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Jacob Broyles
7 years ago
what can we do for balance/vertigo issues? is this 100% nerve damage related? mitochondria related? i feel like im constantly walking on a boat and it feels like my body is being pulled straight down. ruined my life. 6 years out.
ursula
7 years ago
life was good for 2 years (took long to get better from 2013) Then something hit me 3 months ago, it started with a dry cough, thick nasal drip, anxiety kicked in severly/depression also, im 49, period were 40 days late, am i in perimenupause?, feeling of 10 bricks on my chest couldnt handle movement on the tv choking to breath 74/7 so severe i had to get back on ativan, extreme fatique, from healthy energetic woman back to squeare 1, at least i sleep without sleeping tab , they want to put me on angeliq and brintellix AD. any advice as ive read to get to menupause can take you off your head lines, no really hot flushes yet. anyons here went through menupause with this sudden onset how long? cant function at all without the ativan tried for 2 months. tried st john wort nothing helps all natural calming stuff did nothing to help me. ive been on ativan the first7 months in 2013 but could go without for a few years till now, i know how bad benzo is but i want i dont want to jump off a cliff.
FrankB
7 years ago
Hey everyone,just stoping by to say hi.Been a while.
Still not fully recovered,still dealing with relapses,still haven’t given up,
still haven’t forgotten you all.Sorry I haven’t been here in a while,
but sometimes I just want to close myself off to the reality of my
situation and just binge on Netflix.I feel guilty for that.Lately I found
that hitting my relapses,cycles,flares,etc with three or four days of green juicing
really helps.Thinking about going back on Colostrum because that helped me so
much in the past,If only I can find away to get around the side effects.
FrankB
7 years ago
Hi Nicole,Hi L.The side effects I experience from Colostrum is mainly(only)
an extreme drop in libido and constipation.The libido I can deal with,it’s
why the drop happens that bothers me.Obviously it effects my hormones in
some way and I’m afraid to stay on it too long.Is it possibly estrogenic? I have a female friend who has been using it without side effects in that area,so I wouldn’t be afraid to
give it a try if you haven’t already.The constipation is bad.A teaspoon of the stuff
will back me up.I have the same problem with Whey powder.L,No I’m not on any probiotics.Can you recommend any brands or
foods? My problem is I had and still have other ailments before getting floxed.I
suffer from IC,prostatitis,frequent bladder infections,so I am forced to use antacids sometimes to calm down a flare up.Antacids always trigger a floxing relapse with me.
I wonder why? Strange.Our bodies produce bicarbonate naturally…And so I have to
make a decision,one discomfort for another.It’s either I use a bicarbonate to
knock out the infection and inflammation or go on an antibiotic.I’ve sworn to never
take a another antibiotic ever again.I have let my family know that in the event I
get any ailment that requires an antibiotic to survive it,like pneumonia I’m letting the disease
take it course.
P.S.Never heard of Grace and Frankie,I’ll have to check it out.
Hope you feel better,
Frank
Penny Franklin
7 years ago
Has anyone dealt with widespread neuropathy? I have burning feet, tingling and pins and needles in legs, hands fall asleep at night, and atypical trigeminal neuralgia symptoms, how do you deal with this? Does it improve with time? I am five months in from taking Levaquin 500mg 1x/day for four days. Thank you.
L
7 years ago
should be 2 1/2 (not 212!)
steph
7 years ago
So I am getting worse still. I am still playing the begging game for help. I stay positve I try to find the joy in each day. The one thing I have no more tolerance for are poeple who are curious about me. I have been understanding for 2.5 yrs now. I have been kind to those who wish to use my illness as talking points with people I used to work with for them to make conversation and have an in. I am now done with that. I don’t think people understand that asking someone for information on how they are doing because they are curious is messed up. I don’t need people to be curious about me. I need support and love and if people want to be curious about me they can get me telling them where to go and how to get there. Maybe they will learn that my kindness was a gift and they didn’t deserve it.
I am just going through trying to live and don’t need to be treated like a thing of curiosity by anyone I am a human being. I will not tolerate not being treated like one anymore. My heart is getting worse and so are my attacks. My fiance told me sometimes he holds me when I am sleeping because I don’t look like I am in pain. I don’t think the people who say I just wanted information cause I was curious understand that at all.
L
7 years ago
Hey guys, read something I thought I would pass along for those of you dealing with pain. I am taking MSM for allergies and connective tissue and then I just saw this when I was googling. Might be worth a shot. “Maybe the most important find of MSM is that it is an {effective pain killer]. MSM works on many types of chronic pain. Stanley W. Jacob M.D., Ronald M. Lawarnce M.D., Ph.D. in 3/99 published “The Miracle of MSM” The Natural Solution for Pain”.
Nicole
7 years ago
Heather I am in Vancouver, BC and I get a collagen called TruMarine Collagen. I do believe it is just Canadian and if you are in the states you will have to order it. I have some Floxie friends down there who have ordered it and love what it has done for them. My NP says it is the best and my supplement shop seems to sell out fast.
You can put it in liquid or your food like yogurt. You just have to give it a few minutes to dissolve. I just put a scoop ( which comes in the jar with it ) in my water bottle and shake it up. I only have one scoop a day but you can have two. My friend in NYC puts it in her tart cherry juice.
I have heard from a few people about antihistamines helping with the nerve pain. Does anyone know why?
I am going to look into the MSM L for the pain. I just tried CBD oil but lowered my heartbeats into the 40’s so my cardiologist said for me not to use them as this is normal with some people. I also bought patches but luckily did not use them as I saw they had lidocaine in them as well and something just said don’t use them. That was before I had the Alcaine drops in my eyes. pretty sure they are what has caused my relapse as it just came within a few days of the eye tests. Now what?!
L
7 years ago
Hi everyone. I found out today about another IV therapy, which I will try when I finish my phosphatidylcholine……it is called NAD+ My doctor suggested it for mitochondrial damage, but as I was reading up on it, I saw it is also supposed to help with pain (which I no longer have but I know many of you do.) So—something you might want to look into.
...
7 years ago
so i had a dentist appt to get fillings done and i wasn’t getting numb so they used another type of numbing, septocaine, and apparently they also used something called gluma which is a desensitizer in the filling and i’ve had an increase in twitching and some other symptoms since then. i don’t know if it was the gluma or the septocaine, maybe it was neither, but i have to go back in a few days for more fillings and i’m not sure what to do. i’m tired of people looking at me like i’m crazy when i ask for certain types of numbing/avoiding certain things in medical procedures and i feel like thats what im gonna have to do in a couple days when i go for more fillings. i already had to ask them not to use fluoride..i feel like they are gonna be so sick of me asking about these things. does anyone think i should i ask them not to use septocaine or the desensitizer or just let them do whatever and see?
L
7 years ago
Bob and Nicole….years ago, I had three root canals. Paid $1,000 each and LOST each tooth within a year. I was so pissed off at the waste of money, but now I am glad I no longer have them. Root canals are NOT healthy. It involves leaving a dead body part in your mouth. The roots are full of canals, and bacteria from the dead tooth then enter the canals and into your body. Now your typical ADA dentist will tell you this is nonsense, and that they’re safe, but again they are just as brainwashed as your typical allopathic doctor. There have been so many books written on the dangers of root canals. Here is Dr Mercola talking about them. http://articles.mercola.com/what-is-a-root-canal.aspx
Nicole
7 years ago
Bob I certainly believe your pharmacist said that as it would be the truth!
I hate hearing all the drug ads on TV that are going to give you this or that or kill you but wish I had heard one on FQ’s.
I had even had them at least twice before with side effects but except for C-Diff I never related the other things that have lasted for over 10 years to the Cipro. They were liveable side effects so just thought it was my weird body & ageing! The side effects with the last one were definitely not liveable!!!!
L you may have a answer to this, I am wondering if I am wasting my time seeing a neurologist and going through all her tests when I really don’t think they will find anything and if she did I probably would not take whatever drug she would want me too?!
Speaking of taking things my NP has been on me to take a pill called Naltrexone for a year & a half. My pharmacist is a integrative chemist and agrees it could help. I have to question everything of course?!
That is really fascinating, You’re an overly skilled blogger.
I’ve joined your feed and look ahead to looking for more of your fantastic post.
Additionally, I’ve shared your website in my social networks
Am I missing something ? I havn’t a clue what the last two posts are about. Can anyone enlighten me ?
Ann
7 years ago
Has anyone in here done an muscle biopsy?
FrankB
7 years ago
I was on LDN many years ago during my first floxing and I think it did help,
tried it again two years ago and it didn’t help me much,but like Bob mentioned,I can definitely vouch for the depression that it can cause.It brought out
a very sad,hopeless state in me that lasted about four hours after I took
it.Even at water micro dosing levels(you will learn about this)
I still felt the same.I think it also lowered my immune system because
I was getting colds all the time and I got a sore throat that I could not
shake untill I stopped using it for a month.
Just ordered some Colostrum,
will give it another go.Has anyone tried Lyrica? I know I have asked this before, but I’m
hoping someone new could answer.I have a script just collecting
dust,so desperate.Please don’t reply with any second hand accounts or negative opinions not based on any personal experience.
FrankB
7 years ago
How about High cbd to thc Marijuana? I tried vaping cbd oil but I think
the carrier oil gave me side effects.There is hope that MJ will be made
legal on the Federal level and legally recreationally in the state I live.
Some strains are Charlotte’s web and Ac/dc
I have been exploring for a bit for any high quality articles or
blog posts in this sort of house . Exploring in Yahoo
I ultimately stumbled upon this site. Studying this information So i am glad to show that I
have a very excellent uncanny feeling I found out just what I needed.
I so much without a doubt will make certain to do not omit this website and give it a
glance regularly.
what can we do for balance/vertigo issues? is this 100% nerve damage related? mitochondria related? i feel like im constantly walking on a boat and it feels like my body is being pulled straight down. ruined my life. 6 years out.
life was good for 2 years (took long to get better from 2013) Then something hit me 3 months ago, it started with a dry cough, thick nasal drip, anxiety kicked in severly/depression also, im 49, period were 40 days late, am i in perimenupause?, feeling of 10 bricks on my chest couldnt handle movement on the tv choking to breath 74/7 so severe i had to get back on ativan, extreme fatique, from healthy energetic woman back to squeare 1, at least i sleep without sleeping tab , they want to put me on angeliq and brintellix AD. any advice as ive read to get to menupause can take you off your head lines, no really hot flushes yet. anyons here went through menupause with this sudden onset how long? cant function at all without the ativan tried for 2 months. tried st john wort nothing helps all natural calming stuff did nothing to help me. ive been on ativan the first7 months in 2013 but could go without for a few years till now, i know how bad benzo is but i want i dont want to jump off a cliff.
Hey everyone,just stoping by to say hi.Been a while.
Still not fully recovered,still dealing with relapses,still haven’t given up,
still haven’t forgotten you all.Sorry I haven’t been here in a while,
but sometimes I just want to close myself off to the reality of my
situation and just binge on Netflix.I feel guilty for that.Lately I found
that hitting my relapses,cycles,flares,etc with three or four days of green juicing
really helps.Thinking about going back on Colostrum because that helped me so
much in the past,If only I can find away to get around the side effects.
Hi Nicole,Hi L.The side effects I experience from Colostrum is mainly(only)
an extreme drop in libido and constipation.The libido I can deal with,it’s
why the drop happens that bothers me.Obviously it effects my hormones in
some way and I’m afraid to stay on it too long.Is it possibly estrogenic? I have a female friend who has been using it without side effects in that area,so I wouldn’t be afraid to
give it a try if you haven’t already.The constipation is bad.A teaspoon of the stuff
will back me up.I have the same problem with Whey powder.L,No I’m not on any probiotics.Can you recommend any brands or
foods? My problem is I had and still have other ailments before getting floxed.I
suffer from IC,prostatitis,frequent bladder infections,so I am forced to use antacids sometimes to calm down a flare up.Antacids always trigger a floxing relapse with me.
I wonder why? Strange.Our bodies produce bicarbonate naturally…And so I have to
make a decision,one discomfort for another.It’s either I use a bicarbonate to
knock out the infection and inflammation or go on an antibiotic.I’ve sworn to never
take a another antibiotic ever again.I have let my family know that in the event I
get any ailment that requires an antibiotic to survive it,like pneumonia I’m letting the disease
take it course.
P.S.Never heard of Grace and Frankie,I’ll have to check it out.
Hope you feel better,
Frank
Has anyone dealt with widespread neuropathy? I have burning feet, tingling and pins and needles in legs, hands fall asleep at night, and atypical trigeminal neuralgia symptoms, how do you deal with this? Does it improve with time? I am five months in from taking Levaquin 500mg 1x/day for four days. Thank you.
should be 2 1/2 (not 212!)
So I am getting worse still. I am still playing the begging game for help. I stay positve I try to find the joy in each day. The one thing I have no more tolerance for are poeple who are curious about me. I have been understanding for 2.5 yrs now. I have been kind to those who wish to use my illness as talking points with people I used to work with for them to make conversation and have an in. I am now done with that. I don’t think people understand that asking someone for information on how they are doing because they are curious is messed up. I don’t need people to be curious about me. I need support and love and if people want to be curious about me they can get me telling them where to go and how to get there. Maybe they will learn that my kindness was a gift and they didn’t deserve it.
I am just going through trying to live and don’t need to be treated like a thing of curiosity by anyone I am a human being. I will not tolerate not being treated like one anymore. My heart is getting worse and so are my attacks. My fiance told me sometimes he holds me when I am sleeping because I don’t look like I am in pain. I don’t think the people who say I just wanted information cause I was curious understand that at all.
Hey guys, read something I thought I would pass along for those of you dealing with pain. I am taking MSM for allergies and connective tissue and then I just saw this when I was googling. Might be worth a shot. “Maybe the most important find of MSM is that it is an {effective pain killer]. MSM works on many types of chronic pain. Stanley W. Jacob M.D., Ronald M. Lawarnce M.D., Ph.D. in 3/99 published “The Miracle of MSM” The Natural Solution for Pain”.
Heather I am in Vancouver, BC and I get a collagen called TruMarine Collagen. I do believe it is just Canadian and if you are in the states you will have to order it. I have some Floxie friends down there who have ordered it and love what it has done for them. My NP says it is the best and my supplement shop seems to sell out fast.
You can put it in liquid or your food like yogurt. You just have to give it a few minutes to dissolve. I just put a scoop ( which comes in the jar with it ) in my water bottle and shake it up. I only have one scoop a day but you can have two. My friend in NYC puts it in her tart cherry juice.
I have heard from a few people about antihistamines helping with the nerve pain. Does anyone know why?
I am going to look into the MSM L for the pain. I just tried CBD oil but lowered my heartbeats into the 40’s so my cardiologist said for me not to use them as this is normal with some people. I also bought patches but luckily did not use them as I saw they had lidocaine in them as well and something just said don’t use them. That was before I had the Alcaine drops in my eyes. pretty sure they are what has caused my relapse as it just came within a few days of the eye tests. Now what?!
Hi everyone. I found out today about another IV therapy, which I will try when I finish my phosphatidylcholine……it is called NAD+ My doctor suggested it for mitochondrial damage, but as I was reading up on it, I saw it is also supposed to help with pain (which I no longer have but I know many of you do.) So—something you might want to look into.
so i had a dentist appt to get fillings done and i wasn’t getting numb so they used another type of numbing, septocaine, and apparently they also used something called gluma which is a desensitizer in the filling and i’ve had an increase in twitching and some other symptoms since then. i don’t know if it was the gluma or the septocaine, maybe it was neither, but i have to go back in a few days for more fillings and i’m not sure what to do. i’m tired of people looking at me like i’m crazy when i ask for certain types of numbing/avoiding certain things in medical procedures and i feel like thats what im gonna have to do in a couple days when i go for more fillings. i already had to ask them not to use fluoride..i feel like they are gonna be so sick of me asking about these things. does anyone think i should i ask them not to use septocaine or the desensitizer or just let them do whatever and see?
Bob and Nicole….years ago, I had three root canals. Paid $1,000 each and LOST each tooth within a year. I was so pissed off at the waste of money, but now I am glad I no longer have them. Root canals are NOT healthy. It involves leaving a dead body part in your mouth. The roots are full of canals, and bacteria from the dead tooth then enter the canals and into your body. Now your typical ADA dentist will tell you this is nonsense, and that they’re safe, but again they are just as brainwashed as your typical allopathic doctor. There have been so many books written on the dangers of root canals. Here is Dr Mercola talking about them. http://articles.mercola.com/what-is-a-root-canal.aspx
Bob I certainly believe your pharmacist said that as it would be the truth!
I hate hearing all the drug ads on TV that are going to give you this or that or kill you but wish I had heard one on FQ’s.
I had even had them at least twice before with side effects but except for C-Diff I never related the other things that have lasted for over 10 years to the Cipro. They were liveable side effects so just thought it was my weird body & ageing! The side effects with the last one were definitely not liveable!!!!
L you may have a answer to this, I am wondering if I am wasting my time seeing a neurologist and going through all her tests when I really don’t think they will find anything and if she did I probably would not take whatever drug she would want me too?!
Speaking of taking things my NP has been on me to take a pill called Naltrexone for a year & a half. My pharmacist is a integrative chemist and agrees it could help. I have to question everything of course?!
That is really fascinating, You’re an overly skilled blogger.
I’ve joined your feed and look ahead to looking for more of your fantastic post.
Additionally, I’ve shared your website in my social networks
On this question have already been solved several times.
Beware and do not flood
right here is the weblink http://researchinhelpfor.com/type-my-original-gandhi-term-paper/
Am I missing something ? I havn’t a clue what the last two posts are about. Can anyone enlighten me ?
Has anyone in here done an muscle biopsy?
I was on LDN many years ago during my first floxing and I think it did help,
tried it again two years ago and it didn’t help me much,but like Bob mentioned,I can definitely vouch for the depression that it can cause.It brought out
a very sad,hopeless state in me that lasted about four hours after I took
it.Even at water micro dosing levels(you will learn about this)
I still felt the same.I think it also lowered my immune system because
I was getting colds all the time and I got a sore throat that I could not
shake untill I stopped using it for a month.
Just ordered some Colostrum,
will give it another go.Has anyone tried Lyrica? I know I have asked this before, but I’m
hoping someone new could answer.I have a script just collecting
dust,so desperate.Please don’t reply with any second hand accounts or negative opinions not based on any personal experience.
How about High cbd to thc Marijuana? I tried vaping cbd oil but I think
the carrier oil gave me side effects.There is hope that MJ will be made
legal on the Federal level and legally recreationally in the state I live.
Some strains are Charlotte’s web and Ac/dc
I have been exploring for a bit for any high quality articles or
blog posts in this sort of house . Exploring in Yahoo
I ultimately stumbled upon this site. Studying this information So i am glad to show that I
have a very excellent uncanny feeling I found out just what I needed.
I so much without a doubt will make certain to do not omit this website and give it a
glance regularly.