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hopeless
5 years ago
Thanks. I am aware of all the basic information mostly just looking for some hope as I don’t know if there is any for my case. not only is there nerve issues and severe pain but i was mostly referring to some other problems with my CNS or brain thats what i meant when i said nervous system i dont really know but i do know that i have fluttering brain waves and different stuff that changes the way consciousness feels, cant explain this one, but i cant feel anything at different times to the point where i wont even be able to feel my own symptoms and they feel different etc. i have heard of peoples senses being affected by this drug, ie touch, taste, smells, etc but this problem goes beyond that i cant feel ANYTHING and will feel certain things at different times, what the **** is this, had it for 3 years in varying degrees on top of EVERYTHING else but since my relapse or worsening this symptom has also gotten worse. It feels like im in a comatose like neurologic state a large percentage of the time. I cant live with this one to be honest, theres something about this one that including everything else and it becomes to much. I know todd plumb talked about sensory nerves in his doctor letter but im not sure. And i know some people have psychosis from FQ’s but i dont really think this is that either. I’ll have brain shocks that change how things feel and so on. I am disabled ( cant really even shower or brush teeth ) and dealing with severe CNS damage or something.
I have been trying to decide for months on what doctor to work with. There seems like theres alot of options, from Ron Hanson, to Ghalili and so on to local doctors who specialize in MCAS syndrome.
Also, has anyone had a symptom where your head weighs 10 000 pounds, and it weighs on your entire body making even your pain seem worse and even the motion of your head moving in the air can be intolerable, and at its worst you cant stand up because of how your head feels and you fall over, your head almost goes in slow motion and even trying to turn it to the side or up and down is a problem. i guess this is a combination of vertigo and lightheadedness? what is this one?
hopeless
5 years ago
wow thats crazy as i have the choking and gagging too, but for a different reason than you as the skin in my face and neck seems to be affected and it squeezes on my neck and i gag and choke and then that creates more severe pressure in my head its terrible. also have those breathing problems too which progressed over time and still 3 years later i have them, it started early with air hunger chest pain and problems getting deep breathes and then got worse, had problems inhaling through mouth to where it became disabling and as you said frightening especially combined with seizures and other stuff going on. also have things in my head and face that physically block my breathing and stuff i dont know this drug really is so bad but the very rare occasion when some of my different symptoms with my chest and pain go down ( this has probably happened a few times only in the past 6 months ) but anyways when that happens i notice that i have a thing where my body involuntary takes a breathe, and the breathe i get is extremely shallow so i am probably like that always its just that when i have the other symptoms with my chest and breathing it kinda goes on top of it. also the suffocation thing you describe i still have 3 years later in varying degrees, i would tell doctors it felt like i was suffocating but they never believed me, also certain seizures that i have give me a terrible suffocation thing that happens and when its like that im in the hospital usually calling ambulances
Yes I have been on the fence about stem cells, i am not sure i think i would rather atleast try ivs first or something, would stem cells really work when you have so much going on? maybe theres a bit of a risk?
all the research points to mitochondrial damage but sometimes i even doubt that with all the things going on and then start wondering other stuff like if fq’s made me more susceptible to lyme and other infections etc. i am not really sure.
I was thinking of getting my mitochondrial genome tested actually, its a bit expensive but theres a company in germany that does it for 4k i think, and then an american one called genedx i believe
have you seen a mitochondrial doctor, or do you know of anyone after fqs who got their genome done?
Attsy
5 years ago
Just wanted to wish you a very Merry Christmas and a lot of health in New Year 2019!!
Lets hope we will all get better, I believe in it!
Attsy
5 years ago
Hi guys,
as my digestion improved a bit my insomnia is starting to get worse 6 months after I took the atb.
Does anyone have this symptom as well? Is there anything that helped you to get some rest? Thanks!
Henk Noordhuizen
5 years ago
I wish you all a Merry Christmas,and lots of luck and health in the comming year!
Andrea
5 years ago
Merry Christmas everyone.
One quick question. I recently started taking some new probiotics. Never had digestive issues, luckily, but since taking PB seems to be very helthy anyway, I started taking them. I’t been more or less 10 days, and I’m sure they’re giving me a lot of bloating. Has anyone ever experienced the same?
Lukasz
5 years ago
URGENT HELP NEEDED!
My sister-in-law was prescribed Moxifloxacin,a fluoroquinolone, for suspected sinusitis. 400mg for 10 days. 1 tablet daily. She has been taking it for the past 4 days. Within a couple of days of taking the drug she developed several smaller hives on her body. Today she skipped take the pill as she was growing concerned about the spreading hives. These hives are now large, extremely itchy and swollen. She is quickly losing her ability to walk as the large swollen hives are affecting her ankles and knees. She is unable to sit or lie down comfortably either as they are on the sides of her thighs, as well as her elbows. Some are starting to appear on her face now. Mostly joint areas plus a small number near the eyes. My brother took her to the ER where the doctor diagnosed her with a virus and told her to take 50mg of Benadryl and OTC nasal rinse but neither one is helping her. In fact, the hives are appearing in more places and she’s having more and more pain by the minute.
Anyone have ideas on what we can do to contain this situation? I’m not convinced it’s a virus. I believe she’s experiencing side effects from the fluoroquinolone considering that she’s used Ibuprofen (Advil) to contain her headaches. She had no hives or swelling to speak of prior to taking this drug, just sinus congestion due to acid reflux.
She’s in a great deal of pain.
Anyone have suggestions?
Andrea
5 years ago
Hi guys. I’m very interested in finding a way to try to cure or at least to ease the pain for my chronic pelvic/bladder pain syndrome. I was reading a lot about alternative remedies. I’ve found a doctor ( an urologist) here in Italy, who practice a therapy using ozone directly into the bladder, with a syringe or with a catheter. He also use carbone dioxide for the same issues. Since I’ve read some of you tried ozone therapy, I’d like to read some of your thoughts, expecially your concernes, if you have some. Thanks.
Andrea
5 years ago
PS Henk, a few days ago I’ve ordered a bottle of magnesium L threonate. As soon as I receive it, I’ll let you know my experience.
melissam
5 years ago
Hey guys!
I’m asking a question for a friend and fellow floxie. She’s ten months out and having a feeling in her head like she’s drunk but without the alcohol. She claims all her days are blurring together and ten months passed and she doesn’t remember any of it. When she looks in the mirror she doesn’t recognize herself. Everything she eats also makes her head feel crappy and she’s developed food sensitivities/allergies. For those that have had similar symptoms and have fully recovered (even past that 10 month mark!), please write and let me know how long it took to fully resolve and also when it began to fade away. I am really wanting to offer this young mom hope! She’s so scared that she will always feel like she’s in the twilight zone with this depersonalization and derealization. She feels like she is among the more severe cases as far as the brain part of floxing goes, and my brain wasn’t as affected as hers so I can’t offer the same hope as someone who has been there. Thank you much in advance.
Andrea
5 years ago
L, now that you have mentioned interstitial cystitis, I’ve read about a doctor here in Italy that use ozone directly into the bladder/pelvic area (with a syringe or a catheter) for treating this condition. He aslo use carbon dioxide. What do you think about that?
Joanne.
5 years ago
Hi Melissa,
I had the soupy drunk feeling brain, and it was the worst part of my floxing. What helped me was WobenzymeN, and it start helping me really quick. I think at about 3 days my brain started to get some clear spots, then shortly after that my brain was mostly clear all day unless a drank Pepsi or coke or ate chocolate, then I could feel some soupiness in my head.
Also, i can’t take anything that kills bacteria not even natural stuff cuz always causes my brain to get worse. So I would tell her she might want to eliminate any supplement that is an antibacterial cuz if shes taking natural antibacterials they might be keeping her head soupy.
So please have your friend try WobenzymeN and stay away from anything that kills bacteria, chocolates and dark sodas.
These are the things that help me with my brain issues.
Joanne.
5 years ago
Henk Noordhuizen,
I just wanted to tell you that ozone water really knocked me back to square one!!! So please reconsider if you were planning on drinking it. It also made my tendons and overall body pains way worse then when i was in the worst of my floxing!
hopeless
5 years ago
Thanks L. What would you say helped you the most of everything you tried? The stem cells? What about the IV’s? Which ones did you do and did they help much? Also curious if you dont mind me asking but how much did you have to pay for stem cells? Thanks
Joanne.
5 years ago
Yea, I should of been more clear on using natural antibacterials. What I was trying to say is, I can’t use them on a daily basis as part of a healing plan, but if i get an infection, uti etc. I only use natural antibacterials.
It took me so long to figure out what would flare me up, so i like to tell others just in case the same thing is happening with them.
L
5 years ago
Not sure I mentioned this before but I (and others who posted) have one of the genetic MTHF mutation that prevents us from converting folic acid into the usable folate. (We need to take 5Mthf instead.) Why is this important, especially for floxies? First, the folic acid you can’t use doesn’t go away. It is stored in your body and and can negatively impact several systems. Second, folate is important to help make and repair DNA and help detoxify. It has a role in the nervous system and may have a role in brain fog, insomnia, even high blood pressure, anxiety, thyroid issues. IF you have not been tested, I woud highly recommend it. (23 and ME, Spectra cell, Pathway Genomics. My doctor ordered (and insurance paid for it) through True Health Diagnostics, which tests for about three pages worth of stuff.) In addition to taking the 5-MTHF form of folate, you would also want to avoid folic acid which is added to so many things, especially in the US, so check ingredents.
Andrea
5 years ago
Henk, today I tried for the first time mag l threonate. It’s been 30/40 minutes. It gave me an headache almost immediately (10/15). Just a light one. Bit still noticiable. Plus, I don’t know if it’s just a coincidence, but after about the same time, I’ve experienced some loose stools. But this could be due to the fact that I stopped with the probiotics who were making me so bloated. Anyway I’ve read that headaches are a common side effect of MLT. It usually goes away within a week. If the side effects aren’t going to get worse, I’m going to continue with It. And, of course, I’ll keep you updated.
Andrea
5 years ago
So far my experience with mag L threonate, hasn’t been that good. Besides the headach, wich lasted for about an hour or so, I felt very weak afterwards, almost like a sugar drop. Also a little brain fog. I took 2 capsules on an empty stomach. You should take 3x day. I’m going to take the third this evening before dinner. Let’s see what happens. I don’t know, maybe it’s just a coincidence but, who knows…
PS , L, if I remember correctly you wrote that you’re using magnesium L threonate from life extension. I’m using the same stuff, and when I opned the bottle, I noticed there’s a white powder. I hope it’s just some magnesium that could have lostt during the boxing process. Otherwise it’s not a good sign. I’ve order it from the official website, Life Extension Europe.com, not form Azaon or ebay, but I really don’t konw what to think.
L
5 years ago
While this article fails to mention flqs as a cause of tendonitis and tendon rupture, it has some good information in it…suggestionsyou might want to try. https://articles.mercola.com/tendonitis.aspx
Joan B
5 years ago
Has anyone heard/tried the Bowersox Protocol. a 4-month homeopathic regimen of supplements from Europe (Belgium)? Fibromyalgia treatment but could apply to fluoroquinolone toxicity??
Thanks. I am aware of all the basic information mostly just looking for some hope as I don’t know if there is any for my case. not only is there nerve issues and severe pain but i was mostly referring to some other problems with my CNS or brain thats what i meant when i said nervous system i dont really know but i do know that i have fluttering brain waves and different stuff that changes the way consciousness feels, cant explain this one, but i cant feel anything at different times to the point where i wont even be able to feel my own symptoms and they feel different etc. i have heard of peoples senses being affected by this drug, ie touch, taste, smells, etc but this problem goes beyond that i cant feel ANYTHING and will feel certain things at different times, what the **** is this, had it for 3 years in varying degrees on top of EVERYTHING else but since my relapse or worsening this symptom has also gotten worse. It feels like im in a comatose like neurologic state a large percentage of the time. I cant live with this one to be honest, theres something about this one that including everything else and it becomes to much. I know todd plumb talked about sensory nerves in his doctor letter but im not sure. And i know some people have psychosis from FQ’s but i dont really think this is that either. I’ll have brain shocks that change how things feel and so on. I am disabled ( cant really even shower or brush teeth ) and dealing with severe CNS damage or something.
I have been trying to decide for months on what doctor to work with. There seems like theres alot of options, from Ron Hanson, to Ghalili and so on to local doctors who specialize in MCAS syndrome.
Also, has anyone had a symptom where your head weighs 10 000 pounds, and it weighs on your entire body making even your pain seem worse and even the motion of your head moving in the air can be intolerable, and at its worst you cant stand up because of how your head feels and you fall over, your head almost goes in slow motion and even trying to turn it to the side or up and down is a problem. i guess this is a combination of vertigo and lightheadedness? what is this one?
wow thats crazy as i have the choking and gagging too, but for a different reason than you as the skin in my face and neck seems to be affected and it squeezes on my neck and i gag and choke and then that creates more severe pressure in my head its terrible. also have those breathing problems too which progressed over time and still 3 years later i have them, it started early with air hunger chest pain and problems getting deep breathes and then got worse, had problems inhaling through mouth to where it became disabling and as you said frightening especially combined with seizures and other stuff going on. also have things in my head and face that physically block my breathing and stuff i dont know this drug really is so bad but the very rare occasion when some of my different symptoms with my chest and pain go down ( this has probably happened a few times only in the past 6 months ) but anyways when that happens i notice that i have a thing where my body involuntary takes a breathe, and the breathe i get is extremely shallow so i am probably like that always its just that when i have the other symptoms with my chest and breathing it kinda goes on top of it. also the suffocation thing you describe i still have 3 years later in varying degrees, i would tell doctors it felt like i was suffocating but they never believed me, also certain seizures that i have give me a terrible suffocation thing that happens and when its like that im in the hospital usually calling ambulances
Yes I have been on the fence about stem cells, i am not sure i think i would rather atleast try ivs first or something, would stem cells really work when you have so much going on? maybe theres a bit of a risk?
all the research points to mitochondrial damage but sometimes i even doubt that with all the things going on and then start wondering other stuff like if fq’s made me more susceptible to lyme and other infections etc. i am not really sure.
I was thinking of getting my mitochondrial genome tested actually, its a bit expensive but theres a company in germany that does it for 4k i think, and then an american one called genedx i believe
have you seen a mitochondrial doctor, or do you know of anyone after fqs who got their genome done?
Just wanted to wish you a very Merry Christmas and a lot of health in New Year 2019!!
Lets hope we will all get better, I believe in it!
Hi guys,
as my digestion improved a bit my insomnia is starting to get worse 6 months after I took the atb.
Does anyone have this symptom as well? Is there anything that helped you to get some rest? Thanks!
I wish you all a Merry Christmas,and lots of luck and health in the comming year!
Merry Christmas everyone.
One quick question. I recently started taking some new probiotics. Never had digestive issues, luckily, but since taking PB seems to be very helthy anyway, I started taking them. I’t been more or less 10 days, and I’m sure they’re giving me a lot of bloating. Has anyone ever experienced the same?
URGENT HELP NEEDED!
My sister-in-law was prescribed Moxifloxacin,a fluoroquinolone, for suspected sinusitis. 400mg for 10 days. 1 tablet daily. She has been taking it for the past 4 days. Within a couple of days of taking the drug she developed several smaller hives on her body. Today she skipped take the pill as she was growing concerned about the spreading hives. These hives are now large, extremely itchy and swollen. She is quickly losing her ability to walk as the large swollen hives are affecting her ankles and knees. She is unable to sit or lie down comfortably either as they are on the sides of her thighs, as well as her elbows. Some are starting to appear on her face now. Mostly joint areas plus a small number near the eyes. My brother took her to the ER where the doctor diagnosed her with a virus and told her to take 50mg of Benadryl and OTC nasal rinse but neither one is helping her. In fact, the hives are appearing in more places and she’s having more and more pain by the minute.
Anyone have ideas on what we can do to contain this situation? I’m not convinced it’s a virus. I believe she’s experiencing side effects from the fluoroquinolone considering that she’s used Ibuprofen (Advil) to contain her headaches. She had no hives or swelling to speak of prior to taking this drug, just sinus congestion due to acid reflux.
She’s in a great deal of pain.
Anyone have suggestions?
Hi guys. I’m very interested in finding a way to try to cure or at least to ease the pain for my chronic pelvic/bladder pain syndrome. I was reading a lot about alternative remedies. I’ve found a doctor ( an urologist) here in Italy, who practice a therapy using ozone directly into the bladder, with a syringe or with a catheter. He also use carbone dioxide for the same issues. Since I’ve read some of you tried ozone therapy, I’d like to read some of your thoughts, expecially your concernes, if you have some. Thanks.
PS Henk, a few days ago I’ve ordered a bottle of magnesium L threonate. As soon as I receive it, I’ll let you know my experience.
Hey guys!
I’m asking a question for a friend and fellow floxie. She’s ten months out and having a feeling in her head like she’s drunk but without the alcohol. She claims all her days are blurring together and ten months passed and she doesn’t remember any of it. When she looks in the mirror she doesn’t recognize herself. Everything she eats also makes her head feel crappy and she’s developed food sensitivities/allergies. For those that have had similar symptoms and have fully recovered (even past that 10 month mark!), please write and let me know how long it took to fully resolve and also when it began to fade away. I am really wanting to offer this young mom hope! She’s so scared that she will always feel like she’s in the twilight zone with this depersonalization and derealization. She feels like she is among the more severe cases as far as the brain part of floxing goes, and my brain wasn’t as affected as hers so I can’t offer the same hope as someone who has been there. Thank you much in advance.
L, now that you have mentioned interstitial cystitis, I’ve read about a doctor here in Italy that use ozone directly into the bladder/pelvic area (with a syringe or a catheter) for treating this condition. He aslo use carbon dioxide. What do you think about that?
Hi Melissa,
I had the soupy drunk feeling brain, and it was the worst part of my floxing. What helped me was WobenzymeN, and it start helping me really quick. I think at about 3 days my brain started to get some clear spots, then shortly after that my brain was mostly clear all day unless a drank Pepsi or coke or ate chocolate, then I could feel some soupiness in my head.
Also, i can’t take anything that kills bacteria not even natural stuff cuz always causes my brain to get worse. So I would tell her she might want to eliminate any supplement that is an antibacterial cuz if shes taking natural antibacterials they might be keeping her head soupy.
So please have your friend try WobenzymeN and stay away from anything that kills bacteria, chocolates and dark sodas.
These are the things that help me with my brain issues.
Henk Noordhuizen,
I just wanted to tell you that ozone water really knocked me back to square one!!! So please reconsider if you were planning on drinking it. It also made my tendons and overall body pains way worse then when i was in the worst of my floxing!
Thanks L. What would you say helped you the most of everything you tried? The stem cells? What about the IV’s? Which ones did you do and did they help much? Also curious if you dont mind me asking but how much did you have to pay for stem cells? Thanks
Yea, I should of been more clear on using natural antibacterials. What I was trying to say is, I can’t use them on a daily basis as part of a healing plan, but if i get an infection, uti etc. I only use natural antibacterials.
It took me so long to figure out what would flare me up, so i like to tell others just in case the same thing is happening with them.
Not sure I mentioned this before but I (and others who posted) have one of the genetic MTHF mutation that prevents us from converting folic acid into the usable folate. (We need to take 5Mthf instead.) Why is this important, especially for floxies? First, the folic acid you can’t use doesn’t go away. It is stored in your body and and can negatively impact several systems. Second, folate is important to help make and repair DNA and help detoxify. It has a role in the nervous system and may have a role in brain fog, insomnia, even high blood pressure, anxiety, thyroid issues. IF you have not been tested, I woud highly recommend it. (23 and ME, Spectra cell, Pathway Genomics. My doctor ordered (and insurance paid for it) through True Health Diagnostics, which tests for about three pages worth of stuff.) In addition to taking the 5-MTHF form of folate, you would also want to avoid folic acid which is added to so many things, especially in the US, so check ingredents.
Henk, today I tried for the first time mag l threonate. It’s been 30/40 minutes. It gave me an headache almost immediately (10/15). Just a light one. Bit still noticiable. Plus, I don’t know if it’s just a coincidence, but after about the same time, I’ve experienced some loose stools. But this could be due to the fact that I stopped with the probiotics who were making me so bloated. Anyway I’ve read that headaches are a common side effect of MLT. It usually goes away within a week. If the side effects aren’t going to get worse, I’m going to continue with It. And, of course, I’ll keep you updated.
So far my experience with mag L threonate, hasn’t been that good. Besides the headach, wich lasted for about an hour or so, I felt very weak afterwards, almost like a sugar drop. Also a little brain fog. I took 2 capsules on an empty stomach. You should take 3x day. I’m going to take the third this evening before dinner. Let’s see what happens. I don’t know, maybe it’s just a coincidence but, who knows…
PS , L, if I remember correctly you wrote that you’re using magnesium L threonate from life extension. I’m using the same stuff, and when I opned the bottle, I noticed there’s a white powder. I hope it’s just some magnesium that could have lostt during the boxing process. Otherwise it’s not a good sign. I’ve order it from the official website, Life Extension Europe.com, not form Azaon or ebay, but I really don’t konw what to think.
While this article fails to mention flqs as a cause of tendonitis and tendon rupture, it has some good information in it…suggestionsyou might want to try. https://articles.mercola.com/tendonitis.aspx
Has anyone heard/tried the Bowersox Protocol. a 4-month homeopathic regimen of supplements from Europe (Belgium)? Fibromyalgia treatment but could apply to fluoroquinolone toxicity??