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Dee
5 years ago
I’ve been on thyroid meds for 40 years as I have Hashimotos (low thyroid). When I got floxed 2 years ago my thyroid went haywire!! My dosage had to be lowered 4 times! It has been stable now the past several months. I take both synthroid and cytomel which is T4 and T3. I agree with the others here and make sure you get a FULL panel to test your thyroid and only go on meds if your Doc feels it is necessary! There are 4-5 tests in a panel and make sure your Doc is knowledgeable about thyroid issues. Some are not very knowledgeable about reading and understanding all of the tests given in a full panel. You cannot just go by your TSH. You must look at the whole picture!!!
I truly believe many of us are suffering from CFS/ME as a result of the antibiotics we took and this website is like an encyclopedia of the condition. The guy running it is extremely knowledgeable on the subject since he, too, is suffering from the symptoms of CFS/ME. What caught my attention is that he has had THREE separate onsets of the disease and claims to have been in remission after each one. His onsets occurred in 1972-73, 2000-2001, and finally, 2012. He outlines basic and lengthier protocols for remission but what really caught my eye was an Australian study that he published on his blog. The study focuses on gut bacteria and paints a clear picture of what someone with a damaged gut is up against. Basically, they took bacteria samples from CFS/ME patients and compared it to a control group that had no known health issues. The results speak for themselves. A very different gut between the two with very different micoflora levels especially healthy E. Coli.
To see the results of the aforementioned study, click the link below and scroll down until you see “Gut Flora in ME/CFS from an Australian Study”.
I feel terrible about the word-mash I wrote. It sounds like I was in the movie “Dune”, on spice. Forgive me. I am rarely so embarrassed by comments I make. I am sorry from my heart.
My empathy for you is deep and undeniable. There are some things that have happened to me since my floxification that have changed me, deep within. Life and Death now seem so much closer. It has only been 9 monthes for me, and my husband is taking excellent care of me, so I am very lucky and grateful.
But I have changed.
I wish you the best life you may find. I hope your pains and sadnesses melt away along the Path. Be well, Lucasz
Lucasz, Spice was the drug from the planet Arrakis that made space travel possible by folding space. I was on RSO and Norco, plus prednisone. Sorry my folding crashed into your Mothership! I am thankful that you are a reasonable man, and a fair Captain. To be good, kind, and strong is evidenced in your commitment to help others.
Peacelovesanity
Jessica
Lukasz
5 years ago
Has anyone experienced a sensation of something being stuck in their eye post-floxing? Almost like something is crawling inside? It’s probably nerve damage inside my eye socket but I’m curious if anyone else has experienced this? Even though this issue is under a month old, my very first symptom after being poisoned by Clarithromycin was muscle spams on my eyelid, the same eye that is now giving me problems on the inside. Could this be nerve damage from the drugs or a symptom of something else like thyroid disorder? There are times when it gets better and I hardly notice/feel it, but at other times, it’s a nuisance.
Anyone know what this is and what might be the cause?
lisalisa12years
5 years ago
The greatest place to find information to help as much as possible. To all of US we now call ourselves ” FLOXIES ” MAY this site help you on your journey to healing as much as possible. If not completely. Thirteen years later I’m still fighting off side effects. Many have disappeared others remain. No two of us are the same, what helps one may or may not help another. I found the best thing that helps all is Magnisium. Get your vitamin and mineral levels checked by a caring Dr or endocrinologist and start from there. Best of luck to you all. May your healing process begin. Never give up, no matter how bad it gets we’re still here. Other’s lost their lives with just one pill. The company needs to be held responsible and do everything possible to find a cure for all of us. Thirteen years of suffering from an FDA approved antibiotic all because I trudged a lazy Dr who never looked back for updates on these toxins to the human body. ✌ love and mostly your HEALTH.
Henk Noordhuizen
5 years ago
I wonder if somebody else noticed this,so I ask. Like many floxies my healthy looking skin changed to a dry,wrinkled skin within a few weeks after getting floxed.But this year I spent a lot of time outside,and in my garden,and my skin seems to hardly get any sun tanning;it still has that pale look it had in spring.And wounds heal very slooooowly,to,and leave a sign that hardly vanishes,if,at all.
I know I’ve read something about the ability of sun tanning,and the Melanin production being damaged in Floxies,but I can’t find that info back,for now.Has anybody noticed this same symptoms? And has anybody found info about this,and NOT lost it (like I did ;-))
L
5 years ago
Well this really pisses me off. I had mentioned that someone could perhaps find a used copy of Dr Jay Cohen’s book, now that it’s out of print. Well, I went to the medication sense site which linked me to amazon sellers and the CHEAPEST was $94.74 going all the way up to (are you ready?) $706.70!!!!! (but hey, free shipping!) Amazon has a place to comment on pages so I did. This is just obscene. Now I am going to contact the publisher to see if they would do a reprinting….
Attila
5 years ago
Hi! Can anyone answer me? l’m anxious during the day but when the afternoon comes and the evening this feeling vanish and my tinnitus also subsides?
Jessica Williams
5 years ago
Dear Attila,
The stuff you do during the day is likely to be unpleasant for you. Any stressor can trigger symptoms, right? I know with me, if I watch the news, I’m going to pay later in Karma of my own design.
So I avoid any stress. I am older, and perhaps it is easier, because my health team is so organized, and I have little to worry about right now.
The experts are finding that watching movies actually helps patients who are stuck in bed. I watched “The Guardians of the Galaxy Volume 2” and never once though of my problems. Sometimes you just have to let your freak flag fly, and eat that Hagen-Daas Ice Cream or spend that $20 for “Endgame”.
When my own evening comes, it’s husband, bed, (omg it feels good to lie down), sometimes a small snack like fruit or cottage cheese, my sleep meds, and the best cannabis I have. It’s not an addiction. It’s my medicine, prescribed by my physician, and it’s wonderful. I sleep soundly for the first time in my life. I take my RSO with milk and cinnamon. Okay, nutmeg and vanilla too. I have rituals. I rub marijuana cream into my joints.
I am still ambulatory enough to get around the house by myself. I am lucky!
Your tinnitus is a good indicator of heart rhythm and steadiness. When I can hear the crickets, I know I am making progress. It means the pressure is off and you can finally relax, and lordie have I know some uptight people that would not ever relax. Wired tight as drums. “White people waiting to die” could be a theme for my elderly neighbors, but for me, I choose the future, and I want to leave the world better for the children. This is all about the kids. I want to be the best role-model I can be.
Good luck and love, Attila. It sounds like you have “Bright Moments”. Trust in those moments, and be a giver, always. Things will come to you as you need them, I pray.
I am assuming I’m not the only one seeing the last 3 posts about sex and dating apps?? Don’t know what is up with this? Somebody is an idiot or we have a hacker??? Everyone else seeing this??
Fred S
5 years ago
Hi – Has anyone had any issues with spa or pool chemicals after FQ issues? I would like to swim gently but am afraid of a reaction. Thanks
Fred S
5 years ago
Has anyone has success with the book “Fluoroquinolone Toxicity Solution” – is it worth the $40
Henk Noordhuizen
5 years ago
Here some science on FQ toxicity,and suggestions on treatment:
Jessica As bad I feel, I want to trudge on (pain and all) for my angel wife. I want to make her proud of me. She actually told me she wishes she could take some of the pain to make me feel better. On another note, how did you justify the cannabis? Was it for pain relief or sleep improvement. Do you smoke it or do you ingest another way. Sorry to ask but I have never tried it in my life – certainly thinking about it to improve my quality of life.
Thanks in advance
Can someone address the depersonalization issue from being floxed I feel really weird and wondered what others experiences might be, thanks
Fred S
5 years ago
Hi – has anyone had success with a glutton free or low glutton diet? I have read that some people have improved – other say they eat what they want (for the most part) with no issues.
Thanks
I’ve been on thyroid meds for 40 years as I have Hashimotos (low thyroid). When I got floxed 2 years ago my thyroid went haywire!! My dosage had to be lowered 4 times! It has been stable now the past several months. I take both synthroid and cytomel which is T4 and T3. I agree with the others here and make sure you get a FULL panel to test your thyroid and only go on meds if your Doc feels it is necessary! There are 4-5 tests in a panel and make sure your Doc is knowledgeable about thyroid issues. Some are not very knowledgeable about reading and understanding all of the tests given in a full panel. You cannot just go by your TSH. You must look at the whole picture!!!
Friends,
Has anyone come across this website before? https://cfsremission.com/
I truly believe many of us are suffering from CFS/ME as a result of the antibiotics we took and this website is like an encyclopedia of the condition. The guy running it is extremely knowledgeable on the subject since he, too, is suffering from the symptoms of CFS/ME. What caught my attention is that he has had THREE separate onsets of the disease and claims to have been in remission after each one. His onsets occurred in 1972-73, 2000-2001, and finally, 2012. He outlines basic and lengthier protocols for remission but what really caught my eye was an Australian study that he published on his blog. The study focuses on gut bacteria and paints a clear picture of what someone with a damaged gut is up against. Basically, they took bacteria samples from CFS/ME patients and compared it to a control group that had no known health issues. The results speak for themselves. A very different gut between the two with very different micoflora levels especially healthy E. Coli.
To see the results of the aforementioned study, click the link below and scroll down until you see “Gut Flora in ME/CFS from an Australian Study”.
https://cfsremission.com/my-story/
Has anyone been pretty much healed and then gets relapses after taking medication that did not bother them before?
I was 99% healed and then I took a Tylenol and then all of my floxie symptoms returned but seem to be leaving a lot quicker than original floxing?
any success stories?
my anxiety is way to high to read all the negativity
I am 8 months out and I took 2 pill of 500mg, main symptoms were muscle weakness, worst symptom was neuropathy and I am 27
Dear Lucasz,
I feel terrible about the word-mash I wrote. It sounds like I was in the movie “Dune”, on spice. Forgive me. I am rarely so embarrassed by comments I make. I am sorry from my heart.
My empathy for you is deep and undeniable. There are some things that have happened to me since my floxification that have changed me, deep within. Life and Death now seem so much closer. It has only been 9 monthes for me, and my husband is taking excellent care of me, so I am very lucky and grateful.
But I have changed.
I wish you the best life you may find. I hope your pains and sadnesses melt away along the Path. Be well, Lucasz
http://www.jessicawilliams.com
Lucasz, Spice was the drug from the planet Arrakis that made space travel possible by folding space. I was on RSO and Norco, plus prednisone. Sorry my folding crashed into your Mothership! I am thankful that you are a reasonable man, and a fair Captain. To be good, kind, and strong is evidenced in your commitment to help others.
Peacelovesanity
Jessica
Has anyone experienced a sensation of something being stuck in their eye post-floxing? Almost like something is crawling inside? It’s probably nerve damage inside my eye socket but I’m curious if anyone else has experienced this? Even though this issue is under a month old, my very first symptom after being poisoned by Clarithromycin was muscle spams on my eyelid, the same eye that is now giving me problems on the inside. Could this be nerve damage from the drugs or a symptom of something else like thyroid disorder? There are times when it gets better and I hardly notice/feel it, but at other times, it’s a nuisance.
Anyone know what this is and what might be the cause?
The greatest place to find information to help as much as possible. To all of US we now call ourselves ” FLOXIES ” MAY this site help you on your journey to healing as much as possible. If not completely. Thirteen years later I’m still fighting off side effects. Many have disappeared others remain. No two of us are the same, what helps one may or may not help another. I found the best thing that helps all is Magnisium. Get your vitamin and mineral levels checked by a caring Dr or endocrinologist and start from there. Best of luck to you all. May your healing process begin. Never give up, no matter how bad it gets we’re still here. Other’s lost their lives with just one pill. The company needs to be held responsible and do everything possible to find a cure for all of us. Thirteen years of suffering from an FDA approved antibiotic all because I trudged a lazy Dr who never looked back for updates on these toxins to the human body. ✌ love and mostly your HEALTH.
I wonder if somebody else noticed this,so I ask. Like many floxies my healthy looking skin changed to a dry,wrinkled skin within a few weeks after getting floxed.But this year I spent a lot of time outside,and in my garden,and my skin seems to hardly get any sun tanning;it still has that pale look it had in spring.And wounds heal very slooooowly,to,and leave a sign that hardly vanishes,if,at all.
I know I’ve read something about the ability of sun tanning,and the Melanin production being damaged in Floxies,but I can’t find that info back,for now.Has anybody noticed this same symptoms? And has anybody found info about this,and NOT lost it (like I did ;-))
Well this really pisses me off. I had mentioned that someone could perhaps find a used copy of Dr Jay Cohen’s book, now that it’s out of print. Well, I went to the medication sense site which linked me to amazon sellers and the CHEAPEST was $94.74 going all the way up to (are you ready?) $706.70!!!!! (but hey, free shipping!) Amazon has a place to comment on pages so I did. This is just obscene. Now I am going to contact the publisher to see if they would do a reprinting….
Hi! Can anyone answer me? l’m anxious during the day but when the afternoon comes and the evening this feeling vanish and my tinnitus also subsides?
Dear Attila,
The stuff you do during the day is likely to be unpleasant for you. Any stressor can trigger symptoms, right? I know with me, if I watch the news, I’m going to pay later in Karma of my own design.
So I avoid any stress. I am older, and perhaps it is easier, because my health team is so organized, and I have little to worry about right now.
The experts are finding that watching movies actually helps patients who are stuck in bed. I watched “The Guardians of the Galaxy Volume 2” and never once though of my problems. Sometimes you just have to let your freak flag fly, and eat that Hagen-Daas Ice Cream or spend that $20 for “Endgame”.
When my own evening comes, it’s husband, bed, (omg it feels good to lie down), sometimes a small snack like fruit or cottage cheese, my sleep meds, and the best cannabis I have. It’s not an addiction. It’s my medicine, prescribed by my physician, and it’s wonderful. I sleep soundly for the first time in my life. I take my RSO with milk and cinnamon. Okay, nutmeg and vanilla too. I have rituals. I rub marijuana cream into my joints.
I am still ambulatory enough to get around the house by myself. I am lucky!
Your tinnitus is a good indicator of heart rhythm and steadiness. When I can hear the crickets, I know I am making progress. It means the pressure is off and you can finally relax, and lordie have I know some uptight people that would not ever relax. Wired tight as drums. “White people waiting to die” could be a theme for my elderly neighbors, but for me, I choose the future, and I want to leave the world better for the children. This is all about the kids. I want to be the best role-model I can be.
Good luck and love, Attila. It sounds like you have “Bright Moments”. Trust in those moments, and be a giver, always. Things will come to you as you need them, I pray.
http://www.jessicawilliams.com
I am assuming I’m not the only one seeing the last 3 posts about sex and dating apps?? Don’t know what is up with this? Somebody is an idiot or we have a hacker??? Everyone else seeing this??
Hi – Has anyone had any issues with spa or pool chemicals after FQ issues? I would like to swim gently but am afraid of a reaction. Thanks
Has anyone has success with the book “Fluoroquinolone Toxicity Solution” – is it worth the $40
Here some science on FQ toxicity,and suggestions on treatment:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5632915/
5 Best Casual Dating Apps: http://v.ht/iUlkH?&usckk=XYIVo5
Jessica As bad I feel, I want to trudge on (pain and all) for my angel wife. I want to make her proud of me. She actually told me she wishes she could take some of the pain to make me feel better. On another note, how did you justify the cannabis? Was it for pain relief or sleep improvement. Do you smoke it or do you ingest another way. Sorry to ask but I have never tried it in my life – certainly thinking about it to improve my quality of life.
Thanks in advance
What a wonderfull world:
https://childrenshealthdefense.org/child-health-topics/known-culprit/ultrasound/prenatal-ultrasound-not-so-sound-after-all/
Can someone address the depersonalization issue from being floxed I feel really weird and wondered what others experiences might be, thanks
Hi – has anyone had success with a glutton free or low glutton diet? I have read that some people have improved – other say they eat what they want (for the most part) with no issues.
Thanks