For over a decade this page has been dedicated to enabling the conversation for floxies to talk with one another. Sign up and subscribe to get all the latest comments.
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
I allow to create an account
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
26.5K Comments
Inline Feedbacks
View all comments
jat92517
7 years ago
Thanks Deb for your comments. Our bodies are indeed complex.
There are many details your comments call forth. Sticking to the most important ones first. I’ll start to respond.
My introduction on how the body functions chemically is based on my recovery from food intolerances that ruined my intetestines to the point when I was severely deficient in the micronutrients. My intentional capacity was about 20% of the normal surface area plus it would not pass the larger molecules like vitamins. This reverses slowly when you avoid these foods. It takes about two years to fully reverse but improvements are felt in a weeks,or two. The reversal process in not smooth as correcting one deficiency creates another. So I learned what a number of decificncies felt like.
My introduction was further expanded when this process pushed my into being a treatable diabetic. The drug treatments for diabetes only made me sleepy and try as I would to use them, I could not. Even spending full time at this and not able to work for three months would not lower my blood glucose level.
As a Chemical Engineer I started using process control tools to examine the glucose process in our bodies. The main tool is a control chart. You plot the resting glucose levels over time. Metformin, the most widely prescribed, makes your glucose levels highly variable. Random numbers in my case from 150 to 200. Stop taking Metformin and the level stabilized at 145 to150. All the chemistry that lowered the REsting Glucose Level were glucose transports specific to brain cells.
Control charts are not used by medical research rather they rely one-thing-at-a-time scientific experiments. Control charts force one to deal with variation and compare effect to each other and this variation. That is very important.
Ok, with that as introduction here is what I have learned.
1- Our general health depends on two pillars. Getting glucose (our main fuel) into our cells so they can function well and repair themselves is one. The other is having enough of the repair chemistry available…so cells can fix themselves. If you don’t do these two everything else has a small effect.
2- Vitamin D is the most important repair chemical. If you levels are below 30, everything else in compromised. To raise your Vitamin D level you need Vitamin K2. K2 is available from pork fat. Vitamin D is a precursor to thousands of the repair chemicals. Below 30 and our bones take all of it. Other repairs? Go fish.
3- The stored glucose inside your brain cells (this is unknown to the medical community and therefor controversial) controls your blood glucose level. 100 is the goal. Bertween 100 and 150 there is a direct agreement between stored brain glucose and blood glocuse levels. Your brain can store 4 days. If you stop glucose from entering your brain, you die in four days. Cipro got me down to 1/2 a day before I started recovering. When you have three days you will be awake and alert from 6AM until Midnight without caffeine. You can store 10% of your body mass as glucose in your muscles. When you do your are noctiably stronger, and reverse ED and incotenance.
6- I know of 6 brain glucose transmitters plus the mitochondria. GLut1, the most powerful, is dissolved by caffeine and the floxacins. The floxacins also disrupt the circadian rhythm by blocking the sites in the brain cells that allow the sleep chemistry to work.
7- Glut1 is made by our livers.
8- The liver’s capacity to make repair chemistry including Glut1 is imparted by alcohol, converting fructose to glucose, fat digestion, and have more than 5 pounds of visceral fat. When you go below five pounds of visceral fat, the liver production increases dramatically and make all the undiscovered chemicals to reverse diabetes, heart disease etc. and I would guess finally reverse the toxic effects of the floxacins.
9- Specifically is your case are bodies are composed of the following chemicals – highest percentage first.
– water
– carbon
– oxygen
– hydrogen ? Because it is so light
– Calcium
– phosphate
– Sulphate
– MAGNESIUM
Most of us are deficient I’m sulphate and Magnesium,- modern food supply.
Since you are intolerant of magnesium, that in itself is a big deal. you need Magnesium to build bones, avoid muscle cramps and Vitamin D available for making repairs. I suspect without Magnesium, you body will not be able to,get unfloxed. I don’t know about this subject but if I needed to work on it, I would consider a toxicologist. I really can’t help you here. All of the other above, I can help.
I absolutely agree overcoming the effects of being floxed is not one thing. There will not be a simple treatment – go to a doctor and take this. It is going to be a multi-step process. unfortunately unless a doctor specializes in this and has multiple diagnostic tools we are left to suffer and do what we can figure it out on our own. Thank you Bayer for being such a fine corporate citizen and offer so much support. My kidney Doctor could care less. NO help. NO direction. He knows as much about this as he knows how it feels to be poor.
Knowing how important brain glucose levels is to losing weight and not being tired, I have helped 19 for19 people. Losing the first of 50 pounds is easy, many things will help. Losing the first of 6 pounds is not easy and requires many things.
In the next two weeks, my control chart should tell me if I am getting past the Cipro effect on brain glucose. If so it will take at least two months to get where I need to be.
Your comments on the mitocondria are helpful. Thank you.
jat92517
7 years ago
Andrea,
I put 3 inches of water in a 5 gallon pail. I pour in the salt and swish it around with my foot. I start with about two pounds. If all the salt dissolves, I add more. You want solid salt left so the salt solution is at its maximum concentration. I leave my foot in this bucket for about 10 minutes. I dry my foot with a towel and then wash off any dry salt.
The salt absorbs through your skin and brings your blood up to a maximum concentration.
I don’t use a bath because it takes much more water and salt. It is wasteful.
I save the solution and use it again. You will notice the solid salt disappear with time. Add more salt.
I used to cut back on this soak when the Charlie horses stopped. Now I am waiting for my muscles to loosen up and I can get out of a chair quickly, Stand straight, And walk without waiting for my muscles to ‘warm up.”
I have been doing this for 14 days. Now I am noticing my dreams are no longer weird and intense. Cipro gave me a clostrophobic like feeling that I couldn’t stand. That is going away too.
Good luck and let us know how you do.
jat92517
7 years ago
Andrea,
yes the salt is disappearing at a rate of about 250 grams a day. That is way more the amount it takes to remove the Cipro from solution. That amount is a gram or less a day. So this Magnesium is going into my bones and muscles.
A.Coleman
7 years ago
Hello Fellow Floxies,
I haven’t posted in a while, but am posting to seek some reassurance/guidance. I am just past my two year floxing anniversary (yea – not). In the past 9 months I had been mostly healed except from digestive issues centered around excessive belching that was producing acid reflux and GERD. I had a little peripheral neuropathy left on some days, but it was less than once a week.
I fought the western medicine approach to treating the heartburn for over 6 months instead trying to supplement with HCL and eating no gluten and little sugar. It didn’t work and I kept feeling worse and worse. Finally, I gave in and took an H2 inhibitor. I took the lowest dose, once a day. Did that for 1 month then cut that pill in half for another 2 weeks then stopped. My heartburn was far better, but I wasn’t well and still burped a ton.
My gastroenterologist, who does believe I was floxed btw, suggested a single 500 mg antacid tablet at bed time. I have been doing that just over a month and am nearly well. No more issues with reflux and burping is nearly normal, and I have even started weaning off that bed time dose, by cutting it in half.
One odd note, Magnesium has never had any clear positive impact on my health though I had been taking 200-400 mg daily. I stopped this about 2 months ago and it seemed to help my heartburn.
My issue is that in the last week two of my old floxie symptoms returned with some force. I started getting tendon pain in my left leg behind my knee and thigh, which is the location where I suffered the most previously. My neuropathy also started getting worse, not a lot worse but it is now noticeable most of the day. It’s been about a week now with these old symptoms affecting me.
My question for the peanut gallery? Am I just cycling? Have I now reduced my stomach acid too much and need to start supplementing with HCL again during the day even while taking a very low dose of Calcium carbonate at bedtime?? I am leaning toward this approach. I see my gastro in two weeks BTW.
On a side note, as I started feeling better I tried adding back in the Magnesium about the same time the symptoms returned. I stopped Mg and the tendon pain went away. I took an epsom salt bath last night (bad back unrelated to floxing) and noticed the tendon pain again today. Weired!
Thoughts from everyone would be appreciated as I struggle through the wonderful world of a floxie. Regardless I am now back to 95% or so of my old self – part of what makes this hard as I see light from the end of the tunnel.
Hello again everyone,
I just wanted to give an update. It is almost 6 years now since I was Floxed. I would like to some day share my recovery story but since I don’t consider myself recovered I do not want to depress anyone.
My family and I just got back from North Carolina and it was great. Before I left My GI specialist stepped me of of Prednisone and I am so happy to be off of that stuff. After my floxing I was put in a wheel chair for almost a year and then it attacked my intestines causing me to develope Adult Autoimmune Enteropathy so they put me on Prednisone to prevent my gut perforations.
Now that I am off of Prednisone my eyes and skin issues started, Good news though I am up to 174 lbs!
I wish everyone the best.
Catch you later.
Mike out
D Snyder
7 years ago
Was just wondering how many of your got plantar fasciitis from a fluoroquinolone? I still have it at a little over a year and a half. It has improved a little but is still very uncomfortable. If you’ve had it and it has resolved, how long did it take?
Andrea
7 years ago
Hi everyone. I’ve got a question, but first let me explain my issue. When I’ve got floxed, about10 months ago, it was because I’ve had/still have some problems with my urinary tract/prostate. The funny thing is, the symptoms for what the FQ was prescribed to me, just got worse after I took it. Now, another doctor prescribed me an alpha blocker, for my urianry retention, and he also prescribed me an anticholinergic drug, for my overactive bladder symptoms. What should I do? Do you think these kind of drugs would mess me up even worse? Any suggestion would be appreciated Thanks.
Salim
7 years ago
Hello,
First of all, I apologize for my bad english, I’m French and english is not my native language.
My story is very similar to what I’ve read here.
I have been prescripted 2 antibiotics for a 10 days course (ofloxacine 200mg twice a day and flagyl) after a gallblader infection.
After the second pill of ofloxacine (ie day 2) I started having medium pain in my left knee.
I called my doctor who told me to immediatly stop ofloxacine.
I’m really thankful to this doctor, I don’t know what would have happened if he told me to continue..
Then my nightmare started.
Within 2 days I got a lot of symptoms which include:
– Severe pain in both my Achilles’ tendons
– Pain in my joints
– Weird feelings on my skin
– Severe panic attacks
Within 2 days I became crippled (unable to move) and panicked as I have never been.
I had the feeling I will die in the next 10 minutes and after a week of this symptoms without any improvements I started thinking commiting suicide.
I learnt later this was also a symptom of ofloxcacine poisoning.
My doctor told me that this was indeed a fluoroquinolone side effect and reported my case to the pharmacology state agency but unfortunatly he has no cure for me, just time….
I thus decided between 2 panic attacks to search for help on Internet as doctors were helpless.
Thanks God, I found your site, I read allmost all recovery stories and it gave me hope.
This was the only hope I found and I think that without it, I may not be here today.
I also read the very sad stories and this increased my panic attacks, I thus stopped reading them and focused and recovery stories.
I decided to try to heal by myself and I did the following after reading all your stories.
– Stop eating any kind of meat
– Eat only organic vegetables,fruits and cereals.
– Take chelated magnesium 600mg/day
– Take vitamins complements (B,E)
– Take a lot of C vitamin
– Take MitoQ supplement
– Take harpagophytum plant (good for joins and tendons)
Within 10 days I started to feel better:
– my panic attacks switched to anxiety
– my weird skin feelings stopped
– my tendons and joins pain lowered enough to be bearable and I could start to walk slowly
Within 20 days:
– Anxiety disapeared
– my tendons and joins pain are still here but at 50% of what they were at the beginning.
Within 20 days:
– my tendons and joins pain are still here but at 25% of what they were at the beginning.
– I could walk (max 15 mins), drive and go to work.
I’m now at 40 days post poisoning:
– I still have joins and tendons pain but I can walk 30 mins (not too fast), work,drive
– No more anxiety nor panic attacks
– I lost 20lbs of weight (mainly I guess due to my diet)
I won’t say I’m healed and I know symptoms can come back.
But I can live almost like everybody (don’t ask me to run or stand for a hour).
I feel lucky as my symptoms seems light compared to some stories I’ve read.
I wanted to share this with you, to let you know there is hope.
Even if you think that this is hopeless, keep in mind this is a symptom not a fact.
Nothing is permanent in life, keep hope (I know how this is difficult), heal yourself with what works for you and give it time.
There is hope, you’ll heal at your speed but you’ll recover.
Salim
Dan
7 years ago
PLease guys did somenbody of you experienced:
Loss of balance constant?..like slightly drunk..
loss of balance if turning the head fast in another direction?
Ears problems..like you hear bad like fullnes the you hear everything to loua and it disturbing..low base sond very disturbing?
Prsure in head, in sides near ears and in jaws..?
Fear?
Numbness in head?
Is there a way to get my good balance and hearing back..?
in the night i hear a high tone whistle..but not all the time..insomnia is better noe..just 2-3 wake ups in the night and then abrupt wake up at 6.
I fell i runined my life with this medicine..
ursula
7 years ago
can someone tell me who went through perimenupause and finally menupause. I was damaged 4 years ago with 1 pill of mefloquine, the sister medication of FQ’s. 3 years to get to 80% recovery, were on ativan and sleeping tab the first 7 months, so the last 2 years were good, life was good again although only till 80% recovered. i was following more or less terry wahls protocol the middle plan for more than a year. then overnight all hell broke loose and back to severe anxiety depression weakness till ive realised it can be peri as i am 49 and periods sometimes further appart (sorry guys for this detail) but maybe someone can tell me it will get better and how many years for this menupause as their support groups has many of these symptoms, so here i am on ativan again!! nothing else works without ativan i loose my mind im so weak and on top nausea. went through all tests all 100%. totally unfunctional without ativan and suicidal. it seems as i already had a weaker nervous system it overwhelms me. sorry grammar. i am trying ozone iv treatment, a little medical cannabis drops but cant tolarate more drops to get a positive effect, they also dont want to give bio identical hormones now as every hormone still test okey, but in peri ive heard you cant see it in the blood maybe later on. it can carry on for years
John M.
7 years ago
Hello, I am new to this issue. In Aug. I was prescribed Cipro 500 every 12 hours for 7 days.For a UTI caused by kidney stones. I went to doctor yesterday for followup and since had another stone and he gave me more Cipro. Luckily a friend told me I shouldn’t take Cipro I should get Bactrim and to read the web about Cipro. I took all 14 pills in August. Should I be doing anything to help myself. Besides throwing out the new script.
John M.
7 years ago
Wow, Thanks for the response. Truthfully I am scared. I’m also mad at the doctor . He had other options for a UTI. If I can learn this in one night of online research he should know what he prescribing too. This info and website is a huge eye opener . Thank You very much.
John M.
7 years ago
When you say consult do you mean a actual human warning me or just a note on the bag.
I was never told but did get the side effects note. Somebody should have noticed Cipro isn’t the safest option for UTI. They do this everyday and call themselves PROS and get paid well too. FDA stands for Forever Delay Action.
John M.
7 years ago
Ok , thanks. I’m in Tn. Both times at two different pharmacies nobody said a word about side effects.
John M.
7 years ago
Now I’m wondering. Ive never had night sweats. but now for a week ive had them. and joint soreness. I assumed the UTI was causing it. Do you think its the 14Pills I took back in August? Any advice or opinions ? Thanks
John M.
7 years ago
Wow, That’s so crazy. By the way they didn’t even have the culture results when I first got the prescription. I was halfway done with Cipro when the results came back. I still have kidney stones. Hopefully when I pass them I don’t get another UTI. If I do get another UTI id like to be prepared with the best info for treatment. Is there natural remedies or what is the safest antibiotics? I had taken 1 Bactrim yesterday but after finding this website I quit taking them too. For whatever reason may be a coincidence but just one Bactrim pill did more then all the Cipro in August. I’m feeling pretty good.
Just want to be prepared and have more knowledge in case this keeps occurring.
John M.
7 years ago
I’m still shocked that in America this can continue to happen. What do we need Cipro for?
Why not pull it off market or make it illegal to give unless life threatening sickness with no other options. Or is the FDA just afraid to say its to dangerous and eat 30 years of crow and prove incompetence. I feel lucky at this point. Maybe I will not develop any symptoms. I’m fighting mad that something isn’t being done. This website saves life’s. If my friend did not mention the dangers of Cipro id be on my second weeks dosage right now. This website should be on the Cipro side effects. People don’t take the side effects very serious, I know i didn’t but if they spent a hour here they would. I know it changed my thinking.
dezorz
7 years ago
lymedefeaterpassionate, how do you know your husband has lyme? in the beggining, when i didn know i was being cripled byu quinolones doctors thought it could be lyme so i was given more cipro in long term atb treatments. then, finally, cipro side effects were so strong that i realized. my doctors not. my lyme literate doctor thought it was herxhaimer reaction, cipro side effects.
stephanie
7 years ago
So with all this lyme talk I have to say something. Yes some people have it. But Dr.s are also super pushy when you flox that you actually have lyme. I had argument after argument about it and finally got a freaking apology about it. Not every place in the world has lyme so everyone should always check the rates before flipping out that they have it. I AM NOT DISCOUNTING ANYONE WHO ACTUALLY HAS LYME. I just get annoyed because the cost for getting tested all where negative to a point where I tell Drs now if you want to test me you pay for it. I live in an area where less than 1% of population have even had lyme. Just saying the other side that not everysingle person who flax have lyme. You can also show positive for lyme if you stomach all messed up. I have known people who have it happened and the dr had to re do her test because the food caused the flase positive.
David
7 years ago
It’s magnesium deficiency. Plain and simple. Cipro leaches magnesium out of you at the mitochondrial level. Magnesium got me out of the wheelchair.
Jat92517. Scroll back. See what this guy says. He’s well informed.
Integrative medicine specialists will confirm the magnesium connection.
Thanks Deb for your comments. Our bodies are indeed complex.
There are many details your comments call forth. Sticking to the most important ones first. I’ll start to respond.
My introduction on how the body functions chemically is based on my recovery from food intolerances that ruined my intetestines to the point when I was severely deficient in the micronutrients. My intentional capacity was about 20% of the normal surface area plus it would not pass the larger molecules like vitamins. This reverses slowly when you avoid these foods. It takes about two years to fully reverse but improvements are felt in a weeks,or two. The reversal process in not smooth as correcting one deficiency creates another. So I learned what a number of decificncies felt like.
My introduction was further expanded when this process pushed my into being a treatable diabetic. The drug treatments for diabetes only made me sleepy and try as I would to use them, I could not. Even spending full time at this and not able to work for three months would not lower my blood glucose level.
As a Chemical Engineer I started using process control tools to examine the glucose process in our bodies. The main tool is a control chart. You plot the resting glucose levels over time. Metformin, the most widely prescribed, makes your glucose levels highly variable. Random numbers in my case from 150 to 200. Stop taking Metformin and the level stabilized at 145 to150. All the chemistry that lowered the REsting Glucose Level were glucose transports specific to brain cells.
Control charts are not used by medical research rather they rely one-thing-at-a-time scientific experiments. Control charts force one to deal with variation and compare effect to each other and this variation. That is very important.
Ok, with that as introduction here is what I have learned.
1- Our general health depends on two pillars. Getting glucose (our main fuel) into our cells so they can function well and repair themselves is one. The other is having enough of the repair chemistry available…so cells can fix themselves. If you don’t do these two everything else has a small effect.
2- Vitamin D is the most important repair chemical. If you levels are below 30, everything else in compromised. To raise your Vitamin D level you need Vitamin K2. K2 is available from pork fat. Vitamin D is a precursor to thousands of the repair chemicals. Below 30 and our bones take all of it. Other repairs? Go fish.
3- The stored glucose inside your brain cells (this is unknown to the medical community and therefor controversial) controls your blood glucose level. 100 is the goal. Bertween 100 and 150 there is a direct agreement between stored brain glucose and blood glocuse levels. Your brain can store 4 days. If you stop glucose from entering your brain, you die in four days. Cipro got me down to 1/2 a day before I started recovering. When you have three days you will be awake and alert from 6AM until Midnight without caffeine. You can store 10% of your body mass as glucose in your muscles. When you do your are noctiably stronger, and reverse ED and incotenance.
6- I know of 6 brain glucose transmitters plus the mitochondria. GLut1, the most powerful, is dissolved by caffeine and the floxacins. The floxacins also disrupt the circadian rhythm by blocking the sites in the brain cells that allow the sleep chemistry to work.
7- Glut1 is made by our livers.
8- The liver’s capacity to make repair chemistry including Glut1 is imparted by alcohol, converting fructose to glucose, fat digestion, and have more than 5 pounds of visceral fat. When you go below five pounds of visceral fat, the liver production increases dramatically and make all the undiscovered chemicals to reverse diabetes, heart disease etc. and I would guess finally reverse the toxic effects of the floxacins.
9- Specifically is your case are bodies are composed of the following chemicals – highest percentage first.
– water
– carbon
– oxygen
– hydrogen ? Because it is so light
– Calcium
– phosphate
– Sulphate
– MAGNESIUM
Most of us are deficient I’m sulphate and Magnesium,- modern food supply.
Since you are intolerant of magnesium, that in itself is a big deal. you need Magnesium to build bones, avoid muscle cramps and Vitamin D available for making repairs. I suspect without Magnesium, you body will not be able to,get unfloxed. I don’t know about this subject but if I needed to work on it, I would consider a toxicologist. I really can’t help you here. All of the other above, I can help.
I absolutely agree overcoming the effects of being floxed is not one thing. There will not be a simple treatment – go to a doctor and take this. It is going to be a multi-step process. unfortunately unless a doctor specializes in this and has multiple diagnostic tools we are left to suffer and do what we can figure it out on our own. Thank you Bayer for being such a fine corporate citizen and offer so much support. My kidney Doctor could care less. NO help. NO direction. He knows as much about this as he knows how it feels to be poor.
Knowing how important brain glucose levels is to losing weight and not being tired, I have helped 19 for19 people. Losing the first of 50 pounds is easy, many things will help. Losing the first of 6 pounds is not easy and requires many things.
In the next two weeks, my control chart should tell me if I am getting past the Cipro effect on brain glucose. If so it will take at least two months to get where I need to be.
Your comments on the mitocondria are helpful. Thank you.
Andrea,
I put 3 inches of water in a 5 gallon pail. I pour in the salt and swish it around with my foot. I start with about two pounds. If all the salt dissolves, I add more. You want solid salt left so the salt solution is at its maximum concentration. I leave my foot in this bucket for about 10 minutes. I dry my foot with a towel and then wash off any dry salt.
The salt absorbs through your skin and brings your blood up to a maximum concentration.
I don’t use a bath because it takes much more water and salt. It is wasteful.
I save the solution and use it again. You will notice the solid salt disappear with time. Add more salt.
I used to cut back on this soak when the Charlie horses stopped. Now I am waiting for my muscles to loosen up and I can get out of a chair quickly, Stand straight, And walk without waiting for my muscles to ‘warm up.”
I have been doing this for 14 days. Now I am noticing my dreams are no longer weird and intense. Cipro gave me a clostrophobic like feeling that I couldn’t stand. That is going away too.
Good luck and let us know how you do.
Andrea,
yes the salt is disappearing at a rate of about 250 grams a day. That is way more the amount it takes to remove the Cipro from solution. That amount is a gram or less a day. So this Magnesium is going into my bones and muscles.
Hello Fellow Floxies,
I haven’t posted in a while, but am posting to seek some reassurance/guidance. I am just past my two year floxing anniversary (yea – not). In the past 9 months I had been mostly healed except from digestive issues centered around excessive belching that was producing acid reflux and GERD. I had a little peripheral neuropathy left on some days, but it was less than once a week.
I fought the western medicine approach to treating the heartburn for over 6 months instead trying to supplement with HCL and eating no gluten and little sugar. It didn’t work and I kept feeling worse and worse. Finally, I gave in and took an H2 inhibitor. I took the lowest dose, once a day. Did that for 1 month then cut that pill in half for another 2 weeks then stopped. My heartburn was far better, but I wasn’t well and still burped a ton.
My gastroenterologist, who does believe I was floxed btw, suggested a single 500 mg antacid tablet at bed time. I have been doing that just over a month and am nearly well. No more issues with reflux and burping is nearly normal, and I have even started weaning off that bed time dose, by cutting it in half.
One odd note, Magnesium has never had any clear positive impact on my health though I had been taking 200-400 mg daily. I stopped this about 2 months ago and it seemed to help my heartburn.
My issue is that in the last week two of my old floxie symptoms returned with some force. I started getting tendon pain in my left leg behind my knee and thigh, which is the location where I suffered the most previously. My neuropathy also started getting worse, not a lot worse but it is now noticeable most of the day. It’s been about a week now with these old symptoms affecting me.
My question for the peanut gallery? Am I just cycling? Have I now reduced my stomach acid too much and need to start supplementing with HCL again during the day even while taking a very low dose of Calcium carbonate at bedtime?? I am leaning toward this approach. I see my gastro in two weeks BTW.
On a side note, as I started feeling better I tried adding back in the Magnesium about the same time the symptoms returned. I stopped Mg and the tendon pain went away. I took an epsom salt bath last night (bad back unrelated to floxing) and noticed the tendon pain again today. Weired!
Thoughts from everyone would be appreciated as I struggle through the wonderful world of a floxie. Regardless I am now back to 95% or so of my old self – part of what makes this hard as I see light from the end of the tunnel.
Hello again everyone,
I just wanted to give an update. It is almost 6 years now since I was Floxed. I would like to some day share my recovery story but since I don’t consider myself recovered I do not want to depress anyone.
My family and I just got back from North Carolina and it was great. Before I left My GI specialist stepped me of of Prednisone and I am so happy to be off of that stuff. After my floxing I was put in a wheel chair for almost a year and then it attacked my intestines causing me to develope Adult Autoimmune Enteropathy so they put me on Prednisone to prevent my gut perforations.
Now that I am off of Prednisone my eyes and skin issues started, Good news though I am up to 174 lbs!
I wish everyone the best.
Catch you later.
Mike out
Was just wondering how many of your got plantar fasciitis from a fluoroquinolone? I still have it at a little over a year and a half. It has improved a little but is still very uncomfortable. If you’ve had it and it has resolved, how long did it take?
Hi everyone. I’ve got a question, but first let me explain my issue. When I’ve got floxed, about10 months ago, it was because I’ve had/still have some problems with my urinary tract/prostate. The funny thing is, the symptoms for what the FQ was prescribed to me, just got worse after I took it. Now, another doctor prescribed me an alpha blocker, for my urianry retention, and he also prescribed me an anticholinergic drug, for my overactive bladder symptoms. What should I do? Do you think these kind of drugs would mess me up even worse? Any suggestion would be appreciated Thanks.
Hello,
First of all, I apologize for my bad english, I’m French and english is not my native language.
My story is very similar to what I’ve read here.
I have been prescripted 2 antibiotics for a 10 days course (ofloxacine 200mg twice a day and flagyl) after a gallblader infection.
After the second pill of ofloxacine (ie day 2) I started having medium pain in my left knee.
I called my doctor who told me to immediatly stop ofloxacine.
I’m really thankful to this doctor, I don’t know what would have happened if he told me to continue..
Then my nightmare started.
Within 2 days I got a lot of symptoms which include:
– Severe pain in both my Achilles’ tendons
– Pain in my joints
– Weird feelings on my skin
– Severe panic attacks
Within 2 days I became crippled (unable to move) and panicked as I have never been.
I had the feeling I will die in the next 10 minutes and after a week of this symptoms without any improvements I started thinking commiting suicide.
I learnt later this was also a symptom of ofloxcacine poisoning.
My doctor told me that this was indeed a fluoroquinolone side effect and reported my case to the pharmacology state agency but unfortunatly he has no cure for me, just time….
I thus decided between 2 panic attacks to search for help on Internet as doctors were helpless.
Thanks God, I found your site, I read allmost all recovery stories and it gave me hope.
This was the only hope I found and I think that without it, I may not be here today.
I also read the very sad stories and this increased my panic attacks, I thus stopped reading them and focused and recovery stories.
I decided to try to heal by myself and I did the following after reading all your stories.
– Stop eating any kind of meat
– Eat only organic vegetables,fruits and cereals.
– Take chelated magnesium 600mg/day
– Take vitamins complements (B,E)
– Take a lot of C vitamin
– Take MitoQ supplement
– Take harpagophytum plant (good for joins and tendons)
Within 10 days I started to feel better:
– my panic attacks switched to anxiety
– my weird skin feelings stopped
– my tendons and joins pain lowered enough to be bearable and I could start to walk slowly
Within 20 days:
– Anxiety disapeared
– my tendons and joins pain are still here but at 50% of what they were at the beginning.
Within 20 days:
– my tendons and joins pain are still here but at 25% of what they were at the beginning.
– I could walk (max 15 mins), drive and go to work.
I’m now at 40 days post poisoning:
– I still have joins and tendons pain but I can walk 30 mins (not too fast), work,drive
– No more anxiety nor panic attacks
– I lost 20lbs of weight (mainly I guess due to my diet)
I won’t say I’m healed and I know symptoms can come back.
But I can live almost like everybody (don’t ask me to run or stand for a hour).
I feel lucky as my symptoms seems light compared to some stories I’ve read.
I wanted to share this with you, to let you know there is hope.
Even if you think that this is hopeless, keep in mind this is a symptom not a fact.
Nothing is permanent in life, keep hope (I know how this is difficult), heal yourself with what works for you and give it time.
There is hope, you’ll heal at your speed but you’ll recover.
Salim
PLease guys did somenbody of you experienced:
Loss of balance constant?..like slightly drunk..
loss of balance if turning the head fast in another direction?
Ears problems..like you hear bad like fullnes the you hear everything to loua and it disturbing..low base sond very disturbing?
Prsure in head, in sides near ears and in jaws..?
Fear?
Numbness in head?
Is there a way to get my good balance and hearing back..?
in the night i hear a high tone whistle..but not all the time..insomnia is better noe..just 2-3 wake ups in the night and then abrupt wake up at 6.
I fell i runined my life with this medicine..
can someone tell me who went through perimenupause and finally menupause. I was damaged 4 years ago with 1 pill of mefloquine, the sister medication of FQ’s. 3 years to get to 80% recovery, were on ativan and sleeping tab the first 7 months, so the last 2 years were good, life was good again although only till 80% recovered. i was following more or less terry wahls protocol the middle plan for more than a year. then overnight all hell broke loose and back to severe anxiety depression weakness till ive realised it can be peri as i am 49 and periods sometimes further appart (sorry guys for this detail) but maybe someone can tell me it will get better and how many years for this menupause as their support groups has many of these symptoms, so here i am on ativan again!! nothing else works without ativan i loose my mind im so weak and on top nausea. went through all tests all 100%. totally unfunctional without ativan and suicidal. it seems as i already had a weaker nervous system it overwhelms me. sorry grammar. i am trying ozone iv treatment, a little medical cannabis drops but cant tolarate more drops to get a positive effect, they also dont want to give bio identical hormones now as every hormone still test okey, but in peri ive heard you cant see it in the blood maybe later on. it can carry on for years
Hello, I am new to this issue. In Aug. I was prescribed Cipro 500 every 12 hours for 7 days.For a UTI caused by kidney stones. I went to doctor yesterday for followup and since had another stone and he gave me more Cipro. Luckily a friend told me I shouldn’t take Cipro I should get Bactrim and to read the web about Cipro. I took all 14 pills in August. Should I be doing anything to help myself. Besides throwing out the new script.
Wow, Thanks for the response. Truthfully I am scared. I’m also mad at the doctor . He had other options for a UTI. If I can learn this in one night of online research he should know what he prescribing too. This info and website is a huge eye opener . Thank You very much.
When you say consult do you mean a actual human warning me or just a note on the bag.
I was never told but did get the side effects note. Somebody should have noticed Cipro isn’t the safest option for UTI. They do this everyday and call themselves PROS and get paid well too. FDA stands for Forever Delay Action.
Ok , thanks. I’m in Tn. Both times at two different pharmacies nobody said a word about side effects.
Now I’m wondering. Ive never had night sweats. but now for a week ive had them. and joint soreness. I assumed the UTI was causing it. Do you think its the 14Pills I took back in August? Any advice or opinions ? Thanks
Wow, That’s so crazy. By the way they didn’t even have the culture results when I first got the prescription. I was halfway done with Cipro when the results came back. I still have kidney stones. Hopefully when I pass them I don’t get another UTI. If I do get another UTI id like to be prepared with the best info for treatment. Is there natural remedies or what is the safest antibiotics? I had taken 1 Bactrim yesterday but after finding this website I quit taking them too. For whatever reason may be a coincidence but just one Bactrim pill did more then all the Cipro in August. I’m feeling pretty good.
Just want to be prepared and have more knowledge in case this keeps occurring.
I’m still shocked that in America this can continue to happen. What do we need Cipro for?
Why not pull it off market or make it illegal to give unless life threatening sickness with no other options. Or is the FDA just afraid to say its to dangerous and eat 30 years of crow and prove incompetence. I feel lucky at this point. Maybe I will not develop any symptoms. I’m fighting mad that something isn’t being done. This website saves life’s. If my friend did not mention the dangers of Cipro id be on my second weeks dosage right now. This website should be on the Cipro side effects. People don’t take the side effects very serious, I know i didn’t but if they spent a hour here they would. I know it changed my thinking.
lymedefeaterpassionate, how do you know your husband has lyme? in the beggining, when i didn know i was being cripled byu quinolones doctors thought it could be lyme so i was given more cipro in long term atb treatments. then, finally, cipro side effects were so strong that i realized. my doctors not. my lyme literate doctor thought it was herxhaimer reaction, cipro side effects.
So with all this lyme talk I have to say something. Yes some people have it. But Dr.s are also super pushy when you flox that you actually have lyme. I had argument after argument about it and finally got a freaking apology about it. Not every place in the world has lyme so everyone should always check the rates before flipping out that they have it. I AM NOT DISCOUNTING ANYONE WHO ACTUALLY HAS LYME. I just get annoyed because the cost for getting tested all where negative to a point where I tell Drs now if you want to test me you pay for it. I live in an area where less than 1% of population have even had lyme. Just saying the other side that not everysingle person who flax have lyme. You can also show positive for lyme if you stomach all messed up. I have known people who have it happened and the dr had to re do her test because the food caused the flase positive.
It’s magnesium deficiency. Plain and simple. Cipro leaches magnesium out of you at the mitochondrial level. Magnesium got me out of the wheelchair.
Jat92517. Scroll back. See what this guy says. He’s well informed.
Integrative medicine specialists will confirm the magnesium connection.