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Hello guys, how’re you doing? I hope well.
I was thinking about soemthing I wanted to share with you : since all of us have been affected and damaged by FQs, but each one to a different extent, and there’re many different kinds of FQs, I’d like to understand if there’s one or more of them more dangerous than the others. Of course all FQs are terrible and potentially lethal, but is, for example, Cipro worse than Avelox or Avelox worse than Levaquin? and so on…It would be interseting to understand this subtle difference. In mu case, I was permanently damaged by Prulifloxacin.
Jim
4 years ago
This is an interesting question, the most prescribed FQs are Cipro and Levaquin, however the doses are not directly comparable as approx. 1000mg of Cipro = 750mg of Levaquin. I recall reading (might be the flox report) that Levaquin has approx. 2 x the therapeutic value of Cipro, therefore on this basis Levaquin for a comparable prescription might have more potential for adverse effects
Andrea
4 years ago
Thanks Jim and Don…yeah, I too remember someone here on Floxie Hope, saying something about Levaquin being the nastiest of the bunch…
Hello All…
Has anyone had an adverse reaction to Famotidine…(Pepcid)? I took it a few days ago and it flared my joint pain considerably:(
Faisal Alkhaldi
4 years ago
Hello all,
help me. I’m Flux 4 years ago, I took one pill from Avalux and suffered from severe palpitations for the first year, and now I suffer from 171 beats of palpitations of my heart. Are there solutions? Do I have a heart condition or panic? Do panic my heart rate today 171?
Pank attack or somthing wrong ?
Any help 🙁
Faisal Alkhaldi
4 years ago
Hello all,
help me. I’m Flux 4 years ago, I took one pill from Avalux and suffered from severe palpitations for the first year, and now I suffer from 171 beats of palpitations of my heart. Are there solutions? Do I have a heart condition or panic? Do panic my heart rate today 171?
Is the problem Neuropathy when standing up my heart beat frightening and pain in the nerves of the limbs
Pank attack or somthing wrong ?
Any help 🙁
A.Coleman
4 years ago
Hi everybody,
Tomorrow will be my 5th year Floxiversary!!
I have been posting on my floxiversary every year. Last year I posted that I anticipated writing a recovery story by the time of my 5th floxiversary; unfortunately that is not what I am doing.
I suffered my second most severe relapse in December of 2019. Around Christmas I was starting to think that my journey might have an end in site; but then I had a relapse that saw my headaches and brain fog get much worse and saw a return of sore lymph nodes (a symptom that had been gone for over a year) come back in February 2020. I also suffered a torn meniscus in my left knee about the same time. While this might not be totally fluoroquinolone related I am sure that I was in a vulnerable state and my recovery has been slowed by my FQ status.
In the last year I have continued to see very slow improvement in my digestive problems (digestive problems along with other neurological problems are my major floxie issues). I am now almost completely free of heartburn and stomach discomfort is absent about 80% of the time. My lymph node issue is nearly resolved – for the second time. And most importantly I have started having some days where I don’t experience much brain fog / headaches.
I have even had a few days in the last two months that I would rate as feeling normal. So, I am trending overall in the right direction, but progress is so very, very slow. I wish I could say that I anticipate writing a recovery story by the 6th year floxiversary; but given my relapses as I near healing and my very slow recovery rate I now believe it will be a bit longer than that. I will not write my healing story until I have been “normal” at least 90% of the time for the previous 6 months. While I don’t anticipate another relapse; I’m going to make sure I don’t post a healing story then suffer one.
I still deal with tinitus and neuropathy. The neuropathy in my feet has gotten to the point where I only notice it if I wear uncomfortable shoes or put lots of pressure on my feet (I always get neuropathy for an hour or so after I work out for example unless all I do is yoga or mild weight lifting). The weird cold sensation I have in my lower legs is clearly related to Magnesium and Epsom salt baths and Mg oil sprays make it better. I take lots of Mg threonate and Mg glycinate but it must be getting used up in other areas of my body or not being absorbed and my legs need the external sources of Mg. I still have a bit of an issue with anxiety where I have issues for a week or so then go for a month without. I have been using a liposomal form of GABA when I get a panic attack and it has been helping BTW.
While my headaches and brain fog have gotten much better they are still the primary issue affecting my life most days. I almost always have a portion of the day now that is free of these issues; and have had about 15% of all days be mostly free of problems for the last two months. I also still have weird issues with my neck and I think all of this is tied together to some aspect. I suspect a tiny Cerebral Spinal Fluid leak in my neck is a strong possibility. I also note that my fatigue is much worse when my brain fog is worse.
I still suffer from insomnia. I fall asleep easily but wake up in the middle of the night and can’t return to sleep. Until the last six or so months I averaged about 6 hours of sleep a night. That is up to 7 now and while I still tend to wake up most nights that has shifted to around 4 AM giving me around 6 solid hours of sleep most nights.
In the last year I have found two supplements that have really helped. Thorne – RF Curcumin with resvaratol has helped my neck and knees. It takes a long time to act (probably 1 to 2 months) and I only realized it was helping when I stopped and suffered renewed problems then resumed and they were alleviated. The other is the liposomal GABA from Quicksilver that seems to help my anxiety / panic attacks. (I added it to try to hep the insomnia; but it didn’t help there.)
I expect I will be able to write a healing blog some day. I do get discouraged from time to time; but I am still changing and in the large season compared to season sense it is for the better. I appreciate the support of the folks on Floxie Hope and hope you are all doing well in your healing journey too. Let’s all hope that the next floxiversary is associated with a healing story post!
Adam
4 years ago
Some quick update guys, My Anxiety has increased after supplementing with MSM a Sulphur based compound, I think many people have genetic variations that makes them weak at dealing with Sulphur. I have also learned that the bodies PH level SIGNIFICANTLY impacts anxiety, the amygdala responds to higher acidity levels and neurons fire more rapidly causing anxiety, Try avoiding high Sulphur foods and supplements.
Some other TIPS.
1 – TREAT THE ANXIETY don’t wait – GET HELP in the form of a SGB block, watch the 60 minute interview on a stellate ganglion block for PTSD/Anxiety many of us dealing with live changing consequences of the plosion we were given are suffering from some form of anxiety or trauma disorder. PLEASE try and get an SGB injection done, Dr Lipov is the best, he also conducts he used both a lidocaine solution and for SEVERE PTSD he even conducts a ”radiofrequency (RF) ablation of Stellate ganglion region (SG) ”.
2 – Zinc is the MASTER ORGANISER – take it you are likely deficient and it helps in calming the excited neurons.
I became a Floxie three years back but learned how to overcome it using supplements and diet changes. I have been Floxie free for about a month and am restoring the damage at a steady pace. I have to recover from the financial ruin next.
I think everyone can get past being a Floxie in about a year. The first thing to do is to chemically remove all toxins. It takes two treatments. First remove the Fluroquinolones with Sturated Epsom salt foot soaks. 15 minutes a day for four days is required. Second take a daily tonic of Borax solution , one ounce. 2 teaspoons in a quart of water.
I look forward to your results and questions.
John Taylor – The Healthy Truth
Don M
4 years ago
Magnesium Oil……… It is magnesium chloride and distilled or clean filtered water. DO NOT underestimate the power of it when it comes to relieving muscle cramps. Muscle cramps anywhere on the body. Just spray it on and let it absorb into the skin. One can make it into a roll on by using an old roll on bottle. Just drill a hole near the top and fill it with Mag Oil. Cover the hole with a piece of tape. It works and it is cheap. Try it.
Jessica
4 years ago
I was wondering if anyone has tried to take another antibiotic (different from a florquinolone) soon after being floxed? If so, what was your experience? I had to prematurely stop taking the florquinolone, due to severe adverse symptoms, so my original infection was never cured. I am very concerned that this new antibiotic will cause problems since I took the florquinolone a week and a half ago. This new antibiotic has the capabilities to cause a QT prolongation, but should be much safer. If it is good to wait to take the new antibiotic, what would be a good amount of time to wait? It is difficult to trust any medication at this point. Thanks for the help!
Jessica…….. Read this article: “Don’t kill E. coli bacteria that cause bladder infection, feed them” https://nutritionandhealing.com/2014/06/04/eliminate-bladder-infection/ I use D-Mannose and it does work. The nice thing about D-Mannose is that since it is called a kind of sugar you can use it regularly to ward off future infections.
Bruce
4 years ago
John Taylor, can you use Boron instead of Borax?
Andrea
4 years ago
Hey guys, how are you doing?
I wanted to share with you my latest experience with a new “supplement” : medical cannabis.
I recently found a doctor who prescribed it to me, so I’ve been using it for the last few weeks. My main problem is frequent urination and chronic pelvic pain, and other aches, expecially in my ankles and shins. While the cannabis didn’t help much, well let’s say it helped just a little, with the pelvic pain, I’ve noticed great improvement for the aches in my legs. I usually walk a lot, as a form of soft training, 5-6 miles a day, but if I’d did it for 2-3 days straight, the pain started to increased, and I had to stop for at least 24 hrs, sometimes even more. But now, with the help of cannabis, I’ve noticed I’m able to walk at a nice pace, even uphill, everyday, without any problem and when sometimes, in the evening, the pain come back, I use cannabis, and in a matter of 15-30 minutes, the pain really decrease or even disappear. I’ve also noticed I’m way more relaxed and happy, well, let’s say less grumpy.
That’s all for now. Wish everyone the best, expecially the old “friends”: Don, A. Coleman, Barbara, well…everyone.
Andrea.
Dee
4 years ago
Andreas, so good to hear!! Glad you are “feeling” better and walking away with less pain! I’m still dealing with small issues (mostly skin issues, dry with some eczema) and also peeing a lot too. Of course I’m not at my pre flox days and May never be but managing to live life pretty normal as much as possible!! Three years out now. Let’s keep on marching forward!! Good to hear happy news from you!!!
Michael
4 years ago
Hiya. I’m interested to know if anybody with neuropathies got better after 1 year. The reason I ask is that this is my main symptom now (peripheral neuropathy small fiber). I know people have gotten better from it but from what I’ve seen a lot of those got better within a year. What I’m wondering is if anybody’s resolves after that. Anybody had it and it went away at 18 months, 24 months, 36 months etc
I’m at 15 months and really wondering if I’m stuck with this for life or whether I can hope for more resolution of symptoms at this stage…
Super interesting.
Hey there!
Very interesting reading. http://www.myquinstory.info/fluoroquinolones-their-connection-to-older-anti-malarial-drugs/
Something that EVERY floxie should be aware of should they contract COVID-19.
Hello guys, how’re you doing? I hope well.
I was thinking about soemthing I wanted to share with you : since all of us have been affected and damaged by FQs, but each one to a different extent, and there’re many different kinds of FQs, I’d like to understand if there’s one or more of them more dangerous than the others. Of course all FQs are terrible and potentially lethal, but is, for example, Cipro worse than Avelox or Avelox worse than Levaquin? and so on…It would be interseting to understand this subtle difference. In mu case, I was permanently damaged by Prulifloxacin.
This is an interesting question, the most prescribed FQs are Cipro and Levaquin, however the doses are not directly comparable as approx. 1000mg of Cipro = 750mg of Levaquin. I recall reading (might be the flox report) that Levaquin has approx. 2 x the therapeutic value of Cipro, therefore on this basis Levaquin for a comparable prescription might have more potential for adverse effects
Thanks Jim and Don…yeah, I too remember someone here on Floxie Hope, saying something about Levaquin being the nastiest of the bunch…
Hello All…
Has anyone had an adverse reaction to Famotidine…(Pepcid)? I took it a few days ago and it flared my joint pain considerably:(
Hello all,
help me. I’m Flux 4 years ago, I took one pill from Avalux and suffered from severe palpitations for the first year, and now I suffer from 171 beats of palpitations of my heart. Are there solutions? Do I have a heart condition or panic? Do panic my heart rate today 171?
Pank attack or somthing wrong ?
Any help 🙁
Hello all,
help me. I’m Flux 4 years ago, I took one pill from Avalux and suffered from severe palpitations for the first year, and now I suffer from 171 beats of palpitations of my heart. Are there solutions? Do I have a heart condition or panic? Do panic my heart rate today 171?
Is the problem Neuropathy when standing up my heart beat frightening and pain in the nerves of the limbs
Pank attack or somthing wrong ?
Any help 🙁
Hi everybody,
Tomorrow will be my 5th year Floxiversary!!
I have been posting on my floxiversary every year. Last year I posted that I anticipated writing a recovery story by the time of my 5th floxiversary; unfortunately that is not what I am doing.
I suffered my second most severe relapse in December of 2019. Around Christmas I was starting to think that my journey might have an end in site; but then I had a relapse that saw my headaches and brain fog get much worse and saw a return of sore lymph nodes (a symptom that had been gone for over a year) come back in February 2020. I also suffered a torn meniscus in my left knee about the same time. While this might not be totally fluoroquinolone related I am sure that I was in a vulnerable state and my recovery has been slowed by my FQ status.
In the last year I have continued to see very slow improvement in my digestive problems (digestive problems along with other neurological problems are my major floxie issues). I am now almost completely free of heartburn and stomach discomfort is absent about 80% of the time. My lymph node issue is nearly resolved – for the second time. And most importantly I have started having some days where I don’t experience much brain fog / headaches.
I have even had a few days in the last two months that I would rate as feeling normal. So, I am trending overall in the right direction, but progress is so very, very slow. I wish I could say that I anticipate writing a recovery story by the 6th year floxiversary; but given my relapses as I near healing and my very slow recovery rate I now believe it will be a bit longer than that. I will not write my healing story until I have been “normal” at least 90% of the time for the previous 6 months. While I don’t anticipate another relapse; I’m going to make sure I don’t post a healing story then suffer one.
I still deal with tinitus and neuropathy. The neuropathy in my feet has gotten to the point where I only notice it if I wear uncomfortable shoes or put lots of pressure on my feet (I always get neuropathy for an hour or so after I work out for example unless all I do is yoga or mild weight lifting). The weird cold sensation I have in my lower legs is clearly related to Magnesium and Epsom salt baths and Mg oil sprays make it better. I take lots of Mg threonate and Mg glycinate but it must be getting used up in other areas of my body or not being absorbed and my legs need the external sources of Mg. I still have a bit of an issue with anxiety where I have issues for a week or so then go for a month without. I have been using a liposomal form of GABA when I get a panic attack and it has been helping BTW.
While my headaches and brain fog have gotten much better they are still the primary issue affecting my life most days. I almost always have a portion of the day now that is free of these issues; and have had about 15% of all days be mostly free of problems for the last two months. I also still have weird issues with my neck and I think all of this is tied together to some aspect. I suspect a tiny Cerebral Spinal Fluid leak in my neck is a strong possibility. I also note that my fatigue is much worse when my brain fog is worse.
I still suffer from insomnia. I fall asleep easily but wake up in the middle of the night and can’t return to sleep. Until the last six or so months I averaged about 6 hours of sleep a night. That is up to 7 now and while I still tend to wake up most nights that has shifted to around 4 AM giving me around 6 solid hours of sleep most nights.
In the last year I have found two supplements that have really helped. Thorne – RF Curcumin with resvaratol has helped my neck and knees. It takes a long time to act (probably 1 to 2 months) and I only realized it was helping when I stopped and suffered renewed problems then resumed and they were alleviated. The other is the liposomal GABA from Quicksilver that seems to help my anxiety / panic attacks. (I added it to try to hep the insomnia; but it didn’t help there.)
I expect I will be able to write a healing blog some day. I do get discouraged from time to time; but I am still changing and in the large season compared to season sense it is for the better. I appreciate the support of the folks on Floxie Hope and hope you are all doing well in your healing journey too. Let’s all hope that the next floxiversary is associated with a healing story post!
Some quick update guys, My Anxiety has increased after supplementing with MSM a Sulphur based compound, I think many people have genetic variations that makes them weak at dealing with Sulphur. I have also learned that the bodies PH level SIGNIFICANTLY impacts anxiety, the amygdala responds to higher acidity levels and neurons fire more rapidly causing anxiety, Try avoiding high Sulphur foods and supplements.
Some other TIPS.
1 – TREAT THE ANXIETY don’t wait – GET HELP in the form of a SGB block, watch the 60 minute interview on a stellate ganglion block for PTSD/Anxiety many of us dealing with live changing consequences of the plosion we were given are suffering from some form of anxiety or trauma disorder. PLEASE try and get an SGB injection done, Dr Lipov is the best, he also conducts he used both a lidocaine solution and for SEVERE PTSD he even conducts a ”radiofrequency (RF) ablation of Stellate ganglion region (SG) ”.
2 – Zinc is the MASTER ORGANISER – take it you are likely deficient and it helps in calming the excited neurons.
Hi all,
I became a Floxie three years back but learned how to overcome it using supplements and diet changes. I have been Floxie free for about a month and am restoring the damage at a steady pace. I have to recover from the financial ruin next.
I think everyone can get past being a Floxie in about a year. The first thing to do is to chemically remove all toxins. It takes two treatments. First remove the Fluroquinolones with Sturated Epsom salt foot soaks. 15 minutes a day for four days is required. Second take a daily tonic of Borax solution , one ounce. 2 teaspoons in a quart of water.
I look forward to your results and questions.
John Taylor – The Healthy Truth
Magnesium Oil……… It is magnesium chloride and distilled or clean filtered water. DO NOT underestimate the power of it when it comes to relieving muscle cramps. Muscle cramps anywhere on the body. Just spray it on and let it absorb into the skin. One can make it into a roll on by using an old roll on bottle. Just drill a hole near the top and fill it with Mag Oil. Cover the hole with a piece of tape. It works and it is cheap. Try it.
I was wondering if anyone has tried to take another antibiotic (different from a florquinolone) soon after being floxed? If so, what was your experience? I had to prematurely stop taking the florquinolone, due to severe adverse symptoms, so my original infection was never cured. I am very concerned that this new antibiotic will cause problems since I took the florquinolone a week and a half ago. This new antibiotic has the capabilities to cause a QT prolongation, but should be much safer. If it is good to wait to take the new antibiotic, what would be a good amount of time to wait? It is difficult to trust any medication at this point. Thanks for the help!
Re the Jessica and A.Coleman posts. http://pantrypharmacy.com/2018/12/20/the-kill-list-e-coli-edition/ This is some interesting reading. More complicated than popping an antibiotic pill but maybe natural will work better and have permanent results in the end.
Jessica…….. Read this article: “Don’t kill E. coli bacteria that cause bladder infection, feed them” https://nutritionandhealing.com/2014/06/04/eliminate-bladder-infection/ I use D-Mannose and it does work. The nice thing about D-Mannose is that since it is called a kind of sugar you can use it regularly to ward off future infections.
John Taylor, can you use Boron instead of Borax?
Hey guys, how are you doing?
I wanted to share with you my latest experience with a new “supplement” : medical cannabis.
I recently found a doctor who prescribed it to me, so I’ve been using it for the last few weeks. My main problem is frequent urination and chronic pelvic pain, and other aches, expecially in my ankles and shins. While the cannabis didn’t help much, well let’s say it helped just a little, with the pelvic pain, I’ve noticed great improvement for the aches in my legs. I usually walk a lot, as a form of soft training, 5-6 miles a day, but if I’d did it for 2-3 days straight, the pain started to increased, and I had to stop for at least 24 hrs, sometimes even more. But now, with the help of cannabis, I’ve noticed I’m able to walk at a nice pace, even uphill, everyday, without any problem and when sometimes, in the evening, the pain come back, I use cannabis, and in a matter of 15-30 minutes, the pain really decrease or even disappear. I’ve also noticed I’m way more relaxed and happy, well, let’s say less grumpy.
That’s all for now. Wish everyone the best, expecially the old “friends”: Don, A. Coleman, Barbara, well…everyone.
Andrea.
Andreas, so good to hear!! Glad you are “feeling” better and walking away with less pain! I’m still dealing with small issues (mostly skin issues, dry with some eczema) and also peeing a lot too. Of course I’m not at my pre flox days and May never be but managing to live life pretty normal as much as possible!! Three years out now. Let’s keep on marching forward!! Good to hear happy news from you!!!
Hiya. I’m interested to know if anybody with neuropathies got better after 1 year. The reason I ask is that this is my main symptom now (peripheral neuropathy small fiber). I know people have gotten better from it but from what I’ve seen a lot of those got better within a year. What I’m wondering is if anybody’s resolves after that. Anybody had it and it went away at 18 months, 24 months, 36 months etc
I’m at 15 months and really wondering if I’m stuck with this for life or whether I can hope for more resolution of symptoms at this stage…
Thanks!