For over a decade this page has been dedicated to enabling the conversation for floxies to talk with one another. Sign up and subscribe to get all the latest comments.
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
I allow to create an account
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
26.5K Comments
Inline Feedbacks
View all comments
BW
9 years ago
Andrew im in the same boat as u I got two wisdom teeth bursting at the seems that need removal. I think you’ll be fine with local so long as it doesn’t contain epinephrine. As long as ur not taking floroquinolone again ur not getting refloxed. U might have ur symptoms flare for a wk or so but its not gona set u completely back. No one gets refloxed unless u take floros again, idk y ppl say that
Debs
9 years ago
Yes , as Rene states people need to be aware that the statins are in fact nothing but medical fraud & in fact are actually part of Big Pharmas long term agenda to try to get the whole world diagnosed with conditions for which there is no other treatment but to have to take their poisons for the rest of our lives, that’s if if you wish to stay alive. Please share this information far & wide http://youtu.be/sxWP3Q2M-Pw
Debs
9 years ago
‘ STATIN NATION ‘ is a documentary on the truth regarding the statins, which was made in the UK, I have the whole thing. it is well worth getting hold of, you can watch a taster of it here .http://youtu.be/Ry1Z8buyd8I
Daniela
9 years ago
Jane, you’ve done a real lot of work. I also did not have a problem sleeping the first time round, quite the opposite. But the insomnia happened with refloxing.
I really congratulate you on your programme. I need to build up some strength but I am just getting thin. May I ask which country you are in? Do you have access to really good food there?
Debs, that’s awful. Not another one!
BW
9 years ago
I didnt mean it to come out like that at all. Im very sorry for ur relapse and the fact u were floxed in general. Of course ppl suffer relapses that could be triggered by any number of things. But be comforted in the fact that ur over four yrs from ur initial flox an if u recovered for 3.5 yrs im sure of it that u can an will come out of this. Ive accepted the fact that im pretty sure ill never be the same but all we can do is hope n pray. I think u that u have rly good odds of recovering again. Nobody deserves this cruelty and honestly its heartbreaking esp bc no one rly understands our situation. U guys r all in my prayers
BW
9 years ago
Ugh im so scared to get these teeth pulled now lol u guys r making me nervous. Im extremely severe an when I slack on my factor for my hemophilia I start urinating blood. Now pre flox I could go weeks even a mth with no factor an never ever had that happen to I believe for sure this will indeed shorten if not directly lead to my death in some way. I dont like to think like that but cant help it. Also I have a knee replacement which I now will never be able to have done again bc quite frankly im petrified of the anesthesia so if im even alive in 10 yrs I will be wheel chair bound. Its not a competition for who has this the worst an everyone is fighting there own battle but with my pre existing condition I know im heading toward some serious problems. The only thing keeping me going is my faith in god an my fam. I can deal with being wheelchair noun at some point if my mentality clears up an most ppl say even if it takes yrs that does most of the time clear so im really praying for that. When I was little I had such bad bleeds in my joints I needed a knee replacement by the time I was 10 yrs old, docs told me had to wait til at least 18 n even then they said the operation was out of the question, I switched docs had it done n the following year my ankle fussed. Went from being in agony my whole childhood to having a miracle happen an going to the gym religiously which was something I’d never thought I’d be able to do, to now being floxed n eventually I will wind up in that fuckin chair. Its like it was meant to be. But like I said rt now im mobile an trying any and everything to recover an miracles do happen trust me they do. A lot of sever hemophiliacs cant even get surgeries an I came through both of them with believe it or not minimal bleeding. So believe me when I tell u nothing is impossible. Im just upset bc im engaged n cant stop thinking of what kind of husband an man I can be to my wife if im gonna be a mental case n bed bound. Its sad but whats meant to be will find its way an everything happens for a reason. Mel idk where ur at but I did ozone yesterday an I swear within the hr I wanted to do laps around the street lol felt amazing an psych symptoms diminished greatly. Its not for everyone n there can be risks but as sick as ive been I woulda let someone shoot me full of cat piss if there was a slight chance of relief. Just hold on nothing is permanent an our existence on this planet is short compared to what awaits us. I truly believe theres a special place in heaven for those who endure suffering on earth. You gotta have faith an make the best of it, although believe me I know it is hard. I tried to take my life last mth n wound up in the hosp an I can assure that is not the way u wanna go. If I cant go back to work I will find a way to help others an fill my days with trying to just be positive. Just hold on you will be thankful u did. If there was a picture of someone’s face in the dictionary it would be mine. I had spent the last 3 yrs on pain pills suboxone, finally got my shit together got a cyst prob from detoxing from thos drugs had it removed and got floxed. Its like every time I get up I get knocked back down again. But I have to accept it as Gods will an not my will, I made some mistakes an I am paying dearly for them now, but we all gotta keep moving on.
BW
9 years ago
Picture of someone’s face next to the word regret. ^ (meant to say)
BW
9 years ago
Thank u Daniellea! Do u take any sups? Magnesium is supposed to be great for ur teeth esp during a floxed state. I honestly believe if I wasnt taking as much mag as I am my teeth would’ve fallen out. I have some puffy gums but nothing to serious n my teeth r very sturdy no wiggling, im gonna get a cleaning this mth an prob every few mths during this first yr. Hopefully between that an the mag things will settle down. I might not even get the wosdpm teeth pulled some ppl just have em grow in crooked n they email that way, but there is always risk of infection that way soooooo I rly gotta weigh my options. Have u had any allergy testing or any iv therapy. I slept 12 hours last night an 10 the night before after my ozone treatment I also drooled on my pillow I know gross but amazing for me bc my mouth has been so dry, an even my tinitus is getting lower. I honestly have to say the ozone is helping me tremendously. Up until I had it I was taking melatonin, v alerian, klonopin n ambien together lol not the smartest thing but I rly did n care, an was only sleeping a couple hrs a night. Ive taken nothing since the ozone n fell into deep rem sleep. Its worth looking into. Good luck to u, an im sure u will be seeing improvements soon 🙂
BW
9 years ago
*remain that way. Not email that way. Lol sorry my phone just writes what it wants sometimes
KX
9 years ago
Has anyone been diagnosed with SIBO post floxing? I have had a lot of digestive issues on top of tendonitis and probiotics and diet only help a little but do not completely address the issue. I was prescribed rifaximin but am so worried about taking more antibiotics at this point Has anyone tried this antibiotic?
Jenny
9 years ago
This is bad.. I just flared up again after a couple months. I haven’t been to the one year mark yet of getting floxed but I don’t think it matters anymore. I uses to think If I could make it to the one year I’ll start recovering. I am 7 months pregnant and I think my hormones and lack of sleep are making me have flare ups. My whole body aches, my hands feel like arthritis. I thought prenatals would help, I think they are in some sense. But the fact that my little one in side of me is scaring me bad, is there any way she can feel this? I’m so mad at everything.. Why did this have to happen. I wish I could go back to that doctors appointment and throw the cipro in his face maybe push him down a flight of stairs too. A mild uti infection and I was givin cipro.. I don’t think I’ll recover. Actually I don’t see how it can get better . The flare ups hurt pretty bad. Will this thing eventually eat away at my body? Please someone be truthful. And will my babygirl have any problems I do??
Jenny
9 years ago
Plus whenever I have a flare up I think the baby can feel my stress and she moves around a bunch. It sucks. Just took so tylonel so will see. I’ve been on and off of this site since the week after I was floxed. Things haven’t got much better my wrists still pop and people still think I’m crazy for my condition.
Jenny
9 years ago
Is there a way I can sue Bayer?
Jenny
9 years ago
Thank you guys and Rene I will look into it, anything to help this situation. Some days I do see hope to recovering. Yoga sounds nice. I just want to feel better 🙁
Anyone here ever had a heart attack as result of floxing? Drs still don’t know what’s wrong with me, and I had a 10-min heart attack last fri night. Succeeding trip to ER revealed arrhythmia. My cardio ordered a 24-hr ECG test. Waiting for results while still dealing with chest pains, dizziness, muscle weakness in arms, tiredness, etc.
BW
9 years ago
Does anyone know if cipro toxicity can causr leukemia? Idk if this is a weird question, but im like covered in bruises all the sudden n have this huge mass on my chest I just woke up with like this morning? I looked up leukemia symptoms an surprisingly enough they r like a play by play for fq toxicity so idk whats happening
Debs
9 years ago
BW , just noticed in your post above that you have haemophilia, I would def get this checked out to be on the safe side.
BW
9 years ago
Thanks guys. @ Debs, I am but never bruise bc my platelets work, I dont bruise easily ironically enough, for me it was more of a joint thing. Dif hemos have dif symptoms, most people think if a hemo cuts themself shaving their dead lol not the case, Im covered in tattoos an all n actually bleed less then some of my friends ive been tatted with.. ill get it looked at if it doesn’t pass. Its just enormous tho like its running from under my armpit to all the way above my heart close to my neck. Normally I’d be scared but after floxing nothing scares me anymore lol ugh what a nightmare idk how u guys do it!
BW
9 years ago
That’s scary mel! I had a lot of bruising about 3 wks after on my inner thighs. This thing on my chest isn’t a bruise tho its some sort of mass.
BW
9 years ago
Its also so scary how much my appearance has changed. I literally look like im dying an sickly, like to the point my family is frightened. Yet before floxing I was tan, in shape normal looking an now I honestly look like a heroin feined skelator
Andrew im in the same boat as u I got two wisdom teeth bursting at the seems that need removal. I think you’ll be fine with local so long as it doesn’t contain epinephrine. As long as ur not taking floroquinolone again ur not getting refloxed. U might have ur symptoms flare for a wk or so but its not gona set u completely back. No one gets refloxed unless u take floros again, idk y ppl say that
Yes , as Rene states people need to be aware that the statins are in fact nothing but medical fraud & in fact are actually part of Big Pharmas long term agenda to try to get the whole world diagnosed with conditions for which there is no other treatment but to have to take their poisons for the rest of our lives, that’s if if you wish to stay alive. Please share this information far & wide http://youtu.be/sxWP3Q2M-Pw
‘ STATIN NATION ‘ is a documentary on the truth regarding the statins, which was made in the UK, I have the whole thing. it is well worth getting hold of, you can watch a taster of it here .http://youtu.be/Ry1Z8buyd8I
Jane, you’ve done a real lot of work. I also did not have a problem sleeping the first time round, quite the opposite. But the insomnia happened with refloxing.
I really congratulate you on your programme. I need to build up some strength but I am just getting thin. May I ask which country you are in? Do you have access to really good food there?
Debs, that’s awful. Not another one!
I didnt mean it to come out like that at all. Im very sorry for ur relapse and the fact u were floxed in general. Of course ppl suffer relapses that could be triggered by any number of things. But be comforted in the fact that ur over four yrs from ur initial flox an if u recovered for 3.5 yrs im sure of it that u can an will come out of this. Ive accepted the fact that im pretty sure ill never be the same but all we can do is hope n pray. I think u that u have rly good odds of recovering again. Nobody deserves this cruelty and honestly its heartbreaking esp bc no one rly understands our situation. U guys r all in my prayers
Ugh im so scared to get these teeth pulled now lol u guys r making me nervous. Im extremely severe an when I slack on my factor for my hemophilia I start urinating blood. Now pre flox I could go weeks even a mth with no factor an never ever had that happen to I believe for sure this will indeed shorten if not directly lead to my death in some way. I dont like to think like that but cant help it. Also I have a knee replacement which I now will never be able to have done again bc quite frankly im petrified of the anesthesia so if im even alive in 10 yrs I will be wheel chair bound. Its not a competition for who has this the worst an everyone is fighting there own battle but with my pre existing condition I know im heading toward some serious problems. The only thing keeping me going is my faith in god an my fam. I can deal with being wheelchair noun at some point if my mentality clears up an most ppl say even if it takes yrs that does most of the time clear so im really praying for that. When I was little I had such bad bleeds in my joints I needed a knee replacement by the time I was 10 yrs old, docs told me had to wait til at least 18 n even then they said the operation was out of the question, I switched docs had it done n the following year my ankle fussed. Went from being in agony my whole childhood to having a miracle happen an going to the gym religiously which was something I’d never thought I’d be able to do, to now being floxed n eventually I will wind up in that fuckin chair. Its like it was meant to be. But like I said rt now im mobile an trying any and everything to recover an miracles do happen trust me they do. A lot of sever hemophiliacs cant even get surgeries an I came through both of them with believe it or not minimal bleeding. So believe me when I tell u nothing is impossible. Im just upset bc im engaged n cant stop thinking of what kind of husband an man I can be to my wife if im gonna be a mental case n bed bound. Its sad but whats meant to be will find its way an everything happens for a reason. Mel idk where ur at but I did ozone yesterday an I swear within the hr I wanted to do laps around the street lol felt amazing an psych symptoms diminished greatly. Its not for everyone n there can be risks but as sick as ive been I woulda let someone shoot me full of cat piss if there was a slight chance of relief. Just hold on nothing is permanent an our existence on this planet is short compared to what awaits us. I truly believe theres a special place in heaven for those who endure suffering on earth. You gotta have faith an make the best of it, although believe me I know it is hard. I tried to take my life last mth n wound up in the hosp an I can assure that is not the way u wanna go. If I cant go back to work I will find a way to help others an fill my days with trying to just be positive. Just hold on you will be thankful u did. If there was a picture of someone’s face in the dictionary it would be mine. I had spent the last 3 yrs on pain pills suboxone, finally got my shit together got a cyst prob from detoxing from thos drugs had it removed and got floxed. Its like every time I get up I get knocked back down again. But I have to accept it as Gods will an not my will, I made some mistakes an I am paying dearly for them now, but we all gotta keep moving on.
Picture of someone’s face next to the word regret. ^ (meant to say)
Thank u Daniellea! Do u take any sups? Magnesium is supposed to be great for ur teeth esp during a floxed state. I honestly believe if I wasnt taking as much mag as I am my teeth would’ve fallen out. I have some puffy gums but nothing to serious n my teeth r very sturdy no wiggling, im gonna get a cleaning this mth an prob every few mths during this first yr. Hopefully between that an the mag things will settle down. I might not even get the wosdpm teeth pulled some ppl just have em grow in crooked n they email that way, but there is always risk of infection that way soooooo I rly gotta weigh my options. Have u had any allergy testing or any iv therapy. I slept 12 hours last night an 10 the night before after my ozone treatment I also drooled on my pillow I know gross but amazing for me bc my mouth has been so dry, an even my tinitus is getting lower. I honestly have to say the ozone is helping me tremendously. Up until I had it I was taking melatonin, v alerian, klonopin n ambien together lol not the smartest thing but I rly did n care, an was only sleeping a couple hrs a night. Ive taken nothing since the ozone n fell into deep rem sleep. Its worth looking into. Good luck to u, an im sure u will be seeing improvements soon 🙂
*remain that way. Not email that way. Lol sorry my phone just writes what it wants sometimes
Has anyone been diagnosed with SIBO post floxing? I have had a lot of digestive issues on top of tendonitis and probiotics and diet only help a little but do not completely address the issue. I was prescribed rifaximin but am so worried about taking more antibiotics at this point Has anyone tried this antibiotic?
This is bad.. I just flared up again after a couple months. I haven’t been to the one year mark yet of getting floxed but I don’t think it matters anymore. I uses to think If I could make it to the one year I’ll start recovering. I am 7 months pregnant and I think my hormones and lack of sleep are making me have flare ups. My whole body aches, my hands feel like arthritis. I thought prenatals would help, I think they are in some sense. But the fact that my little one in side of me is scaring me bad, is there any way she can feel this? I’m so mad at everything.. Why did this have to happen. I wish I could go back to that doctors appointment and throw the cipro in his face maybe push him down a flight of stairs too. A mild uti infection and I was givin cipro.. I don’t think I’ll recover. Actually I don’t see how it can get better . The flare ups hurt pretty bad. Will this thing eventually eat away at my body? Please someone be truthful. And will my babygirl have any problems I do??
Plus whenever I have a flare up I think the baby can feel my stress and she moves around a bunch. It sucks. Just took so tylonel so will see. I’ve been on and off of this site since the week after I was floxed. Things haven’t got much better my wrists still pop and people still think I’m crazy for my condition.
Is there a way I can sue Bayer?
Thank you guys and Rene I will look into it, anything to help this situation. Some days I do see hope to recovering. Yoga sounds nice. I just want to feel better 🙁
Anyone here ever had a heart attack as result of floxing? Drs still don’t know what’s wrong with me, and I had a 10-min heart attack last fri night. Succeeding trip to ER revealed arrhythmia. My cardio ordered a 24-hr ECG test. Waiting for results while still dealing with chest pains, dizziness, muscle weakness in arms, tiredness, etc.
Does anyone know if cipro toxicity can causr leukemia? Idk if this is a weird question, but im like covered in bruises all the sudden n have this huge mass on my chest I just woke up with like this morning? I looked up leukemia symptoms an surprisingly enough they r like a play by play for fq toxicity so idk whats happening
BW , just noticed in your post above that you have haemophilia, I would def get this checked out to be on the safe side.
Thanks guys. @ Debs, I am but never bruise bc my platelets work, I dont bruise easily ironically enough, for me it was more of a joint thing. Dif hemos have dif symptoms, most people think if a hemo cuts themself shaving their dead lol not the case, Im covered in tattoos an all n actually bleed less then some of my friends ive been tatted with.. ill get it looked at if it doesn’t pass. Its just enormous tho like its running from under my armpit to all the way above my heart close to my neck. Normally I’d be scared but after floxing nothing scares me anymore lol ugh what a nightmare idk how u guys do it!
That’s scary mel! I had a lot of bruising about 3 wks after on my inner thighs. This thing on my chest isn’t a bruise tho its some sort of mass.
Its also so scary how much my appearance has changed. I literally look like im dying an sickly, like to the point my family is frightened. Yet before floxing I was tan, in shape normal looking an now I honestly look like a heroin feined skelator