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Debs
10 years ago
Hi All,
Just a quick reminder in regards to seeking information, in relation to The flox report
For anyone who decides to seek out THE FLOX REPORT for information as mentioned above, in particularly in respect to seeking out timelines for improvement / recovery in their floxing, Firstly, It is important, in fact IMO, it is IMPERATIVE to read the introduction first, BEFORE anything else. This is because it tells you exactly how the report should be interpreted. If you skip the introduction It can be, & in fact often IS COMPLETELY misinterpreted, it causes many people, particularly if recently floxed, & often not yet having done much research of their own, to often become terrified that they might never get to a place where they feel they have recovered. This is just NOT the case. In regards to interpretation of the report, please be aware that in respect of potential timelines of improvement / potential recovery, It is important to realise that it is just NOT POSSIBLE to calculate this, in ANY way, shape or form, this goes for EVERY aspect of floxing & also for every aspect of any subsequent floxing a person might receive.
This is because a persons individual floxing is completely UNIQUE to them.
The Flox Report is indeed an invaluable resource, & IMO, is one of the most comprehensive, sources of information. It can save you erratic searches for answers when first floxed, & can also help overcome the disorientation we often feel, saving literally hours trawling the web, It gives a very good general idea indeed of THE floxing experience, It is IMO, very useful when it comes to the understanding of the mechanism of damage to the the connective tissue, also the / joint bones etc, the current report focusing mainly towards the more severe side of the spectrum, floxings experienced by those of an athletic persuasion, & so is particularly focused on all areas relevant to physical & athletic performance. However it should NEVER be used as the definitive guide for information.
Always read The Flox report with a critical detached attitude, I suggest caution myself in looking at it too early on especially, If / when you are feeling rather vulnerable. Always keep in mind the fact that The Flox report was written more than a few years now the last edition being in 2007, & we are now more knowledgable, Things have moved on, & therefore some of the information in it is not now not so accurate This is so VERY important to keep in mind, the information must not be interpreted literally, The Flox Reort is NOT a manual for those intoxicated by FQs ,& if interpreted wrongly, it can be overwhelming, frustrating, frightening. So for anyone who does decide to seek it out . PLEASE do NOT skip that Vitally important introduction .
rich
10 years ago
yea I read it and it scared the hell out of me…. I take it im not a severe case as I wasn’t bed bound straight off the bat ..my reaction started 3 weeks after the last dose and have had about 25 different symptoms come and go………….still scared that I may go back to they gym and tear something as sometimes my muscles ache …..im 28 and took 12 500 cipro
Catherine
10 years ago
I had a local anaesthetic in my face today, and am now feeling much worse. Has anyone else reacted badly to a local, and did it get better again?
Its nice you all have each other to talk to. Some may have been gotten their side effect and some may not have. Alot of other people have the same systoms and blame it on the Flu Shot. I myself do not like playing Doctor.
Daniela
10 years ago
What can you do in advance of any potential hospital experience? You can say, No fluoroquinolones, but it’s more than that. I was refloxed by dental anesthesia.
It’s really the whole medical model. I was just reading the German anti-Bayer site and I thought, Why do we consider this nazi based modern medicine of pills and injections and magic bullets better than tens of thousands of years of medical experience?
Back to my original question, how can you stop them if you are ever brought into hospital in case of an accident, for example?
B
10 years ago
Grapefruit seeds extract
Hi
I bought glucosamine lotion, and it’s ingredients contains Grapefruit seed extract.
Is it safe to us ?
I know we should avoid eating grapefruit, but it’s seed in lotion is OK ?
Hi guys
Sorry bother you guys with questions in a row..
I have not tried prolotherapy yet. Anyone of you tried it ? And is it safe ?
Prolotherapy should be very safe, but you may understand my overcaution ever since we all took some “safe” drugs (FQ, NSAIDs) that screwed us.
Thanks
Tess
10 years ago
I lost sensation inside the body. My intestines stopped letting and moved slowly. I got cramps in the body that was horribly painful. I still do not know when I need to pee and have lost the ability to feel pain such as headache, menstrual cramps, stomach pain, etc.. I have had twitching inside the body and suffers from takkykardi. I am very depressed and scared that I’ll get cramps again. stopped breastfeeding in conjunction with that I got cortisone and ciprofloxacin. have always suspected that this was happening because of the hormonal transition. there are more who had experienced seizures or unpleasant sensations inside the body ?? please write in this case. feel so alone and no doctor wants to talk about what happened.
Debs
10 years ago
Hi All,
In regards to giving ourselves as much chance of avoiding becoming refloxed in particular potential scenarios when we are unable to advocate for ourselves, I have some suggestions
Purchase some sort of medical ID , Laurens Hope is a wonderful site I recommend checking it out. it has some very beautiful jewellery, in fact cool ID for everyone, it even does tags for pets , as of course they get floxed too. ( see floxiepets ) Shadow my cats story is there.
If you have a bracelet , I suggest wearing it on your LEFT wrist , as this is where they go first to check your pulse , & therefore the quicker they will come across it.
On this ID , list at the top ( depending how much room you have / how many other allergies) something like severe allergy to ALL fluoroquinolone antibiotics & /or if there is room I suggest listing them by NAME , all too often idiot Drs do not have a clue i.e. that Cipro & Levaquin are both in the same class for example, and many people have been floxed again this way. If there is room underneath, I would suggest maybe also listing NSAIDS & steroids , you can argue the toss re this one, once you have regained consciousness, by doing this it gives you the best chance of avoiding them in the meantime
Carry a wallet card at ALL times, with the same information , & you can put any other allergies on there there too, I ALSO have a list both by my front door, & beside my bed.
If you are going into hospital for any elective procedures I suggest writing it on your body in permanent marker pen it is THAT important !, remember that FQs are often given as a preventative BEFORE some operations, & they WILL NOT tell you unless you ask. get it in writing if you can, confirmation that they will NOT be administering FQs , ( & get a copy of that operation report ) Same goes for the IV they have just attached to your arm, what exactly is in that IV ? ! they will not ell you unless you ask . !
Remember, that ALL routes of FQ administration can cause EXACTLY the same damage. this goes for Oral , IV Eye/ Eardrops. They have also been known to use FQ soaked pads to pack wounds internally, ( pledglets ), & we have people who have been indeed been floxed that way. They are also ( & please note this does NOT, as far as I am aware apply to everyday catheters ) but DOES sometimes apply to LONG TERM ureteral catheters which are sometimes are used for weeks on end in hospital & long term outside hospital , known to sometimes depending on the situation, impregnate them first with FQs.
The latest mode of administration I have come across, is in eye infections such as bacterial Keratitis. I have found articles mentioning as potential treatment, the use of contact lenses impregnated with fluoroquinolones
Hope this helps.
Debs
10 years ago
Almost forgot , One other thing , ALWAYS when they ask what happens re being allergic to FQs , use the anaphylaxis, immediate allergic reaction card EVERY single time time , imo, it saves a hell of a lot of hassle , they will less often question it, & used often enough , sometimes eventually it will find its way into your medical records automatically , without them realising it.
KX
10 years ago
Has anyone had issues with topical hydrocortisone cream or triamcinolone? I have some bad rashes (from before floxing) that need steroid cream and I have been avoiding due to cipro but not sure if topical use is safe? Please help 🙁
If it helps I was floxed in Aug and just when I thought my pain was a little better it came back with a vengeance!
Mark
10 years ago
Anyone here used Nasivin or other nasal sprays against congestion?
Problems?
Thanks,
Mark
Daniela
10 years ago
KX and Mark, please look into alternatives! For rashes, cook up some oatmeal or open an aloe leaf, apple cider vinegar (try it). For the nose, salt water wash. For both of you, check food allergies and look into what you eat. For congestion, no dairy. For rash, could be milk, eggs, soy, nuts, fish, shellfish.
Thanks for your comments! I do not have Facebook, unfortunately. The doctors have never met anyone with my symptoms. wondering if there are any more in the world that has lost touch inside the body. seizure I ficj was horrific. I was awake the whole time. it felt like I did not get air and pains in the body were horrific. as if I was about to go broke. got Valium twice and nothing helped. felt since the tendencies of these seizures in two months and nasty jerks and vibrations in the body. these have disappeared since two months. I am slowly getting better. have more energy and are not as depressed anymore. have recovered parts of touch. does that mean that the nervous system heals? has just gotten better and better. read in this blog that the myelin is destroyed by cipro. does that mean that you will get MS? by Ms. destroyed myelin. uch I’m so afraid of what damage the body received by this drug.
Tess
10 years ago
I’m from Sweden and write on Google Translate because the text becomes a little weird sometimes. is not so good in English.
Tess
10 years ago
sorry for all the posts. is there anyone here who knows little about Cephalosporin? my symptoms started when I got antibiotics Cefotaxime containing this substance. I had at the time of severe abdominal pain and abdominal really numb after only two doses. Did this drug for about 5 days. Then I went over to ciprofloxacin and flagyl. that’s when I lost all feeling inside your body. after a few days with cipro I ended up in the terrible convulsions I wrote about earlier. still wanted doctors do not put out cipron. finally after pressure from my family, they put it out. but after a few days they put it back in !!! then it was out completely. totally insane.
Tess
10 years ago
Hi Michael! Thanks for your post! So horrible what this medication may do to our bodies. When I was treated with Cefotaxime and Cipro changed all my blood. I had very strange abnormal values. I had cortisone injections in 3 weeks. I think I had magnesium deficiency, which apparently is not good in conjunction with cipro. Think also that you I had bad with electrolytes. Now I have good blood values back even good electrolytes. You who seem well-informed about this with antibiotics. Do you have any idea why I reacted with CNS disorder before I got when I got Cipro cephalosporin? The medicine is supposed to have no effect on the CNS. nice that you have recovered from this. but do you have any left? I did not expect to get back my touch completely.
Tess
10 years ago
So what I mean is: if you have any idea why my problems from CNS started already when I got cephalosporin. I was numb and felt strange all over. But it was when I took ciprofloxacin as it got really bad. Heard a woman on youtube saying that she did not feel like a human being but as a chemical reaction. exactly how I feel. often say that I do not feel like a man anymore. Apparently this is also a side effect.
Hi All,
Just a quick reminder in regards to seeking information, in relation to The flox report
For anyone who decides to seek out THE FLOX REPORT for information as mentioned above, in particularly in respect to seeking out timelines for improvement / recovery in their floxing, Firstly, It is important, in fact IMO, it is IMPERATIVE to read the introduction first, BEFORE anything else. This is because it tells you exactly how the report should be interpreted. If you skip the introduction It can be, & in fact often IS COMPLETELY misinterpreted, it causes many people, particularly if recently floxed, & often not yet having done much research of their own, to often become terrified that they might never get to a place where they feel they have recovered. This is just NOT the case. In regards to interpretation of the report, please be aware that in respect of potential timelines of improvement / potential recovery, It is important to realise that it is just NOT POSSIBLE to calculate this, in ANY way, shape or form, this goes for EVERY aspect of floxing & also for every aspect of any subsequent floxing a person might receive.
This is because a persons individual floxing is completely UNIQUE to them.
The Flox Report is indeed an invaluable resource, & IMO, is one of the most comprehensive, sources of information. It can save you erratic searches for answers when first floxed, & can also help overcome the disorientation we often feel, saving literally hours trawling the web, It gives a very good general idea indeed of THE floxing experience, It is IMO, very useful when it comes to the understanding of the mechanism of damage to the the connective tissue, also the / joint bones etc, the current report focusing mainly towards the more severe side of the spectrum, floxings experienced by those of an athletic persuasion, & so is particularly focused on all areas relevant to physical & athletic performance. However it should NEVER be used as the definitive guide for information.
Always read The Flox report with a critical detached attitude, I suggest caution myself in looking at it too early on especially, If / when you are feeling rather vulnerable. Always keep in mind the fact that The Flox report was written more than a few years now the last edition being in 2007, & we are now more knowledgable, Things have moved on, & therefore some of the information in it is not now not so accurate This is so VERY important to keep in mind, the information must not be interpreted literally, The Flox Reort is NOT a manual for those intoxicated by FQs ,& if interpreted wrongly, it can be overwhelming, frustrating, frightening. So for anyone who does decide to seek it out . PLEASE do NOT skip that Vitally important introduction .
yea I read it and it scared the hell out of me…. I take it im not a severe case as I wasn’t bed bound straight off the bat ..my reaction started 3 weeks after the last dose and have had about 25 different symptoms come and go………….still scared that I may go back to they gym and tear something as sometimes my muscles ache …..im 28 and took 12 500 cipro
I had a local anaesthetic in my face today, and am now feeling much worse. Has anyone else reacted badly to a local, and did it get better again?
KEFIR : WHERE to buy?
http://articles.mercola.com/sites/articles/archive/2012/10/20/fluoroquinolones-side-effects.aspx
“….What finally sorted me out was kefir . In two weeks all the problems had gone….”
Who knows about “kefir grains”, I mean, Where can we get them ?
Thanks.
As we know every flox is different, but I wish try this.
Its nice you all have each other to talk to. Some may have been gotten their side effect and some may not have. Alot of other people have the same systoms and blame it on the Flu Shot. I myself do not like playing Doctor.
What can you do in advance of any potential hospital experience? You can say, No fluoroquinolones, but it’s more than that. I was refloxed by dental anesthesia.
It’s really the whole medical model. I was just reading the German anti-Bayer site and I thought, Why do we consider this nazi based modern medicine of pills and injections and magic bullets better than tens of thousands of years of medical experience?
Back to my original question, how can you stop them if you are ever brought into hospital in case of an accident, for example?
Grapefruit seeds extract
Hi
I bought glucosamine lotion, and it’s ingredients contains Grapefruit seed extract.
Is it safe to us ?
I know we should avoid eating grapefruit, but it’s seed in lotion is OK ?
http://ca.evitamins.com/glucosamine-msm-arnica-now-34358?utm_source=google&utm_medium=google_shopping_canada&utm_campaign=google_shopping_japan&gclid=Cj0KEQjw_IKiBRD7rPqut_OZ4qgBEiQASm4GAh7QMuaQ1ccY9FASbH6-6F4llfFls-J2dkRUmXwZPHUaAgP38P8HAQ#.VEDO3opHbCR
Ingredients: De-ionized Water, Aloe Vera Leaf Juice, MSM (Methylsulphonylmethane), Glucosamine Sulfate Potassium Complex, Emulsifying Wax, Arnica spp. Flower Tincture, Vegetable Glycerin, Sweet Almond Oil, Caprylic/Capric Triglyceride, Safflower Oil, Cetyl Alcohol, Stearic Acid (vegetable source), Meadowfoam Seed Oil, Phospholipids, Ceteareth-20, Natural Vitamin E (d-alpha tocopheryl acetate), Grapefruit Seed Extract, Green Tea Extract, Cedar Bark Extract and Xanthan Gum.
Prolotherapy
Hi guys
Sorry bother you guys with questions in a row..
I have not tried prolotherapy yet. Anyone of you tried it ? And is it safe ?
Prolotherapy should be very safe, but you may understand my overcaution ever since we all took some “safe” drugs (FQ, NSAIDs) that screwed us.
Thanks
I lost sensation inside the body. My intestines stopped letting and moved slowly. I got cramps in the body that was horribly painful. I still do not know when I need to pee and have lost the ability to feel pain such as headache, menstrual cramps, stomach pain, etc.. I have had twitching inside the body and suffers from takkykardi. I am very depressed and scared that I’ll get cramps again. stopped breastfeeding in conjunction with that I got cortisone and ciprofloxacin. have always suspected that this was happening because of the hormonal transition. there are more who had experienced seizures or unpleasant sensations inside the body ?? please write in this case. feel so alone and no doctor wants to talk about what happened.
Hi All,
In regards to giving ourselves as much chance of avoiding becoming refloxed in particular potential scenarios when we are unable to advocate for ourselves, I have some suggestions
Purchase some sort of medical ID , Laurens Hope is a wonderful site I recommend checking it out. it has some very beautiful jewellery, in fact cool ID for everyone, it even does tags for pets , as of course they get floxed too. ( see floxiepets ) Shadow my cats story is there.
If you have a bracelet , I suggest wearing it on your LEFT wrist , as this is where they go first to check your pulse , & therefore the quicker they will come across it.
On this ID , list at the top ( depending how much room you have / how many other allergies) something like severe allergy to ALL fluoroquinolone antibiotics & /or if there is room I suggest listing them by NAME , all too often idiot Drs do not have a clue i.e. that Cipro & Levaquin are both in the same class for example, and many people have been floxed again this way. If there is room underneath, I would suggest maybe also listing NSAIDS & steroids , you can argue the toss re this one, once you have regained consciousness, by doing this it gives you the best chance of avoiding them in the meantime
Carry a wallet card at ALL times, with the same information , & you can put any other allergies on there there too, I ALSO have a list both by my front door, & beside my bed.
If you are going into hospital for any elective procedures I suggest writing it on your body in permanent marker pen it is THAT important !, remember that FQs are often given as a preventative BEFORE some operations, & they WILL NOT tell you unless you ask. get it in writing if you can, confirmation that they will NOT be administering FQs , ( & get a copy of that operation report ) Same goes for the IV they have just attached to your arm, what exactly is in that IV ? ! they will not ell you unless you ask . !
Remember, that ALL routes of FQ administration can cause EXACTLY the same damage. this goes for Oral , IV Eye/ Eardrops. They have also been known to use FQ soaked pads to pack wounds internally, ( pledglets ), & we have people who have been indeed been floxed that way. They are also ( & please note this does NOT, as far as I am aware apply to everyday catheters ) but DOES sometimes apply to LONG TERM ureteral catheters which are sometimes are used for weeks on end in hospital & long term outside hospital , known to sometimes depending on the situation, impregnate them first with FQs.
The latest mode of administration I have come across, is in eye infections such as bacterial Keratitis. I have found articles mentioning as potential treatment, the use of contact lenses impregnated with fluoroquinolones
Hope this helps.
Almost forgot , One other thing , ALWAYS when they ask what happens re being allergic to FQs , use the anaphylaxis, immediate allergic reaction card EVERY single time time , imo, it saves a hell of a lot of hassle , they will less often question it, & used often enough , sometimes eventually it will find its way into your medical records automatically , without them realising it.
Has anyone had issues with topical hydrocortisone cream or triamcinolone? I have some bad rashes (from before floxing) that need steroid cream and I have been avoiding due to cipro but not sure if topical use is safe? Please help 🙁
If it helps I was floxed in Aug and just when I thought my pain was a little better it came back with a vengeance!
Anyone here used Nasivin or other nasal sprays against congestion?
Problems?
Thanks,
Mark
KX and Mark, please look into alternatives! For rashes, cook up some oatmeal or open an aloe leaf, apple cider vinegar (try it). For the nose, salt water wash. For both of you, check food allergies and look into what you eat. For congestion, no dairy. For rash, could be milk, eggs, soy, nuts, fish, shellfish.
Here is an article to read.
http://www.drweil.com/drw/u/QAA401136/Antibiotics-and-Arsenic-in-Chickens.html
Thanks for your comments! I do not have Facebook, unfortunately. The doctors have never met anyone with my symptoms. wondering if there are any more in the world that has lost touch inside the body. seizure I ficj was horrific. I was awake the whole time. it felt like I did not get air and pains in the body were horrific. as if I was about to go broke. got Valium twice and nothing helped. felt since the tendencies of these seizures in two months and nasty jerks and vibrations in the body. these have disappeared since two months. I am slowly getting better. have more energy and are not as depressed anymore. have recovered parts of touch. does that mean that the nervous system heals? has just gotten better and better. read in this blog that the myelin is destroyed by cipro. does that mean that you will get MS? by Ms. destroyed myelin. uch I’m so afraid of what damage the body received by this drug.
I’m from Sweden and write on Google Translate because the text becomes a little weird sometimes. is not so good in English.
sorry for all the posts. is there anyone here who knows little about Cephalosporin? my symptoms started when I got antibiotics Cefotaxime containing this substance. I had at the time of severe abdominal pain and abdominal really numb after only two doses. Did this drug for about 5 days. Then I went over to ciprofloxacin and flagyl. that’s when I lost all feeling inside your body. after a few days with cipro I ended up in the terrible convulsions I wrote about earlier. still wanted doctors do not put out cipron. finally after pressure from my family, they put it out. but after a few days they put it back in !!! then it was out completely. totally insane.
Hi Michael! Thanks for your post! So horrible what this medication may do to our bodies. When I was treated with Cefotaxime and Cipro changed all my blood. I had very strange abnormal values. I had cortisone injections in 3 weeks. I think I had magnesium deficiency, which apparently is not good in conjunction with cipro. Think also that you I had bad with electrolytes. Now I have good blood values back even good electrolytes. You who seem well-informed about this with antibiotics. Do you have any idea why I reacted with CNS disorder before I got when I got Cipro cephalosporin? The medicine is supposed to have no effect on the CNS. nice that you have recovered from this. but do you have any left? I did not expect to get back my touch completely.
So what I mean is: if you have any idea why my problems from CNS started already when I got cephalosporin. I was numb and felt strange all over. But it was when I took ciprofloxacin as it got really bad. Heard a woman on youtube saying that she did not feel like a human being but as a chemical reaction. exactly how I feel. often say that I do not feel like a man anymore. Apparently this is also a side effect.