For over a decade this page has been dedicated to enabling the conversation for floxies to talk with one another. Sign up and subscribe to get all the latest comments.
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
I allow to create an account
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
Ronna, how far out are you in your recovery? Before I was floxed I was already dealing with leaky gut and IBS so getting floxed added another log onto the fire!! I mainly deal with diarrhea/loose stools in the morning. Let’s just say I need to be close to a bathroom for the first hour after waking up and sometimes even later in the day. I have gone gluten free and mostly dairy free. I do have 2-3 slices of raw cheese each day which may or may not help things but other then that I don’t do dairy. I recently did a gut cleanse and liver cleanse which did help me some. I haven’t gotten better to the point of feeling normal in the mornings but have improved from the first few months. When I was first floxed I had no appetite and lost 50 lbs. My bowels were all over the place. I have my appetite back and am pretty regular other then being really loose every morning. More detail probably then one would like to read!! What are your issues and what have you done so far? I started a couple of products to help your stomach heal. So will see where that goes? I have considered using Restore and colostrum but as of yet haven’t tried? I do take a daily probiotic. What is going on with you?
Pauline
6 years ago
Antibiotics are bad news but sometimes necessary.
Don M
6 years ago
For what it’s worth here is a sales pitch for a natural formula that is supposed to be “so great” for neuropathy. I would say not as “inexpensive” as the sales pitch might want you to think. It may interest some of us floxies who must try to deal with peripheral neuraopathy. It should open because I emailed it to myself and clicking on it worked.&site=synacor-centurylink1,synacor-centurylink1&title=Natural%20Method%20to%20Stop%20Nerve%20Pain,Natural%20Method%20to%20Stop%20Nerve%20Pain&campaign_id=1221277,1221277
Ronna
6 years ago
Dee, it’s been 19 months for me, still no appetite. Taking 7.5 of remeron at night just to hold the weight I have. Stool is loose every morning like you and urgent. It is always yellow, gall bladder checks out ok. Getting some blurry vision now and getting scared, I eat very well, have tried every diet without improvement, now back to eating as before being floxed. I feel like giving up. Bad ear ringing and pressure in my head. It goes on and on. It’s relentless.
Ronna
6 years ago
I know the Remeron can make things worse, but it has helped my weight. I lost 26 pounds and was only 116#to start. Went down to 88#, now 104, but I have to eat tons of food just to stay there. I’m 5’2”. This is my biggest challenge and the head pressure is relentless. I have been crying daily and can’t stop.19 months, not sure how much more I can take. I need to see some improvement soon. Looking for answers and tips.
Toby
6 years ago
Is it safe to have ozone therapy(without glutathione) if you are mercury toxic and still have amalgams in the mouth?
toby
6 years ago
Also, does anybody use beta glucan for immune boost?
Ronna
6 years ago
Thanks Daniela, when did you get your appetite back, how many months. Did it come back slowly or suddenly. Daily I wait for some sort of sign. Thanks for the advice. I do eat these things, but I will increase them.
Ronna
6 years ago
Daniela, did you eat big meals or a lot of food each day to help gain weight?
Ronna
6 years ago
What are the no foods? I want to be sure I’m not eating them. Thanks for the advice????
Daniela
6 years ago
Don, Still trying to help the cat who got better on colloidal silver but still shakes its head and scratches a bit. Not really anything in its ears.
Maybe it’s allergies.
Reading about phage therapy. It’s non-antibiotic and tailored to each person’s bacterial problem. It has been developed at an institute in Georgia (the central asian republic)
Ronna
6 years ago
Thanks, I live near a Costco, will try the sardines. Daniela, did your hunger come back suddenly or slowly, how did you know it was back? My stomach is starting to growl again, before no noise at all.
Ronna
6 years ago
Thanks a lot, that is comforting to me. Did you also have head pressure? When does that pass or get better, anyone know?
Ronna
6 years ago
Daniela how long have you been going through all this and how are you now?
Joanne.
6 years ago
Hi Everyone,
I posted back about a seaweed supplement that was really helping me, but it fizzled out just like all the others! I’ve taken supplements that help me so much for a while and then they either stop working or sometimes they start making me worse.
Today I started a new supplement, and as usual it’s helping me really Good, but I don’t know if it’s gonna fizzle out like all the rest!
Anyhow, I started drinking Essiac Tea.It’s known for curing cancer, but it also surprisingly helped other ailments that the patients had. For example diabetes, thyroid diseases, eczema ect. so I thought I’d give it a try, and I’ll post back to let you’s know how it’s going.
Here’s a couple sites if anyone’s interested. Also, watch the video it’s very interesting.
Rene Caisse & The History of Essiac Tea – Essiac Facts http://essiacfacts.com/rene-caisse/
And here are some testimonies from people who have used it
tea.com/essiac-tea-testimonials.html#stage4esophagealcancer
Ronna, I responded to and earlier post to answer a comment of yours. See “older posts”. Dee
Daniela
6 years ago
We put 2-3 drops of rubbing alcohol in the cat’s ears and the next morning the cat stopped scratching and was very active and alert. Kind of afraid to continue because it’s so strong, but it is a human remedy for swimmer’s ears. I suggested it to counteract water in the fake silver drops but the result was dramatic. (There was never any redness or discharge in the ear, just scratching and shaking.)
It’s so hard to trust doctors and but also so hard to trust products.
MJ
6 years ago
Hi all,
Short summary:
– Levaquin reaction in 2009
– Have made some improvements over the years, but nervous system still needs repair
– Current doctor is going down the “damaged GABA receptors” road, which is in line with the proven research out there and feels correct to me (or is at least PART of the problem)
– However, I am not sure if his approach is correct. He thinks it will help if I “flood” my system with GABA by way of supplementation and a pharma drug.
Has anyone tried increasing GABA by any method? Taking GABA supplements? My doctor says that even though the receptors are damaged, having more GABA *could* increase the amount that successfully interacts with the receptors and could help me feel better.
I’m just not sure. I do believe that dealing with the GABA receptors is correct, I am just not sure if this is a wise approach. If the receptors are damaged and I flood my system with GABA I imagine that it could potentially backfire and make me feel worse? Could perhaps even damage them MORE? If receptors are damaged, is it truly wise to flood your system with GABA?
Does anyone have any experience/knowledge about GABA and GABA receprtors? To be honest, researching GABA has been overwhelming and I am finding myself very confused about the best approach to take. Any insight, or links to good articles/videos on the subject, would be so very appreciated.
The pharma drug he suggested was Neurontin (aka Gabapentin), which he said would definitely work to increase GABA (while a supplement may not). I told him I’d need to do a lot of research before taking it. Has anyone taken this drug?
Thanks all,
MJ
MJ
6 years ago
To Bob from up above – did you have any *benefit* from taking GABA or did it make no difference whatsoever? Do you / did you have clear nervous system issues?
Interested in anyone else’s comments on GABA / GABA receptors. I’m a little confused on the best approach to dealing with them. More GABA to flood into the damaged receptors in the hope that some will successfully interact? Or *less* GABA *because* the receptors are damaged and become problematic when receiving GABA?
Joanne.
6 years ago
Hi Dee,
The stomach issues were up and down throughout this whole ordeal. As far as diahrea I always had it because of the magnesium. Also, it took me a long time to realize when I’d get sleep problems along with flashing nightmares or ugly visions, it was my stomach! So when that would happen I would take a VSL in the morning and another before bed and it would start helping within 2 days.
As for fermented foods, I always drink keifer and occasionally eat the sauerkraut, but I never notice it helping like the VSL
Ronna, how far out are you in your recovery? Before I was floxed I was already dealing with leaky gut and IBS so getting floxed added another log onto the fire!! I mainly deal with diarrhea/loose stools in the morning. Let’s just say I need to be close to a bathroom for the first hour after waking up and sometimes even later in the day. I have gone gluten free and mostly dairy free. I do have 2-3 slices of raw cheese each day which may or may not help things but other then that I don’t do dairy. I recently did a gut cleanse and liver cleanse which did help me some. I haven’t gotten better to the point of feeling normal in the mornings but have improved from the first few months. When I was first floxed I had no appetite and lost 50 lbs. My bowels were all over the place. I have my appetite back and am pretty regular other then being really loose every morning. More detail probably then one would like to read!! What are your issues and what have you done so far? I started a couple of products to help your stomach heal. So will see where that goes? I have considered using Restore and colostrum but as of yet haven’t tried? I do take a daily probiotic. What is going on with you?
Antibiotics are bad news but sometimes necessary.
For what it’s worth here is a sales pitch for a natural formula that is supposed to be “so great” for neuropathy. I would say not as “inexpensive” as the sales pitch might want you to think. It may interest some of us floxies who must try to deal with peripheral neuraopathy. It should open because I emailed it to myself and clicking on it worked.
&site=synacor-centurylink1,synacor-centurylink1&title=Natural%20Method%20to%20Stop%20Nerve%20Pain,Natural%20Method%20to%20Stop%20Nerve%20Pain&campaign_id=1221277,1221277
Dee, it’s been 19 months for me, still no appetite. Taking 7.5 of remeron at night just to hold the weight I have. Stool is loose every morning like you and urgent. It is always yellow, gall bladder checks out ok. Getting some blurry vision now and getting scared, I eat very well, have tried every diet without improvement, now back to eating as before being floxed. I feel like giving up. Bad ear ringing and pressure in my head. It goes on and on. It’s relentless.
I know the Remeron can make things worse, but it has helped my weight. I lost 26 pounds and was only 116#to start. Went down to 88#, now 104, but I have to eat tons of food just to stay there. I’m 5’2”. This is my biggest challenge and the head pressure is relentless. I have been crying daily and can’t stop.19 months, not sure how much more I can take. I need to see some improvement soon. Looking for answers and tips.
Is it safe to have ozone therapy(without glutathione) if you are mercury toxic and still have amalgams in the mouth?
Also, does anybody use beta glucan for immune boost?
Thanks Daniela, when did you get your appetite back, how many months. Did it come back slowly or suddenly. Daily I wait for some sort of sign. Thanks for the advice. I do eat these things, but I will increase them.
Daniela, did you eat big meals or a lot of food each day to help gain weight?
What are the no foods? I want to be sure I’m not eating them. Thanks for the advice????
Don, Still trying to help the cat who got better on colloidal silver but still shakes its head and scratches a bit. Not really anything in its ears.
Maybe it’s allergies.
Reading about phage therapy. It’s non-antibiotic and tailored to each person’s bacterial problem. It has been developed at an institute in Georgia (the central asian republic)
Thanks, I live near a Costco, will try the sardines. Daniela, did your hunger come back suddenly or slowly, how did you know it was back? My stomach is starting to growl again, before no noise at all.
Thanks a lot, that is comforting to me. Did you also have head pressure? When does that pass or get better, anyone know?
Daniela how long have you been going through all this and how are you now?
Hi Everyone,
I posted back about a seaweed supplement that was really helping me, but it fizzled out just like all the others! I’ve taken supplements that help me so much for a while and then they either stop working or sometimes they start making me worse.
Today I started a new supplement, and as usual it’s helping me really Good, but I don’t know if it’s gonna fizzle out like all the rest!
Anyhow, I started drinking Essiac Tea.It’s known for curing cancer, but it also surprisingly helped other ailments that the patients had. For example diabetes, thyroid diseases, eczema ect. so I thought I’d give it a try, and I’ll post back to let you’s know how it’s going.
Here’s a couple sites if anyone’s interested. Also, watch the video it’s very interesting.
Rene Caisse & The History of Essiac Tea – Essiac Facts
http://essiacfacts.com/rene-caisse/
And here are some testimonies from people who have used it
tea.com/essiac-tea-testimonials.html#stage4esophagealcancer
Ronna, I responded to and earlier post to answer a comment of yours. See “older posts”. Dee
We put 2-3 drops of rubbing alcohol in the cat’s ears and the next morning the cat stopped scratching and was very active and alert. Kind of afraid to continue because it’s so strong, but it is a human remedy for swimmer’s ears. I suggested it to counteract water in the fake silver drops but the result was dramatic. (There was never any redness or discharge in the ear, just scratching and shaking.)
It’s so hard to trust doctors and but also so hard to trust products.
Hi all,
Short summary:
– Levaquin reaction in 2009
– Have made some improvements over the years, but nervous system still needs repair
– Current doctor is going down the “damaged GABA receptors” road, which is in line with the proven research out there and feels correct to me (or is at least PART of the problem)
– However, I am not sure if his approach is correct. He thinks it will help if I “flood” my system with GABA by way of supplementation and a pharma drug.
Has anyone tried increasing GABA by any method? Taking GABA supplements? My doctor says that even though the receptors are damaged, having more GABA *could* increase the amount that successfully interacts with the receptors and could help me feel better.
I’m just not sure. I do believe that dealing with the GABA receptors is correct, I am just not sure if this is a wise approach. If the receptors are damaged and I flood my system with GABA I imagine that it could potentially backfire and make me feel worse? Could perhaps even damage them MORE? If receptors are damaged, is it truly wise to flood your system with GABA?
Does anyone have any experience/knowledge about GABA and GABA receprtors? To be honest, researching GABA has been overwhelming and I am finding myself very confused about the best approach to take. Any insight, or links to good articles/videos on the subject, would be so very appreciated.
The pharma drug he suggested was Neurontin (aka Gabapentin), which he said would definitely work to increase GABA (while a supplement may not). I told him I’d need to do a lot of research before taking it. Has anyone taken this drug?
Thanks all,
MJ
To Bob from up above – did you have any *benefit* from taking GABA or did it make no difference whatsoever? Do you / did you have clear nervous system issues?
Interested in anyone else’s comments on GABA / GABA receptors. I’m a little confused on the best approach to dealing with them. More GABA to flood into the damaged receptors in the hope that some will successfully interact? Or *less* GABA *because* the receptors are damaged and become problematic when receiving GABA?
Hi Dee,
The stomach issues were up and down throughout this whole ordeal. As far as diahrea I always had it because of the magnesium. Also, it took me a long time to realize when I’d get sleep problems along with flashing nightmares or ugly visions, it was my stomach! So when that would happen I would take a VSL in the morning and another before bed and it would start helping within 2 days.
As for fermented foods, I always drink keifer and occasionally eat the sauerkraut, but I never notice it helping like the VSL