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Dee
5 years ago
Fellow floxies, Three weeks ago I had Lidocaine shots in 2 different spots on skin to remove small skin growths. I was scared about having the shots but did what I had to do. My peripheral neuropathy ramped up for several days but had gotten a little better. Now I have been dealing with this itchy small little red bumps that come out in random spots but mostly around the area where the lidocaine shots were given. I looked up reactions to lidocaine and actually itching and small red bumps are a common reaction. What I am concerned about is this has been going on for 3 weeks!? Do you think my reaction will just take a lot longer to fade because of being floxed?? I even had red irritated skin where I put bandaids over the healing sore which of course is taking forever to heal! I used bandaids after being floxed with no problem so I definitely think the lidocaine did a number on my skin!!?? I’m just hoping this is a flare from the lidocaine and that it will eventually disappear?? I can’t imagine this reaction being permanent but it does scare me a little that it is taking so long for these red itchy bumps to go away!!?? Any thoughts about this reaction?? I pray this is temporary! I am 2.5 years out and probably 80/85% recovered?? Have any of you experienced a reaction to a numbing med???
Dee
5 years ago
Henk. I know and expect my wound to heal slowly after floxing. I can accept that even though I don’t like it. What do you think about the itching red bumps from the lidocaine? Do you think that will pass in time??? I hope with time too that wounds will heal faster too! Has that gotten any better over time??
Dee
5 years ago
Andreas Thanks for your info. Unfortunately I know wounds take longer to heal. But my concern is will I stop reacting to the lidocaine with the itchy red bumps. After 3 weeks I’m still reacting!?? I hope that ceases soon! The only other person on this site that got back to me that had reacted to lidocaine was Saff and he said it took him 3 months for his flareup to calm down. Soooo that does give me some hope. I just want this reaction to stop
Nicole
5 years ago
Please help. I cannot find the list of safe antibiotics and Amoxicillin is not working anymore.
My symptoms have gotten so bad over the last 6 months that I have become very suicidal.
Sorry to put this on a site for hope but some of you will remember me as I will be floxed 4 years in February. Severe symptoms. Even though there have been better times I am just at my end as constant infections and pain for months. I have well spent over 40 thousand dollars on naturopaths, therapy, both mental and physical and just can’t hang on anymore. I have stayed off the forums because of emotional reasons but need help desperately.
I can not take sulfer drugs so antibiotics with sulfer I cannot take. The antibiotic safe list that used to be on here I cannot find. PLEASE HELP! I have lost everything and I am 69 with nothing to go on for. Doctors do not understand when you tell them you can’t take things after being floxed.
Ronna
5 years ago
It’s been a while since I’ve been on this site and probably no one remembers me. My name is Ronna, and I can’t believe I’m still alive. I’ve had some really rough times, but slowly seeing some recovery. The unbelievable anxiety has really decreased. My gut problems are still an on going problem, but there has been improvement and the diarrhea has stopped. I am now able to maintain my weight and do things with other people without crying constantly. It has been almost 3 years for me, and I am always ready to die. It’s amazing to me how strong the human body is, I am a registered nurse, 67 years old. To look at me you would n very know I was sick. My husband has tired of my problems which makes life hell, but I survive. Not sure why, only God knows. Does anyone remember me?
Dee
5 years ago
Andrea. So sorry to hear about your probiotic mishap. I totally understand your anger and frustration. None of us know how we will react to anything so we have to step out and take a chance on some things hoping it will help us heal! Who would ever think any probiotic would harm us for a long term? Don’t be angry with yourself….you were just trying to find something to help you heal! I had severe insomnia for months and 3 months into floxing I took only half a mg of melatonin to help me sleep and had a opposing reaction! Up all night with heart racing and anxiety through the roof. After not sleeping all night the next day I had SEVERE tinnitus throbbing in my head. It was like living with a jet engine roaring in my head!! For most floxies melatonin helps them sleep!! For me it turned me upside down with 24:7 horrible tinnitus that I didn’t have before the melatonin! 2.5 years later I still have the tinnitus but it has quieted down significantly but still wakes me up every morning! Oh if I only knew!! Just like your probiotics!! We can’t know so why beat ourselves up!? I have GI issues too but opposite of you. Every morning I have to keep running to the bathroom with loose and pretty urgent stools. Not fun!! Have tried everything!! Nothing has really helped. It is just hard to know how to make our way through this maze of healing! Like you said we just have to try and stay positive!!!! How long have you been floxed??
Don M
5 years ago
Light therapy. How it works and why it works. https://www.facebook.com/CareLightTeam/videos/395376841392046/
I know that by now many floxies on this web site are tired of reading about light therapy.
But it works. It will mitigate pain and help to heal the body. It is no instant miracle cure because light therapy is “coaching” the body to do the things that heal. Light therapy has been around for many years in many different parts of the world. Try it. You may be amazed at what light therapy can do for you.
Dee
5 years ago
Ronna! Yes I remember you!! I actually wrote you a post seeing how you were awhile back but never heard from you? Glad you are slowly getting a little better even though it is slow!! Just keep hanging in there! You will get there!! I remember you too because you had similar symptoms as me as far as waking up early with lots of morning bathroom visits! That has been one of my problems too that is still ongoing but maybe “a little” better? I’m 63 and 2.5 years out. Still trying to get completely healed too! I think the older we are it can take us longer unfortunately. If your GI is better what did you do to fix it?? How is your sleep?? I am glad to hear you are moving forward in your healing. Keep the faith!!
Dee
5 years ago
Nicole, I am so so sorry you are suffering so much. I understand your frustration and wanting to give up but I hope you can keep digging down deeper and continue the fight. I think time will eventually improve you more and more if you can hang in there. I think if you can get off the antibiotics for your on going UTId it will help you a lot! Have you tried taking D Mannose “everyday” to prevent UTIs?? I have a paralyzed friend that was constantly getting uti from his catherder (sp?) he started taking D Mannose 2 times a day and the Uti stopped. I have this recipe you can use if you are combating a UTI. It takes longer then antibiotics of course but you could “try” it. I can’t guarantee it will work but once you heal from your current UTI try using the D Mannose twice a day for prevention ( I use NOW powder) mix 1 TBL in small amount of water. If you get a UTI then try this recipe
1 tsp in glass of water
Repeat every 2-3 hours for 2-3 days or until symptoms are gone.
I don’t know if it will work for you but you might give it a try!! One day at a time Nicole is all we can do. Try not to let the FQ beat you down. We are bigger then it is! We have our soul and even small joys to live for! We can do this but it is the fight of our life. Let’s not give up. Let’s keep having hope and faith in our bodies and our spirit to keep healing. Hugs
Kyle
5 years ago
Hi All it’s been awhile since I’m posted anything. 19 months out now, and I’ve seen some improvements over this time, the worst isn’t as bad as it used to be. I’m maintaining a normal life with discomfort, lack of energy, headaches brain-fog, head pressure etc. All of which comes and goes in cycles, seems to be triggered when I over do it with work around the house or a certain amount of exercise, and sometimes it has no rhyme or reason which all of you I’m sure can relate to. With that said I continue to push forward do my best to stay busy be there for my family and career. Recently I’ve been going to an integrated medical center, they ran a ton of blood test, RBC for Mag was low even though I’m still taking between 500 – to 100MG’s a day, my RBC b12 also was low. The big one though was the intestinal Candida my yeast levels were very high, included with a very good probiotic that specifically helps in this area the integrated doc also wants to put me on Nysatin to help get my gut in order. I know there has been allot of discussions regarding antifungal medication,curious if anyone specifically has taken Nystatin or something similar and what there experience was post floxed.
Lukasz
5 years ago
Any folks here have experience with prednisone? My body is completely falling apart on me. Down to skin and bones now. Starting to look like polychondritis or a similar condition that causes inflammation and strips away cartilage and collagen from the body. Anyone tried this steroid and if so, has it helped to combat inflammation and loss of cartilage and collagen?
Barbara Arnold
5 years ago
Forgot to add, some found medical cannabis also helpful
Andrea
5 years ago
Henk, what do you think about the site where I bought the lamp? Do you think it’s a reliable seller? Also, what do you know about infrared light therapy on face and/or skull? Do you thionk it could be dangerous
Don M
5 years ago
L………. Very good short article about Aloe Vera for interstitial cystitis. https://www.simple-remedies.com/alternative-therapies/aloe-vera-for-interstitial-cystitis.html
All floxies should read it. Many times the interstitial cystitis is mistaken for a UTI and doctors are quick to dole out an antibiotic when it is not needed. It appears that floxies must monitor their own doctors so that the doctor does not cause them more problems. A sad situation but seemingly true.
Henk Noordhuizen
5 years ago
ABS? My first thought: what’s the ABS car brake system got to do with health? Well;here,ABS stands for Auto-brewery syndrome (alcolol junkie’s wet dream ;-))
The reason I put it to the attention of the floxie community: this might be one of the reasons for the brainfog,so common in floxies:
Fellow floxies, Three weeks ago I had Lidocaine shots in 2 different spots on skin to remove small skin growths. I was scared about having the shots but did what I had to do. My peripheral neuropathy ramped up for several days but had gotten a little better. Now I have been dealing with this itchy small little red bumps that come out in random spots but mostly around the area where the lidocaine shots were given. I looked up reactions to lidocaine and actually itching and small red bumps are a common reaction. What I am concerned about is this has been going on for 3 weeks!? Do you think my reaction will just take a lot longer to fade because of being floxed?? I even had red irritated skin where I put bandaids over the healing sore which of course is taking forever to heal! I used bandaids after being floxed with no problem so I definitely think the lidocaine did a number on my skin!!?? I’m just hoping this is a flare from the lidocaine and that it will eventually disappear?? I can’t imagine this reaction being permanent but it does scare me a little that it is taking so long for these red itchy bumps to go away!!?? Any thoughts about this reaction?? I pray this is temporary! I am 2.5 years out and probably 80/85% recovered?? Have any of you experienced a reaction to a numbing med???
Henk. I know and expect my wound to heal slowly after floxing. I can accept that even though I don’t like it. What do you think about the itching red bumps from the lidocaine? Do you think that will pass in time??? I hope with time too that wounds will heal faster too! Has that gotten any better over time??
Andreas Thanks for your info. Unfortunately I know wounds take longer to heal. But my concern is will I stop reacting to the lidocaine with the itchy red bumps. After 3 weeks I’m still reacting!?? I hope that ceases soon! The only other person on this site that got back to me that had reacted to lidocaine was Saff and he said it took him 3 months for his flareup to calm down. Soooo that does give me some hope. I just want this reaction to stop
Please help. I cannot find the list of safe antibiotics and Amoxicillin is not working anymore.
My symptoms have gotten so bad over the last 6 months that I have become very suicidal.
Sorry to put this on a site for hope but some of you will remember me as I will be floxed 4 years in February. Severe symptoms. Even though there have been better times I am just at my end as constant infections and pain for months. I have well spent over 40 thousand dollars on naturopaths, therapy, both mental and physical and just can’t hang on anymore. I have stayed off the forums because of emotional reasons but need help desperately.
I can not take sulfer drugs so antibiotics with sulfer I cannot take. The antibiotic safe list that used to be on here I cannot find. PLEASE HELP! I have lost everything and I am 69 with nothing to go on for. Doctors do not understand when you tell them you can’t take things after being floxed.
It’s been a while since I’ve been on this site and probably no one remembers me. My name is Ronna, and I can’t believe I’m still alive. I’ve had some really rough times, but slowly seeing some recovery. The unbelievable anxiety has really decreased. My gut problems are still an on going problem, but there has been improvement and the diarrhea has stopped. I am now able to maintain my weight and do things with other people without crying constantly. It has been almost 3 years for me, and I am always ready to die. It’s amazing to me how strong the human body is, I am a registered nurse, 67 years old. To look at me you would n very know I was sick. My husband has tired of my problems which makes life hell, but I survive. Not sure why, only God knows. Does anyone remember me?
Andrea. So sorry to hear about your probiotic mishap. I totally understand your anger and frustration. None of us know how we will react to anything so we have to step out and take a chance on some things hoping it will help us heal! Who would ever think any probiotic would harm us for a long term? Don’t be angry with yourself….you were just trying to find something to help you heal! I had severe insomnia for months and 3 months into floxing I took only half a mg of melatonin to help me sleep and had a opposing reaction! Up all night with heart racing and anxiety through the roof. After not sleeping all night the next day I had SEVERE tinnitus throbbing in my head. It was like living with a jet engine roaring in my head!! For most floxies melatonin helps them sleep!! For me it turned me upside down with 24:7 horrible tinnitus that I didn’t have before the melatonin! 2.5 years later I still have the tinnitus but it has quieted down significantly but still wakes me up every morning! Oh if I only knew!! Just like your probiotics!! We can’t know so why beat ourselves up!? I have GI issues too but opposite of you. Every morning I have to keep running to the bathroom with loose and pretty urgent stools. Not fun!! Have tried everything!! Nothing has really helped. It is just hard to know how to make our way through this maze of healing! Like you said we just have to try and stay positive!!!! How long have you been floxed??
Light therapy. How it works and why it works. https://www.facebook.com/CareLightTeam/videos/395376841392046/
I know that by now many floxies on this web site are tired of reading about light therapy.
But it works. It will mitigate pain and help to heal the body. It is no instant miracle cure because light therapy is “coaching” the body to do the things that heal. Light therapy has been around for many years in many different parts of the world. Try it. You may be amazed at what light therapy can do for you.
Ronna! Yes I remember you!! I actually wrote you a post seeing how you were awhile back but never heard from you? Glad you are slowly getting a little better even though it is slow!! Just keep hanging in there! You will get there!! I remember you too because you had similar symptoms as me as far as waking up early with lots of morning bathroom visits! That has been one of my problems too that is still ongoing but maybe “a little” better? I’m 63 and 2.5 years out. Still trying to get completely healed too! I think the older we are it can take us longer unfortunately. If your GI is better what did you do to fix it?? How is your sleep?? I am glad to hear you are moving forward in your healing. Keep the faith!!
Nicole, I am so so sorry you are suffering so much. I understand your frustration and wanting to give up but I hope you can keep digging down deeper and continue the fight. I think time will eventually improve you more and more if you can hang in there. I think if you can get off the antibiotics for your on going UTId it will help you a lot! Have you tried taking D Mannose “everyday” to prevent UTIs?? I have a paralyzed friend that was constantly getting uti from his catherder (sp?) he started taking D Mannose 2 times a day and the Uti stopped. I have this recipe you can use if you are combating a UTI. It takes longer then antibiotics of course but you could “try” it. I can’t guarantee it will work but once you heal from your current UTI try using the D Mannose twice a day for prevention ( I use NOW powder) mix 1 TBL in small amount of water. If you get a UTI then try this recipe
1 tsp in glass of water
Repeat every 2-3 hours for 2-3 days or until symptoms are gone.
I don’t know if it will work for you but you might give it a try!! One day at a time Nicole is all we can do. Try not to let the FQ beat you down. We are bigger then it is! We have our soul and even small joys to live for! We can do this but it is the fight of our life. Let’s not give up. Let’s keep having hope and faith in our bodies and our spirit to keep healing. Hugs
Hi All it’s been awhile since I’m posted anything. 19 months out now, and I’ve seen some improvements over this time, the worst isn’t as bad as it used to be. I’m maintaining a normal life with discomfort, lack of energy, headaches brain-fog, head pressure etc. All of which comes and goes in cycles, seems to be triggered when I over do it with work around the house or a certain amount of exercise, and sometimes it has no rhyme or reason which all of you I’m sure can relate to. With that said I continue to push forward do my best to stay busy be there for my family and career. Recently I’ve been going to an integrated medical center, they ran a ton of blood test, RBC for Mag was low even though I’m still taking between 500 – to 100MG’s a day, my RBC b12 also was low. The big one though was the intestinal Candida my yeast levels were very high, included with a very good probiotic that specifically helps in this area the integrated doc also wants to put me on Nysatin to help get my gut in order. I know there has been allot of discussions regarding antifungal medication,curious if anyone specifically has taken Nystatin or something similar and what there experience was post floxed.
Any folks here have experience with prednisone? My body is completely falling apart on me. Down to skin and bones now. Starting to look like polychondritis or a similar condition that causes inflammation and strips away cartilage and collagen from the body. Anyone tried this steroid and if so, has it helped to combat inflammation and loss of cartilage and collagen?
Forgot to add, some found medical cannabis also helpful
Henk, what do you think about the site where I bought the lamp? Do you think it’s a reliable seller? Also, what do you know about infrared light therapy on face and/or skull? Do you thionk it could be dangerous
L………. Very good short article about Aloe Vera for interstitial cystitis. https://www.simple-remedies.com/alternative-therapies/aloe-vera-for-interstitial-cystitis.html
All floxies should read it. Many times the interstitial cystitis is mistaken for a UTI and doctors are quick to dole out an antibiotic when it is not needed. It appears that floxies must monitor their own doctors so that the doctor does not cause them more problems. A sad situation but seemingly true.
ABS? My first thought: what’s the ABS car brake system got to do with health? Well;here,ABS stands for Auto-brewery syndrome (alcolol junkie’s wet dream ;-))
The reason I put it to the attention of the floxie community: this might be one of the reasons for the brainfog,so common in floxies:
https://articles.mercola.com/sites/articles/archive/2019/11/23/auto-brewery-syndrome.aspx?cid_source=dnl&cid_medium=email&cid_content=art2HL&cid=20191123Z2&et_cid=DM393388&et_rid=755445727
As floxies we already know about how devastating Fluoroquinolones can be. I just think it interesting that this is circulating on Facebook. Please copy the URL and paste it where ever you can. https://www.theodysseyonline.com/antibiotics-are-killing-people?fbclid=IwAR0frHjYP2TkdM2IfHcSr6VXbc2Ahqu3H99RNmDG1Aw6EnmjWXbEhNaTOHo
More articles like this are needed on every venue to help more people be aware of Fluoroquinolones.
Very discouraging when many doctors do not even know the word Fluoroquinolone.
Thnks Henk and Don. Now that I’m here, has anyone ever tried this particular probiotic, Bacillus Laterosporus ?
Here’s a link, I hope it shows it https://www.thefinchleyclinic.com/shop/lateroflora_60_capsules-e-1040.html?oscsid=14159235ac23660b6a3011a68be1c6e7
Can’t remember now if it was Lukasz or Andrea now who was talking about inflammation, but here is something else you might consider (not cheap) https://articles.mercola.com/sites/articles/archive/2019/11/24/hyperbaric-oxygen-therapy-benefits.aspx?cid_source=dnl&cid_medium=email&cid_content=art1HL&cid=20191124Z1&et_cid=DM398015&et_rid=756470018
Today,Dr.Mercola has an article about hyperbaric oxygen therapy;some of you might be interested,some of you have already used it (if I remember well):
https://articles.mercola.com/sites/articles/archive/2019/11/24/hyperbaric-oxygen-therapy-benefits.aspx?cid_source=dnl&cid_medium=email&cid_content=art1HL&cid=20191124Z2&et_cid=DM398045&et_rid=756076488