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Don M
5 years ago
Atilla……..Paracetamol, also known as acetaminophen….. Paracetamol is just another name for acetaminophen. https://en.wikipedia.org/wiki/Paracetamol “Acetaminophen can cause serious liver damage if more than directed is used”. As with any pain killer caution should be used and definitely find out the places where acetaminophen use is more dangerous.
As I keep promoting ….. Try the light therapy. No drugs, no harm to the body and it works.
Dee
5 years ago
Saff, when you reacted to Lidocaine what were your symptoms??? How long had you been floxed when you reacted?? Did your reaction come on right away or over several days or weeks??? Are you completely recovered now from that reaction and floxing??? It has been 3 days since my lidocaine shots and I noticed my neuropathy ( tingling, pins/needles) not any pain, is a lot more ramped up! I hope this is just a flare up that won’t last long!!??? You said it took you months to get better after lidocaine?? That is scary but good news is you got better!! Just curious about your story! Thank you Siff!!!
A.Coleman
5 years ago
I need the opinion of the wise Floxie sages, please. As many of you know I am getting closer to getting well, but I hit a snag.
Here is the background that matters. Nerve and digestive problems have been the primary problems for me. Digestion is much better and nerve problems have also been pretty good last 12 months. I was floxed a little over four years ago.
I am C677T MTHFR. Main symptoms as of a month ago were brain fog, headaches, head pressure and newly developed anxiety / panic attacks. A month ago I was taking the following – methylated B vitamins (one of which included ALA), liposomal glutathione, Mg, Vitamin D, CoQ10, carnitine, arginine, and electrolytes. I have been taking B vitamins for nearly the full four years since being floxed. I have been taking methylated forms for over two years since I found out I was C677T. I did not tolerate the fully methylated form of folate at first, so was taking folinic acid form. I switched to a fully methylated form around 6 months ago and was taking 1/2 dose of that alternating weekly with 1/2 dose of the folinic acid form and then 1/2 dose of a general food based B vitamin every day. Last time my B levels were checked they were all high normal – about 9 months ago. Prior to that test I cut my overall B supplementation in half.
Trying to solve headaches I was slowly eliminating supplements – CoQ10, arginine, carnitine. Two weeks ago I dropped the glutathione.
Well that was both a good move and a bad move. I had a couple of great days and then boom had a horrible panic attack and anxiety. Then last Friday it was so bad I could hardly function. I read up online and discovered that the symptoms of overmethylation were exactly what I had been experiencing. (See this article on the MTHFR.net website – http://mthfr.net/overmethylation-and-undermethylation-case-study/2012/06/27/). Links on that webpage take you to information about avoiding methylfolate side effects.
So, I started taking low dose Niacin (25mg) as needed and stopped my B vitamins. Now 10 days later the brain fog is much better, headaches and head pressure are a lot better and I basically feel pretty good for a floxie at least. The problem is that without the B vitamins my peripheral neuropathy is coming back pretty fast. My feet now hurt about like they did 18 to 24 months ago; they fluctuate a bit from day to day but the trend is down.
So, how do I balance this? In the above article they talk about the importance of taking glutathione and electrolytes when supplementing with methylated B vitamins. They also suggest hydroxycobalmin (B12) and folinic acid instead of the fully methylated variants. I re-added the glutathione and have had no issues.
Now what’s next? Re-add my old B vitamin with folinic acid at a lower dose and be sure to take glutathione and electrolytes? My integrative medicine specialist is the one who discovered the MTHFR issue. HOWEVER, I figured out the over-methylation issues on my own and don’t think she has a ton of MTHFR experience. Or contact a naturopath online; quite a few position themselves as MTHFR specialists? And if so, does anyone have any recommendations for a naturopath who takes patients over the phone and specializes in MHTFR?
I am considering tinkering on my own – worst case scenario I over-methylate again, take Niacin for the short term and make modifications; because it is free and can be started immediately; then if I can’t figure it out alone I can go to the specialists.
I really, really think I am getting close and think that MTHFR issues caused by the floxing are really the main thing left for me to solve. I think my current problems are probably 80% due to MTHFR and 20% due to remaining floxie issue. THANKS EVERYONE!
Dee
5 years ago
Saff. Thanks for getting back!! I was glad to hear you were better from lidocaine within 3 months!!! I have hope that my neuropathy and also itchy skin ( which is after lidocaine) will soon get better!! Fingers crossed!!!! I am also 28 months out so 2+ years later reacting!! Argh!! Do you feel fully recovered now from floxing?? I will tell you that I had to get a colonoscopy and endoscopy and they put me out with propofol. That is a milder anesthesia. I had no problems with it and most Floxie’s I talked with did fine with it. I haven’t had to have a surgery with stronger anesthesia and hope I don’t have to!! Hopefully you will also avoid surgery for a very long time or forever would be even better!!!! I hope you are fully or mostly recovered!!! I have a little ways to go. Still have some early morning insomnia and digestive issues upon waking up meaning many runs to the bathroom!! Anyway thanks for getting back to me!!
Michael
5 years ago
Hi guys, Hope everybody is doing well / coping as best we can under the circumstances. Quick question: for those who developed neuropathy post-floxxing, can you please describe:
a) the parts affected and whether it was broadly speaking ‘length-dependent’ (i.e worse the further away from your body, feet > hands)
b) how long you had it for before it resolved or if not resolved yet, how long you have had it for
c) what sort of sensations you experienced
d) whether the symptoms ‘cycled’ or not (i.e. were they more or less continuous or did you have flare-up and symptom-free periods)
Me first:
a) mine at present is in my arms and legs, but much more so in my legs, with only a little bit of dysaesthesia in my upper arms, and much worse symptoms in my feet and otes
b) I have had my symptoms for about 4 months, they got a bit better at the 1 month mark, then worse again and slowly started improving but got worse again in the last few days
c) all sorts of sensations: predominantly burning dysaesthesia, but also tingling, stabbing, stinging, buzzing, fluttering….. you name it.
d) my symptoms have been cyclical so far in that they tend to vary in severity both during the day (worse first thing and in the evening) as well as on a day by day basis with some days relatively symptom free and may be like that for a few days, with flare ups in between.
Thanks and God bless,
Michael
jo
5 years ago
Hello Henk
I remember you talked about tamarind before. Does it seem to help? What does it do for you?
Thanks
Jo
jo
5 years ago
I also wanted to ask if anyone knows if sauna helps for these detox mutations?
Sheila
5 years ago
Ok I’m gonna try one last time to get someone to at least respond with an “I don’t know” or “never had that issue” or “I’ll look into it” just something before I unsubscribe from the group. I find it disheartening to say the least to see so many comments sometimes for days/weeks about things like light bulbs, supplements, vitamins, intravenous treatments and the like yet every time I ask a simple question one that I have asked 5 times now since I joined, I get crickets, not a word to even acknowledge just the posting. I even shared this last time some very personal parts of my life in hopes of getting someone to see how desperately I need input from others on this issue and still nothing but crickets. So here’s the question that keeps everyone from responding – is anyone else suffering with depersonalization it has been listed as a symptom of being floxed… if so how are you dealing with it??? Why is this such a taboo question to the point that no one even acknowledges I asked?? I’m so frustrated and dumbfounded that no one addresses this, especially since I have asked 5 times already …….it’s bad enough that we are all suffering with this toxicity but for me to have found a group that actually validates my symptoms and suffering to then be ignored when I reach out for answers – well I can get that response from my doctors. Maybe no one bothered to read my last post… I don’t know… but even that would be reason to unsubscribe since it seems that others that post get an answer from someone within 24 hours so it always surprises me when my posts get totally ignored. I was hoping to learn how to deal with my issues by being able to ask questions even though I do not intend on doing some of the treatments that have been suggested to others because they just don’t seem right for me – I do ask questions so I can pick the right suggestion/path for me but this one question is the worst one for me right now and I am getting no input/response – is there a reason this topic is not getting answers? If there is it would be nice to know rather than be ignored especially after sharing some personal info it makes me feel like I shouldn’t have shared much less asked the question……I have for the most part gotten some useful information here in group especially when I wanted a vitamin regimen – thank you to all who have talked with me about other issues and at least I did feel validated that my physical pain was and is real and caused by something other than age as my doctor keeps wanting to say. Anyone know why this particular question is avoided?? I look forward to hearing from someone.
Michael
5 years ago
Guys on the subject of light bulbs (seeing as its topical!) has anybody tried the Bioptron?
A friend of mine used it for concussion and swears by it. Not sure if it might be helpful for some of our issues e.g. neuropathy or joint pain.
I think the theory is that it helps activate mitochondria which would be exactly counteracting the supposed mechanism (or one of the supposed mechanisms) of FQ toxicity.
Michael
Dee
5 years ago
Bob (from Washington) are you still following this site?? Was just wondering how you are doing???? Haven’t heard from you in a long time! I hope and pray that you are improving and getting better day by day!!!
Andrea
5 years ago
I don’t know if this is just a bunch of greedy lawyers, so be careful, but it was on my reccomended video to watch on YouTube, and I thought to share it with you https://youtu.be/u06YK-_QnNw
Binary options + Cryptocurrency = $ 4662 per week: https://make-2-btc-per-day.blogspot.tw?j=89
Bob, I sent a post earlier to see how you were doing but I put (Bob from WA.). I think I was thinking of a different Bob?? I was reaching out to the Bob who reacted to the septocaine??? I hope you are starting to heal and recover more and more!!?? I also was seeing if you still are doing the homeopathic remedies? I figured you probably stopped those? I hope things are improving for you!!!
Has anyone had a lawyer or someone take their case? It seems like most firms I reached out to that were recommended here are no longer taking these antibiotic cases. Has anyone sued their doctor or pharmacy?
I haven’t tried that firm but will try them. Thank you for the advice but it seems like most firms arent taking these cases at all. I tried calling like 20-30 places and each one seems to have stopped taking these cases. Last firm I called said they stopped taking fluoroquinolone case in November 2018.
Henk Noordhuizen
5 years ago
Another unexpected fluorid source,adding to the CO2 and climate disaster:
Atilla……..Paracetamol, also known as acetaminophen….. Paracetamol is just another name for acetaminophen. https://en.wikipedia.org/wiki/Paracetamol “Acetaminophen can cause serious liver damage if more than directed is used”. As with any pain killer caution should be used and definitely find out the places where acetaminophen use is more dangerous.
As I keep promoting ….. Try the light therapy. No drugs, no harm to the body and it works.
Saff, when you reacted to Lidocaine what were your symptoms??? How long had you been floxed when you reacted?? Did your reaction come on right away or over several days or weeks??? Are you completely recovered now from that reaction and floxing??? It has been 3 days since my lidocaine shots and I noticed my neuropathy ( tingling, pins/needles) not any pain, is a lot more ramped up! I hope this is just a flare up that won’t last long!!??? You said it took you months to get better after lidocaine?? That is scary but good news is you got better!! Just curious about your story! Thank you Siff!!!
I need the opinion of the wise Floxie sages, please. As many of you know I am getting closer to getting well, but I hit a snag.
Here is the background that matters. Nerve and digestive problems have been the primary problems for me. Digestion is much better and nerve problems have also been pretty good last 12 months. I was floxed a little over four years ago.
I am C677T MTHFR. Main symptoms as of a month ago were brain fog, headaches, head pressure and newly developed anxiety / panic attacks. A month ago I was taking the following – methylated B vitamins (one of which included ALA), liposomal glutathione, Mg, Vitamin D, CoQ10, carnitine, arginine, and electrolytes. I have been taking B vitamins for nearly the full four years since being floxed. I have been taking methylated forms for over two years since I found out I was C677T. I did not tolerate the fully methylated form of folate at first, so was taking folinic acid form. I switched to a fully methylated form around 6 months ago and was taking 1/2 dose of that alternating weekly with 1/2 dose of the folinic acid form and then 1/2 dose of a general food based B vitamin every day. Last time my B levels were checked they were all high normal – about 9 months ago. Prior to that test I cut my overall B supplementation in half.
Trying to solve headaches I was slowly eliminating supplements – CoQ10, arginine, carnitine. Two weeks ago I dropped the glutathione.
Well that was both a good move and a bad move. I had a couple of great days and then boom had a horrible panic attack and anxiety. Then last Friday it was so bad I could hardly function. I read up online and discovered that the symptoms of overmethylation were exactly what I had been experiencing. (See this article on the MTHFR.net website – http://mthfr.net/overmethylation-and-undermethylation-case-study/2012/06/27/). Links on that webpage take you to information about avoiding methylfolate side effects.
So, I started taking low dose Niacin (25mg) as needed and stopped my B vitamins. Now 10 days later the brain fog is much better, headaches and head pressure are a lot better and I basically feel pretty good for a floxie at least. The problem is that without the B vitamins my peripheral neuropathy is coming back pretty fast. My feet now hurt about like they did 18 to 24 months ago; they fluctuate a bit from day to day but the trend is down.
So, how do I balance this? In the above article they talk about the importance of taking glutathione and electrolytes when supplementing with methylated B vitamins. They also suggest hydroxycobalmin (B12) and folinic acid instead of the fully methylated variants. I re-added the glutathione and have had no issues.
Now what’s next? Re-add my old B vitamin with folinic acid at a lower dose and be sure to take glutathione and electrolytes? My integrative medicine specialist is the one who discovered the MTHFR issue. HOWEVER, I figured out the over-methylation issues on my own and don’t think she has a ton of MTHFR experience. Or contact a naturopath online; quite a few position themselves as MTHFR specialists? And if so, does anyone have any recommendations for a naturopath who takes patients over the phone and specializes in MHTFR?
I am considering tinkering on my own – worst case scenario I over-methylate again, take Niacin for the short term and make modifications; because it is free and can be started immediately; then if I can’t figure it out alone I can go to the specialists.
I really, really think I am getting close and think that MTHFR issues caused by the floxing are really the main thing left for me to solve. I think my current problems are probably 80% due to MTHFR and 20% due to remaining floxie issue. THANKS EVERYONE!
Saff. Thanks for getting back!! I was glad to hear you were better from lidocaine within 3 months!!! I have hope that my neuropathy and also itchy skin ( which is after lidocaine) will soon get better!! Fingers crossed!!!! I am also 28 months out so 2+ years later reacting!! Argh!! Do you feel fully recovered now from floxing?? I will tell you that I had to get a colonoscopy and endoscopy and they put me out with propofol. That is a milder anesthesia. I had no problems with it and most Floxie’s I talked with did fine with it. I haven’t had to have a surgery with stronger anesthesia and hope I don’t have to!! Hopefully you will also avoid surgery for a very long time or forever would be even better!!!! I hope you are fully or mostly recovered!!! I have a little ways to go. Still have some early morning insomnia and digestive issues upon waking up meaning many runs to the bathroom!! Anyway thanks for getting back to me!!
Hi guys, Hope everybody is doing well / coping as best we can under the circumstances. Quick question: for those who developed neuropathy post-floxxing, can you please describe:
a) the parts affected and whether it was broadly speaking ‘length-dependent’ (i.e worse the further away from your body, feet > hands)
b) how long you had it for before it resolved or if not resolved yet, how long you have had it for
c) what sort of sensations you experienced
d) whether the symptoms ‘cycled’ or not (i.e. were they more or less continuous or did you have flare-up and symptom-free periods)
Me first:
a) mine at present is in my arms and legs, but much more so in my legs, with only a little bit of dysaesthesia in my upper arms, and much worse symptoms in my feet and otes
b) I have had my symptoms for about 4 months, they got a bit better at the 1 month mark, then worse again and slowly started improving but got worse again in the last few days
c) all sorts of sensations: predominantly burning dysaesthesia, but also tingling, stabbing, stinging, buzzing, fluttering….. you name it.
d) my symptoms have been cyclical so far in that they tend to vary in severity both during the day (worse first thing and in the evening) as well as on a day by day basis with some days relatively symptom free and may be like that for a few days, with flare ups in between.
Thanks and God bless,
Michael
Hello Henk
I remember you talked about tamarind before. Does it seem to help? What does it do for you?
Thanks
Jo
I also wanted to ask if anyone knows if sauna helps for these detox mutations?
Ok I’m gonna try one last time to get someone to at least respond with an “I don’t know” or “never had that issue” or “I’ll look into it” just something before I unsubscribe from the group. I find it disheartening to say the least to see so many comments sometimes for days/weeks about things like light bulbs, supplements, vitamins, intravenous treatments and the like yet every time I ask a simple question one that I have asked 5 times now since I joined, I get crickets, not a word to even acknowledge just the posting. I even shared this last time some very personal parts of my life in hopes of getting someone to see how desperately I need input from others on this issue and still nothing but crickets. So here’s the question that keeps everyone from responding – is anyone else suffering with depersonalization it has been listed as a symptom of being floxed… if so how are you dealing with it??? Why is this such a taboo question to the point that no one even acknowledges I asked?? I’m so frustrated and dumbfounded that no one addresses this, especially since I have asked 5 times already …….it’s bad enough that we are all suffering with this toxicity but for me to have found a group that actually validates my symptoms and suffering to then be ignored when I reach out for answers – well I can get that response from my doctors. Maybe no one bothered to read my last post… I don’t know… but even that would be reason to unsubscribe since it seems that others that post get an answer from someone within 24 hours so it always surprises me when my posts get totally ignored. I was hoping to learn how to deal with my issues by being able to ask questions even though I do not intend on doing some of the treatments that have been suggested to others because they just don’t seem right for me – I do ask questions so I can pick the right suggestion/path for me but this one question is the worst one for me right now and I am getting no input/response – is there a reason this topic is not getting answers? If there is it would be nice to know rather than be ignored especially after sharing some personal info it makes me feel like I shouldn’t have shared much less asked the question……I have for the most part gotten some useful information here in group especially when I wanted a vitamin regimen – thank you to all who have talked with me about other issues and at least I did feel validated that my physical pain was and is real and caused by something other than age as my doctor keeps wanting to say. Anyone know why this particular question is avoided?? I look forward to hearing from someone.
Guys on the subject of light bulbs (seeing as its topical!) has anybody tried the Bioptron?
http://www.bioptron.com/
A friend of mine used it for concussion and swears by it. Not sure if it might be helpful for some of our issues e.g. neuropathy or joint pain.
I think the theory is that it helps activate mitochondria which would be exactly counteracting the supposed mechanism (or one of the supposed mechanisms) of FQ toxicity.
Michael
Bob (from Washington) are you still following this site?? Was just wondering how you are doing???? Haven’t heard from you in a long time! I hope and pray that you are improving and getting better day by day!!!
I don’t know if this is just a bunch of greedy lawyers, so be careful, but it was on my reccomended video to watch on YouTube, and I thought to share it with you
https://youtu.be/u06YK-_QnNw
What’s the simplest way to earn $57476 a month: https://earn-2btc-per-day.blogspot.fi?d=63
Paid Surveys: Make $8762 Or More Per Week: https://7000-usd-per-day.blogspot.com.tr?g=57
Exactly how would you use $53743 to make more cash: https://get-5-btc-per-day.blogspot.pt?v=89
Lisa,please,can you do a troll-cleanup?
Bob, I sent a post earlier to see how you were doing but I put (Bob from WA.). I think I was thinking of a different Bob?? I was reaching out to the Bob who reacted to the septocaine??? I hope you are starting to heal and recover more and more!!?? I also was seeing if you still are doing the homeopathic remedies? I figured you probably stopped those? I hope things are improving for you!!!
Has anyone had a lawyer or someone take their case? It seems like most firms I reached out to that were recommended here are no longer taking these antibiotic cases. Has anyone sued their doctor or pharmacy?
I haven’t tried that firm but will try them. Thank you for the advice but it seems like most firms arent taking these cases at all. I tried calling like 20-30 places and each one seems to have stopped taking these cases. Last firm I called said they stopped taking fluoroquinolone case in November 2018.
Another unexpected fluorid source,adding to the CO2 and climate disaster:
https://articles.mercola.com/sites/articles/archive/2019/11/13/are-inhalers-major-source-of-pollution.aspx?utm_source=dnl&utm_medium=email&utm_content=art2HL&utm_campaign=20191113Z2&et_cid=DM388475&et_rid=748693887
Where it all started,and why fluorid contaminated soil is one of the Netherlands main (political) problems,now:
https://articles.mercola.com/sites/articles/archive/2019/01/15/teflon-coated-pans-health-risk.aspx