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b
9 years ago
Regular glutathione is absorbed at approximately 3 – 5%, some emulsified forms around 10 – 20%, the balance remains in the gastrointestinal tract and is lost. Liposomalized glutathione is absorbed at substaintially higher rate.
Similar condition is on Vitamins. It is true that Liposomal Vitamin is easier to be absorbed than regular Vitamin.
“You might have heard of a new technology called liposomal technology that has been used to increase absorption of nutrients. This occurs naturally in krill oil. The omega-3 fats are bound to phospholipids that radically increase absorption relative to fish oil.
Similarly, this type of binding can now be done artificially to improve not only nutrient absorption but its penetration into your cells and tissue….” — http://products.mercola.com/vitamin-c/
Daniela
9 years ago
The genetic testing gives them an excuse to say it’s your fault and not the FQs. Spend your money on organic ingredients and good cookware. We don’t even know if supplements are absorbable. And organic does not mean “gluten-free cookies” but real vegetables, etc.
Colour your hair with henna, mixed with indigo and amla for less red. It looks really pretty. There are some false hennas that use the same chemicals as commercial dyes, so avoid those. Jamila, which is just henna, and Ayur Rajasthani, which is mixed with amla and more brown. They are both less than $2 (for some reason very expensive on Amazon but only $2 at the store). Marigold and camomile colour blonde hair and can be mixed into colourless henna.
A gluten free cookie or muffin has been part of my recovery… :-}
Jen
9 years ago
Tricia, sorry to hear that you had a bad week…hopefully it’s one of those things that gets worse before it gets better.
Daniela
9 years ago
Gentle stretching and exercise is the best thing I’ve found for the physical pain.
Focus on the symptoms that are bothering you the most at the moment. I think you can do anti anxiety exercises at the same time as foot/knee/shoulder, whichever is hurting the most. Two birds!
Anti inflammatory diet at the same time.
It’s doable. We were hit by a bomb, it’s going to take time, but we’re not broken. Take care, everybody.
Jen
9 years ago
My vitamin B12 results came back normal…mid 500 range. I was hoping it would be on the low side so I could attribute my neuropathy to it and fix it with vit B12 supplements… sigh…
Dave
9 years ago
Anyone have advice bad tendon pain behind your thighs? Mine is so bad where I can’t sit anymore. I have a desk job and I think I have to go on leave… Driving is excruciating and standing more than 5 or 10 min is very difficult. Causes little muscle spasms back of my legs. At least the burning and tingling has not been there this last 5 days. But if I sit at my desk it’s brutal. I’m almost 3 months in.
Hello everyone! I am new to this site. Trying to find out what ailes me. I read a few reviews on here to get started. I get a lot of nerve pain from herniated disks but something is werid lately. Has anyone on here ever tried Serrapeptase? For me I take a dose of 250,000 IU once a day when it is bad and that helps me with the stiffness in my feet and legs..and I believe it helps with some of the pain too. I also must go with all anti inflamatory foods before anything else and that helps if I stick to it. The Serrapeptase has been a miracle pill for me! I have been out on disability a few years before I came across the Serrapeptase and I hurt so bad just trying to get out of my bed or trying to turn over in my bed…before I learned about iSrrapeptase. I was trying to only eat anti inflamatory foods but there was so much more to it. I definitely have nerve damage all dowm my spine from herniated disks, and I’ve had radio frequencies which helped qell severe muscle cramps all down my legs, but the stillness in my legs and feet from lack of stretching is so much better when I take the Serrapeptase. Like I said, I take 250,000IU of Serrapeptase, usually once a day. I hope this is of help to someone one here.
Also, one very important person to read up on is: Suzy Cohen, for advice.
Suzy Cohen has been doing a great job spreading the word about how dangerous fluoroquinolones are. Here’s a post of hers in which she says, “Antibiotics- A few popular antibiotics affect DNA similar to some chemotherapy agents. If you’re sensitive to them, you could pay a neurological price that causes sudden and serious neuropathy and degrees of brain damage. The drugs that the FDA is concerned about belong to the fluoroquinolone class, and already have a black box warning for increasing the risk of tendon ruptures. But I’m telling you that more reports have come in with accusations of neurological damage. Personally, I would only use these for life-threatening infections that were unresponsive to older regular antibiotics. I wouldn’t take them if I had a regular old urinary tract or sinus infection.” Thanks, Suzy!!!
Yes you’re right that when you’re tired symptoms are a bit worse…it’s the same with me. I try to take it easy whenever I can. I can stand without pain most of the day and walking has improved as well. Thank you for asking. I am extremely stiff when I wake up so I take a little time to stretch my feet/ankles/legs. But once I get going it gets better. The electric shocks are still prominent throughout the day but tolerable but evening/night time it gets worse along with the burning. I hope you see much improvement soon with the new regiment you are on per the doctor you’re consulting with.
traci
9 years ago
Hi, does anyone know a way to cope with extreme anxiety and insomnia? Did it become a permanent side effect? Please, i feel like I am going to explode.
Traci
Daniela
9 years ago
From Leo Galland: “Avoidance of enterotoxic drugs, treatment of intestinal infection or dysbiosis, and an allergy elimination diet of high nutrient density that is appropriate for the individual patient are the PRIMARY TREATMENT STRATEGIES for the Leaky Gut Syndromes.” (emphasis mine)
In other words, the supplements alone won’t get you there; concentrate on helping the body heal itself by being careful of what you put in it (ie eat).
I would add massaging and increasing blood flow throughout the body through yoga/tai chi/stretching/movement.
traci
9 years ago
I wake up in adrenaline surges every night at 3am. Last night at 5 am also. That was after taking 3 benadryls. Today has been pure torment. I bought some inositol but I didn’t realize it took so much to touch anxiety. I am desperate to feel calm.
Jen
9 years ago
Thank you Patty. I will look up those 2 supplements.
traci
9 years ago
When did your physical pain start? So far mine is mental and hearing loss. Did the physical progress from 3 months on ? I just got hit with a bad case of agraphobia this month on top of it all. I don’t feel very strong at the moment. Don’t know how much more I can take.
Anna
9 years ago
Help! I believe I’ve been floxed. I stopped taking a course of levaquin last Sunday when I felt some very mild leg soreness (5 pills). A week later I’ve been practically bedridden – every muscle in my body aches, some tingly-ness in my hand and my joints are cracking. No other side effects thus far. I don’t even know who to go to for help! Neurology? My pcp? Are there any nauropath or holistic type treatment centers that have had success treating people like this? I can’t stop crying, I have no idea what to do.
Lisa, Thank you so much for posting the video with Suzy Cohen and spreading the word.
Debs
9 years ago
I have been floxed multiple times & In my experience of being around a long time & observing others, It is my belief that a great number of us eventually get to a place where we do FEEL recovered, & even a greater number WILL get to a place where we are VERY much improved, & although our lives may not be exactly the same as before this atrocity happened to us, in fact a great majority eventually do reach a place where this does not consume such a large part of our lives & it is not on our minds much, receding into the background a memory of another bad experience.
A smaller number WILL have some long lasting issues, & an even smaller number will have some permanent damage. ( for instance I have FQ induced Chronic kidney disease, & specific cognitive issues,compounded by being given 12 years of cognitively damaging psychotropic drugs which are not going away anytime soon if ever ), however this is NOT surprising, also given the amount of times I have been hit & severity of my floxings )
in my opinion one of the hardest things with FQ toxicity is that we need to adjust our way of seeing things in regard to this. We are in fact indoctrinated to believe from childhood that in the course of a ‘ normal ‘ illness , you get ill, for bit in a specific way, & then you recover completely, most often in a short space of time, this is NOT the way that floxing works , I in fact tend to have a habit of calling floxing a completely different animal.
This is because fluoroquinolone toxicity works in insidious ways, It seems to have tolerance levels, it very often has delayed symptoms which can occur many many months after you are first hit, & for each of us It is also unique, insofar as each persons floxing is completely different in every respect when it comes to timelines of deterioration, improvement, relapse/ flares, right through to possibly getting to a place where we may feel recovered, & this also goes for subsequent floxings in the same person, every one of my floxings was different.
So as far as the answer to the million dollar question is concerned ” Do we get recovered enough to lead a normal life ? ” my opinion on this, at least for those of us who greatly improve is YES with a few reservations. This is because our bodies physically are just not the same in respect to the connective tissues , connective tissue degenerative damage is a class effect ADR of the fluoroquinolones, & therefore every single person who takes a FQ floxed or not ( yet ) floxed, in fact WILL have damage to these tissues, to the tendons, to the cartilage, in fact ALL cartilaginous tissues of the body, & this damage can range from a slight softening of these tissues , not noticeable / visible on your usual scans,( often in those who have not YET been visibly / noticeably floxed,) right through to destruction of these tissues. I personally feel strongly that we must always take care of our bodies in this respect & be careful to try to avoid further injury, This is very important to keep in mind at all times, as many many people when first floxed just do not understand the mechanism of action of the FQs on these tissues, so therefore do not make allowances for this, seeing floxing tendon injury as your usual tendonITIS etc, & not realising it IS a completely different animal, in fact this damage is almost universally TendonOSIS ( although of course both can be present ), & this is why imo, it is so very important not to try to go too fast too soon in respect to exercise, it can often cause relapse due to the mitochondrial issues, & in fact be detrimental to the connective tissues, setting potential healing back further causing further damage, as can the wrong kind of physical therapy if the therapist is not made aware of this fact. I have in fact seen this happen to far too many people. In my experience, one of the limitations a lot of us end up having to deal with, is that for a large number of us we find that we no longer have the energy & ability to do certain things we could do easily before, & now need to pace ourselves, we find out usually eventually by trial & error that we need to adjust to a new ‘ normal ‘.
Regular glutathione is absorbed at approximately 3 – 5%, some emulsified forms around 10 – 20%, the balance remains in the gastrointestinal tract and is lost. Liposomalized glutathione is absorbed at substaintially higher rate.
Similar condition is on Vitamins. It is true that Liposomal Vitamin is easier to be absorbed than regular Vitamin.
“You might have heard of a new technology called liposomal technology that has been used to increase absorption of nutrients. This occurs naturally in krill oil. The omega-3 fats are bound to phospholipids that radically increase absorption relative to fish oil.
Similarly, this type of binding can now be done artificially to improve not only nutrient absorption but its penetration into your cells and tissue….” — http://products.mercola.com/vitamin-c/
The genetic testing gives them an excuse to say it’s your fault and not the FQs. Spend your money on organic ingredients and good cookware. We don’t even know if supplements are absorbable. And organic does not mean “gluten-free cookies” but real vegetables, etc.
Colour your hair with henna, mixed with indigo and amla for less red. It looks really pretty. There are some false hennas that use the same chemicals as commercial dyes, so avoid those. Jamila, which is just henna, and Ayur Rajasthani, which is mixed with amla and more brown. They are both less than $2 (for some reason very expensive on Amazon but only $2 at the store). Marigold and camomile colour blonde hair and can be mixed into colourless henna.
And don’t forget exercise! Here’s some more for plantar fascitis heel burning:
https://www.athletico.com/2012/05/09/plantar-fasciitis-solutions/
A gluten free cookie or muffin has been part of my recovery… :-}
Tricia, sorry to hear that you had a bad week…hopefully it’s one of those things that gets worse before it gets better.
Gentle stretching and exercise is the best thing I’ve found for the physical pain.
Focus on the symptoms that are bothering you the most at the moment. I think you can do anti anxiety exercises at the same time as foot/knee/shoulder, whichever is hurting the most. Two birds!
Anti inflammatory diet at the same time.
It’s doable. We were hit by a bomb, it’s going to take time, but we’re not broken. Take care, everybody.
My vitamin B12 results came back normal…mid 500 range. I was hoping it would be on the low side so I could attribute my neuropathy to it and fix it with vit B12 supplements… sigh…
Anyone have advice bad tendon pain behind your thighs? Mine is so bad where I can’t sit anymore. I have a desk job and I think I have to go on leave… Driving is excruciating and standing more than 5 or 10 min is very difficult. Causes little muscle spasms back of my legs. At least the burning and tingling has not been there this last 5 days. But if I sit at my desk it’s brutal. I’m almost 3 months in.
Hello everyone! I am new to this site. Trying to find out what ailes me. I read a few reviews on here to get started. I get a lot of nerve pain from herniated disks but something is werid lately. Has anyone on here ever tried Serrapeptase? For me I take a dose of 250,000 IU once a day when it is bad and that helps me with the stiffness in my feet and legs..and I believe it helps with some of the pain too. I also must go with all anti inflamatory foods before anything else and that helps if I stick to it. The Serrapeptase has been a miracle pill for me! I have been out on disability a few years before I came across the Serrapeptase and I hurt so bad just trying to get out of my bed or trying to turn over in my bed…before I learned about iSrrapeptase. I was trying to only eat anti inflamatory foods but there was so much more to it. I definitely have nerve damage all dowm my spine from herniated disks, and I’ve had radio frequencies which helped qell severe muscle cramps all down my legs, but the stillness in my legs and feet from lack of stretching is so much better when I take the Serrapeptase. Like I said, I take 250,000IU of Serrapeptase, usually once a day. I hope this is of help to someone one here.
Also, one very important person to read up on is: Suzy Cohen, for advice.
Suzy Cohen has been doing a great job spreading the word about how dangerous fluoroquinolones are. Here’s a post of hers in which she says, “Antibiotics- A few popular antibiotics affect DNA similar to some chemotherapy agents. If you’re sensitive to them, you could pay a neurological price that causes sudden and serious neuropathy and degrees of brain damage. The drugs that the FDA is concerned about belong to the fluoroquinolone class, and already have a black box warning for increasing the risk of tendon ruptures. But I’m telling you that more reports have come in with accusations of neurological damage. Personally, I would only use these for life-threatening infections that were unresponsive to older regular antibiotics. I wouldn’t take them if I had a regular old urinary tract or sinus infection.” Thanks, Suzy!!!
http://suzycohen.com/articles/im-going-to-ruffle-feathers-but-ill-tell-you-anyway/
Tricia, how are your teeth feeling lately?
Yes you’re right that when you’re tired symptoms are a bit worse…it’s the same with me. I try to take it easy whenever I can. I can stand without pain most of the day and walking has improved as well. Thank you for asking. I am extremely stiff when I wake up so I take a little time to stretch my feet/ankles/legs. But once I get going it gets better. The electric shocks are still prominent throughout the day but tolerable but evening/night time it gets worse along with the burning. I hope you see much improvement soon with the new regiment you are on per the doctor you’re consulting with.
Hi, does anyone know a way to cope with extreme anxiety and insomnia? Did it become a permanent side effect? Please, i feel like I am going to explode.
Traci
From Leo Galland: “Avoidance of enterotoxic drugs, treatment of intestinal infection or dysbiosis, and an allergy elimination diet of high nutrient density that is appropriate for the individual patient are the PRIMARY TREATMENT STRATEGIES for the Leaky Gut Syndromes.” (emphasis mine)
In other words, the supplements alone won’t get you there; concentrate on helping the body heal itself by being careful of what you put in it (ie eat).
I would add massaging and increasing blood flow throughout the body through yoga/tai chi/stretching/movement.
I wake up in adrenaline surges every night at 3am. Last night at 5 am also. That was after taking 3 benadryls. Today has been pure torment. I bought some inositol but I didn’t realize it took so much to touch anxiety. I am desperate to feel calm.
Thank you Patty. I will look up those 2 supplements.
When did your physical pain start? So far mine is mental and hearing loss. Did the physical progress from 3 months on ? I just got hit with a bad case of agraphobia this month on top of it all. I don’t feel very strong at the moment. Don’t know how much more I can take.
Help! I believe I’ve been floxed. I stopped taking a course of levaquin last Sunday when I felt some very mild leg soreness (5 pills). A week later I’ve been practically bedridden – every muscle in my body aches, some tingly-ness in my hand and my joints are cracking. No other side effects thus far. I don’t even know who to go to for help! Neurology? My pcp? Are there any nauropath or holistic type treatment centers that have had success treating people like this? I can’t stop crying, I have no idea what to do.
Lisa, Thank you so much for posting the video with Suzy Cohen and spreading the word.
I have been floxed multiple times & In my experience of being around a long time & observing others, It is my belief that a great number of us eventually get to a place where we do FEEL recovered, & even a greater number WILL get to a place where we are VERY much improved, & although our lives may not be exactly the same as before this atrocity happened to us, in fact a great majority eventually do reach a place where this does not consume such a large part of our lives & it is not on our minds much, receding into the background a memory of another bad experience.
A smaller number WILL have some long lasting issues, & an even smaller number will have some permanent damage. ( for instance I have FQ induced Chronic kidney disease, & specific cognitive issues,compounded by being given 12 years of cognitively damaging psychotropic drugs which are not going away anytime soon if ever ), however this is NOT surprising, also given the amount of times I have been hit & severity of my floxings )
in my opinion one of the hardest things with FQ toxicity is that we need to adjust our way of seeing things in regard to this. We are in fact indoctrinated to believe from childhood that in the course of a ‘ normal ‘ illness , you get ill, for bit in a specific way, & then you recover completely, most often in a short space of time, this is NOT the way that floxing works , I in fact tend to have a habit of calling floxing a completely different animal.
This is because fluoroquinolone toxicity works in insidious ways, It seems to have tolerance levels, it very often has delayed symptoms which can occur many many months after you are first hit, & for each of us It is also unique, insofar as each persons floxing is completely different in every respect when it comes to timelines of deterioration, improvement, relapse/ flares, right through to possibly getting to a place where we may feel recovered, & this also goes for subsequent floxings in the same person, every one of my floxings was different.
So as far as the answer to the million dollar question is concerned ” Do we get recovered enough to lead a normal life ? ” my opinion on this, at least for those of us who greatly improve is YES with a few reservations. This is because our bodies physically are just not the same in respect to the connective tissues , connective tissue degenerative damage is a class effect ADR of the fluoroquinolones, & therefore every single person who takes a FQ floxed or not ( yet ) floxed, in fact WILL have damage to these tissues, to the tendons, to the cartilage, in fact ALL cartilaginous tissues of the body, & this damage can range from a slight softening of these tissues , not noticeable / visible on your usual scans,( often in those who have not YET been visibly / noticeably floxed,) right through to destruction of these tissues. I personally feel strongly that we must always take care of our bodies in this respect & be careful to try to avoid further injury, This is very important to keep in mind at all times, as many many people when first floxed just do not understand the mechanism of action of the FQs on these tissues, so therefore do not make allowances for this, seeing floxing tendon injury as your usual tendonITIS etc, & not realising it IS a completely different animal, in fact this damage is almost universally TendonOSIS ( although of course both can be present ), & this is why imo, it is so very important not to try to go too fast too soon in respect to exercise, it can often cause relapse due to the mitochondrial issues, & in fact be detrimental to the connective tissues, setting potential healing back further causing further damage, as can the wrong kind of physical therapy if the therapist is not made aware of this fact. I have in fact seen this happen to far too many people. In my experience, one of the limitations a lot of us end up having to deal with, is that for a large number of us we find that we no longer have the energy & ability to do certain things we could do easily before, & now need to pace ourselves, we find out usually eventually by trial & error that we need to adjust to a new ‘ normal ‘.