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Anna
5 years ago
I really hoped to find posts and comments related to Botox. But, the keyword search on this site never works for me any longer. Anyone else have issues with the keyword search on this site?
Unrelated to floxing (likely related to two accidents I’ve had), I have had a 24/7 headache for a year that doesn’t feel like a traditional headache. It encompasses my face, back of head, neck, side of head, etc. I often feel every nerve in my face and head. And for those who followed my painful tooth saga, the tooth STILL HURTS but they believe it isn’t an infection anymore, but the nerves. They are saying it’s atypical trigeminal neuralgia, atypical facial pain, atypical neuralgia…all sorts of “atypical” things that I hear as “We don’t really know what you have but we know it hurts…”.
I’ve tried everything natural: naturopath, acupuncture, osteo, physio, etc. I recently started with a chiro and homeopth, but every single doc (neurologist, dentist, etc.) would really like for me to try low-dose antidepressants to cut the pain, and then wean off. Is this a bad idea post-floxed? There has to be others out there who are floxed and on much higher doses? Is it possible to be on them for say, a year, and then get off successfully before my body has too much of a chance to attach to them? 25mg or less of Nortriptyline? I’m still healing from being floxed and don’t want to mess anything up, but I also don’t want to be in pain if this could help.
Melissa, sorry to hear you are dealing with pain in your head, neck, face area I hope you can maybe find a more natural pain reliever to help you?? I know you have tough decisions to make about treatment but I would try to avoid taking an anti depressant and get more opinions?? You said you had a relapse from taking the antibiotics. Are you doing better now? Have most of your increased symptoms calmed down again? I hope so!!! Keep hanging in there. Prayers for your healing!
Melissa. Was this pain brought on by the floxing last year or the soccer ball/whiplash incidents??? I am glad your floxie symptoms are calming down again! That is one silver lining in all of this!! I know Barbara says a lot of good things about Kratom for pain. Don’t know if I spelled that right?? You might ask her about using that????
Melissa , I don’t recognize any of those remedies except for Rhus Tox. I got floxed in June of 2017. I am about 19 months out with about 4 lingering symptoms. Early wakeup, mild anxiety, pulsating tinnitus and several bathroom visits (loose) all taking place early morning when I wake up! My system ramps up in the morning! My days are pretty good though. I had at least 20 symptoms for the first several months. I was hit pretty hard as I couldn’t go back to work. I am 62 so I retired last January 18. I was a PE teacher for 38 years!! This floxing turned me upside down!! I’m probably about 85% recovered?? My homeopathic remedies I think are different then yours?? I am on Q doses which increase every 10 days. Been on remedies for year in a half. I work with Mr Mueller over the phone who has treated many floxies world wide. I even take homeopathic cipro (which sounds scary) but is suppose to help stop the cipro effects over time?? I’m on 6 different remedies. Hard to know how they are helping but I’m improving and older so I’m hoping they have been helping me!! ????????????????
ursula
5 years ago
Lisa, what info do you have on Biltricide (Praziquantel ) for bilharzia.
ursula
5 years ago
Any Pharmacists on here I can ask about Biltricide (Praziquantel)
melissam
5 years ago
Dee, you are so kind to check on me! I started the homeopathic stuff one week ago today so too early to tell. On Tuesday I felt my nerve issues worsening (like, vibrating skin, nerves in my body feeling numb like a mask on my arms and legs and spine and head…). I don’t know what’s from Quinolones, what is from my accident, what is just something that is happening to me…it’s all running into one another.
I feel the panic feeling is totally gone. I feel happy and have more energy since the relapse. And that is great news since the relapse was just a few weeks ago! I got back on my bike. yay!
I hate that I bend over and my spine starts tingling. I’m not quite sure if that is normal quinolone stuff that takes longer to heal I hate that I’m having this tooth pain that is really my trigeminal nerve. So overall, doing very well and moving around as usual, but moving around with constant issues/pain that I didn’t have before.
L
5 years ago
I just saw a commercial for this device and thought I would post for those of you dealing with pain issues. I know NOTHING about this or if it works, but I just wanted to pass it along, since it does not involve pharmaceuticals. https://www.quellrelief.com/
Melissa. Glad you are doing somewhat better!! That is a good thing!! I think you will recover and heal back to your pre antibiotic days in more time!! Try to ham in there and think positive!! You will get there!! I have taken 5-6 homeopathic remedies everyday since being floxed 19 months ago. I have not experienced getting worse from them and then better except for my worsening flox symptoms over the first few months of being floxed. So I would think you should improve rather then get worse since you have mostly recovered??? Keep the faith and stay the course in your healing!! You will see better days again!!
cipropoisoned
5 years ago
I hope this helps someone. I was discussing CIPRO with someone a while ago and she said she had many symptoms that may be due to CIPRO. She had no idea she had been on CIPRO, but she did recall having multiple urinary infections that were treated with antibiotics. To make a long story short, after reviewing her medical records, she was given CIPRO multiple times. After reviewing her records, she noticed that each time she received CIPRO she developed depression, anxiety, joint pains, etc. Of course, no one knew what was wrong with her, so she was given all kinds of diagnosis. Eventually, she ended seeing a Rheumatologist who diagnosed her pains to be due to Lupus—no lab tests indicated Lupus.
Nonetheless, by the time I saw her, she was back to “normal”. I asked her what helped her. She said the Rheumatologist put her on 2 weeks of Steroids and her symptoms improved during the treatment. As soon as the steroids were stopped, the symptoms recurred. So, she was put back on the steroids for the next six months, divided daily doses. And I quote her, she noticed “very significant decrease in symptoms”. Because of the daily steroids, she was placed on Rituxan for nine months and noticed “major (she underlined the major) improvement and then the steroid was tapered off”. Now, she is off of steroids and Rituxan and she believes she is back to her normal health.
Do you know anyone who was mistakenly or even intentionally treated with steroids and a medication like Rituxan? I am searching to see if immunosuppression may be a short-term solution.
Andrea
5 years ago
Hi guys. Today I went to see a doctor. She’s a specialist in pain menagement, or algiatry.
This was the first time when I really felt like this doctor was really interested in my case. Not only she let talk for at least 2 hours, and also asking a lot of questions. But, she really tried to understand the roots of my problems and also the psycological effects that this situation caused me. Anyway, I went to her, to see if she could find some way to ease the pain in my bladder/groin area. She prescribed to me Normast (micronized PEA), wich I already took, without any results, but this time she specifically pointed out the importance to take it sublingually. According to the studies, capsules or tablets, with this supplemet, don’t work. She also prescribed Clonazepam, to try to relax the muscles in my bladder. I know many of you would freak out just thinking about taking a benzo, as I am, but do any of you have any info about it? It’s really important for me, to listen to your opinion.
I explained to her, that I’m really scared to take anyhting chemical, and she understood that.
She prescribed this particular drug, because, accroding to her, it’s the best tollerated and with the least side effects.
Please don’t be afraid to answer. Thank you guys.
Andrea
5 years ago
Oh another thing, lately I was avoiding any kind of dairy, and it was just wonderful for my joint pain. I’m also taking a couple of teaspoons of organic tamarind paste and 2-4 brazil nuts everyday (both these foods are known to detoxify your body from fluoride). I don’t know if it’s just a coincidence, but after a couple of weeks of this “regimen” I’m feeling better afterall. I suggest anyone to try it, it’s defenetly healhty and risk free 🙂
melissam
5 years ago
Me again with a new question! If you remember, I have this facial nerve/neck/head pain and weirdness (may be unrelated to fluoroquionlones, but also had a car accident in 2016 and a soccer ball to the back of the head and neck in 2017). I have had this pain 24/7 since last february. To remind: 1st floxing was July 2016. Second floxing was May 2018.
I had asked you all to weigh in on low-dose antidepressants to try for a very short time to see if it helps cut the pain. But today I saw a facial nerve specialist who said rather than the low-dose antidepressants, to try a muscle relaxant: Flexeril (cyclobenzaprine). Obviously I don’t want to cause more damage to myself. It is not a benzo, but I wonder if it works similarly? I’m trying to read but don’t understand everything.
Any thoughts? 10mg but I can’t tell how many times a day from the scribbled prescription ;). Probably only for a few weeks and with physio.
I have tried allllll things natural / osteo/ acupuncture / chiro / naturopath, and now am working with a homeopath.
Henk Noordhuizen
5 years ago
Most of the pharmaceuticals are not bio-digradable,and after flushing it through the toilet (with your urine and stools) they will,inevitably,come backt to you.Time after time.That’s what’t wrong with the synthetic “medicines”;even the bacteria and other water- and soil organisms can’t break them down.The step from natural medicines to synthetic/chemical “medicines” was one of the biggest mistakes of mankind.Together with their allies,the chemical industry,they managed to shape this beautiful planet into one,big chemical wasteland,our bodies included:
Was not suprised at all to read that,among all those pharmaceuticals,found in the sludge,was the one we know so well: Ciprofloxacin.
Attsy
5 years ago
Hi guys,
I have tried numerous things which you recommend for stomach issues and I still get relapses and can’t gain weight. It’s starting to be tiring and annoying; the pain wakes me up at night some days. And I thought it was over because I had 1,5 months relief. I don’t know what triggered the relapse.
I don’t know, I just needed to vent, I know you have also many problems and I just feel very sad that this is happening. As I read your posts everyone has something to recommend but I can’t recommend anything because my body hardly tolerates even vitamins or minerals.
I would love to wake up one day and make myself a coffee and then eat a chocolate without problem. Yes, maybe this dream will come true one day.
Last three weeks I got very strange symptom, which maybe is due to the all stress – but I don’t know, blurred vision and coordination problem which went so bad that I fainted. Could this also be side effect of the antibiotics? I have never suffered with this before even when I was in stress or anxious. And up to this, I was listening to music and I decided to do jumping jacks and my finger on my feet broke – I have not expected this could happen at all.
Kyle
5 years ago
Hi L- due to finding polyps at a young age I’ve had a colonoscopy yearly as a preventive measure. Considering I’ve been floxed for 11 months and very nervous what affects the anesthesia will have on me (Versed), I’ve avoided the colonoscopy and I’m way past due. I’m curious why you wouldn’t have another Colonoscopy is it because the affect the test had on your health, or because it was a waste of time?
I really hoped to find posts and comments related to Botox. But, the keyword search on this site never works for me any longer. Anyone else have issues with the keyword search on this site?
Henk, I’m answering you here, about the EM-X. Very very interesting. Thnaks a lot. Did you use it? What do you think about this product? check the ingredients. Thnaks a lot.
https://www.gardenoflife.com/content/product/primal-defense-ultra-probiotic-formula/
Unrelated to floxing (likely related to two accidents I’ve had), I have had a 24/7 headache for a year that doesn’t feel like a traditional headache. It encompasses my face, back of head, neck, side of head, etc. I often feel every nerve in my face and head. And for those who followed my painful tooth saga, the tooth STILL HURTS but they believe it isn’t an infection anymore, but the nerves. They are saying it’s atypical trigeminal neuralgia, atypical facial pain, atypical neuralgia…all sorts of “atypical” things that I hear as “We don’t really know what you have but we know it hurts…”.
I’ve tried everything natural: naturopath, acupuncture, osteo, physio, etc. I recently started with a chiro and homeopth, but every single doc (neurologist, dentist, etc.) would really like for me to try low-dose antidepressants to cut the pain, and then wean off. Is this a bad idea post-floxed? There has to be others out there who are floxed and on much higher doses? Is it possible to be on them for say, a year, and then get off successfully before my body has too much of a chance to attach to them? 25mg or less of Nortriptyline? I’m still healing from being floxed and don’t want to mess anything up, but I also don’t want to be in pain if this could help.
Melissa, sorry to hear you are dealing with pain in your head, neck, face area I hope you can maybe find a more natural pain reliever to help you?? I know you have tough decisions to make about treatment but I would try to avoid taking an anti depressant and get more opinions?? You said you had a relapse from taking the antibiotics. Are you doing better now? Have most of your increased symptoms calmed down again? I hope so!!! Keep hanging in there. Prayers for your healing!
Melissa. Was this pain brought on by the floxing last year or the soccer ball/whiplash incidents??? I am glad your floxie symptoms are calming down again! That is one silver lining in all of this!! I know Barbara says a lot of good things about Kratom for pain. Don’t know if I spelled that right?? You might ask her about using that????
Melissa. What homeopathic remedies are you on?? I do a lot of homeopathic remedies since being floxed for my symptoms!
Melissa , I don’t recognize any of those remedies except for Rhus Tox. I got floxed in June of 2017. I am about 19 months out with about 4 lingering symptoms. Early wakeup, mild anxiety, pulsating tinnitus and several bathroom visits (loose) all taking place early morning when I wake up! My system ramps up in the morning! My days are pretty good though. I had at least 20 symptoms for the first several months. I was hit pretty hard as I couldn’t go back to work. I am 62 so I retired last January 18. I was a PE teacher for 38 years!! This floxing turned me upside down!! I’m probably about 85% recovered?? My homeopathic remedies I think are different then yours?? I am on Q doses which increase every 10 days. Been on remedies for year in a half. I work with Mr Mueller over the phone who has treated many floxies world wide. I even take homeopathic cipro (which sounds scary) but is suppose to help stop the cipro effects over time?? I’m on 6 different remedies. Hard to know how they are helping but I’m improving and older so I’m hoping they have been helping me!! ????????????????
Lisa, what info do you have on Biltricide (Praziquantel ) for bilharzia.
Any Pharmacists on here I can ask about Biltricide (Praziquantel)
Dee, you are so kind to check on me! I started the homeopathic stuff one week ago today so too early to tell. On Tuesday I felt my nerve issues worsening (like, vibrating skin, nerves in my body feeling numb like a mask on my arms and legs and spine and head…). I don’t know what’s from Quinolones, what is from my accident, what is just something that is happening to me…it’s all running into one another.
I feel the panic feeling is totally gone. I feel happy and have more energy since the relapse. And that is great news since the relapse was just a few weeks ago! I got back on my bike. yay!
I hate that I bend over and my spine starts tingling. I’m not quite sure if that is normal quinolone stuff that takes longer to heal I hate that I’m having this tooth pain that is really my trigeminal nerve. So overall, doing very well and moving around as usual, but moving around with constant issues/pain that I didn’t have before.
I just saw a commercial for this device and thought I would post for those of you dealing with pain issues. I know NOTHING about this or if it works, but I just wanted to pass it along, since it does not involve pharmaceuticals. https://www.quellrelief.com/
Melissa. Glad you are doing somewhat better!! That is a good thing!! I think you will recover and heal back to your pre antibiotic days in more time!! Try to ham in there and think positive!! You will get there!! I have taken 5-6 homeopathic remedies everyday since being floxed 19 months ago. I have not experienced getting worse from them and then better except for my worsening flox symptoms over the first few months of being floxed. So I would think you should improve rather then get worse since you have mostly recovered??? Keep the faith and stay the course in your healing!! You will see better days again!!
I hope this helps someone. I was discussing CIPRO with someone a while ago and she said she had many symptoms that may be due to CIPRO. She had no idea she had been on CIPRO, but she did recall having multiple urinary infections that were treated with antibiotics. To make a long story short, after reviewing her medical records, she was given CIPRO multiple times. After reviewing her records, she noticed that each time she received CIPRO she developed depression, anxiety, joint pains, etc. Of course, no one knew what was wrong with her, so she was given all kinds of diagnosis. Eventually, she ended seeing a Rheumatologist who diagnosed her pains to be due to Lupus—no lab tests indicated Lupus.
Nonetheless, by the time I saw her, she was back to “normal”. I asked her what helped her. She said the Rheumatologist put her on 2 weeks of Steroids and her symptoms improved during the treatment. As soon as the steroids were stopped, the symptoms recurred. So, she was put back on the steroids for the next six months, divided daily doses. And I quote her, she noticed “very significant decrease in symptoms”. Because of the daily steroids, she was placed on Rituxan for nine months and noticed “major (she underlined the major) improvement and then the steroid was tapered off”. Now, she is off of steroids and Rituxan and she believes she is back to her normal health.
Do you know anyone who was mistakenly or even intentionally treated with steroids and a medication like Rituxan? I am searching to see if immunosuppression may be a short-term solution.
Hi guys. Today I went to see a doctor. She’s a specialist in pain menagement, or algiatry.
This was the first time when I really felt like this doctor was really interested in my case. Not only she let talk for at least 2 hours, and also asking a lot of questions. But, she really tried to understand the roots of my problems and also the psycological effects that this situation caused me. Anyway, I went to her, to see if she could find some way to ease the pain in my bladder/groin area. She prescribed to me Normast (micronized PEA), wich I already took, without any results, but this time she specifically pointed out the importance to take it sublingually. According to the studies, capsules or tablets, with this supplemet, don’t work. She also prescribed Clonazepam, to try to relax the muscles in my bladder. I know many of you would freak out just thinking about taking a benzo, as I am, but do any of you have any info about it? It’s really important for me, to listen to your opinion.
I explained to her, that I’m really scared to take anyhting chemical, and she understood that.
She prescribed this particular drug, because, accroding to her, it’s the best tollerated and with the least side effects.
Please don’t be afraid to answer. Thank you guys.
Oh another thing, lately I was avoiding any kind of dairy, and it was just wonderful for my joint pain. I’m also taking a couple of teaspoons of organic tamarind paste and 2-4 brazil nuts everyday (both these foods are known to detoxify your body from fluoride). I don’t know if it’s just a coincidence, but after a couple of weeks of this “regimen” I’m feeling better afterall. I suggest anyone to try it, it’s defenetly healhty and risk free 🙂
Me again with a new question! If you remember, I have this facial nerve/neck/head pain and weirdness (may be unrelated to fluoroquionlones, but also had a car accident in 2016 and a soccer ball to the back of the head and neck in 2017). I have had this pain 24/7 since last february. To remind: 1st floxing was July 2016. Second floxing was May 2018.
I had asked you all to weigh in on low-dose antidepressants to try for a very short time to see if it helps cut the pain. But today I saw a facial nerve specialist who said rather than the low-dose antidepressants, to try a muscle relaxant: Flexeril (cyclobenzaprine). Obviously I don’t want to cause more damage to myself. It is not a benzo, but I wonder if it works similarly? I’m trying to read but don’t understand everything.
Any thoughts? 10mg but I can’t tell how many times a day from the scribbled prescription ;). Probably only for a few weeks and with physio.
I have tried allllll things natural / osteo/ acupuncture / chiro / naturopath, and now am working with a homeopath.
Most of the pharmaceuticals are not bio-digradable,and after flushing it through the toilet (with your urine and stools) they will,inevitably,come backt to you.Time after time.That’s what’t wrong with the synthetic “medicines”;even the bacteria and other water- and soil organisms can’t break them down.The step from natural medicines to synthetic/chemical “medicines” was one of the biggest mistakes of mankind.Together with their allies,the chemical industry,they managed to shape this beautiful planet into one,big chemical wasteland,our bodies included:
https://articles.mercola.com/sites/articles/archive/2019/02/23/biosolids-scam.aspx?utm_source=dnl&utm_medium=email&utm_content=art1&utm_campaign=20190223Z2&et_cid=DM268766&et_rid=551918057
The full documentary “Biosludged” can be seen on youtube.
Here is the link to the Biosludged documentary:
https://www.youtube.com/watch?v=D-VUioaQRKg
Was not suprised at all to read that,among all those pharmaceuticals,found in the sludge,was the one we know so well: Ciprofloxacin.
Hi guys,
I have tried numerous things which you recommend for stomach issues and I still get relapses and can’t gain weight. It’s starting to be tiring and annoying; the pain wakes me up at night some days. And I thought it was over because I had 1,5 months relief. I don’t know what triggered the relapse.
I don’t know, I just needed to vent, I know you have also many problems and I just feel very sad that this is happening. As I read your posts everyone has something to recommend but I can’t recommend anything because my body hardly tolerates even vitamins or minerals.
I would love to wake up one day and make myself a coffee and then eat a chocolate without problem. Yes, maybe this dream will come true one day.
Last three weeks I got very strange symptom, which maybe is due to the all stress – but I don’t know, blurred vision and coordination problem which went so bad that I fainted. Could this also be side effect of the antibiotics? I have never suffered with this before even when I was in stress or anxious. And up to this, I was listening to music and I decided to do jumping jacks and my finger on my feet broke – I have not expected this could happen at all.
Hi L- due to finding polyps at a young age I’ve had a colonoscopy yearly as a preventive measure. Considering I’ve been floxed for 11 months and very nervous what affects the anesthesia will have on me (Versed), I’ve avoided the colonoscopy and I’m way past due. I’m curious why you wouldn’t have another Colonoscopy is it because the affect the test had on your health, or because it was a waste of time?