For over a decade this page has been dedicated to enabling the conversation for floxies to talk with one another. Sign up and subscribe to get all the latest comments.
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
I allow to create an account
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
It’s meant to stimulate new mitochondrial generation. This is one of the potential therapeutic targets for long term FQ disability, namely producing fresh healthy mitochondria without FQ induced mtDNA damage.
I’m using mitoQ10 for just that but haven’t tried PQQ yet.
Michael
Michael
4 years ago
Here’s another interesting study. Combo of pyridoxal 5′-phosphate (B6), metafolin and methylcobalamin reverses diabetic peripheral neuropathy. More or less what you have been saying A.Coleman:
“Agents used to treat symptoms of diabetic peripheral neuropathy (DPN) are only palliative, not disease modifying. Although studies of monotherapy with L-methylfolate, methylcobalamin, or pyridoxal 5′-phosphate suggest that each of these bioavailable B vitamins may reverse the pathophysiology and symptoms of DPN, data on the efficacy of this combination therapy are limited. Therefore, we assessed the efficacy of an oral combination of L-methylfolate, methylcobalamin, and pyridoxal 5′-phosphate for improving epidermal nerve fiber density (ENFD) in the lower extremity of patients with DPN. Eleven consecutive patients with type 2 diabetes with symptomatic DPN were assessed for ENFD at the calf by means of skin punch biopsy and then placed on twice daily oral-combination L-methylfolate, methylcobalamin, and pyridoxal 5′-phosphate. After approximately 6 months of treatment, patients underwent follow-up biopsy. At the end of their treatment, 73% of patients showed an increase in calf ENFD, and 82% of patients experienced both reduced frequency and intensity of paresthesias and/or dysesthesias. This preliminary study suggests that combination L-methylfolate, methylcobalamin, and pyridoxal 5′-phosphate increases ENFD in patients with DPN.”
I posted it because it is possible that not just diabetics but those with FQ induced nerve damage may benefit from this combo. I’m certainly trying it myself. I have 2 of the 3 methylated B vitamin forms but I haven’t added P-5-P yet.
Saff. Thanks for asking how I am!!! I’m probably doing a touch better 2 weeks after the Lidocaine???? Still have increased pins and needles and “itching” which I never really had much before??? I think the Lidocaine brought it on as part of flared up neuropathy!! What do you think??? I am staying hopeful that this flare will be just that and that my neuropathy will improve! Your story of having a reaction to Lidocaine and getting better in 3 months gives me hope!! It keeps me having faith that this increased neuropathy will disappear in time!!! Glad to hear you are 90% recovered!!! How bad were you floxed and how long did it take you to get to 90%???? Keeping the faith!!!
Andrea
4 years ago
Hey guys, I got a question.
I know many of us would rather take a bullet in the head before taking an antibiotic again, but, is there someone who ever took an antibiotic after being floxed? And if so, can you please share your experience. Me personally, in almost 3 years, I’ve never taken any AB (touching wood) but I did took some antiviral drugs, and I did just fine (again touching wood).
Please answer, it could be very important for the future.
P.S. I already know, Lisa made a list of POSSIBLY SAFE antibiotics after being floxed, but I need some actual testimony. Thank you.
Sandz W.
4 years ago
I am not trying to bring anyone down by what I say ever. I have only built, and will never stop building up someone. I just spent almost a year on Twitter doing just that. Well over 20,000 messages later (would have been in the 100s of 1,000s range if I had not been censored) and wanting only great things for others, my Family, and myself, not ever staying bitter, also hoping that for You very well, I can honestly say that considering the idea of being a follower of Christ, not wanting to leave my Loved/needing Family, or myself wanting to give up, I live in consistency with the idea that I do not want to go on with this life, going on about fifteen years now, directly, positivingly, and provingly so, that it is surely because of repeated administerings of floroquinolone antibiotics this is so, not even from the many things that hammer and hammered me down in this life placed other than this monsterous drug. The rejection of proper multiple diagnoses outcomes for You, Families benefit, and mine, is well over more than a slap in the face. With my many great pains, I walk without an assist, other than Family and Friends, music as well as a bit of Freedom. Thank GOD for those and Spirit, also the best to You. Let us go on, as in like together, Friends. Never quitting. Sandz W…
Andrea
4 years ago
Hey guys, I’ve already touched this topic before, but I don’t think anyone answered with a personal experience, so I triy it again, sorry to be tedious…Hve anyone of you ever had some experience with fluconazole or any other anti fungal drug? It’s important for me, because I’m starting to think that my GI issues can be caused by a yeast infection or candida. I know fluconazole side effects are nasty, but since some of us have been lucky with even some course of antibiotic and antiviral drugs (myself), maybe I could be lucky with it too. What do you think? Are anti fungal drugs more dangerous than antibiotics or antiviral drugs?
As always , thank you
Story of chronic and severe pain experienced by a Fox News anchor person.
The comment relates well to the situation that most floxed people encounter.
Bruce
4 years ago
Does anyone know any treatment for eye muscle pain from Cipro?
I have pain in the outer corners of the eyes. It sometimes causes headaches. Eye doctors don’t know how to treat this.
Henk Noordhuizen
4 years ago
How the Farmafia runs America’s health system (won’t be much different,here,in the EU):
Got a question……….. Anyone had any experience with Hypericum for nerve pain? All information is that it is good as a Homeopathic pain reliever with no side effects. https://www.homeopathicremediesblog.com/remedies/hypericum/
I attempt to not use a “pain killer drugs”.
I currently take Curcumin, Boswellia and Ginger to try to eliminate inflammation. They are each said to have pain relieving qualities of there own. But it is not enough!
L, could you tell me where you go to file against the doctor if you are doing it yourself due to statute constraints? I was told itd be good to file on my own for now but I have no idea where to do it as they couldnt advise me. Did you file in a civil court? Supreme court? Im in NYC. Thank you.
Henk Noordhuizen
4 years ago
Has anybody tried Pau D”Arco? Seems to be very interesting for Floxies because:
“one of the ingredients in this tree bark is beta-lapachone, which is a potent catalyst for a molecule called nicotinamide adenine dinucleotide (NAD+). NAD+, found in every cell in your body, is a receptor for electrons in the electron transport chain in your mitochondria. By increasing NAD+ intercellularly, Pau d’Arco helps improve mitochondrial ATP production. This is beneficial for health in general, but it’s particularly important if you’re fighting disease.”Source:
I bought a pack of Pau D”Arco tea,and intend to give it a try.I’ll keep you informed on results.
Henk Noordhuizen
4 years ago
WE SHOULD NOT KNOW !!!
Interesting: there seems a lot to do about Pau D’Arco (also called Lapacho) as an anti cancer remedy. On Wiki:
“Lapacho is promoted as a treatment for a number of human ailments, including cancer. According to the American Cancer Society, “available evidence from well-designed, controlled studies does not support this substance as an effective treatment for cancer in humans”, and using it risks harmful side-effects”
Whta do you guys think about this : https://theoriginalhomozon.com/
I’m intersted in trying it for my gut health. Do you think it can be useful ? or it’s just an overpriced form of magnesium (wich of course, in big doses can be used as a laxative)
Henk Noordhuizen
4 years ago
Hmmm,both the bobeck,com and the sharinghealth.com website vanished.Has the hunt after electromedicine begun? There’s a website bobbeck,info but it seems to be in Finland and it’s an empty website;only a form for contacting them,and you hand over your name and email adress to unknown strangers.No connection,here,to the original websites.
Looks like they’re gonna try to erase the name Bob Beck (Protocol) from the web :-((
Henk Noordhuizen
4 years ago
Sorry;must be bobbeck.com (that’s the real one with lotts of information on the man,much of it taken from his personal documents,and at the moment not reachable for us,to read.
Isabel
4 years ago
Hi,
On 2011 I took cipro.
After many years I still feel unsteadiness & dizziness on walking, as if I walk into shifting sands.
Is there any body on this forum whom, after many years is experiencing same symptoms as me?
Has anybody tried PQQ?
https://www.lifeextension.com/Magazine/2011/2/Generate-Fresh-Mitochondria-with-PQQ
It’s meant to stimulate new mitochondrial generation. This is one of the potential therapeutic targets for long term FQ disability, namely producing fresh healthy mitochondria without FQ induced mtDNA damage.
I’m using mitoQ10 for just that but haven’t tried PQQ yet.
Michael
Here’s another interesting study. Combo of pyridoxal 5′-phosphate (B6), metafolin and methylcobalamin reverses diabetic peripheral neuropathy. More or less what you have been saying A.Coleman:
“Agents used to treat symptoms of diabetic peripheral neuropathy (DPN) are only palliative, not disease modifying. Although studies of monotherapy with L-methylfolate, methylcobalamin, or pyridoxal 5′-phosphate suggest that each of these bioavailable B vitamins may reverse the pathophysiology and symptoms of DPN, data on the efficacy of this combination therapy are limited. Therefore, we assessed the efficacy of an oral combination of L-methylfolate, methylcobalamin, and pyridoxal 5′-phosphate for improving epidermal nerve fiber density (ENFD) in the lower extremity of patients with DPN. Eleven consecutive patients with type 2 diabetes with symptomatic DPN were assessed for ENFD at the calf by means of skin punch biopsy and then placed on twice daily oral-combination L-methylfolate, methylcobalamin, and pyridoxal 5′-phosphate. After approximately 6 months of treatment, patients underwent follow-up biopsy. At the end of their treatment, 73% of patients showed an increase in calf ENFD, and 82% of patients experienced both reduced frequency and intensity of paresthesias and/or dysesthesias. This preliminary study suggests that combination L-methylfolate, methylcobalamin, and pyridoxal 5′-phosphate increases ENFD in patients with DPN.”
https://www.ncbi.nlm.nih.gov/pubmed/21769070
I posted it because it is possible that not just diabetics but those with FQ induced nerve damage may benefit from this combo. I’m certainly trying it myself. I have 2 of the 3 methylated B vitamin forms but I haven’t added P-5-P yet.
Saff. Thanks for asking how I am!!! I’m probably doing a touch better 2 weeks after the Lidocaine???? Still have increased pins and needles and “itching” which I never really had much before??? I think the Lidocaine brought it on as part of flared up neuropathy!! What do you think??? I am staying hopeful that this flare will be just that and that my neuropathy will improve! Your story of having a reaction to Lidocaine and getting better in 3 months gives me hope!! It keeps me having faith that this increased neuropathy will disappear in time!!! Glad to hear you are 90% recovered!!! How bad were you floxed and how long did it take you to get to 90%???? Keeping the faith!!!
Hey guys, I got a question.
I know many of us would rather take a bullet in the head before taking an antibiotic again, but, is there someone who ever took an antibiotic after being floxed? And if so, can you please share your experience. Me personally, in almost 3 years, I’ve never taken any AB (touching wood) but I did took some antiviral drugs, and I did just fine (again touching wood).
Please answer, it could be very important for the future.
P.S. I already know, Lisa made a list of POSSIBLY SAFE antibiotics after being floxed, but I need some actual testimony. Thank you.
I am not trying to bring anyone down by what I say ever. I have only built, and will never stop building up someone. I just spent almost a year on Twitter doing just that. Well over 20,000 messages later (would have been in the 100s of 1,000s range if I had not been censored) and wanting only great things for others, my Family, and myself, not ever staying bitter, also hoping that for You very well, I can honestly say that considering the idea of being a follower of Christ, not wanting to leave my Loved/needing Family, or myself wanting to give up, I live in consistency with the idea that I do not want to go on with this life, going on about fifteen years now, directly, positivingly, and provingly so, that it is surely because of repeated administerings of floroquinolone antibiotics this is so, not even from the many things that hammer and hammered me down in this life placed other than this monsterous drug. The rejection of proper multiple diagnoses outcomes for You, Families benefit, and mine, is well over more than a slap in the face. With my many great pains, I walk without an assist, other than Family and Friends, music as well as a bit of Freedom. Thank GOD for those and Spirit, also the best to You. Let us go on, as in like together, Friends. Never quitting. Sandz W…
Hey guys, I’ve already touched this topic before, but I don’t think anyone answered with a personal experience, so I triy it again, sorry to be tedious…Hve anyone of you ever had some experience with fluconazole or any other anti fungal drug? It’s important for me, because I’m starting to think that my GI issues can be caused by a yeast infection or candida. I know fluconazole side effects are nasty, but since some of us have been lucky with even some course of antibiotic and antiviral drugs (myself), maybe I could be lucky with it too. What do you think? Are anti fungal drugs more dangerous than antibiotics or antiviral drugs?
As always , thank you
A finishing comment from a very interesting article: “You must be your own fiercest advocate when it comes to your health. Walk away from medical professionals who dismiss your concerns, and don’t quit searching until you find someone who will truly partner with you to find the answers you deserve.”
https://www.westernjournal.com/fox-news-anchor-shannon-breams-eye-pain-severe-contemplated-suicide/?utm_source=facebook&utm_medium=westernjournalism&utm_content=2019-11-14&utm_campaign=manualpost&fbclid=IwAR0BjTWsgWLUvAAnliXgiqt4I5yWfmAbxDsSus9clQZ5lsVdPUaKRz2Rd1Y
Story of chronic and severe pain experienced by a Fox News anchor person.
The comment relates well to the situation that most floxed people encounter.
Does anyone know any treatment for eye muscle pain from Cipro?
I have pain in the outer corners of the eyes. It sometimes causes headaches. Eye doctors don’t know how to treat this.
How the Farmafia runs America’s health system (won’t be much different,here,in the EU):
https://articles.mercola.com/sites/articles/archive/2019/11/19/center-for-disease-control-and-prevention-funding.aspx?utm_source=dnl&utm_medium=email&utm_content=art1HL&utm_campaign=20191119Z2&et_cid=DM393397&et_rid=752689649
OH great. This was one of the antibiotics that I thought might be safer to take after being floxed. https://www.naturalhealth365.com/antibiotic-heart-risks-3192.html
Got a question……….. Anyone had any experience with Hypericum for nerve pain? All information is that it is good as a Homeopathic pain reliever with no side effects. https://www.homeopathicremediesblog.com/remedies/hypericum/
I attempt to not use a “pain killer drugs”.
I currently take Curcumin, Boswellia and Ginger to try to eliminate inflammation. They are each said to have pain relieving qualities of there own. But it is not enough!
L, could you tell me where you go to file against the doctor if you are doing it yourself due to statute constraints? I was told itd be good to file on my own for now but I have no idea where to do it as they couldnt advise me. Did you file in a civil court? Supreme court? Im in NYC. Thank you.
Has anybody tried Pau D”Arco? Seems to be very interesting for Floxies because:
“one of the ingredients in this tree bark is beta-lapachone, which is a potent catalyst for a molecule called nicotinamide adenine dinucleotide (NAD+). NAD+, found in every cell in your body, is a receptor for electrons in the electron transport chain in your mitochondria. By increasing NAD+ intercellularly, Pau d’Arco helps improve mitochondrial ATP production. This is beneficial for health in general, but it’s particularly important if you’re fighting disease.”Source:
https://articles.mercola.com/sites/articles/archive/2018/04/02/pau-d-arco-benefits.aspx
I bought a pack of Pau D”Arco tea,and intend to give it a try.I’ll keep you informed on results.
WE SHOULD NOT KNOW !!!
Interesting: there seems a lot to do about Pau D’Arco (also called Lapacho) as an anti cancer remedy. On Wiki:
“Lapacho is promoted as a treatment for a number of human ailments, including cancer. According to the American Cancer Society, “available evidence from well-designed, controlled studies does not support this substance as an effective treatment for cancer in humans”, and using it risks harmful side-effects”
Well,read this:
https://www.sciencedirect.com/topics/nursing-and-health-professions/walker-carcinoma
Who is Wiki,and the American Cancer Society serving here,with their false information?
Another interesting Mercola article about mitochondrial health,I just found:
https://www.prohealth.com/library/aging-affects-mitochondria-brain-cells-contributes-age-related-diseases-83921
Whta do you guys think about this : https://theoriginalhomozon.com/
I’m intersted in trying it for my gut health. Do you think it can be useful ? or it’s just an overpriced form of magnesium (wich of course, in big doses can be used as a laxative)
Hmmm,both the bobeck,com and the sharinghealth.com website vanished.Has the hunt after electromedicine begun? There’s a website bobbeck,info but it seems to be in Finland and it’s an empty website;only a form for contacting them,and you hand over your name and email adress to unknown strangers.No connection,here,to the original websites.
Looks like they’re gonna try to erase the name Bob Beck (Protocol) from the web :-((
Sorry;must be bobbeck.com (that’s the real one with lotts of information on the man,much of it taken from his personal documents,and at the moment not reachable for us,to read.
Hi,
On 2011 I took cipro.
After many years I still feel unsteadiness & dizziness on walking, as if I walk into shifting sands.
Is there any body on this forum whom, after many years is experiencing same symptoms as me?