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Thomas Sealy
7 years ago
Aloha, Is it ok to use a jacuzzi for ankle pain post-Ciprofloxacin? The water in Hawaii is not fluoridated. Mahalo, Thomas
mikey3582
7 years ago
I wanted to ask everyone: at any point during the suffering of your symptoms, were you extremely anxious and fearful of having some other serious disease or condition?
Several months ago at the end of March/beginning of April I consumed 2 pills of Cipro, which I stopped, and then a few weeks later, consumed a full 10-day course of Levo. I did have aches at first, but no severe symptoms. After a few weeks of stopping, it seemed like the symptoms went away.
Then about a month later I started having weird episodes where both my arms suddenly would go numb for a minute, and I started having painless twitching all over my body.
It still wasn’t all that bad, but then at the end of July I went on a whale-watching trip where I became violently motion sick, and during the moments I was hurling, I had a brief period of about 30 seconds where my entire body went numb and tingly.
It seems as if that episode on the boat “triggered” something, because as soon as I returned from the trip, I all of a sudden had extreme weakness, muscle fatigue, muscle soreness, tremors, etc., and they haven’t gotten much better in the last month.
I’ve honestly been scared because while I know it’s far more likely for me to have been adversely affected by the fluoroquinolones I took, I still can’t shake the fear that I might have some awful disease like ALS.
It’s been driving me crazy because all of the tests I’ve gotten as well as an MRI haven’t found anything, but ALS also can’t be “detected” at its early stages. Has this same anxiety been ruining or ruined anyone else’s life for a while?
Thanks for reading.
mikey3582
7 years ago
Actually while I’m here, I’ll leave a complete list of all the symptoms I am experiencing or have experienced for others’ reference:
– Labored breathing (episodic, occasional, short-lasting)
– Prickly sensations/numbness (episodic, rare, very short bouts maybe 10 seconds)
– Anxiety/Panic Attacks (episodic, occasional, I can’t tell if this is because I’m stressed and worried about my condition or if this is a side-effect, but I figured I’d mention it)
– Stress (constant, daily, I’m always freaking out because my condition doesn’t seem to be improving much and I don’t actually know what I have, if anything, have a lot of headaches because I keep clenching my jaw from stress)
– Heart palpitations (episodic, occasional, about 1 minute or so each time – usually happens after walking up a hill or occasionally when waking up in the morning)
– Insomnia (a few days, rare, only lasted a week – there was a week where I was unable to get any deep sleep, and every morning I woke up with heart pumping, thoughts racing)
– Mood swings (episodic, daily, periods of an hour where I’m an emotional mess)
– Muscle weakness (constant, daily, I can’t apply strong or consistent force on anything, my muscles shake/quiver)
– Muscle twitching (episodic, daily, usually when pressure applied to muscles/tendons or when at rest, like sleeping, happens all over body mostly in arms and legs, very occasionally in the body and on the face)
– Tremors (episodic, daily, when I reach for food with chopsticks at the dinner table, my hand is visibly shaking)
– Muscle tension/knotting (constant, daily, not extremely bad or painful, but my thigh muscles have been developing knots – I have to massage them every night because they’re sore all the time now)
– Fatigue (constant, daily, all of a sudden I have a hard time walking up hills, staying standing up for long periods of time, maintaining good posture, or exerting myself – I know I wasn’t the most athletic before but it was never this bad)
– Tension headaches (episodic, occasional, I noticed that my worst symptoms like fatigue, shaking, and weakness are typically accompanied by a mild headache at the top or back of my head)
– Mental Interference (episodic, rare, very short bouts – sometimes I forget what I’m saying mid-sentence or I stutter a lot more than normal)
– Sensitivity to caffeine (constant, daily, can’t even drink half a cup of coffee without all of the listed symptoms flaring up and going haywire)
I also used Arnica as a Homeopathic treatment and Ran a RIFE Machine and went to an acupuncturist.
3 years into my recovery I had some bad teeth develop so I had to get one pulled and right after that I got severe intestinal problems that wouldn’t go away and got worse and worse.
After over 200 tests and many hospital visits. They diagnosed me with a rare autoimmune disease called Adult Autoimmune Enteropathy. A few of the specialist at the Cleveland Clinic and the University of Michigan said that maybe the disease was brought on or brought out by my Floxing and the autoimmune response to it.
I tried CBD Oil and C60 oil for a time. CBD did give me some relief. The c60 made my legs feel better for some time but the problem with c60 is you have no control where it wants to work. When I used it in conjunction with the RIFE Machine it seemed to work better.
My guts are slowly coming back. My doctor has put me on a low does of Tacrolimus and has taking me off the high steroids. I have gone on Dr. Axe’s regimen to rebuild my Microbiom.
I had to get over a C-Diff infection which I caught from the hospital. Been on the anti C-Diff diet and H-Pillori Diet. Take Probiotics and Oregano Oil.
I continue to watch what I eat. I avoid processed soy and eat very little Gluten and Milk.
The end of the matter is I was down to 114lbs and I am 6 foot. Now I am back up to 160lbs.
I am walking again with a Cane but I am walking and functioning as best as I can now.
I enjoy the outdoors as much as I can and I do go fishing with my wife once in awhile.
The days of running and walking for miles are long gone. But I have come a long way from the day I was Floxed and thought I was dying.
Hang in there people you can and will get better it just may take some time. Put everything else away and focus on your recovery. Take day one day at a time. Keep a food Journal and a recovery Journal.
Most importantly Never Give Up!
best regards fellow Floxie,
Michael
L
7 years ago
meant to say “prescribed prednisone at the same time”
Amy
7 years ago
Does anyone know of a reputable integrative/functional doctor in the Dallas, TX area that has experience treating fluoroquinolone toxicity? Thanks!
Thomas Sealy
7 years ago
Aloha, Does anyone have any suggestions on the importance of taking magnesium and vitamin D3 at the same time? I came across it in the Fluoroquinolone Book, but I forgot which page. Mahalo for your help.
Amanda
7 years ago
Have any Floxies here had low iron? If so, did you use food OR iron supplements
to help raise iron levels? My iron was very low, and my doctor wants me on a
supplement, but I’d rather try food. The only iron suppl. that may not mess up
my gut and doesn’t have a lot of junk or things I’m allergic to is – Nature’s Plus
Chewable Iron plus Vit C. Either way, I’ve got to get my iron up.
**Floxed by Levafloxacin 6 years ago**
mee
7 years ago
Two months out and having muscle spams around the chest area and also tingling in the scalp and face around the eye. Currently taking magnesium, cq10, vitamin b, and vitamin d. Really praying and hoping theses symptoms will go away. Did anyone have the same symptoms and how long did it take to go away?
L
7 years ago
There are people here who have been severely injured. Get the hell out of here.
Jane
7 years ago
L well said L. I am at the end of my tether thanks to fluoroquinolones.
Hi everyone. Like I wrote before, i was floxed 9 months ago. A doctor prescribed me a FQ because he suspected I had an urinary tract infection, even tough the test came out negative. Now,after months of suffering ( physical and emotional) I’m starting to get a little better. I’ve completely clean up my diet, eatin lots of fruits and vegetables, I give up dairy, and I’m trying to eat as much organic as I can. I’m also trying to do some physical activite, as much as I can, and I’m also taking a joint supplement and some collagen. I think it’s helping, but who knows…maybe it’s just a cycling phase of the FQ.
Anyway, I’ll probably have to go under surgery for a bladder problem. I’m not sure yet, I’m waiting to do some other test, but I’m completely scared. I dont’ know if my body is ready to something like that. Of course if I’ll do it, I’m gonna tell the doctors that I’m allergic to FQ, and also that I can’t take corticosteroid.
Do you think It’s a bad idea? What other medication can cause a relapse? Any suggestion would be appriciated. Thank you.
Andrea
7 years ago
Thanks L and Robert. I was already searching for an alternative to surgery. I really hope to avoid it. Anyway thanks a lot.
Andrea
7 years ago
P.S. Hey Robert, I’m so sorry to read of your current situation. And, I know, surgery many times it’s unnecessary, and sometimes It doesn’t even solve the problem…
Barbara Arnold
7 years ago
Can anyone tell me how to attach a link ? I can’t see an attachment link anywhere.
Barbara Arnold
7 years ago
Thanks L nice try. That’s double dutch to me. I am on a tablet, even if I found out how to do that where do I copy and paste it to. I can send attachments if there was an attachment icon on here, but there’s not. I am not techno great. The reason is I wanted to send information on hyperbaric oxygen therapy. I have a floxy friend who was bedridden and he has just emailed me to say after a few sessions he is now riding his bike. The inflammation has greatly reduced and he’s sleeping really well. He had neuropathy through his whole body. He also said CB OIL has really helped him sleep. I have sent the info to Lisa and hopefully she will post it here. I have researched it and it sounds hopeful, so I am actively looking to do it in the same hospital I got the ozone. I am just waiting for prices etc .Hyperbaric therapy is In the UK you can get it easily, they use it for MS patients and they let you use it for other ailments.
Andy Perks
7 years ago
http://hyperbaricoxygentherapy.com/patient-info#1
In was in the chamber today two people with ms who are clostrophobic had their carers sit with them but without the breathing masks
Hyperbaric isnt a quick fix you need 30-40 treatments and you herx like mad and it wipes you out the first two weeks
Faisal
7 years ago
Hello all,
Now 2 years floxiing I do test for Kirby a d liver tody
I hve problem in ALP Alkaline phosphatase little high
Any advice 🙁
I took mag with claim d3 and cut C
Faisal
7 years ago
Hello,
I do another test today showing little high as below
Sodium – serum ( normal range from 135 – 153 ) my test 163
Potassium – ( normal range from 3.5 – 5.3 ) my test 5.6
Chloride – ( normal range 98-107 ) my test 131
Alkaline phosphatase – ( normal range 80-306 ) my test 327
So any one facing same problem or any advice
I take mag with calcium and D3 and vitamins C for 2 years now and I need to change to RegMag only without calcium and D3 I need advice please
Aloha, Is it ok to use a jacuzzi for ankle pain post-Ciprofloxacin? The water in Hawaii is not fluoridated. Mahalo, Thomas
I wanted to ask everyone: at any point during the suffering of your symptoms, were you extremely anxious and fearful of having some other serious disease or condition?
Several months ago at the end of March/beginning of April I consumed 2 pills of Cipro, which I stopped, and then a few weeks later, consumed a full 10-day course of Levo. I did have aches at first, but no severe symptoms. After a few weeks of stopping, it seemed like the symptoms went away.
Then about a month later I started having weird episodes where both my arms suddenly would go numb for a minute, and I started having painless twitching all over my body.
It still wasn’t all that bad, but then at the end of July I went on a whale-watching trip where I became violently motion sick, and during the moments I was hurling, I had a brief period of about 30 seconds where my entire body went numb and tingly.
It seems as if that episode on the boat “triggered” something, because as soon as I returned from the trip, I all of a sudden had extreme weakness, muscle fatigue, muscle soreness, tremors, etc., and they haven’t gotten much better in the last month.
I’ve honestly been scared because while I know it’s far more likely for me to have been adversely affected by the fluoroquinolones I took, I still can’t shake the fear that I might have some awful disease like ALS.
It’s been driving me crazy because all of the tests I’ve gotten as well as an MRI haven’t found anything, but ALS also can’t be “detected” at its early stages. Has this same anxiety been ruining or ruined anyone else’s life for a while?
Thanks for reading.
Actually while I’m here, I’ll leave a complete list of all the symptoms I am experiencing or have experienced for others’ reference:
– Labored breathing (episodic, occasional, short-lasting)
– Prickly sensations/numbness (episodic, rare, very short bouts maybe 10 seconds)
– Anxiety/Panic Attacks (episodic, occasional, I can’t tell if this is because I’m stressed and worried about my condition or if this is a side-effect, but I figured I’d mention it)
– Stress (constant, daily, I’m always freaking out because my condition doesn’t seem to be improving much and I don’t actually know what I have, if anything, have a lot of headaches because I keep clenching my jaw from stress)
– Heart palpitations (episodic, occasional, about 1 minute or so each time – usually happens after walking up a hill or occasionally when waking up in the morning)
– Insomnia (a few days, rare, only lasted a week – there was a week where I was unable to get any deep sleep, and every morning I woke up with heart pumping, thoughts racing)
– Mood swings (episodic, daily, periods of an hour where I’m an emotional mess)
– Muscle weakness (constant, daily, I can’t apply strong or consistent force on anything, my muscles shake/quiver)
– Muscle twitching (episodic, daily, usually when pressure applied to muscles/tendons or when at rest, like sleeping, happens all over body mostly in arms and legs, very occasionally in the body and on the face)
– Tremors (episodic, daily, when I reach for food with chopsticks at the dinner table, my hand is visibly shaking)
– Muscle tension/knotting (constant, daily, not extremely bad or painful, but my thigh muscles have been developing knots – I have to massage them every night because they’re sore all the time now)
– Fatigue (constant, daily, all of a sudden I have a hard time walking up hills, staying standing up for long periods of time, maintaining good posture, or exerting myself – I know I wasn’t the most athletic before but it was never this bad)
– Tension headaches (episodic, occasional, I noticed that my worst symptoms like fatigue, shaking, and weakness are typically accompanied by a mild headache at the top or back of my head)
– Mental Interference (episodic, rare, very short bouts – sometimes I forget what I’m saying mid-sentence or I stutter a lot more than normal)
– Sensitivity to caffeine (constant, daily, can’t even drink half a cup of coffee without all of the listed symptoms flaring up and going haywire)
Hello Everyone,
I hope everyone is doing OK and I wish good health to you in the near future.
I am over 5 years out of being Floxed and I was in a wheelchair for almost a year.
The first two doctors that really helped me were my Natural Doctor and My rheumatologist.
I took the 23andMe test and found I am MTFHR++. Can’t Metholate.
They put me on some mentholated vitamins and some magnesium and calcium. They also put me on some meds to counter the reactive arthritis I developed as a result of the floxing and put me on the Terry Wahls Diet. and I contribute that to me walking again.
For Pain I quit taking the NSAIDs and other drugs. And switched to Natural things like Turmeric and Curcumin and Botswellia. I also took Cats Claw and Devils Claw.
But I found these two helped the most with pain.
https://www.amazon.com/Wild-Lettuce-Leaf-capsules-514665/dp/B008X8JP5C/ref=sm_n_ma_dka_US_pr_pub_0_2?sigts=1504105916824&sig=e832ff8bffc2038c3b0f261ad3ba08a6baa8c536&adId=B008X8JP5C&creativeASIN=B008X8JP5C&linkId=3bf7b947c5eec144bc1b761d8d11af9f&tag=boospelevguir-20&linkCode=w43&ref-refURL=http%3A%2F%2Filoveherbalism.com%2Fsimilar-opium-best-natural-painkiller-grows-backyard%2F&slotNum=0&imprToken=2IzYCWknscfY2G8L4dAt2A
Wild Lettuce which grows in your back yard and I dried it and made a tea out of it.
And this one.
https://www.rainbowlight.com/pain-eze.html
I also used Arnica as a Homeopathic treatment and Ran a RIFE Machine and went to an acupuncturist.
3 years into my recovery I had some bad teeth develop so I had to get one pulled and right after that I got severe intestinal problems that wouldn’t go away and got worse and worse.
After over 200 tests and many hospital visits. They diagnosed me with a rare autoimmune disease called Adult Autoimmune Enteropathy. A few of the specialist at the Cleveland Clinic and the University of Michigan said that maybe the disease was brought on or brought out by my Floxing and the autoimmune response to it.
I tried CBD Oil and C60 oil for a time. CBD did give me some relief. The c60 made my legs feel better for some time but the problem with c60 is you have no control where it wants to work. When I used it in conjunction with the RIFE Machine it seemed to work better.
My guts are slowly coming back. My doctor has put me on a low does of Tacrolimus and has taking me off the high steroids. I have gone on Dr. Axe’s regimen to rebuild my Microbiom.
I had to get over a C-Diff infection which I caught from the hospital. Been on the anti C-Diff diet and H-Pillori Diet. Take Probiotics and Oregano Oil.
I continue to watch what I eat. I avoid processed soy and eat very little Gluten and Milk.
The end of the matter is I was down to 114lbs and I am 6 foot. Now I am back up to 160lbs.
I am walking again with a Cane but I am walking and functioning as best as I can now.
I enjoy the outdoors as much as I can and I do go fishing with my wife once in awhile.
The days of running and walking for miles are long gone. But I have come a long way from the day I was Floxed and thought I was dying.
Hang in there people you can and will get better it just may take some time. Put everything else away and focus on your recovery. Take day one day at a time. Keep a food Journal and a recovery Journal.
Most importantly Never Give Up!
best regards fellow Floxie,
Michael
meant to say “prescribed prednisone at the same time”
Does anyone know of a reputable integrative/functional doctor in the Dallas, TX area that has experience treating fluoroquinolone toxicity? Thanks!
Aloha, Does anyone have any suggestions on the importance of taking magnesium and vitamin D3 at the same time? I came across it in the Fluoroquinolone Book, but I forgot which page. Mahalo for your help.
Have any Floxies here had low iron? If so, did you use food OR iron supplements
to help raise iron levels? My iron was very low, and my doctor wants me on a
supplement, but I’d rather try food. The only iron suppl. that may not mess up
my gut and doesn’t have a lot of junk or things I’m allergic to is – Nature’s Plus
Chewable Iron plus Vit C. Either way, I’ve got to get my iron up.
**Floxed by Levafloxacin 6 years ago**
Two months out and having muscle spams around the chest area and also tingling in the scalp and face around the eye. Currently taking magnesium, cq10, vitamin b, and vitamin d. Really praying and hoping theses symptoms will go away. Did anyone have the same symptoms and how long did it take to go away?
There are people here who have been severely injured. Get the hell out of here.
L well said L. I am at the end of my tether thanks to fluoroquinolones.
Here is a good read not just for floxies but i think it helps.
http://thechalkboardmag.com/dr-mark-hyman-tips-for-feeling-alway-tired
Hi everyone. Like I wrote before, i was floxed 9 months ago. A doctor prescribed me a FQ because he suspected I had an urinary tract infection, even tough the test came out negative. Now,after months of suffering ( physical and emotional) I’m starting to get a little better. I’ve completely clean up my diet, eatin lots of fruits and vegetables, I give up dairy, and I’m trying to eat as much organic as I can. I’m also trying to do some physical activite, as much as I can, and I’m also taking a joint supplement and some collagen. I think it’s helping, but who knows…maybe it’s just a cycling phase of the FQ.
Anyway, I’ll probably have to go under surgery for a bladder problem. I’m not sure yet, I’m waiting to do some other test, but I’m completely scared. I dont’ know if my body is ready to something like that. Of course if I’ll do it, I’m gonna tell the doctors that I’m allergic to FQ, and also that I can’t take corticosteroid.
Do you think It’s a bad idea? What other medication can cause a relapse? Any suggestion would be appriciated. Thank you.
Thanks L and Robert. I was already searching for an alternative to surgery. I really hope to avoid it. Anyway thanks a lot.
P.S. Hey Robert, I’m so sorry to read of your current situation. And, I know, surgery many times it’s unnecessary, and sometimes It doesn’t even solve the problem…
Can anyone tell me how to attach a link ? I can’t see an attachment link anywhere.
Thanks L nice try. That’s double dutch to me. I am on a tablet, even if I found out how to do that where do I copy and paste it to. I can send attachments if there was an attachment icon on here, but there’s not. I am not techno great. The reason is I wanted to send information on hyperbaric oxygen therapy. I have a floxy friend who was bedridden and he has just emailed me to say after a few sessions he is now riding his bike. The inflammation has greatly reduced and he’s sleeping really well. He had neuropathy through his whole body. He also said CB OIL has really helped him sleep. I have sent the info to Lisa and hopefully she will post it here. I have researched it and it sounds hopeful, so I am actively looking to do it in the same hospital I got the ozone. I am just waiting for prices etc .Hyperbaric therapy is In the UK you can get it easily, they use it for MS patients and they let you use it for other ailments.
http://hyperbaricoxygentherapy.com/patient-info#1
In was in the chamber today two people with ms who are clostrophobic had their carers sit with them but without the breathing masks
Hyperbaric isnt a quick fix you need 30-40 treatments and you herx like mad and it wipes you out the first two weeks
Hello all,
Now 2 years floxiing I do test for Kirby a d liver tody
I hve problem in ALP Alkaline phosphatase little high
Any advice 🙁
I took mag with claim d3 and cut C
Hello,
I do another test today showing little high as below
Sodium – serum ( normal range from 135 – 153 ) my test 163
Potassium – ( normal range from 3.5 – 5.3 ) my test 5.6
Chloride – ( normal range 98-107 ) my test 131
Alkaline phosphatase – ( normal range 80-306 ) my test 327
So any one facing same problem or any advice
I take mag with calcium and D3 and vitamins C for 2 years now and I need to change to RegMag only without calcium and D3 I need advice please