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Fred S
4 years ago
Henk – It has been a while for me on the board. Very to hear and hope you get better soon.
David. Pollard
4 years ago
Henk. I’m thinking of you and your journey with these new health issues. You have been such a wonderful support to those of us who were floxed. Always remember how much you helped others. You’re a strong man.
Andrea
4 years ago
Henk, I hope this doesn’t upset you, but I was thinking a lot about you lately, so today, I’ve had a phone call with my father (a surgeon) now retired. I know, you, and many of us, me included, don’t trust doctors anymore, but, since we’re talking about cancer now, I thought that the more infos someone can get, the better.
Like I wrote, my father has been a surgeon for many many years, I can gurantee you that he’s an honest man. Never took a cent from a patient, and he was very passionate in his job. He’s an old school, no nonsense, no sugar coating, but fair, caring and loyal type of guy.
So today, I’ve explained to him your case (of course without giving him too many information about you), I’ve just told him you’re an older friend of mine, who found out to have esophagus cancer with lots of metastasis. I’ve also told him that right now you’re not able to swallow food. And I asked his opinion, what he would’ve done.
He told me that, the first thing he would have done, is to talk very honeslty to the patient and explaining to him the options he’s left with (according to him of course), then, as your doctor already told you, try to “burn” part of the tumor, so that you can at least swallow something, seem very reasonable. He told me this is particular important, before even thinking about the chemo. The reason is that, by starting to eat again, you should, at least in theory, feel a little better. Of course this procedure (the burning of the tumor), isn’t 100% side effects free. At least it’s not guaranteed that there can’t be complications, but it still should be safe and defenetly worth a try, according to him.
Then, if you hopefully can eat again (he said that, in esophagus cancer patient, even if the surgeon “opeens up” the obstructed part, sometimes the patient can’t still eat, because of all the “mess” the tumor has created), and you start to feel a little better, he would suggest to try a single round of chemo, a week for example, and see if you’re responding to it. This is crucial to understand if it’s the case to keep doing it or to stop there.
Anyway he reccomended that the surgical treatment (the burning) must be performed by a good reliable surgeon (see avoiding side effects), and whoever tells you to just do the chemo, without thinking it twice, without deeply understanding your case, isn’t a relaible doctor
Please keep in mind, that I did all this, just to try to help you. I’m not giving you any advice, nor I’m trying to judge your past or future decisions. Hope you don’t mind and understand I’m very sad for your situation and I did this in amity,
Stay strong,
Andrea.
Don M
4 years ago
Andrea…… I sit on the side lines and read the posts by you all. I sit quietly because I really do not know what to say. Andria and all thank you for your comments and concerns for Henk. Don
Hello people! I have unfortunately been floxed recently. I took Cipro for 25 days with no issues and after the last pill everything went down. I am so angry that this med is given to people! So far I have developed some kind of neuropathy (At this point bearable) but also all my tendons hurt. Even in my back. I think I have tendinitis in my hip. Has anybody recovered from such a bad case of painful tendons? If so, how long did it take you and what do you recommend that I do? I also have extreme anxiety and severe insomnia, my mind is racing and I cannot relax because of the pain in my tendons, every position I take is uncomfortable before I fall asleep. When I finally feel like sleeping, I have an impression I will stop breathing. Last night was sleepless. I fear today’s. Any tips appreciated! I hope I will be one of you in the future but now it’s all a mix of anxiety, pain and fear.
I was floxed recently, In all, I took three pills when I stopped. My decision to stop involved pain to my left knee and both feet inflamed. Plus the pill gave me terrible heartburn. For two weeks afterward, everything slowly seemed to go away until the second week I took myself off the medication. Now the back of my shoulders, neck, back, and calves hurt, I understand that vitamin D degrades this medication. Does Calcium work as a detox? I suffer from GERD and so I can not use magnesium. I also hear a ringing sound from my left ear. I do not know what my next options are. I will be calling my doctor this Monday to update him of my condition.
Michael
4 years ago
Hi guys,
Hope everybody is doing OK. I’d just like to ask what everybody’s experience or brain fog type symptoms has been. My neuropathy has taken stage all this time because it has been my main symptom, but now as it seems to be easing off or at least reaching a point where I am fairly comfortable despite it, I’m becoming more aware of the cognitive symptoms I may have suffered because of ciprofloxacin.
I mean:
– brain fog
– being a bit dopey compared to before
– tired a lot
Etc
Actually I do manage to function pretty well despite this, but I know I’m not my former self. Just now I was doing a 1000 piece puzzle with my daughter and found myself having to quit after about 15 mins. It just started tiring me out and getting uncomfortable for me…
So what’s the low down with that? I know many people got better. What were your time frames? What helped?
Michael
Don M
4 years ago
Michael………….. You have described my problems exactly. Dopey, spacey, fatigue, aches everywhere. Fatigue….. I am never rested. Night’s are filled with sleeping fitfully and I get up as unrested as when I went to bed. Always feel sleep deprived and it is a different feeling than being tired. Magnesium seems to help with relaxation. Dr. Carolyn Dean says that pills only provide from 4% to 20% of their stated magnesium because they are so poorly absorbed. The rest is expelled from the body unused and in many cases cause the diarrhea problem. Use the liquid forms (Angstrom or Remag) because they are said to not pass through the digestive system and cause the diarrhea problem. Magnesium Threonate (expensive) is said to be the only magnesium that is able to pass the blood brain barrier. It seems to help a bit with sleeping. Use topical magnesium oil on the places where you have pain from muscle spasms. According to Dr. Carolyn Dean just about everyone who is not supplementing is low on magnesium. I wish I had a better answer for the problems. Life would be much more comfortable.
Dr. Carolyn Dean…….. https://drcarolyndean.com/
L….. “As an aside I tried Dean’s mag and had to force myself to finish the bottle. The taste was too disgusting for me”. Yes you are right. It keeps me from taking enough of it. I also keep the various forms available. Dean’s magnesium is just magnesium chloride with her process to make the molecules smaller. And a whole lot more expensive. One can get magnesium chloride into their system through topical use of magnesium oil.
Julia. I can just tell you what worked for me. I took Cipro for three weeks for prostate infection. Within days I couldn’t walk, or climb stairs. Terrible neuropathy and tendonitis. Used a wheel chair for months. A team of family physicians and naturopaths in Toronto put me on magnesium 800 mg a day, Co q10, alpha lipoid acid and B complex. Took time but fully recovered. Others on this site will tell you a variety of other treatments All good for them. We each have our own journey and belief in treatments. Lisa Bloomquist, my trusted authority on this illness was my guide. I can only tell you what worked for me and others being treated for same condition that I know personally.
Andrea
4 years ago
Henk, how are things going? Any update would be appreciated 🙂
Michael. I was 10 months recovery . Electric wheel chair. When I tried to taper off the 800 mg of magnesium a day I worsened. Magnesium Bis Glycinate ( gentle formula) kept me going and had no effect on my stomach. CanPrev. Made in Canada Toronto Ontario
Vegetable capsules. Pure elemental Magnesium. More than anything else I benefited from the magnesium at these amounts. Mitochondria are actually intracellular magnesium stores. The Cipro leeched the magnesium out of us.
Hello Everyone,
For any of you that may be following any of the information related to PFAS (Perfluorinated Chemicals) as it relates to your Floxie experience, I’ve received a notice/invite to a web meeting event scheduled for this Thurs, 5/14 at 2pm Pacific/5pm Eastern from many of the advocates involved in the Dark Waters film. This topic is primarily in relation to the exposure for Military Servicemen & Women and their families as well as those that happen to live in close proximity to a military base. This event involves a moderator from EWG (Environmental Working Group), a retired US Army Pilot, Mark Ruffalo, & Rob Bilott. I’ve included the link to the website for anyone interested in the event and/or looking to RSVP and be in attendance.
sri
4 years ago
Hi I took one dose of ciprofloxacin and after 6 days I am seeing pain in my elbows, hands, legs, left leg calves and the hip. Can someone suggest me the supplements needed to take to overcome the pain and the sleeping problem. Also, I have some issues with heartburn and I am not sure if any supplements will have any impact on the heartburn. Appreciate the help.
Andrea
4 years ago
Hey Henk, hope I’m not bothering you, but today should be the last “burning day” for you, any update? are finally able to swallow again, or is it still too ealry?
sri
4 years ago
Good Morning
Is there any good IFM CERTIFIED PRACTITIONER in Northern Virginia, who can help me with one dose of ciprofloxacin. Any help will be appreciated as the pains from this are more and can I buy the supplements in any GNC shop or there is a specified place i need to go to the supplements which people mention on this site. I already take vitamin d2 on weekly basis and with the heartburn I have want be very careful.
Henk – It has been a while for me on the board. Very to hear and hope you get better soon.
Henk. I’m thinking of you and your journey with these new health issues. You have been such a wonderful support to those of us who were floxed. Always remember how much you helped others. You’re a strong man.
Henk, I hope this doesn’t upset you, but I was thinking a lot about you lately, so today, I’ve had a phone call with my father (a surgeon) now retired. I know, you, and many of us, me included, don’t trust doctors anymore, but, since we’re talking about cancer now, I thought that the more infos someone can get, the better.
Like I wrote, my father has been a surgeon for many many years, I can gurantee you that he’s an honest man. Never took a cent from a patient, and he was very passionate in his job. He’s an old school, no nonsense, no sugar coating, but fair, caring and loyal type of guy.
So today, I’ve explained to him your case (of course without giving him too many information about you), I’ve just told him you’re an older friend of mine, who found out to have esophagus cancer with lots of metastasis. I’ve also told him that right now you’re not able to swallow food. And I asked his opinion, what he would’ve done.
He told me that, the first thing he would have done, is to talk very honeslty to the patient and explaining to him the options he’s left with (according to him of course), then, as your doctor already told you, try to “burn” part of the tumor, so that you can at least swallow something, seem very reasonable. He told me this is particular important, before even thinking about the chemo. The reason is that, by starting to eat again, you should, at least in theory, feel a little better. Of course this procedure (the burning of the tumor), isn’t 100% side effects free. At least it’s not guaranteed that there can’t be complications, but it still should be safe and defenetly worth a try, according to him.
Then, if you hopefully can eat again (he said that, in esophagus cancer patient, even if the surgeon “opeens up” the obstructed part, sometimes the patient can’t still eat, because of all the “mess” the tumor has created), and you start to feel a little better, he would suggest to try a single round of chemo, a week for example, and see if you’re responding to it. This is crucial to understand if it’s the case to keep doing it or to stop there.
Anyway he reccomended that the surgical treatment (the burning) must be performed by a good reliable surgeon (see avoiding side effects), and whoever tells you to just do the chemo, without thinking it twice, without deeply understanding your case, isn’t a relaible doctor
Please keep in mind, that I did all this, just to try to help you. I’m not giving you any advice, nor I’m trying to judge your past or future decisions. Hope you don’t mind and understand I’m very sad for your situation and I did this in amity,
Stay strong,
Andrea.
Andrea…… I sit on the side lines and read the posts by you all. I sit quietly because I really do not know what to say. Andria and all thank you for your comments and concerns for Henk. Don
Nervous system problems. Something that is not foreign to a floxie. https://www.aarp.org/health/conditions-treatments/info-2020/covid-19-brain-symptoms.html?cmp=SNO-ICM-FB-COVID-HLTH&socialid=3311449149
Hello people! I have unfortunately been floxed recently. I took Cipro for 25 days with no issues and after the last pill everything went down. I am so angry that this med is given to people! So far I have developed some kind of neuropathy (At this point bearable) but also all my tendons hurt. Even in my back. I think I have tendinitis in my hip. Has anybody recovered from such a bad case of painful tendons? If so, how long did it take you and what do you recommend that I do? I also have extreme anxiety and severe insomnia, my mind is racing and I cannot relax because of the pain in my tendons, every position I take is uncomfortable before I fall asleep. When I finally feel like sleeping, I have an impression I will stop breathing. Last night was sleepless. I fear today’s. Any tips appreciated! I hope I will be one of you in the future but now it’s all a mix of anxiety, pain and fear.
I was floxed recently, In all, I took three pills when I stopped. My decision to stop involved pain to my left knee and both feet inflamed. Plus the pill gave me terrible heartburn. For two weeks afterward, everything slowly seemed to go away until the second week I took myself off the medication. Now the back of my shoulders, neck, back, and calves hurt, I understand that vitamin D degrades this medication. Does Calcium work as a detox? I suffer from GERD and so I can not use magnesium. I also hear a ringing sound from my left ear. I do not know what my next options are. I will be calling my doctor this Monday to update him of my condition.
Hi guys,
Hope everybody is doing OK. I’d just like to ask what everybody’s experience or brain fog type symptoms has been. My neuropathy has taken stage all this time because it has been my main symptom, but now as it seems to be easing off or at least reaching a point where I am fairly comfortable despite it, I’m becoming more aware of the cognitive symptoms I may have suffered because of ciprofloxacin.
I mean:
– brain fog
– being a bit dopey compared to before
– tired a lot
Etc
Actually I do manage to function pretty well despite this, but I know I’m not my former self. Just now I was doing a 1000 piece puzzle with my daughter and found myself having to quit after about 15 mins. It just started tiring me out and getting uncomfortable for me…
So what’s the low down with that? I know many people got better. What were your time frames? What helped?
Michael
Michael………….. You have described my problems exactly. Dopey, spacey, fatigue, aches everywhere. Fatigue….. I am never rested. Night’s are filled with sleeping fitfully and I get up as unrested as when I went to bed. Always feel sleep deprived and it is a different feeling than being tired. Magnesium seems to help with relaxation. Dr. Carolyn Dean says that pills only provide from 4% to 20% of their stated magnesium because they are so poorly absorbed. The rest is expelled from the body unused and in many cases cause the diarrhea problem. Use the liquid forms (Angstrom or Remag) because they are said to not pass through the digestive system and cause the diarrhea problem. Magnesium Threonate (expensive) is said to be the only magnesium that is able to pass the blood brain barrier. It seems to help a bit with sleeping. Use topical magnesium oil on the places where you have pain from muscle spasms. According to Dr. Carolyn Dean just about everyone who is not supplementing is low on magnesium. I wish I had a better answer for the problems. Life would be much more comfortable.
Dr. Carolyn Dean…….. https://drcarolyndean.com/
I think that every floxie (actually everyone) should read this. https://drcarolyndean.com/2012/10/when-magnesium-makes-me-worse/
L….. “As an aside I tried Dean’s mag and had to force myself to finish the bottle. The taste was too disgusting for me”. Yes you are right. It keeps me from taking enough of it. I also keep the various forms available. Dean’s magnesium is just magnesium chloride with her process to make the molecules smaller. And a whole lot more expensive. One can get magnesium chloride into their system through topical use of magnesium oil.
I’m taking this pronordic liposomal magnesium
“Magnesium (as Magnesium bisglycinate) 31.25mg; Taurine 25mg; Zinc (as Zinc bisglycinate) 0.8mg; Selenium (as L-selenomethionin) 4.5mcg; Chromium (as Chrome picolinate) 3.65mcg; Water; Xylitol; Emulsifier (GMO-free Sunflower lecithin); Glycerol; Polysorbate 80; Potassium sorbate; Mint aroma; Anti-oxidant (Vitamin E)”
https://www.lifepharmacy.co.nz/home/shop-by-brand/pronordic/pronordic-liposomal-magnesium–optinerve-sachets-30s/
Julia. I can just tell you what worked for me. I took Cipro for three weeks for prostate infection. Within days I couldn’t walk, or climb stairs. Terrible neuropathy and tendonitis. Used a wheel chair for months. A team of family physicians and naturopaths in Toronto put me on magnesium 800 mg a day, Co q10, alpha lipoid acid and B complex. Took time but fully recovered. Others on this site will tell you a variety of other treatments All good for them. We each have our own journey and belief in treatments. Lisa Bloomquist, my trusted authority on this illness was my guide. I can only tell you what worked for me and others being treated for same condition that I know personally.
Henk, how are things going? Any update would be appreciated 🙂
and the lumbrokinase Lyme connection https://www.treatlyme.net/guide/lumbrokinase
Michael. I was 10 months recovery . Electric wheel chair. When I tried to taper off the 800 mg of magnesium a day I worsened. Magnesium Bis Glycinate ( gentle formula) kept me going and had no effect on my stomach. CanPrev. Made in Canada Toronto Ontario
Vegetable capsules. Pure elemental Magnesium. More than anything else I benefited from the magnesium at these amounts. Mitochondria are actually intracellular magnesium stores. The Cipro leeched the magnesium out of us.
Hello Everyone,
For any of you that may be following any of the information related to PFAS (Perfluorinated Chemicals) as it relates to your Floxie experience, I’ve received a notice/invite to a web meeting event scheduled for this Thurs, 5/14 at 2pm Pacific/5pm Eastern from many of the advocates involved in the Dark Waters film. This topic is primarily in relation to the exposure for Military Servicemen & Women and their families as well as those that happen to live in close proximity to a military base. This event involves a moderator from EWG (Environmental Working Group), a retired US Army Pilot, Mark Ruffalo, & Rob Bilott. I’ve included the link to the website for anyone interested in the event and/or looking to RSVP and be in attendance.
Hi I took one dose of ciprofloxacin and after 6 days I am seeing pain in my elbows, hands, legs, left leg calves and the hip. Can someone suggest me the supplements needed to take to overcome the pain and the sleeping problem. Also, I have some issues with heartburn and I am not sure if any supplements will have any impact on the heartburn. Appreciate the help.
Hey Henk, hope I’m not bothering you, but today should be the last “burning day” for you, any update? are finally able to swallow again, or is it still too ealry?
Good Morning
Is there any good IFM CERTIFIED PRACTITIONER in Northern Virginia, who can help me with one dose of ciprofloxacin. Any help will be appreciated as the pains from this are more and can I buy the supplements in any GNC shop or there is a specified place i need to go to the supplements which people mention on this site. I already take vitamin d2 on weekly basis and with the heartburn I have want be very careful.
Thanks.