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Josie
10 years ago
I want out 🙁 I’m so frustrated with all of this already 🙁
For those who use magnesium oil – how much do you use? I worry about overdoing it since I already take mag in other forms. I bought the oils today because I am on a trip and my arrhythmia has been acting up.
Also, I cannot find the message but someone asked me about my toxicity. My reaction was actually from Macrobid in March. It’s been a long difficult road and very very similar to many of you.
Please can anyone help me. I had an open muscle biopsy done 7 weeks ago on my quads in my right leg. Results are all clear but the pain in my right thigh and around my knee is worse than ever. Has anyone ever experienced this as a floxie and actually recovered from the biopsy. I’m so anxious, stressed and beating myself up for having it done as suggested by my neurologist. I can feel myself going down mentally and am really struggling to cope. I’m taking cocodamols and back on the diazepam at night to help me sleep but even that doesn’t always work. Prior to the biopsy I was off the diazepam and making progress. Even if I could get back to where I was prior to the biopsy I’d be happy. If doctors recognised the symptoms they wouldn’t even suggest these horrendous procedures and tests. I’ve already had every blood test you could possibly imagine, electrical conductivity tests, a lumbar puncture, x rays and MRIs. I just so wish I hadn’t had it done but I can’t turn the clock back.
Jane ( UK ).
LYME LYME LYME LYME….ok, you folks rallying around this board right now seem like some really bright minds. and i need the brightest of the bunch. just returned from my naturapath where i spent 700 dollars two weeks ago on a series of lyme disease tests from the best labs in the country, including igenix, and all my test came back positive for lyme except for one that had to do with long term lyme. meaning i recently contracted it and now have it. i’m 15 months out and my naturapath has been giving me the LYME line for months now and i still don’t buy it, but it’s hard to refute it in print. does anyone have an opinion on why this is happening? is it a false positive because of the destuctive action of Fq’s? if so, which specific action since we know from published peer reviewed studies all the specific ways the drug harms our bodies. i need data, published, that refutes the lyme or at least discusses how people can test positive after fq’s. i’ve read pub studies or in books how fq’s can make inactive lyme turn active, that is a fact. i know that is not what is happening to me. i know this discussion must have come up with some of you long-timers, so please, help me to understand more about this issue…or anyone who knows anything that is more than just guesswork? thanks!
timfeatherstone
10 years ago
Hey guys i need some assistance, just managed to get past some stomach acid issues that i thought i would never get passed, no medications worked and it lasted months, i thought i was going to get a perforation in the stomach or something! it was crazy but i made it!
Anyway, following hot on the heels of that is Sinus problems, i think it’s been brewing for a while, it feels like Cipro has dried my Sinus cavities up and that’s letting infection set in, i have not had sinus problems since 4 years ago for a year or so on and off, always my left sinus too, triggered by colds or flu, it just cleared up on it’s own in the end, it was horrendous though, i lived on ibuprofen but that’s a no go now, it got so bad my teeth hurt, eating caused even more tooth pain, i really hope it does not get that bad this time, Cipro seems to inhibit normal immune function and show up any weaknesses, this being one of mine.
So what painkillers are safe, preferably natural stuff? i have homepathic tissue salts, BC5 i think, for sinus problems, just started them, any other ideas?
Casey
10 years ago
I was prescribed Cipro about a month ago for my very first UTI. I’m a female, age 35. I took 10 500mg tablets over 5 days.
I am very leery of taking any prescription medications at this point in my life. I’ve used some with success and some with side effects (such as prednisone, dicolefenac, and Cymbalta) and to make sure I didn’t ‘trick’ myself into believing I had side effects when I didn’t, I didn’t even read the insert other than the part about what not to take with it (NSAIDS, magnesium antacids, etc).
That only last for 2 days though. I’ve been trying to treat myself for several months for depression and anxiety. I also have had periods in my life of mania (or perhaps hypomania). Again, because of my dislike of rx’s, I’ve resisted going to a psychiatrist and letting him sort out all of my mental symptoms. I know this is a highly unpopular thing to do (from comments I’ve read in other forums) but that’s what I’ve chosen to do. Currently in a phase for about a year with severe anxiety, intrusive thoughts, and depression. However, the supplements I started in June of this year had really helped a lot. After 2 days on Cipro, I finally started reading up on it – the racing intrusive thoughts were back x1000, suicidal thoughts, insomnia, galloping heart with palpitations. I already have some nerve and tendon damage from sports injuries and back injuries and the pain came back x1000 with twitching, spasms, etc. It was awful. But I finished the course of the medication because I know a UTI can spread to kidneys and blah blah. Maybe that was a mistake.
Anyway, I’m only a month out, but I spent probably 6 hours online in pubmed and google scholar reading everything I could about magnesium as well as Cipro. There was plenty of information connecting the two in blogs and forums, but I wanted to read the ‘real’ stuff, see it for myself. The advice in the drug facts about not taking magesium-containing antacids within 2 hours was my first clue. If Cipro has such an affinity to bind to magnesium that the antacid would render it ineffective, what is it doing to free magnesium in the body? I learned a lot of stuff, probably well-known to people here – for example, only 1% of the Mg in the body is in the serum and all the rest is inside cells, tissues, organs, and bones. But after reading the pharmacology of Cipro, it seems to get absolutely everywhere too. Perhaps it just mops it up wherever it encounters it? I was equally interested to read that in some case studies, depression, mania, and anxiety have greatly improved when the patient was given magnesium supplements.
So my first plan of action was to start supplementing with Mg (adding that to what I was already taking which included L-theanine, L-tyrosine, and fish oil). I’ve been taking 600 mg of mag citrate a day, divided doses. It took about 2 weeks before I really had incredible relief from that all-encompassing anxiety and am feeling much better.
For what it’s worth, I went back through my personal journals for a couple years, since the mood swings and issues really seem to have gotten out of control, and have a strong sense that magnesium was playing a big role. Funny that just prior to each new mood episode (whether a depression or a manic-like state), I had taken a prescription drug – antibiotics in two instances, including this one, and once antibiotics + prednisone. All of these can impact the magnesium levels in the body. Blood tests for magnesium levels don’t seem to be very accurate, from what I’ve read in these studies, again because the serum only contains 1% of the total.
If my conclusions are correct, and these drugs remove magnesium from the body, it seems criminal not to suggest to a patient that they begin supplementing as soon as the course of antibiotics is finished, or to take a dose between the Cipro doses, or SOMETHING.
As for other symptoms – I did have some heartburn that has gone away. I’ve lost my appetite, yet have had uncomfortable abdominal bloating. Sex drive has not come back yet. I also began experiencing a lot of dryness – skin, hair, vagina, eyes, mouth. My gums have begun bleeding. My joints pop – all of them, multiple times a day.
I’ve been taking probiotics since day 1 of the Cipro and have recently added about 3000 mg vitamin C. I added kefir to my diet as well and, while I’ve always eaten yogurt, I try to eat even more of it. Overall, so far, my results haven’t been too bad but I’m glad I had to presence of mind to do my own research. If I hadn’t started the magnesium, and had that help with the anxiety and other severe mental changes (full-blown panic attacks, suicidal thoughts, this screaming/buzzing in my head), maybe I’d have actually attempted suicide, I don’t know. Had I gone to a doctor for that at the time last month, I’m quite certain they would have simply written another Rx and that would have been that.
I guess I will have to wait and see how things go in the long-term but these are the things that have been helpful so far, for anyone who is having mental effects.
I really feel the need to address the issue that many of us Floxies have to deal with and that is that of a sudden relapse. Now I myself have not had to deal with it yet because I am still floxed going almost on my 9 month.
We need to locate trigger points. Does this story sound familiar? ” I was fine recovered for 2 years and boom! Now I am worse.” Well what was it that changed? Did you drink different water or tea? Did you get a Flu shot? Did you soak in a hot tub of fluoridated water? Did I eat out of an aluminium can?
I found this and wanted to share it with people. It is from an article on Fluoride Poisoning.
What Products Should You Avoid?
Simply put, stop using fluoride in its many forms.
This includes avoiding:
➔ Teas high in fluoride
➔ Fluoridated water
➔ Toothpaste with flouride
➔ Vaccinations, since they contain fluoride and
aluminum
➔ Pesticides or herbicides near or in your home
➔ Medications containing fluoride
Also, do not use lemon in your tea, since it will
increase aluminum absorption enormously.
Do not cook in aluminum or Teflon-coated cookware,
and avoid using Teflon productsI would recommend avoiding the use of spray
cans, such as hair spray, and getting rid of aluminum
cans, such as those containing diet colas.
Health food stores offer toothpaste without
flouride. One type is Tom’s of Maine Natural
Fluoride-Free Toothpaste.
The best way to remove pesticide and herbicide
residues from vegetables is simply to wash them.
California wines also should be passed up, since
they contain high amounts of fluoride.
Soy products, which are high in fluoride, aluminum,
glutamate and manganese, are all known
neurotoxins and should be avoided.
It is critical that mothers avoid all soy-based
infant formulas, especially if they are reconstituted
by water in a fluoridated water system. Soy-based
formula has very high levels of these brain toxins,
and a baby’s brain is the most vulnerable until the
age of two years.
This was all from a Doctor Blaylock Wellness Report.
I also found this in the very same article so I wanted to share it with you all.
What You Can Do to Protect Yourself
Certain supplements protect against the harmful
effects of fluoride and aluminum. These include
(adult levels):
➔ Magnesium malate. Take 1,000 mg. with each
meal to prevent aluminum absorption.
➔ Calcium citrate. Take only between meals to
prevent increasing aluminum absorption. Calcium
citrate protects against aluminum toxicity and helps
remove aluminum from body tissues. Calcium also
protects against fluoride toxicity by binding to thefluoride.
Another form of calcium you can use is
calcium pyruvate. The calcium neutralizes the fluoride
and the pyruvate binds the aluminum, preventing
absorption.
➔ Vitamin E succinate or natural from vitamin E
(mixed tocopherols), 400 IU. Take one or two a day.
Discard the gelatin capsules as they contain fluoride
and glutamate as well as cow protein.
➔ Vitamin C as magnesium or calcium ascorbate.
Take 1,000 mg twice a day. Reduces fluoride toxicity.
➔ Vitamin D. Take 2,000 IU a day. Protects
against fluoride toxicity, especially in pregnant
women. To be safe, if pregnant take 1,000 IU a day.
➔ Selenium. Take 200 ug a day. Selenium has
been shown to protect against fluoride toxicity.
Higher doses add to fluoride toxicity.
➔ Multivitamin/mineral. This should be as a
powder in a capsule. It should not contain iron.
➔ Curcumin. 500mg dissolved in 2 tablespoons of
extra virgin olive oil. Take twice a day with meals. It
is a powerful antioxidant and shown to protect the
brain against many neurotoxins.
Additionally, to get the most protection against
free radicals you should eat at least three to five
servings of fruits and vegetables a day. They should
be fresh and eaten mostly raw.
It is also wise take 200 mg of DHA twice a day.
Simply remove the gelatin capsule as you do with
vitamin E. You also can get high levels of Omega-3
fatty acids by eating Christopher eggs daily and avoid corn, safflower, sunflower, soybean and
canola oils, all of which are Omega-6 fats.
And, finally, I highly recommend taking 2 to 3
mg. of melatonin at bedtime to help regulate your
sleep.
Hope this is helpful.
I am doing just about everything that is suggested in this.
maybe I can avoid a relapse.
Jane
10 years ago
I’m kind of depressed right now, wondering when I’m going to be able to walk normally again without much pain. Currently I shuffle around like I’m 100-years old with enough pain to make it hard for me to walk more than about 30 feet before I have to stop for a while. Granted, it’s 100 times better than it was 18 months ago, when I couldn’t put any weight on my feet at all, but still, I really want to be able to walk around effortlessly like I used to do before being floxed.
I just came out of a short relapse that was worse and weirder than usual. I had a headache that lasted for 3-days straight with ringing in the ears, numb lips, sore neck, some heart palpitations, every muscle in my body aching, and really painful tendons making popping noises every time I moved. It lasted 3 days then resolved. I’m back to feeling normal again, with normal for me now being having sore Achilles tendons but everything else okay.
I’d say I was only moderately floxed. I haven’t experienced the full spectrum of bad side effects that more severely floxed people do, but my tendons got hit quite hard. They were at 10 on the pain scale for the first 6 months. Now the tendon pain falls between the 4 to 7 range, depending on the day and how much I push it.
Has anyone else been through this? Did you have long-lasting tendon pain that ultimately resolved enough to enable you to walk normally again without a lot of pain? I used to run 10K races, but now I’d just be happy to be able to walk around my house without wincing.
I also can’t make any fast movements without a tendon pulling. A couple of weeks ago, I hurt a tendon in my shoulder when I quickly slapped a mosquito. It feels better now, but it hurt for days afterwards.
Well I got my labs back My Miscellaneous hematology Sed rate is 32 so i think that is High.
My serology Cyclic Citrullinated peptide AB, S is 1.2 so I think that is normal.
My dsDNA AB screen is Negative.
Anti-Nuclear Antibodies
ANA Titer method 1:2560 so lots of inflammation and possibly Lupus or auto immune or disorder or cancer.
ANA pattern Homogeneous
suggest testing for anti-dsDNA to determine what the cause is.
My ENA came back negative.
Anyone else have labs similar to these.
rene
10 years ago
Jimmy,
The Chlorella that you took is a tip off that detox is very difficult for you, in that you have an impaired ability to do so, which caused you to have a so called relapse. My opinion is that based on that extreme negative response you had to the Chlorella you like me have underlining issues with detoxification (trans-sulferation) pathway which is responsible for recycling glutathione. This means that when up against the burden of toxic agents in the environment from foods, beverages, air borne pollution etc…you will accumulate versus dispel effectively. That in itself causes oxidative stress, and a vicious cycle. You may respond well to a Magnesium IV & Vitamin C IV. I would not do any chelating IV’s for metal toxicity, very risky for someone who had negative response to Chlorella.
I had a very severe response to Chlorella many years prior to my Cipro injury. Just dealing with Lyme. That made me so ill, I felt like a science experiment in a petrie dish. I know that I can never take or receive aggressive treatments that will chelate metals. That is way to radical for me, and does not address the issue. Many well meaning holistic ND’d & MD’s believe that the very ill who have heavy metals and are suffering chronically for years, just need to use chelating methods to rid the metals. There are other means, that take a longer time, but safer for folks like me.
That does not apply to those, like myself whose pathways for detoxification are only partially working. The demand/burden is too great now that I also have Lyme, Metals, & Cipro injury.
The organic food is not 100% free of stuff, it is the better option though.
Consider taking:
(NAC) N acetyl cysteine daily. 500mg (precursor to glutathione)
Lithium Orotate 5mg – take 1/4 of tablet ( safe transport of B12 into cells)
Phosphatidylserine (Brain)
Zinc picolinate(wounds & many enzyme processes in many systems)
Magnesium Citrate
Lifewave Y-age Glutathione patch.
God Bless,
Rene
steve
10 years ago
well… where do i start. i think i may be a fellow floxie. hello.
all the symptoms and a few other ones..
i have been tested for leaky gut and i have shown positive on that, also i have lymph nodes swollen all over abdomen some in chest and a slight start in armpits, they hurt swell a little and then stop hurting, my bloods are coming back ok everytime, i feel my red blood cells are dropping slowly, some kind of anemia setting in, my thyroid took a whack and dropped a whole point from 2.30tsh to 1.07 at its lowest i see, it was recorded at 1.44 and was tested again 2 weeks ago so ill have the result to see if its dropped again, my testosterone came in low 7 and my liver ALT was recorded 2 days ago at 45 the lowest ive seen it in all this time, even tho i was taking amitriptaline and glutamine i thought they was meant to irritate it further? my bilirubin is up as well which is new it is 22 the range goes to 21 so something is up there. apart from that WBC goes up a little here and there, but nothing crazy never outside the range, and my lymphocytes fluctuate a little too, i remember seeing low potassium and phosphates at one point when i was at my worst
i have extensive medical history if anyones interested and i have an abundence of info, but to be honest i feel ive been floxed slightly OR its slowly coming in, i too made the mistake of ibuprofen and cipro together, started with gut issues, then i couldnt go to the toilet even tho toilet was soft terrible pain around illeocecal valve area, (lower right abdomen) then i went on fast forward and could go to the toilet 3-5 times a day with clear mucus, that then slowed and went back to normal once a day in mornings and mucu stopped but i swear i used to digest food better than i do now, at worst i get cramping feeling around large bowel. rarely from small bowel area, and my lymph nodes swelled around abdomen in that shape, i also got neuro pain, fingertips sole of right foot, i get mottled palms if i stand or walk, eyes have floaters and a little pixel flash in right eye sometimes, twitchy right eyelid, insomnia problems, im able to exercise but i dont overdo it as heart seems to have a good thump when im walking (120bpm) but being outside is weird like vision is really weird, ive tried to consider maybe its all the computer screening i do where i stay in bed alot of the time, and dont really get out much no more, image afterburning in eyes, throat feels like it partially closes sometimes, stomach buring stopped after taking: garlic caps, oregano caps, slippery elm, DGL, i think my hunger is coming back (stomach rumbling) but im going to keep watch as last time that turnt to burning and acid, and ill get straight back on the slippery elm, pain is spots in back neck legs and spaces between knuckles? it seems tendon areas tbh, near joints but not at the joints, joints are noisy sounds like breaking vegetables when i do the muscle man pose, memory issues, concentration etc, anxiety depression, can be ok one minute and boom next im terrible, greasy skin, flaky skin, sweating issues, dry mouth/throat, and my skin feels ‘sick’ sometimes weird way to describe it but its the best i can offer and probably loads i cant remember
also heres one…
the colour of your fingernails is it paler? and also the white part of your fingernails have they retreted slightly towards your knuckles? mine did.
im taking allsorts started L-glutamine a week ago, magnesium 250mg again last night, (any help on magnesium dose?)
i take daily:
garlic 500mg x 3
oregano 150mg x 3
cod liver oil 1000mg x 1
natural essentials digestive enzymes x 3
l-glutamine 5g x 2
magnesium 250mg x 1
centrum a to zinc x 1
i have but dont take:
25 billion probiotic
peppermint oil
mastic gum
slippery elm
ive ordered:
colliadal silver
psylium husks
caprycilic acid 500mg tabs
epsom salt
st johns wort 1000mg
dr schultz superfood
i need some answers and conventional medicine isnt working, im in east london UK anyone else from round here? naturopaths are few and far between i have no clue what to do docs and hospitals think im nuts any ideas etc peeps? thanks
also just a thought, when you mention what your taking on here always write the MG of what supplement 🙂
Hello gang,
Friendly neighborhood wheel chair man here! I have been able to walk some with the help of a cane. I am definitely seeing some changes. It ain’t no cure but it is a start.
I have been researching enzymes and their uses in treating people. The study of enzymes is called enzymology. They are responsible for thousands of metabolic processes that sustain life. Enzymes are highly selective catalysts, greatly accelerating both the rate and specificity of metabolic reactions, from the digestion of food to the synthesis of DNA.
I am currently taking a few. One it is Serrapeptase enzyme 40,000SPU. It is a proteolytic enzyme isolated from the non-pathogenic bacteria Serratia species found in the Japanese silk worm.
The other I take is a product called Multizyme by Standard Process, in it there is an enzyme in the almond bran. Also figs. It helps people with digestive problems.
Here is another article on enzymes that I found.
Amylase is the enzyme that helps us to digest carbohydrates. When you take it on an empty stomach it has antihistamine effects and alleviates inflammation linked to skin conditions, particularly when combined with lipase. Amylase is also well suited for athletes because it increases joint mobility and relieves muscle pain and inflammation.
Bromelain is helpful in treating swelling and inflammation that is linked to injuries, surgery, swellings, and broken blood vessels; menstrual hemorrhaging; and blood clots.
Catalase helps relieve inflammation linked to injuries, particularly when fluid-retention and edema are involved. This enzyme also functions as an antioxidant, which scavenges free radicals and prevents them from causing additional health concerns.
Chymotrypsin is effective in treating inflammation, abscesses, wounds, and blood clots before and after tooth extractions and other dental work, as well as after surgeries.
Lipase is particularly good for alleviating lymphatic swelling and muscle spasms linked to a calcium deficiency.
Papain is helpful against insect stings and can help treat inflammation linked to gluten intolerance, swelling, and wounds.
Protease supplementation is excellent for inflammation that tends to benefit from ice packs. It also alleviates soft tissue trauma linked to accidents or surgery. Like lipase, protease is also good for muscle spasms if they are linked to a calcium deficiency.
Trypsin is helpful for treating wounds, abscesses, blood clots, injuries, and inflammations.
I feel really bad for a lot of the posters. I was given cipro 500 for a UTI. After only 2 doses, I knew something was wrong. I stopped immediately and looked up cipro adverse reactions. I’ve worked in healthcare for over 20 years and pharmacy for 12 years. I knew all of the signs that I was having an adverse reaction. After doing a little research, including this page, I learned that most reactions are because of lack of magnesium. Well the best source of magnesium is Espom salt. I immediately drew a bath and filled it with epsom salt, apple cider vinegar and bentonite clay. These are three of the best detoxers in the world! They pull toxins from the brain, liver and kidneys. Luckily I had all three on hand. I filled the tub with VERY hot water and soaked from my neck down until the water ran cold. I did this 3 days in a row and my symptoms started to reverse. I know it may be too late for some of you but if you know anyone that does experience cipro poisoning, please tell them about this recipe! Good luck.
Simultaneously, I was drinking 1 tsp. epsom salt mixed with 8 oz. of water. I alternated that with 2 tsp. apple cider vinegar mixed 8 oz. of water. This help with an internal detox.
I continue to take the detox baths once a month. I drink the ACV drink once a day. I know that these things help me. I suggest trying these ingredients to see if they can help you.
Melanie Kemp
10 years ago
What do you do when you lose hope.
Ive tried to stay positive but every day I seem to get worse instead of better.
ive lost 40 pounds that I couldn’t afford to lose.
I have so much going on ive come to the bottom of my barrel.
I beat it once but not sure I’ll be that lucky again and this is not living.
I cant even leave the house now.
Ive really lost any hope that I had and im in such a depression I feel like I just dont want to wake up another day.
Sorry for being so down.
Only you all truly understand the severity of this.
I just feel like I have nothing else to hold on to.
Josie
10 years ago
Hey how is everyone doing? I started a job as a hostess at a restaurant and it’s going great!
I’ve been following you guys since I started having symptoms of floxing from my recent cipro treatment for bacterial infection. since then, my doc changed me to Augmentin (which was ineffective), and I ended up getting kidney infection and going into the hospital and being given Tazocin by IV for four days. While on Tazocin, I started seeing flakes in my urine, most likely of yeast origin. I improved while being treated, but the antibiotic was stopped after four days due to the fact that my urine culture showed no growth. 48 hrs. after returning home from the hospital (I was in 6 days), my symptoms came back (fever, dizziness, exhaustion, ), and I made the rounds. my pap smear showed yesterday that I have a Heavy Growth of klebsiella pneumoniae and a Moderate Growth of candida non-albicans. I contacted my dr., but she will give no treatment. Instead she will do a repeat culture (urine this time) in two weeks. I am so tired and still dizzy and still getting low-grade fevers. Does anyone here know treatment that can help? Thank you. My cipro poisoning seems to be lessened, although I still get the pains in the arches of my feet and in my legs. I have a topical glucosamine chronditin magnesium cream that I apply as well as Natural Calm powdered magnesium that I take in boiling water.
I want out 🙁 I’m so frustrated with all of this already 🙁
For those who use magnesium oil – how much do you use? I worry about overdoing it since I already take mag in other forms. I bought the oils today because I am on a trip and my arrhythmia has been acting up.
Also, I cannot find the message but someone asked me about my toxicity. My reaction was actually from Macrobid in March. It’s been a long difficult road and very very similar to many of you.
Please can anyone help me. I had an open muscle biopsy done 7 weeks ago on my quads in my right leg. Results are all clear but the pain in my right thigh and around my knee is worse than ever. Has anyone ever experienced this as a floxie and actually recovered from the biopsy. I’m so anxious, stressed and beating myself up for having it done as suggested by my neurologist. I can feel myself going down mentally and am really struggling to cope. I’m taking cocodamols and back on the diazepam at night to help me sleep but even that doesn’t always work. Prior to the biopsy I was off the diazepam and making progress. Even if I could get back to where I was prior to the biopsy I’d be happy. If doctors recognised the symptoms they wouldn’t even suggest these horrendous procedures and tests. I’ve already had every blood test you could possibly imagine, electrical conductivity tests, a lumbar puncture, x rays and MRIs. I just so wish I hadn’t had it done but I can’t turn the clock back.
Jane ( UK ).
LYME LYME LYME LYME….ok, you folks rallying around this board right now seem like some really bright minds. and i need the brightest of the bunch. just returned from my naturapath where i spent 700 dollars two weeks ago on a series of lyme disease tests from the best labs in the country, including igenix, and all my test came back positive for lyme except for one that had to do with long term lyme. meaning i recently contracted it and now have it. i’m 15 months out and my naturapath has been giving me the LYME line for months now and i still don’t buy it, but it’s hard to refute it in print. does anyone have an opinion on why this is happening? is it a false positive because of the destuctive action of Fq’s? if so, which specific action since we know from published peer reviewed studies all the specific ways the drug harms our bodies. i need data, published, that refutes the lyme or at least discusses how people can test positive after fq’s. i’ve read pub studies or in books how fq’s can make inactive lyme turn active, that is a fact. i know that is not what is happening to me. i know this discussion must have come up with some of you long-timers, so please, help me to understand more about this issue…or anyone who knows anything that is more than just guesswork? thanks!
Hey guys i need some assistance, just managed to get past some stomach acid issues that i thought i would never get passed, no medications worked and it lasted months, i thought i was going to get a perforation in the stomach or something! it was crazy but i made it!
Anyway, following hot on the heels of that is Sinus problems, i think it’s been brewing for a while, it feels like Cipro has dried my Sinus cavities up and that’s letting infection set in, i have not had sinus problems since 4 years ago for a year or so on and off, always my left sinus too, triggered by colds or flu, it just cleared up on it’s own in the end, it was horrendous though, i lived on ibuprofen but that’s a no go now, it got so bad my teeth hurt, eating caused even more tooth pain, i really hope it does not get that bad this time, Cipro seems to inhibit normal immune function and show up any weaknesses, this being one of mine.
So what painkillers are safe, preferably natural stuff? i have homepathic tissue salts, BC5 i think, for sinus problems, just started them, any other ideas?
I was prescribed Cipro about a month ago for my very first UTI. I’m a female, age 35. I took 10 500mg tablets over 5 days.
I am very leery of taking any prescription medications at this point in my life. I’ve used some with success and some with side effects (such as prednisone, dicolefenac, and Cymbalta) and to make sure I didn’t ‘trick’ myself into believing I had side effects when I didn’t, I didn’t even read the insert other than the part about what not to take with it (NSAIDS, magnesium antacids, etc).
That only last for 2 days though. I’ve been trying to treat myself for several months for depression and anxiety. I also have had periods in my life of mania (or perhaps hypomania). Again, because of my dislike of rx’s, I’ve resisted going to a psychiatrist and letting him sort out all of my mental symptoms. I know this is a highly unpopular thing to do (from comments I’ve read in other forums) but that’s what I’ve chosen to do. Currently in a phase for about a year with severe anxiety, intrusive thoughts, and depression. However, the supplements I started in June of this year had really helped a lot. After 2 days on Cipro, I finally started reading up on it – the racing intrusive thoughts were back x1000, suicidal thoughts, insomnia, galloping heart with palpitations. I already have some nerve and tendon damage from sports injuries and back injuries and the pain came back x1000 with twitching, spasms, etc. It was awful. But I finished the course of the medication because I know a UTI can spread to kidneys and blah blah. Maybe that was a mistake.
Anyway, I’m only a month out, but I spent probably 6 hours online in pubmed and google scholar reading everything I could about magnesium as well as Cipro. There was plenty of information connecting the two in blogs and forums, but I wanted to read the ‘real’ stuff, see it for myself. The advice in the drug facts about not taking magesium-containing antacids within 2 hours was my first clue. If Cipro has such an affinity to bind to magnesium that the antacid would render it ineffective, what is it doing to free magnesium in the body? I learned a lot of stuff, probably well-known to people here – for example, only 1% of the Mg in the body is in the serum and all the rest is inside cells, tissues, organs, and bones. But after reading the pharmacology of Cipro, it seems to get absolutely everywhere too. Perhaps it just mops it up wherever it encounters it? I was equally interested to read that in some case studies, depression, mania, and anxiety have greatly improved when the patient was given magnesium supplements.
So my first plan of action was to start supplementing with Mg (adding that to what I was already taking which included L-theanine, L-tyrosine, and fish oil). I’ve been taking 600 mg of mag citrate a day, divided doses. It took about 2 weeks before I really had incredible relief from that all-encompassing anxiety and am feeling much better.
For what it’s worth, I went back through my personal journals for a couple years, since the mood swings and issues really seem to have gotten out of control, and have a strong sense that magnesium was playing a big role. Funny that just prior to each new mood episode (whether a depression or a manic-like state), I had taken a prescription drug – antibiotics in two instances, including this one, and once antibiotics + prednisone. All of these can impact the magnesium levels in the body. Blood tests for magnesium levels don’t seem to be very accurate, from what I’ve read in these studies, again because the serum only contains 1% of the total.
If my conclusions are correct, and these drugs remove magnesium from the body, it seems criminal not to suggest to a patient that they begin supplementing as soon as the course of antibiotics is finished, or to take a dose between the Cipro doses, or SOMETHING.
As for other symptoms – I did have some heartburn that has gone away. I’ve lost my appetite, yet have had uncomfortable abdominal bloating. Sex drive has not come back yet. I also began experiencing a lot of dryness – skin, hair, vagina, eyes, mouth. My gums have begun bleeding. My joints pop – all of them, multiple times a day.
I’ve been taking probiotics since day 1 of the Cipro and have recently added about 3000 mg vitamin C. I added kefir to my diet as well and, while I’ve always eaten yogurt, I try to eat even more of it. Overall, so far, my results haven’t been too bad but I’m glad I had to presence of mind to do my own research. If I hadn’t started the magnesium, and had that help with the anxiety and other severe mental changes (full-blown panic attacks, suicidal thoughts, this screaming/buzzing in my head), maybe I’d have actually attempted suicide, I don’t know. Had I gone to a doctor for that at the time last month, I’m quite certain they would have simply written another Rx and that would have been that.
I guess I will have to wait and see how things go in the long-term but these are the things that have been helpful so far, for anyone who is having mental effects.
Especially nervous about taking hormones since I’ve spoken to some floxies who had a bad reaction after taking hormones.
Has anyone tried Boswellia?
Does it even help since we have tendinosis and not tendonitis?
Mark
I really feel the need to address the issue that many of us Floxies have to deal with and that is that of a sudden relapse. Now I myself have not had to deal with it yet because I am still floxed going almost on my 9 month.
We need to locate trigger points. Does this story sound familiar? ” I was fine recovered for 2 years and boom! Now I am worse.” Well what was it that changed? Did you drink different water or tea? Did you get a Flu shot? Did you soak in a hot tub of fluoridated water? Did I eat out of an aluminium can?
I found this and wanted to share it with people. It is from an article on Fluoride Poisoning.
What Products Should You Avoid?
Simply put, stop using fluoride in its many forms.
This includes avoiding:
➔ Teas high in fluoride
➔ Fluoridated water
➔ Toothpaste with flouride
➔ Vaccinations, since they contain fluoride and
aluminum
➔ Pesticides or herbicides near or in your home
➔ Medications containing fluoride
Also, do not use lemon in your tea, since it will
increase aluminum absorption enormously.
Do not cook in aluminum or Teflon-coated cookware,
and avoid using Teflon productsI would recommend avoiding the use of spray
cans, such as hair spray, and getting rid of aluminum
cans, such as those containing diet colas.
Health food stores offer toothpaste without
flouride. One type is Tom’s of Maine Natural
Fluoride-Free Toothpaste.
The best way to remove pesticide and herbicide
residues from vegetables is simply to wash them.
California wines also should be passed up, since
they contain high amounts of fluoride.
Soy products, which are high in fluoride, aluminum,
glutamate and manganese, are all known
neurotoxins and should be avoided.
It is critical that mothers avoid all soy-based
infant formulas, especially if they are reconstituted
by water in a fluoridated water system. Soy-based
formula has very high levels of these brain toxins,
and a baby’s brain is the most vulnerable until the
age of two years.
This was all from a Doctor Blaylock Wellness Report.
Mike Out.
I also found this in the very same article so I wanted to share it with you all.
What You Can Do to Protect Yourself
Certain supplements protect against the harmful
effects of fluoride and aluminum. These include
(adult levels):
➔ Magnesium malate. Take 1,000 mg. with each
meal to prevent aluminum absorption.
➔ Calcium citrate. Take only between meals to
prevent increasing aluminum absorption. Calcium
citrate protects against aluminum toxicity and helps
remove aluminum from body tissues. Calcium also
protects against fluoride toxicity by binding to thefluoride.
Another form of calcium you can use is
calcium pyruvate. The calcium neutralizes the fluoride
and the pyruvate binds the aluminum, preventing
absorption.
➔ Vitamin E succinate or natural from vitamin E
(mixed tocopherols), 400 IU. Take one or two a day.
Discard the gelatin capsules as they contain fluoride
and glutamate as well as cow protein.
➔ Vitamin C as magnesium or calcium ascorbate.
Take 1,000 mg twice a day. Reduces fluoride toxicity.
➔ Vitamin D. Take 2,000 IU a day. Protects
against fluoride toxicity, especially in pregnant
women. To be safe, if pregnant take 1,000 IU a day.
➔ Selenium. Take 200 ug a day. Selenium has
been shown to protect against fluoride toxicity.
Higher doses add to fluoride toxicity.
➔ Multivitamin/mineral. This should be as a
powder in a capsule. It should not contain iron.
➔ Curcumin. 500mg dissolved in 2 tablespoons of
extra virgin olive oil. Take twice a day with meals. It
is a powerful antioxidant and shown to protect the
brain against many neurotoxins.
Additionally, to get the most protection against
free radicals you should eat at least three to five
servings of fruits and vegetables a day. They should
be fresh and eaten mostly raw.
It is also wise take 200 mg of DHA twice a day.
Simply remove the gelatin capsule as you do with
vitamin E. You also can get high levels of Omega-3
fatty acids by eating Christopher eggs daily and avoid corn, safflower, sunflower, soybean and
canola oils, all of which are Omega-6 fats.
And, finally, I highly recommend taking 2 to 3
mg. of melatonin at bedtime to help regulate your
sleep.
Hope this is helpful.
I am doing just about everything that is suggested in this.
maybe I can avoid a relapse.
I’m kind of depressed right now, wondering when I’m going to be able to walk normally again without much pain. Currently I shuffle around like I’m 100-years old with enough pain to make it hard for me to walk more than about 30 feet before I have to stop for a while. Granted, it’s 100 times better than it was 18 months ago, when I couldn’t put any weight on my feet at all, but still, I really want to be able to walk around effortlessly like I used to do before being floxed.
I just came out of a short relapse that was worse and weirder than usual. I had a headache that lasted for 3-days straight with ringing in the ears, numb lips, sore neck, some heart palpitations, every muscle in my body aching, and really painful tendons making popping noises every time I moved. It lasted 3 days then resolved. I’m back to feeling normal again, with normal for me now being having sore Achilles tendons but everything else okay.
I’d say I was only moderately floxed. I haven’t experienced the full spectrum of bad side effects that more severely floxed people do, but my tendons got hit quite hard. They were at 10 on the pain scale for the first 6 months. Now the tendon pain falls between the 4 to 7 range, depending on the day and how much I push it.
Has anyone else been through this? Did you have long-lasting tendon pain that ultimately resolved enough to enable you to walk normally again without a lot of pain? I used to run 10K races, but now I’d just be happy to be able to walk around my house without wincing.
I also can’t make any fast movements without a tendon pulling. A couple of weeks ago, I hurt a tendon in my shoulder when I quickly slapped a mosquito. It feels better now, but it hurt for days afterwards.
Well I got my labs back My Miscellaneous hematology Sed rate is 32 so i think that is High.
My serology Cyclic Citrullinated peptide AB, S is 1.2 so I think that is normal.
My dsDNA AB screen is Negative.
Anti-Nuclear Antibodies
ANA Titer method 1:2560 so lots of inflammation and possibly Lupus or auto immune or disorder or cancer.
ANA pattern Homogeneous
suggest testing for anti-dsDNA to determine what the cause is.
My ENA came back negative.
Anyone else have labs similar to these.
Jimmy,
The Chlorella that you took is a tip off that detox is very difficult for you, in that you have an impaired ability to do so, which caused you to have a so called relapse. My opinion is that based on that extreme negative response you had to the Chlorella you like me have underlining issues with detoxification (trans-sulferation) pathway which is responsible for recycling glutathione. This means that when up against the burden of toxic agents in the environment from foods, beverages, air borne pollution etc…you will accumulate versus dispel effectively. That in itself causes oxidative stress, and a vicious cycle. You may respond well to a Magnesium IV & Vitamin C IV. I would not do any chelating IV’s for metal toxicity, very risky for someone who had negative response to Chlorella.
I had a very severe response to Chlorella many years prior to my Cipro injury. Just dealing with Lyme. That made me so ill, I felt like a science experiment in a petrie dish. I know that I can never take or receive aggressive treatments that will chelate metals. That is way to radical for me, and does not address the issue. Many well meaning holistic ND’d & MD’s believe that the very ill who have heavy metals and are suffering chronically for years, just need to use chelating methods to rid the metals. There are other means, that take a longer time, but safer for folks like me.
That does not apply to those, like myself whose pathways for detoxification are only partially working. The demand/burden is too great now that I also have Lyme, Metals, & Cipro injury.
The organic food is not 100% free of stuff, it is the better option though.
Consider taking:
(NAC) N acetyl cysteine daily. 500mg (precursor to glutathione)
Lithium Orotate 5mg – take 1/4 of tablet ( safe transport of B12 into cells)
Phosphatidylserine (Brain)
Zinc picolinate(wounds & many enzyme processes in many systems)
Magnesium Citrate
Lifewave Y-age Glutathione patch.
God Bless,
Rene
well… where do i start. i think i may be a fellow floxie. hello.
all the symptoms and a few other ones..
i have been tested for leaky gut and i have shown positive on that, also i have lymph nodes swollen all over abdomen some in chest and a slight start in armpits, they hurt swell a little and then stop hurting, my bloods are coming back ok everytime, i feel my red blood cells are dropping slowly, some kind of anemia setting in, my thyroid took a whack and dropped a whole point from 2.30tsh to 1.07 at its lowest i see, it was recorded at 1.44 and was tested again 2 weeks ago so ill have the result to see if its dropped again, my testosterone came in low 7 and my liver ALT was recorded 2 days ago at 45 the lowest ive seen it in all this time, even tho i was taking amitriptaline and glutamine i thought they was meant to irritate it further? my bilirubin is up as well which is new it is 22 the range goes to 21 so something is up there. apart from that WBC goes up a little here and there, but nothing crazy never outside the range, and my lymphocytes fluctuate a little too, i remember seeing low potassium and phosphates at one point when i was at my worst
i have extensive medical history if anyones interested and i have an abundence of info, but to be honest i feel ive been floxed slightly OR its slowly coming in, i too made the mistake of ibuprofen and cipro together, started with gut issues, then i couldnt go to the toilet even tho toilet was soft terrible pain around illeocecal valve area, (lower right abdomen) then i went on fast forward and could go to the toilet 3-5 times a day with clear mucus, that then slowed and went back to normal once a day in mornings and mucu stopped but i swear i used to digest food better than i do now, at worst i get cramping feeling around large bowel. rarely from small bowel area, and my lymph nodes swelled around abdomen in that shape, i also got neuro pain, fingertips sole of right foot, i get mottled palms if i stand or walk, eyes have floaters and a little pixel flash in right eye sometimes, twitchy right eyelid, insomnia problems, im able to exercise but i dont overdo it as heart seems to have a good thump when im walking (120bpm) but being outside is weird like vision is really weird, ive tried to consider maybe its all the computer screening i do where i stay in bed alot of the time, and dont really get out much no more, image afterburning in eyes, throat feels like it partially closes sometimes, stomach buring stopped after taking: garlic caps, oregano caps, slippery elm, DGL, i think my hunger is coming back (stomach rumbling) but im going to keep watch as last time that turnt to burning and acid, and ill get straight back on the slippery elm, pain is spots in back neck legs and spaces between knuckles? it seems tendon areas tbh, near joints but not at the joints, joints are noisy sounds like breaking vegetables when i do the muscle man pose, memory issues, concentration etc, anxiety depression, can be ok one minute and boom next im terrible, greasy skin, flaky skin, sweating issues, dry mouth/throat, and my skin feels ‘sick’ sometimes weird way to describe it but its the best i can offer and probably loads i cant remember
also heres one…
the colour of your fingernails is it paler? and also the white part of your fingernails have they retreted slightly towards your knuckles? mine did.
im taking allsorts started L-glutamine a week ago, magnesium 250mg again last night, (any help on magnesium dose?)
i take daily:
garlic 500mg x 3
oregano 150mg x 3
cod liver oil 1000mg x 1
natural essentials digestive enzymes x 3
l-glutamine 5g x 2
magnesium 250mg x 1
centrum a to zinc x 1
i have but dont take:
25 billion probiotic
peppermint oil
mastic gum
slippery elm
ive ordered:
colliadal silver
psylium husks
caprycilic acid 500mg tabs
epsom salt
st johns wort 1000mg
dr schultz superfood
i need some answers and conventional medicine isnt working, im in east london UK anyone else from round here? naturopaths are few and far between i have no clue what to do docs and hospitals think im nuts any ideas etc peeps? thanks
also just a thought, when you mention what your taking on here always write the MG of what supplement 🙂
steve
Oh here is one from webmd. http://www.webmd.com/skin-problems-and-treatments/features/what-your-nails-say-about-your-health
I have read others though.
Mike Out
Hello gang,
Friendly neighborhood wheel chair man here! I have been able to walk some with the help of a cane. I am definitely seeing some changes. It ain’t no cure but it is a start.
I have been researching enzymes and their uses in treating people. The study of enzymes is called enzymology. They are responsible for thousands of metabolic processes that sustain life. Enzymes are highly selective catalysts, greatly accelerating both the rate and specificity of metabolic reactions, from the digestion of food to the synthesis of DNA.
I am currently taking a few. One it is Serrapeptase enzyme 40,000SPU. It is a proteolytic enzyme isolated from the non-pathogenic bacteria Serratia species found in the Japanese silk worm.
Here is an article from doctor Weil on it.
http://www.drweil.com/drw/u/QAA401051/Enzymes-to-Fight-Inflammation.html
The other I take is a product called Multizyme by Standard Process, in it there is an enzyme in the almond bran. Also figs. It helps people with digestive problems.
Here is another article on enzymes that I found.
Amylase is the enzyme that helps us to digest carbohydrates. When you take it on an empty stomach it has antihistamine effects and alleviates inflammation linked to skin conditions, particularly when combined with lipase. Amylase is also well suited for athletes because it increases joint mobility and relieves muscle pain and inflammation.
Bromelain is helpful in treating swelling and inflammation that is linked to injuries, surgery, swellings, and broken blood vessels; menstrual hemorrhaging; and blood clots.
Catalase helps relieve inflammation linked to injuries, particularly when fluid-retention and edema are involved. This enzyme also functions as an antioxidant, which scavenges free radicals and prevents them from causing additional health concerns.
Chymotrypsin is effective in treating inflammation, abscesses, wounds, and blood clots before and after tooth extractions and other dental work, as well as after surgeries.
Lipase is particularly good for alleviating lymphatic swelling and muscle spasms linked to a calcium deficiency.
Papain is helpful against insect stings and can help treat inflammation linked to gluten intolerance, swelling, and wounds.
Protease supplementation is excellent for inflammation that tends to benefit from ice packs. It also alleviates soft tissue trauma linked to accidents or surgery. Like lipase, protease is also good for muscle spasms if they are linked to a calcium deficiency.
Trypsin is helpful for treating wounds, abscesses, blood clots, injuries, and inflammations.
Read more: http://www.care2.com/greenliving/treating-pain-and-inflammation-with-enzymes.html#ixzz3DbZaALJG
Mike out.
I feel really bad for a lot of the posters. I was given cipro 500 for a UTI. After only 2 doses, I knew something was wrong. I stopped immediately and looked up cipro adverse reactions. I’ve worked in healthcare for over 20 years and pharmacy for 12 years. I knew all of the signs that I was having an adverse reaction. After doing a little research, including this page, I learned that most reactions are because of lack of magnesium. Well the best source of magnesium is Espom salt. I immediately drew a bath and filled it with epsom salt, apple cider vinegar and bentonite clay. These are three of the best detoxers in the world! They pull toxins from the brain, liver and kidneys. Luckily I had all three on hand. I filled the tub with VERY hot water and soaked from my neck down until the water ran cold. I did this 3 days in a row and my symptoms started to reverse. I know it may be too late for some of you but if you know anyone that does experience cipro poisoning, please tell them about this recipe! Good luck.
Simultaneously, I was drinking 1 tsp. epsom salt mixed with 8 oz. of water. I alternated that with 2 tsp. apple cider vinegar mixed 8 oz. of water. This help with an internal detox.
I continue to take the detox baths once a month. I drink the ACV drink once a day. I know that these things help me. I suggest trying these ingredients to see if they can help you.
What do you do when you lose hope.
Ive tried to stay positive but every day I seem to get worse instead of better.
ive lost 40 pounds that I couldn’t afford to lose.
I have so much going on ive come to the bottom of my barrel.
I beat it once but not sure I’ll be that lucky again and this is not living.
I cant even leave the house now.
Ive really lost any hope that I had and im in such a depression I feel like I just dont want to wake up another day.
Sorry for being so down.
Only you all truly understand the severity of this.
I just feel like I have nothing else to hold on to.
Hey how is everyone doing? I started a job as a hostess at a restaurant and it’s going great!
I’ve been following you guys since I started having symptoms of floxing from my recent cipro treatment for bacterial infection. since then, my doc changed me to Augmentin (which was ineffective), and I ended up getting kidney infection and going into the hospital and being given Tazocin by IV for four days. While on Tazocin, I started seeing flakes in my urine, most likely of yeast origin. I improved while being treated, but the antibiotic was stopped after four days due to the fact that my urine culture showed no growth. 48 hrs. after returning home from the hospital (I was in 6 days), my symptoms came back (fever, dizziness, exhaustion, ), and I made the rounds. my pap smear showed yesterday that I have a Heavy Growth of klebsiella pneumoniae and a Moderate Growth of candida non-albicans. I contacted my dr., but she will give no treatment. Instead she will do a repeat culture (urine this time) in two weeks. I am so tired and still dizzy and still getting low-grade fevers. Does anyone here know treatment that can help? Thank you. My cipro poisoning seems to be lessened, although I still get the pains in the arches of my feet and in my legs. I have a topical glucosamine chronditin magnesium cream that I apply as well as Natural Calm powdered magnesium that I take in boiling water.