For over a decade this page has been dedicated to enabling the conversation for floxies to talk with one another. Sign up and subscribe to get all the latest comments.
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
I allow to create an account
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
26.5K Comments
Inline Feedbacks
View all comments
Don M
4 years ago
A word of advice. If you are considering trying Freeze Dried Aloe Vera for Interstitial Cystitis (which mimics a prostate infection for men but is non bacterial so antibiotics are not warranted) you should first go to this website and read about Interstitial Cystitis dosage. If you may be thinking that just a few capsules a day will do the trick. Think again! See their dosage recommendations. https://www.desertharvest.com/aloe-vera-recommended-dosage.html You will see what it takes if trying to use Freeze Dried Aloe Vera for Interstitial Cystitis. This recommendation will hold true for any other brand that you may choose. Not following these recommendations will only leave you disappointed because you think it is not working for you. Just be aware of this if you choose to try it.
L
4 years ago
At the bottom of this link is an article on ginger and its role in mitochondrial function.
Hello, I am in desperate need of help, Please can someone help me, please. In September I was unnecessarily given the antibiotic ”Clairthromycin” for what the doctor believed a ”post-viral” issue. Today I suffer from muscle twitching and spasms, severe balance issues, ear pain and eye pain and sinusitis. Nerve pain–GI issues—Central Sleep Apnea, which is my body stopped breathing during sleep—-AN IMPENDING SENSE OF DOOM” depression and de-personalization.
I am suffering and I am afraid that I will give up,I don’t want to leave my loved ones behind.
Before the Antibiotic I was incredibly mentally and physically healthy. I had just completed a joint honors degree of business and finance and the last time I saw a doctor I was 13 years old (I am 25).
PLEASE has someone taken this antibiotic ”CLAIRTHROMYCIN OR BIAXIN”.
I understand a floxied poster named ”LUKASZ” has.
1) Is this drug more severe and dangerous then ”CIPRO” class of antibiotics.
2) Will I ever recover, I am currently under torture. SEVERE torture and fear I may lose this constant struggle.
Please any comments or suggestions.
Thank you forever grateful.
Dee
4 years ago
Adam Smith, I’m afraid not too many Floxie’s have had a bad reaction also to Clairthromycin but you are right that Lukusz who has written a recovery story on Floxie Hope did experience a reaction to that medication along with a FQ. Sometimes he checks in on this “home” page but I haven’t seen him on here recently. I would try posting on his personal Floxie story and hopefully he will reply to you!!?? I know there was a man from South Africa that also reacted to Clairthromycin that communicated back and forth with Lukasz on his comment history. I’m so sorry that you are going through this but I know Lukasz has found some recovery and healing. I hope you can connect with him! Please don’t give up as things should get better for you in time. Hang in there and keep the faith!!
Andrea
4 years ago
Hi guys, I think I’m suffering from acute prostatis right now. Tomorrow I’m going to the doctor to do the exams he reccomended (urine test,urethral swab), but I’m almost sure it will come out positive. The symptoms are all there…Now the problem, what am I supposed to do?
I already know what he’s going to give me…What can I do to try to avoid to take an antibiotic? Any suggestion on some more neutral remedy. Thanks
The first article in the search engine I listed above. “History of the D-Mannose Bladder Infection Cure – Tahoma Clinic…”. READ IT!!! Your urologist is not going to tell you about or prescribe this for you because it is not a medication (antibiotic) that they can write on a prescription pad. You do not go to a pharmacy to buy it. Most family care doctors and urologists have never heard of it. When I mentioned it to my own doctor of 20+ years he wrote it down. I assume he was going to check into it.
If more people (especially women) were acquainted with D-Mannose and knowledgeable about it’s use problems with urinary tract infections would be reduced by and astronomical percentage. Maybe 80% to 90%. It is so safe that one can use it one day a week as a preventive. Let me repeat this. Your doctor most likely will never tell you about this. Why? Because it will seriously cut into the profits of him/here and the drug companies.
Was floxed almost 3 yrs ago by Cipro. Still dealing with all the tycial & many different side effect, and experiencing a rather ruff relaspe for the last 2 months. Went to Dr this week for my yearly physical and he was concerned with my liver count being elevated. Just wondering if that too could be another side effect. Not a drinker, don’t take perscription drugs. Has anyone else had elevated liver enzymes?
Don M
4 years ago
Rather interesting article. It is not by some person inside the medical world but by a person who has been floxed and is now dealing with the problems. He writes not from the perspective of and insider of the medical world , but as someone who is living in the real world. I consider it a read for floxies. Refer it to your friends so that they may understand what devastation Fluoroquinolones can wreak on a person.
Cumulative Toxicity of Fluoroquinolones http://www.myquinstory.info/cumulative-toxicity-of-the-fluoroquinolones/?fbclid=IwAR3M9TVbu9z7HBYU1F2aWNMMnqpk22UtrnPdVO_EhvbyNlcJYiTndLJK630
If true, this is amazing as this could enable a test to check if one can take that drug and avoid millions of floxied.
Salim
Don M
4 years ago
Henk…………. No one is “safe” using a Fluoroquinolone! By the very nature and design of the antibiotic (with the fluoride added to it) it is to infiltrate the mitochondria and disrupt the DNA reproduction of the bacteria. Anyone who has ever taken it or is taking it now WILL be affected by this antibiotic. To what degree varies considerably, but make no mistake, everyone is affected. It may be immediate and obvious or sometime in the future and subtle. To think that this antibiotic class is so smart that they can differentiate between bacterial mitochondria and DNA and the mitochondria and DNA of the host is ludicrous.
The first basic Quinolone was Nalidixic Acid but it was only somewhat effective because it could not penetrate well. Fluoride was added to the Nalidixic Acid and Fluoroquinolones were born. Fluoride can penetrate to the mitochondria (the brain and every other organ of the body) and take it’s co-product with it. In doing this with the various concoctions it disrupts the reproduction of bacterial DNA and also “does a number” on the DNA of the host. What a Fluoroquinolone does appears to be well documented. How to counteract that is still a mystery to the medical world. By all appearances it seems that if they don’t know what to do they are trying to ignore the detrimental effects possible. Sadly…… Many doctors and other medical personnel remain clueless.
David
4 years ago
So is it reasonable to think we all have mitochondrial disorders and that’s why Cipro type drugs affected us.? I was blessed with a full recovery from Cipro poisoning and two years later took a statin. After six months I developed exactly same symptoms as the Cipro poisoning. After another six months of hell I took doxycycline for bladder infection. You guessed it. Three weeks of myopathy and neuropathy issues. I can’t locate an up to date list of drugs that are safe to take.
David
4 years ago
Yes some contain fluoride. Simvastatin the one I took didn’t.
David
4 years ago
But don’t mitochondria replenish? We have billions …. surely new mitochondria are not damaged.
David
4 years ago
My doctor says it was designed as a chemo drug first. Yikes,
I’m told that the accumulation of Cipro in my cells is permanent. That would be in line with what you said Henk. That would explain why now I’m susceptible to poisoning by any number of drugs. I’m 72 and at the age where I will need drug therapy for lots of stuff as my golden years lol continue. Frightening.
Madge Hirsch
4 years ago
Statins too are mitochondrial poisoners. They stop the manufacture of Co enzyme Q10 by the liver as this is done on the same biochemical pathway as cholesterol manufacture. CoQ10 is needed by the mitochondria for the production of ATP.
Dave
4 years ago
Again, we need a list of drugs that affect mitochondrial patients …..it appears we have to hand that list to our doctors because most are so poorly informed about mitochondrial issues.
Lidocaine …who’d have thought we need to avoid lidocaine ?
I don’t take anything now unless I Google the name of the drug ( generic and all ) and the word mitochondria.
His protocol has helped me numerous times,first,after I built the Blood Purifier,now,politicaly correct called Silver Pulser (for blood cleansing and generating high quality Colloïdal Silver),and the Magnetic Pulser.After several years of experience,and knowing that this would probably be the best investment,even,in my life,I bought both devices,ánd the Brain Tuner,now called (politics :-(( Bio Tuner from Sota Instruments.
I couldn’t buy the Sota Ozonator here,in EU,at the time,so bought one of their own trademarkt ozonators from Mediverse (where I bought my Sota devices,as well).This proved to be rubbish,and way too expensive (later discovered that it is a cheap chinese ozonator,ment for use in aquariums.They bought it dirt-cheap,and put their owwn sticker on it ).This failed after a while,and when a wire from a Sota device broke,Mediverse proved to not be familiar with the word “waranty”;advised me to contact Sota.
Well,I did,and Sota sent me a new wire,telloing me that there were some problems with those wires,at the time.And to my suprise,a few months later a received an other package,with a kind letter,telling me that they had improved on the wires,and that’s why they,again sent me new wires.This time it were the new,improved ones.That’s the reason that so many love Sota;not only are their devices of great quality,and the only ones,endorsed by Bob Beck,but they do have a great service!The devices,Sota makes,meet Bob’s specifications.
Bob,and Russ Torlage,the owner of Sota later on became good friends,and when Bob died after an accident,all papers and documents of Bob went to Russ Torlage,who gave them to two great ladies.They created the Bob Beck website to honour this great man and to spread the knowledge he gave to the world,for FREE ;Bob never earned a penny on these inventions,he didn’t want to,and he didn’t need to.
On the website is all the info you need to build your own devices,and how to use them.More info on how to use can be found on Youtube;Sota has made several instruction video’s;you’ll find them on their SOTA Instruments Inc. channel.
Henk Noordhuizen
4 years ago
Here’s a well written introduction to Bob Beck (who also invented the portable photo flash,now found in every camera and smartphone,worldwide.Untill then,flash units were big and heavy,and only suited for use in photo studio’s):
A word of advice. If you are considering trying Freeze Dried Aloe Vera for Interstitial Cystitis (which mimics a prostate infection for men but is non bacterial so antibiotics are not warranted) you should first go to this website and read about Interstitial Cystitis dosage. If you may be thinking that just a few capsules a day will do the trick. Think again! See their dosage recommendations. https://www.desertharvest.com/aloe-vera-recommended-dosage.html You will see what it takes if trying to use Freeze Dried Aloe Vera for Interstitial Cystitis. This recommendation will hold true for any other brand that you may choose. Not following these recommendations will only leave you disappointed because you think it is not working for you. Just be aware of this if you choose to try it.
At the bottom of this link is an article on ginger and its role in mitochondrial function.
https://www.greenmedinfo.com/blog/boosting-mitochondrial-biogenesis-ginger?utm_campaign=Daily%20Newsletter%3A%20Boosting%20Mitochondrial%20Biogenesis%20With%20Ginger%20%28L9qV3B%29&utm_medium=email&utm_source=Daily%20Newsletter&_ke=eyJrbF9lbWFpbCI6ICJsLmxvdS5saXZAZ21haWwuY29tIiwgImtsX2NvbXBhbnlfaWQiOiAiSzJ2WEF5In0%3D
Hello, I am in desperate need of help, Please can someone help me, please. In September I was unnecessarily given the antibiotic ”Clairthromycin” for what the doctor believed a ”post-viral” issue. Today I suffer from muscle twitching and spasms, severe balance issues, ear pain and eye pain and sinusitis. Nerve pain–GI issues—Central Sleep Apnea, which is my body stopped breathing during sleep—-AN IMPENDING SENSE OF DOOM” depression and de-personalization.
I am suffering and I am afraid that I will give up,I don’t want to leave my loved ones behind.
Before the Antibiotic I was incredibly mentally and physically healthy. I had just completed a joint honors degree of business and finance and the last time I saw a doctor I was 13 years old (I am 25).
PLEASE has someone taken this antibiotic ”CLAIRTHROMYCIN OR BIAXIN”.
I understand a floxied poster named ”LUKASZ” has.
1) Is this drug more severe and dangerous then ”CIPRO” class of antibiotics.
2) Will I ever recover, I am currently under torture. SEVERE torture and fear I may lose this constant struggle.
Please any comments or suggestions.
Thank you forever grateful.
Adam Smith, I’m afraid not too many Floxie’s have had a bad reaction also to Clairthromycin but you are right that Lukusz who has written a recovery story on Floxie Hope did experience a reaction to that medication along with a FQ. Sometimes he checks in on this “home” page but I haven’t seen him on here recently. I would try posting on his personal Floxie story and hopefully he will reply to you!!?? I know there was a man from South Africa that also reacted to Clairthromycin that communicated back and forth with Lukasz on his comment history. I’m so sorry that you are going through this but I know Lukasz has found some recovery and healing. I hope you can connect with him! Please don’t give up as things should get better for you in time. Hang in there and keep the faith!!
Hi guys, I think I’m suffering from acute prostatis right now. Tomorrow I’m going to the doctor to do the exams he reccomended (urine test,urethral swab), but I’m almost sure it will come out positive. The symptoms are all there…Now the problem, what am I supposed to do?
I already know what he’s going to give me…What can I do to try to avoid to take an antibiotic? Any suggestion on some more neutral remedy. Thanks
Another article about adverse effects of Cipro and other Fluorided drugs. I post it because there is some interesting information in it.
https://www.westonaprice.org/health-topics/health-issues/the-true-story-of-cipro/?fbclid=IwAR2lpqUPzxwLvIxS6qjtw_b4fjxP7MUKb_o_zr-DfSI6TQLyfbtbfEbQQDQ
Worth a read.
The first article in the search engine I listed above. “History of the D-Mannose Bladder Infection Cure – Tahoma Clinic…”. READ IT!!! Your urologist is not going to tell you about or prescribe this for you because it is not a medication (antibiotic) that they can write on a prescription pad. You do not go to a pharmacy to buy it. Most family care doctors and urologists have never heard of it. When I mentioned it to my own doctor of 20+ years he wrote it down. I assume he was going to check into it.
If more people (especially women) were acquainted with D-Mannose and knowledgeable about it’s use problems with urinary tract infections would be reduced by and astronomical percentage. Maybe 80% to 90%. It is so safe that one can use it one day a week as a preventive. Let me repeat this. Your doctor most likely will never tell you about this. Why? Because it will seriously cut into the profits of him/here and the drug companies.
I know it works because I use it!!!!
Was floxed almost 3 yrs ago by Cipro. Still dealing with all the tycial & many different side effect, and experiencing a rather ruff relaspe for the last 2 months. Went to Dr this week for my yearly physical and he was concerned with my liver count being elevated. Just wondering if that too could be another side effect. Not a drinker, don’t take perscription drugs. Has anyone else had elevated liver enzymes?
Rather interesting article. It is not by some person inside the medical world but by a person who has been floxed and is now dealing with the problems. He writes not from the perspective of and insider of the medical world , but as someone who is living in the real world. I consider it a read for floxies. Refer it to your friends so that they may understand what devastation Fluoroquinolones can wreak on a person.
Cumulative Toxicity of Fluoroquinolones http://www.myquinstory.info/cumulative-toxicity-of-the-fluoroquinolones/?fbclid=IwAR3M9TVbu9z7HBYU1F2aWNMMnqpk22UtrnPdVO_EhvbyNlcJYiTndLJK630
Hey guys, I don’t know if this has been posted here but it looks like scientists may have found why some of us are affected by FQ.
https://www.nature.com/articles/d41586-018-03267-5
If true, this is amazing as this could enable a test to check if one can take that drug and avoid millions of floxied.
Salim
Henk…………. No one is “safe” using a Fluoroquinolone! By the very nature and design of the antibiotic (with the fluoride added to it) it is to infiltrate the mitochondria and disrupt the DNA reproduction of the bacteria. Anyone who has ever taken it or is taking it now WILL be affected by this antibiotic. To what degree varies considerably, but make no mistake, everyone is affected. It may be immediate and obvious or sometime in the future and subtle. To think that this antibiotic class is so smart that they can differentiate between bacterial mitochondria and DNA and the mitochondria and DNA of the host is ludicrous.
The first basic Quinolone was Nalidixic Acid but it was only somewhat effective because it could not penetrate well. Fluoride was added to the Nalidixic Acid and Fluoroquinolones were born. Fluoride can penetrate to the mitochondria (the brain and every other organ of the body) and take it’s co-product with it. In doing this with the various concoctions it disrupts the reproduction of bacterial DNA and also “does a number” on the DNA of the host. What a Fluoroquinolone does appears to be well documented. How to counteract that is still a mystery to the medical world. By all appearances it seems that if they don’t know what to do they are trying to ignore the detrimental effects possible. Sadly…… Many doctors and other medical personnel remain clueless.
So is it reasonable to think we all have mitochondrial disorders and that’s why Cipro type drugs affected us.? I was blessed with a full recovery from Cipro poisoning and two years later took a statin. After six months I developed exactly same symptoms as the Cipro poisoning. After another six months of hell I took doxycycline for bladder infection. You guessed it. Three weeks of myopathy and neuropathy issues. I can’t locate an up to date list of drugs that are safe to take.
Yes some contain fluoride. Simvastatin the one I took didn’t.
But don’t mitochondria replenish? We have billions …. surely new mitochondria are not damaged.
My doctor says it was designed as a chemo drug first. Yikes,
I’m told that the accumulation of Cipro in my cells is permanent. That would be in line with what you said Henk. That would explain why now I’m susceptible to poisoning by any number of drugs. I’m 72 and at the age where I will need drug therapy for lots of stuff as my golden years lol continue. Frightening.
Statins too are mitochondrial poisoners. They stop the manufacture of Co enzyme Q10 by the liver as this is done on the same biochemical pathway as cholesterol manufacture. CoQ10 is needed by the mitochondria for the production of ATP.
Again, we need a list of drugs that affect mitochondrial patients …..it appears we have to hand that list to our doctors because most are so poorly informed about mitochondrial issues.
Lidocaine …who’d have thought we need to avoid lidocaine ?
I don’t take anything now unless I Google the name of the drug ( generic and all ) and the word mitochondria.
Great: the Bob Beck website is back online:
https://www.bobbeck.com/
His protocol has helped me numerous times,first,after I built the Blood Purifier,now,politicaly correct called Silver Pulser (for blood cleansing and generating high quality Colloïdal Silver),and the Magnetic Pulser.After several years of experience,and knowing that this would probably be the best investment,even,in my life,I bought both devices,ánd the Brain Tuner,now called (politics :-(( Bio Tuner from Sota Instruments.
I couldn’t buy the Sota Ozonator here,in EU,at the time,so bought one of their own trademarkt ozonators from Mediverse (where I bought my Sota devices,as well).This proved to be rubbish,and way too expensive (later discovered that it is a cheap chinese ozonator,ment for use in aquariums.They bought it dirt-cheap,and put their owwn sticker on it ).This failed after a while,and when a wire from a Sota device broke,Mediverse proved to not be familiar with the word “waranty”;advised me to contact Sota.
Well,I did,and Sota sent me a new wire,telloing me that there were some problems with those wires,at the time.And to my suprise,a few months later a received an other package,with a kind letter,telling me that they had improved on the wires,and that’s why they,again sent me new wires.This time it were the new,improved ones.That’s the reason that so many love Sota;not only are their devices of great quality,and the only ones,endorsed by Bob Beck,but they do have a great service!The devices,Sota makes,meet Bob’s specifications.
Bob,and Russ Torlage,the owner of Sota later on became good friends,and when Bob died after an accident,all papers and documents of Bob went to Russ Torlage,who gave them to two great ladies.They created the Bob Beck website to honour this great man and to spread the knowledge he gave to the world,for FREE ;Bob never earned a penny on these inventions,he didn’t want to,and he didn’t need to.
On the website is all the info you need to build your own devices,and how to use them.More info on how to use can be found on Youtube;Sota has made several instruction video’s;you’ll find them on their SOTA Instruments Inc. channel.
Here’s a well written introduction to Bob Beck (who also invented the portable photo flash,now found in every camera and smartphone,worldwide.Untill then,flash units were big and heavy,and only suited for use in photo studio’s):
https://www.bobbeck.com/bob-beck.html
Build your own devices,with this info and diagrams:
https://www.bobbeck.com/pdfs/build-your-own.pdf