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L
6 years ago
So….Lisa has posted a few blogs re mast cell activation after being floxed, and now I just read that if you have one of of MTHFR mutations, you are ALSO more likely to be plagued by this. Double whammy. No wonder I am so congested all the time!
Andrea
6 years ago
How about Ampicillin? Like I said, I’m going to do a cystoscopy, and the doctor says there’s the risk of contracting an infection. He wanted me to take Bactrim, but ‘m not going to take it. Some side effects are similar to those of FQ.I’ve read the article that Lisa posted about the antibiotics after being floxed, but I found nothing about Ampicillin, any iinfo?
Martha
6 years ago
Thinking of everyone who has suffered with this. I am three years lost floxing from levaquin. I regained all functionality thank God. But the use of medications proves tricky. Recently had other health issues but found doctors and nurse practitioners who don’t dismiss me. Had to use antibiotics a few times and discovered that I am now allergic to penicillin, amoxicillin and possibly keflex. It may not have any relation to being floxed but could be. Bactrim wipes me out with fatigue. Doxycycline works for me with no side effects. I really appreciate docs who get it. I had one doc talk to me about using meloxicam for pain and when I told him about my experience he actually did his own research and said no to using nsaids. I do take antidepressants and mirtazapine and Amitriptyline work for me. Cymbalta did not as it caused nerve tingling like I had when floxed. I did use a very short course of predNisone for an allergic reaction that helped with no issues. I think each of us is unique in responses to things so just work closely with doc who dont dismiss you. If they do not find another doc if you can.
Henk Noordhuizen
6 years ago
Has anybody on this forum/blog ever read about the historical background of Bayer? You can find it here: http://www.profit-over-life.org/ And the plans for the EU are made by… well,you guessed it. The same Bayer Is trying to merge with the second evil company: Monsanto. For those who wonder how Bayer,and other evil companies,can get away with poisening the whole world.They simply OWN our governments.
Don
6 years ago
URINARY TRACT INFECTIONS & D-Mannose. Many of you have commented that you started having symptoms of being Floxed whether immediately or shortly after being prescribed one of the Fluoroquinolone antibiotics for a urinary tract infection. Please, please read this. (especially women) Look into and research “D-Mannose”. D-Mannose is not a drug. It is a supplement. Many of you who have contracted urinary tract infections have been told to drink cranberry juice. Why? Because cranberry juice contains D-Mannose. Why drink cranberry juice when you can buy pure D-Mannose from a health food store? D-Mannose has the ability to make the urinary tract walls “slippery”. Slippery to the point where the bacteria can not easily attach to the walls and can be washed away with the urine. D-Mannose also seems to have the ability to attach to E Coli and ball it up where it can not stick to the urinary tract walls. I will not go into more detail on D-Mannose but YOU should look into D-Mannose and consider using it as a preventive.
I USE IT. D-Mannose
After years of wondering why I feel the way I do (and finding nothing from the doctors) I found Floxie Hope.com and the Floxie page on Facebook. I now realize that after being prescribed Cipro for 30+ years for the recurrences of a chronic urinary tract infection I am Floxied. I am 83 now. My goal is to learn to live with the problem now that I have found an underlying reason for feeling lousy.
Being Floxied is causing me neurological problems. as well as many others.
Please people. Look into the possibility that D-Mannose may help you avoid any future urinary tract infections and needing antibiotics.
God help us all to cope with the insidious side effects of Fluoroquinolones.
Andrea
6 years ago
Thanks a lot Don. I’ll try D Mannose if I’ll do the cistoscopy.
Mary
6 years ago
Hi everyone I don’t know if anyone can help but when I use the laptop , placing it on my knee, the tingling burning goes worse. Has anyone else experienced this or has any explanation as to why this happens.
For example does anyone think the main problem is with my back or the neuropathy? Thanks.
Don
6 years ago
Just a note. D Mowers is Don, an 83 year old male. I would like to pass something on to all who read the information on this site. Have you read about Dr. Carolyn Dean? Dr. Dean has specialized in understanding magnesium. I read that a few of you have commented on magnesium. Good. Go to this web site and read what Dr. Dean has to say about magnesium. How deficient most of us are and how it is something that affects our health but somewhat overlooked by the MD doctors as long as the lab test come back within the published limits. The web site to start at. http://drcarolyndean.com/magnesium_miracle/
Bottom line and not to bore you with more chatter. Raising your magnesium level to what Dr. Dean is suggesting may help with our toxicity problem.
Better health you all of you.
A.Coleman
6 years ago
Hi gang – I have been experimenting with my Mg supplementation lately and those informal tests reaffirm that it is having a large positive effect on my neuropathy. Even though I have been a floxie for over 2 1/2 years I never had a Mg test. Based on my informal tests I got my integrative medicine doc to order a test and I got her to order the RBC test, which is more accurate than the serum test.
My question is that she said I had to stop supplements and all other vitamins for one week prior to serum collection. Has anyone else experienced this? I see stopping the Mg and even stopping my vitamin D and maybe even vitamin K2 since metabolic use of Vitamin D sucks up Mg, but what about other vitamins like B or E?
Any experience out there would be appreciated.
BTW – this experimentation all came about after a float session my wife got me for Christmas. I think that much Mg transdermal was still a bit much for my body, but after the initial stress my body settled down and I even had a couple of nearly symptom free days. More to come on that in a later post – but my primary comment would be that this is too intense of a treatment for someone who is less than 75% of normal post floxing.
toby
6 years ago
Hi. I am using probiotic which contains L. rhamnosus Rosell 11.
If I add L. rhamnosus GG, will I have some additional benefits? Can these two be combined?
Mary
6 years ago
What has the floxiehope got to offer anymore. I am completely fed up with all the different opinions
Mary
6 years ago
Is there any way of removing postings ?
KS
6 years ago
Hi all. I have an endoscopy coming up and the doctor wants to use propofol. Has anyone had experience (good or bad with it)? I am a bit worried about my symptoms resurfacing or getting worse. I have had lidocaine before with no issues.
toby
6 years ago
Hi. I read posts about fluoride. I am floxed with metronidazole. Should I avoid fluoride?
I am using sulpiride for my stomach problems. Does it contains fluoride? I googled and I think answer is no.
I need some dental intervention and I asked him does he use fluoride? Answer was no. Are local anesthetics safe?
gérard
6 years ago
hello, question a bit silly but for epsom salt foot baths, will I use tap water, and fluorine that’s in it?
Andrea
6 years ago
gérard, I dont’t know about that. Unless you have a water filter at home, I don’t think you have much other chances.
Andrea
6 years ago
Hi guys,
after reading the latest posts about fluoride, it came to my mind that when I was a toddler, my parents used to give me fluorine/fluoride (I don’t know the right one in english) supplements to preventing oral cavities. Could my reaction to the fluoroquinolone be caused or at least facilitated by that early exposure? What do you think?
L
6 years ago
Hey all, not sure why this popped into my head–perhaps something I read. But I was thinking about the last tetanus shot I had, and was wondering if anyone has had a tetanus shot since being floxed, and if so if they had a reaction to it.
J
6 years ago
Hi all,
I seem to be dealing with a relapse/cycle and I don’t understand why. I’ve made tons of progress over the last few months (and have been dealing with FQ toxicity from Levaquin for years).
I eat all the right foods, try to get as many nutrients as I can and avoid fluoride as much as possible. I’ve felt good lately until the end of last week, a very stressful high anxiety week that had me on edge every day because of work and, probably as a result, was beginning to feel sick. I took a few Cold-EEZEs (basically a lozenge zinc supplement you can find by the cough drops) to help ward off of a cold. I usually stay away from stuff like that, but *have* had some in the past with no issue whatsoever.
I probably had 3 or 4 on both Thursday and Friday. On Friday night, about a half hour after the last Cold-EEZE, I had a major dizzy spell and almost fell over. The dizzy spells have continued randomly until today. I also have worsening head pressure, worsening brain fog, worsening joint pain/popping, pain/weakness returning in legs (especially knees and achilles). Everything seems to get worse after I eat.
I am so bummed out and confused. A Cold-EEZE!? Seriously?! I can’t think of anything else it would be. My diet is extremely clean and has been the same for months. I figured I had finally found the lifestyle that worked for me and kept me safe. I suppose it could have also been the result of the high anxiety week?
Maybe, AT WORST, I figured that Cold-EEZE would just temporarily make my FQ symptoms worse and I’d be fine in a day…but this very much feels like a “NEW REACTION” with multi-symptoms!?! I just don’t understand.
So….Lisa has posted a few blogs re mast cell activation after being floxed, and now I just read that if you have one of of MTHFR mutations, you are ALSO more likely to be plagued by this. Double whammy. No wonder I am so congested all the time!
How about Ampicillin? Like I said, I’m going to do a cystoscopy, and the doctor says there’s the risk of contracting an infection. He wanted me to take Bactrim, but ‘m not going to take it. Some side effects are similar to those of FQ.I’ve read the article that Lisa posted about the antibiotics after being floxed, but I found nothing about Ampicillin, any iinfo?
Thinking of everyone who has suffered with this. I am three years lost floxing from levaquin. I regained all functionality thank God. But the use of medications proves tricky. Recently had other health issues but found doctors and nurse practitioners who don’t dismiss me. Had to use antibiotics a few times and discovered that I am now allergic to penicillin, amoxicillin and possibly keflex. It may not have any relation to being floxed but could be. Bactrim wipes me out with fatigue. Doxycycline works for me with no side effects. I really appreciate docs who get it. I had one doc talk to me about using meloxicam for pain and when I told him about my experience he actually did his own research and said no to using nsaids. I do take antidepressants and mirtazapine and Amitriptyline work for me. Cymbalta did not as it caused nerve tingling like I had when floxed. I did use a very short course of predNisone for an allergic reaction that helped with no issues. I think each of us is unique in responses to things so just work closely with doc who dont dismiss you. If they do not find another doc if you can.
Has anybody on this forum/blog ever read about the historical background of Bayer? You can find it here: http://www.profit-over-life.org/ And the plans for the EU are made by… well,you guessed it. The same Bayer Is trying to merge with the second evil company: Monsanto. For those who wonder how Bayer,and other evil companies,can get away with poisening the whole world.They simply OWN our governments.
URINARY TRACT INFECTIONS & D-Mannose. Many of you have commented that you started having symptoms of being Floxed whether immediately or shortly after being prescribed one of the Fluoroquinolone antibiotics for a urinary tract infection. Please, please read this. (especially women) Look into and research “D-Mannose”. D-Mannose is not a drug. It is a supplement. Many of you who have contracted urinary tract infections have been told to drink cranberry juice. Why? Because cranberry juice contains D-Mannose. Why drink cranberry juice when you can buy pure D-Mannose from a health food store? D-Mannose has the ability to make the urinary tract walls “slippery”. Slippery to the point where the bacteria can not easily attach to the walls and can be washed away with the urine. D-Mannose also seems to have the ability to attach to E Coli and ball it up where it can not stick to the urinary tract walls. I will not go into more detail on D-Mannose but YOU should look into D-Mannose and consider using it as a preventive.
I USE IT. D-Mannose
After years of wondering why I feel the way I do (and finding nothing from the doctors) I found Floxie Hope.com and the Floxie page on Facebook. I now realize that after being prescribed Cipro for 30+ years for the recurrences of a chronic urinary tract infection I am Floxied. I am 83 now. My goal is to learn to live with the problem now that I have found an underlying reason for feeling lousy.
Being Floxied is causing me neurological problems. as well as many others.
Please people. Look into the possibility that D-Mannose may help you avoid any future urinary tract infections and needing antibiotics.
God help us all to cope with the insidious side effects of Fluoroquinolones.
Thanks a lot Don. I’ll try D Mannose if I’ll do the cistoscopy.
Hi everyone I don’t know if anyone can help but when I use the laptop , placing it on my knee, the tingling burning goes worse. Has anyone else experienced this or has any explanation as to why this happens.
For example does anyone think the main problem is with my back or the neuropathy? Thanks.
Just a note. D Mowers is Don, an 83 year old male. I would like to pass something on to all who read the information on this site. Have you read about Dr. Carolyn Dean? Dr. Dean has specialized in understanding magnesium. I read that a few of you have commented on magnesium. Good. Go to this web site and read what Dr. Dean has to say about magnesium. How deficient most of us are and how it is something that affects our health but somewhat overlooked by the MD doctors as long as the lab test come back within the published limits. The web site to start at.
http://drcarolyndean.com/magnesium_miracle/
Bottom line and not to bore you with more chatter. Raising your magnesium level to what Dr. Dean is suggesting may help with our toxicity problem.
Better health you all of you.
Hi gang – I have been experimenting with my Mg supplementation lately and those informal tests reaffirm that it is having a large positive effect on my neuropathy. Even though I have been a floxie for over 2 1/2 years I never had a Mg test. Based on my informal tests I got my integrative medicine doc to order a test and I got her to order the RBC test, which is more accurate than the serum test.
My question is that she said I had to stop supplements and all other vitamins for one week prior to serum collection. Has anyone else experienced this? I see stopping the Mg and even stopping my vitamin D and maybe even vitamin K2 since metabolic use of Vitamin D sucks up Mg, but what about other vitamins like B or E?
Any experience out there would be appreciated.
BTW – this experimentation all came about after a float session my wife got me for Christmas. I think that much Mg transdermal was still a bit much for my body, but after the initial stress my body settled down and I even had a couple of nearly symptom free days. More to come on that in a later post – but my primary comment would be that this is too intense of a treatment for someone who is less than 75% of normal post floxing.
Hi. I am using probiotic which contains L. rhamnosus Rosell 11.
If I add L. rhamnosus GG, will I have some additional benefits? Can these two be combined?
What has the floxiehope got to offer anymore. I am completely fed up with all the different opinions
Is there any way of removing postings ?
Hi all. I have an endoscopy coming up and the doctor wants to use propofol. Has anyone had experience (good or bad with it)? I am a bit worried about my symptoms resurfacing or getting worse. I have had lidocaine before with no issues.
Hi. I read posts about fluoride. I am floxed with metronidazole. Should I avoid fluoride?
I am using sulpiride for my stomach problems. Does it contains fluoride? I googled and I think answer is no.
I need some dental intervention and I asked him does he use fluoride? Answer was no. Are local anesthetics safe?
hello, question a bit silly but for epsom salt foot baths, will I use tap water, and fluorine that’s in it?
gérard, I dont’t know about that. Unless you have a water filter at home, I don’t think you have much other chances.
Hi guys,
after reading the latest posts about fluoride, it came to my mind that when I was a toddler, my parents used to give me fluorine/fluoride (I don’t know the right one in english) supplements to preventing oral cavities. Could my reaction to the fluoroquinolone be caused or at least facilitated by that early exposure? What do you think?
Hey all, not sure why this popped into my head–perhaps something I read. But I was thinking about the last tetanus shot I had, and was wondering if anyone has had a tetanus shot since being floxed, and if so if they had a reaction to it.
Hi all,
I seem to be dealing with a relapse/cycle and I don’t understand why. I’ve made tons of progress over the last few months (and have been dealing with FQ toxicity from Levaquin for years).
I eat all the right foods, try to get as many nutrients as I can and avoid fluoride as much as possible. I’ve felt good lately until the end of last week, a very stressful high anxiety week that had me on edge every day because of work and, probably as a result, was beginning to feel sick. I took a few Cold-EEZEs (basically a lozenge zinc supplement you can find by the cough drops) to help ward off of a cold. I usually stay away from stuff like that, but *have* had some in the past with no issue whatsoever.
I probably had 3 or 4 on both Thursday and Friday. On Friday night, about a half hour after the last Cold-EEZE, I had a major dizzy spell and almost fell over. The dizzy spells have continued randomly until today. I also have worsening head pressure, worsening brain fog, worsening joint pain/popping, pain/weakness returning in legs (especially knees and achilles). Everything seems to get worse after I eat.
I am so bummed out and confused. A Cold-EEZE!? Seriously?! I can’t think of anything else it would be. My diet is extremely clean and has been the same for months. I figured I had finally found the lifestyle that worked for me and kept me safe. I suppose it could have also been the result of the high anxiety week?
Maybe, AT WORST, I figured that Cold-EEZE would just temporarily make my FQ symptoms worse and I’d be fine in a day…but this very much feels like a “NEW REACTION” with multi-symptoms!?! I just don’t understand.
Here is an extensive list of known averse reactions to Cypro: https://www.webmd.com/drugs/2/drug-1124-93/cipro-oral/ciprofloxacin-oral/details/list-sideeffects