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Lukasz
3 years ago
Happy (soon to be) New Year, everyone. Hope you will all make great progress in 2021 and feel much improved by the end of the year. Let’s hope the global situation improves as well.
Barbara Arnold
3 years ago
HAPPY HEALING NEW YEAR TO ALL OUR FLOXY FRIENDS. STAY STRONG AND POSITIVE.
LOVE,
BARBARA
A.Coleman
3 years ago
Hey everybody – Happy New Year
I haven’t posted in a long time because I had been recovering so well. My headaches and brain fog were progressing nicely; not cured but no longer a huge issue; my digestion was finally getting close to normal and even my neck problems were getting better. Neuropathy was still a mild issue; but one that was “controlled” and I only noted a few days a week.
I was thinking that I might be a few months from being well. I was having about 20% of all days that were in the realm of normal the last two months and then right before Christmas my neuropathy went haywire. Worst it has been since the first year as a floxie (for those of you I don’t know I have been a floxie a bit over 5 years).
I traditionally have neuropathy limited to my feet with very occasional flares in my hands and lower limbs. Now I have neuropathy in all those areas at once and it is pretty severe. I am so depressed since I was feeling so good before this relapse. I just don’t understand what triggered it. I live in the northern US and cold weather always makes it a bit worse; but this is way worse than it normally is even in January.
I had reduced my B vitamins to try to get my body to produce more on its own. Compared to 18 months ago I am taking about 1/8 of the Vitamin B complex that I was then and until recently doing okay on that in terms of neuropathy. I pulsed my B vitamins taking 1/2 of my previous dose but on only 2 days a week and 1/4 my previous dose the other day; with four days with no B vitamins. I plan to go back to 1/4 dose every day of the week and see if that helps any for a while before doing anything else.
I am posting because I want to know if anyone has taken Nortriptyline after floxing? This same drug has been suggested to me by three different doctors for symptoms I have from floxing. My neurologist suggested it for headaches, it was suggested for insomnia and by a spine care specialist for neuropathy. I would not be taking it like I would for anti-depression but at a much smaller dose (25 to 50 mg daily); but I am starting to consider it.
I haven’t had any prescription drugs for 5 years other than starting a blood pressure med around 18 months ago. I am hesitant to take drugs; especially ones that don’t treat issues but mask symptoms, but with so many issues converging on the same recommended drug and the very low dose, compared to “normal” that I would be taking that I am considering it.
Anybody have any experience or suggestions?? Thanks.
A.Coleman
3 years ago
Hey everyone on another note; I wanted to let you know about my experience with COVID as a floxie. Despite me almost never leaving the house; my wife caught COVID and of course then so did I. (Note; my wife was careful too – she caught it while visiting with her sister, who had had a negative test three days prior and both were masked except they made the poor decision to eat a meal and were unmasked during the meal (while maintaining social distance) and my sister-in-law gave it to my wife who gave it to me. There was a silver lining – somehow my 88 year old father-in-law, with whom they were visiting, never contracted it.
I was lucky that I had a pretty mild course. I had a cough and was tired and achy for around a week but that was the major problems. I did have a high pulse rate off and on even three weeks after getting sick – and it was major (my resting pulse is usually in the low 60s upper 70s and it would spike to 110 to 120 for a few hours once every four or five days).
I was VERY fatigued and combined with floxie fatigue this was the major symptom I dealt with. It took two months to get back to a normal floxie level of fatigue, which for me these days isn’t too far from pre-floxing levels most days.
I do note that my BP ticked up a few points after COVID and hasn’t gone down yet. A bit of me wonders if my relapse of the neuropathy isn’t partially due to the stress COVID put on my body – it probably is.
I would prefer to have never had COVID, especially as long term effects are still unknown; but wanted to let you know how it impacted me.
My abnormal peristalsis or lack of I intestinal flow was caused by a lack of Magnesium chloride. I have been low on magnesium since I was floxed. Even through I read Caroline Dean’s book on magnesium cover to cover and MgCl oil and lotion it was low. After I got out of the hospital my back muscles were so sore I had to lie flat for most of the day. I would put a towel soaked in Mg Cl solution on my back and get relief. So I read the book again and realized MgCl is very important. For muscle relaxation. I added MG CL in my foot soak and did soaked twice a day. It took 5 months before my muscles stopped aching. I also had to restrict Vitamin D (so as not to use up the free Mg and make my back and stomach sore again.
In the hospital, the blood doctor gave me bag after bag of magnesium sulphate to raise my Mg level. I wasn’t smart enough to ask for MgCl at that time. It took 4-5 days for my bowels,to,function at all and the they were fairly normal,after a month. Back soreness and charley horse occurred until,the five month time.
So my stomach problems were caused by the Cipro.
I had been taking Borax at low levels for 7 months and my blood glucose was dropping before the stomach shut down. I was running 2.3 degrees cold and taking thyroid supplements to,help but thye raised my blood glucose so I would stop and wait for the glucose level to return to 160. So for 5 months my blood glucose cycled between 160 and 190.
A month after leaving the hospital I lost the Floxie feeling. I believe the Borax had removed enough of the antibiotics that they were not destroying me faster than the supplements could effect repairs. I think the Borax was amd co tiniest to,be helpful.But the problem is repairing one thing can steal nutrients from other area and cause problems there. As my magnesium levels returned closer to,normal, the back soreness wa satisfied amd the magnesium decency signal settled on arthritis in my left thumb only. Now that is gone 28 days a month. I have been able to raise my Vitamin D levels without stealing Mg from my muscles now.
Caroline Dean recommends 13 magnesium salts for various conditions. I take 5. I keep reading her book to see what else I should be doing.
I am slow;y getting better. I am only 1.2 degrees cold now. I think the Borax is still helping. I started taking a Boron salt to see if that would remove antibiotics. If it does, it is a minor effect. However today for the fourth time of taking one Boron pill amd hours later I get a significant discharge food intolerance mucus. They I wait a few days for the mucus to stop and do it again. I think the food intolerance mucus in dry form is stored in my organs. Getting rid of it is helpful.
It is an ongoing saga but I feel more and more I am moving away from the clutches of being a Floxie.
LOL
John Taylor
Don M
3 years ago
John…… I asked this question earlier but you were off line and I never got your opinion. With the Borax I want to use the ounce daily routine but I want to take it at bedtime and let it work over night when there is very little else going on. That way I could take some supplements during the day. Your opinion?
A. Coleman
I wonder how many floxies experience a flare following covid??? It would be interesting to know.
I hope you recover quicky!
Aga
3 years ago
Hi guys,
Happy New Year to everybody. I have a question re N-Acetylcysteine, have you tried it? What was your experience with it? Any side effects?
Thanks,
Aga
Andrea
3 years ago
Hi guys.
Yesterday, after a month, I’ve checked my vitamin D and calcium blood levels again. Remember, there’re mounting studies that shows how having optimal vitamin D levels it’s protective against the virus, but of course the governments, the Italian government here in particular, keep saying there’s no proof about that. Besides, I’ve always noticed, since being floxed, how vitamin D it’s super important as far as pain menagment for me.
So, in just a month, my levels raised from 53.3 to 70.2 ng/dl, which is good, but also the calcium increased from 10 to 10.4, wich is not good, since the upper limit is 10.6. I’m almost sure that this tremendous increase is due to the boron supplementation, which II’ve been taking for about 2/2.5 months. Boron is known to increase vitamin D serum levels and also support/regulates the mineralization of bones and cartilages. Anyway, I’ve decided to give boron a break and in another month, see what my blood results look like. I’ll keep you updated.
To Aga, Sorry, but I’ve never took N-Acetylcysteine, so I can’t help you, but why are interested in it?
David
3 years ago
I’m excited to hear from anyone who has any research on whether Floxies will be able to take the COVID vaccine. We have mitochondrial damage. Will this vaccine worsen our condition?
I had been feeling various improvements for 3 years. Arthritis in my left hand would come and go and I felt it was a sign of Mg level.(At first I had constant pain in both hands.) But I always felt a general malais and would be tired. sluggish during the day. Then I last that feeling and had more energy. I also noticed that repairs of all kinds of things werre going at a faster pace. It was a sharp transition.
LOL
John Taylor
Jacob Link
3 years ago
I am recently floxed. I stopped taking Cipro yesterday morning after 6 days being on it. Last night my feet started tingling and my muscles became weak. Today, my knee feels like it will explode and the tingling in my legs is bothersome. I am in full panic. I read the tips, but am wondering if there is anything else I can be doing.
Don M
3 years ago
Just a bit of information that you all may or may not know about search engines. Google tracks you. Use Google to find something and they are tracking you. Duckduckgo is a search engine that claims to NOT track you during your searches. https://duckduckgo.com
Michael
3 years ago
Hi all,
Can somebody give me an idea of what to expect with brain fog?
So I’m 18 months out after 4 weeks cipro aged 42 when floxed.
My main symptom until now has been neuropathy mainly in my feet and up to my knees at times. This is very very gradually getting better.
I’m almost at a crossover now where brain fog is becoming my main symptom and no longer neuropathy.
I don’t feel like I’ve lost intelligence but I do feel tired a lot, and cloudy in the head almost like a veil has come down over me. A bit like being mildly drunk only not pleasant at all. I am worst after exerting myself physically or mentally, in the afternoons or if I haven’t slept well.
I don’t drink or smoke and functionally I am mostly where I was before floxing in terms of work and life activities. Although I do only work part time but I am lucky that I am able to. I think full time would be hard.
What can I expect? And what is this really? Is it brain damage? Is it chemo brain? Is it Chronic Fatigue Syndrome?
Best,
Michael
Don M
3 years ago
Michael……. “I don’t feel like I’ve lost intelligence but I do feel tired a lot, and cloudy in the head almost like a veil has come down over me. A bit like being mildly drunk only not pleasant at all. I am worst after exerting myself physically or mentally, in the afternoons or if I haven’t slept well”. You have described exactly the way I feel. “And what is this really? Is it brain damage? Is it chemo brain? Is it Chronic Fatigue Syndrome”? I think to some degree it is all of the things you list. Will it/does it get better/ Takes time and lots of it. I am still working at it. Discussing your problems with those that DO understand you helps. So much of the established medicine is totally ignorant and try to BS us into thinking that we are nuts .
Hang in there. You come first. Do the things that make you feel better.
John
3 years ago
I took 7 x 500 mg pills of Cipro 4 months ago, unfortunatelly with corticosteroids (astma came up during treatment). I have serious walking issues, in one leg below the knee i feel some pain and weakness with every step. I can now walk about 30 minutes per day (it was 10). I wonder if I could do some stretches on the floor because I’m lacking flexibility. Some of you wrote it’s helpful but other say it may cause a rupture. What do you think? When it’s safe to start stretching?
Christopher
3 years ago
31/M here. Floxed on October 14, 2020. I am just under 3.5 months in, and I am not doing well.
I was floxed for no reason, as a “precaution” by a urologist without evidence of any infection. Took 6 pills in 3 days. I got ROCKED right away, by day 3 couldn’t walk and had pain in both Achilles, shock sensations, pins and needles up and down my body, eye floaters, joint pain in my fingers, joints popping, brain fog, anxiety, depression, suicidal ideation.
Some of that started to fade by 3-4 weeks, and I was walking around again in flip flops. Big mistake as I was doing major damage at that time.
About 6-7 weeks ago, I started having extreme weakness in my left leg and mild weakness in my right. MRI has now confirmed tendonosis of the left peroneal tendon with a partial tear. My understanding is this is a partial rupture. I am in physical therapy (which helps when the PT does it, but hurts when I do it) and waiting to ask the orthopedic if surgery will be necessary.
I can only walk a few hundred steps a day, maybe 1,000, before I flare for the next two days.
I also still deal with: eye floaters, neuropathy in my hands, fatigue throughout the day, and major skin changes in my feet. Redness, peeling, and major pruning and wrinkles. I can’t even enjoy epsom salt baths, they prune within a minute so bad it looks like trench foot. I have to blowdry and moisturize them right away. I think this is from a collagen breakdown so I am taking collagen peptides and starting to eat bone broth.
I’m having a hard time guys. I am on disability from work until March 30 over this, but if I don’t start to see major improvement in 2 months I could lose my job.
I’ve only got 2 relatives, one is nearby but the other is 1,000 miles away.
I have fears that this is the end of my youth and can’t help but believe I’ve been robbed of about 20 years. I sleep about 10-11 hours a day. All I will say is I can’t live like this long term. And I won’t.
I really, really hope it’s true, the most get better…
Supplemets: magnesium liquid, calcium with Vitamin D + ALA + Fish oil + lutein + COQ10 + collagen peptides + probiotic
P.S. – I am fighting back against the urologist. I have complained to the Florida department of health and am working with a lawyer to see if I have a case. I’ve had two doctors, including an MD and a DPT put their names on paper to see this is Cipro toxicity
Phillip
3 years ago
What do you guys think about sex / masturbation after floxing? Is it helping or does harm? I’m asking because for floxed people every single thing makes a difference… Caffeine, milk, sugar, walking a couple of minutes longer than scheduled… Here’s why I consider sex / masturbation to be harmful:
– Being a male, you ejaculate with sperm, which has a lot of important nutrients – like zinc, magnessium etc. You can be deficient of those and recovery could take longer. Your body also has to produce the sperm cells, so instead of healing tendons, muscles, nerves, it produces semen cells which are just a waste.
– It can lead to a UTI, and possibly the need of antibiotics. I get UTI-like symptoms (burning inside urethra) about 50% of times I masturbate. It was also the reason I was put on Cipro 3 months ago – doctor suspected a UTI, without testing my blood/urine, but I think these just were nervous problems. Now I have both them and I’m severely floxed (can’t walk longer than 1 km, have pain in legs) so I’m kinda angry at sex / masturbation, but as a human I still do have these needs… I managed to suppress them for about 3 months (with few exceptions) but it’s very difficult. I tell myself I’m sick and sick people are not supposed to even think about sex, but the recovery will probably take a year minimum if I recover at all, it’s hard to be an ascetic in every single aspect of my life.
– Sex releases oxitocine hormone, which causes myotonia – that’s why some experience weak legs after sex. I don’t think it helps as floxed people already have weak legs because of FQ.
What are your opinions on that matter? Do you have sex/masturbate or became ascetic after floxing?
It’s been great for me as far as energy and a sense of wellbeing is concerned. I’ve started doing walks that last 45 minutes, which I couldnt do before. I could only just manage food shopping post office etc but in short bursts.
I buy the tiny bottle for 18 euros and I started with half a dropper morning and evening. Now I just take half a dropper in the morning. I’ve been using it for around 3 or 4 months now.
I hope you see this as there is no reply button on your post
Phillip
3 years ago
What do you guys think about se.x / mastu.rbation after floxing (I was not able to use normal version of these words because of the anti-spam filter)? Is it helping or does harm? I’m asking because for floxed people every single thing makes a difference… Caffeine, milk, sugar, walking a couple of minutes longer than scheduled… Here’s why I consider se.x / mastu.rbation to be harmful:
– Being a male, you ejac.ulate with spe.rm, which has a lot of important nutrients – like zinc, magnessium etc. You can be deficient of those and recovery could take longer. Your body also has to produce the spe.rm cells, so instead of healing tendons, muscles, nerves, it produces semen cells which are just a waste.
– It can lead to a UTI, and possibly the need of antibiotics. I get UTI-like symptoms (burning inside urethra) about 50% of times I masturbate. It was also the reason I was put on Cipro 3 months ago – doctor suspected a UTI, without testing my blood/urine, but I think these just were nervous problems. Now I have both them and I’m severely floxed (can’t walk longer than 1 km, have pain in legs) so I’m kinda angry at se.x / mastu.rbation, but as a human I still do have these needs… I managed to suppress them for about 3 months (with few exceptions) but it’s very difficult. I tell myself I’m sick and sick people are not supposed to even think about se.x, but the recovery will probably take a year minimum if I recover at all, it’s hard to be an ascetic in every single aspect of my life.
– Se.x releases oxitocine hormone, which causes myotonia – that’s why some experience weak legs after se.x. I don’t think it helps as floxed people already have weak legs because of FQ.
What are your experiences? Do you think it does harm or do I exaggerate? Did you became ascetic in that matter after floxing?
Happy (soon to be) New Year, everyone. Hope you will all make great progress in 2021 and feel much improved by the end of the year. Let’s hope the global situation improves as well.
HAPPY HEALING NEW YEAR TO ALL OUR FLOXY FRIENDS. STAY STRONG AND POSITIVE.
LOVE,
BARBARA
Hey everybody – Happy New Year
I haven’t posted in a long time because I had been recovering so well. My headaches and brain fog were progressing nicely; not cured but no longer a huge issue; my digestion was finally getting close to normal and even my neck problems were getting better. Neuropathy was still a mild issue; but one that was “controlled” and I only noted a few days a week.
I was thinking that I might be a few months from being well. I was having about 20% of all days that were in the realm of normal the last two months and then right before Christmas my neuropathy went haywire. Worst it has been since the first year as a floxie (for those of you I don’t know I have been a floxie a bit over 5 years).
I traditionally have neuropathy limited to my feet with very occasional flares in my hands and lower limbs. Now I have neuropathy in all those areas at once and it is pretty severe. I am so depressed since I was feeling so good before this relapse. I just don’t understand what triggered it. I live in the northern US and cold weather always makes it a bit worse; but this is way worse than it normally is even in January.
I had reduced my B vitamins to try to get my body to produce more on its own. Compared to 18 months ago I am taking about 1/8 of the Vitamin B complex that I was then and until recently doing okay on that in terms of neuropathy. I pulsed my B vitamins taking 1/2 of my previous dose but on only 2 days a week and 1/4 my previous dose the other day; with four days with no B vitamins. I plan to go back to 1/4 dose every day of the week and see if that helps any for a while before doing anything else.
I am posting because I want to know if anyone has taken Nortriptyline after floxing? This same drug has been suggested to me by three different doctors for symptoms I have from floxing. My neurologist suggested it for headaches, it was suggested for insomnia and by a spine care specialist for neuropathy. I would not be taking it like I would for anti-depression but at a much smaller dose (25 to 50 mg daily); but I am starting to consider it.
I haven’t had any prescription drugs for 5 years other than starting a blood pressure med around 18 months ago. I am hesitant to take drugs; especially ones that don’t treat issues but mask symptoms, but with so many issues converging on the same recommended drug and the very low dose, compared to “normal” that I would be taking that I am considering it.
Anybody have any experience or suggestions?? Thanks.
Hey everyone on another note; I wanted to let you know about my experience with COVID as a floxie. Despite me almost never leaving the house; my wife caught COVID and of course then so did I. (Note; my wife was careful too – she caught it while visiting with her sister, who had had a negative test three days prior and both were masked except they made the poor decision to eat a meal and were unmasked during the meal (while maintaining social distance) and my sister-in-law gave it to my wife who gave it to me. There was a silver lining – somehow my 88 year old father-in-law, with whom they were visiting, never contracted it.
I was lucky that I had a pretty mild course. I had a cough and was tired and achy for around a week but that was the major problems. I did have a high pulse rate off and on even three weeks after getting sick – and it was major (my resting pulse is usually in the low 60s upper 70s and it would spike to 110 to 120 for a few hours once every four or five days).
I was VERY fatigued and combined with floxie fatigue this was the major symptom I dealt with. It took two months to get back to a normal floxie level of fatigue, which for me these days isn’t too far from pre-floxing levels most days.
I do note that my BP ticked up a few points after COVID and hasn’t gone down yet. A bit of me wonders if my relapse of the neuropathy isn’t partially due to the stress COVID put on my body – it probably is.
I would prefer to have never had COVID, especially as long term effects are still unknown; but wanted to let you know how it impacted me.
Tuula,
My abnormal peristalsis or lack of I intestinal flow was caused by a lack of Magnesium chloride. I have been low on magnesium since I was floxed. Even through I read Caroline Dean’s book on magnesium cover to cover and MgCl oil and lotion it was low. After I got out of the hospital my back muscles were so sore I had to lie flat for most of the day. I would put a towel soaked in Mg Cl solution on my back and get relief. So I read the book again and realized MgCl is very important. For muscle relaxation. I added MG CL in my foot soak and did soaked twice a day. It took 5 months before my muscles stopped aching. I also had to restrict Vitamin D (so as not to use up the free Mg and make my back and stomach sore again.
In the hospital, the blood doctor gave me bag after bag of magnesium sulphate to raise my Mg level. I wasn’t smart enough to ask for MgCl at that time. It took 4-5 days for my bowels,to,function at all and the they were fairly normal,after a month. Back soreness and charley horse occurred until,the five month time.
So my stomach problems were caused by the Cipro.
I had been taking Borax at low levels for 7 months and my blood glucose was dropping before the stomach shut down. I was running 2.3 degrees cold and taking thyroid supplements to,help but thye raised my blood glucose so I would stop and wait for the glucose level to return to 160. So for 5 months my blood glucose cycled between 160 and 190.
A month after leaving the hospital I lost the Floxie feeling. I believe the Borax had removed enough of the antibiotics that they were not destroying me faster than the supplements could effect repairs. I think the Borax was amd co tiniest to,be helpful.But the problem is repairing one thing can steal nutrients from other area and cause problems there. As my magnesium levels returned closer to,normal, the back soreness wa satisfied amd the magnesium decency signal settled on arthritis in my left thumb only. Now that is gone 28 days a month. I have been able to raise my Vitamin D levels without stealing Mg from my muscles now.
Caroline Dean recommends 13 magnesium salts for various conditions. I take 5. I keep reading her book to see what else I should be doing.
I am slow;y getting better. I am only 1.2 degrees cold now. I think the Borax is still helping. I started taking a Boron salt to see if that would remove antibiotics. If it does, it is a minor effect. However today for the fourth time of taking one Boron pill amd hours later I get a significant discharge food intolerance mucus. They I wait a few days for the mucus to stop and do it again. I think the food intolerance mucus in dry form is stored in my organs. Getting rid of it is helpful.
It is an ongoing saga but I feel more and more I am moving away from the clutches of being a Floxie.
LOL
John Taylor
John…… I asked this question earlier but you were off line and I never got your opinion. With the Borax I want to use the ounce daily routine but I want to take it at bedtime and let it work over night when there is very little else going on. That way I could take some supplements during the day. Your opinion?
A. Coleman
I wonder how many floxies experience a flare following covid??? It would be interesting to know.
I hope you recover quicky!
Hi guys,
Happy New Year to everybody. I have a question re N-Acetylcysteine, have you tried it? What was your experience with it? Any side effects?
Thanks,
Aga
Hi guys.
Yesterday, after a month, I’ve checked my vitamin D and calcium blood levels again. Remember, there’re mounting studies that shows how having optimal vitamin D levels it’s protective against the virus, but of course the governments, the Italian government here in particular, keep saying there’s no proof about that. Besides, I’ve always noticed, since being floxed, how vitamin D it’s super important as far as pain menagment for me.
So, in just a month, my levels raised from 53.3 to 70.2 ng/dl, which is good, but also the calcium increased from 10 to 10.4, wich is not good, since the upper limit is 10.6. I’m almost sure that this tremendous increase is due to the boron supplementation, which II’ve been taking for about 2/2.5 months. Boron is known to increase vitamin D serum levels and also support/regulates the mineralization of bones and cartilages. Anyway, I’ve decided to give boron a break and in another month, see what my blood results look like. I’ll keep you updated.
To Aga, Sorry, but I’ve never took N-Acetylcysteine, so I can’t help you, but why are interested in it?
I’m excited to hear from anyone who has any research on whether Floxies will be able to take the COVID vaccine. We have mitochondrial damage. Will this vaccine worsen our condition?
Fred S,
I had been feeling various improvements for 3 years. Arthritis in my left hand would come and go and I felt it was a sign of Mg level.(At first I had constant pain in both hands.) But I always felt a general malais and would be tired. sluggish during the day. Then I last that feeling and had more energy. I also noticed that repairs of all kinds of things werre going at a faster pace. It was a sharp transition.
LOL
John Taylor
I am recently floxed. I stopped taking Cipro yesterday morning after 6 days being on it. Last night my feet started tingling and my muscles became weak. Today, my knee feels like it will explode and the tingling in my legs is bothersome. I am in full panic. I read the tips, but am wondering if there is anything else I can be doing.
Just a bit of information that you all may or may not know about search engines. Google tracks you. Use Google to find something and they are tracking you. Duckduckgo is a search engine that claims to NOT track you during your searches. https://duckduckgo.com
Hi all,
Can somebody give me an idea of what to expect with brain fog?
So I’m 18 months out after 4 weeks cipro aged 42 when floxed.
My main symptom until now has been neuropathy mainly in my feet and up to my knees at times. This is very very gradually getting better.
I’m almost at a crossover now where brain fog is becoming my main symptom and no longer neuropathy.
I don’t feel like I’ve lost intelligence but I do feel tired a lot, and cloudy in the head almost like a veil has come down over me. A bit like being mildly drunk only not pleasant at all. I am worst after exerting myself physically or mentally, in the afternoons or if I haven’t slept well.
I don’t drink or smoke and functionally I am mostly where I was before floxing in terms of work and life activities. Although I do only work part time but I am lucky that I am able to. I think full time would be hard.
What can I expect? And what is this really? Is it brain damage? Is it chemo brain? Is it Chronic Fatigue Syndrome?
Best,
Michael
Michael……. “I don’t feel like I’ve lost intelligence but I do feel tired a lot, and cloudy in the head almost like a veil has come down over me. A bit like being mildly drunk only not pleasant at all. I am worst after exerting myself physically or mentally, in the afternoons or if I haven’t slept well”. You have described exactly the way I feel. “And what is this really? Is it brain damage? Is it chemo brain? Is it Chronic Fatigue Syndrome”? I think to some degree it is all of the things you list. Will it/does it get better/ Takes time and lots of it. I am still working at it. Discussing your problems with those that DO understand you helps. So much of the established medicine is totally ignorant and try to BS us into thinking that we are nuts .
Hang in there. You come first. Do the things that make you feel better.
I took 7 x 500 mg pills of Cipro 4 months ago, unfortunatelly with corticosteroids (astma came up during treatment). I have serious walking issues, in one leg below the knee i feel some pain and weakness with every step. I can now walk about 30 minutes per day (it was 10). I wonder if I could do some stretches on the floor because I’m lacking flexibility. Some of you wrote it’s helpful but other say it may cause a rupture. What do you think? When it’s safe to start stretching?
31/M here. Floxed on October 14, 2020. I am just under 3.5 months in, and I am not doing well.
I was floxed for no reason, as a “precaution” by a urologist without evidence of any infection. Took 6 pills in 3 days. I got ROCKED right away, by day 3 couldn’t walk and had pain in both Achilles, shock sensations, pins and needles up and down my body, eye floaters, joint pain in my fingers, joints popping, brain fog, anxiety, depression, suicidal ideation.
Some of that started to fade by 3-4 weeks, and I was walking around again in flip flops. Big mistake as I was doing major damage at that time.
About 6-7 weeks ago, I started having extreme weakness in my left leg and mild weakness in my right. MRI has now confirmed tendonosis of the left peroneal tendon with a partial tear. My understanding is this is a partial rupture. I am in physical therapy (which helps when the PT does it, but hurts when I do it) and waiting to ask the orthopedic if surgery will be necessary.
I can only walk a few hundred steps a day, maybe 1,000, before I flare for the next two days.
I also still deal with: eye floaters, neuropathy in my hands, fatigue throughout the day, and major skin changes in my feet. Redness, peeling, and major pruning and wrinkles. I can’t even enjoy epsom salt baths, they prune within a minute so bad it looks like trench foot. I have to blowdry and moisturize them right away. I think this is from a collagen breakdown so I am taking collagen peptides and starting to eat bone broth.
I’m having a hard time guys. I am on disability from work until March 30 over this, but if I don’t start to see major improvement in 2 months I could lose my job.
I’ve only got 2 relatives, one is nearby but the other is 1,000 miles away.
I have fears that this is the end of my youth and can’t help but believe I’ve been robbed of about 20 years. I sleep about 10-11 hours a day. All I will say is I can’t live like this long term. And I won’t.
I really, really hope it’s true, the most get better…
Supplemets: magnesium liquid, calcium with Vitamin D + ALA + Fish oil + lutein + COQ10 + collagen peptides + probiotic
P.S. – I am fighting back against the urologist. I have complained to the Florida department of health and am working with a lawyer to see if I have a case. I’ve had two doctors, including an MD and a DPT put their names on paper to see this is Cipro toxicity
What do you guys think about sex / masturbation after floxing? Is it helping or does harm? I’m asking because for floxed people every single thing makes a difference… Caffeine, milk, sugar, walking a couple of minutes longer than scheduled… Here’s why I consider sex / masturbation to be harmful:
– Being a male, you ejaculate with sperm, which has a lot of important nutrients – like zinc, magnessium etc. You can be deficient of those and recovery could take longer. Your body also has to produce the sperm cells, so instead of healing tendons, muscles, nerves, it produces semen cells which are just a waste.
– It can lead to a UTI, and possibly the need of antibiotics. I get UTI-like symptoms (burning inside urethra) about 50% of times I masturbate. It was also the reason I was put on Cipro 3 months ago – doctor suspected a UTI, without testing my blood/urine, but I think these just were nervous problems. Now I have both them and I’m severely floxed (can’t walk longer than 1 km, have pain in legs) so I’m kinda angry at sex / masturbation, but as a human I still do have these needs… I managed to suppress them for about 3 months (with few exceptions) but it’s very difficult. I tell myself I’m sick and sick people are not supposed to even think about sex, but the recovery will probably take a year minimum if I recover at all, it’s hard to be an ascetic in every single aspect of my life.
– Sex releases oxitocine hormone, which causes myotonia – that’s why some experience weak legs after sex. I don’t think it helps as floxed people already have weak legs because of FQ.
What are your opinions on that matter? Do you have sex/masturbate or became ascetic after floxing?
Hi Bob,
info@telomas.com
I get my C60 at Telomas in Ireland.
It’s been great for me as far as energy and a sense of wellbeing is concerned. I’ve started doing walks that last 45 minutes, which I couldnt do before. I could only just manage food shopping post office etc but in short bursts.
I buy the tiny bottle for 18 euros and I started with half a dropper morning and evening. Now I just take half a dropper in the morning. I’ve been using it for around 3 or 4 months now.
I hope you see this as there is no reply button on your post
What do you guys think about se.x / mastu.rbation after floxing (I was not able to use normal version of these words because of the anti-spam filter)? Is it helping or does harm? I’m asking because for floxed people every single thing makes a difference… Caffeine, milk, sugar, walking a couple of minutes longer than scheduled… Here’s why I consider se.x / mastu.rbation to be harmful:
– Being a male, you ejac.ulate with spe.rm, which has a lot of important nutrients – like zinc, magnessium etc. You can be deficient of those and recovery could take longer. Your body also has to produce the spe.rm cells, so instead of healing tendons, muscles, nerves, it produces semen cells which are just a waste.
– It can lead to a UTI, and possibly the need of antibiotics. I get UTI-like symptoms (burning inside urethra) about 50% of times I masturbate. It was also the reason I was put on Cipro 3 months ago – doctor suspected a UTI, without testing my blood/urine, but I think these just were nervous problems. Now I have both them and I’m severely floxed (can’t walk longer than 1 km, have pain in legs) so I’m kinda angry at se.x / mastu.rbation, but as a human I still do have these needs… I managed to suppress them for about 3 months (with few exceptions) but it’s very difficult. I tell myself I’m sick and sick people are not supposed to even think about se.x, but the recovery will probably take a year minimum if I recover at all, it’s hard to be an ascetic in every single aspect of my life.
– Se.x releases oxitocine hormone, which causes myotonia – that’s why some experience weak legs after se.x. I don’t think it helps as floxed people already have weak legs because of FQ.
What are your experiences? Do you think it does harm or do I exaggerate? Did you became ascetic in that matter after floxing?