Karen’s Recovery Story – Cipro Toxicity

Karen

*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

Karen’s Story –

Here is Karen’s story, written by Karen.  I asked a couple of questions, which are noted.

In the last five or so years, I had UTIs for the first time, beginning when I was 50 years old. Although I only weigh 115 pounds, I inherited a predisposition for diabetes (now prediabetic), and my blood sugar is slowly creeping up– and so were the incidences of UTIs, which can be triggered by sugar. Dealing with this new ailment, UTIs, I had heard horror stories about how painful it could be, and made sure I had antibiotics (some, maybe all, Cipro) so I could take them at the first sign of an infection. I also made sure that I had a dose before I went on an extended nature vacation in 2010… sure enough, I got another infection on the trip while in a remote national forest and took Cipro, so grateful the doctor had prescribed it in advance!

About two weeks later, I had deep aching in my legs. I couldn’t walk without it intensifying, and it felt like a vise was concentrating in one area on both legs. Wrapping them tightly cut out the throbbing, and I couldn’t walk or sleep. I tried to figure out what caused it, not yet linking Cipro. Then my hands were attacked. It felt as though bolts of electric shock stabbed the tops of my hands, and the outside edges were swollen, blue, and so painful that I couldn’t remove jar lids, open doorknobs, cut food… Sleeping was making my hands worsen, so I started wearing braces to prevent them from twisting – basically keeping the tendons immobile as much as possible.

Doctor visits began, and tests for Rheumatoid Arthritis, Carpal Tunnel Syndrome, Myasthenia Gravis (even have the drooping eyelids), and Lyme disease all came up negative. Since it was symmetrical on my body – although intensity of pain was sometimes more concentrated on one side – I figured it was systemic and it seemed to me that it was a tendon issue. Also, I had issues with my ankles aching and digesting broccoli for the first time.

Researching tendon problems, I began noticing a link to Ciprofloxacin… of course this is now maybe a year into my floxing. My doctor looked at me doubtfully when I mentioned my problems might be linked to Cipro. I had read that doctors won’t talk about it or even believe it, and fully expected the reaction he gave. However, the attending male nurse said it was possible I was right.

At this point I gave up on doctors.

Two years into this, I had some time on my hands for about ten days. Admittedly, I was a bit down, and didn’t make plans to keep busy with friends/family. Just felt like withdrawing and so I sat on the sofa and read a bunch of books, ate, and slept. I just barely moving around.

Well… I started feeling better. It was pretty marked improvement. I wasn’t sure if I was better due to inactivity, allowing tendons to repair themselves, or if the time would have been a factor. About this time I found the FTG (Fluoroquinolone Toxicity Group) fan page. My journey has already become history, although I do have occasional flare-ups, just now recovering today from a recent one that affected my hands mostly, and began about five days ago. Thankfully, the intensity has never been as severe as before.

Lisa’s response – Karen, your story is really interesting. So you just somewhat suddenly felt better after years of feeling bad – am I understanding that correctly? And nothing triggered your recovery other than taking it easy and resting? If I’m understanding you correctly, it sounds like your body was just ready to recover – suddenly. Kinda crazy, huh? It’s so strange that this happens at all, and that each of us experience such different symptoms, and that the recovery process is different for everyone. What is your life like now? Can you do the things that you could do before you were floxed? Do you have any advice for other floxies? I look forward to hearing more about your story, if you would like to share.

Karen’s Response – I think it was a combination of being two years from being floxed and complete rest that gave me a turning point. I have persistent relapses, but probably bring them about by trying to use my hands/legs the way a normal person would, such as vigorously scrubbing or prolonged hiking. At least the relapses are light and short, with a few exceptions. No, I can’t often do everything I could before without paying a price, but life is good.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

18 thoughts on “Karen’s Recovery Story – Cipro Toxicity

  1. Ronda Bowen April 13, 2014 at 4:00 am Reply

    After a year and a half, in September 2013, my symtpoms suddenly disappeared as well. I have flare ups – mostly if I don’t eat right or eat something that has been exposed to pesticides – every once in a while, but I suddenly experienced a lessoning of symptoms. I was in my third trimester of pregnancy when that happened. One thing – I was put on iron supplements b/c I was really anemic.

    • Lisa Bloomquist April 13, 2014 at 9:09 am Reply

      Iron helped me tremendously, Ronda. I use a low-dose brand called Pur Absorb. I like it a lot even though it’s not cheap.

      How’s your kiddo? I worry about post-flox kids, but I probably shouldn’t. There are lots of women who have had healthy, happy kids after they’ve been floxed.

      • Ronda Bowen April 13, 2014 at 9:18 am Reply

        So far, she is fine. She is super strong and has been meeting milestones very early.

    • Lisa Bloomquist April 13, 2014 at 10:27 am Reply

      I’m glad to hear it, Ronda!

      If you are at a point where you would like to share your story here on Floxie Hope, please let me know. You can reach me through the “Contact me” link. 🙂 Thanks!

    • Marci Morrison August 7, 2016 at 12:13 am Reply

      I took Levaquin early May, 2015. I went through gluten-free sugar-free dairy free soy-free and nothing seemed to change. I have severe tendon issues which migrate throughout my body or just stay bad all the time such as my rotator cuff and my tennis elbow’s. I am very scared because I have just developed peripheral neuropathy on my feet. the neurologist wants me to have an EMG which I am scheduled for. I feel like maybe I’m wasting my money. Maybe I could self heal. I do a lot of the same stuff that Karen and Lisa talk about to keep positive. I never had loss of energy but believe my muscles are deteriorating due to the pain I have in my arms and legs. I have also been losing weight. I work out 5 instead of 6 days a week I still do it! I wonder if I even have a trace of flouride if that is poisoning my body more. I have to take your advice and keep positive, meditate, keep the Epsom salt bath going and get massages. The only reason people know that I’m hurting is because I mention my symptoms. I go about my day like any other day. I smile. I work hard at work. But need to work on being better with my husband at home. I really do need to take your advice and keep positive all the time. Thank you for sharing a positive story. I hope one day my neuropathy will get better. My tendons definitely do not hurt as bad as they used to when I was in physical therapy last October. Maybe that is a sign of Hope.

      Ronda,
      What type of foods should I eat or not eat?, I typically eat very healthy like salads, fruit and lots of turkey meat. When you read so many negative things, it seems like all the healthy things are bad for you because they have fluoride or cause inflammation.

      • Ronda Bowen August 7, 2016 at 9:40 pm Reply

        Hi Marci 🙂

        I cannot have conventional produce at all. Salads for me have to be organic as pesticides make things worse. Turkey needs to be hormone free, antibiotic free – I find that poultry can really set me off…we get ours from Whole Foods, which I know is not an option for everyone. Watch out for MSG, Calcium Chloride, Fluoride, Citric Acid (sometimes), Soy products that haven’t been labeled GMO project verified, wheat products without that label, and corn products without that label. Fluoride is common in a lot of pesticides, herbicides, and fungicides. I try to find things with as few ingredients as possible. I’ve also found that since moving to Kansas from California, my symptoms and sensitivities have largely disappeared – the weird thing was when we were looking for a home out here, my symptoms were gone, and they started up again minutes after stepping off the plane in Sacramento. I’ve since had another, totally normal, strong, and healthy baby. Symptoms are a LOT less while I’m pregnant. These days, unless I eat something I know I shouldn’t, I’m down to a bit of a limp if I’ve been sitting for a while and the food reactions. I’m just over 4 years out.

  2. Richard Kash November 13, 2014 at 9:11 pm Reply

    My left eyelid slightly droops, Karen’s said her eyelids drooped. I wonder if that also went away for her

  3. PATRICK LONGSTRETH November 25, 2014 at 6:56 am Reply

    I am 20 months in recovery from Cipro poisoning, nearly better, but the side effects in my tendons continues to return. My best results have come from vitamins, massage weekly, but most importantly from weekly acupuncture & a daily mixture of herbs from the acupuncturist. In addition I spend countless hours in my swimming pool each day. The key is to remove the fluid (mucus) that Cipro creates in the body, and increase the blood flow to extremities such as legs, and arms. Good luck & good health to all!

  4. Karen (wrote the story) January 22, 2015 at 2:13 pm Reply

    I continue to heal, with the slightest relapses sometimes occurring. My hands may never be as strong as they were, but I get along very well. I pay attention to what I choose to do… may kayak with someone, but not alone – just in case!

    As for the eyelids, they remain the way they drooped, but I have chosen not to do anything about them since they have not worsened.

    My best to you all!

  5. Erica May 2, 2015 at 10:19 am Reply

    Karen, Can you tell me more about your Carpal Tunnel Symptoms? That was one of my symptoms and it was very fast and aggressive and I had surgery on my right hand last July, just 3 months after my first mild CTS arose. I just began having symptoms in my left hand in March and may be recommended for another surgery. I’m really trying to avoid this now that I believe it is just part of the FQT and hoping that it will heal with time. Did you ever have surgery, did you do anything to help. I just began acupuncture and I’m hoping it is helpful for this.

  6. Lucy Sky November 14, 2015 at 7:32 am Reply

    Hi Erica Glad to ear that you are recovering May I ask you how many acupuncture sessions you have had? Lucy

  7. joanneg February 4, 2016 at 10:55 am Reply

    Hi, I’m trying to post all over this site to let EVERYONE suffering from this horrific, debilitating affliction know that I think I found my CURE!!!

    Go to homepage (located at top of page) and read my posts starting on Feb. 2nd and the ones following.

    It’s too much to write again

    • Melinda Hemmelgarn February 18, 2016 at 6:08 am Reply

      Joanneg, are you referring to the post on meditation?

    • Cindy Jones March 23, 2016 at 3:23 pm Reply

      Hi Joanneneg Sorry but ubable to locate your posts,

      • Marci Morrison August 7, 2016 at 12:17 am Reply

        Me too. Can’t locate Joanneneg”s post.

    • Ryan L April 9, 2016 at 12:44 pm Reply

      For those searching for Joanneg’s treatment, she posted on Feb 2nd on the home page commentary that she discovered the product Colostrum which has helped her leaky gut symptoms that in turn have improved other issues she was dealing with. She says, “my stomach isn’t wrenching, and even my joints are sooo much better. Not only that, my mind feels bright and happy. It took that ugly depression and doom and gloom away. And I know it’s the Colostrum because I stopped everything else.” From another post she states that she’s “been using Immune-Tree Colostrum 6” as her preferred colostrum product.

      Others have had some improvement with this product as well, but the results seem to vary. Colostrum doesn’t appear to be a magic bullet, but another tool in fighting this toxicity. The consensus among many floxies is that fixing a leaky gut will allow one’s body to repair itself much more efficiently, and theoretically, colostrum is a product that can be beneficial in fixing leaky gut. Even if you don’t feel you have digestive problems, treating the gut with good food seems to help many floxies. I’m still new to all of this myself, and I’m not one who posts much, so I’d recommend that other new folks to this site post general questions on the home page commentary, as there are many wonderful people with much more experience in all of this than I who check that page daily to see what they can learn or how they can help others.

  8. Marci Morrison August 7, 2016 at 12:08 am Reply

    I took Levaquin early May, 2015. I went through gluten-free sugar-free dairy free soy-free and nothing seemed to change. I have severe tendon issues which migrate throughout my body or just stay bad all the time such as my rotator cuff and my tennis elbow’s. I am very scared because I have just developed peripheral neuropathy on my feet. the neurologist wants me to have an EMG which I am scheduled for. I feel like maybe I’m wasting my money. Maybe I could self heal. I do a lot of the same stuff that Karen and Lisa talk about to keep positive. I never had loss of energy but believe my muscles are deteriorating due to the pain I have in my arms and legs. I have also been losing weight. I work out 5 instead of 6 days a week I still do it! I wonder if I even have a trace of flouride if that is poisoning my body more. I have to take your advice and keep positive, meditate, keep the Epsom salt bath going and get massages. The only reason people know that I’m hurting is because I mention my symptoms. I go about my day like any other day. I smile. I work hard at work. But need to work on being better with my husband at home. I really do need to take your advice and keep positive all the time. Thank you for sharing a positive story. I hope one day my neuropathy will get better. My tendons definitely do not hurt as bad as they used to when I was in physical therapy last October. Maybe that is a sign of Hope.

  9. Karen Finch October 8, 2016 at 4:08 pm Reply

    After sometime now, I reread my story that I wrote here and have truly forgotten just how bad things were for me. However, I sure remember them after reading through my story again. Things are still 90-95% better than back in those days I first described to you all. My point, though, is that you may also be one of the many who put it behind you someday.

    I visit the FB page from time to time to give you all hope by letting you see how I have healed. Just as others have also written, we seem to go off into the wild blue yonder after we are better. I think about you all, and I send you positive healing thoughts. – Karen

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