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Moe
4 years ago
Is here somebody except those who already share their stories that recovered 100% from Levofloxacin ?
Carla Lockwood
4 years ago
Hi Moe … I am seven years out and have been following FloxieHope off and on for most of those years, although I haven’t yet contributed my considerable healing story. I don’t want to disillusion you, but it’s not certain that you can recover 100%. Of course, I’m speaking from the aged end of the spectrum, since my flox symptoms (from Levaquin) began at 70. I have been diligently working toward total healing, but at my age it’s fighting my way up the down escalator.
Nevertheless, I am still healing and function is slowly recovering. I would say I’m at 80-90% on my ‘good’ days. Considering that 4 years ago I was completely bedridden and in total pain, I think I have come a long way. If I can get this far at my age, those who are younger could heal even more efficiently and may claim close to 100% recovery.
Some of my observations from my experience, and from following comments on several Floxie sites:
The extreme anxiety and depression seem to happen in the early stages of floxing (although the “brain fog” can continue unpredictably). Perhaps the anxiety and depression is in some ways a natural reaction to being poisoned and becoming disabled, with the intensity of it aggravated by the drug. I want to reassure those who are at that stage to know that it gets better, that the extreme emotional changes level out. Perhaps realization and acceptance help, changing reaction into the determination to overcome the effects. Music and meditation at this point can be very effective, especially if you are bedridden and can’t do much else.
A lot of people, me included, want to continue exercise as a way to help heal. I learned the hard way that exercise must be curtailed when symptoms begin to appear. I was continuing to do my morning Yoga Sun Salute, part of which is Downward Dog, which stretches out the back of your legs — and the Achille’s tendon. Early in the progression of the damage done by Fluoroquinolones, the connective tissues become fragile and can easily rupture. Stretches can cause that, which is how I ended up with a probable Achille’s tendon rupture that developed into Stevens-Johnson Syndrome, a terrible acute inflammation of the foot and ankle. I have pictures. They are horrible. My friends thought I would have to have the foot amputated. I worked on it for more than a year, and what finally enabled it to heal was fresh Cannabis juice from shade leaves. I had tried many other forms of Cannabis (as well as countless other potential cures), but it was not until, in desperation, I tried juicing the fresh leaves that it made a difference. Worked wonders. Perhaps it was the abundance of chlorophyll, which would mean that juicing other greens (kale, spinach, etc.) might help as well. It may have been that the leaves contain more CBD and less THC.
My point, though, is that those who are newly floxed should avoid any exercise which strains the tendons, such as stretches, lifting weight, etc. Mild exercise in the pool seems okay. Mainly, remember your connections are fragile. They do recover as you go, but take it slowly, and stop if there is pain.
I have found that my healing journey has fallen into five categories. Within each category are a number of practices and treatments, which I can list and explain in later postings.
These are the “Five Steps to Healing” I have developed:
I. CLEANSE: Releasing toxins created by the poison and cleansing them from the body.
II. TREAT: Addressing the damage done by the toxins.
III. REBUILD: Building healthy new tissue with diet, supplements and herbs.
IV: MOVE: Keep moving carefully as much as you can when you can.
V: BELIEVE: Knowing with certainty that you will heal.
I’ll be glad to expand on any of those categories or answer any questions.
Don M
4 years ago
Carla Lockwood…….. Thank you for your post. In August I will be 86. Your not alone in the recovery attempt when it comes to age.
CARLA LOCKWOOD
4 years ago
Bravo, Don! I hope you are doing well. I’m finally at the stage where I want to exercise in the pool, and of course the pools have been shut down due to the virus. However, last week the City of Santa Rosa opened its big outdoor pool for scheduled use, with screening. I was able to participate last Friday, and it went very well. My legs are sore, but it’s muscle soreness from exercise rather than the random FQ pain. I highly recommend water exercise for recovery.
Janine
4 years ago
Hallo i took Levofloxacin 4 Months ago, i would love to exchange myself with floxies who also took levo. Because i heard is the strongest one when you’re talking about the side effects…..
Especially when you are from Vancouver, would love to hear if there is an Doctor or alternative medicine who treated some floxies or at least knows that i am not crazy
Janine
4 years ago
Sorry i forgot to post my E-mail, will free to write me whenever you want, it is j.risse100@gmail.com
Andrea
4 years ago
Hi guys. I haven’t posted for a while now, but from time to time i still read your posts. Just wanted to say hello to all of you, hoping that everyone is doing good (or better at least)…
Don M
4 years ago
Don’t knock it until you have tried it. It is based on the thousand year old system of acupressure. https://www.youtube.com/watch?v=Th0ySbSUToY It may not work for you but you will never know until you have tried it. It works for me so I am passing on the idea.
Acylief. Wearable acupressure. The best thing about it is that it helps to eliminate pain and other meds.
A.Coleman
4 years ago
Hey Floxies. Reading stories about COVID patients who are still sick months after their initial infection made me think of ourselves. I wonder how many of them developed pneumonia as a secondary infection and were given fluoroquinolones and it is fluoroquinolone toxicity they are suffering from not lingering COVID impacts or some combination of both.
In some cursory investigations I found a story from Rachel Brummert who is a certified patient advocate and fluoroquinolone survivor. She contracted COVID and at the time of the post seemed to be on the road to recovery. Read her story here – https://www.drugwatch.com/beyond-side-effects/testing-positive-for-covid-19/
If you don’t want to read the paper at the link above the sentence below should make you mad / frustrated. It was enough that I went out to the website for the hospital in Greece where this “doctor” works in an attempt to email them but was thwarted by the Greek alphabet when I got deeper in the site. If anybody reads Greek and wants to take a stab at emailing this “doctor” please do so.
Here is the sentence relative to FQs:
Noteworthy, respiratory fluoroquinolones are characterized by advantageous pharmacokinetic properties, leading to significantly higher concentrations in the lungs compared to serum, as well as an excellent safety profile comparable to other antibiotics used to treat respiratory infections, such as macrolides and b-lactams (13,14).
We all know that the part about the excellent safety profile is a bunch of B.S.
I read about the steroid treatment with Remdesivir being hopeful and if I was sick enough I would take a steroid at nearly five years post floxing; but you will never get another fluoroquinolone in my body.
Dee
4 years ago
Kirst. Thanks for the suggestion on acid reflux book! I will check it out!!????????
Andrea
4 years ago
Hello guys, any experience/bad reaction with Clonazepam (Klonopin or Rivotril)?
Thanks.
Louisa Mitchell
4 years ago
These are all benzodiazepines a very dangerous group of drugs.
Just watched this interview with Mikhaila Peterson.
Basically when Jordan Peterson got COVID he was also given a FQ and appears he has been floxed. Especially bad as he was withdrawing from Benzos at the time:
Thanks Louisa and Michael. Yes, benzos are terrible, but so is my chronic pelvic pain, which is destroying my life by not letting me sleep at night. This last medication seems to help quite a bit in that regard, but I always wake up groggy and tired, expecially when I take it the next morning again. And keep in mind, I’m actually taking a very low dosage!
I wanted that doctor to prescribe to me some medical grade cannabis, but : “NOOOO, there’s no proof that cannabis help with chronic pelvic pain”…Bullcrap! Luckly in Sept. I would be able to get an appointment with another docotr who belives in the properties of Cannabis and prescribes it for different problems. Let’s hope I won’t became a junky with this crap in the meantime…
Is here somebody except those who already share their stories that recovered 100% from Levofloxacin ?
Hi Moe … I am seven years out and have been following FloxieHope off and on for most of those years, although I haven’t yet contributed my considerable healing story. I don’t want to disillusion you, but it’s not certain that you can recover 100%. Of course, I’m speaking from the aged end of the spectrum, since my flox symptoms (from Levaquin) began at 70. I have been diligently working toward total healing, but at my age it’s fighting my way up the down escalator.
Nevertheless, I am still healing and function is slowly recovering. I would say I’m at 80-90% on my ‘good’ days. Considering that 4 years ago I was completely bedridden and in total pain, I think I have come a long way. If I can get this far at my age, those who are younger could heal even more efficiently and may claim close to 100% recovery.
Some of my observations from my experience, and from following comments on several Floxie sites:
The extreme anxiety and depression seem to happen in the early stages of floxing (although the “brain fog” can continue unpredictably). Perhaps the anxiety and depression is in some ways a natural reaction to being poisoned and becoming disabled, with the intensity of it aggravated by the drug. I want to reassure those who are at that stage to know that it gets better, that the extreme emotional changes level out. Perhaps realization and acceptance help, changing reaction into the determination to overcome the effects. Music and meditation at this point can be very effective, especially if you are bedridden and can’t do much else.
A lot of people, me included, want to continue exercise as a way to help heal. I learned the hard way that exercise must be curtailed when symptoms begin to appear. I was continuing to do my morning Yoga Sun Salute, part of which is Downward Dog, which stretches out the back of your legs — and the Achille’s tendon. Early in the progression of the damage done by Fluoroquinolones, the connective tissues become fragile and can easily rupture. Stretches can cause that, which is how I ended up with a probable Achille’s tendon rupture that developed into Stevens-Johnson Syndrome, a terrible acute inflammation of the foot and ankle. I have pictures. They are horrible. My friends thought I would have to have the foot amputated. I worked on it for more than a year, and what finally enabled it to heal was fresh Cannabis juice from shade leaves. I had tried many other forms of Cannabis (as well as countless other potential cures), but it was not until, in desperation, I tried juicing the fresh leaves that it made a difference. Worked wonders. Perhaps it was the abundance of chlorophyll, which would mean that juicing other greens (kale, spinach, etc.) might help as well. It may have been that the leaves contain more CBD and less THC.
My point, though, is that those who are newly floxed should avoid any exercise which strains the tendons, such as stretches, lifting weight, etc. Mild exercise in the pool seems okay. Mainly, remember your connections are fragile. They do recover as you go, but take it slowly, and stop if there is pain.
I have found that my healing journey has fallen into five categories. Within each category are a number of practices and treatments, which I can list and explain in later postings.
These are the “Five Steps to Healing” I have developed:
I. CLEANSE: Releasing toxins created by the poison and cleansing them from the body.
II. TREAT: Addressing the damage done by the toxins.
III. REBUILD: Building healthy new tissue with diet, supplements and herbs.
IV: MOVE: Keep moving carefully as much as you can when you can.
V: BELIEVE: Knowing with certainty that you will heal.
I’ll be glad to expand on any of those categories or answer any questions.
Carla Lockwood…….. Thank you for your post. In August I will be 86. Your not alone in the recovery attempt when it comes to age.
Bravo, Don! I hope you are doing well. I’m finally at the stage where I want to exercise in the pool, and of course the pools have been shut down due to the virus. However, last week the City of Santa Rosa opened its big outdoor pool for scheduled use, with screening. I was able to participate last Friday, and it went very well. My legs are sore, but it’s muscle soreness from exercise rather than the random FQ pain. I highly recommend water exercise for recovery.
Hallo i took Levofloxacin 4 Months ago, i would love to exchange myself with floxies who also took levo. Because i heard is the strongest one when you’re talking about the side effects…..
Especially when you are from Vancouver, would love to hear if there is an Doctor or alternative medicine who treated some floxies or at least knows that i am not crazy
Sorry i forgot to post my E-mail, will free to write me whenever you want, it is j.risse100@gmail.com
Hi guys. I haven’t posted for a while now, but from time to time i still read your posts. Just wanted to say hello to all of you, hoping that everyone is doing good (or better at least)…
Don’t knock it until you have tried it. It is based on the thousand year old system of acupressure. https://www.youtube.com/watch?v=Th0ySbSUToY It may not work for you but you will never know until you have tried it. It works for me so I am passing on the idea.
Acylief. Wearable acupressure. The best thing about it is that it helps to eliminate pain and other meds.
Hey Floxies. Reading stories about COVID patients who are still sick months after their initial infection made me think of ourselves. I wonder how many of them developed pneumonia as a secondary infection and were given fluoroquinolones and it is fluoroquinolone toxicity they are suffering from not lingering COVID impacts or some combination of both.
In some cursory investigations I found a story from Rachel Brummert who is a certified patient advocate and fluoroquinolone survivor. She contracted COVID and at the time of the post seemed to be on the road to recovery. Read her story here – https://www.drugwatch.com/beyond-side-effects/testing-positive-for-covid-19/
In a related post to my one above I unfortunately found at least one published, peer-reviewed paper pushing fluoroquinolones as a treatment for COVID – https://www.sciencedirect.com/science/article/pii/S0188440920309243
If you don’t want to read the paper at the link above the sentence below should make you mad / frustrated. It was enough that I went out to the website for the hospital in Greece where this “doctor” works in an attempt to email them but was thwarted by the Greek alphabet when I got deeper in the site. If anybody reads Greek and wants to take a stab at emailing this “doctor” please do so.
Here is the sentence relative to FQs:
Noteworthy, respiratory fluoroquinolones are characterized by advantageous pharmacokinetic properties, leading to significantly higher concentrations in the lungs compared to serum, as well as an excellent safety profile comparable to other antibiotics used to treat respiratory infections, such as macrolides and b-lactams (13,14).
We all know that the part about the excellent safety profile is a bunch of B.S.
I read about the steroid treatment with Remdesivir being hopeful and if I was sick enough I would take a steroid at nearly five years post floxing; but you will never get another fluoroquinolone in my body.
Kirst. Thanks for the suggestion on acid reflux book! I will check it out!!????????
Hello guys, any experience/bad reaction with Clonazepam (Klonopin or Rivotril)?
Thanks.
These are all benzodiazepines a very dangerous group of drugs.
https://www.benzo.org.uk/manual/
Just watched this interview with Mikhaila Peterson.
Basically when Jordan Peterson got COVID he was also given a FQ and appears he has been floxed. Especially bad as he was withdrawing from Benzos at the time:
https://youtu.be/LlNszhp4llU
Killing us slowly…………
Thanks Louisa and Michael. Yes, benzos are terrible, but so is my chronic pelvic pain, which is destroying my life by not letting me sleep at night. This last medication seems to help quite a bit in that regard, but I always wake up groggy and tired, expecially when I take it the next morning again. And keep in mind, I’m actually taking a very low dosage!
I wanted that doctor to prescribe to me some medical grade cannabis, but : “NOOOO, there’s no proof that cannabis help with chronic pelvic pain”…Bullcrap! Luckly in Sept. I would be able to get an appointment with another docotr who belives in the properties of Cannabis and prescribes it for different problems. Let’s hope I won’t became a junky with this crap in the meantime…
Andrea…………. https://www.healthline.com/health/cold-laser-therapy#at–home-use Can only put one web referral per posting otherwise the checkers won’t post it.
Andrea……. PEMF Information from and expert on PEMF https://www.drpawluk.com/
Andrea…………… An example of the PEMP unit. https://drhuldaclarksupplies.com/magzapper.html
I have this one and use it regularly. And yes it does help.