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Jason
9 years ago
UTI – People who have this or think they have this, should seriously consider natural remedies, especially before antibiotics, and I know some of you have, BUT, DON’T JUST TRY ONE!!!! WHY? The great thing about Natural remedies is that they almost never negatively interact with each other, unlike drugs, and they almost never had any bad side effects either.
Again, the Earth Clinic can be Instrumental in helping people heal themselves naturally, I don’t know if people are really reading the advice given on these pages, seems in some cases they are not, I mean when you see MANY people doing the same things and they work, that should be a clue that they DO indeed work, for most, and are worth trying.
Don’t just try Cranberry juice and hope that only that will work, why? There are more things that can help!!! And another thing about Cranberry Juice, are you just buying the one from the Grocery store shelf and hoping that will help? Made from concentrate etc? Come on folks. If you are serious about curing something you need to take serious measures not half fast ones. Go to the Health Food Store and buy a 100% pure concentrate, now you will have healing power, and don’t just buy the cheapest one either. Dynamic Health makes the best Tart Cherry Juice concentrate I could find, and by the looks of the reviews on Amazon, they make an excellent Cranberry Juice concentrate too, just go to Amazon and search “Dynamic Health Cranberry Concentrate Juice” and you will see the one I am referring to.
So if you actually go to the link above, you will see that APPLE CIDER VINEGAR, not CJ, is reported to be the most effective natural cure for a UTI, with 90 votes (this is a lot for EC). Note the next reported best cure is not CJ itself but a powder derived from it, 24 votes. Here is a comment regarding it and how to use it:
Quote” A natural sugar found in Cranberries is called D-Mannose powder, available at all health food stores. If you have a UTI, take1 teaspoon every few hours for a day. Within 30-45 minutes of the first dose, the pain and fevers will be gone, and the burning. It is a miracle supplement! . It works by making the urethra walls slippery and so the bacteria can’t hold on. It’s so much easier and healthier than antibiotics.”
More comments:
“Just wanted to follow up my post from 3 nights ago. The ACV bath worked! I have had no more bladder infection symptoms… zero! I did drink water with 1/8th teaspoon of baking soda for the next 24 hours to help with alkalinity.”
“Coconut milk and coconut water are my go to for bladder infections. It goes away pretty much the same day after drinking coconut milk.”
I too had numerous urinary tract infections and lots of antibiotics for them, before I learned to both avoid them in the first place and cure them early on. To cure them when I feel one coming:
– Drink a tall glass of water, or two. Or three.
– Absolutely do not consume anything sugary. Sugar feeds the UTI and makes it much worse. So soda does not count as water, it is anti-water here.
– I mix a tablespoon of baking soda in a tall glass of water (12 oz?), just stir it with a spoon and drink as much as I can. It tastes so vile I have to force it down, but this coctail has not failed me once since I found it. I have nipped every UTI (which come rarely now anyway) in the bud with extra water and the baking soda drink, but more advanced cases may require repeated doses.
Replied by Kathy, Clemmons, Nc, 04/24/2015 – Was in great discomfort today with UTI. Came home and read on this site about baking soda and vinegar. Almost immediate relief. Thank you Earthclinic!
Posted by Kk (Ny) on 05/10/2011 – I suffer from frequent urinary tract irritations and do not always want to go on antibiotics. I have tried almost every remedy out there from nettle tea to probiotics. For the past two episodes, I found a recommendation on the internet to drink a teaspoon of baking soda diluted in water and miraculously the burning goes away almost instantly.
========
What might work one time, may not work another time. What might work for one person, may not work for another
What would I do if I thought I had a UTI and did not want to take poison antibiotics? I would get serious about natural remedies, do some homework on EC and then use Apple Cider Vinegar AND Cranberry Juice concentrate AND Baking Soda AND Coconut Milk and maybe a couple other things, and I bet you it would work big time.
John
9 years ago
Thanks Brian and Rene for ur responses. I appreciate everyones comments and advice. Im leaning towards the testosterone therapy but will ask my end doc for other alternatives although he implied there is no supplement i can take that can help my low t situation I will update and let u know what effects positive or negative i have thanks again.
A friend in the legal field just shot me a message noting that a lot of the advice on here is very prescriptive – “do___” – “take ____”. If you can all please try to add caveats to the advice that you give, it will help to protect both you and me from potential litigation. Noting what you’ve experienced personally is more than fine–it’s greatly appreciated! Referring people to articles, especially peer reviewed articles, is also great. Noting what has helped other people is good too. I know that a lot of people come here looking for concrete advice and guidance. But, the unfortunate fact is, there is no tested and verified protocol for getting through FQ toxicity. Until those tests happen, the experiences of fellow patients is what we have to guide us through this difficult time. And the guidance that people provide on this site is very much appreciated – it really is! I just ask that you please be wary of the litigious nature of the world as you’re giving guidance. Please make sure that it’s clear that you’re not a doctor and that the advice you’re giving is based on your personal experience, or the experience of others, or on your research. Thank you, and sorry for being naggy. I wish I didn’t need to be… and I probably don’t… but a lawsuit would be horrible. THANKS!
Jen
9 years ago
I guess it’s just assumed that people would know that this is a support site and that people giving advice on here are not doctors but fellow floxies. But I guess we live in a world where we need to cover our behinds…better to be safe than sorry. Thank you Lisa for the important FYI and all that you do! 🙂
tricia
9 years ago
To Debs or Jen, or anyone else familiar w antibiotics. I went to the dr today about possible Uti. It tested positive for 1+ leukocytes, but that’s about it. So its not a bad infection, but he thinks its still an infection.I’m waiting for the culture to come back before I take any antibiotics. He suggested Keflex. I’ve never heard of it…but is that a ” safe” alternative??? I’ve been doing every other nstural modality upon treating this thing…hopefully I won’t need any antibiotics
Pavla
9 years ago
Hi, first at all, I have to appologize for my English, spelling. I am originally from Czech republic. This is my story……. ENT doctor prescribe me Levofloxacin 500 mg/10days for sinus infection. Lost my sense of smell and taste 3,5 months ago…..
Started taking that 3/31/15. The weather here in st.Louis was mild, around 50-60F, so I wasn’t feeling, that I see no difference between temperature. Now, when temperature outside is about 90, I know, it is not right. Sitting outside or sitting inside with AC…. No still fell same. Started having crazy symptoms about 5-6 days after a started taking that. No urge to urinate/b, loss of sensation, minimum pain (shaving legs, cut and no pain, just see blood). Sleeping 5-6 hours with same possition because dont fell any pressure. Reading book, holding my head and not feeling pressure. Legs and arms working, but “from distance” – less touch. Walking on cold surface, not feeling. Hot, cold nothing. Crazy. I also had back surgery last summer (rods, screws) so doctor should not prescribe that s….
Went to see primary doctor, neurologist today and both of them looked me as crazy women. Do not know, what I should do and what I can do. I was thinking, that I am crazy, until I google velofloxacin side effect. I did and I did not read the paper that comes with pills because … I promised to my husband and myself that I will not to do that, because all are same. Stupid. Called the ENT doctor and of course, they said that is not possible. Have to stay home, can not work. Thinking about that approx. 25/day.
What to do, who can I blame, contact lawyer??? I am sure I probably singed some document in dr.office that I will never put the claim on him.
Pavla
mike
9 years ago
Jason I feel for you about your brian fog issues. I have brain fog from being floxed but also from NCS (neurocardiogenic syncope) which has gotten worse for me since I’ve been floxed. Ever looked into autonomic dysfunction as a cause of your brain fog?
By the way I suspect you might be right about exercise sort of stiring things up. You might be onto something about that being a time to detox
Jen
9 years ago
Just a general question for anyone regarding magnesium. I’ve been taking oral mag in pill form without any issues and have tried the mag oil with no burning/stinging. Last night I decided to try the Natural Calm mag supplement powder and only had about 3/4 tsp close to bedtime..shortly after taking it I got a little dizzy. Didn’t think much of it and went to bed. This morning I woke up feeling a little dizzy and nauseous. Anyone have similar experience? Any feedback would be appreciated. Thanks!
Jen
9 years ago
Debs, thank you for the information. I suffer from acid reflux occasionally and am able to manage without meds (omeprazole) for the most part. But every once in awhile I need to take them. I haven’t needed to take them since being floxed but I had a really bad bout yesterday and thought about taking them. Of course now I’m so paranoid about any meds that’s why I asked on this site. I researched online for natural remedies and found info on ACV and baking soda. I tried the baking soda and it seems to have helped some. Thanks again for the info!
I ust wanted to post an update- I haven’t been on here in a while. I took cipro back in January and started experiencing VERY odd things/pains etc. Then realized that I had been floxed. I spent a lot of time reading posts here and decided to dive in with the supplements. I’m not sure if they work – but my reaction seems to have been controlled. So I’m going to keep taking them.
These were my symptoms:
aching knees
achilles pains
occasional blurry vision – s
anxiety
This went on for a few weeks to varying degrees, slowly started feeling better – But I have been taking the following supplements vigilantly since then:
Trace Minerals Mega Mag – drop it in my water basically all day long
Liquid D3 5000iu – at least once a week
Move Free total joint health glucosamine and chondroitin
Probiotics
D-mannose – to help prevent further UTI’s which is how I ended up on the stupid cipro to begin with (btw this stuff WORKS)
I still have occasional knee pain, shoulder pain, blurry vision, and achililes pains – not my normal body, but I can live with this if this is the extent of the damage (fingers crossed).
I also started working out again about a month after the floxing. I went back to yoga, i avoid impact of any kind, I do pilates sometimes. I have to be very careful w my joints. I can tell the aren’t as strong. Building muscle is very helpful to taking weight off of your joints, even if you really can’t workout per se, just do things like wall-sits to engage your muscles and strengthen them, oh and also planks. These things are super gentle on your joints and will give you results 🙂
I’m HOPING that I’m very lucky, and realize that I could still pull something or maybe the effects will come back. I think I’m in the clear.
I wanted to post this bc others like myself will read these posts right after their floxing and become so overwhelmed and think that they may experience the worst case scenario themselves. It seems different for everyone, and I think taking supplements and gently exercising will make you feel that you are in some control and actually may help.
Jen
9 years ago
Thank you everyone for your posts! So much valuable information.
Jason
9 years ago
I promise I will stop posting at some point, but I found something while researching Fibromyalgia remedies that could REALLY help Floxies here and wanted to share it….
D-Ribose is a simple carbohydrate molecule found in every cell in the human body, and is critical in the continuous production of ATP, the molecule which gives our muscles
and our heart the energy they need to perform. ATP production within the mitochondria benefits from D-ribose supplementation in two ways: ATP production from scratch can be increased up to 400%, and the more efficient recycling or salvaging method can increase up to 700% D-Ribose in supplemental form is absorbed at a rate of up to 95%. Use 5 grams up to three times a day for pain associated with fibromyalgia or lack of energy from cancer treatment.
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Okay, I don’t know how accurate those numbers are but they are certainly exciting and promising from a Floxie point of view. We know our Mitochondria has been damaged, and that ATP is in the toilet (severe case Floxies really know this unfortunately well) very similar to what happens from Cancer Drugs. So it would make perfect sense that this would be a VERY helpful supplement indeed, and yet I have never ever seen it mentioned anywhere.
Quote: “Re-energize patients with coenzyme Q10 (CoQ10), L-carnitine, magnesium and ribose. People with fibromyalgia (and its common sidekick, chronic fatigue syndrome) often have below-normal levels of adenosine triphosphate (ATP), the energy that fuels your cells. They also typically have a reduced ability to manufacture ATP in muscle cells.
To improve cellular energy, I prescribe 200 mg of coenzyme Q10, 500–1,000 mg of L-carnitine, 500–1,000 mg of magnesium, and 10–15 g of ribose, all of which should be taken daily in divided doses.
Though all of these nutrients are involved in cellular energy, ribose may be the most important. In one study, researchers gave 41 patients with fibromyalgia and/or chronic fatigue syndrome 5 grams of ribose three times a day. After four weeks, nearly 70 percent of the participants had significant improvements in symptoms and quality of life thanks to this treatment for fibromyalgia”
—-
Note that these 4 things possibly came from Dr Stephen Sinatra’s “awesome foursome”. Quote from him, “My Awesome Foursome is based on what I call metabolic cardiology. That is, your heart runs on a fuel called ATP and nature has provided four unbelievably powerful nutrients—CoQ10, L-carnitine, D-ribose, and magnesium—that work together to help your body produce it. And the more ATP your body makes, the stronger, healthier, and more powerful your heart can become”
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So we see two of these recommended for Floxies all the time, CoQ10 (antioxidant & other benefits) and Mag (many benefits). I added L-carnitine recently but it looks like D-ribose is potentially the most important one when it comes to ATP. A quick look over at Amazon you see some very promising reviews, just search “Doctor’s Best Best D-Ribose Featuring Bioenergy Ribose, 250-Gram” at Amazon to find comments like this to confirm all the above:
“I have fibromyalgia with fatigue syndrome and I would have only 2, maybe three days a year that I would feel “normal” and able to function. I feel so much better with D-Ribose and I am able to function. My husband noticed that I have been feeling a lot better and I have been able to do a lot more than usual after just one month’s use.”
“I have fibromyalgia, read about D-Ribose and I’ve been taking it for over 6 months. It truly does help with fatigue and mental hiccups.”
“Normally, things that work for me show the benefit pretty quick (a matter of days). So when I hadn’t noticed any appreciable improvement to my daily stamina, I assumed it wasn’t going to work for me. Kept taking it though, and a few days later realized I still had energy when I got home from work. My thoughts were clear, I didn’t need to take a nap, and my sleep patterns appeared to improve. I come home with enough mental/physical energy left to act like a real human being for a few hours before bedtime.”
“I struggled with persistent fatigue for years. When I did try to exercise it was exhausting. After reading “From Fatigue to Fantastic” I purchased the Doctor’s Best D-Ribose and quickly noticed a significant improvement in my energy levels.I began to have enough energy to start exercising and, after months of preparation, at 63 years old, I completed my first 5K race. This may not work for everyone, but it is little short of a miracle for me.”
—-
I won’t recommend anything since I am not a “Quackified Doctor”, and people should make up their own minds, do their own research etc etc yada yada. Honestly though, it looks very promising for anyone suffering from a lack of energy, which we know many Floxies are and this goes to work in the body to help with ATP production which is just one of the important things we know this drug screws up. Its another naturally occurring substance in the body also, so is definitely something I will be buying very soon.
Elizabeth
9 years ago
Since this is a site for HOPE, I want to say that I AM GETTING BETTER. I am recovering/bouncing back.
I should start a new post .. But I didn’t. Your mention of D-ribose prompted me to post this.
A few months before starting Cipro I had started working on improving my mitochondrial function. Dr. Sarah Myhill has a good book out about CFS and mitochondria. Her website is also packed with info. So based on her and Dr. Tietelbaum’s research and experience, my mother started helping me focus on that specific area of my health.
Because I was working on it already, I really think that is helping me bounce back from the Cipro toxicity. Jason, you mentioned Wahls and that is a protocol my mom had read a lot about. I haven’t read her book but I believe it’s good info from what I hear.
My diet consists of organic puréed vegetables, organic puréed meats, some healthy fats, a bit of fruit..I have digestive issues so that’s why I chose this diet. The point of posting that info is basically to say that you should try to eat what is healthy for you while you are healing.
**Then I started taking D-ribose (like you mentioned), NAC, ALCAR, CoQ10 (ubiquinol form). Those are to help support the mitochondria.
**I also take Dr. Tietelbaum’s Energy Revitalization System, vit C, vit D3&K, two forms of magnesium, probiotics..
For my own separate personal health issues, several of which are common with CFS, I take DHEA (low DHEA), natural dissected thyroid (hypothyroidism), B12 (low B12/energy), d-mannose (UTI’s caused by E. Coli)), Biofilm Defense (UTI’s not caused by E. Coli), ginger and mint (nausea), low dose imipramine for sleep, pain, migraines, Ambien for sleep, and Adderall for energy. I quit taking Naproxen because you all said to but I’m not sure why that is. Next I’m looking into adrenals and Lyme. So much to look at!
Getting back to the Cipro and healing…
This is what has helped me most–
Mitochondrial supplements, good diet, not getting up and expending energy when I don’t have any, SLEEP as much as I can- (I have to drug myself to sleep but sleep is so imperative for healing that I’m doing it), and EFT/tapping, which is an acupressure technique that you can quickly and easily learn for yourself online or you can pay to go see someone trained in it. The EFT has helped me GREATLY and immediately with intense symptoms.
So…I’m healing. It’s happening. I thought I was going to die after I stopped taking it. I asked my mother if I was dying. It was rough and it still is but I’m having positive results that are occurring quickly and I believe that the reasons I listed above are why. I encourage everyone reading this to at least try EFT. You don’t have to believe it. It costs you nothing. It’s easy. Once you know how to use it, you can use it on all kinds of things and it can blow your mind. If anyone needs help with it, I would be happy to teach you and see if we can get a reduction in any of your symptoms. It’s worth a shot. I’m not a practitioner. I make no money from that.
Okay good luck everyone! I’m going to post my story again several times later on though bc I want it to be seen.
Was
9 years ago
I am a victim of Cipro toxicity, I don’t know what to do, I don’t have money for all the expensive treatments and remedies :(, this is totally unjust and unfair to floxe people without letting them know the consequences, I am totally hopless and I feel that as I will get older I’ll have more problems due to this toxicity,
I have read that “We” people who are affected by Fluoroquinolones, are 10 percent of the population, “feels special”
As we are just 10% of the population, I think we need an association which will have a team of legal experts, who would sue all these pharmaceuticals companies and doctors who make money from these toxic drugs, they cannot just ignore us saying that these people are just a fraction of the population, 🙁
What will this association do ? As all those who are affected by these drugs aren’t rich enough to go for the expensive remedies plans: this association will advocate our case and will make them pay who make profit from these, this money will be used in helping the affected and will also be used in the research for treatment of this toxicity,
Sorry for my English is not my native language,
Therese
9 years ago
One year ago I took ciprofloxacin and became very ill. I got nervedamage and couldnt feel my intere body. My pulse was 142 wen I was resting and I got seasures. My bloodpresaur was 190/160. Ive Malung god process bring better. I have got more feelings inside my body who went numb. I have a god bloodpressuar but I have episodes when my heart is beating realy fast. Its not very often every 6-8 weeks my heart is beating so fast. This morning I sleept in my bed and woken up and my heart was 160 beats per minutes. Those episode came with the first cipro I took. The dockors cant explain why. They did ultrasound of my heart and I had a thing 24 houtrs measuring my heart avtivity. I have Done 5 EKG everything is normal. But im so sad and scared. Any One else? Sorry about my english. Im from sweden. Hope you understand my text.
Mike
9 years ago
Jason,
If you do have an autonomic dysfuction you will have a hard time getting a diagnosis due to the fact that it’s rare and most doctors have no clue about autonomic dysfuction. I went through MANY doc’s before I basically diagnosed myself and then had it confirmed by Vanderbilt Autonomic dysfunction center. NCS + floxed = a miserable life. One of the “remedies” for treating NCS is to make sure your legs muscles are toned and to excercise every day. I had things pretty well under control until I got hit with this. I can’t work out. I can’t excercise. My joints are trashed therefore NCS has gotten worse significantly. My brain fog is out of control now.
A tilt table test will confirm an autonomic dysfunction.
Good luck man.
Callen
9 years ago
I would like to add that apparently D3, Magnesium, K and K2 vitamins, all worth together and with body calcium, and they affect/need each other. Do research yourself, but be aware that in taking supplements, it’s a good idea to try to balance proper levels of these together, rather than just taking one of them alone.
A couple of other quick tips:
Aside from getting magnesium in your diet (a hard thing to do, since many chemicals are interfering with crops absorbing it from soil) and from supplement pills, you *can* also get some magnesium (and sulfur, apparently) from doing magnesium salt (Epsom’s salts) soaks—some gets absorbed through the skin. Be careful to balance any oral magnesium with these, if you’re doing the soaks on a daily basis.
Second tip: I haven’t tried this yet myself, but I’ve seen a good bit on using organic egg shells as a calcium supplement (they’re supposed to be of a structure closest to our own and easily absorbed). The stuff I’ve seen suggests boiling them for 10 minutes to kill any germs on them, then dry on a cookie sheet in a 200 degree oven (you want them bone dry). Then use a coffee grinder to pulverize them to a powder. Some mix it with water or lemon juice and drink; others sprinkle it on food or put into gelatin capsules. Please google and check a few sources on this, and on how much to take per day. Given that a lot of commercial calcium pills are made from talc, this sounds like a great alternative.
Josie klemett
9 years ago
Hey you guys!
I have a question. Have any of you suffered from vertigo sensations?
I have really severe anxiety and I don’t know if my anxiety is causing the sensations.
One day I read about someone being kind of dizzy and I started noticing things that made me dizzy and then from then on.. I’ve been dizzy all the time. Sometimes it feels like I’m on a boat.. 🙁
Jason
9 years ago
For all the people who have ANXIETY. I don’t know how this drug exactly affects the mind and body to bring that on, (other than just worrying about its effects which most definitely can all by itself in some people) as it did not affect me in that way and I did not research it. We do know the CNS is affected in some people, so this may go hand in hand with that.
I suffered from Generalized Anxiety Disorder for maybe 6 – 8 years and would like to share my experience to hopefully help others. Whether you had some anxiety before taking these pills or not, people now suffering with anxiety should educate themselves more about it which I will try to help a little with. First off, please go to the following link and read about Anxiety and some great ways to keep it under control: http://www.helpguide.org/articles/anxiety/generalized-anxiety-disorder-gad.htm
I too went to Emergency and Doctors several times worried I had something wrong with my heart, had the ECG’s etc and everything always came back “normal” yet I was having crazy “attacks” of racing heartbeat, heart feeling like it is going to beat out of my chest, etc. I was very scared I would have a heart attack, but I have not had these episodes now for 15 years or more. Maybe once a year I might get really pissed off, excited, or worried/scared enough to trigger a very small attack in me, which usually coincides with also having too much caffeine, but otherwise this is not an issue for me at all anymore.
The first thing that helped me, was FINALLY one of the Doctor’s suggested that since everything seems ok physically I was very likely suffering from GAD. I thought, yeah right, damn Doctor’s, probably just want to give me more pills, etc, etc. I went home and researched more about it and yeah, it made total sense. Once I realized THIS is what I had, and there was nothing else actually wrong, the anxiety already improved a LOT. Just the acceptance, knowledge, realization of what was going on, did put me more at ease and then of course I educated myself on what things help, and what things make it worse. Worrying about what could be wrong with me before knowing definitely kept making it progressively worse and more intense so it was a big relief. Note that I never did take ANY pills for this, and in my unqualified (unquackified) opinion would strongly discourage it for most people, there are MUCH better natural ways to help yourself stay calm, and a lot of them. Rx pills are also not addressing the core problem, at all, they only address the symptoms and of course always come with many negatives and often create more problems.
Once I knew what was going on, and was conscious of it, I could catch myself having a ‘panic attack’ (that is really what the racing pounding heart episodes are for GAD people anyway) and mentally bring it under control. Small things could trigger these attacks too, I still remember the time I was passing a car on the highway and there went my heartbeat up through the roof, but then I knew why, I was not going to have a heart attack, nothing was physically wrong with my heart, and then I could very quickly calm back down, and I got better and better at this. Chemical smells could bring on an attack, I was driving a Forklift one day all those years ago and breathing in the fumes over and over I was getting more and more WORRIED about it, and I had a massive attack, this was the one right before I knew what was going on and went to Hospital for it. There were a lot of things that can trigger these attacks, especially mentally, emotionally and learning more about the triggers also helped.
So for all people who have anxiety, whether brought on from the drug, GAD, both, other life things, possibly adrenal issues (which someone should think about testing if nothing else fits and help tips are not working) or any other reason I highly highly recommend going to the link I put above as there are MANY excellent tips there on how to help. One of the biggest things that helped me besides awareness and education was avoiding sugar and caffeine. Back then I did not supplement (I’ll bet good Magnesium could do wonders) and even though I am not a big coffee or tea drinker I ate a fair bit of chocolate, and cutting this out made a HUGE difference (there are many sources of caffeine please google them) . In fact, if I drink some Jasmine Tea (LOVE this) and eat some chocolate for 2 or 3 days in a row, even now 15+ years later I will start having the heart palpitations for no reason at all, that is how critical avoiding sugar and caffeine are for me.
I hope people with Anxiety of any kind will go to the link, really excellent information there that should be helpful
Josie
9 years ago
Hey.
I do not have MDDS. I haven’t been on any ship or anything.
i’m actually PREGNANT! 🙂 I’m 14 weeks.
I was floxed a year ago I am not sure if anyone remembers me coming on here a lot, about body pain I was epxeriencing. I also still have the visual disturabces: Visual Snow, etc.
but the anxiety is terrible and I think that’s what must be causing the boat feeling.
UTI – People who have this or think they have this, should seriously consider natural remedies, especially before antibiotics, and I know some of you have, BUT, DON’T JUST TRY ONE!!!! WHY? The great thing about Natural remedies is that they almost never negatively interact with each other, unlike drugs, and they almost never had any bad side effects either.
Again, the Earth Clinic can be Instrumental in helping people heal themselves naturally, I don’t know if people are really reading the advice given on these pages, seems in some cases they are not, I mean when you see MANY people doing the same things and they work, that should be a clue that they DO indeed work, for most, and are worth trying.
http://www.earthclinic.com/cures/bladder_infection.html
Don’t just try Cranberry juice and hope that only that will work, why? There are more things that can help!!! And another thing about Cranberry Juice, are you just buying the one from the Grocery store shelf and hoping that will help? Made from concentrate etc? Come on folks. If you are serious about curing something you need to take serious measures not half fast ones. Go to the Health Food Store and buy a 100% pure concentrate, now you will have healing power, and don’t just buy the cheapest one either. Dynamic Health makes the best Tart Cherry Juice concentrate I could find, and by the looks of the reviews on Amazon, they make an excellent Cranberry Juice concentrate too, just go to Amazon and search “Dynamic Health Cranberry Concentrate Juice” and you will see the one I am referring to.
So if you actually go to the link above, you will see that APPLE CIDER VINEGAR, not CJ, is reported to be the most effective natural cure for a UTI, with 90 votes (this is a lot for EC). Note the next reported best cure is not CJ itself but a powder derived from it, 24 votes. Here is a comment regarding it and how to use it:
Quote” A natural sugar found in Cranberries is called D-Mannose powder, available at all health food stores. If you have a UTI, take1 teaspoon every few hours for a day. Within 30-45 minutes of the first dose, the pain and fevers will be gone, and the burning. It is a miracle supplement! . It works by making the urethra walls slippery and so the bacteria can’t hold on. It’s so much easier and healthier than antibiotics.”
More comments:
“Just wanted to follow up my post from 3 nights ago. The ACV bath worked! I have had no more bladder infection symptoms… zero! I did drink water with 1/8th teaspoon of baking soda for the next 24 hours to help with alkalinity.”
“Coconut milk and coconut water are my go to for bladder infections. It goes away pretty much the same day after drinking coconut milk.”
I too had numerous urinary tract infections and lots of antibiotics for them, before I learned to both avoid them in the first place and cure them early on. To cure them when I feel one coming:
– Drink a tall glass of water, or two. Or three.
– Absolutely do not consume anything sugary. Sugar feeds the UTI and makes it much worse. So soda does not count as water, it is anti-water here.
– I mix a tablespoon of baking soda in a tall glass of water (12 oz?), just stir it with a spoon and drink as much as I can. It tastes so vile I have to force it down, but this coctail has not failed me once since I found it. I have nipped every UTI (which come rarely now anyway) in the bud with extra water and the baking soda drink, but more advanced cases may require repeated doses.
Replied by Kathy, Clemmons, Nc, 04/24/2015 – Was in great discomfort today with UTI. Came home and read on this site about baking soda and vinegar. Almost immediate relief. Thank you Earthclinic!
Posted by Kk (Ny) on 05/10/2011 – I suffer from frequent urinary tract irritations and do not always want to go on antibiotics. I have tried almost every remedy out there from nettle tea to probiotics. For the past two episodes, I found a recommendation on the internet to drink a teaspoon of baking soda diluted in water and miraculously the burning goes away almost instantly.
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What might work one time, may not work another time. What might work for one person, may not work for another
What would I do if I thought I had a UTI and did not want to take poison antibiotics? I would get serious about natural remedies, do some homework on EC and then use Apple Cider Vinegar AND Cranberry Juice concentrate AND Baking Soda AND Coconut Milk and maybe a couple other things, and I bet you it would work big time.
Thanks Brian and Rene for ur responses. I appreciate everyones comments and advice. Im leaning towards the testosterone therapy but will ask my end doc for other alternatives although he implied there is no supplement i can take that can help my low t situation I will update and let u know what effects positive or negative i have thanks again.
A friend in the legal field just shot me a message noting that a lot of the advice on here is very prescriptive – “do___” – “take ____”. If you can all please try to add caveats to the advice that you give, it will help to protect both you and me from potential litigation. Noting what you’ve experienced personally is more than fine–it’s greatly appreciated! Referring people to articles, especially peer reviewed articles, is also great. Noting what has helped other people is good too. I know that a lot of people come here looking for concrete advice and guidance. But, the unfortunate fact is, there is no tested and verified protocol for getting through FQ toxicity. Until those tests happen, the experiences of fellow patients is what we have to guide us through this difficult time. And the guidance that people provide on this site is very much appreciated – it really is! I just ask that you please be wary of the litigious nature of the world as you’re giving guidance. Please make sure that it’s clear that you’re not a doctor and that the advice you’re giving is based on your personal experience, or the experience of others, or on your research. Thank you, and sorry for being naggy. I wish I didn’t need to be… and I probably don’t… but a lawsuit would be horrible. THANKS!
I guess it’s just assumed that people would know that this is a support site and that people giving advice on here are not doctors but fellow floxies. But I guess we live in a world where we need to cover our behinds…better to be safe than sorry. Thank you Lisa for the important FYI and all that you do! 🙂
To Debs or Jen, or anyone else familiar w antibiotics. I went to the dr today about possible Uti. It tested positive for 1+ leukocytes, but that’s about it. So its not a bad infection, but he thinks its still an infection.I’m waiting for the culture to come back before I take any antibiotics. He suggested Keflex. I’ve never heard of it…but is that a ” safe” alternative??? I’ve been doing every other nstural modality upon treating this thing…hopefully I won’t need any antibiotics
Hi, first at all, I have to appologize for my English, spelling. I am originally from Czech republic. This is my story……. ENT doctor prescribe me Levofloxacin 500 mg/10days for sinus infection. Lost my sense of smell and taste 3,5 months ago…..
Started taking that 3/31/15. The weather here in st.Louis was mild, around 50-60F, so I wasn’t feeling, that I see no difference between temperature. Now, when temperature outside is about 90, I know, it is not right. Sitting outside or sitting inside with AC…. No still fell same. Started having crazy symptoms about 5-6 days after a started taking that. No urge to urinate/b, loss of sensation, minimum pain (shaving legs, cut and no pain, just see blood). Sleeping 5-6 hours with same possition because dont fell any pressure. Reading book, holding my head and not feeling pressure. Legs and arms working, but “from distance” – less touch. Walking on cold surface, not feeling. Hot, cold nothing. Crazy. I also had back surgery last summer (rods, screws) so doctor should not prescribe that s….
Went to see primary doctor, neurologist today and both of them looked me as crazy women. Do not know, what I should do and what I can do. I was thinking, that I am crazy, until I google velofloxacin side effect. I did and I did not read the paper that comes with pills because … I promised to my husband and myself that I will not to do that, because all are same. Stupid. Called the ENT doctor and of course, they said that is not possible. Have to stay home, can not work. Thinking about that approx. 25/day.
What to do, who can I blame, contact lawyer??? I am sure I probably singed some document in dr.office that I will never put the claim on him.
Pavla
Jason I feel for you about your brian fog issues. I have brain fog from being floxed but also from NCS (neurocardiogenic syncope) which has gotten worse for me since I’ve been floxed. Ever looked into autonomic dysfunction as a cause of your brain fog?
By the way I suspect you might be right about exercise sort of stiring things up. You might be onto something about that being a time to detox
Just a general question for anyone regarding magnesium. I’ve been taking oral mag in pill form without any issues and have tried the mag oil with no burning/stinging. Last night I decided to try the Natural Calm mag supplement powder and only had about 3/4 tsp close to bedtime..shortly after taking it I got a little dizzy. Didn’t think much of it and went to bed. This morning I woke up feeling a little dizzy and nauseous. Anyone have similar experience? Any feedback would be appreciated. Thanks!
Debs, thank you for the information. I suffer from acid reflux occasionally and am able to manage without meds (omeprazole) for the most part. But every once in awhile I need to take them. I haven’t needed to take them since being floxed but I had a really bad bout yesterday and thought about taking them. Of course now I’m so paranoid about any meds that’s why I asked on this site. I researched online for natural remedies and found info on ACV and baking soda. I tried the baking soda and it seems to have helped some. Thanks again for the info!
I ust wanted to post an update- I haven’t been on here in a while. I took cipro back in January and started experiencing VERY odd things/pains etc. Then realized that I had been floxed. I spent a lot of time reading posts here and decided to dive in with the supplements. I’m not sure if they work – but my reaction seems to have been controlled. So I’m going to keep taking them.
These were my symptoms:
aching knees
achilles pains
occasional blurry vision – s
anxiety
This went on for a few weeks to varying degrees, slowly started feeling better – But I have been taking the following supplements vigilantly since then:
Trace Minerals Mega Mag – drop it in my water basically all day long
Liquid D3 5000iu – at least once a week
Move Free total joint health glucosamine and chondroitin
Probiotics
D-mannose – to help prevent further UTI’s which is how I ended up on the stupid cipro to begin with (btw this stuff WORKS)
I still have occasional knee pain, shoulder pain, blurry vision, and achililes pains – not my normal body, but I can live with this if this is the extent of the damage (fingers crossed).
I also started working out again about a month after the floxing. I went back to yoga, i avoid impact of any kind, I do pilates sometimes. I have to be very careful w my joints. I can tell the aren’t as strong. Building muscle is very helpful to taking weight off of your joints, even if you really can’t workout per se, just do things like wall-sits to engage your muscles and strengthen them, oh and also planks. These things are super gentle on your joints and will give you results 🙂
I’m HOPING that I’m very lucky, and realize that I could still pull something or maybe the effects will come back. I think I’m in the clear.
I wanted to post this bc others like myself will read these posts right after their floxing and become so overwhelmed and think that they may experience the worst case scenario themselves. It seems different for everyone, and I think taking supplements and gently exercising will make you feel that you are in some control and actually may help.
Thank you everyone for your posts! So much valuable information.
I promise I will stop posting at some point, but I found something while researching Fibromyalgia remedies that could REALLY help Floxies here and wanted to share it….
D-Ribose is a simple carbohydrate molecule found in every cell in the human body, and is critical in the continuous production of ATP, the molecule which gives our muscles
and our heart the energy they need to perform. ATP production within the mitochondria benefits from D-ribose supplementation in two ways: ATP production from scratch can be increased up to 400%, and the more efficient recycling or salvaging method can increase up to 700% D-Ribose in supplemental form is absorbed at a rate of up to 95%. Use 5 grams up to three times a day for pain associated with fibromyalgia or lack of energy from cancer treatment.
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Okay, I don’t know how accurate those numbers are but they are certainly exciting and promising from a Floxie point of view. We know our Mitochondria has been damaged, and that ATP is in the toilet (severe case Floxies really know this unfortunately well) very similar to what happens from Cancer Drugs. So it would make perfect sense that this would be a VERY helpful supplement indeed, and yet I have never ever seen it mentioned anywhere.
Here is some more info from this link: http://www.drwhitaker.com/natural-treatments-for-fibromyalgia
Quote: “Re-energize patients with coenzyme Q10 (CoQ10), L-carnitine, magnesium and ribose. People with fibromyalgia (and its common sidekick, chronic fatigue syndrome) often have below-normal levels of adenosine triphosphate (ATP), the energy that fuels your cells. They also typically have a reduced ability to manufacture ATP in muscle cells.
To improve cellular energy, I prescribe 200 mg of coenzyme Q10, 500–1,000 mg of L-carnitine, 500–1,000 mg of magnesium, and 10–15 g of ribose, all of which should be taken daily in divided doses.
Though all of these nutrients are involved in cellular energy, ribose may be the most important. In one study, researchers gave 41 patients with fibromyalgia and/or chronic fatigue syndrome 5 grams of ribose three times a day. After four weeks, nearly 70 percent of the participants had significant improvements in symptoms and quality of life thanks to this treatment for fibromyalgia”
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Note that these 4 things possibly came from Dr Stephen Sinatra’s “awesome foursome”. Quote from him, “My Awesome Foursome is based on what I call metabolic cardiology. That is, your heart runs on a fuel called ATP and nature has provided four unbelievably powerful nutrients—CoQ10, L-carnitine, D-ribose, and magnesium—that work together to help your body produce it. And the more ATP your body makes, the stronger, healthier, and more powerful your heart can become”
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So we see two of these recommended for Floxies all the time, CoQ10 (antioxidant & other benefits) and Mag (many benefits). I added L-carnitine recently but it looks like D-ribose is potentially the most important one when it comes to ATP. A quick look over at Amazon you see some very promising reviews, just search “Doctor’s Best Best D-Ribose Featuring Bioenergy Ribose, 250-Gram” at Amazon to find comments like this to confirm all the above:
“I have fibromyalgia with fatigue syndrome and I would have only 2, maybe three days a year that I would feel “normal” and able to function. I feel so much better with D-Ribose and I am able to function. My husband noticed that I have been feeling a lot better and I have been able to do a lot more than usual after just one month’s use.”
“I have fibromyalgia, read about D-Ribose and I’ve been taking it for over 6 months. It truly does help with fatigue and mental hiccups.”
“Normally, things that work for me show the benefit pretty quick (a matter of days). So when I hadn’t noticed any appreciable improvement to my daily stamina, I assumed it wasn’t going to work for me. Kept taking it though, and a few days later realized I still had energy when I got home from work. My thoughts were clear, I didn’t need to take a nap, and my sleep patterns appeared to improve. I come home with enough mental/physical energy left to act like a real human being for a few hours before bedtime.”
“I struggled with persistent fatigue for years. When I did try to exercise it was exhausting. After reading “From Fatigue to Fantastic” I purchased the Doctor’s Best D-Ribose and quickly noticed a significant improvement in my energy levels.I began to have enough energy to start exercising and, after months of preparation, at 63 years old, I completed my first 5K race. This may not work for everyone, but it is little short of a miracle for me.”
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I won’t recommend anything since I am not a “Quackified Doctor”, and people should make up their own minds, do their own research etc etc yada yada. Honestly though, it looks very promising for anyone suffering from a lack of energy, which we know many Floxies are and this goes to work in the body to help with ATP production which is just one of the important things we know this drug screws up. Its another naturally occurring substance in the body also, so is definitely something I will be buying very soon.
Since this is a site for HOPE, I want to say that I AM GETTING BETTER. I am recovering/bouncing back.
I should start a new post .. But I didn’t. Your mention of D-ribose prompted me to post this.
A few months before starting Cipro I had started working on improving my mitochondrial function. Dr. Sarah Myhill has a good book out about CFS and mitochondria. Her website is also packed with info. So based on her and Dr. Tietelbaum’s research and experience, my mother started helping me focus on that specific area of my health.
Because I was working on it already, I really think that is helping me bounce back from the Cipro toxicity. Jason, you mentioned Wahls and that is a protocol my mom had read a lot about. I haven’t read her book but I believe it’s good info from what I hear.
My diet consists of organic puréed vegetables, organic puréed meats, some healthy fats, a bit of fruit..I have digestive issues so that’s why I chose this diet. The point of posting that info is basically to say that you should try to eat what is healthy for you while you are healing.
**Then I started taking D-ribose (like you mentioned), NAC, ALCAR, CoQ10 (ubiquinol form). Those are to help support the mitochondria.
**I also take Dr. Tietelbaum’s Energy Revitalization System, vit C, vit D3&K, two forms of magnesium, probiotics..
For my own separate personal health issues, several of which are common with CFS, I take DHEA (low DHEA), natural dissected thyroid (hypothyroidism), B12 (low B12/energy), d-mannose (UTI’s caused by E. Coli)), Biofilm Defense (UTI’s not caused by E. Coli), ginger and mint (nausea), low dose imipramine for sleep, pain, migraines, Ambien for sleep, and Adderall for energy. I quit taking Naproxen because you all said to but I’m not sure why that is. Next I’m looking into adrenals and Lyme. So much to look at!
Getting back to the Cipro and healing…
This is what has helped me most–
Mitochondrial supplements, good diet, not getting up and expending energy when I don’t have any, SLEEP as much as I can- (I have to drug myself to sleep but sleep is so imperative for healing that I’m doing it), and EFT/tapping, which is an acupressure technique that you can quickly and easily learn for yourself online or you can pay to go see someone trained in it. The EFT has helped me GREATLY and immediately with intense symptoms.
So…I’m healing. It’s happening. I thought I was going to die after I stopped taking it. I asked my mother if I was dying. It was rough and it still is but I’m having positive results that are occurring quickly and I believe that the reasons I listed above are why. I encourage everyone reading this to at least try EFT. You don’t have to believe it. It costs you nothing. It’s easy. Once you know how to use it, you can use it on all kinds of things and it can blow your mind. If anyone needs help with it, I would be happy to teach you and see if we can get a reduction in any of your symptoms. It’s worth a shot. I’m not a practitioner. I make no money from that.
Okay good luck everyone! I’m going to post my story again several times later on though bc I want it to be seen.
I am a victim of Cipro toxicity, I don’t know what to do, I don’t have money for all the expensive treatments and remedies :(, this is totally unjust and unfair to floxe people without letting them know the consequences, I am totally hopless and I feel that as I will get older I’ll have more problems due to this toxicity,
I have read that “We” people who are affected by Fluoroquinolones, are 10 percent of the population, “feels special”
As we are just 10% of the population, I think we need an association which will have a team of legal experts, who would sue all these pharmaceuticals companies and doctors who make money from these toxic drugs, they cannot just ignore us saying that these people are just a fraction of the population, 🙁
What will this association do ? As all those who are affected by these drugs aren’t rich enough to go for the expensive remedies plans: this association will advocate our case and will make them pay who make profit from these, this money will be used in helping the affected and will also be used in the research for treatment of this toxicity,
Sorry for my English is not my native language,
One year ago I took ciprofloxacin and became very ill. I got nervedamage and couldnt feel my intere body. My pulse was 142 wen I was resting and I got seasures. My bloodpresaur was 190/160. Ive Malung god process bring better. I have got more feelings inside my body who went numb. I have a god bloodpressuar but I have episodes when my heart is beating realy fast. Its not very often every 6-8 weeks my heart is beating so fast. This morning I sleept in my bed and woken up and my heart was 160 beats per minutes. Those episode came with the first cipro I took. The dockors cant explain why. They did ultrasound of my heart and I had a thing 24 houtrs measuring my heart avtivity. I have Done 5 EKG everything is normal. But im so sad and scared. Any One else? Sorry about my english. Im from sweden. Hope you understand my text.
Jason,
If you do have an autonomic dysfuction you will have a hard time getting a diagnosis due to the fact that it’s rare and most doctors have no clue about autonomic dysfuction. I went through MANY doc’s before I basically diagnosed myself and then had it confirmed by Vanderbilt Autonomic dysfunction center. NCS + floxed = a miserable life. One of the “remedies” for treating NCS is to make sure your legs muscles are toned and to excercise every day. I had things pretty well under control until I got hit with this. I can’t work out. I can’t excercise. My joints are trashed therefore NCS has gotten worse significantly. My brain fog is out of control now.
A tilt table test will confirm an autonomic dysfunction.
Good luck man.
I would like to add that apparently D3, Magnesium, K and K2 vitamins, all worth together and with body calcium, and they affect/need each other. Do research yourself, but be aware that in taking supplements, it’s a good idea to try to balance proper levels of these together, rather than just taking one of them alone.
A couple of other quick tips:
Aside from getting magnesium in your diet (a hard thing to do, since many chemicals are interfering with crops absorbing it from soil) and from supplement pills, you *can* also get some magnesium (and sulfur, apparently) from doing magnesium salt (Epsom’s salts) soaks—some gets absorbed through the skin. Be careful to balance any oral magnesium with these, if you’re doing the soaks on a daily basis.
Second tip: I haven’t tried this yet myself, but I’ve seen a good bit on using organic egg shells as a calcium supplement (they’re supposed to be of a structure closest to our own and easily absorbed). The stuff I’ve seen suggests boiling them for 10 minutes to kill any germs on them, then dry on a cookie sheet in a 200 degree oven (you want them bone dry). Then use a coffee grinder to pulverize them to a powder. Some mix it with water or lemon juice and drink; others sprinkle it on food or put into gelatin capsules. Please google and check a few sources on this, and on how much to take per day. Given that a lot of commercial calcium pills are made from talc, this sounds like a great alternative.
Hey you guys!
I have a question. Have any of you suffered from vertigo sensations?
I have really severe anxiety and I don’t know if my anxiety is causing the sensations.
One day I read about someone being kind of dizzy and I started noticing things that made me dizzy and then from then on.. I’ve been dizzy all the time. Sometimes it feels like I’m on a boat.. 🙁
For all the people who have ANXIETY. I don’t know how this drug exactly affects the mind and body to bring that on, (other than just worrying about its effects which most definitely can all by itself in some people) as it did not affect me in that way and I did not research it. We do know the CNS is affected in some people, so this may go hand in hand with that.
I suffered from Generalized Anxiety Disorder for maybe 6 – 8 years and would like to share my experience to hopefully help others. Whether you had some anxiety before taking these pills or not, people now suffering with anxiety should educate themselves more about it which I will try to help a little with. First off, please go to the following link and read about Anxiety and some great ways to keep it under control: http://www.helpguide.org/articles/anxiety/generalized-anxiety-disorder-gad.htm
I too went to Emergency and Doctors several times worried I had something wrong with my heart, had the ECG’s etc and everything always came back “normal” yet I was having crazy “attacks” of racing heartbeat, heart feeling like it is going to beat out of my chest, etc. I was very scared I would have a heart attack, but I have not had these episodes now for 15 years or more. Maybe once a year I might get really pissed off, excited, or worried/scared enough to trigger a very small attack in me, which usually coincides with also having too much caffeine, but otherwise this is not an issue for me at all anymore.
The first thing that helped me, was FINALLY one of the Doctor’s suggested that since everything seems ok physically I was very likely suffering from GAD. I thought, yeah right, damn Doctor’s, probably just want to give me more pills, etc, etc. I went home and researched more about it and yeah, it made total sense. Once I realized THIS is what I had, and there was nothing else actually wrong, the anxiety already improved a LOT. Just the acceptance, knowledge, realization of what was going on, did put me more at ease and then of course I educated myself on what things help, and what things make it worse. Worrying about what could be wrong with me before knowing definitely kept making it progressively worse and more intense so it was a big relief. Note that I never did take ANY pills for this, and in my unqualified (unquackified) opinion would strongly discourage it for most people, there are MUCH better natural ways to help yourself stay calm, and a lot of them. Rx pills are also not addressing the core problem, at all, they only address the symptoms and of course always come with many negatives and often create more problems.
Once I knew what was going on, and was conscious of it, I could catch myself having a ‘panic attack’ (that is really what the racing pounding heart episodes are for GAD people anyway) and mentally bring it under control. Small things could trigger these attacks too, I still remember the time I was passing a car on the highway and there went my heartbeat up through the roof, but then I knew why, I was not going to have a heart attack, nothing was physically wrong with my heart, and then I could very quickly calm back down, and I got better and better at this. Chemical smells could bring on an attack, I was driving a Forklift one day all those years ago and breathing in the fumes over and over I was getting more and more WORRIED about it, and I had a massive attack, this was the one right before I knew what was going on and went to Hospital for it. There were a lot of things that can trigger these attacks, especially mentally, emotionally and learning more about the triggers also helped.
So for all people who have anxiety, whether brought on from the drug, GAD, both, other life things, possibly adrenal issues (which someone should think about testing if nothing else fits and help tips are not working) or any other reason I highly highly recommend going to the link I put above as there are MANY excellent tips there on how to help. One of the biggest things that helped me besides awareness and education was avoiding sugar and caffeine. Back then I did not supplement (I’ll bet good Magnesium could do wonders) and even though I am not a big coffee or tea drinker I ate a fair bit of chocolate, and cutting this out made a HUGE difference (there are many sources of caffeine please google them) . In fact, if I drink some Jasmine Tea (LOVE this) and eat some chocolate for 2 or 3 days in a row, even now 15+ years later I will start having the heart palpitations for no reason at all, that is how critical avoiding sugar and caffeine are for me.
I hope people with Anxiety of any kind will go to the link, really excellent information there that should be helpful
Hey.
I do not have MDDS. I haven’t been on any ship or anything.
i’m actually PREGNANT! 🙂 I’m 14 weeks.
I was floxed a year ago I am not sure if anyone remembers me coming on here a lot, about body pain I was epxeriencing. I also still have the visual disturabces: Visual Snow, etc.
but the anxiety is terrible and I think that’s what must be causing the boat feeling.