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Ronna
6 years ago
Do you think the steroid shot would makes things worse? That is my greatest fear?
Lukasz
6 years ago
Word of advice to the Floxie Community:
Steer clear of Passion Flower tea. Took it for 8 days before bed to help with sleep (3 and a half years and I’m still not sleeping well!!!) and it escalated my depression/anxiety levels to heights not seen since the onset of my symptoms in 2015. Spoke to a health and wellness practitioner about it and she explained that passion flower tea can, in fact, cause psychotic reactions in some individuals. She backed up her claims with some studies that were done.
It’s possible that I’m simply allergic to this herb but I wanted to warn others in case anyone was thinking about trying it. My suggestion is to use caution as it MAY make your situation worse than it already is.
Hope you’re all seeing improvement of late. Keep the good fight going!
Chaun
6 years ago
I was floxed in 2015 by taken 2 weeks of cipro prescribed by my doctor,It took me about 2 years to recover back to 98%.But with God and magnesium plus time you can do it! However, i have stomach problems now like Ibs symptoms constipation bloating ,gas all the time.Has anybody had these symptoms and whats good to help for them? Thanks
Ronna
6 years ago
Decided against steroid shot for my neck pressure and swelling. Doctor suggested an radio frequency Ablation procedure. Has anyone tried this? Does anyone report swelling in the oral mucosa. I had a biopsy done which ruled out Sjogrens Syndrome. I have chronic mild inflammation in my inside cheeks and lips; therefore producing less saliva. Bad pressure on right side of my face too. also dry eye. Has this ever been reported? Wondering if this is symptom or something else. Will the sota pulser bring down swelling?
Ronna
6 years ago
To Toby
I am also on 7.5 Mirtazapine for weight gain and it has helped. It also helps me to sleep. I tried to stop taking it for 2 nights and had severe anxiety. I read you have to decrease by 10% each week or so to taper down. I am trying shaving a little piece off the half each time. This works, but takes time. I have tried prescription digestive enzymes and they have done nothing.I’m eating well, but still struggle to gain weight. Good Luck.
Ronna
6 years ago
Do I put the colloidal silver on my neck? Will the sota pulser bring down inflammation?
Ronna
6 years ago
L. How did you get better, I feel I’ve tried everything and now a deep depression has set in and husbands support is gone. I feel alone in this, I need to get well fast. Please some hints
Lukasz
6 years ago
Anybody have inability to feel emotions? Sadness, happiness, etc.? Surely this must be a symptom of the antibiotics. Any ideas on how to restore human emotions without resorting to pharmaceuticals? One would think after 3 1/2 years of torment, emotions would return?
Andrea
6 years ago
Lukasz,
I don’t think I’m unable to feel emotions. Actually, sadness and anger became very common after being floxed. But I also noticed that I started to see life in a “colder” way. I now understand that my health has been permanently damaged, and I don’t know to what degree, and this makes me feel incredibly cold. So in a way. maybe, I too became “emotionless” . Like for example, even if I’m intersted in something or someone, I try to hold back this interests/emotions, because I don’t feel I’m the same person I used to be. I now consider myself an invalid, a crippled, and I don’t like it. I hate that feeling of being “old” and needing help at just 31.
I know this could offend someone, but it’s just how I feel.
Expecially because, even if many people tell you : “oh, I’m so sorry for you, I understand”, they really don’t, and they keep asking you to smile, or they tell you “to react”. Or even worst, ” don’t worry, sooner or later, you’ll get better”.Yeah right…
Anyway, back to you, this apathy you’re experiencing, it’s not good and, I too would avoid antidepressant. In my opnion they just create more mess. Instead, try to be as much active as possible. And try to eat healhty. Just these two things can make a huge difference in how we feel. Just moving and eating healthy. Some psychiatrists are starting to recognize the damage of these wild prescriptions, and they’re stressing on these two lifestyle changes.
Another thing you can do, is to explore the world of nootropics. They’re not antiddpressant or prescription drugs, but anyway, as always, be carefull and do your homeworks, before trying anything new, or even better talk to some expert.
To Ken Ward, maybe if you could get your doctor to make you a DNR, do no resuscitate, you could get Hospice on board to help relieve symptoms. This would make you more comfortable even though they use medications, your body has been through enough suffering. They’re case social worker may help you with the autopsy arrangements. They work to help you with you last wishes. How are you feeling today?
Ken, my heart breaks for you. Whatever you decide I wish you strength and courage. I hate to see you give up as I know some people take several years to recover but do get back some quality of life. I also understand how a person can only suffer so long and wants to find peace again. You sound like you are a very strong person and that strength will guide you and help you. Can you tell more about your story? How much FQ you took? Had you taken it on previous occasions? Are you still young in age? If you don’t want to talk about details I understand and my biggest wish for you is to hopefully maybe to continue to find and believe in more healing to be possible for you and to again find peace and calm. God Bless
Daniela
6 years ago
I’m afraid to write because sometimes people get so nasty, but also I feel really strongly about the subject and don’t want anyone to be hurt they way I have been.
I don’t think it’s a great idea to recommend IV’s to people we hardly know. That’s a serious allopathic intervention that shouldn’t be taken lightly. Who knows where a person is located, their age, underlying medication conditions, etc. Some people say they are cured by it but some say they have been harmed, so obviously there can be very strong effects. Where are the bags sourced, it’s all wrapped in plastic, artificial preservatives, there are a lot of concerns.
So maybe you like IV’s but please have some respect and understand that not everyone has had the same experience. Remember we all want to be listened to about Cipro, too.
toby
6 years ago
Has anybody had improvement by removing mercury fillings?
Dav
6 years ago
Is tart cherry juice safe for reducing inflammation/fever after floxing? I have a fever and I’m trying to get it to go down without Tylenol
May be worth looking into. This could possibly be a big help for many of the floxies. I use CBD oil and it does help with the anxiety issues. Us floxies tend to spend way to much time focused on our discomfort and pain. Changing our focus to other things or mitigating it with a natural thing like CBD oil can be a real help.
Elon is very right about this. Just because a ‘doctor’ recommends taking something to treat a disorder, does not mean it is healthy for you to consume. We were always taught to listen to the doctor because “they know best” when in fact, they just relay most of the information from the people creating these health damaging products.” “BIG PHARMA”!!!
CBD Oil is Threatening Big Pharma …. Big pharma is doing every “DIRTY” thing it can to try to discredit the CBD product.
Do your own research but do not bypass CBD oil. It might possibly make your life a whole lot more comfortable.
Andrea
6 years ago
Thanks everyone for the infos.
Anyway just to let you know, I haven’t received an answer from EMA yet, so I don’t think they have selected me to speak at the earing. When I subscribed to it, the automatic response was that they’d let me know in about 2 weeks, so…
Ronna
6 years ago
The doctor has ordered a Modified Barium Swallow and a test for SIBO due to my GI issues and inability to gain weight. Has anyone had any good results that helped them with these tests?
Since we floxies are obviously compromised it appears that we should be aware of this. Sepsis appears to be somewhat of a sneaky thing masquerading as other problems at first.
T
6 years ago
Hi guys , I was wondering if any of you had recommendations to help me out, I’ve been floxed like 5 years ago and felt like I recovered from not being able to walk down the stairs to running good distances, but just a few weeks ago I took a few pills of bactrim for a amoeba I caught travelling and knew right away that was a very bad idea, I now feel stupid for doing that, because I have burning and hot sensation through my body mainly in arms I did work out while I took the stuff but it was only a few pills then I quit for the burning reasons, ugh . I have done so well this year to have it taking away from a few pills , what a bad idea , now I’m back to recovery mode and trying to figure out what to do, I don’t think any antibiotic is safe for me, and will do my best to avoid all pharmaceuticals,
Do you think the steroid shot would makes things worse? That is my greatest fear?
Word of advice to the Floxie Community:
Steer clear of Passion Flower tea. Took it for 8 days before bed to help with sleep (3 and a half years and I’m still not sleeping well!!!) and it escalated my depression/anxiety levels to heights not seen since the onset of my symptoms in 2015. Spoke to a health and wellness practitioner about it and she explained that passion flower tea can, in fact, cause psychotic reactions in some individuals. She backed up her claims with some studies that were done.
It’s possible that I’m simply allergic to this herb but I wanted to warn others in case anyone was thinking about trying it. My suggestion is to use caution as it MAY make your situation worse than it already is.
Hope you’re all seeing improvement of late. Keep the good fight going!
I was floxed in 2015 by taken 2 weeks of cipro prescribed by my doctor,It took me about 2 years to recover back to 98%.But with God and magnesium plus time you can do it! However, i have stomach problems now like Ibs symptoms constipation bloating ,gas all the time.Has anybody had these symptoms and whats good to help for them? Thanks
Decided against steroid shot for my neck pressure and swelling. Doctor suggested an radio frequency Ablation procedure. Has anyone tried this? Does anyone report swelling in the oral mucosa. I had a biopsy done which ruled out Sjogrens Syndrome. I have chronic mild inflammation in my inside cheeks and lips; therefore producing less saliva. Bad pressure on right side of my face too. also dry eye. Has this ever been reported? Wondering if this is symptom or something else. Will the sota pulser bring down swelling?
To Toby
I am also on 7.5 Mirtazapine for weight gain and it has helped. It also helps me to sleep. I tried to stop taking it for 2 nights and had severe anxiety. I read you have to decrease by 10% each week or so to taper down. I am trying shaving a little piece off the half each time. This works, but takes time. I have tried prescription digestive enzymes and they have done nothing.I’m eating well, but still struggle to gain weight. Good Luck.
Do I put the colloidal silver on my neck? Will the sota pulser bring down inflammation?
L. How did you get better, I feel I’ve tried everything and now a deep depression has set in and husbands support is gone. I feel alone in this, I need to get well fast. Please some hints
Anybody have inability to feel emotions? Sadness, happiness, etc.? Surely this must be a symptom of the antibiotics. Any ideas on how to restore human emotions without resorting to pharmaceuticals? One would think after 3 1/2 years of torment, emotions would return?
Lukasz,
I don’t think I’m unable to feel emotions. Actually, sadness and anger became very common after being floxed. But I also noticed that I started to see life in a “colder” way. I now understand that my health has been permanently damaged, and I don’t know to what degree, and this makes me feel incredibly cold. So in a way. maybe, I too became “emotionless” . Like for example, even if I’m intersted in something or someone, I try to hold back this interests/emotions, because I don’t feel I’m the same person I used to be. I now consider myself an invalid, a crippled, and I don’t like it. I hate that feeling of being “old” and needing help at just 31.
I know this could offend someone, but it’s just how I feel.
Expecially because, even if many people tell you : “oh, I’m so sorry for you, I understand”, they really don’t, and they keep asking you to smile, or they tell you “to react”. Or even worst, ” don’t worry, sooner or later, you’ll get better”.Yeah right…
Anyway, back to you, this apathy you’re experiencing, it’s not good and, I too would avoid antidepressant. In my opnion they just create more mess. Instead, try to be as much active as possible. And try to eat healhty. Just these two things can make a huge difference in how we feel. Just moving and eating healthy. Some psychiatrists are starting to recognize the damage of these wild prescriptions, and they’re stressing on these two lifestyle changes.
Another thing you can do, is to explore the world of nootropics. They’re not antiddpressant or prescription drugs, but anyway, as always, be carefull and do your homeworks, before trying anything new, or even better talk to some expert.
Andrea I totally agree. https://www.madinamerica.com/2017/12/the-three-most-important-facts-about-psychiatric-drugs/
To Ken Ward, maybe if you could get your doctor to make you a DNR, do no resuscitate, you could get Hospice on board to help relieve symptoms. This would make you more comfortable even though they use medications, your body has been through enough suffering. They’re case social worker may help you with the autopsy arrangements. They work to help you with you last wishes. How are you feeling today?
Ken, my heart breaks for you. Whatever you decide I wish you strength and courage. I hate to see you give up as I know some people take several years to recover but do get back some quality of life. I also understand how a person can only suffer so long and wants to find peace again. You sound like you are a very strong person and that strength will guide you and help you. Can you tell more about your story? How much FQ you took? Had you taken it on previous occasions? Are you still young in age? If you don’t want to talk about details I understand and my biggest wish for you is to hopefully maybe to continue to find and believe in more healing to be possible for you and to again find peace and calm. God Bless
I’m afraid to write because sometimes people get so nasty, but also I feel really strongly about the subject and don’t want anyone to be hurt they way I have been.
I don’t think it’s a great idea to recommend IV’s to people we hardly know. That’s a serious allopathic intervention that shouldn’t be taken lightly. Who knows where a person is located, their age, underlying medication conditions, etc. Some people say they are cured by it but some say they have been harmed, so obviously there can be very strong effects. Where are the bags sourced, it’s all wrapped in plastic, artificial preservatives, there are a lot of concerns.
So maybe you like IV’s but please have some respect and understand that not everyone has had the same experience. Remember we all want to be listened to about Cipro, too.
Has anybody had improvement by removing mercury fillings?
Is tart cherry juice safe for reducing inflammation/fever after floxing? I have a fever and I’m trying to get it to go down without Tylenol
Very interesting piece.
http://whitewhale.club/elons-miracle-gummies-causes-speculation-by-fda/
May be worth looking into. This could possibly be a big help for many of the floxies. I use CBD oil and it does help with the anxiety issues. Us floxies tend to spend way to much time focused on our discomfort and pain. Changing our focus to other things or mitigating it with a natural thing like CBD oil can be a real help.
Elon is very right about this. Just because a ‘doctor’ recommends taking something to treat a disorder, does not mean it is healthy for you to consume. We were always taught to listen to the doctor because “they know best” when in fact, they just relay most of the information from the people creating these health damaging products.” “BIG PHARMA”!!!
CBD Oil is Threatening Big Pharma …. Big pharma is doing every “DIRTY” thing it can to try to discredit the CBD product.
Do your own research but do not bypass CBD oil. It might possibly make your life a whole lot more comfortable.
Thanks everyone for the infos.
Anyway just to let you know, I haven’t received an answer from EMA yet, so I don’t think they have selected me to speak at the earing. When I subscribed to it, the automatic response was that they’d let me know in about 2 weeks, so…
The doctor has ordered a Modified Barium Swallow and a test for SIBO due to my GI issues and inability to gain weight. Has anyone had any good results that helped them with these tests?
I just ran on to this article on “Sepsis”..
https://www.simplemost.com/sepsis-deaths-teenagers/?utm_campaign=geek&utm_source=facebook&utm_medium=partner&utm_partner=geek
Since we floxies are obviously compromised it appears that we should be aware of this. Sepsis appears to be somewhat of a sneaky thing masquerading as other problems at first.
Hi guys , I was wondering if any of you had recommendations to help me out, I’ve been floxed like 5 years ago and felt like I recovered from not being able to walk down the stairs to running good distances, but just a few weeks ago I took a few pills of bactrim for a amoeba I caught travelling and knew right away that was a very bad idea, I now feel stupid for doing that, because I have burning and hot sensation through my body mainly in arms I did work out while I took the stuff but it was only a few pills then I quit for the burning reasons, ugh . I have done so well this year to have it taking away from a few pills , what a bad idea , now I’m back to recovery mode and trying to figure out what to do, I don’t think any antibiotic is safe for me, and will do my best to avoid all pharmaceuticals,