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Several groups of antibiotics and other meds are ototoxic, not only quinolones. I’ve lost alot of hearing, too, but it’s partly because my middle ear is always more or less inflamed; the other and main cause of ototoxicity is damage to the vestibular sensory hair cells; with cochleotoxicity, hearing loss or the start or worsening of tinnitus (ringing in the ears) can occur through damage to the cochlea (the hearing apparatus) or the cochlear branch of the vestibulo-cochlear nerve. Vestibular ototoxicity or vestibulotoxicity are terms used to describe ototoxicity that affects the balance organs or the vestibular branch of the vestibulo-cochlear nerve. Most of this ototoxicity is reversible, though some permanent hearing loss may ensue.
Of course, ototoxicty can also cause loss of balance.
Jake
9 years ago
I honestly think stem cells are going to be what fixes a lot of these cases, probably isn’t far off… Just stay strong for now and use the law of attraction.
Jake
9 years ago
I hear catching this problem the earlier the better.. I started treating about two weeks after my first symptoms, would you consider this early? Or did I screw myself not starting earlier.
Jake
9 years ago
Catherine .. I’m sorry to hear that, same happened to me for Bartonella treatment.. like lisa said.. double whammy… We’ll get through it though, I’m going treat herbal now.. done with antibiotics, how long did it take you to find out you were floxed? I figured it out pretty early thank god.
Jake
9 years ago
400 tablets!??? Dear lord… That’s way too much for anybody. I lucky stopped at around 14 pills.. I took cipro first and was fine.. then I took levaquin for 5 days and bam felt like a bomb went off in me.. I can still walk around which is weird, but I have neurapothy symptoms only it seems and some weird vision stuff, I stopped immedietly when I woke up and felt my calfs hurting and some tingling.. Hopefully I’ll make a full recovery… That’s terrible for us who had enough going on with lyme to only get floxed… If I was warned of these dangers I would not have taken these pills, I would have just taken rifampin or bactrim… These doctors.. Keep a good attitude, I have a lot of support from my parents who thankfully do financially very well, so I’m able to guinny pig myself through a lot, I’ll let you guys know if anything works for me.. I have a ton of stuff I’m trying right now. I get the feeling this medication is a lot like lyme to where it gets logged deep into your body and needs to come out.. Everytime I detox or take vitamins or antiditoxiants my legs start burning like crazy, which makes me think that it’s somehow stuck in your body, a lot like lyme is.. I’m forcing myself to walk around my neighborhood and all of these things.
Jake
9 years ago
can anyone provide with me with a link to find a doctor for Ozone and H2O2 and Glutathione? Are there any other good IVs to get? ( I have money to spend so I’m willing to try anything )
– I live in South Florida
Jake
9 years ago
Thanks guys, I have 3 tick infections so I have to take supplements regardless.. I’ve been sick so long from the lyme that at this point I’m willing to take chances.. I know these things can be negative, but I refuse to have that attitude as I believe the law of attraction is always working. If you believe you will continue to be sick, that’s what the universe will grant you in the long run.
– Thanks! 🙂
melanie kemp
9 years ago
Hi Jake
Ive often wondered about law of attraction. Do you really think no matter how sick you are you can overcome it with a positive attitude. I’m extremely sick. I did recover from my floxing in 2010 but I,m having an extremely bad relapse..in some ways worse than the original. I’m into month 6 and have days of utterly losing hope as I don’t see any improvement…well… very very little. I had to give up work and mostly stay at home and many days in bed. I have days where I’m able to force myself up and get mobile but it will then be followed by crashing for days. Much different to my recovery in 2010. Back then I was bad bad bad and slowly got better…no flip flopping back and forth.
So …is it really attitude.. is it really staying positive.
Hot news!
I’ve been hoiding, literally, scared to go outside, open the fronty door or even open the blinds at the front of the house, so traumatised was I by the three spiteful women whpo’d been to the police station to complain that they could hear my radio at night, then gpt me out of bed early one morning to complain that they’d been disturnbed by hearing me crying (if you’ve ever been in a Sevillian old-fashuoned puebñlo, you’ll know that they’re the noisiest people in the world and i’m a littñle mouse by comparison) then the mad soup-lady’s attaxck and threats. But today I had to go out – I spied out the land, nipped out when no-one about, went as fast as posisble, head bowed, to where I had to go, jumoed out my skin and ran away when a neighbour out shopping said hallo, jumped even more and rushed sobbing into the house when another did, refused to open the door when they all came to see what was wrong.. ..eventually i let thnem in and they all cpmforted me, made me some lime-blossom tea ( a lovely herb for floxed people, too) and –
guess waht –
the poisoner has dementia! It’s happened in the last few eeks, quite suddenly and we know why, don’t we?
When I stopped ehr and gave her D-mannose, she’d already taken two Cipro; it seemed that she’d got away with only some tiredness and rather heavy legs, but now she’s been smitten, as I was smut, and I’m a very wicked woman because I don’t fele at all sorry for her.
My hands aren’t shaking as much now – I knew it was partly from shock and terror, but wasn’t pulling meself together to do anything about it.
This afternoon, I helped a litlle girl with aher homework. Children and animals and plants are very healing. (She gave me dictation and I got 10/10!)
Moppi the cat is snoring gently and I think i will, too.
melanie kemp
9 years ago
I had an almost normal hour tonight… an hour where I thought “if this is as good as it gets its ok” Now I’d like a much much much more “normal” but after the crap ive been through I’d take it. I was able to clean my kitchen. Go get plants from outside and bring them in or cover them up as its going to get pretty cold tonight.
More than ive been able to do in awhile. I hope I don’t crash.
Razors pain you;
Rivers are damp;
Acids stain you;
And drugs cause cramp;
Guns aren’t lawful;
Nooses give;
Gas smells awful;
You might as well live.
Dorothy Parker
LRB
9 years ago
I’m new here, I’m happy to read so many stories of success but still scared of my own situation. I was prescribed Levaquin 500mg for 10 days (only took 7) for a UTI because I am allergic to many other medications. The day I took the last pill I started to have a small amount of pain in my right ankle. Two days after last pill I started to have some minor cramping in my calf muscles, next day pain in both ankles and then by that evening I was feeling tingling on an off in my lower legs. It has now been 4 days and I’m still experiencing symptoms. Today my one hand started to feel tingling as well. I’m a “healthy” 34 mother of 2 young children. My daughters first birthday is this weekend. I’m so scared. I finally put a call into the urologist who prescribed the medication but I’m afraid it will come to nothing. I know no one can tell me it will all be OK and I am so scared it won’t be, that I am now looking at a life long problem. I’m heart broken.
Daniela
9 years ago
Heel pads — what to do? I feel like I am walking directly on the bone.
Lots of ripe bananas make me less spacey — potassium?
Michael Teeter
9 years ago
As promised here come the recipes!
I asked my Mom and she said share it on that Floxie site. So here it is.
Cool Rub Ointment for Pain. Or as my niece calls it Magic Cream.
10 drops of eucalyptus oil.
10 drops of peppermint oil.
6 drops of tee tree oil.
5-10 drops of soothanol-x2 (optional).
2 ounces of sweet almond oil.
1 ounce of grated bees wax (organic)
Melt beeswax and almond oil in a pan or bowl. (You can use a microwave)
Allow to cool. Add oils and blend. Pour into container with lid. (plastic or what I use is altoid tins)
My mom makes this stuff and sells it locally in Michigan. I use it and it is a god send specially at night when the knees and ankles and toes won’t stop hurting. I just rub this on them and I can go to sleep.
She said play with this recipe and make it your own. You can add any oils you want.
Michael Teeter
9 years ago
Another recipe. This one is for an essential oil massage oil for pain.
6 drops of lavender oil
6 drops of rosemary oil
6 drops of chamomile oil
4 ounces of a carrier oil (almond oil or avocado oil)
You can even use vegetable oil if you have to.
Michael Teeter
9 years ago
Massage Lotion or Oil for Tendinitis.
Made with a blend of essential oils.
2 ounces of vegetable oil.
6 drops of helichrysum
4 drops of marjoram
4 drops of birch
3 drops of chamomile
3 drops of lavander
3 drops of ginger
2 drops of juniper
Rub in the lotion or oil to affected area as part of your self-massage.
Michael Teeter
9 years ago
Floxie Salads
Magnesium Medley Salad
Fresh Purslane
green beans
spinach
and lettuce
Add poppy seed dressing
Tendon helper salad (natural silicon)
Cucumbers
parsley
string beans
cashews
turnips
and lettuce
olive oil dressing
Or mix it up. Great source of magnesium and natural silicon (helps tendon health)
And any other veggies you like. I always add carrots.
SM
9 years ago
It’s so hard to believe that I will actually get better. I’m sure other people feel the same way. But when you’re suffering and in pain like we are, it’s hard to envision a time that it won’t feel like that. My body feels damaged. It’s so difficult to imagine that there will be a time when it isn’t so damaged.
Brian
9 years ago
Hi all! OK bear with me here it’s kind of a long story, I’ll try to summarize. i’m generally a healthy person, rarely ever get sick, I’m a 28 year old male and I’m 6’6″ 240 lbs. On October 12th my fiance had to take me to an urgent care due to what ended up being bronchitis and pneumonia. I was given prednisone and an antibiotic I forget what it was called but you took 2 the first day then 1 a day for four more days. Anyways, I finished the medication and on October 29th (my birthday) I was at the doctor and was cleared of any and all wheezing. Not even 12 hours later I’m at home with my fiance and WHAM! projectile vomiting out of nowhere and all of a sudden it seemed as though my symptoms were back. The doctor suspected a bacterial infection and prescribed me Moxifloxacin. It took a few days of being on the medication until I started feeling strange, but it was all symptoms I had from bronchitis and pneumonia. Shortness of breathe, tingling extremities, heavy chest, no appetite at all. By the 7th day (it was a 10 day course) I woke up at 5 am and felt like I was having a heart attack. As soon as my doctors opened I called and they told me to immediately stop taking it. I have never had an adverse reaction to any other meds ever. So I stopped taking the Moxi on November 12th. now that my sickness is gone I can see these symptoms were side effects and not lingering sickness. I have strange stomach pressure with lots of gurgling (which I could expect from an antibiotic) but the symptoms that bother me are, an occasional shock like feeling in my upper stomach under ribs, it lasts for a split second then stops but will happen occasionally throughout the day, my hands and feet sweat constantly, feet and legs get cold randomly, I occasionally get tingling pain in random spots. I get crazy anxiety for no reason, I constantly check my pulse during these times and my pulse has been as high as 105, but my resting pulse has been around 80-85. I had over the course of a month lost 25 lbs. I could not eat, however my appetite has fully came back. And what finally made me realize it was from the Moxi, a blister in the back of my mouth by my wisdom teeth (I have never had a mouth blister in 28 years). I have experienced stiff neck and lower back pain (I am already a chronic pain sufferer from herniated discs in my lumbar spine). I have been reading horror stories about how this medications effects can be permanent and life threatening. I have been off the medication now for about a week and while my symptoms have not gotten worse, they have not gotten better either. How can you tell if you have nerve damage? I have some pain which doesn’t feel like my normal bone pain which I’m assuming is nerve pain because it feels like shocks. It’s not constant but enough to annoy me. Do I have a better chance of healing being I am only 28? Also these symptoms seem to get worse towards night when laying in bed as that seems to be the only time I really get anxiety too. Does it sound like I have permanent damage? Thanks for reading my story and I hope all of you have a speedy recovery!
Daniela
9 years ago
It took a few years for me, but the anxiety suddenly dissolved one day — and note, I was given a lot more of the antibiotic than you, and then refloxed, so it probably won’t last as long for you. Just remember it is not you, it’s the medication doing it. Treat it like you would a broken arm or cut — take care of and protect your nervous system because it has been injured. Now is the time to get out the jammies and teddy bears and baby yourself! 🙂 Keeping as comfortable as possible until it has run its course will probably end it sooner than you think. Good luck!
Several groups of antibiotics and other meds are ototoxic, not only quinolones. I’ve lost alot of hearing, too, but it’s partly because my middle ear is always more or less inflamed; the other and main cause of ototoxicity is damage to the vestibular sensory hair cells; with cochleotoxicity, hearing loss or the start or worsening of tinnitus (ringing in the ears) can occur through damage to the cochlea (the hearing apparatus) or the cochlear branch of the vestibulo-cochlear nerve. Vestibular ototoxicity or vestibulotoxicity are terms used to describe ototoxicity that affects the balance organs or the vestibular branch of the vestibulo-cochlear nerve. Most of this ototoxicity is reversible, though some permanent hearing loss may ensue.
Of course, ototoxicty can also cause loss of balance.
I honestly think stem cells are going to be what fixes a lot of these cases, probably isn’t far off… Just stay strong for now and use the law of attraction.
I hear catching this problem the earlier the better.. I started treating about two weeks after my first symptoms, would you consider this early? Or did I screw myself not starting earlier.
Catherine .. I’m sorry to hear that, same happened to me for Bartonella treatment.. like lisa said.. double whammy… We’ll get through it though, I’m going treat herbal now.. done with antibiotics, how long did it take you to find out you were floxed? I figured it out pretty early thank god.
400 tablets!??? Dear lord… That’s way too much for anybody. I lucky stopped at around 14 pills.. I took cipro first and was fine.. then I took levaquin for 5 days and bam felt like a bomb went off in me.. I can still walk around which is weird, but I have neurapothy symptoms only it seems and some weird vision stuff, I stopped immedietly when I woke up and felt my calfs hurting and some tingling.. Hopefully I’ll make a full recovery… That’s terrible for us who had enough going on with lyme to only get floxed… If I was warned of these dangers I would not have taken these pills, I would have just taken rifampin or bactrim… These doctors.. Keep a good attitude, I have a lot of support from my parents who thankfully do financially very well, so I’m able to guinny pig myself through a lot, I’ll let you guys know if anything works for me.. I have a ton of stuff I’m trying right now. I get the feeling this medication is a lot like lyme to where it gets logged deep into your body and needs to come out.. Everytime I detox or take vitamins or antiditoxiants my legs start burning like crazy, which makes me think that it’s somehow stuck in your body, a lot like lyme is.. I’m forcing myself to walk around my neighborhood and all of these things.
can anyone provide with me with a link to find a doctor for Ozone and H2O2 and Glutathione? Are there any other good IVs to get? ( I have money to spend so I’m willing to try anything )
– I live in South Florida
Thanks guys, I have 3 tick infections so I have to take supplements regardless.. I’ve been sick so long from the lyme that at this point I’m willing to take chances.. I know these things can be negative, but I refuse to have that attitude as I believe the law of attraction is always working. If you believe you will continue to be sick, that’s what the universe will grant you in the long run.
– Thanks! 🙂
Hi Jake
Ive often wondered about law of attraction. Do you really think no matter how sick you are you can overcome it with a positive attitude. I’m extremely sick. I did recover from my floxing in 2010 but I,m having an extremely bad relapse..in some ways worse than the original. I’m into month 6 and have days of utterly losing hope as I don’t see any improvement…well… very very little. I had to give up work and mostly stay at home and many days in bed. I have days where I’m able to force myself up and get mobile but it will then be followed by crashing for days. Much different to my recovery in 2010. Back then I was bad bad bad and slowly got better…no flip flopping back and forth.
So …is it really attitude.. is it really staying positive.
Hot news!
I’ve been hoiding, literally, scared to go outside, open the fronty door or even open the blinds at the front of the house, so traumatised was I by the three spiteful women whpo’d been to the police station to complain that they could hear my radio at night, then gpt me out of bed early one morning to complain that they’d been disturnbed by hearing me crying (if you’ve ever been in a Sevillian old-fashuoned puebñlo, you’ll know that they’re the noisiest people in the world and i’m a littñle mouse by comparison) then the mad soup-lady’s attaxck and threats. But today I had to go out – I spied out the land, nipped out when no-one about, went as fast as posisble, head bowed, to where I had to go, jumoed out my skin and ran away when a neighbour out shopping said hallo, jumped even more and rushed sobbing into the house when another did, refused to open the door when they all came to see what was wrong.. ..eventually i let thnem in and they all cpmforted me, made me some lime-blossom tea ( a lovely herb for floxed people, too) and –
guess waht –
the poisoner has dementia! It’s happened in the last few eeks, quite suddenly and we know why, don’t we?
When I stopped ehr and gave her D-mannose, she’d already taken two Cipro; it seemed that she’d got away with only some tiredness and rather heavy legs, but now she’s been smitten, as I was smut, and I’m a very wicked woman because I don’t fele at all sorry for her.
My hands aren’t shaking as much now – I knew it was partly from shock and terror, but wasn’t pulling meself together to do anything about it.
This afternoon, I helped a litlle girl with aher homework. Children and animals and plants are very healing. (She gave me dictation and I got 10/10!)
Moppi the cat is snoring gently and I think i will, too.
I had an almost normal hour tonight… an hour where I thought “if this is as good as it gets its ok” Now I’d like a much much much more “normal” but after the crap ive been through I’d take it. I was able to clean my kitchen. Go get plants from outside and bring them in or cover them up as its going to get pretty cold tonight.
More than ive been able to do in awhile. I hope I don’t crash.
‘Resume’
Razors pain you;
Rivers are damp;
Acids stain you;
And drugs cause cramp;
Guns aren’t lawful;
Nooses give;
Gas smells awful;
You might as well live.
Dorothy Parker
I’m new here, I’m happy to read so many stories of success but still scared of my own situation. I was prescribed Levaquin 500mg for 10 days (only took 7) for a UTI because I am allergic to many other medications. The day I took the last pill I started to have a small amount of pain in my right ankle. Two days after last pill I started to have some minor cramping in my calf muscles, next day pain in both ankles and then by that evening I was feeling tingling on an off in my lower legs. It has now been 4 days and I’m still experiencing symptoms. Today my one hand started to feel tingling as well. I’m a “healthy” 34 mother of 2 young children. My daughters first birthday is this weekend. I’m so scared. I finally put a call into the urologist who prescribed the medication but I’m afraid it will come to nothing. I know no one can tell me it will all be OK and I am so scared it won’t be, that I am now looking at a life long problem. I’m heart broken.
Heel pads — what to do? I feel like I am walking directly on the bone.
Lots of ripe bananas make me less spacey — potassium?
As promised here come the recipes!
I asked my Mom and she said share it on that Floxie site. So here it is.
Cool Rub Ointment for Pain. Or as my niece calls it Magic Cream.
10 drops of eucalyptus oil.
10 drops of peppermint oil.
6 drops of tee tree oil.
5-10 drops of soothanol-x2 (optional).
2 ounces of sweet almond oil.
1 ounce of grated bees wax (organic)
Melt beeswax and almond oil in a pan or bowl. (You can use a microwave)
Allow to cool. Add oils and blend. Pour into container with lid. (plastic or what I use is altoid tins)
My mom makes this stuff and sells it locally in Michigan. I use it and it is a god send specially at night when the knees and ankles and toes won’t stop hurting. I just rub this on them and I can go to sleep.
She said play with this recipe and make it your own. You can add any oils you want.
Another recipe. This one is for an essential oil massage oil for pain.
6 drops of lavender oil
6 drops of rosemary oil
6 drops of chamomile oil
4 ounces of a carrier oil (almond oil or avocado oil)
You can even use vegetable oil if you have to.
Massage Lotion or Oil for Tendinitis.
Made with a blend of essential oils.
2 ounces of vegetable oil.
6 drops of helichrysum
4 drops of marjoram
4 drops of birch
3 drops of chamomile
3 drops of lavander
3 drops of ginger
2 drops of juniper
Rub in the lotion or oil to affected area as part of your self-massage.
Floxie Salads
Magnesium Medley Salad
Fresh Purslane
green beans
spinach
and lettuce
Add poppy seed dressing
Tendon helper salad (natural silicon)
Cucumbers
parsley
string beans
cashews
turnips
and lettuce
olive oil dressing
Or mix it up. Great source of magnesium and natural silicon (helps tendon health)
And any other veggies you like. I always add carrots.
It’s so hard to believe that I will actually get better. I’m sure other people feel the same way. But when you’re suffering and in pain like we are, it’s hard to envision a time that it won’t feel like that. My body feels damaged. It’s so difficult to imagine that there will be a time when it isn’t so damaged.
Hi all! OK bear with me here it’s kind of a long story, I’ll try to summarize. i’m generally a healthy person, rarely ever get sick, I’m a 28 year old male and I’m 6’6″ 240 lbs. On October 12th my fiance had to take me to an urgent care due to what ended up being bronchitis and pneumonia. I was given prednisone and an antibiotic I forget what it was called but you took 2 the first day then 1 a day for four more days. Anyways, I finished the medication and on October 29th (my birthday) I was at the doctor and was cleared of any and all wheezing. Not even 12 hours later I’m at home with my fiance and WHAM! projectile vomiting out of nowhere and all of a sudden it seemed as though my symptoms were back. The doctor suspected a bacterial infection and prescribed me Moxifloxacin. It took a few days of being on the medication until I started feeling strange, but it was all symptoms I had from bronchitis and pneumonia. Shortness of breathe, tingling extremities, heavy chest, no appetite at all. By the 7th day (it was a 10 day course) I woke up at 5 am and felt like I was having a heart attack. As soon as my doctors opened I called and they told me to immediately stop taking it. I have never had an adverse reaction to any other meds ever. So I stopped taking the Moxi on November 12th. now that my sickness is gone I can see these symptoms were side effects and not lingering sickness. I have strange stomach pressure with lots of gurgling (which I could expect from an antibiotic) but the symptoms that bother me are, an occasional shock like feeling in my upper stomach under ribs, it lasts for a split second then stops but will happen occasionally throughout the day, my hands and feet sweat constantly, feet and legs get cold randomly, I occasionally get tingling pain in random spots. I get crazy anxiety for no reason, I constantly check my pulse during these times and my pulse has been as high as 105, but my resting pulse has been around 80-85. I had over the course of a month lost 25 lbs. I could not eat, however my appetite has fully came back. And what finally made me realize it was from the Moxi, a blister in the back of my mouth by my wisdom teeth (I have never had a mouth blister in 28 years). I have experienced stiff neck and lower back pain (I am already a chronic pain sufferer from herniated discs in my lumbar spine). I have been reading horror stories about how this medications effects can be permanent and life threatening. I have been off the medication now for about a week and while my symptoms have not gotten worse, they have not gotten better either. How can you tell if you have nerve damage? I have some pain which doesn’t feel like my normal bone pain which I’m assuming is nerve pain because it feels like shocks. It’s not constant but enough to annoy me. Do I have a better chance of healing being I am only 28? Also these symptoms seem to get worse towards night when laying in bed as that seems to be the only time I really get anxiety too. Does it sound like I have permanent damage? Thanks for reading my story and I hope all of you have a speedy recovery!
It took a few years for me, but the anxiety suddenly dissolved one day — and note, I was given a lot more of the antibiotic than you, and then refloxed, so it probably won’t last as long for you. Just remember it is not you, it’s the medication doing it. Treat it like you would a broken arm or cut — take care of and protect your nervous system because it has been injured. Now is the time to get out the jammies and teddy bears and baby yourself! 🙂 Keeping as comfortable as possible until it has run its course will probably end it sooner than you think. Good luck!