Recovery Stories

One of the many frustrating things about floxing is that everyone’s experience is different.  We have enough in common to know that we have all been welcomed into the lovely club of Floxies, the club that no one wants to join, that includes the benefits of connective tissue and nervous system damage, but the differences between us are vast.  Some people have GI issues, some don’t.  Some have tinnitus (ringing in the ears), some don’t.  Some have vision issues, some don’t.  Some have severe pain, some don’t.  Some have mental health issues, including psychosis, some don’t.  The list can go on and on.  Our symptoms are not one-size-fits-all.  Neither is our timeline.  And, unfortunately, neither is our cure.  I hope that what helped me will help you.  If what helped me doesn’t help you, I hope that what helped another person whose story is on this site will help you.  Everyone’s path is different though.  It’s sad, it’s frustrating and it’s annoying.  Please have hope though.  Many people do recover.  When you recover, I want your story.  🙂

****** Of course, the disclaimer is necessary – I am not a doctor and none of the advice contained in this site should be seen as a replacement for the advice of a doctor or other medical professional.  Please be careful with all supplements and treatments that you self-administer.  Trusted supervision by a medical professional is a good idea.

I hope that you find healing and hope through these stories.  Please feel free to contact me if you have any questions or concerns.

  1. https://floxiehope.com/lisas-recovery-story-cipro-toxicity/
  2. https://floxiehope.com/brieans-recovery-story-levaquin-toxicity/
  3. https://floxiehope.com/sharons-recovery-story-levaquin-toxicity/
  4. https://floxiehope.com/keris-recovery-story-levaquin-toxicity/
  5. https://floxiehope.com/karens-recovery-story-cipro-toxicity/
  6. https://floxiehope.com/b-recovery-story-levaquin-toxicity/
  7. https://floxiehope.com/lynns-recovery-story-cipro-toxicity/
  8. https://floxiehope.com/marks-recovery-story-fluoroquinolone-toxicity/
  9. https://floxiehope.com/richards-recovery-story-cipro-toxicity/
  10. https://floxiehope.com/james-recovery-story-cipro-toxicity/
  11. https://floxiehope.com/lauras-recovery-story-levaquin-toxicity/
  12. https://floxiehope.com/jaynes-recovery-story-levaquin-toxicity/
  13. https://floxiehope.com/mark-ws-recovery-story-cipro-toxicity/
  14. https://floxiehope.com/crystal-recovery-story-fluoroquinolone-antibiotic-toxicity/
  15. https://floxiehope.com/bills-recovery-story-avelox-side-effects/
  16. https://floxiehope.com/angelas-recovery-story-cipro-toxicity/
  17. https://floxiehope.com/brians-recovery-story-cipro-side-effects/
  18. https://floxiehope.com/douglas-story-cipro-side-effects/
  19. https://floxiehope.com/susans-story/
  20. https://floxiehope.com/sarah-story-cipro-adverse-reaction/
  21. https://floxiehope.com/bens-story-cipro-side-effects/
  22. https://floxiehope.com/stus-story-cipro-poisoning/
  23. https://floxiehope.com/diegos-story-levaquin-side-effects/
  24. https://floxiehope.com/gens-story-ciprofloxacin-toxicity/
  25. https://floxiehope.com/tamaras-story-cipro-toxicity/
  26. https://floxiehope.com/ruths-story-cipro-toxicity/
  27. https://floxiehope.com/toms-story/
  28. https://floxiehope.com/daniels-story-ofloxocin-poisoning/
  29. https://floxiehope.com/cindys-story-cipro-poisoning/
  30. https://floxiehope.com/bens-story-levaquin-adverse-reaction/
  31. https://floxiehope.com/brandons-story-cipro-side-effects/
  32. https://floxiehope.com/sarahs-story-cipro-recovery/
  33. https://floxiehope.com/nicks-story-recovery-from-cipro/
  34. https://floxiehope.com/gigis-story-rescued-by-fletcher/
  35. https://floxiehope.com/esparts-story-recovery-from-cipro-poisoning/
  36. https://floxiehope.com/renees-story-cipro-reaction/
  37. https://floxiehope.com/phillips-recovery-story-from-cipro-poisoning-to-healing/
  38. https://floxiehope.com/peggys-story-cipro-poisoning-and-recovery/
  39. https://floxiehope.com/bronwens-recovery-story-the-heart-of-cipro-toxicity/
  40. https://floxiehope.com/bens-story-floxed-meat/
  41. https://floxiehope.com/codys-story-cipro-toxicity-recovery/
  42. https://floxiehope.com/melanies-story-fq-toxicity-relapse/
  43. https://floxiehope.com/bretts-story-levofloxacin-toxicity-and-recovery/
  44. https://floxiehope.com/daniel-ls-recovery-story-2/
  45. https://floxiehope.com/ambers-recovery-story-cipro-toxicity/
  46. https://floxiehope.com/beckas-recovery-story-ciproflox-toxicity/
  47. https://floxiehope.com/garys-story-levaquin-toxicity/
  48. https://floxiehope.com/taras-story-healing-from-levaquin-effects/
  49. https://floxiehope.com/lizzys-story-recovery-from-ciprofloxacin-poisoning-2/
  50. https://floxiehope.com/romains-story-tavanic-levofloxacin-poisoning-and-recovery/
  51. https://floxiehope.com/lukaszs-story-clarithromycin-and-ciprofloxacin-poisoning-and-healing/
  52. https://floxiehope.com/maxs-story-recovery-from-cipro-induced-nightmare/
  53. https://floxiehope.com/steffens-story-tavanic-levofloxacin-poisoning-and-recovery/
  54. https://floxiehope.com/ricardos-story-recovery-from-ciprofloxacin-toxicity/
  55. https://floxiehope.com/erikas-story-recovery-from-antibiotic-poisoning/
  56. https://floxiehope.com/hs-story-ciprofloxacin-effects/
  57. https://floxiehope.com/es-story-healing-his-gut/
  58. https://floxiehope.com/tammy-rs-story-recovery-from-levaquin-toxicity/
  59. https://floxiehope.com/marcelas-story-recovery-from-levaquin-depression-and-anxiety/
  60. https://floxiehope.com/amys-story-recovery-from-levofloxacin-poisoning/
  61. https://floxiehope.com/joanne-gs-recovery-progress/
  62. https://floxiehope.com/shelleys-recovery-story/
  63. https://floxiehope.com/dianas-recovery-story-epstein-barr-connection/
  64. https://floxiehope.com/francescos-story-recovery-from-fluoroquinolone-toxicity/
  65. https://floxiehope.com/rays-story-recovery-from-cipro-poisoning/
  66. https://floxiehope.com/mikes-story-a-recovery-note/
  67. https://floxiehope.com/dougs-recovery-story-cipro-taken-for-prostatitis/
  68. https://floxiehope.com/ryans-story-cipro-and-flagyl-toxicity-and-recovery/
  69. https://floxiehope.com/zoes-story-fqad-at-age-16/
  70. https://floxiehope.com/james-story-hurt-by-metronidazole-then-cipro/
  71. https://floxiehope.com/toms-recovery-story/

22 thoughts on “Recovery Stories

  1. Brooke Keefer July 1, 2013 at 4:30 pm Reply

    I am eight months out from being “floxed”. It all started when I came down with an Enterobacter gram negative sepsis infection two weeks after having major abdominal surgery for Sphincter of Oddi Dysfunction (SOD). I say “major” because my incision was from my sternum to my groin. The sepsis infection came on rapidly and suddenly. One minute I was enjoying a hospital visit from my friends, the next I had rigors to the point I couldn’t stop my teeth from chattering and shivered all over. My temperature rose to 106 degrees (F) in a matter of ten minutes. The nurses scrambled to figure out what to do with me. At one point I grabbed a nurse by the collar and told her she better not let me die as I have children. While I waited for blood test results, the staff covered me with ice packs. It felt like my hospital bed was on fire. Eventually, the doctors gave me Levaquin and steroids (my adrenals were failing). I was in the ICU for three days.

    After my ICU stay, I was continued on Levaquin and steroids and was given an IV PICC line for total parenteral nutrition (TPN) as I still couldn’t eat on my own or tolerate tube feeds from the surgery. A few weeks later I went home but was still on steroids for my adrenals. Unfortunately, three weeks later I returned to the hospital as I had a fever. Another sepsis infection was suspected so I was given more Levaquin. The hospital took out my PICC line as they suspected this was the source of my infection. Well, it turned out I didn’t have an infection after all. After a four day stay, I went home, still on steroids, and was able to eat a little and start tube feeds through my j tube, which fed my intestine. Within a few days, I woke up and couldn’t stand on my feet I was in so much pain. This became a trend every morning. It felt like my Achille’s tendon was being ripped from my ankles and my feet burned. As time went by, the nerve and tendon pain spread to my knees and hands. I had terrible panic attacks and couldn’t tolerate fructose. If I ate anything with a high fructose ratio, like an apple, or drank juice, I developed instant nausea and anxiety. I soon discovered I had developed a strange sensitivity to sunlight and started getting a dry facial rash.

    None of my doctors knew what was wrong with me. I also had very high vitamin b levels (all of the bs were high, though I don’t take vitamins with any bs in them). I saw a nutritional MD, endocrinologist, rheumatologist, neurologist, chiropractor, primary care physician, and surgeon. Not one could explain these symptoms I never had before in my lifetime. I searched the Internet for a solution. After all, that is how I finally got diagnosed with SOD after 14 years of being misdiagnosed. I had to figure it out myself! And I did. Fluoroquinolone toxicity made sense. I joined a few online support groups and realized I wasn’t alone. This finally explained why I felt the way I did and that I wasn’t alone.

    I still have pain, but it’s getting better. I go to the gym and use the sauna and whirlpool, do light weight training, and can tolerate about a mile on the elliptical as it doesn’t hurt my feet. The photosensitivity seems to have gotten better as I’ve spent the last few weeks outdoors. I still cannot tolerate fructose for some reason and my vitamin b levels are still high. I also get liver pain/swelling and believe the fluoroquinolones did damage to my liver and small intestine, which would affect my vitamin b levels and cause some of my symptoms. My nerve and tendon pain is always worse after eating. I do not drink or smoke, so that’s a good thing for my physical recovery. I eat well too–mostly vegetables, gluten free grains, and lowfat grass fed, organic meats and eggs. I found I can’t do dairy or sugar in ANY form. I eat fermented vegetables every day, which I get at our local food co-op. They are a great source for probiotics since I can’t eat yogurt. I have wasted a lot of money on supplements. The only supplements (I think) help me are alpha lipoic acid, MSM, calcium with magnesium and viatmin d, zinc with vitamin c, melatonin, and cod liver oil capsules. I am almost off the steroids as it’s taken time for my adrenals and pituitary to “wake up”. I do take prescription pancreatic enzymes for my SOD condition and an antidepressant that has literally saved my life. I wake up each day praying to get a better perspective on my life. I can’t take any pain medications without serious side effects. Subsequently, I have learned to accept my pain and where I am at.

    In closing, none of my doctors will confirm fluoroquinolone toxicity is the cause of my symptoms. It is sad and unfortunate I don’t feel heard by my physicians. However, I am grateful I have a network of fellow “floxies” who understand and are there to offer support. I am not angry about being floxed. I nearly died and my life needed saving. What does outrage me is the lack of funding and research for fluoroquinolone toxicity. I hope that one day there will be treatment for people with our condition.

  2. Patty Alexander Sr. January 18, 2015 at 7:59 pm Reply

    Thank’s for sharing your story with us Brooke and I wish you very well!

  3. Recovery Stories | yoursaymatters September 19, 2015 at 12:44 pm Reply

    […] Source: Recovery Stories […]

  4. Anna April 1, 2016 at 7:12 am Reply

    I am ALWAYS wondering about doctors and why they don’t acknowledge all our pain and symptoms? Sure, there are doctors who DO and DID take Fluoroquinolone or even prescribed them to loved ones and did develop toxicity symptoms immediately or later on. I really want to know how they deal with it or do they still live in denial? Do they care to read researches or look into sites as this site to see that these are REAL people who are in REAL suffering? !!!

  5. Karen in Ma May 14, 2016 at 4:06 pm Reply

    My heart goes out to one and all, as I literally am weeping a this moment over the sad and lonely state of the victims. Sorry to report, that I and another woman who was poisoned by FQ’s whom I met online, have had the terrible experience of escalating degrees and numbers of afflictions post FQ exposure. She has survived some 12+ years and I am on year 5 with no hope in sight as symptoms worsen every single day.
    For first 3.5 years I had no idea about the toxicity issue of IV Levaquin which was given to me in hospital for 3 consecutive days in 2011.
    I was sent home with oral Levofloxacin which I subsequently took periodically on recurrences.
    Today, I am crippled. My symptoms started with pain in tendons in the back of my ankles, legs and buttocks. Problems with numbness and nerve communications to my feet. Eventually I fell and then sustained a rotor cuff tear and separation of tendons in my shoulder. Hip pain. Edema to the outer limits. on and on and on. Now I cannot stand or walk without excruciating pain and am completely out of breath from the swelling and associated weight gain.
    After the last oral regimen, I instantly suffered from crippling pain across every tendon in my rib cage..couldn’t breathe without screaming in pain and sofa bound for weeks after only a couple of pills.
    The very worst problem, psychologically and physically, is my obesity weight gain which, IMHO, is related to a massively diminished urine output and edema in my feet and legs. Now I have no diabetes or other cause for this. I AM HUGE particularly in my abdomen!!!
    People approach me on my rare public outings to offer diet advice. It is so awful. Actually, I eat less than almost anyone I know. Near as I count, I eat probably less than a cup and a half of solids once daily and sometimes none at all. I live more on liquids than anything because the edema and lack of fluid in my system has screwed up my intestinal tract so solids cause problems there as well.
    I wish there were some encouraging words, as now I cannot do my employment job and have to sell my house as i am a widow with no family and live alone.
    I can only say to everyone else, pass the message along to others before they are ruined too….and pray. I think my days are numbered as I can barely breathe after walking and I think it is the edema. My tissues are slowly drowning in their own fluids.

    If anyone has experience with this awful weight gain (I mean I have 250+ pounds over last 2 years) let me know what you have discovered. Or just let me know you have the same problem. I have found a few folks but more would be beneficial. Thanks and best wishes to all.

    • Cindy August 13, 2016 at 5:21 am Reply

      You can’t give up.

    • Mojo Jaye March 22, 2017 at 11:36 pm Reply

      My stomach blows up like a balloon when I eat, and I don’t eat junk – that never happened to me before the cipro – I have to sit in a chair and bend over or scoot to the edge of the chair and lean back – I have a constant sensation of all my internal organs being swollen five times their normal size – this makes me a nervous wreck, like my life is being cut short …

    • Cathy March 26, 2017 at 7:42 am Reply

      Karen, I acquired many food intolerances, sensitivities, and allergies and had to give up gluten, and lost 45 pounds in a few months and felt way better. As for my gut – yeast or severe candida had been building up in me since the floxing and when I got the yeast down the belly bloat went with it. The yeast would cause gurgling in my stomach which I thought was hunger pains and I ate to alleviate the nausea, but what I was doing was feeding the yeast. I also had the water retention which felt like I was being constricted and could not breathe or exert myself without feeling like I was going to explode. Please look into gluten intolerance and candida as being a possible contributor.

      • Karen in Ma March 26, 2017 at 12:07 pm Reply

        I looked at candida and ordered oregano oil. I do not get hungry when gurgles occur. It is just an observation of fluid sloshes I never had before in my life. They occur when I am moving of course. I eat very little bread (actually I live on liquids mostly). I just wish I could walk further and without so much pain.
        Thanks for the help, it means a lot to have anyone offer advice. My doctors are clueless so I don’t bother with them anymore. I am a recluse with no family and only one friend (I never see anymore) and I spare her from my problems.

        • Ourgangcathy March 26, 2017 at 12:18 pm

          Hi Karen, You can email me anytime at ourgangcathy@aol.com I totally understand the isolation. It is just too convoluted and complicated to explain to others, but having been there done that, I would understand. Write anytime. I have a lot of questions for you but would rather use email. Hope to hear from you soon. Cathy

      • Karen in Ma March 26, 2017 at 12:15 pm Reply

        Forgot to ask, how did you get diagnosed with candida?

        • Ourgangcathy March 26, 2017 at 12:21 pm

          I found out about the gluten the same way I did about the Cipro poisoning – online research. No doctors helped one time in years and many made it worse.

  6. floxed from poland July 12, 2016 at 7:12 am Reply

    On http://www.myquinstory.info/
    there is document FLOX_REPORT_REV_11.pdf, you may read free time.

    Most of recovery stories here is mild floxing (maybe excluding B, Stu, Diego)
    so recovery is really fast (1 year and someone can work).
    For mild floxing really no problem.
    For severe (delayed) floxing road to recovery is long,
    few years to partial recovery and little hope.

    • Rami July 14, 2016 at 1:32 pm Reply

      I have been floxed 5 months ago and my muscles and tendonds pains started appearing after 4 months. Only neurological and psychic symptoms appeared early after the floxing, and are far better now. Does this mean my floxing is a severe one since new symptoms are still appearing after 4 months?

      • Cindy November 19, 2016 at 5:27 pm Reply

        Rami
        Perhaps you were refloxed maybe by fluoride in the water supply or other medication such as eye drops or a different group of antibiotics?

        Gluten can cause peripheral neuropathy. If you google the gluten syndrome and gluten ataxia you will get more info.

  7. FloxFromCipropol July 16, 2016 at 6:18 am Reply

    Rami … its not easy to answer. It depends,
    you may have new symptoms, or you may have not.
    You have delayed reaction.
    please download document flox report from myquinstory www site
    and read it.
    everyone has different reaction after this crack.

    There is “im floxed now what?” Part this blog, read it also.
    I wish Everything will be ok Rami. Take care.

    • Cindy November 19, 2016 at 6:49 am Reply

      Hi I cannot find your recovery story please can you send it to me. Many thanks. xxx

  8. F December 28, 2016 at 8:36 am Reply

    Hi All,

    I’ve just discovered this page and thought I’d share what happened to me in these last months because I feel it has lots in common with all of these stories.
    Let me start by saying this is a recovery story or I hope and think it is anyway.
    In November 2015 my boyfriend and I left on an 8 months backpacking tour of Asia.
    At the time I was 37 years old, in good health and good shape since I used to run lots (I’m gradually going back to it..) and the whole idea of the trip, among others, was to be able to perform sports and activities we hadn’t tried yet like rock climbing, diving, surfing etc etc. Anyway, all went perfectly from November to March.
    In March I developed a UTI while we were in Laos and the doctor we managed to see gave me Cipro.
    I went through a first 7 day cycle which (I realised later) cured the UTI.
    However, since I also had another irritation in the bladder area at the same time and since I thought this irritation was also connected to the UTI ( I thought the UTI wasn’t getting better), I asked whether I should take a second cipro cycle thinking the first hadn’t actually cured me.
    While I was taking this second cycle the doctor had me tested to discover whether the first cycle had been effective and I got the results at the end of the 2nd cycle.
    The results confirmed the UTI had gone the first time around so it had been totally useless to take the 2nd cycle since the other irritation was a vaginitis which I was trying to cure with cipro..Now that can’t work can it?
    All of this to say that I must have taken 15 days of cipro under medical supervision.
    Please note we were travelling in very hot, humid countries and seeing doctors and getting tested were very hard tasks so both the medical staff and myself were looking for quick solutions.
    So we went on with our travels but my aches and pains started to escalate progressively after those 15 days of cipro.
    As a premise, my vaginitis (which had nothing to do with the cipro since it was there before) wasn’t getting better but that was just because I hadn’t sought the right care, I had been looking for UTI specialists instead of seeing a gyno.
    At that stage I still didn’t know if it was a recurrent UTI, a bladder infection or a gyno problem, it was difficult to see doctors and when I did see one he/she always gave a wrong diagnosis based on no tests.
    Instead of taking it lightly, I started having hypocondriac thoughts and went into a paranoia that I had some terrible disease attacking my body, that I had contracted something bad in the past and I started getting very anxious.
    At the same time my gastrointestina/digestive problems started so I couldn’t eat the same things as before and went onto a rice and chiken diet, stopped all drinks except water and started losing weight.
    Now, it’s very important for me to insist upon the fact that I had never in my life experienced paranoia or stress of that type before.
    I am/was, on the contrary, a very calm and stable person, as my boyfriend knows too.
    Furthermore, I was on holiday!
    We were travelling through beautiful countries, going to the beach, diving, immersing ourselves in nature and there was absolutely no reason for my mind to start going on shady horror trips.
    We were living a healthy life, no partying, going to bed early and rising with the sun, taking time to enjoy each moment..There really was no place for stress.
    But even so, I felt that gradually my mind and my body weren’t obeying to me anymore, something really weird and scary was happening.
    However, I never for one minute connected these progressive happenings to the taking of the cipro.
    In those months I saw many doctors in many countries, they all had different opinions and they all suggested I took tests once back in Europe.
    3 months after I took the cipro I was a nervous wreck, cried at least once a day, had aches and pains in my stomach and couldn’t eat what I wanted.
    My boyfriend didn’t know what was happening to me and the worst hadn’t arrived yet.
    The day before our return to Europe I felt my left knee ligaments making a snapping noise each time I moved.
    At the beginning I thought nothing of it, but then I started counting the crackling noises..It snapped at least 50 times a day, at each movement. It just wasn’t normal.
    I started panicking even more and we flew back on our intercontinental flight so relieved that we were finally going home.
    My mother came to meet us and said I was looking awful, I had lost 6 KG.
    2 days after that I woke up in the morning and all my body was in pain, both my muscles and my articulations.
    From under my feet to the top of my neck there wasn’t one muscle, one ligament, one articulation that felt normal.
    All my joints crackled, I had difficulty walking, had my first two panic attacks, lost my sleep, had great trouble concentrating, couldn’t read or watch TV, spent days and nights crying, was a total wreck.
    Nobody, including me, knew what was happening.
    We were all desperate, both my boyfriend and I started smoking again.
    All of this came on progressively but this part, the muscular part, the part where I couldn’t sleep anymore, the part where I had panic attacks was just out of the blue..
    How could I be reduced to that trembling being, full of weakness and fears?
    Where had I gone? Where was I? That just didn’t feel like me.
    Of course, I got all possible tests done and nothing was wrong with me except the vaginitis which I started tackling in a proper manner.
    The worst part of it all was that my doctor (I didn’t know him, it’s the village doctor where my mother lives) thought it all came from the mind and gave me Xanax.
    He said that I had to accept that ‘things happen’ in life and that it’s possible to be a healthy, stable person the day before and an ill wreck the following day and that that was life.
    He said this backpacking trip had probably made old issues emerge from the past, old thoughts of an unresolved nature, guilt trips that now were haunting me.
    He advised I started psicotherapy with someone.
    He also said half of the world’s population took Xanax and that I should try to give it a chance.
    I started seeing a shrink but didn’t find it useful…I didn’t need to spill any beans out, I didn’t have any major problem a part from my father’s death 2 years prior but he was 91 and I had come to term with his loss.
    Of course, as for all, my life had gone through different phases and obstacles but I was in a long term happy relationship, we were thinking of having a baby soon, I had my band I played music with, I travelled, I did what I wanted with my life and didn’t feel particularly frustrated with it.
    I tried Xanax a couple of times and it made me feel worse, it made me feel like a zombie and wasn’t solving any of my issues.
    Deep inside me, I knew that the shrink or Xanax weren’t the answer.
    I know that seeing someone is always beneficial and I intend to do so as soon as I have a budget for it but at that moment I knew that something else was happening to me, something I didn’t know but, after lots of reading, I understood was probably something neurological in nature.
    I decided I’d go to see a rheumatologist, one of the best in the city and that was the best decision I could take.
    He understood there was a problem with my nervous system, with the peripheric nervous system in the specific.
    He told me to take Laroxyl, to start with 3 drops per day and progressively go up to 10 then stop at 10 and take it for 2 months at 10.
    He said I should never take more than 10 since that is what is needed for the nervous system, more drops were for other conditions.
    He said it would help the cycle of sleep come back as well as my body feel better.
    I started it on the 4th of August and stopped it on the 15th of October and I am much better.
    The sleep came back almost instantly and the pains gradually wore off leaving only the crackle in my left knee which I suspect will never leave. I stopped smoking again.
    My gastrointestinal problems never left but I’m taking probiotics and homeopathic tratments for them. I’m back eating like I used to.
    In August I slowly started jogging again and I got pregnant in September.
    The rheumatologist told me the pregnancy could make me feel better and it’s probably what is happening.
    At present I sleep like a log, I jog when I can, I’ve found a new job and started composing lyrics for music again.
    I was very worried that getting off the Laroxyl would have been a hard task but it went really smoothly also because I wasn’t taking much.
    I now believe what happened to me was connected with the cipro.
    I don’t know how though..Did I get better with the Laroxyl? Did I get better because time was passing and the substance was leaving my body? Was I lucky that I didn’t experience major irreversible damage? Will all these symptoms resurface after the pregnancy?
    I believe cipro probably damaged my nervous system in that my concentration isn’t as powerful as it was and my body globally feels different, but that may also be the pregnancy.
    I know a different me appeared this last summer, someone I really hope I’ll never have to meet again.
    My companion and my family as well as my dear friends have been my rocks throughout this ordeal and I don’t know where I’de be without them.
    I still think some people out there probably think I just experienced a nervous breakdown but, now that I can talk about it in such an objective manner, I know I don’t owe any explanations to anyone but myself.
    Thanks for reading this.

    F

  9. winifred howard December 31, 2016 at 5:43 am Reply

    How awful. I do not think you had a nervous breakdown at all! It was the Cipro.

    How long did the depression last and how did you cope with it ?

    Wynn, (Winifred)

    • F January 5, 2017 at 6:59 am Reply

      Hi Wynn,

      It would be difficult to call it a depression..I’d probably call it more of a general anxiety disorder but, to be honest, it might have been a mix of both conditions.
      It didn’t last long.
      I’d say 4 months in total, starting in May with the hypocondriac thoughts and ending in August with the use of Laroxyl.
      However, we spent July and August in the same place and I must say I was very lucky in that we had planned to spend these 2 months home to rest after such a long journey and before starting to look for jobs again.
      That meant I didn’t have to wake up in the AM to go to work and I had no kids to take care of.
      It also meant I wasn’t forced to do any mingling with people or social life. I had my mother my companion, the dogs, nature and very helpful neighbours.
      I deeply admire all those who went through this kind of struggle while working and dealing with kids or/and society because in those 2 months I wouldn’t have had the strength.
      And, believe me, Im quite the social person, a chatty and open human being.
      My nights were sleepless and on some of them I woke up with my heart pounding and short breath.
      As I got off my bed and went outside in nature, I’d cry because I felt my limbs were so heavy and that walking was a mix of crackling noises and shooting pains all over.
      I’d be looking at the trees and asking myself how it could be possible that my body had become such a bundle of hurting nerves, twitching muscles, spasms and pain.
      I was looking thin and consumed and I remember looking at myself in the mirror and finding I had these gaunt eyes staring back at me, I was looking worried, stressed, sad.
      And this after one of the most powerful and beautiful trips I’d ever done.
      I still don’t regret having travelled those 8 months, even if the end of the trip led me to such a dark place. I knew travelling hadn’t brought this upon me.
      So I started stuff up on the internet, gathering information, trying to understand what the hell was going on with my body and mind.
      I wouldn’t read any article but only articles from websites which looked serious.
      everybody was telling me to stop looking stuff up, thinking I was influencing my mind with all the desperate cases in this world.
      They were worried about it being anxiety or depression but I knew very well that there was a physical beginning to all of it, I knew the brain had been affected last, not first.
      And it’s the strength of this idea that made me seek help from another specialist (while the local doctor was telling me I had nothing, my tests were excellent and that it was pointless).
      I didn’t let fear install itself and made sure I got to the root of things.
      What I found was the condition called fibromyalgia and from that, after months, I arrived to this website.
      I noticed lots of fibromyalgic people were complaining about their symptoms starting after a cipro intoxication so at the beginning I thought I had fibromyalgia.
      But as I started getting better I told myself that, though many of the symptoms were very similar to those of fibromyalgic people, mine were indeed slowly going away so it looked more like an intoxication, a big one, rather than a chronic illness that had installed itself for ever.
      Of course i don’t know if the symptoms will return and I’m still not sure about anything since without empirical evidence it’s difficult to produce sure and objective statements, but it does look like the cipro played its role in all of this…

  10. Mojo Jaye March 22, 2017 at 11:19 pm Reply

    I’m scared to death – this drug has ruined my body – I went from being able to walk miles to barely being able to walk to the other side of the room – I took 500 mg twice a day for 7 days, no issues at all (other than slight woozy sensations that almost all antibiotics cause, but I can take penicillin with no side effects whatsoever) until that very last pill, and then my body fell apart – my hip joints and lower back scream, all of a sudden my right ankle hurts, my inner elbow joints are sore to the touch, I sat and looked in a compact mirror and watched a blistering rash form on my chin – the ER and the wellness liaison with my insurance, along with the pharmacist all pretend my problems are not from this horrible drug, but I know better, I know my body – two years ago I was given clindamycin for a dental abscess, and I never recovered from what that poison did to me – now, after the cipro, my stomach expands like a balloon if I eat something as harmless as a grilled cheese sandwich – I’m reduced to eating organic meats and vegetables, drinking safe herbal teas – no one told me about probiotics or yogurt to help balance my intestinal flora, not even to drink lots of water, which probably wouldn’t have made a difference – my hands also hurt, barely able to open jars, use scissors, simple things – I have never been in so much pain – I can only pray to recover, but every day I’m afraid I won’t, it hurts so much just to walk, it’s unreal, I feel like I should speak to an attorney about what this crap has done to me …

    • Karen in Ma March 23, 2017 at 11:30 am Reply

      Mojo Jaye: Others have reported some recovery with a homeopathic treatment/cleansing. I personally am planning to search for one locally. As I have no recovery story to share sadly, I will add two notes.
      Never take anything with ‘mycin’ in the title.
      I too took clindamycin and I almost ended up in emergency. My doctor told me ‘do not take that again ever’. I cramped over in pain like a pancreatitis attack. It was horrible. So just be advised other ‘myacin’ drugs could do the same.
      Also, even in a homeopathic treatment I advise caution on colonics. I watched Dr. Oz demonstrate how easily a non-trained person can perforate those delicate tissues near the ‘end of the gastric line’ (I call it). It can be dangerous.

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