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Melanie Kemp
10 years ago
Just been told I need to take the Z pack for an infection.
Terrified!!! Im on a bad cycle and this is all I need.
melanie kemp
10 years ago
Thanks Brian. Its actually the only antibiotic I seemed ok with pre floxing but I’m not sure post floxing as we seem to become so sensitive to anything. Plus I’m in a really bad flare up and not sure if it will make it much worse and its already really bad so I don’t think I can take anything worse. Its scary to say the least. I have the prescription in hand and but when and if I take it I don’t know
melanie kemp
10 years ago
Destruida. Yes I was tested and its bacterial.
Do you think you could E mail me ? Id like to run something passed you. You are so knowledgable on things. melglove@hotmail.com
melanie kemp
10 years ago
thanks Jordan
Crystal
10 years ago
A couple weeks ago I was at the DMV when the doctor who wrote my script walked in – now I’m not great with faces, but this guy’s burned into my memory forever. We made eye contact, but I quickly looked away. It was too weird.
rich
10 years ago
not sure if my gums have retracted ? am I going mad
Daniela
10 years ago
Yes, dental problems are part of it, no need to examine your teeth because that won’t change things. No, you’re not going mad:) Try to eat mush just in case. I didn’t and you don’t want to know the rest.
jimmy
10 years ago
destruida, you responded to me a week or so ago that fq’s have been found in tissue and even bone, up to 9 years after exposure, if i’m not mistaken. can you provide me with some actual data on this…hopefully, peer reviewed, but at least where you’ve found your information. i’ve been asked by a law firm in the usa who is interested in taking on big pharma regarding fq’s and wants info about the mechanisms and type of damage that is not yet well known. obviously, i’ve filled them in a bit and in my former life, before i had a different career and before that career was temporarily halted 16 months ago, i had worked for a law firm that did mass tort lit against reckless and irresponsible drug companies. anyway, i want to provide them not only with the info, but some support so that it’s not just conjecture. thanks.
I wanted to reply on this thread about a number of things, as this is a really good discussion!
FYI – I’m 2 and a half years out from taking two(2) 500mg levaquin pills. I have multiple long lasting ADRS – the most prominent of which are body-wide connective tissue/tendon problems and symptoms of suspected polyneuropathy.
I’d say that I kept getting new side effects until about 8 months out. The only disturbing effect that may keep getting worse is that my fasting blood glucose is getting higher and higher and we know FQ’s can cause dysglycemia (yes,I eat a clean diet and watch my carb intake)
About prednisone – I had a bad experience with it about 5 years before levaquin. I took a course of it and had terrible joint pain all over for one week.
CP and Rene – I’ve really enjoyed your insightful comments on this thread.
Rene: I’m interested about what you said regarding how our cellular death is faster than the rate of repair. This leads into CP comments.
CP: I’m interested regarding your comments in general about how the disease builds, stabilizes and then slowly recedes. If this is indeed true, for some, it takes an exceedingly long time.
I have experience cycling (waxing/waning) of all of my symptoms (dry eyes, mouth, tinnitus) except for:
the musculoskeletal symptoms
some nerve symtpoms (always cold when the fall starts)
optical symptoms (floaters, shadows)
There does seem to be an agonizingly slow increased repair rate of the connective tissue that has a course and timeline of its own. In my case, I am good enough to take walks, but if I try to do anything athletic (other than swimming) everything breaks down again – and then it can take weeks/months to build back up. So, when I give myself sufficient time, my tissue “builds up” allowing me to walk long distances. This can give the appearance that I’m “normal”and have healed. But, then, one light jog or a 5 minute run for the bus – and, I’m degraded back to the point where I feel my achilles tendons will rip with every step and my knees are unstable.
Case in point – I felt my legs were in a good enough state of dysfunction for me to try a kick scooter to shorten my commute. This was a month ago and my experminet lasted less than a . 3 days of light kick scooting has caused my legs to degrade to the point where every step is agony again and I’m experiencing amazing tendon stiffness. Amazing.
My hope is that I get back to my “normal” level of tissue dysfunction, and over the years the rate of recovery will increase on a faster trajectory… or…
….is it the case that the tissue formation is just permanently altered and its always going to be weakened…?
Open question?
Anyhow, great discussion.
Thanks, folks.
Lisa, as always thanks for moderating a wonderful site.
Hi, I have been floxed for a little more than three months by one dose (500mg) levofloxacin (levaquin) for a minor infection in throat. I experienced most of the side effects including tendonitis, skin symptoms (rash, itching, tingling), eye floaters and the unsure sensory neuropathy (tingling in the skin, occasional shooting pain in the legs). Now my tendonitis has been under control and does not cause much pain except for occasional sore/tightness in the achilles tendon. But the itching/tingling is bothering me a lot, which started and got worse after the tendonitis started recovering. Any one had similar experience about the tingling pain? And anyone has taken flu shot after being floxed? Any side effects from flu shot when we are still suffering the side effects from levaquin? Thanks.
Debs
10 years ago
Whoops !, Don’t know what happened above in my answer to you Mark. , ( well actually I do, I think I am braindead & got my grammar / sentence structure messed up rather which is par for the course these days lol ! ).
What I meant so say, is that in my opinion there is a HUGE difference between plain old fashioned ignorance, & the sheer unadulterated WILFUL Ignorance we get from idiot Drs lol !
rich
10 years ago
need some floxie hope today…those that lost some muscle around feet hands etc has this come back for you and anyone with tight back legs has this gone away….positive answers only ;P
melanie kemp
10 years ago
Rich. I had muscle wasting in 2010 and I regained it back.
rich
10 years ago
thanks
Andrew
10 years ago
Anyone have suggestions for tinnitus? I have been recovering with the typical issues, but the tinnitus seems to be getting worse and it really makes me nuts. I’m taking all the same stuff people have recommended – magnesium, multi vits, vit b, co q 10 etc. The joint, tendon pains come and go, the neuropathy also seems to come and go, but the ears – geez.
Thanks
rich
10 years ago
whats yoru short story Andrew I like to know how people got here.. what and how much did you take… ;P ive heard people having it go after a certain time….quite a few actually from all the posts I read…again just darn time needed
Carrie
10 years ago
Back before I knew that FQ’s were the cause of all my pain, etc., my neurologist sent me to a pain management doctor. This doctor reviewed my MRI’s and thought that the terrible burning nerve pain in both my legs was possibly due to a slight disc issue he noticed in my lower back. YET he stated that he didn’t quite understand how something so minor could be causing such tremendous pain my both my legs. He highly suggested that I have epidural steroid injections into the lower back near the disc. Since I was in so much pain at the time, I had them done. Now in looking back, and after learning that I was floxed (time and time again) and learning that FQ and steroids should not be given together, could these injections I had be the cause why my pain increased months later? Is that possible? Or would I have had to take the steroids orally rather than via injections to the lower back? My last floxing was in November 2013 and my first series of injections was done in January 2014.
jenny
10 years ago
Hey everyone I posted on here 10 weeks ago about having flare ups from cipro and being pregnant! The baby is healthy at 15 weeks and the muscle cramps/Neoropathy is fading. But the uti is back. I took Macrobid and was short of breath. Now they give me cefalexin any info about this drug? If I’m allergic to cipro will it be the same with this drug too? Thanks!
jenny
10 years ago
Thank you Michael the uti would mess with my fetus a lot more than this medicine would is what I got out of that and the prenatals are working wonders since there’s iron and magnesium in them. But the bad reactions on the prescription is what threw me off, ever since I took cipro I read everything now
Daniela
10 years ago
Stomach issues should not be taken likely.
For example, antibiotics –> less stomach acid —> maldigested food —> malabsorption of nutrients/or leaking into bloodstream —> all kinds of neurological and other symptoms
Just been told I need to take the Z pack for an infection.
Terrified!!! Im on a bad cycle and this is all I need.
Thanks Brian. Its actually the only antibiotic I seemed ok with pre floxing but I’m not sure post floxing as we seem to become so sensitive to anything. Plus I’m in a really bad flare up and not sure if it will make it much worse and its already really bad so I don’t think I can take anything worse. Its scary to say the least. I have the prescription in hand and but when and if I take it I don’t know
Destruida. Yes I was tested and its bacterial.
Do you think you could E mail me ? Id like to run something passed you. You are so knowledgable on things.
melglove@hotmail.com
thanks Jordan
A couple weeks ago I was at the DMV when the doctor who wrote my script walked in – now I’m not great with faces, but this guy’s burned into my memory forever. We made eye contact, but I quickly looked away. It was too weird.
not sure if my gums have retracted ? am I going mad
Yes, dental problems are part of it, no need to examine your teeth because that won’t change things. No, you’re not going mad:) Try to eat mush just in case. I didn’t and you don’t want to know the rest.
destruida, you responded to me a week or so ago that fq’s have been found in tissue and even bone, up to 9 years after exposure, if i’m not mistaken. can you provide me with some actual data on this…hopefully, peer reviewed, but at least where you’ve found your information. i’ve been asked by a law firm in the usa who is interested in taking on big pharma regarding fq’s and wants info about the mechanisms and type of damage that is not yet well known. obviously, i’ve filled them in a bit and in my former life, before i had a different career and before that career was temporarily halted 16 months ago, i had worked for a law firm that did mass tort lit against reckless and irresponsible drug companies. anyway, i want to provide them not only with the info, but some support so that it’s not just conjecture. thanks.
Hi,
I wanted to reply on this thread about a number of things, as this is a really good discussion!
FYI – I’m 2 and a half years out from taking two(2) 500mg levaquin pills. I have multiple long lasting ADRS – the most prominent of which are body-wide connective tissue/tendon problems and symptoms of suspected polyneuropathy.
I’d say that I kept getting new side effects until about 8 months out. The only disturbing effect that may keep getting worse is that my fasting blood glucose is getting higher and higher and we know FQ’s can cause dysglycemia (yes,I eat a clean diet and watch my carb intake)
About prednisone – I had a bad experience with it about 5 years before levaquin. I took a course of it and had terrible joint pain all over for one week.
CP and Rene – I’ve really enjoyed your insightful comments on this thread.
Rene: I’m interested about what you said regarding how our cellular death is faster than the rate of repair. This leads into CP comments.
CP: I’m interested regarding your comments in general about how the disease builds, stabilizes and then slowly recedes. If this is indeed true, for some, it takes an exceedingly long time.
I have experience cycling (waxing/waning) of all of my symptoms (dry eyes, mouth, tinnitus) except for:
the musculoskeletal symptoms
some nerve symtpoms (always cold when the fall starts)
optical symptoms (floaters, shadows)
There does seem to be an agonizingly slow increased repair rate of the connective tissue that has a course and timeline of its own. In my case, I am good enough to take walks, but if I try to do anything athletic (other than swimming) everything breaks down again – and then it can take weeks/months to build back up. So, when I give myself sufficient time, my tissue “builds up” allowing me to walk long distances. This can give the appearance that I’m “normal”and have healed. But, then, one light jog or a 5 minute run for the bus – and, I’m degraded back to the point where I feel my achilles tendons will rip with every step and my knees are unstable.
Case in point – I felt my legs were in a good enough state of dysfunction for me to try a kick scooter to shorten my commute. This was a month ago and my experminet lasted less than a . 3 days of light kick scooting has caused my legs to degrade to the point where every step is agony again and I’m experiencing amazing tendon stiffness. Amazing.
My hope is that I get back to my “normal” level of tissue dysfunction, and over the years the rate of recovery will increase on a faster trajectory… or…
….is it the case that the tissue formation is just permanently altered and its always going to be weakened…?
Open question?
Anyhow, great discussion.
Thanks, folks.
Lisa, as always thanks for moderating a wonderful site.
Hi, I have been floxed for a little more than three months by one dose (500mg) levofloxacin (levaquin) for a minor infection in throat. I experienced most of the side effects including tendonitis, skin symptoms (rash, itching, tingling), eye floaters and the unsure sensory neuropathy (tingling in the skin, occasional shooting pain in the legs). Now my tendonitis has been under control and does not cause much pain except for occasional sore/tightness in the achilles tendon. But the itching/tingling is bothering me a lot, which started and got worse after the tendonitis started recovering. Any one had similar experience about the tingling pain? And anyone has taken flu shot after being floxed? Any side effects from flu shot when we are still suffering the side effects from levaquin? Thanks.
Whoops !, Don’t know what happened above in my answer to you Mark. , ( well actually I do, I think I am braindead & got my grammar / sentence structure messed up rather which is par for the course these days lol ! ).
What I meant so say, is that in my opinion there is a HUGE difference between plain old fashioned ignorance, & the sheer unadulterated WILFUL Ignorance we get from idiot Drs lol !
need some floxie hope today…those that lost some muscle around feet hands etc has this come back for you and anyone with tight back legs has this gone away….positive answers only ;P
Rich. I had muscle wasting in 2010 and I regained it back.
thanks
Anyone have suggestions for tinnitus? I have been recovering with the typical issues, but the tinnitus seems to be getting worse and it really makes me nuts. I’m taking all the same stuff people have recommended – magnesium, multi vits, vit b, co q 10 etc. The joint, tendon pains come and go, the neuropathy also seems to come and go, but the ears – geez.
Thanks
whats yoru short story Andrew I like to know how people got here.. what and how much did you take… ;P ive heard people having it go after a certain time….quite a few actually from all the posts I read…again just darn time needed
Back before I knew that FQ’s were the cause of all my pain, etc., my neurologist sent me to a pain management doctor. This doctor reviewed my MRI’s and thought that the terrible burning nerve pain in both my legs was possibly due to a slight disc issue he noticed in my lower back. YET he stated that he didn’t quite understand how something so minor could be causing such tremendous pain my both my legs. He highly suggested that I have epidural steroid injections into the lower back near the disc. Since I was in so much pain at the time, I had them done. Now in looking back, and after learning that I was floxed (time and time again) and learning that FQ and steroids should not be given together, could these injections I had be the cause why my pain increased months later? Is that possible? Or would I have had to take the steroids orally rather than via injections to the lower back? My last floxing was in November 2013 and my first series of injections was done in January 2014.
Hey everyone I posted on here 10 weeks ago about having flare ups from cipro and being pregnant! The baby is healthy at 15 weeks and the muscle cramps/Neoropathy is fading. But the uti is back. I took Macrobid and was short of breath. Now they give me cefalexin any info about this drug? If I’m allergic to cipro will it be the same with this drug too? Thanks!
Thank you Michael the uti would mess with my fetus a lot more than this medicine would is what I got out of that and the prenatals are working wonders since there’s iron and magnesium in them. But the bad reactions on the prescription is what threw me off, ever since I took cipro I read everything now
Stomach issues should not be taken likely.
For example, antibiotics –> less stomach acid —> maldigested food —> malabsorption of nutrients/or leaking into bloodstream —> all kinds of neurological and other symptoms