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Fred S
5 years ago
My recovery 12 days out is going slowly but progressing. Sleep is a bit better with melatonin (and maybe PQQ). Joint pain has subsided (not sure why). I am able to do coffee again. The fog lifts some /most of the day – still have cases of fog at work (just not myself). My eyes still get dry – I use drops a few times a day or put a warm cloth over my eyes. Hopefully this goes away. The one thing that I do notice is I feel no joy or happiness with things I normally love – music, books, sports. Also my libido is gone which sucks. Maybe it is depression – not sure. Does anyone else have these issues? is it PTSD? Appreciate any comments.
Fred S
5 years ago
I head a few people mention Kratom as a supplement to ease pain and anxiety. If you have experienced why type / dosage would you recommend. I see it for sale at various sites but am a bot afraid to try it. Thanks
R
5 years ago
The best thing you can do for yourself if you’ve been floxed… Is to give up. That’s the stage I’ve finally reached after 4 years of this hell. I went from being an active, athletic 29 year old, to a crippled 33 year old who gets to watch all of his friends enjoy life while I’m left behind and unable to explain to people what’s wrong with me. Anyone I’ve tried to convince about my problems has treated me as a crazy person.
I’ve scoured the internet and tried every option, but nothing has helped. I’m giving up. You should all do yourselves a favor and do the same. Just become a hermit. Its the best life people like us can hope for at this point.
Even the recovery stories are super depressing. Someone is floxed for 5 years, and itll be a person who used to be super athletic/active etc., and they’ll declare that they have recovered because they can now go on a leisurely half-mile walk outside without too much pain. If thats the best we can hope for, its time to give up hope. Goodbye.
Madge Hirsch
5 years ago
Well said Barbara. Even if the “new normal” is a lot worse than the pre flox normal there is still hope it will improve. At 33 there is still plenty of time to recover. Maybe us oldies are just better at putting up with pain and disability. I could not do long haul flights 20 years ago due to the seats being instruments of torture for my back but I can still climb on our motor bike and do short trips to neighbouring departments.
I have just had my check up blood tests and discovered that my TSH has risen a lot so maybe my latest relapse has been so bad because of that. I have put my thyroid meds up a bit but have to be careful not to increase too quickly for fear of provoking my afib .I have had a lot of pain down my right leg and muscle cramping. The muscle cramps have improved here’s hoping the pain will too. Where do you buy your kratom? I have experimented with using CBD oil topically for my painful knees and I think it has helped. There was an interesting program on BBC 2 last night about medical cannabis. Hope your ankle pain improves soon.
A.Coleman
5 years ago
Hi everybody – just a quick update to let you know I am still here and unlike R – still planning for complete / nearly complete healing someday. I haven’t posted in over a month I see. Thankfully that is due to feeling better not worse. I have seemingly turned the corner on my light-headedness and head pressure / headaches. They are still present 24 hours a day; but much less impactful (level 1 to 3 now) and I have had a few really good days since the beginning of August.
I have developed a pretty complex theory about what caused them but it boils down to Cerebral Spinal Fluid leaks. The dots all line up with that as the cause and even explain some of my other symptoms.
I also wonder if anyone has been to a sleep center to get help with insomnia? Before floxing I slept like a baby (8 hours plus nightly) – now post floxing I typically get around 5 to 6 hours of sleep a night and that is interrupted. I typically go to sleep fine but wake around 2 and spend at least an hour or more awake. Some nights I never get back to sleep.
Insomnia is better than when I was first floxed, but not a lot. I will go through stretches of sleeping through the night for four or five days but then revert to waking up around 2 for the next month or so. I have tried everything – melatonin, valerian, cherry juice (which is really natural melatonin), and more. Narcotics work and I do have a bottle of Ambien, but I have only taken 4 or 5 since I was floxed. My rule is not to take them unless I sleep 4 hours or less for three nights in a row prior. I am thinking about going to a sleep clinic for counseling. Only thing that kind of works is no computer / tv at least an hour before bed combined with getting up after 30 minutes of being awake in the night and then not using computer / tv and going back to bed 30 to 45 minutes later. Needless to say my reading has increased a lot, as has listening to music (quietly without earbuds) – LOL.
Anybody have any advice that doesn’t include any of the herbals I have already tried?
My 4 year floxiversary is coming up next month. I will post a detailed message updating my symptoms and their improvements then.
Fred S
5 years ago
First semi-normal brain day at work – I actually made through the day and a number of meetings with a very clear mind. Not sure if it was vitamin D (which I found I was very low on from a blood test), the B12 or the 3000 mg of vitamin C. Whatever it was I want more of it.
Fred S
5 years ago
How do you guys deal with the natural depression / blues / anxiety you get with this malady? I see people (especially where I work) living normal lives exercising, drinking and having fun while I am left to taking my regime of supplements. The other horrible aspect of this malady is the uncertainty of what will happen in 5,10 or 15 year – it really drives me crazy. Today it became overwhelming and had this feeling suffocation (almost panic) – very odd. Does anyone get these thoughts and how do you deal with it? Thanks
Fred S
5 years ago
Hi – General question as I navigate through this. The number of supplements can be dizzying – I see a new blog that someone used something different (and it worked) and wonder where it fits in the picture. There seems to be so many issues with taking the right amount of X with Y. I am thinking of going with a good, solid multi-vitamin base (to ensure I get everything if my diet fails) and add more where needed (for example Mag). Would appreciate any advise. Thanks
Fred S
5 years ago
Hi – One more question for those that have tried IV I a seeing a ND this week and suspect he may want to do an IV (for $250 US). What is typically in the IV and did it work? Is $250 a reasonable price? For those in the US – is it typically covered with insurance? Should I be careful of the IV especially if I am taking supplements already? Thanks in advance
Fred S
5 years ago
Well – a little over two weeks out and I went to the gym to keep my sanity and maybe help with sleep. Did recumbent bike with elliptical like arm handles for 20 minutes and did the elliptical for 5 minutes. Felt good to get body temp up and generate some endorphin activity. Also did very light weights which felt ok. Still very weak and I don’t trust my joints yet (and will take it very, very easy for at least 2 months maybe longer). Feel my muscles twitching a bit after but ok. I feel like my body has been destroyed – pretty sad.
Fred S
5 years ago
How does everyone experience joy after having this happen? Very difficult right now to be honest. Feels like my brain is alive but the rest of my body is dead.
Fred S
5 years ago
The bitter irony I encountered today is paying the organization and doctor who floxed me (and ruined my good health). Not feeling good about it.
Fred S
5 years ago
I am now paranoid over my Achilles tendon with slight pain today while walking – immediately stopped and put mag oil on it. Has anyone experienced ruptures or partial tears? If so, what were the signs? I squeezed on the tendon with my fingers and did not feel any pain – could be an ankle ligament or muscle issue. May go to doc for MRI to be sure.
L
5 years ago
I wanted to post this link because I think it may have valuable info for everyone on the site. This doesn’t happen until Oct but you can sign up now to get a link. Yes, they have stuff for sale, but you don’t have to buy anything. You can watch for free. I spent the last week watching as many videos as I could (they are usually only offered for free for 24 hours) regarding the dangers of 5g. I got some invaluable information, not just on its dangers and how to help combat it but also how to help fight to keep it out of your town. Anyhow, I am signing up for this and wanted to let others know. Again you don’t have to buy anything unless you want a permanent cd of it. http://bodyelectricsummit.com/?idev_id=11469
L
5 years ago
ooops, forgot to mention…the above link is for talks on The Body Electric Summit — Drs. Christine Schaffner and Dietrich Klinghardt : How to crack your energetic code
+ How to heal old trauma
+ How to leverage pulsed EMF and neurofeedback
+ Determine if you’re highly sensitive to energy
+ Measure the impact of cell phone frequencies
+ Discover how to use red light and photodynamic therapies
+ Understand biomagnetism, bioenergy and beyond
Fred J Scott
5 years ago
For those who take CBD to sleep – how much did you have to take to nod off? I weight 195 – I think I need 20-30 mg – interested to see how much others have needed. Thanks in advance.
sheila
5 years ago
I have been checking and double checking my supplement after questions about it and L. I don’t see any green tea listed on this label, and all the vegetables used are organic, all the fruits used are organic, I have now asked the company and waiting for a response to some of the questions and remarks thrown out about it…….if you go to megafood dot com you can see how the products are made and read all about the ingredients….
Thing is this is a site for suggestions from people who have had a product that worked for them even being floxed and that’s all I did – this works great for me I can’t do green tea due to the caffeine and this doesn’t have it listed……it’s gentle and has less folate than any other vitamin in the vegan or vegetarian products…….
I am not telling anyone they have to use it…. I was asked what I used and this is it, I explained why I liked it and why I continue to use it that’s all……and once again no one should take anything without first researching it for themselves but that’s what the original question was for – to find out where to begin with so many options out there it took me days to finally make the decision to try this one and I did it with trepidation but now I am glad I did cause I feel a lot better and at least know I am getting organic products and vegan sources
sometimes trying to be helpful can be a pain in the arse……..
Fred they do have a Men’s Health one if you are interested I saw it on their website
Lukasz
5 years ago
Can anyone recommend a good acupuncturist in Toronto? Preferably one that has treated people with pharmaceutical toxicity?
Fred S
5 years ago
I am set to see a ND tomorrow who has 15 years of experience with this specific issue. One quick question for those who have done this before – should I expect him to lay our a detailed plan (supplements, diet, IVs and other treatments)? Not exactly sure what to expect. Appreciate any input you may have. I have never been to a ND before – new terrain for me. Thanks in advance
63chevyii
5 years ago
I’ve spent a bunch of time thinking about what’s happened to me health-wise since being floxed.
Exhaustion, body aches and joint pain
Torn labrum (right shoulder).
Marked increase in anxiety levels
Reflux
Increase with tinnitus and hearing issues
Extreme DOMS post exercise
Torn bicep tendon
Insomnia
Nerve pain on face (mild tingling or burning sensation)
IBS-like symptoms
Right knee pain making it difficult to walk at times, occasional left achilles tendon pain
Random “buzzing” or vibration sensation in quads.
The scary thing is things are getting worse still …
My recovery 12 days out is going slowly but progressing. Sleep is a bit better with melatonin (and maybe PQQ). Joint pain has subsided (not sure why). I am able to do coffee again. The fog lifts some /most of the day – still have cases of fog at work (just not myself). My eyes still get dry – I use drops a few times a day or put a warm cloth over my eyes. Hopefully this goes away. The one thing that I do notice is I feel no joy or happiness with things I normally love – music, books, sports. Also my libido is gone which sucks. Maybe it is depression – not sure. Does anyone else have these issues? is it PTSD? Appreciate any comments.
I head a few people mention Kratom as a supplement to ease pain and anxiety. If you have experienced why type / dosage would you recommend. I see it for sale at various sites but am a bot afraid to try it. Thanks
The best thing you can do for yourself if you’ve been floxed… Is to give up. That’s the stage I’ve finally reached after 4 years of this hell. I went from being an active, athletic 29 year old, to a crippled 33 year old who gets to watch all of his friends enjoy life while I’m left behind and unable to explain to people what’s wrong with me. Anyone I’ve tried to convince about my problems has treated me as a crazy person.
I’ve scoured the internet and tried every option, but nothing has helped. I’m giving up. You should all do yourselves a favor and do the same. Just become a hermit. Its the best life people like us can hope for at this point.
Even the recovery stories are super depressing. Someone is floxed for 5 years, and itll be a person who used to be super athletic/active etc., and they’ll declare that they have recovered because they can now go on a leisurely half-mile walk outside without too much pain. If thats the best we can hope for, its time to give up hope. Goodbye.
Well said Barbara. Even if the “new normal” is a lot worse than the pre flox normal there is still hope it will improve. At 33 there is still plenty of time to recover. Maybe us oldies are just better at putting up with pain and disability. I could not do long haul flights 20 years ago due to the seats being instruments of torture for my back but I can still climb on our motor bike and do short trips to neighbouring departments.
I have just had my check up blood tests and discovered that my TSH has risen a lot so maybe my latest relapse has been so bad because of that. I have put my thyroid meds up a bit but have to be careful not to increase too quickly for fear of provoking my afib .I have had a lot of pain down my right leg and muscle cramping. The muscle cramps have improved here’s hoping the pain will too. Where do you buy your kratom? I have experimented with using CBD oil topically for my painful knees and I think it has helped. There was an interesting program on BBC 2 last night about medical cannabis. Hope your ankle pain improves soon.
Hi everybody – just a quick update to let you know I am still here and unlike R – still planning for complete / nearly complete healing someday. I haven’t posted in over a month I see. Thankfully that is due to feeling better not worse. I have seemingly turned the corner on my light-headedness and head pressure / headaches. They are still present 24 hours a day; but much less impactful (level 1 to 3 now) and I have had a few really good days since the beginning of August.
I have developed a pretty complex theory about what caused them but it boils down to Cerebral Spinal Fluid leaks. The dots all line up with that as the cause and even explain some of my other symptoms.
I also wonder if anyone has been to a sleep center to get help with insomnia? Before floxing I slept like a baby (8 hours plus nightly) – now post floxing I typically get around 5 to 6 hours of sleep a night and that is interrupted. I typically go to sleep fine but wake around 2 and spend at least an hour or more awake. Some nights I never get back to sleep.
Insomnia is better than when I was first floxed, but not a lot. I will go through stretches of sleeping through the night for four or five days but then revert to waking up around 2 for the next month or so. I have tried everything – melatonin, valerian, cherry juice (which is really natural melatonin), and more. Narcotics work and I do have a bottle of Ambien, but I have only taken 4 or 5 since I was floxed. My rule is not to take them unless I sleep 4 hours or less for three nights in a row prior. I am thinking about going to a sleep clinic for counseling. Only thing that kind of works is no computer / tv at least an hour before bed combined with getting up after 30 minutes of being awake in the night and then not using computer / tv and going back to bed 30 to 45 minutes later. Needless to say my reading has increased a lot, as has listening to music (quietly without earbuds) – LOL.
Anybody have any advice that doesn’t include any of the herbals I have already tried?
My 4 year floxiversary is coming up next month. I will post a detailed message updating my symptoms and their improvements then.
First semi-normal brain day at work – I actually made through the day and a number of meetings with a very clear mind. Not sure if it was vitamin D (which I found I was very low on from a blood test), the B12 or the 3000 mg of vitamin C. Whatever it was I want more of it.
How do you guys deal with the natural depression / blues / anxiety you get with this malady? I see people (especially where I work) living normal lives exercising, drinking and having fun while I am left to taking my regime of supplements. The other horrible aspect of this malady is the uncertainty of what will happen in 5,10 or 15 year – it really drives me crazy. Today it became overwhelming and had this feeling suffocation (almost panic) – very odd. Does anyone get these thoughts and how do you deal with it? Thanks
Hi – General question as I navigate through this. The number of supplements can be dizzying – I see a new blog that someone used something different (and it worked) and wonder where it fits in the picture. There seems to be so many issues with taking the right amount of X with Y. I am thinking of going with a good, solid multi-vitamin base (to ensure I get everything if my diet fails) and add more where needed (for example Mag). Would appreciate any advise. Thanks
Hi – One more question for those that have tried IV I a seeing a ND this week and suspect he may want to do an IV (for $250 US). What is typically in the IV and did it work? Is $250 a reasonable price? For those in the US – is it typically covered with insurance? Should I be careful of the IV especially if I am taking supplements already? Thanks in advance
Well – a little over two weeks out and I went to the gym to keep my sanity and maybe help with sleep. Did recumbent bike with elliptical like arm handles for 20 minutes and did the elliptical for 5 minutes. Felt good to get body temp up and generate some endorphin activity. Also did very light weights which felt ok. Still very weak and I don’t trust my joints yet (and will take it very, very easy for at least 2 months maybe longer). Feel my muscles twitching a bit after but ok. I feel like my body has been destroyed – pretty sad.
How does everyone experience joy after having this happen? Very difficult right now to be honest. Feels like my brain is alive but the rest of my body is dead.
The bitter irony I encountered today is paying the organization and doctor who floxed me (and ruined my good health). Not feeling good about it.
I am now paranoid over my Achilles tendon with slight pain today while walking – immediately stopped and put mag oil on it. Has anyone experienced ruptures or partial tears? If so, what were the signs? I squeezed on the tendon with my fingers and did not feel any pain – could be an ankle ligament or muscle issue. May go to doc for MRI to be sure.
I wanted to post this link because I think it may have valuable info for everyone on the site. This doesn’t happen until Oct but you can sign up now to get a link. Yes, they have stuff for sale, but you don’t have to buy anything. You can watch for free. I spent the last week watching as many videos as I could (they are usually only offered for free for 24 hours) regarding the dangers of 5g. I got some invaluable information, not just on its dangers and how to help combat it but also how to help fight to keep it out of your town. Anyhow, I am signing up for this and wanted to let others know. Again you don’t have to buy anything unless you want a permanent cd of it. http://bodyelectricsummit.com/?idev_id=11469
ooops, forgot to mention…the above link is for talks on The Body Electric Summit — Drs. Christine Schaffner and Dietrich Klinghardt : How to crack your energetic code
+ How to heal old trauma
+ How to leverage pulsed EMF and neurofeedback
+ Determine if you’re highly sensitive to energy
+ Measure the impact of cell phone frequencies
+ Discover how to use red light and photodynamic therapies
+ Understand biomagnetism, bioenergy and beyond
For those who take CBD to sleep – how much did you have to take to nod off? I weight 195 – I think I need 20-30 mg – interested to see how much others have needed. Thanks in advance.
I have been checking and double checking my supplement after questions about it and L. I don’t see any green tea listed on this label, and all the vegetables used are organic, all the fruits used are organic, I have now asked the company and waiting for a response to some of the questions and remarks thrown out about it…….if you go to megafood dot com you can see how the products are made and read all about the ingredients….
Thing is this is a site for suggestions from people who have had a product that worked for them even being floxed and that’s all I did – this works great for me I can’t do green tea due to the caffeine and this doesn’t have it listed……it’s gentle and has less folate than any other vitamin in the vegan or vegetarian products…….
I am not telling anyone they have to use it…. I was asked what I used and this is it, I explained why I liked it and why I continue to use it that’s all……and once again no one should take anything without first researching it for themselves but that’s what the original question was for – to find out where to begin with so many options out there it took me days to finally make the decision to try this one and I did it with trepidation but now I am glad I did cause I feel a lot better and at least know I am getting organic products and vegan sources
sometimes trying to be helpful can be a pain in the arse……..
Fred they do have a Men’s Health one if you are interested I saw it on their website
Can anyone recommend a good acupuncturist in Toronto? Preferably one that has treated people with pharmaceutical toxicity?
I am set to see a ND tomorrow who has 15 years of experience with this specific issue. One quick question for those who have done this before – should I expect him to lay our a detailed plan (supplements, diet, IVs and other treatments)? Not exactly sure what to expect. Appreciate any input you may have. I have never been to a ND before – new terrain for me. Thanks in advance
I’ve spent a bunch of time thinking about what’s happened to me health-wise since being floxed.
Exhaustion, body aches and joint pain
Torn labrum (right shoulder).
Marked increase in anxiety levels
Reflux
Increase with tinnitus and hearing issues
Extreme DOMS post exercise
Torn bicep tendon
Insomnia
Nerve pain on face (mild tingling or burning sensation)
IBS-like symptoms
Right knee pain making it difficult to walk at times, occasional left achilles tendon pain
Random “buzzing” or vibration sensation in quads.
The scary thing is things are getting worse still …
More details are posted here, under my week 13 update:
https://www.hikerstrong.com/levofloxacin-induced-tendon-rupture#week13