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Melissa, how are you doing on your new antibiotics? I hope your floxie symptoms are getting better and your infections!!! Thinking about you and wishing you well in all ways soon!!!
L
6 years ago
Hey everyone. Since none of us really knows the extent of damage of these toxins, I just wanted to throw a question out there (and LISA, perhaps you have some insight.) Sadly, my area is again being devastated by wildfires, and we just had a mass shooting at a nightclub near here…which brings me to my question. Has anyone donated blood post-floxing? Any thoughts on that?
Frank B
6 years ago
Hey all! Long time no post.Haven’t forgotten about you guys.I don’t want to jinx myself but I think I can say that I’ve finally normalized.I am far from symptom free but life is much better now.
At the moment I’ve been dealing with low Testosterone,Thyroid and strangely low Iron?
I’m male and eat meat so who knows? If any of you are new I signed up here a few years back in a suicidal state,and I found some great support,and I will always be greatful to Lisa and everyone who reached out.It has been nearly six years since my second Floxing or rather relapse brought on by a Sulfa drug,and I just have to say,”DON’T GIVE UP!”
Time is the best supplement for this disease so hang in there.
A.Coleman
6 years ago
Hey gang. Wanting to know how many of you developed high blood pressure as a result of floxing? I am three years out. Until about six months ago my BP was around 125 over 85 so not perfect but pretty good. And this was two plus years after floxing. Fast forward to today. In the last six months my BP has sky rocketed to 150 over 100. What is even crazier is that a month ago it was 148 over 88. Now I am faced with going on BP meds. Pulse is only 60.
My question is this FQ Related or something else? I am C677T MTHFR heterozygote but my homocysteine was good last time It was checked. BTW I am about two months into the second worse relapse I have had.
Are there any BP Meds I should avoid or consider? I have an appointment with my integrative medicine doc, who believes I was floxed, in a month but I think maybe I should see a regular doctor before then and let my integrative doc make adjustments.
A Coleman, sorry don’t know your first name? Sorry you had this blood pressure relapse. Is it possible it isn’t related to being floxed since everything else is actually still improving or minor?? Is your blood pressure the only symptom acting up?? May I ask how much FQ you were floxed with and how long did it take until you felt mostly recovered before this blood pressure spike?? I hope this “relapse” is short lived and that you can write your recovery store real soon!! The fact that you are still experiencing improvement with your digestion and nerves is promising and hopeful for you!! I am 17 months out and made a lot of improvement but still experiencing digestion issues which is mostly morning urgency and diarrhea then I do pretty well until the next morning!! Argh!! I also am still battling with some insomnia although much better and the ongoing buzzing tinnitus which bothers me the most going to sleep and waking up. Anyway I sure keep praying got for continued improvement and hopefully full recovery “I hope”!!! I guess a lot of floxies take at least a couple of years to really feel better which is why I asked how long you took. Also what you did for your digestive issues??
A Coleman. Thank you for your response. I am glad you are starting to respond a little to the ReMag. That is a good sign and hopefully replenishing your mag will slowly return you to normal again. I know Ruth will read your comment and will get back to you about her BP experience. She doesn’t get a chance to write back until she had a break from her work schedule or weekend but she usually will get back to you. Hopefully she will have some insight for your situation! I take the liquid Angstrom Mag and have had luck with that. I don’t think I even absorb pills with having leaky gut although I take quite a few pill supplements and hope something is getting absorbed!! What did you do to heal your digestion?? Did you take anything to help it heal?? Did you take anything for your pherphial neuropathy. I still get numb toes and tingling in my lower legs which is worse at night time and waking up. When I move around during the day it isn’t as bad? How long before your neuropathy let up for you? How much FQ did you take initially to get floxed? I hope with continued mag that your symptoms will begin to let up for you.
Darko Pet
6 years ago
Hi guys, I am currently recovering from ciprofloxacin damage. Was flocked 6 weeks ago and mainly struggling with muscle twitching and fatigue, legs feel like jelly.
Does anyone have an idea as to how long it takes for twitching to stop?
Many thanks
Darko Pet
6 years ago
Thank you so much for responding. The twitching improved for a while and then in the last two days it has become continuous, mainly leg muscles. I am taking many supplements including magnesium but I just can’t see any improvement. How long did it take for you to see improvement?
Thank you again
Andrea
5 years ago
Hey guys,
I haven’t posted anything for a long time. I’ve been doing quite good lately ( for floxie standars). I can eat pretty much what I want now. I havent’ dare to drink coffee or anything with caffeine of course, but besides some on and off low energy issues, and of course the burning pain especially in the lower legs area, when I walk “too much”, I can say I feel quite good. The huge problem is still the bladder. It’s an almost constant pressure in the pelvic area and I urinate many times during the day with a really weak urine flow. Since I’ve heard that many of us develop these symptoms, has anyone tried something that helps in this regard.
To Henk : I’ve decided that for this Christmas I’m going to buy myself a sota pulser and try it for my bladder issues. I’ve read some interesting studies about magnetic therapy and pelvic pain syndrome. Who knows…maybe it’ll be a waste of money, but it is still better than surgey.
Andrea
5 years ago
Oh and another thing.
Since I was considering that I was prescribed a FQ for no reason, or to say it in medical term “as prevention” ( I still like to know what he was trying to prevent, since he said there was no infection) I’d like to know, from anyone of you, if you don’t mind of course, what was the reason of your prescription in the first place. I know many of us were poisoned by this s**t, like me, for no reason, but since almost every doctor at the EMA hearing said that these drugs are never used as prevention or as a first choice, I’d like to know the actual truth. It’s just a thing I was thinking about lately.
Thanks everyone.
Henk, thanks for that article. It definetly makes you think twice about taking it!! So confusing to know what may help and what may do harm?? Hard to work your way through this maze!!!
Andrea
5 years ago
Henk, I’m answering you here. Thnaks a lot for the link.
Andrea, how long ago were you floxed? I’m very happy to hear that you are feeling much better!! I know you have your bladder issue still bothering you but it is a positive that your other symptoms are really starting to improve!! I think in more time your bladder issues will also lessen!
Andrea, thanks for your response. I don’t know if any of us are truly ever the same after being floxed but in many stories I’ve read that people feel mostly better and some even better then pre flox so let’s not give up hope for feeling at least close to fully recovered! You mentioned that you had bladder issues before getting floxed so I’m sure that is s weak point for you and just may take longer to recover and bounce back. I know my GI system was a mess before getting floxed and that is taking a long time to heal too compared to my other symptoms but I hold out hope it will get better. I think you will run again and if you have to start with 5 min of jogging at a time and build up that’s ok! Just keep at it and don’t give up. I think we have to jump start ourselves again and send a message to our body what we want from it! May I ask how much FQ you took to get floxed? Also I don’t know how old you are but I am 62 and I have already come to terms with the fact that it may take me longer to heal then a younger person but I try to keep believing I will still get there in the end!!! Look how much better you are 2 years later! You ARE moving forward!!
Andrea, if you don’t mind me asking how much FQ did you take? Were your first two years of recovery really hard or did you improve pretty quickly?
Andrea
5 years ago
As I wrote in the previous post, it all started with a tingling/burning sensation in the left achilles tendon. It went on like this for the first 2 weeks. Then the pain moved to the other ankle too. It expanded to both my shins and basically to all the lower legs area. It was not steady. I remember during the night, before getting to sleep was the worst. It went on like this for 5-6 months. Then all the symptoms really hit me . I don’t know if it was the extremely hot weather, or the stress I was experiencing during that time, or both, but it was just scary.
I was always extremely tired and dizzy. Light headed. All the bones in my legs hurt so much. I was experiencing shortness of breath, even if I was sitting. My bladder issues fleared up. I was urinating like 10-12 times a day. Sometimes even more than that. I was so desperate. It was a non stop hell of pain. At that time I was still drinking coffee. As I stopped, I realized how bad it was for me. As a matter of fact, I’ve only had one coffee in almost 2 years, and it immediately gave me a light relapse that lasted for almost 2 days, but it was enough to make me feel all those terryfing symptoms again. Anyway, I started to get a little better by the end of august or the beginning of september. But that summer was the worst time of my life.
One of the most irritating thing about being floxed, at least in my case, is that, apparently, I look normal, healhty. So, many friends and people in general tend not to belive me, when I say to them that I’m ill, or sick.
So they always stress that I don’t smile enough, and start to say dumb stuff like : “ehy you should smile a little, why are you so serious”. And inside me, I’m like : “F**k you, mot*******er! I’d like to see how’d you feel, if you were walking in my shoes right now!”. Yeah, being grumpy is defently another FQ side effect. They shuld add this in the list of “rare side effects” on the label.
Andrea, you are young and took a fairly low dose of FQs. I know your bladder may take longer but I really believe yij will get there in due time! Hang in there and keep the faith!! You have a lot in your favor with your good health previous to floxing, your youth and the fact that you have made good improvement in the last two years. I think you will keep improving and healing. Keep believing!!
Andrea, in June of 17 I got a UTI and I took a full round of Bactrum that did not get rid of it so Doc put me on 2×500 mg a day of Cipro for 10 days. After taking 7 pills (3 and a half days) I started getting neuropathy in my lower legs pins and needles along with numbness. I also just felt real strange and “off”. I stopped taking the meds. I then took 2 pills of a new antibiotic “macrobid” and my neuropathy went through the roof so that just added to the problem. From there my symptoms got way worse for the next 6-7 months with many issues. Brain fog, dizzy, headaches and head pressure,horrible insomnia, anxiety, severe tinnuitis, GI issues, achy sore joints and muscles,blurry eyes, dry eye and dry mouth, itchy rash on back, 50lb weight loss, fatigue. I was depressed, worried and anxious and felt like a walking zombie! Now a year in a half later I have improved a lot but still dealing with some GI issues, mild anxiety, pulsating tinnitus and waking up early. I keep praying and hoping that by the 2 year mark I am mostly better and especially this damn tinnitus is a lot more quiet or even better gone!! As I said I am older being 62 so I figure it will take me longer but I’m trying to think positive since I have made a lot of improvement. I think healing and recovery takes a lot of time so we have to be patient! Easy to say hard to do! Do you feel mostly recovered other then your bladder issues?
Andrea. I understand your view on life now as being floxed definetly changed you and traumatizes you but don’t give up on seeing more improvement and healing. You can still keep healing and I believe you will. Have you tried ozone IVs? I have read about a few floxies having luck with those especially for the neuropathy. I also read a study that ozone helps flush stick FQ out of the cells and tissues. Just throwing that out there. I’m not sure what you have already tried?? Just don’t give up on getting better!!
Melissa, how are you doing on your new antibiotics? I hope your floxie symptoms are getting better and your infections!!! Thinking about you and wishing you well in all ways soon!!!
Hey everyone. Since none of us really knows the extent of damage of these toxins, I just wanted to throw a question out there (and LISA, perhaps you have some insight.) Sadly, my area is again being devastated by wildfires, and we just had a mass shooting at a nightclub near here…which brings me to my question. Has anyone donated blood post-floxing? Any thoughts on that?
Hey all! Long time no post.Haven’t forgotten about you guys.I don’t want to jinx myself but I think I can say that I’ve finally normalized.I am far from symptom free but life is much better now.
At the moment I’ve been dealing with low Testosterone,Thyroid and strangely low Iron?
I’m male and eat meat so who knows? If any of you are new I signed up here a few years back in a suicidal state,and I found some great support,and I will always be greatful to Lisa and everyone who reached out.It has been nearly six years since my second Floxing or rather relapse brought on by a Sulfa drug,and I just have to say,”DON’T GIVE UP!”
Time is the best supplement for this disease so hang in there.
Hey gang. Wanting to know how many of you developed high blood pressure as a result of floxing? I am three years out. Until about six months ago my BP was around 125 over 85 so not perfect but pretty good. And this was two plus years after floxing. Fast forward to today. In the last six months my BP has sky rocketed to 150 over 100. What is even crazier is that a month ago it was 148 over 88. Now I am faced with going on BP meds. Pulse is only 60.
My question is this FQ Related or something else? I am C677T MTHFR heterozygote but my homocysteine was good last time It was checked. BTW I am about two months into the second worse relapse I have had.
Are there any BP Meds I should avoid or consider? I have an appointment with my integrative medicine doc, who believes I was floxed, in a month but I think maybe I should see a regular doctor before then and let my integrative doc make adjustments.
Feedback very much appreciated.
A Coleman, sorry don’t know your first name? Sorry you had this blood pressure relapse. Is it possible it isn’t related to being floxed since everything else is actually still improving or minor?? Is your blood pressure the only symptom acting up?? May I ask how much FQ you were floxed with and how long did it take until you felt mostly recovered before this blood pressure spike?? I hope this “relapse” is short lived and that you can write your recovery store real soon!! The fact that you are still experiencing improvement with your digestion and nerves is promising and hopeful for you!! I am 17 months out and made a lot of improvement but still experiencing digestion issues which is mostly morning urgency and diarrhea then I do pretty well until the next morning!! Argh!! I also am still battling with some insomnia although much better and the ongoing buzzing tinnitus which bothers me the most going to sleep and waking up. Anyway I sure keep praying got for continued improvement and hopefully full recovery “I hope”!!! I guess a lot of floxies take at least a couple of years to really feel better which is why I asked how long you took. Also what you did for your digestive issues??
A Coleman. Thank you for your response. I am glad you are starting to respond a little to the ReMag. That is a good sign and hopefully replenishing your mag will slowly return you to normal again. I know Ruth will read your comment and will get back to you about her BP experience. She doesn’t get a chance to write back until she had a break from her work schedule or weekend but she usually will get back to you. Hopefully she will have some insight for your situation! I take the liquid Angstrom Mag and have had luck with that. I don’t think I even absorb pills with having leaky gut although I take quite a few pill supplements and hope something is getting absorbed!! What did you do to heal your digestion?? Did you take anything to help it heal?? Did you take anything for your pherphial neuropathy. I still get numb toes and tingling in my lower legs which is worse at night time and waking up. When I move around during the day it isn’t as bad? How long before your neuropathy let up for you? How much FQ did you take initially to get floxed? I hope with continued mag that your symptoms will begin to let up for you.
Hi guys, I am currently recovering from ciprofloxacin damage. Was flocked 6 weeks ago and mainly struggling with muscle twitching and fatigue, legs feel like jelly.
Does anyone have an idea as to how long it takes for twitching to stop?
Many thanks
Thank you so much for responding. The twitching improved for a while and then in the last two days it has become continuous, mainly leg muscles. I am taking many supplements including magnesium but I just can’t see any improvement. How long did it take for you to see improvement?
Thank you again
Hey guys,
I haven’t posted anything for a long time. I’ve been doing quite good lately ( for floxie standars). I can eat pretty much what I want now. I havent’ dare to drink coffee or anything with caffeine of course, but besides some on and off low energy issues, and of course the burning pain especially in the lower legs area, when I walk “too much”, I can say I feel quite good. The huge problem is still the bladder. It’s an almost constant pressure in the pelvic area and I urinate many times during the day with a really weak urine flow. Since I’ve heard that many of us develop these symptoms, has anyone tried something that helps in this regard.
To Henk : I’ve decided that for this Christmas I’m going to buy myself a sota pulser and try it for my bladder issues. I’ve read some interesting studies about magnetic therapy and pelvic pain syndrome. Who knows…maybe it’ll be a waste of money, but it is still better than surgey.
Oh and another thing.
Since I was considering that I was prescribed a FQ for no reason, or to say it in medical term “as prevention” ( I still like to know what he was trying to prevent, since he said there was no infection) I’d like to know, from anyone of you, if you don’t mind of course, what was the reason of your prescription in the first place. I know many of us were poisoned by this s**t, like me, for no reason, but since almost every doctor at the EMA hearing said that these drugs are never used as prevention or as a first choice, I’d like to know the actual truth. It’s just a thing I was thinking about lately.
Thanks everyone.
Joanne, what brand of Wobenzyme do you use?? How long have you been taking it and how much? Do you really feel a difference?
Henk, thanks for that article. It definetly makes you think twice about taking it!! So confusing to know what may help and what may do harm?? Hard to work your way through this maze!!!
Henk, I’m answering you here. Thnaks a lot for the link.
Andrea, how long ago were you floxed? I’m very happy to hear that you are feeling much better!! I know you have your bladder issue still bothering you but it is a positive that your other symptoms are really starting to improve!! I think in more time your bladder issues will also lessen!
Andrea, thanks for your response. I don’t know if any of us are truly ever the same after being floxed but in many stories I’ve read that people feel mostly better and some even better then pre flox so let’s not give up hope for feeling at least close to fully recovered! You mentioned that you had bladder issues before getting floxed so I’m sure that is s weak point for you and just may take longer to recover and bounce back. I know my GI system was a mess before getting floxed and that is taking a long time to heal too compared to my other symptoms but I hold out hope it will get better. I think you will run again and if you have to start with 5 min of jogging at a time and build up that’s ok! Just keep at it and don’t give up. I think we have to jump start ourselves again and send a message to our body what we want from it! May I ask how much FQ you took to get floxed? Also I don’t know how old you are but I am 62 and I have already come to terms with the fact that it may take me longer to heal then a younger person but I try to keep believing I will still get there in the end!!! Look how much better you are 2 years later! You ARE moving forward!!
Andrea, if you don’t mind me asking how much FQ did you take? Were your first two years of recovery really hard or did you improve pretty quickly?
As I wrote in the previous post, it all started with a tingling/burning sensation in the left achilles tendon. It went on like this for the first 2 weeks. Then the pain moved to the other ankle too. It expanded to both my shins and basically to all the lower legs area. It was not steady. I remember during the night, before getting to sleep was the worst. It went on like this for 5-6 months. Then all the symptoms really hit me . I don’t know if it was the extremely hot weather, or the stress I was experiencing during that time, or both, but it was just scary.
I was always extremely tired and dizzy. Light headed. All the bones in my legs hurt so much. I was experiencing shortness of breath, even if I was sitting. My bladder issues fleared up. I was urinating like 10-12 times a day. Sometimes even more than that. I was so desperate. It was a non stop hell of pain. At that time I was still drinking coffee. As I stopped, I realized how bad it was for me. As a matter of fact, I’ve only had one coffee in almost 2 years, and it immediately gave me a light relapse that lasted for almost 2 days, but it was enough to make me feel all those terryfing symptoms again. Anyway, I started to get a little better by the end of august or the beginning of september. But that summer was the worst time of my life.
One of the most irritating thing about being floxed, at least in my case, is that, apparently, I look normal, healhty. So, many friends and people in general tend not to belive me, when I say to them that I’m ill, or sick.
So they always stress that I don’t smile enough, and start to say dumb stuff like : “ehy you should smile a little, why are you so serious”. And inside me, I’m like : “F**k you, mot*******er! I’d like to see how’d you feel, if you were walking in my shoes right now!”. Yeah, being grumpy is defently another FQ side effect. They shuld add this in the list of “rare side effects” on the label.
Andrea, you are young and took a fairly low dose of FQs. I know your bladder may take longer but I really believe yij will get there in due time! Hang in there and keep the faith!! You have a lot in your favor with your good health previous to floxing, your youth and the fact that you have made good improvement in the last two years. I think you will keep improving and healing. Keep believing!!
Andrea, in June of 17 I got a UTI and I took a full round of Bactrum that did not get rid of it so Doc put me on 2×500 mg a day of Cipro for 10 days. After taking 7 pills (3 and a half days) I started getting neuropathy in my lower legs pins and needles along with numbness. I also just felt real strange and “off”. I stopped taking the meds. I then took 2 pills of a new antibiotic “macrobid” and my neuropathy went through the roof so that just added to the problem. From there my symptoms got way worse for the next 6-7 months with many issues. Brain fog, dizzy, headaches and head pressure,horrible insomnia, anxiety, severe tinnuitis, GI issues, achy sore joints and muscles,blurry eyes, dry eye and dry mouth, itchy rash on back, 50lb weight loss, fatigue. I was depressed, worried and anxious and felt like a walking zombie! Now a year in a half later I have improved a lot but still dealing with some GI issues, mild anxiety, pulsating tinnitus and waking up early. I keep praying and hoping that by the 2 year mark I am mostly better and especially this damn tinnitus is a lot more quiet or even better gone!! As I said I am older being 62 so I figure it will take me longer but I’m trying to think positive since I have made a lot of improvement. I think healing and recovery takes a lot of time so we have to be patient! Easy to say hard to do! Do you feel mostly recovered other then your bladder issues?
Andrea. I understand your view on life now as being floxed definetly changed you and traumatizes you but don’t give up on seeing more improvement and healing. You can still keep healing and I believe you will. Have you tried ozone IVs? I have read about a few floxies having luck with those especially for the neuropathy. I also read a study that ozone helps flush stick FQ out of the cells and tissues. Just throwing that out there. I’m not sure what you have already tried?? Just don’t give up on getting better!!