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Melanie Kemp
10 years ago
Hi guys
things are so bad now.
Has anybody ever got to the point of wanting to give up.
Im about there.
Sorry.Just about as low as I can be now..
Tess
10 years ago
Hi Daniella! sweet thanks you for your post. I have also had a lot of mental disorders with anxiety and even suicidal thoughts daily. I could not sleep at all for several months after I got the cipro I slept 2 minutes and awoke with a start. it has gotten better now! I have Crohn’s disease so I have eaten high doses of cortisone since April when I became cipro poisoned. the body has not had much chance to recover. for six weeks since surgery I remove the diseased part of the bowel and now eats no medications. takes magnesium and B12. B12 will help to repair the nervous system. how are you now? You still suffer the side effects. would love to follow each other and be healthy together. Hugs
daniela
10 years ago
For me, the intense anxiety and insomnia lasted two years. And then it was GONE. I think if you are careful not to ingest other pharmaceuticals, maybe you will be better sooner. I was refloxed after two years, so I had another two years, but it went away again. Now I am at five years. I have problems with achilles tendons and arthritis in my fingers, as well as vertigo. But I do not have the anxiety or insomnia anymore.
I think if you know it is artificial, it is not your fault but caused by cipro, then it is easier to accept. I didn’t know about cipro until a few months ago. Try to stay calm, watch nice videos…don’t take the medications that other people here are warning about. When the anxiety and insomnia are gone, you will not be depressed or suicidal anymore. It is not you, it is the Cipro !!
Try this exercise: Think of a flower, kitten, puppy, baby, beach, mountain, whatever makes you smile both outside and inside. Can you feel how your body is changed when you think of that image? This is now your tool. Remember it whenever you feel bad. It works.
Everything is very open with a clear description of the challenges.
It was really informative. Your website is useful.
Thanks for sharing!
Tess
10 years ago
I think a lot about why my symptoms started with the antibiotic cefotaxime. ‘ve read in some American sides that even this can have effects on the CNS, although it is rare. maybe I’m more sensitive in general? the question is just what antibiotics you should take if you really must. When I had surgery 6 weeks ago, I received sulfa drugs associated with opetationen. 3 tablets. Bactrim and Clindamycin. body seemed to cope with this.
Tess
10 years ago
Daniella. Now I have your email and you have mine 🙂
Andrew
10 years ago
So this is my story:
I have been living with Transverse Myelitis for about 14 years, so tingling and numbness in the feet and legs are not new to me. Neither is the feeling that there is a band around your mid-section. That said over the years I have found that if I take care of myself, reduce my stress I can get these symptoms down to almost nothing such that I can play hoops, jog, basically do everything I did before being diagnosed. Just a little less gracefully, but I have also aged over those 13 years. About 2 years ago I had a very bad infection from an infected cyst at the base of my tailbone. It was abscessed and the culture revealed mersa. Of course I took antibiotics etc while the wound healed. It took about 8 weeks. During the course of this the surgeon found an anal fistula and told me it need to be operated on to avoid infection. Needles to say just being a few months removed from this other surgery I waited and he agreed I could. In October of 2013 we decided it was time for the surgery, but we agreed I could wait until after the holidays. On around January 17th I had the surgery and was left with a wound that needed a seton to drain. Of course I was out under for all of this and then post surgery prescribed Tylenol. I then, while recovering lost a crown and had to have a tooth extracted, so I went through that and had to take the anesthesia, anti-biotics and more Tylenol. Last but not least my neuro wanted me to take a brain MRI as I had not had one in several years and even though I was doing okay, I had more pins and needles then normal. MRI came back normal and showed no plaques, so that was good news. I then developed some inflammation at the site of the wound and seton where the anal fistula was removed. I panicked and went to my surgeon who said he was a bit concerned because I had had the mersa, so he prescribed an anti-biotic – Cipro. I filled the prescription and took two pills that day. That night I checked to see if there was anything I shouldn’t do like drink a glass of wine or worry about taking my baclofen which I have been on for 13 years. I then read about all the side-effects, especially for people with neuro conditions. I felt okay though and took another does the next morning. That night I took my third dose and had hallucinations and woke up sick as a dog. Called the surgeon and didn’t hear back until later that night. He said I should take one more dose and then stop. I remember thinking – don’t swallow that pill, but I did and wanted to throw it up as soon as I did. But I was terrified of the mersa as it made me so sick. The next day I went to sit on the toilet and my back locked-up to the point I couldn’t stand and literally crawled into bed. Saw my kinseologist a few days later and he said I had sprained my pelvis – and I thought WTF? The I read that a sprain is basically all about the tendons and started to wonder if I had been floxed. The next week I had unbelievable pain in the Achilles, then a few months later dislocated my shoulder carrying a box up the stairs. Then the tinnitus hit.
I am about 7 months out and taking a lot of magnesium, using magnesium oil, Epson salt baths, ubiquitol, a lot of B vitamins, d vitamins, evening primrose, an adrenal supplement and an ant-inflammatory supplement. This summer I went to the shore a bunch and swam and body-surfed etc. This past week I began going to the park and shooting hoops. I am in pain everyday, but I work through it and convince myself I will get better and won’t hurt anything as long as I am smart about it. I also see my kinseologist weekly and he is always positive and pushes me to heal.
This site has been a great resource for me and I hope to continue my healing journey and join the ranks of folks whose lives return to normal. I struggle everyday and now have terrible tinnitus, a gassy stomach and fluttering in the chest and anxiety. I am afraid to get my dental work finished, so I have a missing tooth in the back. But I don’t want to mess with it now as I don’t want to have a set-back. So I have a few questions:
Anyone have a good or bad experience with Cats Claw? I think I have something going on in my sinuses and a rumbly stomach. They say Acid Reflux can cause cold like symptoms, like dry mouth, coughing even sneezing. I would like to try Cats Claw again as it helped me pre-floxing, but I am always hesitant about what I put in my body. Also what is this rifi machine?
Keep the healing going everyone – this stuff won’t beat us!
rene
10 years ago
Attention for all regarding MEDICATIONS after BEING FLOXED
Please look at link listed below, which will give a list of which medications “inhibit” or “induce” various Cytochrome Systems. The list of drugs is obscene as I seriously doubt in balance they have done little to actually help anyone but line the pockets of the manufacturers.
The term CYTOCHROME P-450 refers to a group of enzymes with are located on the endoplasmic reticulum. These enzymes are of particular importance when studying drug bio transformation and drug metabolism.
Drug metabolism by the P-450 system is a new and secondary role for these enzyme systems.
The primary role for the P450 system seems to be one of metabolism and detoxification of endogenous compounds after they have been taken in by mouth in the process of eating. This accounts for the high concentrations of these enzymes located in the liver and small intestine.
The P-450 system can be altered by a number of mechanisms including inhibition and induction and can vary from person to person.
There are over 30 human P-450 isoenzyme systems that have been identified to date. The major ones responsible for drug metabolism are the CYP1A2, CYP2A6, CYP2B6, CYP2C8, CYP2C9, CYP2C18, CYP2C19, CYP2D6, CYP2E1, CYP3A4 and the CYP3A5-7.
Have you guys had any issues with your stool? Since I was floxed my stool has changed in shape and color and has not improved yet. Have you guys noticed any change in your stool after floxing? I am still thinking of other possibilities of parasites etc. Thinking of stool test soon..
Andrew
10 years ago
Anyone have any opinion on Cat’s Claw? I used it years ago before being floxed, but am trying to be very cautious about things I put in my body. Any feedback would be much appreciated.
Tess
10 years ago
my stool was pitch black after I was floxed. This lasted for a few months. Now stools are normal. However, my snot (pardon !!!) and my snot fooling no color. Everything is just white / translucent. I have lost my inner reflections too. I no longer hiccups and it took 5 months before I started to sneeze after I was floxed. I have allergies and sneeze is usually several times a day.
Carrie
10 years ago
I am in so much pain today. My lady parts, my legs, my glutes, they all burn so badly. I feel like I am bruised all over my legs down to my feet. I can push in my skin and it hurts. It hurts to have pants on even. Nothing is lowering the pain. I am sure that my anxiety level has increased due to the pain and also worrying that something serious is wrong. My last MRI showed that everything is fine. Gosh, will the pain ever subside?
Carrie
10 years ago
My acupuncturist is suggesting that I try a liver cleanse / detox before. He stated that he felt it would help me greatly. Has anyone done a liver cleanse/detox?
melanie kemp
10 years ago
So sorry Carrie.
I’m having a lot of pain today to…burning all over..head is foggy.
I told my mum I just want to curl up in a ball and disappear.
hugs
melanie kemp
10 years ago
Thanks Jimmy. Problem with me is that I’m terrified of taking anything because I’m so sensitive to everything and most things make me feel worse. Even when I went through this in 2010 I did it without taking anything. Well mostly because I didn’t know about floxing so wouldn’t have had any idea what to do anyways. I cant even take OTC things without reaction. Its a catch 22. Ive lost 45 pounds at this point because my stomach is so messed up and I really cant afford to lose that much. I look dreadful at this point AND STILL THINK I’LL LOSE MORE. . I know I should maybe try things but it really scares me to do so. I cant even take magnesium.
I/m so glad youre doing well Jimmy. I still have hope…but sometimes it gets the better of me and I goo to a very dark place.
Id had a few cycles over the years.. but they would last maybe a few hours…just kinda felt this feeling in my head that was all to familiar.. This time it didn’t go away and has progressed to a fall blown floxing.. with added symptoms I didn’t have the first time around.
Tess
10 years ago
Unlike you here, I have lost the ability to feel pain. I cut myself on a knife it hurts but it does not sting afterwards. When I chop onions burned it in my eyes. I never have headaches or menstrual cramps. Surgically removed 10 centimeters small intestine and after the surgery, I needed no pain relief. The others hung on the morphine pump, but I felt nothing. This is very uncomfortable for pain is the body’s defenses. I never feel pee and is fully anesthetized in the genital area. Do not understand what happened to me. The nervous system has really goes bananas with me. Twitching inside the body all I vibrated though it was not visible. Everyone thinks my problems are psychological, but I felt perfectly until I got Cefotaxime and Cipro. I seem to be the only one in the world who experience this with sensory loss inside my body.
melanie kemp
10 years ago
Hi Tess
I’m so sorry and I totally understand when you say Doctors think its all in you’re head. Ive gotten that to so I no longer go to Doctors. Seems like we are on our own to sort this out.
I did have a time in 2010 to where I couldn’t feel my lungs so that made me have great difficulty with breathing. It lasted several months and was just horrible so I do understand.
Hugs
melanie kemp
10 years ago
Well today has been strange. This morning I awoke to electrical currents running through my body from head to toe. All I could do was curl up in the fetal position and rock back and forth and wait for it to pass…
Agonizing… took about 2 hours to lighten up. Finally was able to get out of bed at 2.30 and get a shower and then feel exhausted in doing so but thought id better eat something. All I could manage was grapes and then sat out
side for 20 minutes to get some sun and vitamin D. Came in and ate a banana and some vegetables.. yea!! great combination..lol.
My stomach seems to have come back on line today which is great as constipation has plagued me for 5 months..only going maybe every 4-5 days…Today has been way different so here’s hoping its finally recovering…TMI I know..lol. Funny the things that make us happy going through this nightmare. I’m so much better in mind than I was a few days ago..hopefully it will stick around…save the few hours this morning that I felt like I was hooked up to a power grid and suicidal (had the same in 2010 and ended up in the ER sobbing) And as you all may have guessed I got nowhere and they told me It was essentially in my head…ummmm yea!!!!
So still have severe symptoms but I,m happy for now that my GI tract seems to be doing ok today…fingers crossed that continues…baby steps.Ive been waiting for that probiotic to kick in and maybe it finally did,I was so happy I even text my Mum in England and told her…lol
Well my wife spent a few hours at the DHS office and I have a new case worker who is really nice. He even listed Cipro as the cause of my disability! and it is listed with my SSI case worker as well. So it’s on the books people. It is a massive waiting game for SSI without the Jeopardy theme music! I found out from my DHS case worker I did not qualify for state aid. To bad. I just want to get better or at least walk with a gentleman’s cane.:)
Instead of rolling around like professor Xavier! with out the cool powers.
Tomorrow I head in to see my Rheumatologist her patient paperwork asks specifically if you have ever taken Cipro or Levaquin!
Hi guys
things are so bad now.
Has anybody ever got to the point of wanting to give up.
Im about there.
Sorry.Just about as low as I can be now..
Hi Daniella! sweet thanks you for your post. I have also had a lot of mental disorders with anxiety and even suicidal thoughts daily. I could not sleep at all for several months after I got the cipro I slept 2 minutes and awoke with a start. it has gotten better now! I have Crohn’s disease so I have eaten high doses of cortisone since April when I became cipro poisoned. the body has not had much chance to recover. for six weeks since surgery I remove the diseased part of the bowel and now eats no medications. takes magnesium and B12. B12 will help to repair the nervous system. how are you now? You still suffer the side effects. would love to follow each other and be healthy together. Hugs
For me, the intense anxiety and insomnia lasted two years. And then it was GONE. I think if you are careful not to ingest other pharmaceuticals, maybe you will be better sooner. I was refloxed after two years, so I had another two years, but it went away again. Now I am at five years. I have problems with achilles tendons and arthritis in my fingers, as well as vertigo. But I do not have the anxiety or insomnia anymore.
I think if you know it is artificial, it is not your fault but caused by cipro, then it is easier to accept. I didn’t know about cipro until a few months ago. Try to stay calm, watch nice videos…don’t take the medications that other people here are warning about. When the anxiety and insomnia are gone, you will not be depressed or suicidal anymore. It is not you, it is the Cipro !!
Try this exercise: Think of a flower, kitten, puppy, baby, beach, mountain, whatever makes you smile both outside and inside. Can you feel how your body is changed when you think of that image? This is now your tool. Remember it whenever you feel bad. It works.
Everything is very open with a clear description of the challenges.
It was really informative. Your website is useful.
Thanks for sharing!
I think a lot about why my symptoms started with the antibiotic cefotaxime. ‘ve read in some American sides that even this can have effects on the CNS, although it is rare. maybe I’m more sensitive in general? the question is just what antibiotics you should take if you really must. When I had surgery 6 weeks ago, I received sulfa drugs associated with opetationen. 3 tablets. Bactrim and Clindamycin. body seemed to cope with this.
Daniella. Now I have your email and you have mine 🙂
So this is my story:
I have been living with Transverse Myelitis for about 14 years, so tingling and numbness in the feet and legs are not new to me. Neither is the feeling that there is a band around your mid-section. That said over the years I have found that if I take care of myself, reduce my stress I can get these symptoms down to almost nothing such that I can play hoops, jog, basically do everything I did before being diagnosed. Just a little less gracefully, but I have also aged over those 13 years. About 2 years ago I had a very bad infection from an infected cyst at the base of my tailbone. It was abscessed and the culture revealed mersa. Of course I took antibiotics etc while the wound healed. It took about 8 weeks. During the course of this the surgeon found an anal fistula and told me it need to be operated on to avoid infection. Needles to say just being a few months removed from this other surgery I waited and he agreed I could. In October of 2013 we decided it was time for the surgery, but we agreed I could wait until after the holidays. On around January 17th I had the surgery and was left with a wound that needed a seton to drain. Of course I was out under for all of this and then post surgery prescribed Tylenol. I then, while recovering lost a crown and had to have a tooth extracted, so I went through that and had to take the anesthesia, anti-biotics and more Tylenol. Last but not least my neuro wanted me to take a brain MRI as I had not had one in several years and even though I was doing okay, I had more pins and needles then normal. MRI came back normal and showed no plaques, so that was good news. I then developed some inflammation at the site of the wound and seton where the anal fistula was removed. I panicked and went to my surgeon who said he was a bit concerned because I had had the mersa, so he prescribed an anti-biotic – Cipro. I filled the prescription and took two pills that day. That night I checked to see if there was anything I shouldn’t do like drink a glass of wine or worry about taking my baclofen which I have been on for 13 years. I then read about all the side-effects, especially for people with neuro conditions. I felt okay though and took another does the next morning. That night I took my third dose and had hallucinations and woke up sick as a dog. Called the surgeon and didn’t hear back until later that night. He said I should take one more dose and then stop. I remember thinking – don’t swallow that pill, but I did and wanted to throw it up as soon as I did. But I was terrified of the mersa as it made me so sick. The next day I went to sit on the toilet and my back locked-up to the point I couldn’t stand and literally crawled into bed. Saw my kinseologist a few days later and he said I had sprained my pelvis – and I thought WTF? The I read that a sprain is basically all about the tendons and started to wonder if I had been floxed. The next week I had unbelievable pain in the Achilles, then a few months later dislocated my shoulder carrying a box up the stairs. Then the tinnitus hit.
I am about 7 months out and taking a lot of magnesium, using magnesium oil, Epson salt baths, ubiquitol, a lot of B vitamins, d vitamins, evening primrose, an adrenal supplement and an ant-inflammatory supplement. This summer I went to the shore a bunch and swam and body-surfed etc. This past week I began going to the park and shooting hoops. I am in pain everyday, but I work through it and convince myself I will get better and won’t hurt anything as long as I am smart about it. I also see my kinseologist weekly and he is always positive and pushes me to heal.
This site has been a great resource for me and I hope to continue my healing journey and join the ranks of folks whose lives return to normal. I struggle everyday and now have terrible tinnitus, a gassy stomach and fluttering in the chest and anxiety. I am afraid to get my dental work finished, so I have a missing tooth in the back. But I don’t want to mess with it now as I don’t want to have a set-back. So I have a few questions:
Anyone have a good or bad experience with Cats Claw? I think I have something going on in my sinuses and a rumbly stomach. They say Acid Reflux can cause cold like symptoms, like dry mouth, coughing even sneezing. I would like to try Cats Claw again as it helped me pre-floxing, but I am always hesitant about what I put in my body. Also what is this rifi machine?
Keep the healing going everyone – this stuff won’t beat us!
Attention for all regarding MEDICATIONS after BEING FLOXED
Please look at link listed below, which will give a list of which medications “inhibit” or “induce” various Cytochrome Systems. The list of drugs is obscene as I seriously doubt in balance they have done little to actually help anyone but line the pockets of the manufacturers.
The term CYTOCHROME P-450 refers to a group of enzymes with are located on the endoplasmic reticulum. These enzymes are of particular importance when studying drug bio transformation and drug metabolism.
Drug metabolism by the P-450 system is a new and secondary role for these enzyme systems.
The primary role for the P450 system seems to be one of metabolism and detoxification of endogenous compounds after they have been taken in by mouth in the process of eating. This accounts for the high concentrations of these enzymes located in the liver and small intestine.
The P-450 system can be altered by a number of mechanisms including inhibition and induction and can vary from person to person.
There are over 30 human P-450 isoenzyme systems that have been identified to date. The major ones responsible for drug metabolism are the CYP1A2, CYP2A6, CYP2B6, CYP2C8, CYP2C9, CYP2C18, CYP2C19, CYP2D6, CYP2E1, CYP3A4 and the CYP3A5-7.
http://www.edhayes.com/CYP450-4.html
God Bless,
Rene
Lisa can you give Tess my email, thanks! 🙂
Have you guys had any issues with your stool? Since I was floxed my stool has changed in shape and color and has not improved yet. Have you guys noticed any change in your stool after floxing? I am still thinking of other possibilities of parasites etc. Thinking of stool test soon..
Anyone have any opinion on Cat’s Claw? I used it years ago before being floxed, but am trying to be very cautious about things I put in my body. Any feedback would be much appreciated.
my stool was pitch black after I was floxed. This lasted for a few months. Now stools are normal. However, my snot (pardon !!!) and my snot fooling no color. Everything is just white / translucent. I have lost my inner reflections too. I no longer hiccups and it took 5 months before I started to sneeze after I was floxed. I have allergies and sneeze is usually several times a day.
I am in so much pain today. My lady parts, my legs, my glutes, they all burn so badly. I feel like I am bruised all over my legs down to my feet. I can push in my skin and it hurts. It hurts to have pants on even. Nothing is lowering the pain. I am sure that my anxiety level has increased due to the pain and also worrying that something serious is wrong. My last MRI showed that everything is fine. Gosh, will the pain ever subside?
My acupuncturist is suggesting that I try a liver cleanse / detox before. He stated that he felt it would help me greatly. Has anyone done a liver cleanse/detox?
So sorry Carrie.
I’m having a lot of pain today to…burning all over..head is foggy.
I told my mum I just want to curl up in a ball and disappear.
hugs
Thanks Jimmy. Problem with me is that I’m terrified of taking anything because I’m so sensitive to everything and most things make me feel worse. Even when I went through this in 2010 I did it without taking anything. Well mostly because I didn’t know about floxing so wouldn’t have had any idea what to do anyways. I cant even take OTC things without reaction. Its a catch 22. Ive lost 45 pounds at this point because my stomach is so messed up and I really cant afford to lose that much. I look dreadful at this point AND STILL THINK I’LL LOSE MORE. . I know I should maybe try things but it really scares me to do so. I cant even take magnesium.
I/m so glad youre doing well Jimmy. I still have hope…but sometimes it gets the better of me and I goo to a very dark place.
Id had a few cycles over the years.. but they would last maybe a few hours…just kinda felt this feeling in my head that was all to familiar.. This time it didn’t go away and has progressed to a fall blown floxing.. with added symptoms I didn’t have the first time around.
Unlike you here, I have lost the ability to feel pain. I cut myself on a knife it hurts but it does not sting afterwards. When I chop onions burned it in my eyes. I never have headaches or menstrual cramps. Surgically removed 10 centimeters small intestine and after the surgery, I needed no pain relief. The others hung on the morphine pump, but I felt nothing. This is very uncomfortable for pain is the body’s defenses. I never feel pee and is fully anesthetized in the genital area. Do not understand what happened to me. The nervous system has really goes bananas with me. Twitching inside the body all I vibrated though it was not visible. Everyone thinks my problems are psychological, but I felt perfectly until I got Cefotaxime and Cipro. I seem to be the only one in the world who experience this with sensory loss inside my body.
Hi Tess
I’m so sorry and I totally understand when you say Doctors think its all in you’re head. Ive gotten that to so I no longer go to Doctors. Seems like we are on our own to sort this out.
I did have a time in 2010 to where I couldn’t feel my lungs so that made me have great difficulty with breathing. It lasted several months and was just horrible so I do understand.
Hugs
Well today has been strange. This morning I awoke to electrical currents running through my body from head to toe. All I could do was curl up in the fetal position and rock back and forth and wait for it to pass…
Agonizing… took about 2 hours to lighten up. Finally was able to get out of bed at 2.30 and get a shower and then feel exhausted in doing so but thought id better eat something. All I could manage was grapes and then sat out
side for 20 minutes to get some sun and vitamin D. Came in and ate a banana and some vegetables.. yea!! great combination..lol.
My stomach seems to have come back on line today which is great as constipation has plagued me for 5 months..only going maybe every 4-5 days…Today has been way different so here’s hoping its finally recovering…TMI I know..lol. Funny the things that make us happy going through this nightmare. I’m so much better in mind than I was a few days ago..hopefully it will stick around…save the few hours this morning that I felt like I was hooked up to a power grid and suicidal (had the same in 2010 and ended up in the ER sobbing) And as you all may have guessed I got nowhere and they told me It was essentially in my head…ummmm yea!!!!
So still have severe symptoms but I,m happy for now that my GI tract seems to be doing ok today…fingers crossed that continues…baby steps.Ive been waiting for that probiotic to kick in and maybe it finally did,I was so happy I even text my Mum in England and told her…lol
Well my wife spent a few hours at the DHS office and I have a new case worker who is really nice. He even listed Cipro as the cause of my disability! and it is listed with my SSI case worker as well. So it’s on the books people. It is a massive waiting game for SSI without the Jeopardy theme music! I found out from my DHS case worker I did not qualify for state aid. To bad. I just want to get better or at least walk with a gentleman’s cane.:)
Instead of rolling around like professor Xavier! with out the cool powers.
Tomorrow I head in to see my Rheumatologist her patient paperwork asks specifically if you have ever taken Cipro or Levaquin!
Well gang have a good night.