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John
3 years ago
Hello Andrea, Barbara Arnold, John Taylor, Don M, Bob, Madge, Christopher, Virginia, Dee, Phillip and all other active members who I could get in touch with in January 2021. Looking forward to chatting with you again! Best wishes for all of you!
Dee
3 years ago
Just seeing if the new Floxie home page is reaching others???
A.Coleman
3 years ago
Where in the heck are all the useful parts of Floxiehope????????????????
New design and layout – great. Enthusiasm by a new leader – wonderful. Goal of making the site more useful – understandable. Better – NOT BY A MILE.
I don’t know where to start. I work in IT and help with user experiences. This user experience other than an initial more appealing layout is really bad. Lots of broken images and broken links. Lots of missing and lost data. Recovery stories leads to a dead end; but most importantly the conversation among members starts in 2013. No way to get to recent comments other than hitting Newer Comments about 100 times; and even then the feature is buried under three clicks not front and center like it should be. The community is what makes floxie hope not fancy layouts that seem overly commercial. So, I am posting here and hopefully someone will see this and make this useful.
Dee
3 years ago
I’ve given up on this site!! Can’t have conversations anymore. Can’t pull up recovery stories let alone comment on them. Communication has come to a hault! It is like working through a maze with no success. I don’t even know if my comment is posted or where it goes as the old site sent a notification of your comment showing it and posting it. If you are reading this Jason I appreciate you taking over this site and trying to improve it but gosh how I miss the old site and the ease in carrying on conversations and reading recovery stories and posting comments. Unless this site brings that back I can no longer find a way to participate with other floxies and this has been an absolute necessary and integral part of my recovery these past 3.5 years. Please please fix these problems for the sake of floxies having this supportive community to help us all heal! There is nothing wrong with going back to some of the old format if it works! Thank you for your efforts and I think we all appreciate your enthusiasm!
I like a lot of the new format. It provides vetted information in many categories. That is very useful to someone new trying to find a path forward.
However vetted means approved by someone and when these things still do not solve all problems, those in this situation are looking for unvetted things to try.
I agree with all the above. We used to have a free flowing blog where a dozen or so people were exchanging ideas and bringing up treatment suggestions. It had become a research group. Jason, surely that is easy to restore. Your comments of I am trying don’t ring true. You are controlling.
I anyone finds a blog that has this uncensored reasearch group blog, please post it here. I the meantime, I am looking for another blog.
John Taylor
John
3 years ago
I see some great improvements, and we’re finally able to talk again. Thanks about that!
Don M
3 years ago
Thank you Jason. Now being able to see the recent comments of past participants is great. I and I am sure that all the past members do appreciate your efforts. Thanks again.
Jack
3 years ago
Any floxies aware of problems/interactions when getting the Pfizer COVID19 vaccine?
or any of the others, for that matter…
(If this belongs in a blog on this site, please advise where that is.)
– thanks!
John
3 years ago
So everyone I was happy to get in touch with! Andrea, John Taylor, Barbara Arnold, Don M, Virginia, Madge, Phillip, A.Coleman, Dee! And last, but not least, Jason! (If I did not mention someone, sorry, its because I’m rather a new member). Where would be the main place to start new conversations? On original floxiehope it was the home page. So where do we chat? Where to look for new comments? Where should new members post their questions, which do not concern any specific blog post?
David
3 years ago
So I no longer see the question I posed about vaccines for floxies, ?…..
Ann
3 years ago
Hey girls and guys, did you encounter major hair loss after Cipro? It’s 7 months since my floxing and they are still falling out massively. I also have other symptoms as well, I manage them somehow, but the hair loss is still so significant I had to get a short hair cut. My family and coworkers were so pissed off about my hair everywhere in spite of the fact I’ve been brushing them and collecting twice a day. Now I’m worried that I’ll become bald partially, because they wont’t stop falling. Will I ever be able to have long hair again? Did you do something to stop the hair loss? How long did your hair fall out?
John
3 years ago
Where is everybody? If you read this, please leave a comment.
Attila
3 years ago
Hi! Do you know something about covid19 vaccine does it contains fluoride??? I need advies! PLs
Juju
3 years ago
Its back! I don’t have to click next page 26000 times to read latest comments!! I’ve not posted for a while for this reason, also because I have recovered significantly to the point I am weightlifting again 😀 and naturally one becomes less engrossed when health improves.
I was hoping for some information on Cipro effecting the vagus nerve if anyone can recommend a link. I’ve managed to stop autoimmune like symptoms of arthritis and am pressing heavy weights again with my tendonitis plagued shoulders, the last hurdle I have remaining is with my esophagus.
Desperate for any feedback/ experiences from anyone having the dreaded Covid-19 vaccinations too. As stubborn as I am in being adamant im not having it, I fear the walls are closing in. I am an expatriate for starters so traveling might be for the vaccinated only, I am a teacher so teaching might be for the vaccinated only and if Israel is anything to go by as a blueprint then going into a gym might be for vaccinated people only. In Asia right now some supermarkets are denying me entry if I don’t scan myself in with an app that tracks everywhere I go so maybe soon buying food might be something for the vaccinated only.
Cant really call myself free though if I don’t have sovereignty over my own body or cannot travel if I give up that right.
Bad times 🙁 and all for the sake of a virus that kills 0.5 to 1% of people infected by it. Pazzo.
Don M
3 years ago
Magnesium … Seems that plenty of magnesium is one of the very important things for anyone who is floxed. This add came across my Facebook news feed. I am forwarding it because it is the first magnesium supplement that I have found where there is more than one kind of magnesium in it. This has 5 different magnesiums that are claimed to be the most absorbable. John Taylor is recommending that a person use more than one kind of magnesium. This one has 5 different kinds in one capsule. https://autoimmuneinstitute.com/pages/advanced-magnesium
I am posting this in both the “new” and “old ” comments sections because it seems that one must visit several different places to get their information.
Hello out there. Where has everyone gone? Have all the ones who used to post regularly given up on the “New Floxie Hope”? I click on to the site daily and don’t see any of the old gang posting on either the new or the old comments pages. Yes. I do post the same thing on both the new and original pages to be sure that it is read.
John
3 years ago
Anyone knows about how to reverse closed cytochrome P450 pathway? FQ are CYP450 inhibitors. May P450 inducers help? ( see list here https://en.wikipedia.org/wiki/CYP1A2 )
John
3 years ago
I’d like to post a warning about some supplements that I found harmful. Some recovery stories suggested them, so I’ve tested them, but the relapse symptoms were so quick and obvious, and I’ve also checked them a few times before I’m writing this post.
The supplements harmful for me (I guess everybody is different) are NAC (n-Acylocysteine) and Chelated Magnesium. Maybe the manufacturer is cheating or something (but I took a well known manufacturer), but I cannot use them. I’ve experienced strange ripping feeling in muscles after NAC, and pulsing / twitching of muscles and tendons after Chelated Magnesium. I bought it out of curiousity, but I’ll stick to Magnesium Malate, Lactate and Chloride.
Hello Andrea, Barbara Arnold, John Taylor, Don M, Bob, Madge, Christopher, Virginia, Dee, Phillip and all other active members who I could get in touch with in January 2021. Looking forward to chatting with you again! Best wishes for all of you!
Just seeing if the new Floxie home page is reaching others???
Where in the heck are all the useful parts of Floxiehope????????????????
New design and layout – great. Enthusiasm by a new leader – wonderful. Goal of making the site more useful – understandable. Better – NOT BY A MILE.
I don’t know where to start. I work in IT and help with user experiences. This user experience other than an initial more appealing layout is really bad. Lots of broken images and broken links. Lots of missing and lost data. Recovery stories leads to a dead end; but most importantly the conversation among members starts in 2013. No way to get to recent comments other than hitting Newer Comments about 100 times; and even then the feature is buried under three clicks not front and center like it should be. The community is what makes floxie hope not fancy layouts that seem overly commercial. So, I am posting here and hopefully someone will see this and make this useful.
I’ve given up on this site!! Can’t have conversations anymore. Can’t pull up recovery stories let alone comment on them. Communication has come to a hault! It is like working through a maze with no success. I don’t even know if my comment is posted or where it goes as the old site sent a notification of your comment showing it and posting it. If you are reading this Jason I appreciate you taking over this site and trying to improve it but gosh how I miss the old site and the ease in carrying on conversations and reading recovery stories and posting comments. Unless this site brings that back I can no longer find a way to participate with other floxies and this has been an absolute necessary and integral part of my recovery these past 3.5 years. Please please fix these problems for the sake of floxies having this supportive community to help us all heal! There is nothing wrong with going back to some of the old format if it works! Thank you for your efforts and I think we all appreciate your enthusiasm!
Hey Everyone the comments are fixed.
I like a lot of the new format. It provides vetted information in many categories. That is very useful to someone new trying to find a path forward.
However vetted means approved by someone and when these things still do not solve all problems, those in this situation are looking for unvetted things to try.
I agree with all the above. We used to have a free flowing blog where a dozen or so people were exchanging ideas and bringing up treatment suggestions. It had become a research group. Jason, surely that is easy to restore. Your comments of I am trying don’t ring true. You are controlling.
I anyone finds a blog that has this uncensored reasearch group blog, please post it here. I the meantime, I am looking for another blog.
John Taylor
I see some great improvements, and we’re finally able to talk again. Thanks about that!
Thank you Jason. Now being able to see the recent comments of past participants is great. I and I am sure that all the past members do appreciate your efforts. Thanks again.
Any floxies aware of problems/interactions when getting the Pfizer COVID19 vaccine?
or any of the others, for that matter…
(If this belongs in a blog on this site, please advise where that is.)
– thanks!
So everyone I was happy to get in touch with! Andrea, John Taylor, Barbara Arnold, Don M, Virginia, Madge, Phillip, A.Coleman, Dee! And last, but not least, Jason! (If I did not mention someone, sorry, its because I’m rather a new member). Where would be the main place to start new conversations? On original floxiehope it was the home page. So where do we chat? Where to look for new comments? Where should new members post their questions, which do not concern any specific blog post?
So I no longer see the question I posed about vaccines for floxies, ?…..
Hey girls and guys, did you encounter major hair loss after Cipro? It’s 7 months since my floxing and they are still falling out massively. I also have other symptoms as well, I manage them somehow, but the hair loss is still so significant I had to get a short hair cut. My family and coworkers were so pissed off about my hair everywhere in spite of the fact I’ve been brushing them and collecting twice a day. Now I’m worried that I’ll become bald partially, because they wont’t stop falling. Will I ever be able to have long hair again? Did you do something to stop the hair loss? How long did your hair fall out?
Where is everybody? If you read this, please leave a comment.
Hi! Do you know something about covid19 vaccine does it contains fluoride??? I need advies! PLs
Its back! I don’t have to click next page 26000 times to read latest comments!! I’ve not posted for a while for this reason, also because I have recovered significantly to the point I am weightlifting again 😀 and naturally one becomes less engrossed when health improves.
I was hoping for some information on Cipro effecting the vagus nerve if anyone can recommend a link. I’ve managed to stop autoimmune like symptoms of arthritis and am pressing heavy weights again with my tendonitis plagued shoulders, the last hurdle I have remaining is with my esophagus.
Desperate for any feedback/ experiences from anyone having the dreaded Covid-19 vaccinations too. As stubborn as I am in being adamant im not having it, I fear the walls are closing in. I am an expatriate for starters so traveling might be for the vaccinated only, I am a teacher so teaching might be for the vaccinated only and if Israel is anything to go by as a blueprint then going into a gym might be for vaccinated people only. In Asia right now some supermarkets are denying me entry if I don’t scan myself in with an app that tracks everywhere I go so maybe soon buying food might be something for the vaccinated only.
Cant really call myself free though if I don’t have sovereignty over my own body or cannot travel if I give up that right.
Bad times 🙁 and all for the sake of a virus that kills 0.5 to 1% of people infected by it. Pazzo.
Magnesium … Seems that plenty of magnesium is one of the very important things for anyone who is floxed. This add came across my Facebook news feed. I am forwarding it because it is the first magnesium supplement that I have found where there is more than one kind of magnesium in it. This has 5 different magnesiums that are claimed to be the most absorbable. John Taylor is recommending that a person use more than one kind of magnesium. This one has 5 different kinds in one capsule. https://autoimmuneinstitute.com/pages/advanced-magnesium
I am posting this in both the “new” and “old ” comments sections because it seems that one must visit several different places to get their information.
It may not be proper to post this. https://www.westernjournal.com/photos-man-rare-horrifying-reaction-johnson-johnson-covid-vaccine/?utm_source=facebook&utm_medium=rightalertsfacebook&utm_campaign=lminetwork&utm_content=2021-03-31&fbclid=IwAR06dHk3erp8COjOWZlVDLRlvDBccgwMnThhQ8zaoxn_O99sL-uh8AEQw6g
I do not care to be the “rare” case.
Hello out there. Where has everyone gone? Have all the ones who used to post regularly given up on the “New Floxie Hope”? I click on to the site daily and don’t see any of the old gang posting on either the new or the old comments pages. Yes. I do post the same thing on both the new and original pages to be sure that it is read.
Anyone knows about how to reverse closed cytochrome P450 pathway? FQ are CYP450 inhibitors. May P450 inducers help? ( see list here https://en.wikipedia.org/wiki/CYP1A2 )
I’d like to post a warning about some supplements that I found harmful. Some recovery stories suggested them, so I’ve tested them, but the relapse symptoms were so quick and obvious, and I’ve also checked them a few times before I’m writing this post.
The supplements harmful for me (I guess everybody is different) are NAC (n-Acylocysteine) and Chelated Magnesium. Maybe the manufacturer is cheating or something (but I took a well known manufacturer), but I cannot use them. I’ve experienced strange ripping feeling in muscles after NAC, and pulsing / twitching of muscles and tendons after Chelated Magnesium. I bought it out of curiousity, but I’ll stick to Magnesium Malate, Lactate and Chloride.