For over a decade this page has been dedicated to enabling the conversation for floxies to talk with one another. Sign up and subscribe to get all the latest comments.
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
I allow to create an account
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
26.5K Comments
Inline Feedbacks
View all comments
Toby
6 years ago
I need dental work. Doctor wants to put Toxavit in my tooth. Could it worsen toxicity symptoms?
Andrea
6 years ago
Hey L,
I’m answering you here, on the previous post. Yes, I remember you told me about your bladder issues and that crushed glass feeling. When I first went to the doctor who gave that poison, my symptoms were just some dribbling after urination. It was like that for more than a year and a half. After about a couple of weeks since being floxed, the symptoms got worse. Way worse. I now have to go to pee multiple times,day and night. I’m also suffering from urinary retention. And I also have that feeling of heaviness in the groin area. I’ve been diagnosed with a bladder neck sclerosis and a urethral stenosis, but I’m almost sure that the FQ has something to do with the worsening of the symptoms. Probably my bladder doesn’t work good anymore. Probably because of the neurological damage caused by the drug. Oh, you’ve mentioned doctors who are still prescribing FQ’s for minor infections. Just think about this…that dumbass doc who gave Plurifloxacin, already knew that there was no infection, nor he thought that giving me that s**t would’ve improved my symtoms. He told me so. He “just wanted to be sure”…these were his words. When I confronted him, and told him how bad I was feeling, he just told me that he acted according to protocol.
That was his version,though. Because I spoke to a lawyer too. And he told me a completely different story. He said that there was enough stuff to file a suit against him (omission of details regarding the side effects, underestimated risks) but also that, without a proof of the damage (e.g. all my blood tests,scans,ultrasound,came out negative) he could’ve done nothing.
That’s just so unfair. Poisoned just like that. Without even a reason,an excuse. At 30…
L
6 years ago
Yeah I had the retention too. maybe still a little but much improved. I KNOW it was the Cipro for me. Happened right after the Cipro…had an ultrasound that showed nothing. I am much improved in that area but after 100s of IVs and thousands of dollars in supplements, difficult to say what helped. Again, for immediate relief, the acupuncture and Chinese herbs were pretty effective. I do believe it was nerve damage related since I had SO MUCH nerve damage…to ears, nose, feet, hands, and maybe the cause of my distressed breathing.
OMG I was just doing a search on Cipro and UTIs and a site called HEALTHLINE talked about taking it for the entire time your doctor prescribed it for a UTI. I sent them a scathing email. SO UNINFORMED! And this site is made up of doctors (and pharma people.)
Yes the causation is the glitch in lawsuits. I ended up filing my own—beyond daunting, but I was able to find court approved expert witnesses who were able to link at least some of my side effects to the drugs. It’s difficult but not impossible.
If you haven’t yet done so, you might want to try an acupuncturist, esp one that also does Chinese herbal medicine. of course, like pretty much anything that helps us, not usually covered by insurance.
Barbara Arnold
6 years ago
Henks, sorry no reply button. I found out about the European FDA meeting on facebook. I joined the Uk facebook for floxies. I am not going because I would have to fly from Spain and I’ve spent enough money already trying to beat this shit. But I am going to write to them. The only thing it may achieve is a strong warning in the inserts. I don’t think it will achieve anything else, but we have to keep trying.
toby
6 years ago
I went back from dentist. He said another option is Difurid which contains:
1. parachlorphenol
2. phenol
3. camphor
4. levomenthol
Is this product safe?
Andrea
6 years ago
Henk, I live in Italy. Yeah I too love cheese. But I’ve also noticed, even before being floxed, how detrimental it is for my health. That lungs thing you’ve mentioned, I’ve noticed it too. Lots of mucus. By the way, I’m not sure if I understood correctly your last question, but yes, I’ve compiled the application form, for this upcoming hearing. And if they’ll select me to speaking, I’ll go there. I’m curious to see what will happen.
Hi guys. I haven’t posted in ages. I don’t have my priorities all together is the reason, and the last thing I want is to scare anyone needlessly, but I got hit in a particular way and never fully recovered from the collagen effects of cipro. So for this reason, I never even considered submitting something to Lisa’s site. Again the last thing I want is to scare anyone, so before I link this keep in my I got a nasty drug combination and poor genetics and environment conditions… but I did make this post: https://impossibleadversity.wordpress.com/2018/04/15/fluoroquinolone-ciprofloxacin-poisoning/ but it’s lame until I get more time and energy to fill the page. I hope to one day make a better resource about healing cartilage and tendons, but I had too many different health problems and had to put skeletal healing on hold, so I never went through all the collagen-related research I saved, and I’m probably out of date. Okay, so I hope you guys and anyone recently affected is holding up alright. It’s been years of me researching health conditions by now, and there’s still nothing quite like this. I’m so tired right now. Take it easy.
Andrea
6 years ago
Ehy guys, I need some support right now.
In the last few months, I was doing “quite good”. The aches in my joints never left me, but they were manageable. A little better as far as the bone pains. And the weakness-fatigue, was doing ok. But a few weeks ago, from time to time, I started to feel worse. I was almost sure I was facing a relapse, but, it never happened.
Then, today, I wake up, eat something for breakfast, took a shower, got dressed and went outside for some grocery shopping. And then it struck me. First I started to get very weak, like a sugar crash. All the joints were kinda achy. Not that much, but a little bit more than the usual. The scariest part anyway, was that light headed feeling. I felt confused, dizzy, brain fog. It’s been a few months that I wasn’t feeling this way. I immediately, felt that sensation of hopelessness, desperation I was experiencing this summer, when my symptoms went in full bloom. I immediately went home, And during the ride home, I was already thinking about suicide again. Repeating to my self ” I don’t want to live this way for the rest of my life! “. At home, since I was experiencing that sugar crash, I ate something and felt a little better. But I’m still very scared. Sorry guys, to bring these awful story to you, but you’re the only ones that I can relate to, and the only ones that can feel my pain and understand. No one really seems to care. Most of the times, even the closest people, just defuse my situation. The worst part is when they tell you : “I think you’re overreacting. You need to see a psychologist, you’re problem is becoming a mental problem”
Faisal
6 years ago
Hello every one,
Really i feel tired from FQ 2 years from my life its hard
Really we are like a family no one understand us from outside i hope everyone recovery im faisal from arab country jordan
Yes, there is a difference between the first year and the second year. Heartbeat The first year was 145 but now almost 90 and there is some improvement in the body, I hope to go back as I was before
Henk Noordhuizen
6 years ago
Today Dr. Mercola has an interesting article about antibiotics,PPI,s and other “medicines” that promote drugresistance among bacteria. Way more medicines than thought appear to influence your microbiome, and not only promote drugresistance but also cause allergies,astma and other problems.
Giving babies PPI’s because they spit up their milk? This spitting up is,most of the time,caused by babies drinking their milk to eager and thereby taking in to much air. Or by mother’s not paying enough attention (app-ing etc.) while handling the milkbottle,letting the baby suck air in stead of milk. How is a PPI helpfull here? Read it here:
My god; what’s wrong with doctors nowadays? They tell patients it’s all “between the ears” when they come with complaints about Cypro and other poisons with severe adverse affects but actually they themselfses have a mental/psychologycal problem: they think they HEAL people. Wake up,doctors,and face the truth!
Barbara Arnold
6 years ago
Well if that’s true Henk, I’m truly happy. Not true here in Spain though, even though my own Doctor believes me now because I was diagnosed by a Rheumatologist, with all of that, the health centre he’s in still dish Cipro out like sweets. Also I asked our local Pharmacy to warn people about the side effects, but he was told to ‘shut up’ by my local health centre’s Head Doctor. I asked the Pharmacist if he would prescribe fluroquinolones to anyone in his family, guess what the answer was…A BIG FAT NO. Okay for the patients though. In the little Spanish town that I live in there is an epidemic of “fibromyalgia” when I told the Rheumatology department in the local hospital here about ‘A Black Box Warning’ in the States, her arrogant answer was…”This is Spain, not America” They truly believe we are “Rare” even though I gave them evidence to the contrary, it was as if “What the hell do I know I’m not a Doctor, I got my information from the internet” closed arrogant minds. I have only met one Doctor that actually agreed with me and now he’s into Complementary Medicine.
I think it will take a long time for change as these things do, but ‘any’ change no matter how small is welcome. I have spent around €10,000 trying to heal myself, I have no insurance either, they have a lot to answer for in more ways than one.
Something positive to end on, The wine here is fabulous and cheap, and it does not seem to upset me as it does with some other floxie’s, so onwards and upwards. I hope your future dreams are wonderful
Hmmmmmm, don’t know, but call me a cynic. He say’s it’s free then wants money ???
toby
6 years ago
I wanted to try some antioxidant and took alpha lipoic acid about 70mg. Than I read on this site that it can be dangerous because it contains glutathione! I am very sensitive to supplements and can not tolerate most of them. Could it hurt me? What should I do now?
Barbara Arnold
6 years ago
Toby, there are a lot of CBD sights on facebook. You will get plenty of good information there. They advise to take CBD about 2 hours away from any medication. CBD should help with your anxiety as from reading your posts seems to be a problem for you. Also if you get Kerri Knox’s book she has a lot of good information about suppliments which I think will help you to stop worrying. Listen to your body and take it from there.
toby
6 years ago
I just read about hyperbaric therapy. Is it effective in treating anxiety and mitochondria disease? How it helped you?
Barbara Arnold
6 years ago
Toby it helped me with peripheral neuropathy, but it came back, not as bad, but it still came back, probably because I had a fall and compressed my spine. The ozone therapy also helped with PN and is supposed to help the mitochondria. For your anxiety the best thing in my opinion is CBD oil. Like I said there is a lot of information on CBD oil facebook.
I need dental work. Doctor wants to put Toxavit in my tooth. Could it worsen toxicity symptoms?
Hey L,
I’m answering you here, on the previous post. Yes, I remember you told me about your bladder issues and that crushed glass feeling. When I first went to the doctor who gave that poison, my symptoms were just some dribbling after urination. It was like that for more than a year and a half. After about a couple of weeks since being floxed, the symptoms got worse. Way worse. I now have to go to pee multiple times,day and night. I’m also suffering from urinary retention. And I also have that feeling of heaviness in the groin area. I’ve been diagnosed with a bladder neck sclerosis and a urethral stenosis, but I’m almost sure that the FQ has something to do with the worsening of the symptoms. Probably my bladder doesn’t work good anymore. Probably because of the neurological damage caused by the drug. Oh, you’ve mentioned doctors who are still prescribing FQ’s for minor infections. Just think about this…that dumbass doc who gave Plurifloxacin, already knew that there was no infection, nor he thought that giving me that s**t would’ve improved my symtoms. He told me so. He “just wanted to be sure”…these were his words. When I confronted him, and told him how bad I was feeling, he just told me that he acted according to protocol.
That was his version,though. Because I spoke to a lawyer too. And he told me a completely different story. He said that there was enough stuff to file a suit against him (omission of details regarding the side effects, underestimated risks) but also that, without a proof of the damage (e.g. all my blood tests,scans,ultrasound,came out negative) he could’ve done nothing.
That’s just so unfair. Poisoned just like that. Without even a reason,an excuse. At 30…
Yeah I had the retention too. maybe still a little but much improved. I KNOW it was the Cipro for me. Happened right after the Cipro…had an ultrasound that showed nothing. I am much improved in that area but after 100s of IVs and thousands of dollars in supplements, difficult to say what helped. Again, for immediate relief, the acupuncture and Chinese herbs were pretty effective. I do believe it was nerve damage related since I had SO MUCH nerve damage…to ears, nose, feet, hands, and maybe the cause of my distressed breathing.
OMG I was just doing a search on Cipro and UTIs and a site called HEALTHLINE talked about taking it for the entire time your doctor prescribed it for a UTI. I sent them a scathing email. SO UNINFORMED! And this site is made up of doctors (and pharma people.)
Yes the causation is the glitch in lawsuits. I ended up filing my own—beyond daunting, but I was able to find court approved expert witnesses who were able to link at least some of my side effects to the drugs. It’s difficult but not impossible.
If you haven’t yet done so, you might want to try an acupuncturist, esp one that also does Chinese herbal medicine. of course, like pretty much anything that helps us, not usually covered by insurance.
Henks, sorry no reply button. I found out about the European FDA meeting on facebook. I joined the Uk facebook for floxies. I am not going because I would have to fly from Spain and I’ve spent enough money already trying to beat this shit. But I am going to write to them. The only thing it may achieve is a strong warning in the inserts. I don’t think it will achieve anything else, but we have to keep trying.
I went back from dentist. He said another option is Difurid which contains:
1. parachlorphenol
2. phenol
3. camphor
4. levomenthol
Is this product safe?
Henk, I live in Italy. Yeah I too love cheese. But I’ve also noticed, even before being floxed, how detrimental it is for my health. That lungs thing you’ve mentioned, I’ve noticed it too. Lots of mucus. By the way, I’m not sure if I understood correctly your last question, but yes, I’ve compiled the application form, for this upcoming hearing. And if they’ll select me to speaking, I’ll go there. I’m curious to see what will happen.
https://www.bing.com/search?q=pharmaceutical+companies+persuading+groups+to+vote+for+their+drugs&FORM=AWRE
Hi guys. I haven’t posted in ages. I don’t have my priorities all together is the reason, and the last thing I want is to scare anyone needlessly, but I got hit in a particular way and never fully recovered from the collagen effects of cipro. So for this reason, I never even considered submitting something to Lisa’s site. Again the last thing I want is to scare anyone, so before I link this keep in my I got a nasty drug combination and poor genetics and environment conditions… but I did make this post: https://impossibleadversity.wordpress.com/2018/04/15/fluoroquinolone-ciprofloxacin-poisoning/ but it’s lame until I get more time and energy to fill the page. I hope to one day make a better resource about healing cartilage and tendons, but I had too many different health problems and had to put skeletal healing on hold, so I never went through all the collagen-related research I saved, and I’m probably out of date. Okay, so I hope you guys and anyone recently affected is holding up alright. It’s been years of me researching health conditions by now, and there’s still nothing quite like this. I’m so tired right now. Take it easy.
Ehy guys, I need some support right now.
In the last few months, I was doing “quite good”. The aches in my joints never left me, but they were manageable. A little better as far as the bone pains. And the weakness-fatigue, was doing ok. But a few weeks ago, from time to time, I started to feel worse. I was almost sure I was facing a relapse, but, it never happened.
Then, today, I wake up, eat something for breakfast, took a shower, got dressed and went outside for some grocery shopping. And then it struck me. First I started to get very weak, like a sugar crash. All the joints were kinda achy. Not that much, but a little bit more than the usual. The scariest part anyway, was that light headed feeling. I felt confused, dizzy, brain fog. It’s been a few months that I wasn’t feeling this way. I immediately, felt that sensation of hopelessness, desperation I was experiencing this summer, when my symptoms went in full bloom. I immediately went home, And during the ride home, I was already thinking about suicide again. Repeating to my self ” I don’t want to live this way for the rest of my life! “. At home, since I was experiencing that sugar crash, I ate something and felt a little better. But I’m still very scared. Sorry guys, to bring these awful story to you, but you’re the only ones that I can relate to, and the only ones that can feel my pain and understand. No one really seems to care. Most of the times, even the closest people, just defuse my situation. The worst part is when they tell you : “I think you’re overreacting. You need to see a psychologist, you’re problem is becoming a mental problem”
Hello every one,
Really i feel tired from FQ 2 years from my life its hard
Really we are like a family no one understand us from outside i hope everyone recovery im faisal from arab country jordan
Hey everyone…I just read a post re NO and now I can’t find it. These quick exercises, if you are able to do them, may be helpful. https://www.mercola.com/calendar/2018/fitness.htm
Hi L,
Yes, there is a difference between the first year and the second year. Heartbeat The first year was 145 but now almost 90 and there is some improvement in the body, I hope to go back as I was before
Today Dr. Mercola has an interesting article about antibiotics,PPI,s and other “medicines” that promote drugresistance among bacteria. Way more medicines than thought appear to influence your microbiome, and not only promote drugresistance but also cause allergies,astma and other problems.
Giving babies PPI’s because they spit up their milk? This spitting up is,most of the time,caused by babies drinking their milk to eager and thereby taking in to much air. Or by mother’s not paying enough attention (app-ing etc.) while handling the milkbottle,letting the baby suck air in stead of milk. How is a PPI helpfull here? Read it here:
https://articles.mercola.com/sites/articles/archive/2018/04/17/cre-with-rare-new-resistance-conferring-genes.aspx?utm_source=dnl&utm_medium=email&utm_content=art1&utm_campaign=20180417Z2&et_cid=DM200613&et_rid=277775736
My god; what’s wrong with doctors nowadays? They tell patients it’s all “between the ears” when they come with complaints about Cypro and other poisons with severe adverse affects but actually they themselfses have a mental/psychologycal problem: they think they HEAL people. Wake up,doctors,and face the truth!
Well if that’s true Henk, I’m truly happy. Not true here in Spain though, even though my own Doctor believes me now because I was diagnosed by a Rheumatologist, with all of that, the health centre he’s in still dish Cipro out like sweets. Also I asked our local Pharmacy to warn people about the side effects, but he was told to ‘shut up’ by my local health centre’s Head Doctor. I asked the Pharmacist if he would prescribe fluroquinolones to anyone in his family, guess what the answer was…A BIG FAT NO. Okay for the patients though. In the little Spanish town that I live in there is an epidemic of “fibromyalgia” when I told the Rheumatology department in the local hospital here about ‘A Black Box Warning’ in the States, her arrogant answer was…”This is Spain, not America” They truly believe we are “Rare” even though I gave them evidence to the contrary, it was as if “What the hell do I know I’m not a Doctor, I got my information from the internet” closed arrogant minds. I have only met one Doctor that actually agreed with me and now he’s into Complementary Medicine.
I think it will take a long time for change as these things do, but ‘any’ change no matter how small is welcome. I have spent around €10,000 trying to heal myself, I have no insurance either, they have a lot to answer for in more ways than one.
Something positive to end on, The wine here is fabulous and cheap, and it does not seem to upset me as it does with some other floxie’s, so onwards and upwards. I hope your future dreams are wonderful
Might this be of some help to all us “floxies”?
https://alsearsmd.com/landing/cc_polio_stemcells-v3.html
As is the usual thing. Access to it will be the big stumbling block.
Hmmmmmm, don’t know, but call me a cynic. He say’s it’s free then wants money ???
I wanted to try some antioxidant and took alpha lipoic acid about 70mg. Than I read on this site that it can be dangerous because it contains glutathione! I am very sensitive to supplements and can not tolerate most of them. Could it hurt me? What should I do now?
Toby, there are a lot of CBD sights on facebook. You will get plenty of good information there. They advise to take CBD about 2 hours away from any medication. CBD should help with your anxiety as from reading your posts seems to be a problem for you. Also if you get Kerri Knox’s book she has a lot of good information about suppliments which I think will help you to stop worrying. Listen to your body and take it from there.
I just read about hyperbaric therapy. Is it effective in treating anxiety and mitochondria disease? How it helped you?
Toby it helped me with peripheral neuropathy, but it came back, not as bad, but it still came back, probably because I had a fall and compressed my spine. The ozone therapy also helped with PN and is supposed to help the mitochondria. For your anxiety the best thing in my opinion is CBD oil. Like I said there is a lot of information on CBD oil facebook.