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Dean
10 years ago
Right its been one month since I took my last cipro pill. I am feeling okay so far! Every pain is occasional! The worst pain is the neck and chest but it only happens maybe 3 or 4 times a day! I was taking a calcium, magnesium and vitamin supplement which I recently came off. I also took liver detox tablets aswell as glucosamine which I have also stopped taking. I can walk fine and even jog however I am refraining from this for a few more months. My symptoms are very mild and I hope they will dissappear within a couple of months. Below are all my symptoms
Wrist pain
Pins and needles in fingers
Anal pain and itching
Head pain / tension
very slight pain in knees (more uncomfortable than pain)
Metallic feeling in mouth (probably due to drinking tap water)
Im hoping my symptoms resolve soon.
Ben
10 years ago
Hi Lane, (and others),
I’m at 18 months and have neuropathies, (all over the body at times, but worst is in my feet). It seems you are about the same in terms of time since floxing? You mention you are seeing some improvement? The symptoms you describe while on your way to Ohio are similar to mine. I think mine are stabilizing now. I’ve tried a lot of things btw, (NAD IV, H202 IV, hyperbaric chamber, Ozone therapy, low-dose naltrexone, ketamine IV, lots and lots of supplements etc.). Not sure if any of these have helped but if anyone has any questions let me know. I took huge amounts of Cipro and Levaquin while overseas btw (had no idea what they were, just took what I was given), i.e. 100+ pills over a 2 year period) so maybe I should be a lot worse than I am although the last year has been hell. I had a full neuro work-up at Mayo and they could only confirm I had “idiopathic” sensory neuropathy. They did not want to enter into a discussion about fluoroquinolones though they did note in my file that I had taken them.
I had been taking magnesium btw, but then went off it after reading (in the Flox Report, I think) that some people find it worsens their neuropathy symptoms. I don’t know, I just started again so will see if it makes me better (or worse). For everyone else magnesium seems to be a mainstay. Never listen btw when doctors and drug companies say that certain symptoms are “irreversible”. That just is not true.
Best of luck to everyone. I think time is our best ally on this journey. I’m keeping positive. I’ll get through it. You will too.
Dean
10 years ago
Thank you Lisa! Yeah I feel I have been hit mildly compared to others, maybe due to my age? My biggest fear is the anal itching and severe pain. Although not persistent it is extremely painful and embarrassing and it worries me that it could be a more serious underlying problem. I wish everyone all the best with there recoveries, you will recover!
Thank you so dearly for sharing with me. I admire your positive attitude, every words you wrote say something about you – a man of strength and a believer of good life.
Yes R-ALA + acetyl L carnitine is a great combi, i found just yesterday while googling for nerve pain solution. i found neuropathy from FQ has symptoms really similar to diabetic and chemo induced drug. As you probably know, FQ is a form of chemo drug too. So i think it’s good to look along the line of chemo patient recovery path
may i suggest whey protein too? my knee joint is cured just by taking whey protein! i still have some pain if i knee down or take stairs but compared to before, it has shown so much improvement! especially i am able to walk . i never knew the power of whey protein thought it’s only great for athletics for their pre/post workout till i read it raise glutathione level. whey protein is also a holistic approach naturopath doctor used to treat patient.
also do eat fish oil. it will never go wrong with fish oil. it help with so many health condition and also flush out toxins. (oil binds to toxins in blood and excreted out..)
plus, milk thistle.
i’m 3 months out with sore and painful achilles. however what is the most difficult to shed off is my shoulder/arm/wrist pain and with numbness. I thought of going to trigger point massage to solve that miserable pain.
concurrently i am going acupuncture 2x a week.
i am happy to learn you practice Qi gong! Qi gong awake your inner body function and let it flow happily too. how cool is that, Ben! 🙂
yes, trust our body, it’s an innate healer!
Thank you so much, Ben. 🙂 you brought light 🙂
Love
Jarene
marni
10 years ago
Hello, my name is Marni. I recently found out I had a year of exposure to toxic mold found in my rental home. I became asthmatic and had a list of 23 symptoms including nose bleeds, headaches, and tremors. I ended up in the hospital with severe abdominal pain after waking up one morning. Was diagnosed with a urinary tract infection. Even told the doctor about the mold. Showed her pictures and lab reports. She seemed uninterested. She prescribed me Cipro. After about the fish day Istarted eexperiencing fibro mi alga like pain e’s in my neck and shoulder. Thought it was from bulging disc’s I had in my neck. Went to my chiropractor because I could usually get relief that way. Wrong! The pain increased over the next couple of days and is still severe. 24/7. Unbearable! Through joining a support group for toxic mold and telling my story I was referred to this site. I am on an organic diet of meat and vegetables only. Will be beginning a detox regiment for the toxins shortly. Is there any advice anyone can offer at this point?
Dean
10 years ago
I also want to add that Im taking a magnesium tablet 3 times a day. Im also taking a probotic 1 time a day? Is that enough?
I also bought some Nux Vomica, is it safe to take alongside my other tablets?
Hey everyone hope you are all getting better day by day, I feel like I’m on the verge of getting over being floxed..only thing is this horrible head pain/pressure every day non stop, since taking pain meds is not recommended what kind of advice would u guys give me..thanks !
Nick
10 years ago
Hello everyone. I want to thank everyone one here for their words and thoughts.
This is a very very helpful website. My problems started about a month ago. An ER trip for a suspected urethritis (turns out there was no infection by the way)and a doc gave me a prescription for zithromyacin and cipro. Felt like hell in about a day. Stopped cipro after 3 500mg pills. Tendonitis, muscle spasm, muscle tightness pain, anxiety attack and fear! its almost a month later. I initially stopped working out with my weights because I was afraid of injuring myself. Fear became overwhelming and a terrifying experience. I went back to the doctors of course and they have nothing to add. So I am done with them. I have since increased all of my nutrients. I refuse to let fear control me. I know I was affected. I know I was poisoned. I know my body was fighting, fighting and fighting these toxins. I felt it.
I have been going through the stages of coping mechanisms Shock or Disbelief, denial, anger, bargaining, guilt, depression, and acceptance and hope.
From all the stress of being floxed I developed a head cold. (unreal right?) I have also reevaluated my life which is a good thing. I was extremely self centered. Ignored my children and wife and took for granted the unbelievable blessings that I have been given. I have refound my religion also. I am now trying to right the wrongs I have done. I am trying to move and workout now, something, anything. I believe there is a reason for everything. Good can come out of evil. I don’t know how my story will turn out, I am not 100 yet. but that is not important anymore. The fight is. Fight
Thank you Lisa for creating and bringing all of these victims together to help one another. Your work and positive attitude can help more people than you know.
Kim
10 years ago
Hello Lisa,
Are you (or anyone) aware of others who might have had weird buzzing and burning and prickling sensations literally all over the body..and if so did they ever subside? Thank you.
When someone writes an article he/she keeps the plan of a user in his/her mind that
how a user can understand it. So that’s why this post is amazing.
Thanks!
Catherine
10 years ago
Hi everyone
It’s been 6 1/2 months since my last avelox tablet, and I’m still completely bedbound. I lost hope of recovery a while ago, but I was hoping that I wouldn’t get any worse.
However, the last few days have been horrific. I have this constant feeling that I’m dying, like my body is dissolving or melting, and that the bed is moving around continually underneath me. It’s such a strange sensation, that it’s really hard to describe. At the same time, my body feels”tight” all over – as if every muscle is in spasm, from scalp to toes. It’s impossible to get comfortable, let alone get any sleep. I feel lightheaded and short of breath all the time, and as though I’m ‘cooking’ internally. All this is on top of the many other symptoms common to most floxed people. I don’t even know if these symptoms are due to the floxing, or if they’re caused by something else. Has anyone else heard of these symptoms being experienced after being floxed?
Thanks
Catherine xx
Roland
10 years ago
I took Cipro 500mg for 3 weeks and then Levaquin 750 mgs for 10 days in late 2012. There is a before and after I took those pills. My reaction (Achilles Tendinopathy) came when I took the Levaquin. My life has never been the same. Its been 16 months. I have had some great weeks and months but then regular flareups. Seen countless specialists. They smugly say that this is rare and no longer in my system and that this should resolve on its own. I thought it was time to share this experience with people like me. This has caused me more tears and pain in months than I have had in my whole life. My currents symptoms are Achilles tenderness, sensitivity and tightness witg discomfort. I have tried the Alfredson heel drops but this always seems to aggrivate it. I have had MRI, ultrasounds, Xrays and all come back “normal”-no tears or apparent damage to my tendon structure. Also had several neuro tests done as I also experienced slight numbing on my other foot. Again. All normal they say. They just see inflammation. Thats all. I am now considering Shockwave Treatment and PRP injections. I was wondering if anyone had a similar experience with their Achilles. I am in month 16. May this perhaps resolve in another 6 to 8 months as they say this could take 2 years. Are there any supplements you suggest? I am a big supplement taker (multivitamin, fish oil, vit c, magnesium) but sometimes I can swear one of those causes a flareup. Any and all advice would be aporeciated. I just want to have some hope that this is temporary and not irreversible. I feel and pray for you all. Doctors and conventional medicine make us feel as if it is in our mind and that there is really no connection. I dont trust what doctors assure me anymore. All they say is it will get better with time. I rather hear from real people like me. Thanks for any feedback I get.
Katie
10 years ago
Hello,
What would a medrol dose pack probably do to me if I took it now? I took my last pill 2 months ago. I seriously think I have a pinched nerve due to picking up my toddler and need some relief. Just wanted to see what reactions people have had to them. I didn’t know if it was affecting nerve pain or tendon pain.
Thanks!
Nick
10 years ago
@teresa I understand. have you ever done physical therapy for the tendinopathy? I am having the pains in my achilles and musculotendon junction. I’m sure it is part from a weakening and part from not using the muscle properly for a few weeks. God bless.
Josh
10 years ago
I so appreciate all of the great stories on this site! My Dr. Has me taking xanax to manage my anxiety, has anyone had any challenges related to xanax? I know carries a risk of dependence so I’m careful to not take it when absolutely necessary but I’m curious if it could potentially make things worse on the long run.
Katie
10 years ago
For anyone who has the burning in your feet, did your veins start showing more too? My veins are not prominent on my feet and swell. They have never been visible before. Just wanted to see if anyone else experienced this.
Thanks!
df
10 years ago
Apply coconut oil (unrefined) on aching muscles. I hope you get better if you are suffering from this. Sending hugs and prayers
Tiffany
10 years ago
Have any of you had new symptoms popping up regularly even after 6 months? I took 10 doses of Cipro last September, and I’m still having new symptoms (neuropathy, vertigo, bursitis, etc….) pop up consistently every week or two, adding to the running list of symptoms I have already. I’m wondering if anyone has had this (most people on the site seemed to experience one megadose of symptoms during the first few weeks which slowly got better over time), and what the prognosis is.
Also, have any of you taken Plaquenil after being Cipro poisoned? My doctors want me to try it to see if it will help, but I’m concerned since it is an anti-malarial drug that seems potentially dangerous.
Right its been one month since I took my last cipro pill. I am feeling okay so far! Every pain is occasional! The worst pain is the neck and chest but it only happens maybe 3 or 4 times a day! I was taking a calcium, magnesium and vitamin supplement which I recently came off. I also took liver detox tablets aswell as glucosamine which I have also stopped taking. I can walk fine and even jog however I am refraining from this for a few more months. My symptoms are very mild and I hope they will dissappear within a couple of months. Below are all my symptoms
Wrist pain
Pins and needles in fingers
Anal pain and itching
Head pain / tension
very slight pain in knees (more uncomfortable than pain)
Metallic feeling in mouth (probably due to drinking tap water)
Im hoping my symptoms resolve soon.
Hi Lane, (and others),
I’m at 18 months and have neuropathies, (all over the body at times, but worst is in my feet). It seems you are about the same in terms of time since floxing? You mention you are seeing some improvement? The symptoms you describe while on your way to Ohio are similar to mine. I think mine are stabilizing now. I’ve tried a lot of things btw, (NAD IV, H202 IV, hyperbaric chamber, Ozone therapy, low-dose naltrexone, ketamine IV, lots and lots of supplements etc.). Not sure if any of these have helped but if anyone has any questions let me know. I took huge amounts of Cipro and Levaquin while overseas btw (had no idea what they were, just took what I was given), i.e. 100+ pills over a 2 year period) so maybe I should be a lot worse than I am although the last year has been hell. I had a full neuro work-up at Mayo and they could only confirm I had “idiopathic” sensory neuropathy. They did not want to enter into a discussion about fluoroquinolones though they did note in my file that I had taken them.
I had been taking magnesium btw, but then went off it after reading (in the Flox Report, I think) that some people find it worsens their neuropathy symptoms. I don’t know, I just started again so will see if it makes me better (or worse). For everyone else magnesium seems to be a mainstay. Never listen btw when doctors and drug companies say that certain symptoms are “irreversible”. That just is not true.
Best of luck to everyone. I think time is our best ally on this journey. I’m keeping positive. I’ll get through it. You will too.
Thank you Lisa! Yeah I feel I have been hit mildly compared to others, maybe due to my age? My biggest fear is the anal itching and severe pain. Although not persistent it is extremely painful and embarrassing and it worries me that it could be a more serious underlying problem. I wish everyone all the best with there recoveries, you will recover!
Dear Ben,
Thank you so dearly for sharing with me. I admire your positive attitude, every words you wrote say something about you – a man of strength and a believer of good life.
Yes R-ALA + acetyl L carnitine is a great combi, i found just yesterday while googling for nerve pain solution. i found neuropathy from FQ has symptoms really similar to diabetic and chemo induced drug. As you probably know, FQ is a form of chemo drug too. So i think it’s good to look along the line of chemo patient recovery path
e.g.
http://doctornalini.com/chemotherapy-side-effects-relief-from-nerve-pain/
may i suggest whey protein too? my knee joint is cured just by taking whey protein! i still have some pain if i knee down or take stairs but compared to before, it has shown so much improvement! especially i am able to walk . i never knew the power of whey protein thought it’s only great for athletics for their pre/post workout till i read it raise glutathione level. whey protein is also a holistic approach naturopath doctor used to treat patient.
also do eat fish oil. it will never go wrong with fish oil. it help with so many health condition and also flush out toxins. (oil binds to toxins in blood and excreted out..)
plus, milk thistle.
i’m 3 months out with sore and painful achilles. however what is the most difficult to shed off is my shoulder/arm/wrist pain and with numbness. I thought of going to trigger point massage to solve that miserable pain.
concurrently i am going acupuncture 2x a week.
i am happy to learn you practice Qi gong! Qi gong awake your inner body function and let it flow happily too. how cool is that, Ben! 🙂
yes, trust our body, it’s an innate healer!
Thank you so much, Ben. 🙂 you brought light 🙂
Love
Jarene
Hello, my name is Marni. I recently found out I had a year of exposure to toxic mold found in my rental home. I became asthmatic and had a list of 23 symptoms including nose bleeds, headaches, and tremors. I ended up in the hospital with severe abdominal pain after waking up one morning. Was diagnosed with a urinary tract infection. Even told the doctor about the mold. Showed her pictures and lab reports. She seemed uninterested. She prescribed me Cipro. After about the fish day Istarted eexperiencing fibro mi alga like pain e’s in my neck and shoulder. Thought it was from bulging disc’s I had in my neck. Went to my chiropractor because I could usually get relief that way. Wrong! The pain increased over the next couple of days and is still severe. 24/7. Unbearable! Through joining a support group for toxic mold and telling my story I was referred to this site. I am on an organic diet of meat and vegetables only. Will be beginning a detox regiment for the toxins shortly. Is there any advice anyone can offer at this point?
I also want to add that Im taking a magnesium tablet 3 times a day. Im also taking a probotic 1 time a day? Is that enough?
I also bought some Nux Vomica, is it safe to take alongside my other tablets?
Many thanks
Dean
Hey everyone hope you are all getting better day by day, I feel like I’m on the verge of getting over being floxed..only thing is this horrible head pain/pressure every day non stop, since taking pain meds is not recommended what kind of advice would u guys give me..thanks !
Hello everyone. I want to thank everyone one here for their words and thoughts.
This is a very very helpful website. My problems started about a month ago. An ER trip for a suspected urethritis (turns out there was no infection by the way)and a doc gave me a prescription for zithromyacin and cipro. Felt like hell in about a day. Stopped cipro after 3 500mg pills. Tendonitis, muscle spasm, muscle tightness pain, anxiety attack and fear! its almost a month later. I initially stopped working out with my weights because I was afraid of injuring myself. Fear became overwhelming and a terrifying experience. I went back to the doctors of course and they have nothing to add. So I am done with them. I have since increased all of my nutrients. I refuse to let fear control me. I know I was affected. I know I was poisoned. I know my body was fighting, fighting and fighting these toxins. I felt it.
I have been going through the stages of coping mechanisms Shock or Disbelief, denial, anger, bargaining, guilt, depression, and acceptance and hope.
From all the stress of being floxed I developed a head cold. (unreal right?) I have also reevaluated my life which is a good thing. I was extremely self centered. Ignored my children and wife and took for granted the unbelievable blessings that I have been given. I have refound my religion also. I am now trying to right the wrongs I have done. I am trying to move and workout now, something, anything. I believe there is a reason for everything. Good can come out of evil. I don’t know how my story will turn out, I am not 100 yet. but that is not important anymore. The fight is. Fight
Thank you Lisa for creating and bringing all of these victims together to help one another. Your work and positive attitude can help more people than you know.
Hello Lisa,
Are you (or anyone) aware of others who might have had weird buzzing and burning and prickling sensations literally all over the body..and if so did they ever subside? Thank you.
wonder if anyone has tried zeotrex to detox?
http://www.globalhealingcenter.com/zeotrex.html#overview
does any ladies found your pain/discomfort is more pronounced during menses?
today my menses came and my feet seems more painful.
When someone writes an article he/she keeps the plan of a user in his/her mind that
how a user can understand it. So that’s why this post is amazing.
Thanks!
Hi everyone
It’s been 6 1/2 months since my last avelox tablet, and I’m still completely bedbound. I lost hope of recovery a while ago, but I was hoping that I wouldn’t get any worse.
However, the last few days have been horrific. I have this constant feeling that I’m dying, like my body is dissolving or melting, and that the bed is moving around continually underneath me. It’s such a strange sensation, that it’s really hard to describe. At the same time, my body feels”tight” all over – as if every muscle is in spasm, from scalp to toes. It’s impossible to get comfortable, let alone get any sleep. I feel lightheaded and short of breath all the time, and as though I’m ‘cooking’ internally. All this is on top of the many other symptoms common to most floxed people. I don’t even know if these symptoms are due to the floxing, or if they’re caused by something else. Has anyone else heard of these symptoms being experienced after being floxed?
Thanks
Catherine xx
I took Cipro 500mg for 3 weeks and then Levaquin 750 mgs for 10 days in late 2012. There is a before and after I took those pills. My reaction (Achilles Tendinopathy) came when I took the Levaquin. My life has never been the same. Its been 16 months. I have had some great weeks and months but then regular flareups. Seen countless specialists. They smugly say that this is rare and no longer in my system and that this should resolve on its own. I thought it was time to share this experience with people like me. This has caused me more tears and pain in months than I have had in my whole life. My currents symptoms are Achilles tenderness, sensitivity and tightness witg discomfort. I have tried the Alfredson heel drops but this always seems to aggrivate it. I have had MRI, ultrasounds, Xrays and all come back “normal”-no tears or apparent damage to my tendon structure. Also had several neuro tests done as I also experienced slight numbing on my other foot. Again. All normal they say. They just see inflammation. Thats all. I am now considering Shockwave Treatment and PRP injections. I was wondering if anyone had a similar experience with their Achilles. I am in month 16. May this perhaps resolve in another 6 to 8 months as they say this could take 2 years. Are there any supplements you suggest? I am a big supplement taker (multivitamin, fish oil, vit c, magnesium) but sometimes I can swear one of those causes a flareup. Any and all advice would be aporeciated. I just want to have some hope that this is temporary and not irreversible. I feel and pray for you all. Doctors and conventional medicine make us feel as if it is in our mind and that there is really no connection. I dont trust what doctors assure me anymore. All they say is it will get better with time. I rather hear from real people like me. Thanks for any feedback I get.
Hello,
What would a medrol dose pack probably do to me if I took it now? I took my last pill 2 months ago. I seriously think I have a pinched nerve due to picking up my toddler and need some relief. Just wanted to see what reactions people have had to them. I didn’t know if it was affecting nerve pain or tendon pain.
Thanks!
@teresa I understand. have you ever done physical therapy for the tendinopathy? I am having the pains in my achilles and musculotendon junction. I’m sure it is part from a weakening and part from not using the muscle properly for a few weeks. God bless.
I so appreciate all of the great stories on this site! My Dr. Has me taking xanax to manage my anxiety, has anyone had any challenges related to xanax? I know carries a risk of dependence so I’m careful to not take it when absolutely necessary but I’m curious if it could potentially make things worse on the long run.
For anyone who has the burning in your feet, did your veins start showing more too? My veins are not prominent on my feet and swell. They have never been visible before. Just wanted to see if anyone else experienced this.
Thanks!
Apply coconut oil (unrefined) on aching muscles. I hope you get better if you are suffering from this. Sending hugs and prayers
Have any of you had new symptoms popping up regularly even after 6 months? I took 10 doses of Cipro last September, and I’m still having new symptoms (neuropathy, vertigo, bursitis, etc….) pop up consistently every week or two, adding to the running list of symptoms I have already. I’m wondering if anyone has had this (most people on the site seemed to experience one megadose of symptoms during the first few weeks which slowly got better over time), and what the prognosis is.
Also, have any of you taken Plaquenil after being Cipro poisoned? My doctors want me to try it to see if it will help, but I’m concerned since it is an anti-malarial drug that seems potentially dangerous.
Thanks!