For over a decade this page has been dedicated to enabling the conversation for floxies to talk with one another. Sign up and subscribe to get all the latest comments.
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
I allow to create an account
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
Melanie–
Thanks, you help so much in keeping a little hope alive. I took a total of two 500 mg Levaquin March 18 and 19. It doesn’t help that I moved to a new city Fall 2012 to go to back to school and don’t know anyone (at age 41 I’m older than all the other law students). I live with my bf–quite the hermit himself–in a very isolated part of town. I took the summer off school because of this whole ordeal and now I have too much anxiety to make the journey out to public places. I feel like my brain won’t heal/adjust to being a part of society again if I keep being so isolated. Can’t even try to catch up with school stuff: reading is hard because of the horrible visual issues and I feel like I have ADD. The only improvements I’ve seen (my symptoms are mainly CNS issues) are that the insane head pressure and dizziness have improved about 50% from when they were at their worst, maybe because I started taking sunflower lecithin, Vit C, Mag, N-AC, or maybe because I don’t eat sugar or soy anymore (was always vegetarian). In fact, I don’t eat much of anything any more and can’t afford to lose any more weight (30 lbs already). Also, brain/nerve support supplements (GABA, Benfotiamine, Lion’s Mane, Ginkgo Bacopa, Magtein) exacerbate my anxiety to the extreme. What do you think? Am I hurting my brain recovery by avoiding public places and talking to people?
Jimmy
10 years ago
Hi everyone, did anyone actually have tendonosis that went away or they recovered from?
Melanie Kemp
10 years ago
I have to just say.Im very sensitive to meds and over the counter products so I wont take anything at all now.Its just not worth it to me to keep trying different products. Thats what got me here in the first place.
Im just very nervous of anything at this point.
my mum hasn’t taken not even a headache pill in 40 yrs and is as healthy as a horse.Im following suite regardless of what happens to me.
Melanie Kemp
10 years ago
Jimmy.I took maybe 7 Levaquin way back..maybe 12 yrs ago and syffered terrible pain. I shortly after that had two frozen shoulders. Again didnt put two and two together. .duh!!! I recovered with PT.Took about a year.
its why I took 1 more yrs later because I wasnt thinking.
im a groomer..just thought id been working to hard..
jimmy
10 years ago
hi melanie,
thanks for the info. i’m 14 mos out and have had lots of issues. most come and go and i can deal with most all except the pain in my right hip. which is diagnosed as tendonosis of the gluteus minimus and medius. after 8 mos i was 85% recovered. then i had a relapse after taking some supplements and shortly after I saw the tendonosis in my hip. so i must have released some of the levaquin from the tissue and it hit new places. i asked on fb support group (which i just joined) if the tendonosis would heal and got some pretty hopeless answers. but i don’t believe that. i believe it can heal since one year ago i could barely walk and and had neuropathy and achilles pain and all that went away within 8 months.
Melanie Kemp
10 years ago
Hi Jimmy.
I was on a Facebook forum but decided to come off if it.They are pretty scary.
I relapsed after 3 great years.I started working out and I think it released it back into my system also.Its been going on now for 6 weeks or so and un nerving so I dont like to read hopeless stories .I like to try and stay positive even though its hard sometimes.
you can E mail me if you like melglove@hotmail.com
Josie, the first thing I noticed was that they were itchy and watering a lot. Shortly thereafter I noticed trouble focusing. Then the white part got swollen. Went to optometrist who found peripheral vision loss and that one of my eyes was focusing higher than the other–basically vertical double vision. It wasn’t as obvious to me that it was vertical double vision (it’s not like I could see two of everything, like when you go cross-eyed), I just knew I couldn’t focus very well. Doc said no big deal, I’ll give you prism glasses (they force your eyes to focus together). Didn’t get them right away because of money issues. Then my right eye started twitching quite a bit throughout the day for a few days. Got the glasses like a month later and wore them for about a month, but my brain hates them and they didn’t help me see. Four months later the twitching (which the magnesium probably helped) and wateriness is gone. Now they just feel dry all the time and the white part is still swollen (I later learned that watering and swollen sclera are both actually a symptom of dry eye. I still have the focusing problem (especially when reading close-up and when trying to scan back and forth quickly) but think maybe I’m getting used to it.
I’m asking because my girlfriend and mother seem to have similar tendon pain (beginning) without getting Cipro, and since we’ve all been to Iceland this year (highest Chlamydia cases in Europe) I suspect that with a lot of luck Chlamydia might be the cause (both have Chlamydia Pneunomiae, my test results are coming next week).
So what’s the case with Doxycycline?
I heard it helped some Cipro patients?
Maybe because of Chlamydia being triggered by Cipro?
Melanie, I wish I had advice. But it seems like if your body healed before, it definitely will heal again. I know a lot of things about our reactions don’t make sense, but maybe your immune system will get over it more quickly this time since it couldn’t have forgotten the last time it happened.
I tend to think that exercise is good, as long as your tendons are ok. I took 2 pills of Cipro in both March 2013 and November 2013 and spent November through April of this year exercising, not anything really high impact, just the elliptical and low impact classes. I don’t think that you can beat yourself up about doing that. I think that when I was sweating and working out I was better off than I am now. I’m having a reaction now, I believe because of NSAIDs I took in April, but Lisa says too, that if you can move, you should. 🙂 I am on the fb page as well and feel I also will be leaving it shortly due to the negativity. I would love if there were a facebook page dedicated to recovery stories like Lisa’s Floxie Hope page.
Anyways, I have heard often from Cipro patients having to deal with additional Chlamydia and/or Candida, but can’t this be the reason for some people getting side effects and others don’t?
Both Chlamydia and Candida can cause Tendon, Muscle and Joint pain as well as mental problems.
Cipro is active against one form of Chlamydia and can potentially “trigger” an outbreak of symptoms with increased intensity.
And taking a strong antibiotic increases the risk of getting systemic candida as well.
Now I’m not saying that every Cipro patient has their physical side effects from Chlamydia or Candida, but not all sufferers have the same side effects or the same progression of side effects.
I’d like to see who here did test for Chlamydia and Candida, who where positive and who felt better after taking Doxycycline.
Does anyone know where I can get answers to these questions?
If possible please test for it.
The question now is: do I risk taking Doxycycline or not, and should I get on a anticandida diet with herbs and fluconazol?
Both Doxycycline and Fluconazol have made Cipro patients feel better in the past right?
Can someone with experience give me some guidance?
Mark
melanie kemp
10 years ago
Hi everybody
Just wanted to tell everyone to hang in there. It will get better. I got through an absolute horrendous year in 2010. Didn’t know what hit me .Just bed ridden and housebound and because I didn’t have a clue I didn’t know what remedies to try. I just kinda got through it with shear will power I guess. There where times I didn’t want to wake up. I was so sick and in so much pain.
But then I turned a corner at about 18 months. Lived kind of a low level life but it was living. Then several great years.. Ive had a few flares but they lasted only a day or so. Until this year. Its about 6 weeks at this point but I can tell that its slowly getting better. Im pushing myself to just work through all the crazy feelings.. the twitches and stinging. The weird brain feeling. Some of which are not nice at all. I cant stand the kinda racing brain feeling… like I,m high on Benadryl. But slowly its getting to where I can still live life. Of course there are times of utter panic..it hits me for a few seconds…about how unfair this it. But other people have it worse. I had it worse back then… I litrally could have dug my own grave and jumped in.
I don’t do anything special. I take a little magnesium now and again. I,m not one for taking “stuff” and I vow to never ever take another antibiotic ever ever ever. I really don’t care what happens
.Even in our darkest moments we have others around us that know what we are going through.
Tak care everyone and keep positive. I really feel it helps a lot.
How do I know when the time is right to push it again?
I mean light stretching, training, massages, etc…
Is there a general timeline as to at what point it is 100% that the tendons won’t snap?
6 months?
9 months?
I’m not talking about the pain being gone but just no risk of rupturing.
Mark
Catherine
10 years ago
Are there any UK floxies in this group who have heard of Dr Alice Sykes in London? She is a practitioner of functional medicine, who tells me she has treated about 20 people in the UK with FQ toxicity syndrome. Does anyone know anything about her?
Hello everyone,
I have a question. Has anyone here had a High CRP in their blood work after being floxed? I also had some high WBC as well. I am told that a high CRP is a strong indicator of an inflammatory disease.
Melanie–
Thanks, you help so much in keeping a little hope alive. I took a total of two 500 mg Levaquin March 18 and 19. It doesn’t help that I moved to a new city Fall 2012 to go to back to school and don’t know anyone (at age 41 I’m older than all the other law students). I live with my bf–quite the hermit himself–in a very isolated part of town. I took the summer off school because of this whole ordeal and now I have too much anxiety to make the journey out to public places. I feel like my brain won’t heal/adjust to being a part of society again if I keep being so isolated. Can’t even try to catch up with school stuff: reading is hard because of the horrible visual issues and I feel like I have ADD. The only improvements I’ve seen (my symptoms are mainly CNS issues) are that the insane head pressure and dizziness have improved about 50% from when they were at their worst, maybe because I started taking sunflower lecithin, Vit C, Mag, N-AC, or maybe because I don’t eat sugar or soy anymore (was always vegetarian). In fact, I don’t eat much of anything any more and can’t afford to lose any more weight (30 lbs already). Also, brain/nerve support supplements (GABA, Benfotiamine, Lion’s Mane, Ginkgo Bacopa, Magtein) exacerbate my anxiety to the extreme. What do you think? Am I hurting my brain recovery by avoiding public places and talking to people?
Hi everyone, did anyone actually have tendonosis that went away or they recovered from?
I have to just say.Im very sensitive to meds and over the counter products so I wont take anything at all now.Its just not worth it to me to keep trying different products. Thats what got me here in the first place.
Im just very nervous of anything at this point.
my mum hasn’t taken not even a headache pill in 40 yrs and is as healthy as a horse.Im following suite regardless of what happens to me.
Jimmy.I took maybe 7 Levaquin way back..maybe 12 yrs ago and syffered terrible pain. I shortly after that had two frozen shoulders. Again didnt put two and two together. .duh!!! I recovered with PT.Took about a year.
its why I took 1 more yrs later because I wasnt thinking.
im a groomer..just thought id been working to hard..
hi melanie,
thanks for the info. i’m 14 mos out and have had lots of issues. most come and go and i can deal with most all except the pain in my right hip. which is diagnosed as tendonosis of the gluteus minimus and medius. after 8 mos i was 85% recovered. then i had a relapse after taking some supplements and shortly after I saw the tendonosis in my hip. so i must have released some of the levaquin from the tissue and it hit new places. i asked on fb support group (which i just joined) if the tendonosis would heal and got some pretty hopeless answers. but i don’t believe that. i believe it can heal since one year ago i could barely walk and and had neuropathy and achilles pain and all that went away within 8 months.
Hi Jimmy.
I was on a Facebook forum but decided to come off if it.They are pretty scary.
I relapsed after 3 great years.I started working out and I think it released it back into my system also.Its been going on now for 6 weeks or so and un nerving so I dont like to read hopeless stories .I like to try and stay positive even though its hard sometimes.
you can E mail me if you like
melglove@hotmail.com
Josie, the first thing I noticed was that they were itchy and watering a lot. Shortly thereafter I noticed trouble focusing. Then the white part got swollen. Went to optometrist who found peripheral vision loss and that one of my eyes was focusing higher than the other–basically vertical double vision. It wasn’t as obvious to me that it was vertical double vision (it’s not like I could see two of everything, like when you go cross-eyed), I just knew I couldn’t focus very well. Doc said no big deal, I’ll give you prism glasses (they force your eyes to focus together). Didn’t get them right away because of money issues. Then my right eye started twitching quite a bit throughout the day for a few days. Got the glasses like a month later and wore them for about a month, but my brain hates them and they didn’t help me see. Four months later the twitching (which the magnesium probably helped) and wateriness is gone. Now they just feel dry all the time and the white part is still swollen (I later learned that watering and swollen sclera are both actually a symptom of dry eye. I still have the focusing problem (especially when reading close-up and when trying to scan back and forth quickly) but think maybe I’m getting used to it.
Oh, I also have trouble seeing in low light and in very contrasty situations. My pupils don’t seem to dilate much.
I seem to be having the same symptoms with sinus issues and dry eye. How long does this last. I am newly floxed.
Does anyone have experience with Doxycycline?
I’m asking because my girlfriend and mother seem to have similar tendon pain (beginning) without getting Cipro, and since we’ve all been to Iceland this year (highest Chlamydia cases in Europe) I suspect that with a lot of luck Chlamydia might be the cause (both have Chlamydia Pneunomiae, my test results are coming next week).
So what’s the case with Doxycycline?
I heard it helped some Cipro patients?
Maybe because of Chlamydia being triggered by Cipro?
Theories theories theories…
Mark
Sorry.That was cant eat
Melanie, I wish I had advice. But it seems like if your body healed before, it definitely will heal again. I know a lot of things about our reactions don’t make sense, but maybe your immune system will get over it more quickly this time since it couldn’t have forgotten the last time it happened.
Mark, Maltodextrin makes my head hurt.
Melanie,
I tend to think that exercise is good, as long as your tendons are ok. I took 2 pills of Cipro in both March 2013 and November 2013 and spent November through April of this year exercising, not anything really high impact, just the elliptical and low impact classes. I don’t think that you can beat yourself up about doing that. I think that when I was sweating and working out I was better off than I am now. I’m having a reaction now, I believe because of NSAIDs I took in April, but Lisa says too, that if you can move, you should. 🙂 I am on the fb page as well and feel I also will be leaving it shortly due to the negativity. I would love if there were a facebook page dedicated to recovery stories like Lisa’s Floxie Hope page.
Hi at all,
As expected I got Chlamydia Pneumoniae (not the type you get from sex lol) and Candida in my blood.
I suspect my Iceland holiday to be the reason for my infection.
http://icelandreview.com/news/2013/07/24/record-levels-chlamydia-iceland
Anyways, I have heard often from Cipro patients having to deal with additional Chlamydia and/or Candida, but can’t this be the reason for some people getting side effects and others don’t?
Both Chlamydia and Candida can cause Tendon, Muscle and Joint pain as well as mental problems.
Cipro is active against one form of Chlamydia and can potentially “trigger” an outbreak of symptoms with increased intensity.
And taking a strong antibiotic increases the risk of getting systemic candida as well.
Now I’m not saying that every Cipro patient has their physical side effects from Chlamydia or Candida, but not all sufferers have the same side effects or the same progression of side effects.
I’d like to see who here did test for Chlamydia and Candida, who where positive and who felt better after taking Doxycycline.
Does anyone know where I can get answers to these questions?
If possible please test for it.
The question now is: do I risk taking Doxycycline or not, and should I get on a anticandida diet with herbs and fluconazol?
Both Doxycycline and Fluconazol have made Cipro patients feel better in the past right?
Can someone with experience give me some guidance?
Mark
Hi everybody
Just wanted to tell everyone to hang in there. It will get better. I got through an absolute horrendous year in 2010. Didn’t know what hit me .Just bed ridden and housebound and because I didn’t have a clue I didn’t know what remedies to try. I just kinda got through it with shear will power I guess. There where times I didn’t want to wake up. I was so sick and in so much pain.
But then I turned a corner at about 18 months. Lived kind of a low level life but it was living. Then several great years.. Ive had a few flares but they lasted only a day or so. Until this year. Its about 6 weeks at this point but I can tell that its slowly getting better. Im pushing myself to just work through all the crazy feelings.. the twitches and stinging. The weird brain feeling. Some of which are not nice at all. I cant stand the kinda racing brain feeling… like I,m high on Benadryl. But slowly its getting to where I can still live life. Of course there are times of utter panic..it hits me for a few seconds…about how unfair this it. But other people have it worse. I had it worse back then… I litrally could have dug my own grave and jumped in.
I don’t do anything special. I take a little magnesium now and again. I,m not one for taking “stuff” and I vow to never ever take another antibiotic ever ever ever. I really don’t care what happens
.Even in our darkest moments we have others around us that know what we are going through.
Tak care everyone and keep positive. I really feel it helps a lot.
How do I know when the time is right to push it again?
I mean light stretching, training, massages, etc…
Is there a general timeline as to at what point it is 100% that the tendons won’t snap?
6 months?
9 months?
I’m not talking about the pain being gone but just no risk of rupturing.
Mark
Are there any UK floxies in this group who have heard of Dr Alice Sykes in London? She is a practitioner of functional medicine, who tells me she has treated about 20 people in the UK with FQ toxicity syndrome. Does anyone know anything about her?
lisa, speaking of our inept FDA…
http://www.nytimes.com/2014/07/31/opinion/the-fda-blatant-failure-on-food.html?hp&action=click&pgtype=Homepage&module=c-column-top-span-region®ion=c-column-top-span-region&WT.nav=c-column-top-span-region&_r=1&gwh=9E92F11B3DCD6EBF7353C5738C7F71D7&gwt=pay&assetType=opinion
Hello everyone,
I have a question. Has anyone here had a High CRP in their blood work after being floxed? I also had some high WBC as well. I am told that a high CRP is a strong indicator of an inflammatory disease.
Thanks,
Mike