel. NOBODY will help us.
They only keep trying to operate on him or dose him with pain killers (when we get the doctors to actually believe what’s going on.)
We finally have a pain management doctor who believes he’s in pain now.
My husband is a remarkable man and I admire him. He sleeps very little, but his outlook on life is amazing, even though he lives in pain.
Getting him to even see another provider, alternative or otherwise is hard. He’s “burned out,” so to speak. He’s lost faith in most everybody now. I personally believe these drugs need to be yanked off the market and have for a very long time, but I’m one provider of many. My opinion doesn’t go very far. :'(
Kurt
7 years ago
Does connective tissue and collagen heal over time?
Ally
7 years ago
Hi! I am about to have to take a course of doxycycline for a tick bite. I was wondering if any of you had any information on doxycycline causing the same type of reaction as Cipro etc.… I know they are a different class of antibiotics, But I’m still concerned about taking them and wondered what I like to do to protect myself during the treatment.?
Sandra Word
7 years ago
Thank you for all the info shared here. I have been “in the dark” and finally finding some light for answers.
Jane
7 years ago
I have just been in contact via e mail with someone else who was floxed . I have sent him details of floxiehope etc. When will this atrocity cease I wonder?
Tara
7 years ago
I am doing IV glutathione and Meyers Cocktail. I was able to get out of bed after starting IVs. I work full-time and have three little ones. I have pain, but most of my issues are brain fog, dizziness, and severe vision disturbances. In time, I will heal…
Jane
7 years ago
That’s the spirit, positivity is everything. These drs should be struck off
Hello Everyone my health is coming around! I am walking better but I always carry a cane.
Ever Gentleman should right! I actually gave a part at my congregation and stood up at the podium for it. I have not been able to stand on the stage for 5 years! So this is Awesome. maybe I will be a recovery story soon , eh Lisa.
Anyway. I have been doing water therapy and I joined a gym with my awesome wife. I am following the advice of my Natural Doctor. Dr, Morgan and my Acupuncturist Tao He and I think this has been helping me the most.
I still have my regular doctors I see two GI specialist now 1 in Cleveland Clinic and 1 at the University of Michigan.
My PCP is a dink and I think I am going to fire him.
I also use my RIFE Machine regularly.
I just wanted to share. I am getting ready for fishing this year! So look out for catch and cook videos on youtube real soon. I love you all and look for a day when all of us on here are not sick anymore.
I wish you all the best.
Mike Out
and good you are close to the Cleveland Clinic…they are integrative. Not your standard AMA “health” clinic.
Hey guys thought you would be the best to ask. My fiancé is having lots of hand pain and inflammation he doesn’t want to take NSAIDS and we tried tummeric pills and those didn’t work he is not a floxie but I’m bad with figuring out what’s good for him and he would rather take a pill then cream. This is for when he is working so cbd is not an option.
I thought this was interesting and maybe helpful in organizing a supplement plan. But I wonder why magnesium isn’t on their list?? Anyhow, I just wanted you all to be able to read it.
CIPROFLOXACIN (Cipro®, Ciloxan®)
Ciprofloxacin is an antibacterial agent used to treat infections of the urinary tract, lower respiratory tract, sinuses, and other parts of the body.
Which Nutrients Are Robbed
Taking this medicine may deplete your supply of, increase your need for, or interfere with the activity of:
biotin
inositol
thiamin
riboflavin
niacin
vitamin B6
vitamin B12
vitamin K
zinc
Bifidobacteria bifidum
Lactobacillus acidophilus.
Restoring the Nutrient Balance
Speak to your physician about taking 500-1000 mcg of biotin, 250-1000 mg of inositol, 25-200 mg of thiamin, 25-100 mg of riboflavin, 50-100 mg of niacin, 100 mg of vitamin B6, 500-1000 mcg of vitamin B12, 1-10 mg of vitamin K, 50-100 mg of zinc, 15 billion live Bifidobacteria bifidum organisms, and 15 billion live Lactobacillus acidophilus organisms. You can also eat foods that contain the depleted nutrients. https://www.integrativepsychiatry.net/preventing_pharmaceutical_induced_nutritional_deficiencies.html
Hi everyone, I’ve taken cipro a few times but realised I was floxed the last two to three times (I don’t want to go in all the details as it horrifies me but it is in the past so be it!), the last time where the bomb from hell went off in my body actually helped me to put together all the pieces of what the hell has been happening over the last 6 months. I’m almost 4 weeks out since last flox and experiencing various levels of hell but now I am much more educated now about how to take charge of my health and I am doing so!
We are all really going through the most difficult thing I feel we will ever experience but this experience will truly shape us into better, stronger and more educated people. I feel like this is SUCH a painful lesson but already I have reshaped so many views on health, life and what is really important! Anyway I wanted to make a post for two reasons, 1. If anyone is feeling extremely alone and just needs another mind to chat to via email, to talk about symptoms, discuss treatments they’ve tried and generally just need moral support you could email me at stefflets1@gmail.com. I will try to respond as often as possible. I can’t make any promises but I would like to keep a conversation focused on being positive or proactive and getting through our daily struggles. I’m just putting it out there because thankfully I have my partner and my father who are being great ears to my issues but some of you don’t have that, and it would also be good to give my loved ones a break. There is only so much they can understand or comprehend of this madness. Also note: This is a great website and I am thankful for the positive things people have written and that this feels like a good support network. It really gives us hope! BUT dont spend too much time on here, it can make your anxiety levels go berserk!
2. I have been suffering from a UTI (definite infection) for almost 2 months and as I got floxed recently I had total panic and tried to avoid antibiotics that my doctors have prescribed. I know alot of people here have become very anti-antibiotic. I tried to treat my UTI aggressively with natural methods and it just wouldnt budge, or would slightly disappear and come back. So now I am on Keflex which I think is working fine, and I have been on it for 2 days now without any adverse reactions. Yes I am nervous, as Bactrim caused an FQ reaction in me previously which I didnt fully understand, I don’t want to take anymore pharma medicines but in this case I really felt it was needed, and by avoiding the antibiotic I became EXTREMELY ill and pushing through the pain to the point where I was in total agony and was not able to sleep barely any hours per night. I realised this is not helpful at all, as sleep is really important for us to heal! I am now equipped with many natural supplements to prevent reinfection and high strength womens probiotics to support flora as well when the course is finished. We are in a hard place due to the FQs affects on our bodies but just try to make the best decision for yourself, and get your body supported by good diet and natural therapies to help prevent reinfection later. Really work on making sure you are in the best opportunity to avoid future illnesses so there are no needs to take these antibiotic medicines again. Only now did I start to be aware of my own patterns and how I was putting myself into these situations where I was getting extremely sick, leading to take the antibiotics.
Thanks
Steff
Hi everyone- Can you please tell me how long it took your brain fog/confusion to go away post flox? Thank you.
I am 53. How can I learn if my joint issues are related to taking Levaquin and Cipro in my 30s for ENT infections. I recall reporting joint fatigue and achiness during a repeat round of Levaquin and it was never prescribed for me again. I have had 11 joint surgeries since and I’m currently recovering from a hip revision. The surgeon commented that I’m “extremely flexible”. I have deveoped issues in other joints while using the walker and cane–and I prepared for surgery with gentle yoga and strength training.
Hello all, I was given a 10 day prescription for levafloxacin around Christmas. The only side effects I really had was some itching early on and some stomach pain early on. My question is, how long should I be looking for severe reactions to this poison. I’m not real happy with the prescribing doc as none of these issues were every even talked about. Ive been a mess since I’ve learned about all these issues.
In 2008 I got a serious local infection after a total knee replacement. I was given an IV of Cipro for three days. I also have to take it in pill form every time I go to the Dentist. I do suffer from severe general arthritis and now am wondering if the Cipro exacerbated my symptoms.
Hi everyone. Im sorry Im posting here. Not sure what to do. I have neck problems from before cipro, but after cipro things have gotten worse, and I don’t blame the cipro because I have no idea if its related. My biggest problem after cipro has been my achilles tendons, so I can say for sure that cipro did damage that, I cant say for sure it did anything to my neck. So the reason im posting here is because of the pain, i have pain running down both arms and numbness in my right arm, and I have been to multiple doctors with no imagining other than a xray done, (x rays dont show nerve related issues), and no solutions or answers. My guess is its a herniated disc, maybe multiple herniations. I’m really young, only 17, and after having this trauma from being hurt by cipro, I am really scared to take any pharmaceutical pain killers. Even Tylenol scares me. I really don’t know what I’m asking, I know no one has exact answers. Im just getting no help from my doctors and its hard to keep going with this worsening pain. Ive been prescribed gabapentin and told to take Tylenol. Has anyone taken painkillers prior to floxing? Im sorry this was so long. Thanks for reading
I am suffering from severe insomnia.
Is anyone taking benzos as sleep aids?
I can’t sleep a wink without them
Serequel is possibility as it does not affect gaba a
Any comments
I believe my husband was floxed by Ciprodex by his ear specialist. He had a cholesteotoma for years before they finally reconstructed his ear canal. They treated it by periodically cleaning out his ear and treating him with Ciprodex (or Ciprofloxacin eye drops and Dexamethasone eye drops depending on what was available.). He’s had a total of 37 surgeries in his lifetime and counting. He’s had a left ankle reconstruction (rupture), 5 shoulder surgeries, left knee replacement, and numerous other joint surgeries. He also has nerve damage to both of his feet and carpal tunnel in both of his hands.
I’ve told ALL of his doctors since day ONE that I believed the Ciprodex was the culprit (I’ve believed it since the Black Box warnings came out on the quinolones. I’m a pharmacist.). I’ve been met with a combination of scoffing, mockery, and outright denial. NOBODY will take us seriously. I’ve even gone as far as trying to get legal counsel. NOBODY will help us.
They only keep trying to operate on him or dose him with pain killers (when we get the doctors to actually believe what’s going on.)
We finally have a pain management doctor who believes he’s in pain now.
My husband is a remarkable man and I admire him. He sleeps very little, but his outlook on life is amazing, even though he lives in pain.
Getting him to even see another provider, alternative or otherwise is hard. He’s “burned out,” so to speak. He’s lost faith in most everybody now. I personally believe these drugs need to be yanked off the market and have for a very long time, but I’m one provider of many. My opinion doesn’t go very far. :'(
Does connective tissue and collagen heal over time?
Hi! I am about to have to take a course of doxycycline for a tick bite. I was wondering if any of you had any information on doxycycline causing the same type of reaction as Cipro etc.… I know they are a different class of antibiotics, But I’m still concerned about taking them and wondered what I like to do to protect myself during the treatment.?
Thank you for all the info shared here. I have been “in the dark” and finally finding some light for answers.
I have just been in contact via e mail with someone else who was floxed . I have sent him details of floxiehope etc. When will this atrocity cease I wonder?
I am doing IV glutathione and Meyers Cocktail. I was able to get out of bed after starting IVs. I work full-time and have three little ones. I have pain, but most of my issues are brain fog, dizziness, and severe vision disturbances. In time, I will heal…
That’s the spirit, positivity is everything. These drs should be struck off
L
I will write to Bernie Sanders instead. Thanks.