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Larry
4 years ago
Eye Floater update. No this procedure does not remove the fluid in you eyes. The fluid removal is an old treatment for floaters. Check out Austin eye in Austin TX. They use the yag laser to burn out the floater and it’s minimal risk. Per the FDA as well risk is very low. My eye heath looked good after the levaquin crap, but I will put of the procedure for a while. I need to get my yearly eye exam and I want my body to recover more.
Madge Hirsch
4 years ago
Hi Barbara- not being on Facebook I don’t know what this is about. How are you doing now your lockdown has been relaxed? I have been out finally – two bike rides and a trip to Carrefour and Castorama ( masked and gloved) . I have tried to get an appointment with the surgeon for my hip replacement but been told nothing doing – no appointments before July. The pain is so bad now I am unable to walk far so pretty restricted. I have also been going through a bad relapse and am pretty pissed off as I will be five years out in July.
There has been some research coming out of the Phillipines and Indonesia that correlate vit D levels with the severity of covid infection. They show very clearly that the lower your vit D the worse the outcome. Those with vit D above 30ng/l had very few instances of serious cases or death. Stats from other countries are also showing that the death rates in the Southern Hemisphere where the virus struck at the end of summer when vit D rates are at their highest are much lower than those in the Northern hemisphere. The University hospital at Angers is now doing clinical trial comparing bolus dosing of 400,000iu and 50,000iu of vit D in covid patients. If this is successful it would be a game changer as vit D is safe and cheap. Meanwhile why governments can’t advise their citizens to take it to up their immune systems anyway is beyond me. Pharma will want to pooh pooh this as much as possible as there is no dosh in it for them.
Larry
4 years ago
This is from Austin eyes website.
During the procedure the laser emits a short and small burst of energy at a potent power density. This energy converts the collagen and hyaluronic molecules found in a floater into a gas, which is then resorbed into the eye. On average, most patients can expect a 60% to 90% improvement in the mass and/or amount of floaters.It is important to note that modern laser vitreolysis is a different procedure. Compared to its early clinical use in the 1980s, modern laser vitreolysis provides more efficient and safer energy profiles — offering reliable and repeatable outcomes that provide a low rate of complications, combined with a high degree of patient satisfaction.
Larry
4 years ago
Pre levaquin I had a lot of floaters. I’ve actually had them since I was a kid. My mom has them so I think it’s part of my inheritance ????????. But yeah levaquin made them really really bad. Some days I get a rainbow colored one when I’m driving and I’m afraid I’m going to drive off the road so I have to close my right eye. It’s all so damn ridiculous. So eye floater and full body nerve damage. Thanks levaquin. Thanks so much.
This is a long podcast, but it’s some of the latest science for those of you that like to quote science. I’m not saying it’s right or wrong. We are all adults and we can make up our own minds. Can we please just accept others points of view without trying to shut them down because we may not agree.
Andrea
4 years ago
Lisa,
as someone else suggested, is there a way for you to contact Henk Noordhuizen? I don’t know, maybe sending him a direct e mail…He hasn’t posted in a while now, but he was a regular here. He’s in a very, bad and serious situation, and me and others are worried about him…Please let us know if you could find out something. Thank you.
“A new report reveals that Johnson & Johnson’s Janssen Pharmaceuticals subsidiary quietly ceased production of Levaquin late last year, ahead of new label warnings recently required by federal regulators about potential mental health side effects linked to the controversial antibiotic.
In what was effectively a silent Levaquin recall, RTV6 in Indiana reports that the drug maker discontinued production of both the oral and IV name-brand versions of Levaquin in December 2017, without any apparent public announcement about the decision.”””
My God, how evil are the people who are Rx and making this poison evil drug!!!!
I just can’t believe it….
Andrea
4 years ago
Hey guys, today I went to the gastroenterologist to do the colonscopy. I did it without sedatives, everything went fine. My intestines are ok. And it’s not much of a good news anyway…like it always happened from the tests and screening I’ve done in the last 3 and a half years, everything SEEM fine, no noticiable damage or anyhing. But I still suffer though…that’s the tricky part of being a floxie!
Anyway, he gave a product, called here in Italy ColonLife, it’s basically Butyric acid and a mix of probiotics.
According to the label : “it promotes anti-inflammatory and reparative activity, is the primary energy substrate for the growth of the mucous membrane of the colon, stimulates the production of mucus inside the colon, controls intraluminal homeostasis, promotes the absorption of water and electrolytes, intervenes in promoting the adhesiveness and development of bacterial flora”, sure, everything seem really cool, but do any of you ever tried it? Thanks a lot.
A.Coleman
4 years ago
Andrea,
I am so much in the same boat. Had colonoscopy and endoscopy a few years ago after floxing and they found everything was “normal”. How typical for a floxie. I know it isn’t normal. Most of the issues are nerve related I think. I have battled digestive issues as one of my three major floxie issues.
I started with gastroparesis that went on to weird heartburn (only when I burped, and I burped like 300 times a day) then nausea and stomach pain. Everything is slowly getting better. I have only a very little heartburn and nausea now. Anticipate at my current pace my digestion will be back to normal in 6 to 9 months.
I have tried LOTS of stuff; aloe, acupuncture, various herbs and teas. Never tried the ColonLife product. I have used a similar product, Iberogast. Iberogast is a mixture of extracts from bitter candytuft (Iberis amara), angelica root (Angelicae radix), milk thistle fruit (Silybi mariani fructus), celandine herb (Chelidonium majus), caraway fruit (Carvi fructus), liquorice root (Liquiritiae radix), peppermint herb (Menthae piperitae folium), balm leaf (Melissae folium) and chamomile flower (Matricariae flos)
This has worked pretty well to calm the irritation in my stomach / intestines. It basically can take the issues from a 10 to an 8 or a 4 to a 2. It does contain liquorice so should be avoided by those with high BP and only taken for 4 weeks at a time. A quick search of ColonLife says it is for IBS, which is one of the uses of Iberogast. No overlap in products though.
I think that your digestive problems are probably nerve related due to FQ damage; but some of these products can help the nerve problems and make you feel marginally better. Like many other floxie issues I think time is all that will truly make any difference and the amount of time it takes varies for all of us.
Attila
4 years ago
Hello. Im post flox 2,5years. Now i have acid reflux and my doc gave me pantoprazole. Is it safe? Any issues? Thank you.
Attila, I have had acid reflux for years and been on Nexium for many years too. I got floxed 3 years ago and weaned myself off of the Nexium as no PPI I meant for long term use. As a matter of fact many times acid reflux can be caused by too little acid production. You have to get a test done to find out if you have too little or too much acid. Anyway, when I got floxed I decided to go off medications I was on that I felt were unnecessary other then my thyroid meds. Keep in mind that I was diagnosed with Barrett’s esophagus which is a change in cells in the esophagus due to acid damage. I lost 50 lbs after being floxed and my acid reflux mostly went away. At 2 1/2 years out I put all my weight back on and my acid reflux is really ramped up bad now. I probably have 2 options which is to lose this weight fast and hope the acid reflux settles down or go back on Nexium for at least 2-3 months to try and heal acid damage in my esophagus. I don’t want to go on the med but it might be imperative for me being that I have Barrett’s. If this is your first time having acid reflux you may try natural approaches to healing first. Avoid spicy food, peppermint, chocolate, high citrus fruits, caffeine (you can google it). Do not eat 3-4 hours before bed. Try to raise your bed some at your head end. (You can buy a wedge to sleep on). There are a few things you can do and you can find lots of info online. I don’t know how long you have had acid reflux or how bad it is so always get your Docs opinion and do your homework too. PPIs are actually suppose to be for short term only ( about 8 weeks) but many end up on them long term. They are also extremely hard to wean off once you have been on them for awhile. I have had 4 endoscopes done so I am well aware of the damage done to my esophagus. I am 64 and should have started 20 years ago taking more steps to address my acid reflux naturally instead of being on meds all that time. Weight control and especially your “diet” are the key ingredients to get it under control.
I didn’t want to contribute to the arguing but I am just going to say that I agree with Barbara as far as please please stop with all the bantering back and forth about the Covid virus. We all have access to the media and the internet to gain knowledge and information from whom we choose and we can form our own opinion, beliefs and protocol to protect ourselves with that knowledge. I am older and I choose to protect myself but I know that many others don’t take it as seriously. I can only control myself and what I do, not others. Let’s keep this a positive sight for healing and recovering from FQ poisoning. That is enough for most of us to deal with. Some people who come to this site are very sick from FQ toxicity. Let’s all be there for them in a positive healing way of support. Arguing back and forth about Covid is not what this site is here for so let’s be done with that. We all have enough stress and anxiety to deal with our FQ symptoms along with worrying about Covid too. Let’s be here for each other to facilitate healing from FQ symptoms. That is first and foremost for all of us. This site has helped so many of us in recovering from this FQ nightmare. Let’s keep it that way! No more arguing please!!!!
Bob, at this point in time I told talk I refuse to take PPIs and will avoid them unless my Barrett’s becomes a major problem. I may have no choice but need another scope to see how much damage has been done
Madge Hirsch
4 years ago
I’m very keen to eat out next week when restaurants reopen here! Cooking every day for nearly three months has made me long to be able to sit down , choose from a menu and walk away from the washing up. Eventually managed to do the tax return with no tears. The real problem is the UK sticking to the stupid idea of a tax year that runs from April to April and not January to January. My husband keeps telling me to stop trying to understand it just fill in the boxes on the spread sheet. The paracetamol with opium painkillers work really well but like you I don’t want to build up a tolerance to them. So I am saving them for trips out on the bike. Getting on the bike is painful for the hip but once on I’m ok. Today we went for a picnic at a lake. I think the confinement has been emotionally wearing for a lot of people and it will be good to get out other than just for food shopping or the chemist. Take care .
Barbara, at this point in time when my acid reflux acts up I take an antacid to try and calm things down. I don’t want to go back on a PPI. My goal is to try and lose weight as I think the extra weight gain has really ramped up my acid reflux along with having a hiatal hernia. Even though being floxed was an absolute horrible nightmare I did lose 50 lbs the first 3-4 months which was actually a big part of my acid reflux going away for about two years. As I recovered I slowly gained all my weight back and my acid reflux came roaring back. I’m sure being floxed might have contributed to it coming back too. I will be 3 years out from floxing in one month. I actually consider myself about 90% recovered with the exception of this acid reflux and some symptoms that come and go but doesn’t really hinder my life much. I want to get another endoscope to see if my esophagus has been more damaged these past 3-4 months but am waiting for this Covid virus to decline more before having a scope. If I have further damage I might have to go back on a PPI to help my throat heal. Meanwhile I’m trying to watch my diet, eat smaller meals and stay upright until very late night until I lay down to sleep. It is a challenge everyday but I do my best. My floxing recovery was hell on earth. I had 20 plus symptoms and my recovery was long and slow. I’m just starting to feel like I’m getting my life back. The mental and emotional trauma is the hardest thing to come back from but I’m slowly finding myself again and trying to look forward instead of back. You have always shown kindness and support when I have come to this site with questions and concerns. You always encouraged me with positive and kind words. This floxing recovery is a long journey and it is a “process” to heal. I’m getting there. I try to help others when I can but I want to move past this too. I am praying that I can get my weight down and heal my esophagus along with getting stronger and more energy back day by day. I want to find joy and optimism back and no longer live in Floxie fear. It is a tough road to walk. Thank you for your support along the way.
Barbara Arnold
4 years ago
Dee,
I don’t know if this will help, but I’ve just seen a post from a fluroquinolone site, where the poster, who is also a moderator said she took Betain HCL. The theory being that the reflux resulted not from an excess of acid production, but a general paucity. Blood cells in the respiratory tract could stack in what supposedly called the ‘Rouleaux formation’ This results from an absence of certain compounds necessary for digesting protiens. She said that taking Betaine HLC , a cheap probioctic complex, and some standard digestive enzymes, in less than a week this cleared up the problem. She also said it worked for people with ‘air hunger’ as well. It seemed to make sense to me, so I thought you might like to look into it. I really hope it helps.
I also think losing weight could help, but like you I find this extremely difficult as I’ve got older, it sucks, but I’m really happy to hear just how far you have come. To be 90% recovered after 3 years, tells me you are doing well, and with your positive attitude you will get there. Never foreget how far you’ve come in one of the hardest journey’s of your life. Your stronger than you think.
I wish you all the joy and optimism in the road ahead.
Love Barbara xx
I can’t stop people from commenting on a particular topic or thread (as one can on Facebook), so I just deleted a couple threads that had become contentious on issues other than fluoroquinolone toxicity. I deleted entire threads so as not to single out any particular person. I have an awful tendency to always want the last word, and I don’t think I’m alone in that unproductive tendency, so I just deleted the threads, and I hope that those who were involved in the conversation can agree to disagree.
Fluoroquinolones don’t care what a person believes, and people from every background and with beliefs all over the spectrum of possible beliefs, have been floxed. In a crazy way, it has brought people together who would not otherwise associate with each other, and that is a round-about blessing. I appreciate all the people that have come into my life because of this site and the “floxie” community. In no way do I appreciate the drugs or the damage they have done – but I do appreciate the people, even the ones that I disagree with and wouldn’t have associated with under other circumstances. This site has been a place where people can find things that they have in common, and they can help people through the horror of fluoroquinolone toxicity. Finding things in common and helping others is at the base of our humanity, and I appreciate seeing the humanity in everyone on here that has helped others through this difficult disease. You are all appreciated. Even those of you who are pissed at me for deleting long posts that took you a while to write. 😉
We are living in contentious times, and our differences seem to be highlighted more often than the things we have in common. But we really do have more in common than we don’t – and that’s something we should all keep in-mind.
I ask that until the world feels a bit less topsy-turvy, can you (collectively) please try to stick to topics that are fluoroquinolone toxicity and healing related? I know that COVID, and politics, and other contentious topics are on everyone’s mind, but if you can please stick to FQ related topics for the most part, your help will be appreciated. Thank you.
Hugs,
Lisa
Orf
4 years ago
Thank you Lisa, thanks for this great site that gives people hope.
Hans
4 years ago
Thank you Lisa for putting together very useful pieces of information.
Eye Floater update. No this procedure does not remove the fluid in you eyes. The fluid removal is an old treatment for floaters. Check out Austin eye in Austin TX. They use the yag laser to burn out the floater and it’s minimal risk. Per the FDA as well risk is very low. My eye heath looked good after the levaquin crap, but I will put of the procedure for a while. I need to get my yearly eye exam and I want my body to recover more.
Hi Barbara- not being on Facebook I don’t know what this is about. How are you doing now your lockdown has been relaxed? I have been out finally – two bike rides and a trip to Carrefour and Castorama ( masked and gloved) . I have tried to get an appointment with the surgeon for my hip replacement but been told nothing doing – no appointments before July. The pain is so bad now I am unable to walk far so pretty restricted. I have also been going through a bad relapse and am pretty pissed off as I will be five years out in July.
There has been some research coming out of the Phillipines and Indonesia that correlate vit D levels with the severity of covid infection. They show very clearly that the lower your vit D the worse the outcome. Those with vit D above 30ng/l had very few instances of serious cases or death. Stats from other countries are also showing that the death rates in the Southern Hemisphere where the virus struck at the end of summer when vit D rates are at their highest are much lower than those in the Northern hemisphere. The University hospital at Angers is now doing clinical trial comparing bolus dosing of 400,000iu and 50,000iu of vit D in covid patients. If this is successful it would be a game changer as vit D is safe and cheap. Meanwhile why governments can’t advise their citizens to take it to up their immune systems anyway is beyond me. Pharma will want to pooh pooh this as much as possible as there is no dosh in it for them.
This is from Austin eyes website.
During the procedure the laser emits a short and small burst of energy at a potent power density. This energy converts the collagen and hyaluronic molecules found in a floater into a gas, which is then resorbed into the eye. On average, most patients can expect a 60% to 90% improvement in the mass and/or amount of floaters.It is important to note that modern laser vitreolysis is a different procedure. Compared to its early clinical use in the 1980s, modern laser vitreolysis provides more efficient and safer energy profiles — offering reliable and repeatable outcomes that provide a low rate of complications, combined with a high degree of patient satisfaction.
Pre levaquin I had a lot of floaters. I’ve actually had them since I was a kid. My mom has them so I think it’s part of my inheritance ????????. But yeah levaquin made them really really bad. Some days I get a rainbow colored one when I’m driving and I’m afraid I’m going to drive off the road so I have to close my right eye. It’s all so damn ridiculous. So eye floater and full body nerve damage. Thanks levaquin. Thanks so much.
https://podcasts.apple.com/us/podcast/covid-19-facts-from-frontline-facts-over-fear-part/id1098413063?i=1000475052984
This is a long podcast, but it’s some of the latest science for those of you that like to quote science. I’m not saying it’s right or wrong. We are all adults and we can make up our own minds. Can we please just accept others points of view without trying to shut them down because we may not agree.
Lisa,
as someone else suggested, is there a way for you to contact Henk Noordhuizen? I don’t know, maybe sending him a direct e mail…He hasn’t posted in a while now, but he was a regular here. He’s in a very, bad and serious situation, and me and others are worried about him…Please let us know if you could find out something. Thank you.
https://www.aboutlawsuits.com/levaquin-discontinued-146734/
“A new report reveals that Johnson & Johnson’s Janssen Pharmaceuticals subsidiary quietly ceased production of Levaquin late last year, ahead of new label warnings recently required by federal regulators about potential mental health side effects linked to the controversial antibiotic.
In what was effectively a silent Levaquin recall, RTV6 in Indiana reports that the drug maker discontinued production of both the oral and IV name-brand versions of Levaquin in December 2017, without any apparent public announcement about the decision.”””
My God, how evil are the people who are Rx and making this poison evil drug!!!!
I just can’t believe it….
Hey guys, today I went to the gastroenterologist to do the colonscopy. I did it without sedatives, everything went fine. My intestines are ok. And it’s not much of a good news anyway…like it always happened from the tests and screening I’ve done in the last 3 and a half years, everything SEEM fine, no noticiable damage or anyhing. But I still suffer though…that’s the tricky part of being a floxie!
Anyway, he gave a product, called here in Italy ColonLife, it’s basically Butyric acid and a mix of probiotics.
According to the label : “it promotes anti-inflammatory and reparative activity, is the primary energy substrate for the growth of the mucous membrane of the colon, stimulates the production of mucus inside the colon, controls intraluminal homeostasis, promotes the absorption of water and electrolytes, intervenes in promoting the adhesiveness and development of bacterial flora”, sure, everything seem really cool, but do any of you ever tried it? Thanks a lot.
Andrea,
I am so much in the same boat. Had colonoscopy and endoscopy a few years ago after floxing and they found everything was “normal”. How typical for a floxie. I know it isn’t normal. Most of the issues are nerve related I think. I have battled digestive issues as one of my three major floxie issues.
I started with gastroparesis that went on to weird heartburn (only when I burped, and I burped like 300 times a day) then nausea and stomach pain. Everything is slowly getting better. I have only a very little heartburn and nausea now. Anticipate at my current pace my digestion will be back to normal in 6 to 9 months.
I have tried LOTS of stuff; aloe, acupuncture, various herbs and teas. Never tried the ColonLife product. I have used a similar product, Iberogast. Iberogast is a mixture of extracts from bitter candytuft (Iberis amara), angelica root (Angelicae radix), milk thistle fruit (Silybi mariani fructus), celandine herb (Chelidonium majus), caraway fruit (Carvi fructus), liquorice root (Liquiritiae radix), peppermint herb (Menthae piperitae folium), balm leaf (Melissae folium) and chamomile flower (Matricariae flos)
This has worked pretty well to calm the irritation in my stomach / intestines. It basically can take the issues from a 10 to an 8 or a 4 to a 2. It does contain liquorice so should be avoided by those with high BP and only taken for 4 weeks at a time. A quick search of ColonLife says it is for IBS, which is one of the uses of Iberogast. No overlap in products though.
I think that your digestive problems are probably nerve related due to FQ damage; but some of these products can help the nerve problems and make you feel marginally better. Like many other floxie issues I think time is all that will truly make any difference and the amount of time it takes varies for all of us.
Hello. Im post flox 2,5years. Now i have acid reflux and my doc gave me pantoprazole. Is it safe? Any issues? Thank you.
Attila… https://duckduckgo.com/?q=pantoprazole&t=crhs&ia=web You can start by looking at the different web sites here.
duckduckgo is a search engine that claims it does not track your searches.
Attila, I have had acid reflux for years and been on Nexium for many years too. I got floxed 3 years ago and weaned myself off of the Nexium as no PPI I meant for long term use. As a matter of fact many times acid reflux can be caused by too little acid production. You have to get a test done to find out if you have too little or too much acid. Anyway, when I got floxed I decided to go off medications I was on that I felt were unnecessary other then my thyroid meds. Keep in mind that I was diagnosed with Barrett’s esophagus which is a change in cells in the esophagus due to acid damage. I lost 50 lbs after being floxed and my acid reflux mostly went away. At 2 1/2 years out I put all my weight back on and my acid reflux is really ramped up bad now. I probably have 2 options which is to lose this weight fast and hope the acid reflux settles down or go back on Nexium for at least 2-3 months to try and heal acid damage in my esophagus. I don’t want to go on the med but it might be imperative for me being that I have Barrett’s. If this is your first time having acid reflux you may try natural approaches to healing first. Avoid spicy food, peppermint, chocolate, high citrus fruits, caffeine (you can google it). Do not eat 3-4 hours before bed. Try to raise your bed some at your head end. (You can buy a wedge to sleep on). There are a few things you can do and you can find lots of info online. I don’t know how long you have had acid reflux or how bad it is so always get your Docs opinion and do your homework too. PPIs are actually suppose to be for short term only ( about 8 weeks) but many end up on them long term. They are also extremely hard to wean off once you have been on them for awhile. I have had 4 endoscopes done so I am well aware of the damage done to my esophagus. I am 64 and should have started 20 years ago taking more steps to address my acid reflux naturally instead of being on meds all that time. Weight control and especially your “diet” are the key ingredients to get it under control.
I didn’t want to contribute to the arguing but I am just going to say that I agree with Barbara as far as please please stop with all the bantering back and forth about the Covid virus. We all have access to the media and the internet to gain knowledge and information from whom we choose and we can form our own opinion, beliefs and protocol to protect ourselves with that knowledge. I am older and I choose to protect myself but I know that many others don’t take it as seriously. I can only control myself and what I do, not others. Let’s keep this a positive sight for healing and recovering from FQ poisoning. That is enough for most of us to deal with. Some people who come to this site are very sick from FQ toxicity. Let’s all be there for them in a positive healing way of support. Arguing back and forth about Covid is not what this site is here for so let’s be done with that. We all have enough stress and anxiety to deal with our FQ symptoms along with worrying about Covid too. Let’s be here for each other to facilitate healing from FQ symptoms. That is first and foremost for all of us. This site has helped so many of us in recovering from this FQ nightmare. Let’s keep it that way! No more arguing please!!!!
Bob, at this point in time I told talk I refuse to take PPIs and will avoid them unless my Barrett’s becomes a major problem. I may have no choice but need another scope to see how much damage has been done
I’m very keen to eat out next week when restaurants reopen here! Cooking every day for nearly three months has made me long to be able to sit down , choose from a menu and walk away from the washing up. Eventually managed to do the tax return with no tears. The real problem is the UK sticking to the stupid idea of a tax year that runs from April to April and not January to January. My husband keeps telling me to stop trying to understand it just fill in the boxes on the spread sheet. The paracetamol with opium painkillers work really well but like you I don’t want to build up a tolerance to them. So I am saving them for trips out on the bike. Getting on the bike is painful for the hip but once on I’m ok. Today we went for a picnic at a lake. I think the confinement has been emotionally wearing for a lot of people and it will be good to get out other than just for food shopping or the chemist. Take care .
Barbara, at this point in time when my acid reflux acts up I take an antacid to try and calm things down. I don’t want to go back on a PPI. My goal is to try and lose weight as I think the extra weight gain has really ramped up my acid reflux along with having a hiatal hernia. Even though being floxed was an absolute horrible nightmare I did lose 50 lbs the first 3-4 months which was actually a big part of my acid reflux going away for about two years. As I recovered I slowly gained all my weight back and my acid reflux came roaring back. I’m sure being floxed might have contributed to it coming back too. I will be 3 years out from floxing in one month. I actually consider myself about 90% recovered with the exception of this acid reflux and some symptoms that come and go but doesn’t really hinder my life much. I want to get another endoscope to see if my esophagus has been more damaged these past 3-4 months but am waiting for this Covid virus to decline more before having a scope. If I have further damage I might have to go back on a PPI to help my throat heal. Meanwhile I’m trying to watch my diet, eat smaller meals and stay upright until very late night until I lay down to sleep. It is a challenge everyday but I do my best. My floxing recovery was hell on earth. I had 20 plus symptoms and my recovery was long and slow. I’m just starting to feel like I’m getting my life back. The mental and emotional trauma is the hardest thing to come back from but I’m slowly finding myself again and trying to look forward instead of back. You have always shown kindness and support when I have come to this site with questions and concerns. You always encouraged me with positive and kind words. This floxing recovery is a long journey and it is a “process” to heal. I’m getting there. I try to help others when I can but I want to move past this too. I am praying that I can get my weight down and heal my esophagus along with getting stronger and more energy back day by day. I want to find joy and optimism back and no longer live in Floxie fear. It is a tough road to walk. Thank you for your support along the way.
Dee,
I don’t know if this will help, but I’ve just seen a post from a fluroquinolone site, where the poster, who is also a moderator said she took Betain HCL. The theory being that the reflux resulted not from an excess of acid production, but a general paucity. Blood cells in the respiratory tract could stack in what supposedly called the ‘Rouleaux formation’ This results from an absence of certain compounds necessary for digesting protiens. She said that taking Betaine HLC , a cheap probioctic complex, and some standard digestive enzymes, in less than a week this cleared up the problem. She also said it worked for people with ‘air hunger’ as well. It seemed to make sense to me, so I thought you might like to look into it. I really hope it helps.
I also think losing weight could help, but like you I find this extremely difficult as I’ve got older, it sucks, but I’m really happy to hear just how far you have come. To be 90% recovered after 3 years, tells me you are doing well, and with your positive attitude you will get there. Never foreget how far you’ve come in one of the hardest journey’s of your life. Your stronger than you think.
I wish you all the joy and optimism in the road ahead.
Love Barbara xx
Hi All,
I can’t stop people from commenting on a particular topic or thread (as one can on Facebook), so I just deleted a couple threads that had become contentious on issues other than fluoroquinolone toxicity. I deleted entire threads so as not to single out any particular person. I have an awful tendency to always want the last word, and I don’t think I’m alone in that unproductive tendency, so I just deleted the threads, and I hope that those who were involved in the conversation can agree to disagree.
Fluoroquinolones don’t care what a person believes, and people from every background and with beliefs all over the spectrum of possible beliefs, have been floxed. In a crazy way, it has brought people together who would not otherwise associate with each other, and that is a round-about blessing. I appreciate all the people that have come into my life because of this site and the “floxie” community. In no way do I appreciate the drugs or the damage they have done – but I do appreciate the people, even the ones that I disagree with and wouldn’t have associated with under other circumstances. This site has been a place where people can find things that they have in common, and they can help people through the horror of fluoroquinolone toxicity. Finding things in common and helping others is at the base of our humanity, and I appreciate seeing the humanity in everyone on here that has helped others through this difficult disease. You are all appreciated. Even those of you who are pissed at me for deleting long posts that took you a while to write. 😉
We are living in contentious times, and our differences seem to be highlighted more often than the things we have in common. But we really do have more in common than we don’t – and that’s something we should all keep in-mind.
I ask that until the world feels a bit less topsy-turvy, can you (collectively) please try to stick to topics that are fluoroquinolone toxicity and healing related? I know that COVID, and politics, and other contentious topics are on everyone’s mind, but if you can please stick to FQ related topics for the most part, your help will be appreciated. Thank you.
Hugs,
Lisa
Thank you Lisa, thanks for this great site that gives people hope.
Thank you Lisa for putting together very useful pieces of information.
here is also a nice resource for recovery:
https://bit.ly/3gGj6aP