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tricia
9 years ago
Hi everyone…
I’m about 8 months out from being closed by levaquin….about 2 months ago I felt like my symptoms were worsening and I was having a severe reaction , as I was in excruciating pain! However, I just returned from a month long vacation overseas. While on vacation I hiked, walked for miles, all with very minimal problems. I felt 90% recovered!! I returned home 2 days ago, and I feel most of my symptoms have returned.
Has this happened to anyone else before???
tricia
9 years ago
*floxed— sorry for the type-o
Linda Livingston
9 years ago
My “side effect of the week” (about 4 months out and it seems I get a new side effect almost every week) is hives. I wake up with big, welty, itchy hives on my torso and arms. Anyone else get hives while floxed? How long did you get them?
Karla
9 years ago
Linda,
I don’t have hives but I do get a rash on my chest and shoulders that comes and goes. It doesn’t really itch. Isn’t it amazing that new symptoms just spring up? I hope that you find a way to take care of your hives and that you feel better soon. I wonder if any essential oils could help? I used them for my bout of bronchitis a few weeks ago. It cleared up naturally.
Peter
9 years ago
This stuff really ages you fast. I’ve noticed a massive increase in white hairs all over my head, crows feet, and bags under my eyes that don’t go away. Never had any before this medicine. I’m eating very healthy. The healthiest in my life and there is no progress. I really don’t think this is curable.
JoAnne
9 years ago
After 3 weeks on Levaquin in Jan. 2013, my right Achilles ruptured and I began having tendon and muscle pain throughout my body. Later that year my hair also turned white and severe wrinkles (of someone 20 yrs older) appeared.
I was told by 4 reputable orthopedic surgeons that I would never walk again if I didn’t have immediate surgery. My opposite knee needed a replacement and it was apparent could not withstand the required “non weight bearing” weeks.
Found an orthopedic surgeon who agreed to treat without surgery – and to use intensive PT.
I did this for 1 1/2 years and the Achilles is now completely healed.
After researching what the top athletes do about tendon problems, it became apparent that collagen production can be an asset to healing.
I researched Serovital (hgh formula designed for skin – anti- wrinkling).
One month after starting on Serovital I had decreased all-over tendon and muscle pain and stiffness that had started several months after the Levaquin use.
The longer Serovital was taken, the more positive the effects.
A side benefit was that the wrinkles disappeared after 6 months.
Has anyone had experience with using natural collagen enhancing formulas ?
mike
9 years ago
I agree Fq’s age you not only in appearance but especially how you feel. Over the last three years I look like I’ve aged about 10. My body feels like it has aged about 30.
Jennifer Cook
9 years ago
I just found this site and decided to write because I have been beating the bushes trying to get help. Maybe some of you can give me hope. I look like I have rheumatoid arthritis, my skin gets red and peels, the pain is often unbearable. My hands, feet, face, neck and legs swell. My chest hurts, my back hurts and all lower discs have collapsed in my back. My shoulders and around to my ribcage hurt and often spasm up. I am over sensitive to touch, it causes pain and the list goes on and on. There is hardly a spot on me that is not an issue. I am exhausted and feel alone in this. I am allergic to every narcotic pain med except for demerol. I cannot function on something that strong and besides that it will make me sick on my stomach and it gives me a migraine. I am also allergic to steroids. All the tendons in my hands protrude and all joints are swollen. I don’t even know where to seek help or even if there is any to be had. Has anyone out there found anything that I might pursue to obtain relief or reversal? It has been 6 months of torture so far. I live in an area where the sun is very strong and I can’t even endure being outside for very long. I grow plants for a living as well as selling my paintings and I cannot do my job right now. Does anyone know if there is any hope for me? I will grab any straw that is offered. I hope this does not offend anyone, please forgive me if it does as I mean no harm, but my prayers go out to all of you. Jenny
SM
9 years ago
Being around the flox boards is an interesting experience. You see some of the same people on there. And you see quite a few new names pop up from time to time. But there are also many people who just aren’t there anymore. Many have theorized that this is because those people have recovered and moved on. That’s a very optimistic take I’d say.
I tend to be a pessimist. And one of the things that gets me about this illness is how it has far surpassed even my pessimistic expectations. At about 3-4 months in I read the Flox Report cover to cover. It was sobering. But I knew at that time that I wasn’t a “severe” case and that I’d be looking at 18-30 months until I would make a good, maybe even full, recovery. Now, the Flox Report is filled will problems, mostly in the weight that so many of us give those recovery timelines and categories of severity. And I now realize the error in my ways.
But at 24 months out I can honestly say that my improvement has been minimal at best. My significant foot pain has persisted for 24 months. There was improvement during the first 6 months, but I feel it’s been relatively stagnant since.
It wasn’t supposed to be this way, to go like this. We are supposed to bounce back. So many recovery stories I have collected involve people recovering between 18-36 months. I looked at this time as a time of recovery, a time when I’d know I was turning the corner. But so far, it hasn’t been that way.
“How much longer do I do this?” I often ask myself. I don’t know the answer. But I do not intend on being a 5+ year floxie, still suffering, still living every day in pain. Life just hasn’t been fun for the past 2 years. It isn’t worth it to me. Not an hour goes by that this doesn’t consume my thoughts. And one of the reasons I’ve kept going is because of the hope of recovery. But as time moves on and little changes, that hope diminishes. And without that, why keep going? Two years is too early to make those choices. That’s what I think. But maybe 3 years isn’t. Regardless, the choice is in the hands of the person in pain, the person who has to deal with a daily existence void of true peace and happiness. I hope that I don’t have to make that choice. I hope my recovery is right around the corner. My floxing started about the same time this website did. I’ve read every story multiple times and will will never understand why the FB group can have 3000 members but there are only a limited number of recovery stories on here. And let’s be honest, many of those are really “I’m getting better” stories because the people are far from recovered. I’m still hopeful that my story will appear up on this site someday. I’m holding on to that hope. It’s all I have.
Anonymous
9 years ago
As someone who has suffered the adverse effects to fluorquinalones- more specifically Cipro, (leaving me totally wheelchair bound for 2 years, pain, brain fog, and yes I still have poor balance and numbness in one leg). I also have cystic fibrosis. Now, levofloxicin is the only oral antibiotic my chronic pseudomonas infection is sensitive to. I still choose to take it because I don’t fancy being hospitalised every few weeks for IV antibiotics. Levo doesn’t affect me as much as cipro did, but it does still give me a temporary worsening of symptoms. I’ve also had it IV with it being one of 3 antibiotics sensitive to the bugs I was growing with double pneumonia. I would have died if I hadn’t agreed to have the combination of all 3 drugs intravenously pumped into me.
Drug reactions could happen with any drug- it’s a foreign chemical and there’s no telling how your body will react (trust me- my allergy list has 10 drugs on it) and I would take cipro again at the drop of a hat if it saved my life. My best friend is deaf from aminoglycosides but she has never once told anyone not to take it. You are scaremongering and it’s unnecessary. People like me with CF have no choice with the antibiotics we can take & people like you telling us not to take something and even the twitter bots telling parents of young kids with CF to not allow the Drs to prescribe it (who are all well trained and work closely with pharmacists and microbiologists) Is absolutely ridiculous.
This reaction is unbelievably rare and whilst I wouldn’t wish this side effect on anyone, I would never suggest someone not take a drug their Dr had prescribed. Potentially, people could die because of your scaremongering. I still live with the side effects but just have had to adapt and get on with life the best I can whilst dealing with awful lungs (which I can assure you would be 10x worse if I didn’t still take Levo). Life doesn’t stop just because someone has had a peculiar reaction.
Please just think about what you’re doing. I understand why you would want to raise awareness, but what you’re doing is dangerous and such a waste of time and energy if you still have ongoing symptoms from your reaction. It’s a matter of perspective.
Sorry. Just my thoughts on the matter.
Daniela
9 years ago
To the person who feels they can’t endure anymore:
Depression is a side effect of all this. Try to think of it in a detached way. It’s like a stain on your shirt that you will wash off eventually. Think of something you love, that is beautiful to you or somehow makes you happy, remember that feeling and summon it when you feel down. Just like a muscle, you can exercise that and it will become easier and effortless.
You will get better and/or adapt. You were hit with a freight train, it’s not going to go away quickly. If no one else is acknowledging what happened to you and respecting you for your battle, at least you can do that for yourself. You should be proud.
Maria
9 years ago
Hi Everyone!
I am so happy to have found this site, just learned a week ago about Cipro and it’s horrible side effects.. Been suffering for over a year now. Pretty much pain all over my body, from my neck to my toes. I am only 29 years old and have seen about 5 different doctors with no success. I’ve been diagnosed with Fibromyalgia and other autoimmune diseases. Which honestly think it was just a guessing game. However I am very hopeful because I’ve just scheduled my first appointment at a Clinic that provides IV vitamin infusions. I’ve been doing a lot of research in the last week, and at soon as I heard about Glutathione I googled for clinic nearby and thankfully was able to find one. I am excited and hoping that finally I get to have some relief, this definitely has been a nightmare. My story is just like Linda’s. I was prescribed Cipro for an UTI back in May 2014. I’ve suffered every single day ever since, the pain is unbearable, there has been many nights when I just cry and ask myself why would anybody allow this to happen to people. My life has changed drastically, I’ve always been a very active person, lost my job due to the several doctor’s appointments and now I am at home most of the time unable to do much, it is so frustrating!!. I wake up at night many times because of the pain, unfortunately as soon as I wake up in the morning the pain is still there again, it never goes away. My legs get very swollen, my skin is very sensitive and get bruises so easily. From my lower back all the way to my toes I have constant burning sensation and feel like a thousand needles are poking me at the same time. I am unable to walk for more than 5 minutes without feeling pain. I’ve tried several things/meds at this point, so I am definitely ready to try this last resort. Prayers would be definitely appreciated. Thank you for creating this forum, at times I felt so alone in this situation. But now feel like I am not the only one and that there is still a light at the end of the tunnel. Blessings to every person struggling because of this antibiotic, let’s keep supporting/encouraging each other and never give up!!!
Gina
9 years ago
Rene,
Great info you posted! What do you take for your MTHFR issues? I also have MTHFR issues. But am overwhelmed what to do!! Any advice you could give me would be greatly appreciated!! Thanks so much!!!
tricia
9 years ago
Jason,
That’s interesting about the correlation of being in a place w non flouride water and feeling better! Idk if that’s a coincidence or what? I drink Reverse Osmosis water everyday, but obviously use tap water for showers, baths, washing, etc. I wonder if getting a reverse osmosis filter would help?
There are several cities here in the states that have voted against using flouride in their water, unfortunately I don’t live in one of those cities……
Maria
9 years ago
SM and Lynda,
Thank you so much for your response.
Would really appreciate if someone can give me more info on Floxing, honestly I am not very familiar. I am just trying to get as much information as I can. Found out about Cipro just last week and I was shocked, almost every side effect is exactly what i am feeling. I reside in Minnesota and would like to know if there is any doctor here that would be willing to diagnose this as Cipro poisoning, not sure about your experience but it seems like there are not too many doctors out there well informed about this problem.
Jane
9 years ago
It’s been 2 years and 3 months since I was floxed. I was hit the hardest in the tendons, and was crippled for a very long time. I am finally walking again. I’m able to walk around my house without needing crutches or a cane anymore. Other than brief, mild flare-ups, I can walk without pain, though tendons do feel a little stiff.
Being able to walk has revealed another problem though. It’s one that I didn’t realize I had when I was laid up for so long with my feet propped up all the time. I really only started walking pretty well about 4 or 5 months ago and only started walking a lot more than usual, including standing for prolonged periods of time, about 2 months ago.
This has revealed that I’m having a circulation problem; it’s venous insufficiency from what I can tell. It became really evident a few days ago after an unusually long day of standing and walking. The next day, my feet were numb and a little swollen, my toes were cool and slightly bluish, my legs slowly turned a pinkish red from broken capillaries, and arms and legs felt like they were made out of lead. Since I started walking, I also have developed a small leg ulcer on the outside of my left ankle that changed from looking like a pale scar to having a bluish purple border after than long day of walking and standing.
I’m still eating a very healthy diet with lots of fresh veggies, like I have been since I was floxed. I’m still taking a good multi-vitamin/mineral supplement, vitamin C in high doses, and magnesium citrate. My blood pressure is perfect, and I’m not overweight. Actually I’m still underweight and suffered some muscle wasting from being floxed. Sometimes I do worry that one of the muscles that was hit was my heart.
I have upped the cayenne, garlic, turmeric, ginger and other blood thinning spices and foods. I’m planning to buy some support hose. I refuse to see a doctor about this after all the harm the last one did to me with Levaquin.
Has anyone else experienced circulation problems as a result of being floxed, and if so, what did you do that helped?
they say iodine removes fluoride
I remember Dr Terry Wahls also mentioned iodine in het protocol
Rosa Jiron
9 years ago
I spend lot of money looking for help and is horrible I have neurologic problems I am desperate could anybody tell me something about legal help because somebody should be responsible for something like this.
Linda Livingston
9 years ago
Rosa, yes, someone—the doctor, the pharmaceutical company, etc SHOULD be responsible. It is criminal that we are left to find expensive remedies to pay for something that was the fault of someone else.
I am a paralegal, so I cannot by law advise, but I will tell you what I have done so far (without much success I am afraid.) First, I looked into suing Bayer, that makes Cipro. I discovered I could not because I took a generic. (There is one state, I believe it is Alabama, but can’t recall, that actually allowed a plaintiff to sue the original mfr after having been given the generic. But unless you live in that state, the decision has no weight in other states.)
I have been trying to get someone to handle a medical malpractice case, especially since I fell under one of the black box warnings—I was given it with prednisone. Now, while it is known that steroids exacerbate the FLQ the wording of the black box refers specifically to ruptured tendons, one of the few side effects I have not had. And this black box was not courtesy of BAyer, but rather a hard-won “victory” for a group called Public Citizen. (My contention though is that the doctor was willing to let me suffer a ruptured tendon, for a simple UTI, when there were far better antibiotics available.) I have been unable to find anyone to take my case and I have a couple theories on why. First, the doctor is with a large medical group and there are likely too many connections with law groups, their families, friends and this particular group. So then I tried finding an attorney not so close to home. Still no takers. I think part of the reason may be that my injuries are too “invisible” (can’t see suffocation, depression, pain, numbness) and I think another large reason is that “everyone (physicians) uses Cipro.” SO, I imagine their way of thinking is “if all physicians use cipro, then how is it negligent?”
I have also sought legal counsel against the pharmacy that actually handed me both Cipro and Prednisone at the same time, with no warning regarding the interaction. No luck there either.
So, does this mean I am giving up? Hell no.
If you took the original ciprofloxacin or its counterpart for levaquin or another FLQ, you may be able to find a class action suit. I recall seeing one regarding nerve damage. If you think you have found an attorney, you might want to check them out with Martindale-Hubble or Avvo. Good luck! And keep us posted.
Melanie Kemp
9 years ago
Hi everyone. Havn’t been on here in awhile. Things have gotten much better. I’m back to work. Not symptom free but very functional after being bedridden and suicidal.. At the moment I’m just left with a little head pressure.. it was terrible at the beginning of my relapse. Tinnitus but not as loud and I get some reprieve at times. Tingling..mosly left sided leg and arm but it can be wherever.. but predominantly left side…comes and goes… have some very normal days. Food sensitivity is nowhere near as bad although I still stick with organic animal products and not to much in the way of sweets… All in all much much better so I’m sure i’ll reach 100% as I did before the relapse. Hope everyone is doing well.
Hi everyone…
I’m about 8 months out from being closed by levaquin….about 2 months ago I felt like my symptoms were worsening and I was having a severe reaction , as I was in excruciating pain! However, I just returned from a month long vacation overseas. While on vacation I hiked, walked for miles, all with very minimal problems. I felt 90% recovered!! I returned home 2 days ago, and I feel most of my symptoms have returned.
Has this happened to anyone else before???
*floxed— sorry for the type-o
My “side effect of the week” (about 4 months out and it seems I get a new side effect almost every week) is hives. I wake up with big, welty, itchy hives on my torso and arms. Anyone else get hives while floxed? How long did you get them?
Linda,
I don’t have hives but I do get a rash on my chest and shoulders that comes and goes. It doesn’t really itch. Isn’t it amazing that new symptoms just spring up? I hope that you find a way to take care of your hives and that you feel better soon. I wonder if any essential oils could help? I used them for my bout of bronchitis a few weeks ago. It cleared up naturally.
This stuff really ages you fast. I’ve noticed a massive increase in white hairs all over my head, crows feet, and bags under my eyes that don’t go away. Never had any before this medicine. I’m eating very healthy. The healthiest in my life and there is no progress. I really don’t think this is curable.
After 3 weeks on Levaquin in Jan. 2013, my right Achilles ruptured and I began having tendon and muscle pain throughout my body. Later that year my hair also turned white and severe wrinkles (of someone 20 yrs older) appeared.
I was told by 4 reputable orthopedic surgeons that I would never walk again if I didn’t have immediate surgery. My opposite knee needed a replacement and it was apparent could not withstand the required “non weight bearing” weeks.
Found an orthopedic surgeon who agreed to treat without surgery – and to use intensive PT.
I did this for 1 1/2 years and the Achilles is now completely healed.
After researching what the top athletes do about tendon problems, it became apparent that collagen production can be an asset to healing.
I researched Serovital (hgh formula designed for skin – anti- wrinkling).
One month after starting on Serovital I had decreased all-over tendon and muscle pain and stiffness that had started several months after the Levaquin use.
The longer Serovital was taken, the more positive the effects.
A side benefit was that the wrinkles disappeared after 6 months.
Has anyone had experience with using natural collagen enhancing formulas ?
I agree Fq’s age you not only in appearance but especially how you feel. Over the last three years I look like I’ve aged about 10. My body feels like it has aged about 30.
I just found this site and decided to write because I have been beating the bushes trying to get help. Maybe some of you can give me hope. I look like I have rheumatoid arthritis, my skin gets red and peels, the pain is often unbearable. My hands, feet, face, neck and legs swell. My chest hurts, my back hurts and all lower discs have collapsed in my back. My shoulders and around to my ribcage hurt and often spasm up. I am over sensitive to touch, it causes pain and the list goes on and on. There is hardly a spot on me that is not an issue. I am exhausted and feel alone in this. I am allergic to every narcotic pain med except for demerol. I cannot function on something that strong and besides that it will make me sick on my stomach and it gives me a migraine. I am also allergic to steroids. All the tendons in my hands protrude and all joints are swollen. I don’t even know where to seek help or even if there is any to be had. Has anyone out there found anything that I might pursue to obtain relief or reversal? It has been 6 months of torture so far. I live in an area where the sun is very strong and I can’t even endure being outside for very long. I grow plants for a living as well as selling my paintings and I cannot do my job right now. Does anyone know if there is any hope for me? I will grab any straw that is offered. I hope this does not offend anyone, please forgive me if it does as I mean no harm, but my prayers go out to all of you. Jenny
Being around the flox boards is an interesting experience. You see some of the same people on there. And you see quite a few new names pop up from time to time. But there are also many people who just aren’t there anymore. Many have theorized that this is because those people have recovered and moved on. That’s a very optimistic take I’d say.
I tend to be a pessimist. And one of the things that gets me about this illness is how it has far surpassed even my pessimistic expectations. At about 3-4 months in I read the Flox Report cover to cover. It was sobering. But I knew at that time that I wasn’t a “severe” case and that I’d be looking at 18-30 months until I would make a good, maybe even full, recovery. Now, the Flox Report is filled will problems, mostly in the weight that so many of us give those recovery timelines and categories of severity. And I now realize the error in my ways.
But at 24 months out I can honestly say that my improvement has been minimal at best. My significant foot pain has persisted for 24 months. There was improvement during the first 6 months, but I feel it’s been relatively stagnant since.
It wasn’t supposed to be this way, to go like this. We are supposed to bounce back. So many recovery stories I have collected involve people recovering between 18-36 months. I looked at this time as a time of recovery, a time when I’d know I was turning the corner. But so far, it hasn’t been that way.
“How much longer do I do this?” I often ask myself. I don’t know the answer. But I do not intend on being a 5+ year floxie, still suffering, still living every day in pain. Life just hasn’t been fun for the past 2 years. It isn’t worth it to me. Not an hour goes by that this doesn’t consume my thoughts. And one of the reasons I’ve kept going is because of the hope of recovery. But as time moves on and little changes, that hope diminishes. And without that, why keep going? Two years is too early to make those choices. That’s what I think. But maybe 3 years isn’t. Regardless, the choice is in the hands of the person in pain, the person who has to deal with a daily existence void of true peace and happiness. I hope that I don’t have to make that choice. I hope my recovery is right around the corner. My floxing started about the same time this website did. I’ve read every story multiple times and will will never understand why the FB group can have 3000 members but there are only a limited number of recovery stories on here. And let’s be honest, many of those are really “I’m getting better” stories because the people are far from recovered. I’m still hopeful that my story will appear up on this site someday. I’m holding on to that hope. It’s all I have.
As someone who has suffered the adverse effects to fluorquinalones- more specifically Cipro, (leaving me totally wheelchair bound for 2 years, pain, brain fog, and yes I still have poor balance and numbness in one leg). I also have cystic fibrosis. Now, levofloxicin is the only oral antibiotic my chronic pseudomonas infection is sensitive to. I still choose to take it because I don’t fancy being hospitalised every few weeks for IV antibiotics. Levo doesn’t affect me as much as cipro did, but it does still give me a temporary worsening of symptoms. I’ve also had it IV with it being one of 3 antibiotics sensitive to the bugs I was growing with double pneumonia. I would have died if I hadn’t agreed to have the combination of all 3 drugs intravenously pumped into me.
Drug reactions could happen with any drug- it’s a foreign chemical and there’s no telling how your body will react (trust me- my allergy list has 10 drugs on it) and I would take cipro again at the drop of a hat if it saved my life. My best friend is deaf from aminoglycosides but she has never once told anyone not to take it. You are scaremongering and it’s unnecessary. People like me with CF have no choice with the antibiotics we can take & people like you telling us not to take something and even the twitter bots telling parents of young kids with CF to not allow the Drs to prescribe it (who are all well trained and work closely with pharmacists and microbiologists) Is absolutely ridiculous.
This reaction is unbelievably rare and whilst I wouldn’t wish this side effect on anyone, I would never suggest someone not take a drug their Dr had prescribed. Potentially, people could die because of your scaremongering. I still live with the side effects but just have had to adapt and get on with life the best I can whilst dealing with awful lungs (which I can assure you would be 10x worse if I didn’t still take Levo). Life doesn’t stop just because someone has had a peculiar reaction.
Please just think about what you’re doing. I understand why you would want to raise awareness, but what you’re doing is dangerous and such a waste of time and energy if you still have ongoing symptoms from your reaction. It’s a matter of perspective.
Sorry. Just my thoughts on the matter.
To the person who feels they can’t endure anymore:
Depression is a side effect of all this. Try to think of it in a detached way. It’s like a stain on your shirt that you will wash off eventually. Think of something you love, that is beautiful to you or somehow makes you happy, remember that feeling and summon it when you feel down. Just like a muscle, you can exercise that and it will become easier and effortless.
You will get better and/or adapt. You were hit with a freight train, it’s not going to go away quickly. If no one else is acknowledging what happened to you and respecting you for your battle, at least you can do that for yourself. You should be proud.
Hi Everyone!
I am so happy to have found this site, just learned a week ago about Cipro and it’s horrible side effects.. Been suffering for over a year now. Pretty much pain all over my body, from my neck to my toes. I am only 29 years old and have seen about 5 different doctors with no success. I’ve been diagnosed with Fibromyalgia and other autoimmune diseases. Which honestly think it was just a guessing game. However I am very hopeful because I’ve just scheduled my first appointment at a Clinic that provides IV vitamin infusions. I’ve been doing a lot of research in the last week, and at soon as I heard about Glutathione I googled for clinic nearby and thankfully was able to find one. I am excited and hoping that finally I get to have some relief, this definitely has been a nightmare. My story is just like Linda’s. I was prescribed Cipro for an UTI back in May 2014. I’ve suffered every single day ever since, the pain is unbearable, there has been many nights when I just cry and ask myself why would anybody allow this to happen to people. My life has changed drastically, I’ve always been a very active person, lost my job due to the several doctor’s appointments and now I am at home most of the time unable to do much, it is so frustrating!!. I wake up at night many times because of the pain, unfortunately as soon as I wake up in the morning the pain is still there again, it never goes away. My legs get very swollen, my skin is very sensitive and get bruises so easily. From my lower back all the way to my toes I have constant burning sensation and feel like a thousand needles are poking me at the same time. I am unable to walk for more than 5 minutes without feeling pain. I’ve tried several things/meds at this point, so I am definitely ready to try this last resort. Prayers would be definitely appreciated. Thank you for creating this forum, at times I felt so alone in this situation. But now feel like I am not the only one and that there is still a light at the end of the tunnel. Blessings to every person struggling because of this antibiotic, let’s keep supporting/encouraging each other and never give up!!!
Rene,
Great info you posted! What do you take for your MTHFR issues? I also have MTHFR issues. But am overwhelmed what to do!! Any advice you could give me would be greatly appreciated!! Thanks so much!!!
Jason,
That’s interesting about the correlation of being in a place w non flouride water and feeling better! Idk if that’s a coincidence or what? I drink Reverse Osmosis water everyday, but obviously use tap water for showers, baths, washing, etc. I wonder if getting a reverse osmosis filter would help?
There are several cities here in the states that have voted against using flouride in their water, unfortunately I don’t live in one of those cities……
SM and Lynda,
Thank you so much for your response.
Would really appreciate if someone can give me more info on Floxing, honestly I am not very familiar. I am just trying to get as much information as I can. Found out about Cipro just last week and I was shocked, almost every side effect is exactly what i am feeling. I reside in Minnesota and would like to know if there is any doctor here that would be willing to diagnose this as Cipro poisoning, not sure about your experience but it seems like there are not too many doctors out there well informed about this problem.
It’s been 2 years and 3 months since I was floxed. I was hit the hardest in the tendons, and was crippled for a very long time. I am finally walking again. I’m able to walk around my house without needing crutches or a cane anymore. Other than brief, mild flare-ups, I can walk without pain, though tendons do feel a little stiff.
Being able to walk has revealed another problem though. It’s one that I didn’t realize I had when I was laid up for so long with my feet propped up all the time. I really only started walking pretty well about 4 or 5 months ago and only started walking a lot more than usual, including standing for prolonged periods of time, about 2 months ago.
This has revealed that I’m having a circulation problem; it’s venous insufficiency from what I can tell. It became really evident a few days ago after an unusually long day of standing and walking. The next day, my feet were numb and a little swollen, my toes were cool and slightly bluish, my legs slowly turned a pinkish red from broken capillaries, and arms and legs felt like they were made out of lead. Since I started walking, I also have developed a small leg ulcer on the outside of my left ankle that changed from looking like a pale scar to having a bluish purple border after than long day of walking and standing.
I’m still eating a very healthy diet with lots of fresh veggies, like I have been since I was floxed. I’m still taking a good multi-vitamin/mineral supplement, vitamin C in high doses, and magnesium citrate. My blood pressure is perfect, and I’m not overweight. Actually I’m still underweight and suffered some muscle wasting from being floxed. Sometimes I do worry that one of the muscles that was hit was my heart.
I have upped the cayenne, garlic, turmeric, ginger and other blood thinning spices and foods. I’m planning to buy some support hose. I refuse to see a doctor about this after all the harm the last one did to me with Levaquin.
Has anyone else experienced circulation problems as a result of being floxed, and if so, what did you do that helped?
http://ghn.thegraychannel.com/uncategorized/iodine-for-cipro-and-levaquin-damage/
they say iodine removes fluoride
I remember Dr Terry Wahls also mentioned iodine in het protocol
I spend lot of money looking for help and is horrible I have neurologic problems I am desperate could anybody tell me something about legal help because somebody should be responsible for something like this.
Rosa, yes, someone—the doctor, the pharmaceutical company, etc SHOULD be responsible. It is criminal that we are left to find expensive remedies to pay for something that was the fault of someone else.
I am a paralegal, so I cannot by law advise, but I will tell you what I have done so far (without much success I am afraid.) First, I looked into suing Bayer, that makes Cipro. I discovered I could not because I took a generic. (There is one state, I believe it is Alabama, but can’t recall, that actually allowed a plaintiff to sue the original mfr after having been given the generic. But unless you live in that state, the decision has no weight in other states.)
I have been trying to get someone to handle a medical malpractice case, especially since I fell under one of the black box warnings—I was given it with prednisone. Now, while it is known that steroids exacerbate the FLQ the wording of the black box refers specifically to ruptured tendons, one of the few side effects I have not had. And this black box was not courtesy of BAyer, but rather a hard-won “victory” for a group called Public Citizen. (My contention though is that the doctor was willing to let me suffer a ruptured tendon, for a simple UTI, when there were far better antibiotics available.) I have been unable to find anyone to take my case and I have a couple theories on why. First, the doctor is with a large medical group and there are likely too many connections with law groups, their families, friends and this particular group. So then I tried finding an attorney not so close to home. Still no takers. I think part of the reason may be that my injuries are too “invisible” (can’t see suffocation, depression, pain, numbness) and I think another large reason is that “everyone (physicians) uses Cipro.” SO, I imagine their way of thinking is “if all physicians use cipro, then how is it negligent?”
I have also sought legal counsel against the pharmacy that actually handed me both Cipro and Prednisone at the same time, with no warning regarding the interaction. No luck there either.
So, does this mean I am giving up? Hell no.
If you took the original ciprofloxacin or its counterpart for levaquin or another FLQ, you may be able to find a class action suit. I recall seeing one regarding nerve damage. If you think you have found an attorney, you might want to check them out with Martindale-Hubble or Avvo. Good luck! And keep us posted.
Hi everyone. Havn’t been on here in awhile. Things have gotten much better. I’m back to work. Not symptom free but very functional after being bedridden and suicidal.. At the moment I’m just left with a little head pressure.. it was terrible at the beginning of my relapse. Tinnitus but not as loud and I get some reprieve at times. Tingling..mosly left sided leg and arm but it can be wherever.. but predominantly left side…comes and goes… have some very normal days. Food sensitivity is nowhere near as bad although I still stick with organic animal products and not to much in the way of sweets… All in all much much better so I’m sure i’ll reach 100% as I did before the relapse. Hope everyone is doing well.