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Joanne.
6 years ago
Edit* sorry I meant to say I deff notice help right away with the VSL.
Joanne.
6 years ago
Hey L,
Sorry to hear your still dealing with those things. And yea, it’s so hard trying to figure out what flares us up. So far out of the 4 years i’ve been dealing with this, I only know 2 things that i’m absolutely and positively sure of that flare me up, and they are if I reduce or stop my magnesium, and if I take ANYTHING that has antibacterial properties. I figured out the magnesium rather quickly, but it took me about 3 years to figure out that antibacterials did it too.
Anyhow, I hope you can find something that will help you, and thanks for letting me know how Steph is doing.❤
harriet
6 years ago
Hi Don Thank you very much for your comprehensive response. I have taken it on board and will be acting on it. The neuropathic pain is intolerable and I am at the point where I will try anything to alleviate it. I hope that you are improving and that you continue to send us info as it is invaluable. Many thanks once again.x
Barbara Arnold
6 years ago
Guys,
My husband also sent a letter to the EMA, saying how it effected me and also the impact on his life. We got a reply saying that his contribution was very valuable and it will be taken into consideration at the ongoing review of quinolones and fluroquinolones.
Also the hearing will be broadcast live from their website on the day….www.ema.europa.eu
Be interesting to see it ?
harriet
6 years ago
Has anyone heard of an ac adrenal cocktail?
Elizabeth
6 years ago
Has anyone heard of or tied the BX Protocol? It seems to be marketed for mitochondrial repair.
Henk Noordhuizen
6 years ago
In 1971 a doctor in The Netherlands noticed that many people,especialy children,got sick from fluoridated water.He started a research on the subject and 2 years later,following disturbing findings in this research,fluoridation of the watersupply was stopped.This is 45 years ago:why on earth is the USA still poisening it’s citizens? Read this summay and see the list of symptoms. Sound familiair? You’re right:this are the known symptoms of fluor(ide) poisoning,and That’s excactly what thappened to us,the Floxies!
Water was fluoridated in large parts of the Netherlands from 1960 to 1973, when the High Council of The Netherlands declared fluoridation of drinking water unauthorized.[103] Dutch authorities had no legal basis for adding chemicals to drinking water if they would not contribute to a sound water supply.[104] Drinking water has not been fluoridated in any part of the Netherlands since 1973.
Reminds me of the lunatic medical industy that,a few years ago,proposed to add statines to the drinking water. Never heard of the Nuremberg Code,I guess.
Don Mowers
6 years ago
Just a “stronger warning” on the box. https://www.wsj.com/articles/fda-requires-stronger-warnings-for-antibiotics-side-effects-1463088485
That’s the latest conclusion of the American FDA after their “review”. Most people never see the original box. The same probably goes for most doctors. We usually see a “pill bottle” with a bunch of stickers on it in type too small to read.
Bottom line. Be aware and tell as many people as possible about the Fluoroquinolones’ dangerous after effects.
I was thinking today about how these poisons seem to find your weak spot (at least in my case.) I already had an eye issue (although it had not caused any problems for decades) and I had a number of disturbing vision issues post cipro. I already had asthma (even though the respiratory issue post -cipro, where I gasped for breath was likely mito damage to the heart muscle or to the CNS.) My excruciating back pain was near where I had had a fractured scapula. I have always had allergies, and I had a pretty much failed sinus window surgery decades ago and now I have all these nasal/throat/lung congestion problems. (I had not problem with numbness in my feet before, but still that is a lot of “coincidence.” Of course since I had over 30 side effects, I suppose it was bound to hit some of my problem area, but my absolute WORST issues seem to have hit where I had been vulnerable before. This stuff is diabolical.
Andrea
6 years ago
Ehy guys, They accepted me to speak at the upcoming EMA hearing about fluoroquinolones!
Hi, does anyone have sugar intolerance after fq’s? and anything that might help with this?
Andrea
6 years ago
Sorry I meant goat milk
Andrea
6 years ago
Don, I can guarantee you, that, even before being floxed, I always had an issue with dairy. Even organic goat yogurt. Even small amounts of it. And I know for sure, I’m not the only one. I remember a few years ago, I avoided any kind of dairy for 14 days. After the first 5-6 days I had no more mucus in my throat or nose. My eyes were producing way less secretion ( eye boogers) and my skin looked very clean too, not a pimple or a blackhead.
I know it could sound like vegan propaganda, but it defently works for many. (I’m not vegan).
Why don’t you try for a couple of weeks and see what happens.
Thank you for your replies. Henk, thank you for the suggestion, I might try it just a little afraid because I have an arrythmia after taking 1 pill of cipro. I had no previous food allergies or sensitivities, even for about half a year after cipro I had no food allergies and now it seems I tolerate less and less foods each week and one of my WBC is now high. I cannot tolerate pretty much any supplement even a bit of magnesium. It’s hard to know what to do and Im in my mid 20s.
I started hyperbaric oxygen therapy. Did 9 sessions, each lasted about 53 minutes. Which parameters should be used? How many therapies is often needed for us?
Barbara Arnold
6 years ago
Toby, I did get a herxheimer reaction of peripheral neuropathy with hyperbaric and ozone but it passed and I did get better. I can’t say about anxiety because I have never had it. I have read of great reports of CBD oil helping a great deal from anxiety, so I would take that as well.
Henk Noordhuizen
6 years ago
The website of Bob Beck is growing! There are a lot of boxes with his personal documents te be researched and by now there’s a biography of his life and work availible.Wow;read about this amazing man and what brought him to develope the Beck Protocol to give it to the public for free:
Edit* sorry I meant to say I deff notice help right away with the VSL.
Hey L,
Sorry to hear your still dealing with those things. And yea, it’s so hard trying to figure out what flares us up. So far out of the 4 years i’ve been dealing with this, I only know 2 things that i’m absolutely and positively sure of that flare me up, and they are if I reduce or stop my magnesium, and if I take ANYTHING that has antibacterial properties. I figured out the magnesium rather quickly, but it took me about 3 years to figure out that antibacterials did it too.
Anyhow, I hope you can find something that will help you, and thanks for letting me know how Steph is doing.❤
Hi Don Thank you very much for your comprehensive response. I have taken it on board and will be acting on it. The neuropathic pain is intolerable and I am at the point where I will try anything to alleviate it. I hope that you are improving and that you continue to send us info as it is invaluable. Many thanks once again.x
Guys,
My husband also sent a letter to the EMA, saying how it effected me and also the impact on his life. We got a reply saying that his contribution was very valuable and it will be taken into consideration at the ongoing review of quinolones and fluroquinolones.
Also the hearing will be broadcast live from their website on the day….www.ema.europa.eu
Be interesting to see it ?
Has anyone heard of an ac adrenal cocktail?
Has anyone heard of or tied the BX Protocol? It seems to be marketed for mitochondrial repair.
In 1971 a doctor in The Netherlands noticed that many people,especialy children,got sick from fluoridated water.He started a research on the subject and 2 years later,following disturbing findings in this research,fluoridation of the watersupply was stopped.This is 45 years ago:why on earth is the USA still poisening it’s citizens? Read this summay and see the list of symptoms. Sound familiair? You’re right:this are the known symptoms of fluor(ide) poisoning,and That’s excactly what thappened to us,the Floxies!
http://www.enviro.ie/How%20Evidence%20based%20Medical%20Science%20Ended%20Water%20Fluoridation%20in%20the%20Netherlands_Waugh%202013.pdf
From Wiki:
Water was fluoridated in large parts of the Netherlands from 1960 to 1973, when the High Council of The Netherlands declared fluoridation of drinking water unauthorized.[103] Dutch authorities had no legal basis for adding chemicals to drinking water if they would not contribute to a sound water supply.[104] Drinking water has not been fluoridated in any part of the Netherlands since 1973.
Reminds me of the lunatic medical industy that,a few years ago,proposed to add statines to the drinking water. Never heard of the Nuremberg Code,I guess.
Just a “stronger warning” on the box. https://www.wsj.com/articles/fda-requires-stronger-warnings-for-antibiotics-side-effects-1463088485
That’s the latest conclusion of the American FDA after their “review”. Most people never see the original box. The same probably goes for most doctors. We usually see a “pill bottle” with a bunch of stickers on it in type too small to read.
Bottom line. Be aware and tell as many people as possible about the Fluoroquinolones’ dangerous after effects.
I was thinking today about how these poisons seem to find your weak spot (at least in my case.) I already had an eye issue (although it had not caused any problems for decades) and I had a number of disturbing vision issues post cipro. I already had asthma (even though the respiratory issue post -cipro, where I gasped for breath was likely mito damage to the heart muscle or to the CNS.) My excruciating back pain was near where I had had a fractured scapula. I have always had allergies, and I had a pretty much failed sinus window surgery decades ago and now I have all these nasal/throat/lung congestion problems. (I had not problem with numbness in my feet before, but still that is a lot of “coincidence.” Of course since I had over 30 side effects, I suppose it was bound to hit some of my problem area, but my absolute WORST issues seem to have hit where I had been vulnerable before. This stuff is diabolical.
Ehy guys, They accepted me to speak at the upcoming EMA hearing about fluoroquinolones!
Hi, does anyone have sugar intolerance after fq’s? and anything that might help with this?
Sorry I meant goat milk
Don, I can guarantee you, that, even before being floxed, I always had an issue with dairy. Even organic goat yogurt. Even small amounts of it. And I know for sure, I’m not the only one. I remember a few years ago, I avoided any kind of dairy for 14 days. After the first 5-6 days I had no more mucus in my throat or nose. My eyes were producing way less secretion ( eye boogers) and my skin looked very clean too, not a pimple or a blackhead.
I know it could sound like vegan propaganda, but it defently works for many. (I’m not vegan).
Why don’t you try for a couple of weeks and see what happens.
Thank you for your replies. Henk, thank you for the suggestion, I might try it just a little afraid because I have an arrythmia after taking 1 pill of cipro. I had no previous food allergies or sensitivities, even for about half a year after cipro I had no food allergies and now it seems I tolerate less and less foods each week and one of my WBC is now high. I cannot tolerate pretty much any supplement even a bit of magnesium. It’s hard to know what to do and Im in my mid 20s.
https://www.rxinjuryhelp.com/news/2018/05/10/few-efforts-to-understand-side-effects-associated-with-avelox-other-fluoroquinolone-antibiotics/
Speaking about misinformation…
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Peripheral-Neuropathy-Fact-Sheet
I started hyperbaric oxygen therapy. Did 9 sessions, each lasted about 53 minutes. Which parameters should be used? How many therapies is often needed for us?
Toby, I did get a herxheimer reaction of peripheral neuropathy with hyperbaric and ozone but it passed and I did get better. I can’t say about anxiety because I have never had it. I have read of great reports of CBD oil helping a great deal from anxiety, so I would take that as well.
The website of Bob Beck is growing! There are a lot of boxes with his personal documents te be researched and by now there’s a biography of his life and work availible.Wow;read about this amazing man and what brought him to develope the Beck Protocol to give it to the public for free:
http://www.bobbeck.com/pdfs/bob-beck-biography.pdf
Here’s a webpage with all the information one might need to build the Beck Protocol devices :
http://www.bobbeck.com/beck-protocol-articles.html
This includes part lists and electric diagrams,and extra advises for the assemble.