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Daniela
9 years ago
Any advice about helping children who have been exposed?
Daniela
9 years ago
On a positive note, I think I have become BETTER intellectually than I was before floxing. I’ve learned a new language, I’ve been published. It’s funny because using the computer makes me very dizzy, and my vision is a mess, but I’ve also suddenly become a very good writer.
So to any of you specifically asking about brain fog, loss for words, etc., it does get better! In my case, better than before.
Something has become more focused. Maybe it’s just because I lost some brain cells, lol, and the extraneous chatter has died down. Or maybe it’s just that “what doesn’t kill you makes you stronger.” I’ll try to apply whatever is happening to me brain-wise to my body! I really hope my body catches up.
Dave
9 years ago
I have been worse today after taking this weight gainer powder. I meant to buy whey protein but the salesperson advised me to get this other stuff…. Any recommendations on specific whey protein and has it been helpful to people?
Well Gang,
Just had my tooth pulled. Setting at home with ice on my jaw. I took 1000 mg of ester C before and after. I am going to run the Rife machine on the after extraction setting. I hope and pray this doesn’t cause a relapse.
Mike Out
Jen
9 years ago
Carrie, thank you for your feedback. I’m sorry that you’re unable to find relief for your burning feet. 🙁 Have you found anything to be of help in relieving your burning pain? Does it feel worse towards later in the day and at night?
Dave
9 years ago
Anyone else having extreme pain sitting? I have been sitting on a pillow for over 2 months…. My neurologist says I have a slightly herniated disk . Can explain tingly burning in legs feet Just doesn’t explain some random electricle shots mild tingling in hands and arms and skin sensativity feels like alergy behind triceps.
I do eat real turmeric root, even though I don’t have whey, and just had a big asparagus soup, so I’m good. Unfortunately the vertigo has gone completely whacko. Aaargh! It’s like carrying a full pot of water over burning coals, slosh ouch slosh ouch 🙁
I had a bad increase in achilles tendon pain out of the blue and I think I know exactly what caused it: acetylcholine. I took too many choline precursors from food & supps over a day or two in addition to DMAE, also said to be a choline precursor. Not smart, DMAE is also known to inhibit acetylcholine transport, and along with too high acetylcholine, messing with it affects tendons and junctions. I also had a large amount of calcium the days before which may have worsened things since the two interact (but I didn’t have problems with calcium alone, and was still taking magnesium). Tend to forget the neurotransmitters have uses outside the brain.
Mark
9 years ago
Did anyone here had problems with beef?
Mark
Jen
9 years ago
Has anyone who has/had neuropathy symptoms have their vitamin B12 level checked?
Jen
9 years ago
Thank you ladies.
Jen
9 years ago
Carrie, did you take a look at the Dr. Weil link that Michael posted?
Jen
9 years ago
Hi Melanie, I’m doing ok. Just had a follow up with rheumatologist and he is testing my B12 level as I had never had that done. He diagnosed me with peripheral neuropathy and prescribed gabapentin. Had a good night’s sleep last night so woke up feeling better than usual today…took benadryl for some allergic bumps on skin so it knocked me out. lol I do believe the electro acupuncture irritated my nerves more than it already was. But I’m trying to stay focused on getting better and taking supplements as fit etc.
How have you been doing lately? Hope still improving.
Jen
9 years ago
Melanie, do you notice any difference/improvements since your B12 level increased?
Jen
9 years ago
Melanie, being housebound is a very difficult thing. When I first got sick I didn’t leave the house for about 6wks…only time I left the house was to go to doctor’s appts. We women are always extra critical of our appearance. It’s worse when we don’t feel well physically. I’m sure it’s not that bad Melanie. If you’re able then get out and get some fresh air/sun. It will do you some good. You dyed your hair so that should make you feel a little better. I’ve been due for a root touch up myself but I was thinking about the chemical factor as well. But I’m getting tired of spots of gray that’s been growing out. I will try the cooling pad…thank you for the suggestion.:)
And thank you for connecting me with Tammy. I have corresponded with her and she has been very informative and nice. I probably bugged her too much! lol
Be kind to yourself like you have been to me. 🙂 Thank you.
b
9 years ago
Guys, keep happy and positive as much as possible. I know it is so difficult (for what reason we do not have to discuss here). But it is really good to the recovery.
I just talked to another guy on Facebook group, and he told me he had already recovered 100%, but then relapsed from a severe emotional stress.
Another floxie friend also got worse after a big family issue.
I myself, got my worse reaction 20 hours after a severe stress.
How come ?
There is this hypothesis : stress generates steroid like things in our body. We know we cannot handle steroid things after being floxed.
Imagine you ran into a bear or a tiger in the jungle, you body has to generate a lot of hormones or steroid something like that, to help you gather your courage and your muscles, to fight or to run away.
Try not be very upset, hopeless, or too upset. It is good to your recovery, not just psychologically, also physically.
Jen
9 years ago
Tricia, for awhile my feet/ankle pain travelled up to my thighs as well and I wasn’t sure if it was caused by physical therapy but it did subside after awhile. So hopefully that will be the case with you. Keep doing what you’re doing and be focused on getting better.
Melanie, you are absolutely right. Sometimes when I’m down all I want to hear is for someone to say this will all be over soon…maybe not even soon…just a confirmation it will get better. My husband swears that he knows for sure that I will get through this and will be fine again…to be patient.
As if going through this isn’t scary enough the first time around it seems like many people relapse for various reasons. Will we have to walk on eggshells forever if/when we recover?
Daniela
9 years ago
Some people don’t have to walk on eggshells and have bounced back, but some of us do. Me, absolutely. Think of yourself as a ballerina!
We’re really just talking about not eating junk food anymore, getting exercise, rest, and refusing to put noxious chemicals in our bodies. That should be the absolute minimum anyone in a civilised society should expect. It is truly strange that it is hard for us to do this, good food is so hard to find, rest is impossible, and we can’t trust our doctors. But we just have to be strong about our rights to live a healthy life!
Catherine
9 years ago
Tricia, how are you doing with the liposomal vitamin c? I had my first teaspoon of it just now, and I feel really nauseous and headachy suddenly.
Any advice about helping children who have been exposed?
On a positive note, I think I have become BETTER intellectually than I was before floxing. I’ve learned a new language, I’ve been published. It’s funny because using the computer makes me very dizzy, and my vision is a mess, but I’ve also suddenly become a very good writer.
So to any of you specifically asking about brain fog, loss for words, etc., it does get better! In my case, better than before.
Something has become more focused. Maybe it’s just because I lost some brain cells, lol, and the extraneous chatter has died down. Or maybe it’s just that “what doesn’t kill you makes you stronger.” I’ll try to apply whatever is happening to me brain-wise to my body! I really hope my body catches up.
I have been worse today after taking this weight gainer powder. I meant to buy whey protein but the salesperson advised me to get this other stuff…. Any recommendations on specific whey protein and has it been helpful to people?
Well Gang,
Just had my tooth pulled. Setting at home with ice on my jaw. I took 1000 mg of ester C before and after. I am going to run the Rife machine on the after extraction setting. I hope and pray this doesn’t cause a relapse.
Mike Out
Carrie, thank you for your feedback. I’m sorry that you’re unable to find relief for your burning feet. 🙁 Have you found anything to be of help in relieving your burning pain? Does it feel worse towards later in the day and at night?
Anyone else having extreme pain sitting? I have been sitting on a pillow for over 2 months…. My neurologist says I have a slightly herniated disk . Can explain tingly burning in legs feet Just doesn’t explain some random electricle shots mild tingling in hands and arms and skin sensativity feels like alergy behind triceps.
Just found this on boosting glutathione through food
http://www.rheumatoid-arthritis-decisions.com/Foods-that-boost-glutathione.html
I do eat real turmeric root, even though I don’t have whey, and just had a big asparagus soup, so I’m good. Unfortunately the vertigo has gone completely whacko. Aaargh! It’s like carrying a full pot of water over burning coals, slosh ouch slosh ouch 🙁
Hey everyone this may be useful.
http://www.drweil.com/drw/u/PAG00082/Dr-Weil-Condition-Care-Guide.html
I had a bad increase in achilles tendon pain out of the blue and I think I know exactly what caused it: acetylcholine. I took too many choline precursors from food & supps over a day or two in addition to DMAE, also said to be a choline precursor. Not smart, DMAE is also known to inhibit acetylcholine transport, and along with too high acetylcholine, messing with it affects tendons and junctions. I also had a large amount of calcium the days before which may have worsened things since the two interact (but I didn’t have problems with calcium alone, and was still taking magnesium). Tend to forget the neurotransmitters have uses outside the brain.
Did anyone here had problems with beef?
Mark
Has anyone who has/had neuropathy symptoms have their vitamin B12 level checked?
Thank you ladies.
Carrie, did you take a look at the Dr. Weil link that Michael posted?
Hi Melanie, I’m doing ok. Just had a follow up with rheumatologist and he is testing my B12 level as I had never had that done. He diagnosed me with peripheral neuropathy and prescribed gabapentin. Had a good night’s sleep last night so woke up feeling better than usual today…took benadryl for some allergic bumps on skin so it knocked me out. lol I do believe the electro acupuncture irritated my nerves more than it already was. But I’m trying to stay focused on getting better and taking supplements as fit etc.
How have you been doing lately? Hope still improving.
Melanie, do you notice any difference/improvements since your B12 level increased?
Melanie, being housebound is a very difficult thing. When I first got sick I didn’t leave the house for about 6wks…only time I left the house was to go to doctor’s appts. We women are always extra critical of our appearance. It’s worse when we don’t feel well physically. I’m sure it’s not that bad Melanie. If you’re able then get out and get some fresh air/sun. It will do you some good. You dyed your hair so that should make you feel a little better. I’ve been due for a root touch up myself but I was thinking about the chemical factor as well. But I’m getting tired of spots of gray that’s been growing out. I will try the cooling pad…thank you for the suggestion.:)
And thank you for connecting me with Tammy. I have corresponded with her and she has been very informative and nice. I probably bugged her too much! lol
Be kind to yourself like you have been to me. 🙂 Thank you.
Guys, keep happy and positive as much as possible. I know it is so difficult (for what reason we do not have to discuss here). But it is really good to the recovery.
I just talked to another guy on Facebook group, and he told me he had already recovered 100%, but then relapsed from a severe emotional stress.
Another floxie friend also got worse after a big family issue.
I myself, got my worse reaction 20 hours after a severe stress.
How come ?
There is this hypothesis : stress generates steroid like things in our body. We know we cannot handle steroid things after being floxed.
Imagine you ran into a bear or a tiger in the jungle, you body has to generate a lot of hormones or steroid something like that, to help you gather your courage and your muscles, to fight or to run away.
Try not be very upset, hopeless, or too upset. It is good to your recovery, not just psychologically, also physically.
Tricia, for awhile my feet/ankle pain travelled up to my thighs as well and I wasn’t sure if it was caused by physical therapy but it did subside after awhile. So hopefully that will be the case with you. Keep doing what you’re doing and be focused on getting better.
Melanie, you are absolutely right. Sometimes when I’m down all I want to hear is for someone to say this will all be over soon…maybe not even soon…just a confirmation it will get better. My husband swears that he knows for sure that I will get through this and will be fine again…to be patient.
As if going through this isn’t scary enough the first time around it seems like many people relapse for various reasons. Will we have to walk on eggshells forever if/when we recover?
Some people don’t have to walk on eggshells and have bounced back, but some of us do. Me, absolutely. Think of yourself as a ballerina!
We’re really just talking about not eating junk food anymore, getting exercise, rest, and refusing to put noxious chemicals in our bodies. That should be the absolute minimum anyone in a civilised society should expect. It is truly strange that it is hard for us to do this, good food is so hard to find, rest is impossible, and we can’t trust our doctors. But we just have to be strong about our rights to live a healthy life!
Tricia, how are you doing with the liposomal vitamin c? I had my first teaspoon of it just now, and I feel really nauseous and headachy suddenly.