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Ronna
6 years ago
Has anyone ever taken a Sudafed for head congestion?
Ronna
6 years ago
Dee, I know everyone says we all have our own story, but your issues sound very similar to mine. I wake up at 5-530 am whether I want to or not. I have early morning GI issues also. It has been 19 months for me and I am just now noticing an improvement in my symptoms. It is slow, but encouraging. My weight is improving and GI issues sort of normalizing. I slept until 7:30 the other day, not sure why. I tried every diet and supplement. Nothing made a difference. I know that stress is a bad thing, I am able to work part time now, 2 days a week. Don reminded me that distraction can be your best friend. Keep going and doing things no matter how bad you feel. Being with people helps me a lot. I am 66 years old, retired, but went back to work to help my brain. I now see a Holistic Medical doctor which has made a world of difference for me. I am considering medical marijuana, wonder if that has helped anyone? Head pressure is my main issue now, searching for ways to relieve that. Any suggestions?
Ronna
6 years ago
Joanne, Are you still using the Omega-3 patch? I only see a child’s one on the internet, where do you get it?
Anna
6 years ago
I had ONE pill of Cipro, then read about the dangers, and immediately stopped taking it, then started Bactrim. A day after the one Cipro pill, all my bones/joints starting popping, knees were sore. Then day two I woke up with my eyeballs feeling tight, vision blurry, rubbed one eye and felt a tense tearing. Went to the ER and they said I did not have a torn retina, but more likely inflammation and tight tendons. Has anyone else here experienced tightness in eye tendons from this poison? Also, has anyone only taken ONE pill of this crap and how were you affected by that dosage? I am currently taking 750 mg of Mag Citrate & 2000IU Vit. D and I am feeling better today.
Dee, I took Levaquin several times during the last 7 years for pneumonia or sinuses, then they gave me Avelox with prednisone and that pushed over the edge. Never the same since. Mornings are always bad for me. The head pressure is the worst. GI improving after 19 months. Tinnitus still there most days. That was my first symptom. Had it years before I got real sick. I think I was slightly floxed for years and didn’t know it. I had bad insomnia one year before I got real sick. Dry mouth real bad still. I keep pushing myself to continue with life as normal, that’s the hardest part, My husband is not much help these days as he thinks I’m crazy, it’s so sad for me. I hope your life is better.
Don M
6 years ago
Lets talk about COLLOIDAL SILVER. Here’s a bit of history about Colloidal Silver. https://www.purestcolloids.com/history-silver.php
Colloidal Silver is an “anti-infective”. Call it an antibiotic if you like but it is a germ killer.
It has been around for a long, long time. The Brigham Young University tested it and found it to be effective against over 600 different pathogens. And pathogens can not acquire resistance to Colloidal Silver.
It can be used internally and externally.
It can be use to sterilize the kitchen counter, sterilize the clothes in your washing machine.
It can be used anywhere one wants to kill germs!!! Colloidal Silver will will not cure a floxed person but it can help in many ways.
I won’t expound any more. Just read the “A Brief History of The Health Support Uses of Silver” in the link above.
May I add one more thing. Argyria. It is something that shows up on many “negative to silver” web sites. Today Argyria only happens with a “GROSS” misuse of Colloidal Silver.
Ronna
6 years ago
Thanks so much Dee and all for the support, I’m going through a rough time now in my personal life due to all this sickness and symptoms. I will carry on the best I can do but it’s hard to mend a broken heart.
Danny
6 years ago
I recently went to a urologist.. the nurse took my medical history and ongoing symptoms. My primary dr wouldn’t refer me to a urologist for possible prostate cancer. I have ALL the symptoms, even most symptoms from the spreading. Anyways., Dr came in sat down and said most symptoms are common for prosthesis. He prescribes me 500 mg of Cipro. 2 times a day for 10 days and schedules me an appointment to have a scope enter my penis.. “look for blockage and/or swelling of prostate glands”… how the hell is he gonna prescribe me a high level antibiotic for something he doesn’t know I have?!! Shouldn’t he prescribe a lower effective antibiotic? He if gonna diagnose me with prosthesis then why the prostate exam for the cancer. He said himself he didn’t think it was cancer. …. I’ve been reading up all day… Dr’s will prescribe Cipro do to the fact it can cause “false” positive results.. resulting in “surgery “ …. I’m trying to get my medical records from 2011-2014… I was treated for Lyme disease and I’m positive they gave me Cipro! My body is falling apart.. knees hips ankles shoulders wrists fingers back neck elbows all are so very stiff and constantly going numb and tingling… last Dr blames it on the Lyme disease… well a new Dr came to Clinic … she says I don’t nor have I ever had Lyme!! I’m only 45 yrs old and was told last week… buy a comfy recliner cuz there’s nothing you can do
Joanne.
6 years ago
Hi Everyone,
I just wanted you all to know I had to quit using the Essiac Tea because it starting flaring me up, which I should of known that it would because it has bacteria killing power, and anything that kills bacteria always flares me up.
So, I think I’m gonna stop trying different supplements to try and get rid of my remaining symptoms and just do magnesium, but i’ll have to do probiotics
for a while to replace some of what the tea killed off.
I just wanted you all to know how it working or I should say not working.
Anna
6 years ago
Can anyone here weigh in on steroid drops in the eyes, after Cipro? I had one pill, and got blurry vision and eye swelling a few days later. I am still recovering, and the eye doctor suggested steroid drops. I’ve heard oral steroids or injections are a bad idea after Cipro, are steroid drops also dangerous?
Also, has anyone flown after Cipro? Are there any concerns about flying a 4 hour flight after? I can’t think of any reason why cabin pressure would agitate a Cipro reaction.
Thanks for any input —
Pauline
6 years ago
Has anyone ever taken any benzos? They are another group of drugs that should be banned.
Kyle
6 years ago
I’ve had on and off I guess it’s brain fog, my body feels pretty good after 4 months of being floxed, but my head seems to continue to be hazy and It’s hard to explain but I will call it brain fatigue. I felt this way about 4weeks after being floxed and it went away for a month or so came back and lasted for a 7 or 8 days and then went away, it has come back it’s been 7 days and still hasn’t lifted. I take fish oil, I was also taking an adrenal energizer supplement that doesn’t seem to be helping to much. Has anyone had similar symptoms? If so is there a supplement that helped?
someone called Terri Davenport Bragg who claims to be a vet is publishing false info about the fluoroquinolones aand NSAIDS on various forums. She calls the adverse comments re these drugs over sensationalised info etc.
Anna Owens
6 years ago
Hello,
I am a floxie survivor and post things on my Facebook page from time to time about the dangers of flouros. Today, a physician decided to post on my page that Flouros were indeed safe. He was very angry. I would like to know if anyone would like for me to tag them in a response to him. I think it would be helpful if he could have actual people as references who have been hurt. It might not change anything, but I am always fighting for change for this community. If we change one doctor’s perspective, maybe we save some people from having to go through this.
Don M
6 years ago
In the interest of trying to get the word out about the “sometimes” devastating after effects of Fluoroquinolones I have put my trusty printer to work and made up a business sized card titled “Fluoroquinolone Toxicity Syndrome”. Card front…………………
Fluoriquinolone Toxicity Syndrome
What is it?
Being poisoned by the Antibiotics
Cipro, Levaquin, Avelox, Ofloxacin and others of the same antibiotic family
I plan to hand them out to anyone who may be interested in avoiding being floxed.
Think about it. Maybe you might want to do the same thing.
I don’t know if this will post as I type it, but the message is still there.
I wasn’t sure if I should post my story or not, but since I found this site invaluable, I think I should. I hope you don’t mind me just jumping in and posting my story.
I took 38 ciprofloxacin tablets of the 60 I got from the doctor for a suspected UTI/prostatitis in April 2016.
A few days into the course I got pains in my heels. I didn’t link it to the antibiotics, I thought I needed to buy new shoes.
My doctor said it was ok to take ibuprofen for my pains, so I was taking 4 a day alongside the antibiotics. As the days went by, things started to get worse, I couldn’t walk properly. I started getting stabbing pains all over my body and I had my first ever panic/anxiety attack. Then organ pain. I couldn’t eat or drink water without getting stomach pain. I couldn’t breathe properly, I couldn’t cough properly. Arthritis like pain in knees and wrists. My heart rate went from 69bpm to 98bpm at rest. I was dizzy all the time. I felt nervous. I couldn’t tell if I was hot or cold. I woke up many times completely numb from the waist down. My arms, legs, feet and toes tingled. I would wake up with lock-jaw. My teeth would hurt, I needed 4 root treatments in one week because of exteme grinding. I got migranes and extreme head pressure. My finger and toe nails went ridged, brittle and dry. My head and leg hair started to fall out. The snot in my nose changed colour. My mucous membranes were dry. My eyesight got worse, I needed spectacles and eye drops every night. I couldn’t talk properly – it was difficult to put a sentence together without stuttering or using the wrong words. I couldn’t remember things. Couldn’t sleep then nightmares when I did. I had diarrhea one day then constipated for days. I couldn’t drink coffee or smoke a cigarette without taking a full blown panic attack. I stopped sweating completely. I would cry and shake. I was frightened to have a shower. I lost 2 stone, mostly muscle. I’ve aged 10 years, My skin looked 10 years older. Many times I thought I was having a stroke or a heart attack. I couldn’t function. Death seemed like a good option. I planned to jump of the forth road bridge, I even started to write suicide notes for my loved ones.
I found floxiehope but I would take panic attacks reading the stories (That’s hard for me to believe now). I stopped the cipro on day 19.
The first things I bought was magnesium bath salts, oil and tablets and probiotics. I went on to buy thousands of pounds worth of supplements over the months in a desperate attempt to heal myself. I paid for endoscopies, cystoscopies, MRI scans, ECGs, kidney scans, (couldn’t wait for NHS appointments) I wasted a lot of money! I’ve spent all of my savings. I noticed some supplements would help a tiny little bit so I started to stick to things that worked for me. And slowly, very slowly I started to stabilize. It took me a year and a half to feel a bit better but I would relapse over and over again. I was frightened to say ‘I am feeling better’ because the next day I would feel ill again. Then almost 2 years after my first dose of cipro (April 2018), I woke up one morning feeling good and thought ‘I do feel better’, I even said it out loud. It was weird, because over three consecutive days I became myself again. My mind was back to how it was before cipro. On the third day I was feeling completely normal. I was me again.
What a journey this has been. A fkn nightmare. It was like being trapped in a nightmare unable to wake up. Of course, no one including the doctors could understand what I’ve been through (except you guys). But I’ve learnt a lot and I would even say that my life is better now. I no longer smoke or drink alcohol. I’m fussy when choosing what to eat or drink. I can make kefir milk and kefir water! I’ve made kombucha, sauerkraut and fermented vegetables. I know about probiotics and antibiotics. I feel a bit like my own personal health guru.
Anyway, I know what you’re all going through. It took me 2 years to recover. That suspected UTI/prostatitis that my doctor gave me cipro for turned out to be a massive bladder diverticulum. I had a laparoscopic bladder diverticulectomy and bladder neck incision last week. I should never have been given cipro, because I never had an infection in the first place.
Also after ciprofloxacin I had a bad reaction to nitrofurantoin but I’ve had no issue with trimethoprim or fosfomycin (I needed a urinary catheter for a few months which led to infections). I had no reaction to the injections at the dentist or anesthesia at the hospital. I avoid pharmaceutical drugs and I rarely take pain killers of any sort. I used ice packs and hot water bottles for pain relief.
So now I have to build my body back up. I’m only 9 and half stone (used to be 11 and a half) and 6ft tall. I’m skinny and a frail looking man but I can work on that.
*A big thank you to Lisa and everyone on this site, the stories and posts helped me a lot.*
Has anyone ever taken a Sudafed for head congestion?
Dee, I know everyone says we all have our own story, but your issues sound very similar to mine. I wake up at 5-530 am whether I want to or not. I have early morning GI issues also. It has been 19 months for me and I am just now noticing an improvement in my symptoms. It is slow, but encouraging. My weight is improving and GI issues sort of normalizing. I slept until 7:30 the other day, not sure why. I tried every diet and supplement. Nothing made a difference. I know that stress is a bad thing, I am able to work part time now, 2 days a week. Don reminded me that distraction can be your best friend. Keep going and doing things no matter how bad you feel. Being with people helps me a lot. I am 66 years old, retired, but went back to work to help my brain. I now see a Holistic Medical doctor which has made a world of difference for me. I am considering medical marijuana, wonder if that has helped anyone? Head pressure is my main issue now, searching for ways to relieve that. Any suggestions?
Joanne, Are you still using the Omega-3 patch? I only see a child’s one on the internet, where do you get it?
I had ONE pill of Cipro, then read about the dangers, and immediately stopped taking it, then started Bactrim. A day after the one Cipro pill, all my bones/joints starting popping, knees were sore. Then day two I woke up with my eyeballs feeling tight, vision blurry, rubbed one eye and felt a tense tearing. Went to the ER and they said I did not have a torn retina, but more likely inflammation and tight tendons. Has anyone else here experienced tightness in eye tendons from this poison? Also, has anyone only taken ONE pill of this crap and how were you affected by that dosage? I am currently taking 750 mg of Mag Citrate & 2000IU Vit. D and I am feeling better today.
nice
Dee, I took Levaquin several times during the last 7 years for pneumonia or sinuses, then they gave me Avelox with prednisone and that pushed over the edge. Never the same since. Mornings are always bad for me. The head pressure is the worst. GI improving after 19 months. Tinnitus still there most days. That was my first symptom. Had it years before I got real sick. I think I was slightly floxed for years and didn’t know it. I had bad insomnia one year before I got real sick. Dry mouth real bad still. I keep pushing myself to continue with life as normal, that’s the hardest part, My husband is not much help these days as he thinks I’m crazy, it’s so sad for me. I hope your life is better.
Lets talk about COLLOIDAL SILVER. Here’s a bit of history about Colloidal Silver.
https://www.purestcolloids.com/history-silver.php
Colloidal Silver is an “anti-infective”. Call it an antibiotic if you like but it is a germ killer.
It has been around for a long, long time. The Brigham Young University tested it and found it to be effective against over 600 different pathogens. And pathogens can not acquire resistance to Colloidal Silver.
It can be used internally and externally.
It can be use to sterilize the kitchen counter, sterilize the clothes in your washing machine.
It can be used anywhere one wants to kill germs!!! Colloidal Silver will will not cure a floxed person but it can help in many ways.
I won’t expound any more. Just read the “A Brief History of The Health Support Uses of Silver” in the link above.
May I add one more thing. Argyria. It is something that shows up on many “negative to silver” web sites. Today Argyria only happens with a “GROSS” misuse of Colloidal Silver.
Thanks so much Dee and all for the support, I’m going through a rough time now in my personal life due to all this sickness and symptoms. I will carry on the best I can do but it’s hard to mend a broken heart.
I recently went to a urologist.. the nurse took my medical history and ongoing symptoms. My primary dr wouldn’t refer me to a urologist for possible prostate cancer. I have ALL the symptoms, even most symptoms from the spreading. Anyways., Dr came in sat down and said most symptoms are common for prosthesis. He prescribes me 500 mg of Cipro. 2 times a day for 10 days and schedules me an appointment to have a scope enter my penis.. “look for blockage and/or swelling of prostate glands”… how the hell is he gonna prescribe me a high level antibiotic for something he doesn’t know I have?!! Shouldn’t he prescribe a lower effective antibiotic? He if gonna diagnose me with prosthesis then why the prostate exam for the cancer. He said himself he didn’t think it was cancer. …. I’ve been reading up all day… Dr’s will prescribe Cipro do to the fact it can cause “false” positive results.. resulting in “surgery “ …. I’m trying to get my medical records from 2011-2014… I was treated for Lyme disease and I’m positive they gave me Cipro! My body is falling apart.. knees hips ankles shoulders wrists fingers back neck elbows all are so very stiff and constantly going numb and tingling… last Dr blames it on the Lyme disease… well a new Dr came to Clinic … she says I don’t nor have I ever had Lyme!! I’m only 45 yrs old and was told last week… buy a comfy recliner cuz there’s nothing you can do
Hi Everyone,
I just wanted you all to know I had to quit using the Essiac Tea because it starting flaring me up, which I should of known that it would because it has bacteria killing power, and anything that kills bacteria always flares me up.
So, I think I’m gonna stop trying different supplements to try and get rid of my remaining symptoms and just do magnesium, but i’ll have to do probiotics
for a while to replace some of what the tea killed off.
I just wanted you all to know how it working or I should say not working.
Can anyone here weigh in on steroid drops in the eyes, after Cipro? I had one pill, and got blurry vision and eye swelling a few days later. I am still recovering, and the eye doctor suggested steroid drops. I’ve heard oral steroids or injections are a bad idea after Cipro, are steroid drops also dangerous?
Also, has anyone flown after Cipro? Are there any concerns about flying a 4 hour flight after? I can’t think of any reason why cabin pressure would agitate a Cipro reaction.
Thanks for any input —
Has anyone ever taken any benzos? They are another group of drugs that should be banned.
I’ve had on and off I guess it’s brain fog, my body feels pretty good after 4 months of being floxed, but my head seems to continue to be hazy and It’s hard to explain but I will call it brain fatigue. I felt this way about 4weeks after being floxed and it went away for a month or so came back and lasted for a 7 or 8 days and then went away, it has come back it’s been 7 days and still hasn’t lifted. I take fish oil, I was also taking an adrenal energizer supplement that doesn’t seem to be helping to much. Has anyone had similar symptoms? If so is there a supplement that helped?
http://www.dailymail.co.uk/health/article-5983853/Why-doctors-doling-antibiotics-left-thousands-crippling-pain.html
https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12073483
https://www.medscape.com/viewarticle/898636
https://www.aafp.org/news/health-of-the-public/20180712fluoroquinolones.html
someone called Terri Davenport Bragg who claims to be a vet is publishing false info about the fluoroquinolones aand NSAIDS on various forums. She calls the adverse comments re these drugs over sensationalised info etc.
Hello,
I am a floxie survivor and post things on my Facebook page from time to time about the dangers of flouros. Today, a physician decided to post on my page that Flouros were indeed safe. He was very angry. I would like to know if anyone would like for me to tag them in a response to him. I think it would be helpful if he could have actual people as references who have been hurt. It might not change anything, but I am always fighting for change for this community. If we change one doctor’s perspective, maybe we save some people from having to go through this.
In the interest of trying to get the word out about the “sometimes” devastating after effects of Fluoroquinolones I have put my trusty printer to work and made up a business sized card titled “Fluoroquinolone Toxicity Syndrome”. Card front…………………
Fluoriquinolone Toxicity Syndrome
What is it?
Being poisoned by the Antibiotics
Cipro, Levaquin, Avelox, Ofloxacin and others of the same antibiotic family
Card back ………………… References to web sites about Fluoroquinolone toxicity. https://fqwallofpain.com/
https://fqresearch.org/
https://floxiehope.com/
http://www.slweb.org/ftrcfluoroquinolone.html
http://www.myquinstory.info/
I plan to hand them out to anyone who may be interested in avoiding being floxed.
Think about it. Maybe you might want to do the same thing.
I don’t know if this will post as I type it, but the message is still there.
https://www.scribd.com/doc/164400341/The-Complete-Ashton-Manual-Works-PDF
Hi
I wasn’t sure if I should post my story or not, but since I found this site invaluable, I think I should. I hope you don’t mind me just jumping in and posting my story.
I took 38 ciprofloxacin tablets of the 60 I got from the doctor for a suspected UTI/prostatitis in April 2016.
A few days into the course I got pains in my heels. I didn’t link it to the antibiotics, I thought I needed to buy new shoes.
My doctor said it was ok to take ibuprofen for my pains, so I was taking 4 a day alongside the antibiotics. As the days went by, things started to get worse, I couldn’t walk properly. I started getting stabbing pains all over my body and I had my first ever panic/anxiety attack. Then organ pain. I couldn’t eat or drink water without getting stomach pain. I couldn’t breathe properly, I couldn’t cough properly. Arthritis like pain in knees and wrists. My heart rate went from 69bpm to 98bpm at rest. I was dizzy all the time. I felt nervous. I couldn’t tell if I was hot or cold. I woke up many times completely numb from the waist down. My arms, legs, feet and toes tingled. I would wake up with lock-jaw. My teeth would hurt, I needed 4 root treatments in one week because of exteme grinding. I got migranes and extreme head pressure. My finger and toe nails went ridged, brittle and dry. My head and leg hair started to fall out. The snot in my nose changed colour. My mucous membranes were dry. My eyesight got worse, I needed spectacles and eye drops every night. I couldn’t talk properly – it was difficult to put a sentence together without stuttering or using the wrong words. I couldn’t remember things. Couldn’t sleep then nightmares when I did. I had diarrhea one day then constipated for days. I couldn’t drink coffee or smoke a cigarette without taking a full blown panic attack. I stopped sweating completely. I would cry and shake. I was frightened to have a shower. I lost 2 stone, mostly muscle. I’ve aged 10 years, My skin looked 10 years older. Many times I thought I was having a stroke or a heart attack. I couldn’t function. Death seemed like a good option. I planned to jump of the forth road bridge, I even started to write suicide notes for my loved ones.
I found floxiehope but I would take panic attacks reading the stories (That’s hard for me to believe now). I stopped the cipro on day 19.
The first things I bought was magnesium bath salts, oil and tablets and probiotics. I went on to buy thousands of pounds worth of supplements over the months in a desperate attempt to heal myself. I paid for endoscopies, cystoscopies, MRI scans, ECGs, kidney scans, (couldn’t wait for NHS appointments) I wasted a lot of money! I’ve spent all of my savings. I noticed some supplements would help a tiny little bit so I started to stick to things that worked for me. And slowly, very slowly I started to stabilize. It took me a year and a half to feel a bit better but I would relapse over and over again. I was frightened to say ‘I am feeling better’ because the next day I would feel ill again. Then almost 2 years after my first dose of cipro (April 2018), I woke up one morning feeling good and thought ‘I do feel better’, I even said it out loud. It was weird, because over three consecutive days I became myself again. My mind was back to how it was before cipro. On the third day I was feeling completely normal. I was me again.
What a journey this has been. A fkn nightmare. It was like being trapped in a nightmare unable to wake up. Of course, no one including the doctors could understand what I’ve been through (except you guys). But I’ve learnt a lot and I would even say that my life is better now. I no longer smoke or drink alcohol. I’m fussy when choosing what to eat or drink. I can make kefir milk and kefir water! I’ve made kombucha, sauerkraut and fermented vegetables. I know about probiotics and antibiotics. I feel a bit like my own personal health guru.
Anyway, I know what you’re all going through. It took me 2 years to recover. That suspected UTI/prostatitis that my doctor gave me cipro for turned out to be a massive bladder diverticulum. I had a laparoscopic bladder diverticulectomy and bladder neck incision last week. I should never have been given cipro, because I never had an infection in the first place.
Also after ciprofloxacin I had a bad reaction to nitrofurantoin but I’ve had no issue with trimethoprim or fosfomycin (I needed a urinary catheter for a few months which led to infections). I had no reaction to the injections at the dentist or anesthesia at the hospital. I avoid pharmaceutical drugs and I rarely take pain killers of any sort. I used ice packs and hot water bottles for pain relief.
So now I have to build my body back up. I’m only 9 and half stone (used to be 11 and a half) and 6ft tall. I’m skinny and a frail looking man but I can work on that.
*A big thank you to Lisa and everyone on this site, the stories and posts helped me a lot.*
neildpauline703@gmail.com