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Dee
5 years ago
Question??? I am long overdue for a colonoscopy and endoscopy. I should have had it done 3 years ago at age 60. I got floxed 2 years ago and probably recovered 80/85% so far?? Mainly gut related issues and some tinnitus still dealing with. I am scared to death of general anesthesia for the procedure. Anyone gone under general anesthesia and or have any knowledge how Floxies do with it???
Dee
5 years ago
Virgina and L, thank you for your feedback on general anesthesia! It is a coincidence that my son is actually a sales rep for Cologuard and I am doing that test as we speak! I do still need to get an endoscope though and “if” my cologuard test came back positive (fingers crossed it doesn’t) I still need to eventually need to get my throat scoped as I have had acid reflux for years and even the beginning of Barrett’s so need to do the scope unfortunately. I never knew there was a difference between general anesthesia and sedation??? I guess I thought it was all the same general anesthesia!!?? If that is the case I hope I would tolerate sedation a lot better?? Do you know if sedation is flourine based as is general anesthesia?? I’m sorry you had a false positive on your colon test L. I do know that happens now and then. The good news is it was “false”!! How long had both of you been floxed before the procedure was done? Thank you again for your feedback!!! Appreciated!!!!
Attsy
5 years ago
Have you noticed that the video with that ibalgin advice was removed? Just wanted to look at it today again and it’s gone :D!
Andrea
5 years ago
LOL, I’ve just noticed that the video I posted a couple of weeks ago, with that nurse giving “awesome” advices, on how to treat FQ induced toxicity, like taking ibuprofen,has been removed from YouTube…Probably we left so many negative comments and so many thumbs down in so little time that they decided to delete it. Well that’s just good, let’s keep informing people about the dangers of these drugs and expecially let’s keep discrediting these so called “experts”.
Dee
5 years ago
Thank you all for your feedback on sedation during a colonoscopy or endoscopy!! Hopefully if and when I need one I will have a good outcome like you all did!!!! Your positive responses gives me a lot of hope!!!!
L, how is your tinnitus doing?? Is it getting quieter for you?? Hope so!!!!
Dee
5 years ago
L, I’m sorry your tinnitus has not calmed down for you☹️ My “pulsating” tinnitus has slowly become more quiet. Mine was brought on very quickly and intensely by a half mg of melatonin about 3 months into my floxing. My Doc thinks because my Gaba receptors were damaged that they had a hyper opposing reaction to the melatonin. I had horrible tinnitus come on within a day that roared and throbbed like a jet engine for months! My “guess” is since Gaba receptors can repair and heal that as they are repairing my tinnitus will improve and hopefully disappear!! I figure it may take 3/4 years for Gaba receptors to repair???? Keeping my fingers crossed!! I feel lucky to have recovered 85-90% in about 2 years. I still need some repair and healing for my gut and tried everything! Still wake up pretty early with multiple bathroom runs. My stomach is in overdrive every morning. I figure maybe autonomic nervous system in my digestive system still a little haywire?? Also need leaky gut and microbiome repair I’m sure? Already take probiotics. Not sure weather to try colostrum it maybe Restore, bone broth?? So many products to consider!!?? Any suggestions?? I hope your tinnitus starts to quiet down for you! Don’t give up hope!!
Dee
5 years ago
It is so ironic that a half mg. 0.5 of melatonin gave me horrible horrible tinnitus within a few hours besides being up the whole night with anxiety and a racing heart! It has taken many months for it to start to quiet down and soften up. And yet 6 mgs of melatonin are suppose to be a cure for tinnitus. Thinking about ever taking melatonin ever again makes me shake in my pants!!!’ Just goes to show how very differently we can all react!! If your Gaba receptors are very damaged from floxing I would stay far away from melatonin. That is supposedly why I had the “opposing” reaction!!?
L
5 years ago
Getting frustrated. Just left another post that did not take. Have to post twice to everything and hope they don’t both show up. So, as far as the skin, I imagine it’s because flqs can destroy any kind of connective tissue, including collagen. As for the rest…who knows. Either unleashing or creating auto immune disease? Mast cell disorder?
Mike
5 years ago
Thank God I only took *one* Levaquin 500 ten days ago. In that time, here are the symptoms that I’ve endured:
Horrible lower back and leg pain
Tingling
Pins and needles in legs and arms
Tightness and facial/head pressure
Ear pressure
Weakness
Brain Fog
Crushing stomach and abdominal pain
Very slight memory and concentration issues
Headaches
Anxiety
I found Floxie Hope and immediately began a regimen of vitamins, probiotics, Magnesium, CoQ10, tons of fruit and vegetables, sleep as much as I can, praying, pushing myself to the comfort level with exercise, reading and writing, spending time with family and friends – and working. The physical symptoms are subsiding for me – for the most part. My legs and back ache a little, but it’s minor at this point. The big thing right now for me is concentration and pressure in my ears and head (headaches). This should pass in time.
Considering how serious this can be, the biggest factor for proper healing is time. I’m keeping myself busy and not paying attention to the clock. Because I know that, at some point in the future, this will just be a memory. It may take a week, or it may take two months. I’ll wait, I don’t care. Because I know God gave me the chance and was watching over me when I only took that one pill and flushed the rest down the toilet.
I’ve kept my diet clean for the most part, but am starting to reintegrate what I want to eat again – slowly. Patience is the ultimate key and tool to recovery.
Joanneg
5 years ago
I came across this video of a functional meficine doctor who helps people suffering from fluoroquinolone adverse reactions and figured I’d post it in case someone might be interested. I don’t know anything about him just happened to across it. https://youtu.be/74yAJygxREM
Henk Noordhuizen
5 years ago
Very interesting Merola article which might be usefull for Floxies:
Has anyone tried topical and oral colloidal silver? What were your dosages and side effects if any? And how long did you take it? Thanks!
Attsy
5 years ago
Guys, do you also catch cold, old some mild viral viruses all the time? I had weak immune system even before but now, I have cold like twice a month. Does it dissapear after some while? The last one left two lipoms which didn’t dissapear in my neck. I find it very annoying.
Also my period is extremely painful. I know I talk here usually to men but if some woman has a tip for this period cramps would be appreciated. Thanks.
Henk Noordhuizen
5 years ago
A new article from Mercola,on the dangers of Fluoride.It’s a pity that there is so much focussing on the Fluoride in water,and to little in the Fluoride in medicines;over 20 % is fluoridated,since most sources,and spme even say it’s around 50% by now.The article talks about Fluoride “accidents” but there’s not a word about all the FQ-victims (so,I wrote them about this ugly mistake ;-))
Hi everyone, I’m sure I’ve wrote about it before, but since I can’t remember your answers, I’d like to ask this again : has anyone ever tried some sort of fast, after being floxed? I’ve tried a 3 days water fast a couple of times in the last year and a half, but the results were quite disappointing. Does anyone have some experience to share?
Andrea
5 years ago
Yeah Attsy, that sucks, because there’re defenetly prooved benefits induced by regular fasting periods. Even in cancer patients. But we’re floxies, and that’s probably a completely different story.
Are you familiar with Professor Valter Longo and his Fasting Mimicking Diet? If you haven’t already done that, I suggest you to read his studies. There’re also pleanty of videos on YT and online in general. He also promotes and sells this Prolon kit, wich is a specifically designed kit of meals, to help you do a 5 days “fast”. The theory and studies behind it, is that, according to Longo, many ill people find a complete water fast too heavy, so by extremely restricting your calories intake for 5 days (1000 calories the first day and 750 calories the next 4 days) and giving you the right foods, your body would have all the benefits of a water-only fast, but without the negative effects. The kit is quite expensive, 200 €/dollars, but sooner or later I know I’m going to try it. It’d nice, to see if I finally can achive some benefits from a fast.
Andrea
5 years ago
To krabiwi,
I couldn’t find the reply button to your last comment, so I’m answering you here.
Did you lost a lot of weight by switching to an almost permanent state of ketosis?
I was interested in trying a ketogenic diet, because it looks like it can give you some benefits, as you reported, but It always seemed to me a little too extreme. You know, eating all that meat and fats, expecially from animal sources, never looked too appealing to me. Anyway, after all this time, are you still experiencing those side effects? Did you develop the typical breath from not eating carbs? Thanks, Andrea.
Henk Noordhuizen
5 years ago
Found another “nurse” with a video on FQ’s She did mention adverse reactions but hardly touched those.Most comments are “This is a great and helpfull video”,only one comment mentions the tremendous harm these AB’s are causing:
A very interesting article from Mercola on mitochondrial health,and new scientific findings. It might even give a hint about how THC,and maybe other cannabinoids as well, protect against Alzheimer,and even have a possitive effect on excisting Alzheimer (by stimulating Serotonin production?):
Long time floxie with primarily nervous system issues trying to get back into exercising. I’ve done it off and on over the years, but I’m finally back in a good, *consistent* routine including weights and some cardio (some running, biking).
I love being active, and I feel great *while* being active and great for period of time after.
But recently, since being in the consistent routine, I’ve noticed my nervous system symptoms eventually being irritated. Increased brain fog (so hard to focus), high anxiety, head pressure, eye lid twitching, muscle twitching. It seems to dissipate if I take several days off from being active.
I think it is definitely the physical activity making me feel this way. Any insight into why this is actually happening though?
– Am I just irritating my already fragile nervous system?
– Am I actually triggering some sort of “new reaction”/cycle?
– Am I detoxing some long buried remnant of the FQ, which causes the symptoms…but in turn the detox may actually be beneficial in the long term?
– Am I missing some nutrient that my body needs more of since being floxed? I eat a nutrient rich diet of organic fruits, veggies and high quality meat. I take no supplements as they never made any difference to me.
I love being active and I’m not going to stop. This drug has already taken enough from me. Still, I’d like to know what is happening, and ideally hear a story from someone who had a similar experience with exercise?
My hope is that if I get into a routine of exercise + a break of several days, eventually each time I go back to a consistent routine the effects will diminish a bit…
Question??? I am long overdue for a colonoscopy and endoscopy. I should have had it done 3 years ago at age 60. I got floxed 2 years ago and probably recovered 80/85% so far?? Mainly gut related issues and some tinnitus still dealing with. I am scared to death of general anesthesia for the procedure. Anyone gone under general anesthesia and or have any knowledge how Floxies do with it???
Virgina and L, thank you for your feedback on general anesthesia! It is a coincidence that my son is actually a sales rep for Cologuard and I am doing that test as we speak! I do still need to get an endoscope though and “if” my cologuard test came back positive (fingers crossed it doesn’t) I still need to eventually need to get my throat scoped as I have had acid reflux for years and even the beginning of Barrett’s so need to do the scope unfortunately. I never knew there was a difference between general anesthesia and sedation??? I guess I thought it was all the same general anesthesia!!?? If that is the case I hope I would tolerate sedation a lot better?? Do you know if sedation is flourine based as is general anesthesia?? I’m sorry you had a false positive on your colon test L. I do know that happens now and then. The good news is it was “false”!! How long had both of you been floxed before the procedure was done? Thank you again for your feedback!!! Appreciated!!!!
Have you noticed that the video with that ibalgin advice was removed? Just wanted to look at it today again and it’s gone :D!
LOL, I’ve just noticed that the video I posted a couple of weeks ago, with that nurse giving “awesome” advices, on how to treat FQ induced toxicity, like taking ibuprofen,has been removed from YouTube…Probably we left so many negative comments and so many thumbs down in so little time that they decided to delete it. Well that’s just good, let’s keep informing people about the dangers of these drugs and expecially let’s keep discrediting these so called “experts”.
Thank you all for your feedback on sedation during a colonoscopy or endoscopy!! Hopefully if and when I need one I will have a good outcome like you all did!!!! Your positive responses gives me a lot of hope!!!!
L, how is your tinnitus doing?? Is it getting quieter for you?? Hope so!!!!
L, I’m sorry your tinnitus has not calmed down for you☹️ My “pulsating” tinnitus has slowly become more quiet. Mine was brought on very quickly and intensely by a half mg of melatonin about 3 months into my floxing. My Doc thinks because my Gaba receptors were damaged that they had a hyper opposing reaction to the melatonin. I had horrible tinnitus come on within a day that roared and throbbed like a jet engine for months! My “guess” is since Gaba receptors can repair and heal that as they are repairing my tinnitus will improve and hopefully disappear!! I figure it may take 3/4 years for Gaba receptors to repair???? Keeping my fingers crossed!! I feel lucky to have recovered 85-90% in about 2 years. I still need some repair and healing for my gut and tried everything! Still wake up pretty early with multiple bathroom runs. My stomach is in overdrive every morning. I figure maybe autonomic nervous system in my digestive system still a little haywire?? Also need leaky gut and microbiome repair I’m sure? Already take probiotics. Not sure weather to try colostrum it maybe Restore, bone broth?? So many products to consider!!?? Any suggestions?? I hope your tinnitus starts to quiet down for you! Don’t give up hope!!
It is so ironic that a half mg. 0.5 of melatonin gave me horrible horrible tinnitus within a few hours besides being up the whole night with anxiety and a racing heart! It has taken many months for it to start to quiet down and soften up. And yet 6 mgs of melatonin are suppose to be a cure for tinnitus. Thinking about ever taking melatonin ever again makes me shake in my pants!!!’ Just goes to show how very differently we can all react!! If your Gaba receptors are very damaged from floxing I would stay far away from melatonin. That is supposedly why I had the “opposing” reaction!!?
Getting frustrated. Just left another post that did not take. Have to post twice to everything and hope they don’t both show up. So, as far as the skin, I imagine it’s because flqs can destroy any kind of connective tissue, including collagen. As for the rest…who knows. Either unleashing or creating auto immune disease? Mast cell disorder?
Thank God I only took *one* Levaquin 500 ten days ago. In that time, here are the symptoms that I’ve endured:
Horrible lower back and leg pain
Tingling
Pins and needles in legs and arms
Tightness and facial/head pressure
Ear pressure
Weakness
Brain Fog
Crushing stomach and abdominal pain
Very slight memory and concentration issues
Headaches
Anxiety
I found Floxie Hope and immediately began a regimen of vitamins, probiotics, Magnesium, CoQ10, tons of fruit and vegetables, sleep as much as I can, praying, pushing myself to the comfort level with exercise, reading and writing, spending time with family and friends – and working. The physical symptoms are subsiding for me – for the most part. My legs and back ache a little, but it’s minor at this point. The big thing right now for me is concentration and pressure in my ears and head (headaches). This should pass in time.
Considering how serious this can be, the biggest factor for proper healing is time. I’m keeping myself busy and not paying attention to the clock. Because I know that, at some point in the future, this will just be a memory. It may take a week, or it may take two months. I’ll wait, I don’t care. Because I know God gave me the chance and was watching over me when I only took that one pill and flushed the rest down the toilet.
I’ve kept my diet clean for the most part, but am starting to reintegrate what I want to eat again – slowly. Patience is the ultimate key and tool to recovery.
I came across this video of a functional meficine doctor who helps people suffering from fluoroquinolone adverse reactions and figured I’d post it in case someone might be interested. I don’t know anything about him just happened to across it.
https://youtu.be/74yAJygxREM
Very interesting Merola article which might be usefull for Floxies:
https://articles.mercola.com/sites/articles/archive/2019/05/20/skullcap-herb-repairs-brain-injury.aspx?utm_source=dnl&utm_medium=email&utm_content=art2&utm_campaign=20190520Z2&et_cid=DM289292&et_rid=619181413
Has anyone tried topical and oral colloidal silver? What were your dosages and side effects if any? And how long did you take it? Thanks!
Guys, do you also catch cold, old some mild viral viruses all the time? I had weak immune system even before but now, I have cold like twice a month. Does it dissapear after some while? The last one left two lipoms which didn’t dissapear in my neck. I find it very annoying.
Also my period is extremely painful. I know I talk here usually to men but if some woman has a tip for this period cramps would be appreciated. Thanks.
A new article from Mercola,on the dangers of Fluoride.It’s a pity that there is so much focussing on the Fluoride in water,and to little in the Fluoride in medicines;over 20 % is fluoridated,since most sources,and spme even say it’s around 50% by now.The article talks about Fluoride “accidents” but there’s not a word about all the FQ-victims (so,I wrote them about this ugly mistake ;-))
https://articles.mercola.com/sites/articles/archive/2019/05/21/harmful-effects-of-fluoride-continue-to-mount.aspx?utm_source=dnl&utm_medium=email&utm_content=art2&utm_campaign=20190521Z2&et_cid=DM289215&et_rid=620279595
Hi everyone, I’m sure I’ve wrote about it before, but since I can’t remember your answers, I’d like to ask this again : has anyone ever tried some sort of fast, after being floxed? I’ve tried a 3 days water fast a couple of times in the last year and a half, but the results were quite disappointing. Does anyone have some experience to share?
Yeah Attsy, that sucks, because there’re defenetly prooved benefits induced by regular fasting periods. Even in cancer patients. But we’re floxies, and that’s probably a completely different story.
Are you familiar with Professor Valter Longo and his Fasting Mimicking Diet? If you haven’t already done that, I suggest you to read his studies. There’re also pleanty of videos on YT and online in general. He also promotes and sells this Prolon kit, wich is a specifically designed kit of meals, to help you do a 5 days “fast”. The theory and studies behind it, is that, according to Longo, many ill people find a complete water fast too heavy, so by extremely restricting your calories intake for 5 days (1000 calories the first day and 750 calories the next 4 days) and giving you the right foods, your body would have all the benefits of a water-only fast, but without the negative effects. The kit is quite expensive, 200 €/dollars, but sooner or later I know I’m going to try it. It’d nice, to see if I finally can achive some benefits from a fast.
To krabiwi,
I couldn’t find the reply button to your last comment, so I’m answering you here.
Did you lost a lot of weight by switching to an almost permanent state of ketosis?
I was interested in trying a ketogenic diet, because it looks like it can give you some benefits, as you reported, but It always seemed to me a little too extreme. You know, eating all that meat and fats, expecially from animal sources, never looked too appealing to me. Anyway, after all this time, are you still experiencing those side effects? Did you develop the typical breath from not eating carbs? Thanks, Andrea.
Found another “nurse” with a video on FQ’s She did mention adverse reactions but hardly touched those.Most comments are “This is a great and helpfull video”,only one comment mentions the tremendous harm these AB’s are causing:
https://www.youtube.com/watch?v=uLhO7cDwT7U
A very interesting article from Mercola on mitochondrial health,and new scientific findings. It might even give a hint about how THC,and maybe other cannabinoids as well, protect against Alzheimer,and even have a possitive effect on excisting Alzheimer (by stimulating Serotonin production?):
https://articles.mercola.com/sites/articles/archive/2019/05/27/5-htp-for-mitochondrial-biogenesis.aspx?utm_source=dnl&utm_medium=email&utm_content=art3&utm_campaign=20190527Z2&et_cid=DM290875&et_rid=625197654
Hi all,
Long time floxie with primarily nervous system issues trying to get back into exercising. I’ve done it off and on over the years, but I’m finally back in a good, *consistent* routine including weights and some cardio (some running, biking).
I love being active, and I feel great *while* being active and great for period of time after.
But recently, since being in the consistent routine, I’ve noticed my nervous system symptoms eventually being irritated. Increased brain fog (so hard to focus), high anxiety, head pressure, eye lid twitching, muscle twitching. It seems to dissipate if I take several days off from being active.
I think it is definitely the physical activity making me feel this way. Any insight into why this is actually happening though?
– Am I just irritating my already fragile nervous system?
– Am I actually triggering some sort of “new reaction”/cycle?
– Am I detoxing some long buried remnant of the FQ, which causes the symptoms…but in turn the detox may actually be beneficial in the long term?
– Am I missing some nutrient that my body needs more of since being floxed? I eat a nutrient rich diet of organic fruits, veggies and high quality meat. I take no supplements as they never made any difference to me.
I love being active and I’m not going to stop. This drug has already taken enough from me. Still, I’d like to know what is happening, and ideally hear a story from someone who had a similar experience with exercise?
My hope is that if I get into a routine of exercise + a break of several days, eventually each time I go back to a consistent routine the effects will diminish a bit…