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Barbara Arnold
6 years ago
Toby I suggest that if you are considering HB that where ever you go you thoroughly research first. I went to a private hospital where they use it for diabetic wounds, and for cancer patients after chemo. We know that fluroquinolones pass the blood brain barrier, so what your saying is a possiblity. However from the begining I focused all my healing on the mitochondria, and ozone and HB are the only treatments that ‘seemed’ to help. But I am still not ‘cured’ just improved. Maybe my age has something to do with it as I’m 74 now, got floxed at 71. I believe if you are younger you have a better chance. But this is all conjecture.
L
6 years ago
Curious…has anyone had Fluorescein angiography done for photos of the eye, post Cipro? I need to have it to compare to ones I had about 10 years ago, and of course anything synthetic makes me nervous now.
Andrea
6 years ago
Hey guys, I tried to post a link, andI don’t know why but I couldn’t. Anyway, it was about Glutathione supplementation and its risks. Here’s the interesting part : A quote from Dr. Mercola’s article on glutathione: “Glutathione supplementation can help people with immunodeficiency but only to a certain degree, and only temporarily—kind of like recharging a dead battery. Ironically, glutathione supplements may actually interfere with your body’s own glutathione production. The human body is programmed to self-produce its own antioxidant enzymes such as glutathione… And synthetic supplementation of these compounds actually signals your body to stop its own production – which leaves you dependent on synthetic substances…”
Andrea
6 years ago
Months ago, I did glutathione IVs once a week, for a total of 3. Nothing changed. Now I want to try this version, S acetyl glutathione with MSM, let’s see what happens…
Barbara Arnold
6 years ago
No reply button ?? But THANKS Henk. Will read through everything.
I want to say, I feel for all of you a human being should never know suffering like this! I have been hanging on for five years now, I have done nothing but get worse, I am so sick now I can no longer wait for death to happen on its own, god knows I tried, I won’t go into everthing except to say the nerve damage thru out my entire body and the brain damage has gotten past unbearable I can’t do this anymore, these are not the words of a man looking for pity these are the words of a human being who can no longer take the profound sufferring, I would like my whole body to be in tact for autopsy I refuse to go out in complete silence like my govt and dr would like! An autopsy is a MUST does anyone know of an dr who would be willing to help a person die with dignity? We have the death with dignity law in the state I live in the u.s.a. however since I have nothing on paper they won’t help me, I guess that’s the last salt in the wound from this nightmare! If anyone can point me towards a dr who will help please let me know, if you understood how severely cipro poisoned I am you would understand that sometimes a person is so sick that death is mercy, especially when there’s no hope of treatment or recovery haven’t even been able to get one dr to listen for 5 years as I get sicker and sicker. I am proud of myself for enduring this for this long.
Barbara Arnold
6 years ago
Ken, Don’t know what to say except so sorry you are suffering so much. Our thoughts are with you. Much Love
Tara
6 years ago
No worries, Andrea. I didn’t want to give out my personal information at first, either. I only do when experiences resonate with me and then I usually email Lisa and get the email address that way. I noticed that we were floxed around the same time and I was doing better for several weeks and then when I hit the 18-month mark this month, I started to feel despair again and a lot of anxiety, worry, hopelessness, etc. I am so done with this! To be so disconnected from yourself for so long is just so maddening. AND to not have any legal recourse is just awful. I read one of your recent posts about feeling dizzy and having that sense of doom right away and I know that feeling all too well; it totally resonated with me because I have been there all week. So, I just wanted to extend the invitation, mainly because I feel bad about clogging up posts with my personal accounts. I usually take weeks to months off of this site and return periodically to look at new stories and then I read new posts. When I am feeling better, I am not usually on here. Misery loves company sometimes!
Marie - Sweden
6 years ago
There is going to be a hearing about fluoroquinolones in London on June 13th, 2018
I saw it on the Swedish Medical Agency`s website. I suppose similar information can be found in all EU-countries..
I am not a floxie, but knew a person who was prescribed ciprofloxacin a few times. That`s when I started to look for information about X:s medications (several – including cortisone and NSAID) and discovered that there were people in the U.S. called “floxies”. That was years ago (probably 2005).
Here are some links (the first one is in Swedish, but there are links in English)
I would like to say, please remember my post apply to MY situation not YOURS, we all have different outcomes, my prayers and best wishes to all of you, I don’t know any of you personally however I am a lover of people and I feel great empathy, concern, and a great desire for all of you to regain your health, I also feel a connection to each and every one of you, we have all been thru something truly horrible and unbelievable and this connects us all.
Barbara Arnold
6 years ago
I have asked Lisa to post about the meeting in June with the EMA to discuss fluroquinolones, her computer is down at the moment so she will post when its back up and running. If you cannot attend you can email them at….publichearings@ema.europa.eu.
They want to know the answer to two questions
Treatment Risks ? …and
Your opinion on safe use ?
Ha ha, that should give you the opportunity to tell them the straight facts.
If you are European please please email if you can’t attend and tell them your story. If we manage to get a warning the same as they have in the states at least it will be ammunition to give to those ignornant Doctors who have treated us so badly, and its another step forward in publising about these terrible drugs.
Lisa…I read an end of life story on this site about a friend of yours…it said she had,been diagnosed terminal…i was wondering how she got the diagnoses? And can you document my story?
Now that I think about it, does anyone knows how big is the percentage of people who develop side effects from FQ? I’m not too sure, but I remember reading a Bayer study, done in ’89 or something like that, and that percentage was a “reassuring” 6%.
Winston Churchill said: “The truth is incontrovertible. Malice may attack it, ignorance may deride it, but in the end, there it is.”
Andrea
6 years ago
Hey Henk, I need some advice here.
After you introduced me to that magnetic pulser, something I really knew nothing about it, I’ve done a little research. I really don’t know what to think. It looks like a scam to me (just my opinion of course) , but at the same time, after reading many reviews, including yours, I’m getting curious. Anyway, in your experience, do you think it could be useful for treating things like overactive bladder, or also bladder obstructions, due to a bladder neck sclerosis? Thanks.
Ronna
6 years ago
It has been 16 months since I have taken Avelox and Prednisone for sinus infection. I have lost weight, my sense of hunger and developed rapid gastric emptying. My biggest problem is the head pressure. My mouth is slightly swollen in the inside and voice is hoarse at times from swelling. Has anyone had these problems? My doctor wants me to have a steroid injection in my neck, does anyone have thoughts on this? I am so miserable with constant anxiety.
Toby I suggest that if you are considering HB that where ever you go you thoroughly research first. I went to a private hospital where they use it for diabetic wounds, and for cancer patients after chemo. We know that fluroquinolones pass the blood brain barrier, so what your saying is a possiblity. However from the begining I focused all my healing on the mitochondria, and ozone and HB are the only treatments that ‘seemed’ to help. But I am still not ‘cured’ just improved. Maybe my age has something to do with it as I’m 74 now, got floxed at 71. I believe if you are younger you have a better chance. But this is all conjecture.
Curious…has anyone had Fluorescein angiography done for photos of the eye, post Cipro? I need to have it to compare to ones I had about 10 years ago, and of course anything synthetic makes me nervous now.
Hey guys, I tried to post a link, andI don’t know why but I couldn’t. Anyway, it was about Glutathione supplementation and its risks. Here’s the interesting part : A quote from Dr. Mercola’s article on glutathione: “Glutathione supplementation can help people with immunodeficiency but only to a certain degree, and only temporarily—kind of like recharging a dead battery. Ironically, glutathione supplements may actually interfere with your body’s own glutathione production. The human body is programmed to self-produce its own antioxidant enzymes such as glutathione… And synthetic supplementation of these compounds actually signals your body to stop its own production – which leaves you dependent on synthetic substances…”
Months ago, I did glutathione IVs once a week, for a total of 3. Nothing changed. Now I want to try this version, S acetyl glutathione with MSM, let’s see what happens…
No reply button ?? But THANKS Henk. Will read through everything.
I want to say, I feel for all of you a human being should never know suffering like this! I have been hanging on for five years now, I have done nothing but get worse, I am so sick now I can no longer wait for death to happen on its own, god knows I tried, I won’t go into everthing except to say the nerve damage thru out my entire body and the brain damage has gotten past unbearable I can’t do this anymore, these are not the words of a man looking for pity these are the words of a human being who can no longer take the profound sufferring, I would like my whole body to be in tact for autopsy I refuse to go out in complete silence like my govt and dr would like! An autopsy is a MUST does anyone know of an dr who would be willing to help a person die with dignity? We have the death with dignity law in the state I live in the u.s.a. however since I have nothing on paper they won’t help me, I guess that’s the last salt in the wound from this nightmare! If anyone can point me towards a dr who will help please let me know, if you understood how severely cipro poisoned I am you would understand that sometimes a person is so sick that death is mercy, especially when there’s no hope of treatment or recovery haven’t even been able to get one dr to listen for 5 years as I get sicker and sicker. I am proud of myself for enduring this for this long.
Ken, Don’t know what to say except so sorry you are suffering so much. Our thoughts are with you. Much Love
No worries, Andrea. I didn’t want to give out my personal information at first, either. I only do when experiences resonate with me and then I usually email Lisa and get the email address that way. I noticed that we were floxed around the same time and I was doing better for several weeks and then when I hit the 18-month mark this month, I started to feel despair again and a lot of anxiety, worry, hopelessness, etc. I am so done with this! To be so disconnected from yourself for so long is just so maddening. AND to not have any legal recourse is just awful. I read one of your recent posts about feeling dizzy and having that sense of doom right away and I know that feeling all too well; it totally resonated with me because I have been there all week. So, I just wanted to extend the invitation, mainly because I feel bad about clogging up posts with my personal accounts. I usually take weeks to months off of this site and return periodically to look at new stories and then I read new posts. When I am feeling better, I am not usually on here. Misery loves company sometimes!
There is going to be a hearing about fluoroquinolones in London on June 13th, 2018
I saw it on the Swedish Medical Agency`s website. I suppose similar information can be found in all EU-countries..
I am not a floxie, but knew a person who was prescribed ciprofloxacin a few times. That`s when I started to look for information about X:s medications (several – including cortisone and NSAID) and discovered that there were people in the U.S. called “floxies”. That was years ago (probably 2005).
Here are some links (the first one is in Swedish, but there are links in English)
https://lakemedelsverket.se/Alla-nyheter/NYHETER—2018/EMA-Offentlig-utfragning-om-kinolon–och-fluorokinolonantibiotika-13-juni/
https://ec.europa.eu/eusurvey/runner/PublicHearingApplicationForm
http://www.ema.europa.eu/docs/en_GB/document_library/Regulatory_and_procedural_guideline/2017/06/WC500229781.pdf
https://www.youtube.com/watch?v=l5y2Qrlo8mI&feature=youtu.be
Does anyone have any suggestions of how a person can get a terminal diagnoses? I really need it on paper. Thanks Ken
LISA…I believe your the person that posted the end of life story about a friend of yours…can you help me in any way?
I would like to say, please remember my post apply to MY situation not YOURS, we all have different outcomes, my prayers and best wishes to all of you, I don’t know any of you personally however I am a lover of people and I feel great empathy, concern, and a great desire for all of you to regain your health, I also feel a connection to each and every one of you, we have all been thru something truly horrible and unbelievable and this connects us all.
I have asked Lisa to post about the meeting in June with the EMA to discuss fluroquinolones, her computer is down at the moment so she will post when its back up and running. If you cannot attend you can email them at….publichearings@ema.europa.eu.
They want to know the answer to two questions
Treatment Risks ? …and
Your opinion on safe use ?
Ha ha, that should give you the opportunity to tell them the straight facts.
If you are European please please email if you can’t attend and tell them your story. If we manage to get a warning the same as they have in the states at least it will be ammunition to give to those ignornant Doctors who have treated us so badly, and its another step forward in publising about these terrible drugs.
Lisa…I read an end of life story on this site about a friend of yours…it said she had,been diagnosed terminal…i was wondering how she got the diagnoses? And can you document my story?
http://www.cmaj.ca/content/true-or-false-poll-no-72
Now that I think about it, does anyone knows how big is the percentage of people who develop side effects from FQ? I’m not too sure, but I remember reading a Bayer study, done in ’89 or something like that, and that percentage was a “reassuring” 6%.
To everyone. BEWARE OF THIS DRUG. PPIS>https://www.bing.com/search?q=ppis+and+pneumonia&form=EDGEAR&qs=PF&cvid=4162ca40a28641648e2772659297c753&cc=GB&setlang=en-US&PC=LCTS
Winston Churchill said: “The truth is incontrovertible. Malice may attack it, ignorance may deride it, but in the end, there it is.”
Hey Henk, I need some advice here.
After you introduced me to that magnetic pulser, something I really knew nothing about it, I’ve done a little research. I really don’t know what to think. It looks like a scam to me (just my opinion of course) , but at the same time, after reading many reviews, including yours, I’m getting curious. Anyway, in your experience, do you think it could be useful for treating things like overactive bladder, or also bladder obstructions, due to a bladder neck sclerosis? Thanks.
It has been 16 months since I have taken Avelox and Prednisone for sinus infection. I have lost weight, my sense of hunger and developed rapid gastric emptying. My biggest problem is the head pressure. My mouth is slightly swollen in the inside and voice is hoarse at times from swelling. Has anyone had these problems? My doctor wants me to have a steroid injection in my neck, does anyone have thoughts on this? I am so miserable with constant anxiety.