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Attila
5 years ago
Hi! I have noticed that in the evenings my symptoms are relieved, and sometimes I feel like I am old again. No anxiety – or just very small. But during the day i’m anxious again – Why?? And nowadays after 18month of poisoning in the mornings I’m not able to wake up… I don’t drink coffee, and any alcohole since 18month but still struggling ????
Henk Noordhuizen
5 years ago
Today an article on the Mercola website,about Collagen.He writes about the collagen supps,and how to know which are the best,and that the cheapest way to obtain high quality Collagen is,to make a bone broth from the bones of organic grass fed or pastured animals:
Been a rough few months and I am still don’t understand what is happening.
Long term Floxie. I’ve followed a strict paleo diet for nearly 3 years. Take no supplements as I find myself sensitive to most. Have felt decent and stable for quite some time, but I posted awhile back about how I have gotten worse from either re-introducing coffee or increasing the intensity of my exercise. I started to have one cup of coffee a week (which I have now stopped), and also started running several miles once a week.
Ever since starting to do these things I have had worsening head pressure, fatigue, anxiety and brain fog. I also started having digestive issues, which I have NEVER had before.
The fatigue is the worse though. I feel intolerant to exercise now. I am so exhausted after any physical activity I do, even low level stuff like walking. Along with the exhaustion I feel anxious, have difficulty focusing and am very depressed. I do not feel like myself. It lasts for days after exercise. When I am in this state other activities that I once enjoyed are exhausting too, including reading or even just watching television. I get exhausted trying to focus on nearly anything, and end up wanting to go to bed — which, unfortunately, does not even seem to help. I wake up fatigued after 8-9 hours of sleep.
So, what, do I suddenly have Chronic Fatigue Syndrome now? It sounds like I have most of the symptoms to get this diagnosis.
Or is this just another stage of Fluoroquinolone Toxicity?
Ultimately, does it even matter what label we give it? Is the origin of fatigue similar for CFS as it would be for FQ toxicity?
I am so afraid that I now suddenly have CFS. Does anyone have any insight on CFS as it relates to FQ toxicity?
My hope is that maybe my strict paleo diet, which was naturally low carb, was enough when I was only active sporadically — but was not enough for the increased exercise I started doing. Still, after upping my carbs, my fatigue does not seem to dissipate…
Joanneg
5 years ago
Hi M,
I believe all Floxie are dealing with Candida! (Among multiple other things)
Look up some sites on Candida.
When you start killing it off your symptoms will get worse, especially fatigue cuz your cells are constantly working overtime to rid your body of it.
There are many things that can help kill it and Exercise is one of them that’s probably why you got flared up.
I’m 5 years out and was feeling really good but I still had some low level issues so I decided to try killing Candida and my results were exactly as they predicted!
I got flared up in many areas including fatigue if it got too bad i’d lower the killing rate but I stuck with the program and after a couple weeks I felt better then when I started.
There are many ways to kill it. I use Wobenzyme as directed on the bottle and Borax 1 teaspoon diluted in 1 liter of distilled water kept in the refrigerator and from that mixture I take 1 or 2 teaspoons a day. Out of all the things I tried, with these 2 i have the least die off affects or flare ups and the best results feeling more healed as I go. And I also take 3 Doctors Best magnesium 1 in the morning, afternoon, and evening.
Whatever you decide to do, I’ll be praying for your healing and don’t get too discouraged it will get better????
Sheila rogers
5 years ago
Just a heads up for everyone – please do your research I started looking into this and saw where the Wobenzyme can cause bleeding issues or coagulation problems so I continued to do research and here is what I found for what it’s worth: https://sciencebasedmedicine.org/systemic-enzyme-therapy/
Don M
5 years ago
Just another idea. Is it right for you? Would it help you? https://draxe.com/boswellia/
Seems like there would be benefits from it.
Barbara Arnold
5 years ago
To all European’s, the BBC is doing a programme on fluroquinolone’s in the light of the EMA recommendations. They are interested in anyone whose been floxed since. I’ve sent my story and opinions so anyone who wants to join in the email address is alix.hattenstone@bbc.co.uk
63chevyii
5 years ago
Hi
Long story short – I tore my bicep tendon a couple months ago after taking levaquin and prednisone for pneumonia. My doctors are saying that there’s no way to tell if my rupture was induced by the meds.
I am now having increasing pain in one of my knees and achilles tendon and am very anxious that I may have another injury – is there a way to tell if I have damage due to taking the medication?
Hey everyone…something interesting you can all investigate on your own, in your areas of the country, or in your country other than the US. It’s exosomes. They are now being used to help treat everything from Altzheimers’ to rotator cuff injury to pain. The cool thing about exosomes, unlike stems (from another person) they don’t have DNA. If you receive Stems from another person, you basically become a DNA mosaic of that person and yourself…but since exosomes contain no DNA, there is not that problem. After a near century of study, so far they appear to have no downside. They can be introduced via IV, or injected, or even used topically, for say diabetic injury, much like hyperbaric can. They contain hundreds of growth factors and more to help create a regenerative response.
Anyhow, you might want to look into Organicell exosome therapeutics (that s the one that my doctor uses) I don’t know much more than that…sat in on a discussion this evening.
L
5 years ago
Thanks Lisa Lisa. It does mention using exosomes to fight cancer. The accompanying article is also over 3 years old. I imagine quite a lot has been done in that time.
I am a new floxie. At 71, I was given Cipro for a mild UTI, in January 2019. My life has changed so much.
Attsy
5 years ago
Hello, has anyone tried to take desogestrel (or do you have any ideas) to decrease the hormonal fluctuation during period and ovulation? I had this thought because I think this might stop the period completely. Unfortunately I am still experiencing bad stomach cramps (when nothing really works) and according to my calendar it usually occurs around ovulation and period. I am asking about your opinion because my doctor simply doesn’t know. This was actually my idea but as I was floxed I am unsure about the potential harms (like stroke….)? Thank you.
Dee
5 years ago
Barbara, L and Madge You were all very helpful in giving me advice about going through an endoscope and colonoscopy and how you did under sedation. I had my scope in mid June and was sedated with propofol for about 30 min. I am happy to report that I did ok with the sedation although it took me 3/4 days to get my bearings again. The scope results were ok too other then esophagitis from my acid reflux so I have to try and heal that. My Doc wanted me back on PPIs which I weaned off of when I got floxed. For now I am taking Zantac for acid reflux but trying to find more natural ways to cure it?? I am 2 years out from being floxed and still dealing with morning gut issues ( like morning IBS) and still waking up a little earlier then I would like!! Would you say that you kept on improving after the 2 year mark?? I feel probably 80/85% recovered but am hoping for some of these “lingering” symptoms to finally disappear!! I’m hoping to hear that healing seems to continue after 2 years out since you all are further out in your recovery!! Thank you again for your supportive advice in tackling the colonoscopy/endoscopy as it did calm me and take some of the fear factor away!!!
L
5 years ago
I just came from a very sobering talk on the harm from wireless technology, given by Attorney Dafna Tachova, formerly computer and communications officer in the Israeli Army. There were moments when I though “she could be talking about flq toxicity, when she discussed the health effects, the burying of studies and evidence, the complicit “protection” agencies.
Studies directly linking to cancer and other illnesses have been buried for decades. There are already millions who have experienced health issues even before 5G, which is just pure insanity. We are exposed to 80 quintillion (that’s 18 zeros) times the amount of this type of radiation than we should be exposed to. If I could move I would move to a place that did hot have wifi. If I had children (who are most at risk for injury) I would do everything in my power to see that their school used grounded technology and that they had as little exposure as possible. For now, I limit cell phone use, turn my laptop on airplane mode when not in use, and contact local politicians urging them to keep 5g away. This technology can injure any bodily organ and system. I will post more information when it is sent to me, but meanwhile, this is the organization she represents. https://wearetheevidence.org/
selcem
5 years ago
Hello,
did anyone try “povidone iodine” as antiseptic. I had its mouthwash during a teeth operation and then I started to have dizziness, nausea, headache. I read this chemical has neurotoxicity.
Oh God, so should we stay away from all kinds of antibiotics/antivirals/antiseptics?
I wonder how many doctors are paying any attention to this.
Don M
5 years ago
This is interesting. https://www.healthline.com/nutrition/is-brown-rice-good-for-you Interesting because it mentions nutrition in brown rice as a benefit for problems a floxie faces. I like brown rice pasta and find it comforting to know that it has some value.
Attila
5 years ago
Hi! I have noticed that in the evenings my symptoms are relieved, and sometimes I feel like I am old again. No anxiety – or just very small. But during the day i’m anxious again and hissing sound in my head – Why?? And nowadays after 19month of poisoning in the mornings I’m not able to wake up… I don’t drink coffee, and any alcohole since 19 month but still fighting. sometimes I have strange dreams again… Why healing for so long? 🙁 oh God
Lukasz
5 years ago
Greetings. Does anyone have any experience with physician prescribed thyroid hormone supplementation? Specifically, has it worked for anyone here to relieve the countless health problems we’ve acquired especially the neurological stuff like insomnia and shallow sleep?
What are the pros and cons of using these synthetic hormones? Can they make problems worse? I’ve read about people being helped by them but wanted to see if anyone here has experience using them. I’ve read that high doses are much more beneficial than low ones?
On top of the thyroid hormone supplement, does anyone use T3 supplementation to help with the conversion of T4 into T3? Any input on the matter is much appreciated.
Lukasz
5 years ago
Attila,
I get what you’re saying, but, after 5 years of being mostly housebound, I’m running out of patience. If I was only housebound and not dealing with unrelenting symptoms that make my life hell every minute of every day, I would consider doing nothing at all but these are desperate times in my life. I fear the worse if my fortunes don’t change soon. Every man and woman in this world has a breaking point and I’m getting close to mine. I’m not saying any of this to draw pity, I’m saying this because I’m truly running out of willpower, and when that happens, it’s game over.
Przepraszam za negatywny tone ale naprawde jusz mam tego wszystkiego dosc.
Hi! I have noticed that in the evenings my symptoms are relieved, and sometimes I feel like I am old again. No anxiety – or just very small. But during the day i’m anxious again – Why?? And nowadays after 18month of poisoning in the mornings I’m not able to wake up… I don’t drink coffee, and any alcohole since 18month but still struggling ????
Today an article on the Mercola website,about Collagen.He writes about the collagen supps,and how to know which are the best,and that the cheapest way to obtain high quality Collagen is,to make a bone broth from the bones of organic grass fed or pastured animals:
https://articles.mercola.com/sites/articles/archive/2019/07/15/health-benefits-of-collagen.aspx?utm_source=dnl&utm_medium=email&utm_content=art1&utm_campaign=20190715Z2&et_cid=DM301501&et_rid=663211362
Hi all,
Been a rough few months and I am still don’t understand what is happening.
Long term Floxie. I’ve followed a strict paleo diet for nearly 3 years. Take no supplements as I find myself sensitive to most. Have felt decent and stable for quite some time, but I posted awhile back about how I have gotten worse from either re-introducing coffee or increasing the intensity of my exercise. I started to have one cup of coffee a week (which I have now stopped), and also started running several miles once a week.
Ever since starting to do these things I have had worsening head pressure, fatigue, anxiety and brain fog. I also started having digestive issues, which I have NEVER had before.
The fatigue is the worse though. I feel intolerant to exercise now. I am so exhausted after any physical activity I do, even low level stuff like walking. Along with the exhaustion I feel anxious, have difficulty focusing and am very depressed. I do not feel like myself. It lasts for days after exercise. When I am in this state other activities that I once enjoyed are exhausting too, including reading or even just watching television. I get exhausted trying to focus on nearly anything, and end up wanting to go to bed — which, unfortunately, does not even seem to help. I wake up fatigued after 8-9 hours of sleep.
So, what, do I suddenly have Chronic Fatigue Syndrome now? It sounds like I have most of the symptoms to get this diagnosis.
Or is this just another stage of Fluoroquinolone Toxicity?
Ultimately, does it even matter what label we give it? Is the origin of fatigue similar for CFS as it would be for FQ toxicity?
I am so afraid that I now suddenly have CFS. Does anyone have any insight on CFS as it relates to FQ toxicity?
My hope is that maybe my strict paleo diet, which was naturally low carb, was enough when I was only active sporadically — but was not enough for the increased exercise I started doing. Still, after upping my carbs, my fatigue does not seem to dissipate…
Hi M,
I believe all Floxie are dealing with Candida! (Among multiple other things)
Look up some sites on Candida.
When you start killing it off your symptoms will get worse, especially fatigue cuz your cells are constantly working overtime to rid your body of it.
There are many things that can help kill it and Exercise is one of them that’s probably why you got flared up.
I’m 5 years out and was feeling really good but I still had some low level issues so I decided to try killing Candida and my results were exactly as they predicted!
I got flared up in many areas including fatigue if it got too bad i’d lower the killing rate but I stuck with the program and after a couple weeks I felt better then when I started.
There are many ways to kill it. I use Wobenzyme as directed on the bottle and Borax 1 teaspoon diluted in 1 liter of distilled water kept in the refrigerator and from that mixture I take 1 or 2 teaspoons a day. Out of all the things I tried, with these 2 i have the least die off affects or flare ups and the best results feeling more healed as I go. And I also take 3 Doctors Best magnesium 1 in the morning, afternoon, and evening.
Whatever you decide to do, I’ll be praying for your healing and don’t get too discouraged it will get better????
Just a heads up for everyone – please do your research I started looking into this and saw where the Wobenzyme can cause bleeding issues or coagulation problems so I continued to do research and here is what I found for what it’s worth: https://sciencebasedmedicine.org/systemic-enzyme-therapy/
Just another idea. Is it right for you? Would it help you? https://draxe.com/boswellia/
Seems like there would be benefits from it.
To all European’s, the BBC is doing a programme on fluroquinolone’s in the light of the EMA recommendations. They are interested in anyone whose been floxed since. I’ve sent my story and opinions so anyone who wants to join in the email address is alix.hattenstone@bbc.co.uk
Hi
Long story short – I tore my bicep tendon a couple months ago after taking levaquin and prednisone for pneumonia. My doctors are saying that there’s no way to tell if my rupture was induced by the meds.
I am now having increasing pain in one of my knees and achilles tendon and am very anxious that I may have another injury – is there a way to tell if I have damage due to taking the medication?
Thanks for your input!
PS – if you’re interested in the long version of my story, I’ve started documenting it here:
https://www.hikerstrong.com/levofloxacin-induced-tendon-rupture/
Hey everyone…something interesting you can all investigate on your own, in your areas of the country, or in your country other than the US. It’s exosomes. They are now being used to help treat everything from Altzheimers’ to rotator cuff injury to pain. The cool thing about exosomes, unlike stems (from another person) they don’t have DNA. If you receive Stems from another person, you basically become a DNA mosaic of that person and yourself…but since exosomes contain no DNA, there is not that problem. After a near century of study, so far they appear to have no downside. They can be introduced via IV, or injected, or even used topically, for say diabetic injury, much like hyperbaric can. They contain hundreds of growth factors and more to help create a regenerative response.
Anyhow, you might want to look into Organicell exosome therapeutics (that s the one that my doctor uses) I don’t know much more than that…sat in on a discussion this evening.
Thanks Lisa Lisa. It does mention using exosomes to fight cancer. The accompanying article is also over 3 years old. I imagine quite a lot has been done in that time.
I am a new floxie. At 71, I was given Cipro for a mild UTI, in January 2019. My life has changed so much.
Hello, has anyone tried to take desogestrel (or do you have any ideas) to decrease the hormonal fluctuation during period and ovulation? I had this thought because I think this might stop the period completely. Unfortunately I am still experiencing bad stomach cramps (when nothing really works) and according to my calendar it usually occurs around ovulation and period. I am asking about your opinion because my doctor simply doesn’t know. This was actually my idea but as I was floxed I am unsure about the potential harms (like stroke….)? Thank you.
Barbara, L and Madge You were all very helpful in giving me advice about going through an endoscope and colonoscopy and how you did under sedation. I had my scope in mid June and was sedated with propofol for about 30 min. I am happy to report that I did ok with the sedation although it took me 3/4 days to get my bearings again. The scope results were ok too other then esophagitis from my acid reflux so I have to try and heal that. My Doc wanted me back on PPIs which I weaned off of when I got floxed. For now I am taking Zantac for acid reflux but trying to find more natural ways to cure it?? I am 2 years out from being floxed and still dealing with morning gut issues ( like morning IBS) and still waking up a little earlier then I would like!! Would you say that you kept on improving after the 2 year mark?? I feel probably 80/85% recovered but am hoping for some of these “lingering” symptoms to finally disappear!! I’m hoping to hear that healing seems to continue after 2 years out since you all are further out in your recovery!! Thank you again for your supportive advice in tackling the colonoscopy/endoscopy as it did calm me and take some of the fear factor away!!!
I just came from a very sobering talk on the harm from wireless technology, given by Attorney Dafna Tachova, formerly computer and communications officer in the Israeli Army. There were moments when I though “she could be talking about flq toxicity, when she discussed the health effects, the burying of studies and evidence, the complicit “protection” agencies.
Studies directly linking to cancer and other illnesses have been buried for decades. There are already millions who have experienced health issues even before 5G, which is just pure insanity. We are exposed to 80 quintillion (that’s 18 zeros) times the amount of this type of radiation than we should be exposed to. If I could move I would move to a place that did hot have wifi. If I had children (who are most at risk for injury) I would do everything in my power to see that their school used grounded technology and that they had as little exposure as possible. For now, I limit cell phone use, turn my laptop on airplane mode when not in use, and contact local politicians urging them to keep 5g away. This technology can injure any bodily organ and system. I will post more information when it is sent to me, but meanwhile, this is the organization she represents. https://wearetheevidence.org/
Hello,
did anyone try “povidone iodine” as antiseptic. I had its mouthwash during a teeth operation and then I started to have dizziness, nausea, headache. I read this chemical has neurotoxicity.
Oh God, so should we stay away from all kinds of antibiotics/antivirals/antiseptics?
Regards,
Selcem
Have you seen this article? Repositioning of fluoroquinolones from antibiotic to anti-cancer agents: An underestimated truth https://www.sciencedirect.com/science/article/pii/S0753332218370689?fbclid=IwAR06HrTRcl3syjR0762fXAWaaclCiB54_diGdwh-er8XINqwVhBc-G-4r1Y
I wonder how many doctors are paying any attention to this.
This is interesting. https://www.healthline.com/nutrition/is-brown-rice-good-for-you Interesting because it mentions nutrition in brown rice as a benefit for problems a floxie faces. I like brown rice pasta and find it comforting to know that it has some value.
Hi! I have noticed that in the evenings my symptoms are relieved, and sometimes I feel like I am old again. No anxiety – or just very small. But during the day i’m anxious again and hissing sound in my head – Why?? And nowadays after 19month of poisoning in the mornings I’m not able to wake up… I don’t drink coffee, and any alcohole since 19 month but still fighting. sometimes I have strange dreams again… Why healing for so long? 🙁 oh God
Greetings. Does anyone have any experience with physician prescribed thyroid hormone supplementation? Specifically, has it worked for anyone here to relieve the countless health problems we’ve acquired especially the neurological stuff like insomnia and shallow sleep?
What are the pros and cons of using these synthetic hormones? Can they make problems worse? I’ve read about people being helped by them but wanted to see if anyone here has experience using them. I’ve read that high doses are much more beneficial than low ones?
On top of the thyroid hormone supplement, does anyone use T3 supplementation to help with the conversion of T4 into T3? Any input on the matter is much appreciated.
Attila,
I get what you’re saying, but, after 5 years of being mostly housebound, I’m running out of patience. If I was only housebound and not dealing with unrelenting symptoms that make my life hell every minute of every day, I would consider doing nothing at all but these are desperate times in my life. I fear the worse if my fortunes don’t change soon. Every man and woman in this world has a breaking point and I’m getting close to mine. I’m not saying any of this to draw pity, I’m saying this because I’m truly running out of willpower, and when that happens, it’s game over.
Przepraszam za negatywny tone ale naprawde jusz mam tego wszystkiego dosc.