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I’m posting this for those of you in the U.K. It might be useful to have the information, for doctors for instance.
Antibiotic Prescription Rates Vary Markedly Between 13 European Countries http://soapimg.icecube.snowfall.se/strama/sjid_ab_prescription_EU.pdf
Scand J Infect Dis 34: 366 – 371, 2002
At the bottom of page 1 is a bar chart. In the U.K. you have approx. 1 million prescriptions a year to humans. Ciprofloxacin, Levafloxacin, Norfloxacin and Ofloxacin. For pets and farm animals you have enrofloxacin (Baytril and others) and very occasionally the others may be used. Enrofloxacin is not licensed for humans in the U.K., as far as I know.
***
Fluoroquinolone use in poultry and antibiotic resistance in people https://www.soilassociation.org/LinkClick.aspx?fileticket=T_9ATk3bieI%3D&tabid=1715
It’s a thorough and easily-read report, owrth reading if you’re at all interested.
*** http://www.farming.co.uk/news/article/7538 2012
“..The antibiotics are widely sold as Baytril. The alliance said a ban would bring the UK into line with the US, where the Food and Drug Administration stopped the use of these antibiotics in poultry in 2005, over fears of increasing antibiotic resistance in campylobacter, the most significant cause of food poisoning. Whilst the EU is tightening its regulations on antibiotics, only Denmark and Finland have curtailed the use of fluoroquinolones in poultry.
The Danish government has urged other European states to adopt its ‘one health’ approach and introduce stricter regulation on antibiotics use. Danish surveillance institutions have suggested EU policy is undermining the country’s own efforts to tackle antibiotic resistance; the Danish approach treats human, animal and environmental health as part of an interconnected whole.
A report from European Medicines Agency, published earlier this year, raised concerns over the use of fluoroquinolone in poultry production in 18 EU member states. Although the antibiotic is classified as “critically important in human medicine” by the World Health Organization, the alliance said there are concerns over the potential impacts of ‘whole-flock’ treatment using the drug.”
Jordan
10 years ago
Does anyone have any advice on taking a Fish Oil supplement? I bought Dr.Tobias Omega3. It is apparently made with wild caught fish and uses a very good molecular distillation process…however, I can’t seem to find any information on if that type of distillation process would remove trace amounts of antibiotics if present (and probably wont find any. Does anyone know if this type of distillation would remove them? Thoughts in general? Thanks in advance!!
Daniela
10 years ago
hi jordan, does the supplement contain more Omega3 than you would eat in a meal? why not just eat wild caught fish? i know where i live, it’s not easy to find or maybe you don,t like the taste.
other thoughts: i found a lot of tendon relief eating canned sardines for months, but then it suddenly stopped working and i went through the worst period of tendonitis i’ve had so far. then i quit eating sardines and the tendonitis got better. Switched to pineapple (source of bromelain).
another thought: canned sardines are eaten in west africa to ward off malaria, in the same way that people take prescription prophylactic — which is coincidentally the medication prescribed to rheumatoid arthritis and lupus sufferers http://www.webmd.com/lupus/antimalarial-medications-for-lupus. In other words, sardines are antiinflammatory.
Daniela
10 years ago
ETA: not only anti-inflammatory, but immunosuppressive.
Anyhow, whatever you do, if you are like me, watch out for the boomerang effect.
Anna
10 years ago
Hello everyone,
I am very grateful for this site. I was prescribed cipro in 2011 because of a sinus infection. What I did not know was that my sinus infection and cold symptoms were withdrawal from Paxil. Now I think I’m suffering from mitochondrial damage due to the ssri and cipro combination. I have extreme food and chemical sensitivities, vision problems, dystonia.depersonalization, uncontrollable sweating, frozen shoulders and joint problems. Even certain foods and chemicals cause obsessive thinking, memory loss, difficulty breathing. At my last doctors appointment I mentioned the cipro and paxil as possible causes for my symptoms. He just dismissed it and said my CBC panel was healthy, its probably TMJ. I told him that medicine is waaay behind on this and hopefully one day soon they will find out before more people have to suffer. The physical and mental pain are constant, but sites like this relieve the pain of no one understanding what it’s like. Again I am thankful for this site and hope for a full recovery for everyone or at the very least pain management.
Jane
10 years ago
I just made a change that seems to be working really well, though it might be too soon to tell. A couple of days ago, I needed to go back to see my dentist, and it was raining really hard. Due to the weather, I put on my old running shoes to avoid ruining the shoes I’ve been wearing since I was floxed.
These are really good running shoes that provide great support, but I couldn’t wear them right after being floxed because the back of my heel was too sensitive. I’d been wearing a pair of good suede sandals with the strap very loose around the heel ever since.
Apparently, I’ve healed enough that the running shoes don’t bother me anymore. In fact, the opposite seems to be true. They provide far better support that the sandals, and my Achilles tendons are loving them so much that I’ve continued to wear the running shoes. I feel like I’ve taken a big leap forward. I’ve had very little soreness for the last 2 days.
I’ve had plenty of ups and downs over the last year and a half, often with no rhyme or reason, so my conclusion that this has helped could be premature. Still, I thought I would report it here anyway. Wearing a really good pair of shoes that provide excellent orthotic support could make a huge difference for those who are dealing with Achilles tendon issues.
Carrie
10 years ago
have any of you ladies experienced pelvic pain as result of floxing? I.e. spasms, burning, and or been told you have vulvodynia?
CP
10 years ago
Hi everyone,
I really like this webpage. I am 2 1/2 years away from being floxed. I don’t search for CIPRO related webpages anymore like I used to for the first year. I had severe ankle pains that limited my walking for 3 months—I walked with crutches and in the office I used a chair with wheels to move around. After about 3-5 months, I began walking short distances < 1/4 mile without any assistance. New symptoms kept on arising and by the first year I had psychiatric, GI, neurological, skin, eye, hearing (Ringing in my ears), etc. After the first year, I noticed some improvements and exacerbations, and by the second year, life was good, but I continued to have symptoms, but better than it had been. Now 2 1/2 years later, I am still having the ankle pains, but better, my ears continue to ring, but not as intense, I have intermittent GI symptoms as if my body isn't digesting, and recently I have finger joint pains that I had initially 2 1/2 years ago recur.
I am writing this to specifically mention that I have a cycle begin 2 weeks ago, and out of desperation I took some Magnesium, lo and behold, I noticed rapid improvement. I am not sure if I was getting better anyways, but Magnesium ( 400 mg tabs of super magnesium bought from GNC) may or may not have helped. I hope this experience helps.
CP
10 years ago
Does anyone here know of people that have actually COMPLETELY recovered? I can’t seem to be able to find anyone online with more that 3-4 years of symptoms. Are people getting better and failing to come back and write how they are doing?
CP
10 years ago
Thank you everyone for your responses. I was doing great until last night :-(. I woke up to go to the bathroom and I heard “pops” everywhere, and one in my right hip was specifically very loud, and this morning when I woke-up I noticed right hip pain and I am limping now. I was doing well until 2 weeks ago when a cycle began. However, excluding the now right anterior hip, I fell much better than I have,.
I have hope that one day I will be over this nightmare. I am not giving up, but boy it is stressful to absorb the blows and still have a positive outlook.
Jordan
10 years ago
So, I came down with a cold or something of the sort. I have never been sick while going through this…I feel like I’m getting worse, and assuming its because my body is fighting something else as well. Normal?
Jordan
10 years ago
I saw a post on here at some point that indicated being refloxed from having dental anesthesia..Do some anesthetics have FQs in them? If so, I may have narrowed down my relapse culprit…
Daniela
10 years ago
Thanks Destruida for your post, it was really informatory. I also note that, as a new reader of this page, I can see you are recovering from your brain fog, as your posts are now clear as a bell. Hope it lasts. Take care.
Arthritis
High or low blood pressure
Cracking or popping joints
Bladder/urinary disorders
Muscle stiffness
Headaches
Dry, scaly skin
Insomnia
Constipation
Dizziness, ringing in ears
Gas and bloating
Premature aging
Improper nutrient assimilation
Chronic fatigue
Heart disease
Low energy, depleted life force
Lower back pain
Intolerance of coldness and dryness
Food Allergies (especially to wheat and dairy)
“Due to the mobile and volatile nature of Vata, nearly 60 percent of all listed disorders in classical Ayurvedic texts are associated with this dosha.”
Source:
Dr. Thomas Yarema, Daniel Rhoda, and Chef Johnny Brannigan. Eat, Taste, Heal: An Ayurvedic Guidebook and Cookbook for Modern Living. Kapaa, Hawaii: Five Elements Press, 2006.
Brandon
10 years ago
Rene — I’m a bit confused — so you can problems with sulfates and glutamate? Are there blood tests for these things? i seem to have trouble with both magnesium citrate and epsom salts (fatigue neuropathy) so this could be a response to the magneisum or to the binders…but how would I know? If you have there problems does that mean you cannot take glutahtione/NAC becuase of they too are sulfur based? I read this somewhere…do you agree?
Alsothe potential sulfur problems cloud use of gluthatione it seems:
FROM AN ARTICLE on GLUTAHTIONE AND MTHFR
Glutathione and glutathione precursor NAC can also induce active b12 deficiencies, apparently by converting active methylcobalamin (meb12) to inactive glutathionylb12 and rapidly excreting it. This then can cause methylfolate to be dumped from your cells and can lead to high serum folate but a low cellular folate causing a folate deficiency with increasingly negative symptoms over time. Many people mistake this for a detoxification reaction. If one is using an active b12 protocol to correct methylation issues caution should be used in using glutathione, NAC, glutamine, or undenatured whey. Something to discuss with your healthcare provider.
In addition, those who have SNP’s in the CBS and SUOX genes can have an issue with sulphur based compounds such as glutathione, MSM, NAC, etc… So, supplementing with glutathione, even though it does good things for the body, can actually cause you to feel worse, especially if your sulphate load is high. Remember the SNPs give us only the tendencies as to why our bodies may respond a certain way but they do not always give the actualities. We must use a variety of information to develop proper treatment protocol.
If there are problems with the CBS and SUOX genes, what can be done to allow one to take glutahtione? Dietary changes?
How does one untangle this. Are there blood tests I should start with?
Desperately in need of some floxie hope. It’s been 13 months since my last FQ – I’ve been eating right, taking magnesium and doing other things that help floxies, but I’m still bedbound and still deteriorating. I’m scared that maybe this is as good as it’s ever going to get. Feeling desolate.
theman77
10 years ago
*** READ THIS IMPORTANT ***
European Antibiotics Awareness Day 2014 is celebrated 18th Nov. It has a huge publicity amongst pharmacists, researchers and doctors throughout the European countries.
Take a 5 min and post your comment on their Facebook site https://www.facebook.com/EAAD.EU how do you feel about fluoroquinolone antibiotics!
Daniela
10 years ago
Catherine, That’s not a long time. You’ll probably see improvements at two years, that’s coming up soon.
Daniela
10 years ago
I tested positive for some for of the lyme bands, but it made me a bit angry that they tested me so extensively for lyme when the elephant in the room is the huge amount of cipro I was given!
No offence to elephants, who would never treat one of their own this way.
SM
10 years ago
It’s so nice reading the comments on here. People are positive. I’m not sure how many of you do it. I’m 15 months and counting. I haven’t given up hope- I know many people recover between 18-30 months. I don’t even think I’m that severe. But daily existence isn’t fun. Life isn’t fun. I’ll keep plugging away like we all do. And I’ll keep reading positive words.
I’m posting this for those of you in the U.K. It might be useful to have the information, for doctors for instance.
Antibiotic Prescription Rates Vary Markedly Between 13 European Countries
http://soapimg.icecube.snowfall.se/strama/sjid_ab_prescription_EU.pdf
Scand J Infect Dis 34: 366 – 371, 2002
At the bottom of page 1 is a bar chart. In the U.K. you have approx. 1 million prescriptions a year to humans. Ciprofloxacin, Levafloxacin, Norfloxacin and Ofloxacin. For pets and farm animals you have enrofloxacin (Baytril and others) and very occasionally the others may be used. Enrofloxacin is not licensed for humans in the U.K., as far as I know.
***
Fluoroquinolone use in poultry and antibiotic resistance in people
https://www.soilassociation.org/LinkClick.aspx?fileticket=T_9ATk3bieI%3D&tabid=1715
It’s a thorough and easily-read report, owrth reading if you’re at all interested.
***
http://www.farming.co.uk/news/article/7538 2012
“..The antibiotics are widely sold as Baytril. The alliance said a ban would bring the UK into line with the US, where the Food and Drug Administration stopped the use of these antibiotics in poultry in 2005, over fears of increasing antibiotic resistance in campylobacter, the most significant cause of food poisoning. Whilst the EU is tightening its regulations on antibiotics, only Denmark and Finland have curtailed the use of fluoroquinolones in poultry.
The Danish government has urged other European states to adopt its ‘one health’ approach and introduce stricter regulation on antibiotics use. Danish surveillance institutions have suggested EU policy is undermining the country’s own efforts to tackle antibiotic resistance; the Danish approach treats human, animal and environmental health as part of an interconnected whole.
A report from European Medicines Agency, published earlier this year, raised concerns over the use of fluoroquinolone in poultry production in 18 EU member states. Although the antibiotic is classified as “critically important in human medicine” by the World Health Organization, the alliance said there are concerns over the potential impacts of ‘whole-flock’ treatment using the drug.”
Does anyone have any advice on taking a Fish Oil supplement? I bought Dr.Tobias Omega3. It is apparently made with wild caught fish and uses a very good molecular distillation process…however, I can’t seem to find any information on if that type of distillation process would remove trace amounts of antibiotics if present (and probably wont find any. Does anyone know if this type of distillation would remove them? Thoughts in general? Thanks in advance!!
hi jordan, does the supplement contain more Omega3 than you would eat in a meal? why not just eat wild caught fish? i know where i live, it’s not easy to find or maybe you don,t like the taste.
other thoughts: i found a lot of tendon relief eating canned sardines for months, but then it suddenly stopped working and i went through the worst period of tendonitis i’ve had so far. then i quit eating sardines and the tendonitis got better. Switched to pineapple (source of bromelain).
another thought: canned sardines are eaten in west africa to ward off malaria, in the same way that people take prescription prophylactic — which is coincidentally the medication prescribed to rheumatoid arthritis and lupus sufferers http://www.webmd.com/lupus/antimalarial-medications-for-lupus. In other words, sardines are antiinflammatory.
ETA: not only anti-inflammatory, but immunosuppressive.
Anyhow, whatever you do, if you are like me, watch out for the boomerang effect.
Hello everyone,
I am very grateful for this site. I was prescribed cipro in 2011 because of a sinus infection. What I did not know was that my sinus infection and cold symptoms were withdrawal from Paxil. Now I think I’m suffering from mitochondrial damage due to the ssri and cipro combination. I have extreme food and chemical sensitivities, vision problems, dystonia.depersonalization, uncontrollable sweating, frozen shoulders and joint problems. Even certain foods and chemicals cause obsessive thinking, memory loss, difficulty breathing. At my last doctors appointment I mentioned the cipro and paxil as possible causes for my symptoms. He just dismissed it and said my CBC panel was healthy, its probably TMJ. I told him that medicine is waaay behind on this and hopefully one day soon they will find out before more people have to suffer. The physical and mental pain are constant, but sites like this relieve the pain of no one understanding what it’s like. Again I am thankful for this site and hope for a full recovery for everyone or at the very least pain management.
I just made a change that seems to be working really well, though it might be too soon to tell. A couple of days ago, I needed to go back to see my dentist, and it was raining really hard. Due to the weather, I put on my old running shoes to avoid ruining the shoes I’ve been wearing since I was floxed.
These are really good running shoes that provide great support, but I couldn’t wear them right after being floxed because the back of my heel was too sensitive. I’d been wearing a pair of good suede sandals with the strap very loose around the heel ever since.
Apparently, I’ve healed enough that the running shoes don’t bother me anymore. In fact, the opposite seems to be true. They provide far better support that the sandals, and my Achilles tendons are loving them so much that I’ve continued to wear the running shoes. I feel like I’ve taken a big leap forward. I’ve had very little soreness for the last 2 days.
I’ve had plenty of ups and downs over the last year and a half, often with no rhyme or reason, so my conclusion that this has helped could be premature. Still, I thought I would report it here anyway. Wearing a really good pair of shoes that provide excellent orthotic support could make a huge difference for those who are dealing with Achilles tendon issues.
have any of you ladies experienced pelvic pain as result of floxing? I.e. spasms, burning, and or been told you have vulvodynia?
Hi everyone,
I really like this webpage. I am 2 1/2 years away from being floxed. I don’t search for CIPRO related webpages anymore like I used to for the first year. I had severe ankle pains that limited my walking for 3 months—I walked with crutches and in the office I used a chair with wheels to move around. After about 3-5 months, I began walking short distances < 1/4 mile without any assistance. New symptoms kept on arising and by the first year I had psychiatric, GI, neurological, skin, eye, hearing (Ringing in my ears), etc. After the first year, I noticed some improvements and exacerbations, and by the second year, life was good, but I continued to have symptoms, but better than it had been. Now 2 1/2 years later, I am still having the ankle pains, but better, my ears continue to ring, but not as intense, I have intermittent GI symptoms as if my body isn't digesting, and recently I have finger joint pains that I had initially 2 1/2 years ago recur.
I am writing this to specifically mention that I have a cycle begin 2 weeks ago, and out of desperation I took some Magnesium, lo and behold, I noticed rapid improvement. I am not sure if I was getting better anyways, but Magnesium ( 400 mg tabs of super magnesium bought from GNC) may or may not have helped. I hope this experience helps.
Does anyone here know of people that have actually COMPLETELY recovered? I can’t seem to be able to find anyone online with more that 3-4 years of symptoms. Are people getting better and failing to come back and write how they are doing?
Thank you everyone for your responses. I was doing great until last night :-(. I woke up to go to the bathroom and I heard “pops” everywhere, and one in my right hip was specifically very loud, and this morning when I woke-up I noticed right hip pain and I am limping now. I was doing well until 2 weeks ago when a cycle began. However, excluding the now right anterior hip, I fell much better than I have,.
I have hope that one day I will be over this nightmare. I am not giving up, but boy it is stressful to absorb the blows and still have a positive outlook.
So, I came down with a cold or something of the sort. I have never been sick while going through this…I feel like I’m getting worse, and assuming its because my body is fighting something else as well. Normal?
I saw a post on here at some point that indicated being refloxed from having dental anesthesia..Do some anesthetics have FQs in them? If so, I may have narrowed down my relapse culprit…
Thanks Destruida for your post, it was really informatory. I also note that, as a new reader of this page, I can see you are recovering from your brain fog, as your posts are now clear as a bell. Hope it lasts. Take care.
Interesting….from Yahoo Answers
https://answers.yahoo.com/question/index?qid=20100918120106AACb40s
Common Vata Disorders:
Arthritis
High or low blood pressure
Cracking or popping joints
Bladder/urinary disorders
Muscle stiffness
Headaches
Dry, scaly skin
Insomnia
Constipation
Dizziness, ringing in ears
Gas and bloating
Premature aging
Improper nutrient assimilation
Chronic fatigue
Heart disease
Low energy, depleted life force
Lower back pain
Intolerance of coldness and dryness
Food Allergies (especially to wheat and dairy)
“Due to the mobile and volatile nature of Vata, nearly 60 percent of all listed disorders in classical Ayurvedic texts are associated with this dosha.”
Source:
Dr. Thomas Yarema, Daniel Rhoda, and Chef Johnny Brannigan. Eat, Taste, Heal: An Ayurvedic Guidebook and Cookbook for Modern Living. Kapaa, Hawaii: Five Elements Press, 2006.
Rene — I’m a bit confused — so you can problems with sulfates and glutamate? Are there blood tests for these things? i seem to have trouble with both magnesium citrate and epsom salts (fatigue neuropathy) so this could be a response to the magneisum or to the binders…but how would I know? If you have there problems does that mean you cannot take glutahtione/NAC becuase of they too are sulfur based? I read this somewhere…do you agree?
Alsothe potential sulfur problems cloud use of gluthatione it seems:
FROM AN ARTICLE on GLUTAHTIONE AND MTHFR
Glutathione and glutathione precursor NAC can also induce active b12 deficiencies, apparently by converting active methylcobalamin (meb12) to inactive glutathionylb12 and rapidly excreting it. This then can cause methylfolate to be dumped from your cells and can lead to high serum folate but a low cellular folate causing a folate deficiency with increasingly negative symptoms over time. Many people mistake this for a detoxification reaction. If one is using an active b12 protocol to correct methylation issues caution should be used in using glutathione, NAC, glutamine, or undenatured whey. Something to discuss with your healthcare provider.
In addition, those who have SNP’s in the CBS and SUOX genes can have an issue with sulphur based compounds such as glutathione, MSM, NAC, etc… So, supplementing with glutathione, even though it does good things for the body, can actually cause you to feel worse, especially if your sulphate load is high. Remember the SNPs give us only the tendencies as to why our bodies may respond a certain way but they do not always give the actualities. We must use a variety of information to develop proper treatment protocol.
If there are problems with the CBS and SUOX genes, what can be done to allow one to take glutahtione? Dietary changes?
How does one untangle this. Are there blood tests I should start with?
Desperately in need of some floxie hope. It’s been 13 months since my last FQ – I’ve been eating right, taking magnesium and doing other things that help floxies, but I’m still bedbound and still deteriorating. I’m scared that maybe this is as good as it’s ever going to get. Feeling desolate.
*** READ THIS IMPORTANT ***
European Antibiotics Awareness Day 2014 is celebrated 18th Nov. It has a huge publicity amongst pharmacists, researchers and doctors throughout the European countries.
Take a 5 min and post your comment on their Facebook site https://www.facebook.com/EAAD.EU how do you feel about fluoroquinolone antibiotics!
Catherine, That’s not a long time. You’ll probably see improvements at two years, that’s coming up soon.
I tested positive for some for of the lyme bands, but it made me a bit angry that they tested me so extensively for lyme when the elephant in the room is the huge amount of cipro I was given!
No offence to elephants, who would never treat one of their own this way.
It’s so nice reading the comments on here. People are positive. I’m not sure how many of you do it. I’m 15 months and counting. I haven’t given up hope- I know many people recover between 18-30 months. I don’t even think I’m that severe. But daily existence isn’t fun. Life isn’t fun. I’ll keep plugging away like we all do. And I’ll keep reading positive words.