Kyle’s Story – Recovery from Cipro Poisoning

In early March of 2016, I was 28 years old, working full time, and recently engaged. I woke up one night with excruciating pain in my right testicle, so I called my doctor the next morning, and scheduled an appointment to meet with a urologist. I had acute orchitis, and was prescribed 2-weeks of cipro, 500 mg, taken twice daily.

The orchitis didn’t go away after the first course, so I was prescribed another two weeks of antibiotics- same dosage. At the beginning of the third week, my body went completely haywire.

I developed muscle spasms in my forearms and lower back. I had shooting pains like knives going up and down my spine that would last for hours. I would wake up in the middle of the night short of breath with intense chest pains. With no prior history of anxiety, I would have intermittent panic attacks, and I was completely on edge at all times. It felt like my fight or flight response was in high gear.

For several months thereafter, new symptoms kept emerging. I did not experience the muscle or joint pain that many on this site have described, but I did experience a host of psychological symptoms. I had severe insomnia. At night I would try to fall asleep, but my body refused to relax. As I would start to doze off, my body would snap awake.

For the first few months, my gut was also a mess. I was nauseous all the time, vomiting, and had constant diarrhea. I lost 25 pounds. I went from being a lean 185 to losing most of my muscle mass and dropping to 158 pounds.

My worst symptom developed about 3 months in. I developed severe dyspnea. I was sitting at my desk at work, and suddenly my breathing felt labored. When I inhaled, it felt like I couldn’t get enough air into my lungs. I used to be a marathon runner, but my stamina and ability to do any physical exercise was completely destroyed. I went from being able to run 5-6 miles daily to not being able to walk up the stairs.

My dyspnea was unrelenting. I felt like a stone had been placed on my chest. At its worst, the breathing issues prevented me from sleeping for 3 days straight. I was out of breath sitting at my desk or lying down. Imagine trying to fall asleep when it feels like someone has a pillow pressed over your face at all times.

The dyspnea lasted for 2 years, and it has only started to abate these past 10 months.

I also developed tinnitus in both ears. I don’t remember when the ringing started, but in the grand scheme of things, this was the least of my concerns. Struggling to breathe and not sleeping was my primary focus and consumed most of my time and energy.

On my wedding day, I was out of breath at the ceremony and reception. I had to sit down or go to the restroom to take breaks so I could suck down air and catch my breath. I barely made it through my first dance with my wife. It felt like I was living my life 23 miles into a marathon.

I can only describe my experience as suffering for 2 continuous years. I realize that there are many others here that have had it much worse, but it was still hell, and i wouldn’t wish it upon my worst enemy. There were periods where I wanted to give up. I considered quitting my job. At several points, I considered taking my own life. Every day was a waking nightmare.

What kept me going was the hope that I would get better. I was still young, and i believed that with time, things might improve.

I spent hours and hours reading scientific articles and testimonies from fellow floxies. I scoured the web for tips and tricks to aid in my recovery. In all honesty, most of what I found only contributed to my anxiety. It felt like a black hole. There were so many stories out there of people not recovering. I got off the web. I told myself that people who recover just want to put this behind behind them, so we rarely hear the good stories.

I also saw as many doctors as I could, but none of them could figure out what was wrong with me. I was cleared by throat doctors and pulmonologists. All tests came back negative. Bloodwork was stable. There were no issues apparent on my MRIs or X-rays. In hindsight, I wish I had seen a neurologist. I believe my nervous system was probably damaged by the cipro. I’ll never know for sure, but this could have explained the difficulty breathing, chronic insomnia, and anxiety.

After being dismissed by dozens of specialists, I decided to take control of my own health. I realized that no one was going to help me, and I was tired of being passed off as a hypochondriac. My family would attest that I was in great shape my entire life, but the specialists didn’t know me before I was floxed. They didn’t understand that I had run multiple marathons and had no prior history of anxiety, yet here I was, struggling to inhale and having daily panic attacks.

When I took things into my own hands, I started by changing my diet. I cut out alcohol and caffeine, as these both made me feel noticeably worse. I also cut back on sugar, and focused on eating more healthy foods.

For a while, I tried some of the supplements that others have listed on this site (CoQ10, magnesium, etc.) but I didn’t see any noticeable benefits, so I gave up on these after 1-2 months.

The one thing that helped me the most was time. For those reading this, I realize this might not be the answer you want to hear. When I was at my worst, I wanted something that could instantly fix me and make me breathe better.

My gut healed after about 6-7 months. I started putting on weight again.

My chest pains and panic attacks stopped after about 1.5 years. The insomnia also started to lessen, and I started to get 3-4 hours of sleep a night.

At about 2 years out, the dyspnea started to lessen. I started sleeping 5-6 hours a night. With sleep, I noticed that my mornings were better. I could feel my body recovering more and more. The dyspnea would return in the evenings, but each day was better than the last.

I would like to add that sleep was also essential to my recovery. When my anxiety had subsided sufficiently, I started taking melatonin to help me sleep. With time and sleep, I noticed that each day was incrementally better than the last.

At the 2 year 3 month mark, I started exercising lightly. I would walk our dog for longer periods and I started lifting weights.

The past 6-7 months have been noticeably better. I run 4 times a week now for 2-3 miles. I lift weights twice a week, and I work on my core strength and practice breathing exercises.

At 30 (nearly 31), I would consider myself healthy now. I am not the athlete I once was, but the fact that I am running at all is a truly gift. I can also sleep 8 hours a night. My dyspnea is all but gone, and that is the greatest blessing. Now that i can breathe, I feel like I have my life back.

This past December, my wife and I visited Puerto Rico with our friends and I didn’t feel restricted or sick. I was able to hike and surf and explore the rain forest. If I had tried to go on vacation a year ago, it simply would not have been possible.

I would like to add that sometimes I still have trouble breathing when I am over-tired or stressed, but this is manageable now, and it is more of an annoyance. I know it will pass after a good night’s sleep.

Looking back on everything, I remember being so angry with my doctors and myself for taking medication that ruined my life. With time though, that anger subsided. I stopped caring about being angry, and just wanted to find a solution that would make me better. When my family doubted me and the doctors failed me, I had to rely on myself to find a way out of this hell.

I learned that I can endure a tremendous amount of pain and discomfort, and I think in some ways that made me a stronger person. I also have more sympathy for others with chronic illnesses, and am so appreciative of where I am today. I also recognize that I am one of the lucky ones. Had I taken cipro when I was 50 or 60 years old, I think my recovery would have taken substantially longer, and I might have faced a whole host of other symptoms.

I would like to say to those of you struggling now, I know what its like to to feel like your body is not your own, to wake up and see yourself as a shadow of what you once were. I also know that the dark times can seem hopeless, and that you might feel like there is only so much suffering you can endure. Please, persist. No matter what. Your recovery won’t be linear, but you will get better. New symptoms might emerge, but always appreciate when some aspect of your body is improving. When things seem intolerable, try not to get sucked into sadness. Do something. Get up. Do at least one thing every day that will help your body feel better and expedite your healing.

Be patient. Stay strong. Focus on what makes you healthy and happy, and record your progress. The ability to see where you’ve been is invaluable. It will help on your bad days to look back and see how far you’ve come.

I hope this helps.

 

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

 

10 thoughts on “Kyle’s Story – Recovery from Cipro Poisoning

  1. Cindy February 5, 2019 at 2:52 am Reply

    Wow I can’t believe you have the breathing thing too. I am awake right now because I feel like I can’t get enough air through my throat . Did you feel like that too ? So glad to hear it goes away at least .

  2. mok February 5, 2019 at 8:07 am Reply

    can someone send me the books’The Fluoroquinolone Toxicity Solution and “The Floxie Food Guid”‘ .in our country we dont have the permission to use credit card to buy on internet and i dont have money .please help me this my email
    elmouelhimohamed@gmail.com

    • Diego February 5, 2019 at 4:03 pm Reply

      Sent you.

      • Dee February 8, 2019 at 6:01 pm Reply

        Kyle, congrats on your recovery!! That was a long road you walked but you made it!! Do you consider yourself 100% recovered? Did it take the full 3 years? Also did your tinnitus go away?? I hope so!!! I am a year in a half out and about 85% better. I still am waking up early but way better then the months of insomnia!! I also still have some morning GI issues and tinnitus!! I’m getting there slow but sure!! Just curious if your tinnitus got better and did you do anything to help your GI issues?? Again I’m so very happy to hear of your recovery!! I wish you continued improvement!!!!

  3. ursula February 9, 2019 at 3:20 am Reply

    I just want to jump in here (to give some hope). I am not a FQ survivor but a Mefloquine (anti malarial) Survivor. 6 years out. You can say it is the cousin drug of FQ. Also black box warnings on it as the FQ. Kyle, your story sounds like mine. I became an insomniac after 48 hours of 1 Mefloquine (aka Lariam) pill. I had tinitis for 2.5 years, it healed. My anxiety was sooo bad and severe depression. I had severe racing thoughts. became delusional that if I closed my eyes I would see constant faces like negatives of a photo, type images. Faces so sad and weird, that you cannot believe a human brain could create these images. Thats why I say delusional and not hallucinating it, when I opened my eyes it was gone. Dizziness, terrible deep feeling of fear constant, suicidal, blurred vision, rocking head and body, tremors, sore body, and stabbing pains, toes were dead for a year, burning skin, bad fatique, tingles everywhere, numbness, breathing bad bad, so bad i had to use ativan and sleeping tab and valoids not to vomit. The strongest sleeping tab gave me 6 hours. For about 5 months sleeping tab, then forced myself off it. 7 months on ativan and tapered down when i had the slightest feeling of feeling a bid better, a hell on its own to get off it, very addictive. I will not suggest anyone to use these drugs. Anti depressant made me worse so couldnt use that. I was crying like a baby for months. Took me 18 months to get to 7 hours sleep. Brain fog, severe forgetfullness , could not follow conversations, couldnt judge time, i would thought it is 10 in the morning then it is 2 pm. Lost 13 kg the first 2 months. Depression and doom feeling 2.5 years. I would say 3 years to 80 percent healing. but then i felt okay that i could cook myself some veggies, i started eating clean no gluten, no dairy no soy, even no grains, no sugar. a lot of salads or cooked veg and some meat and fruit (Terry Wahls Protocol level 2) sort of. That gave me a more stable energy level. So 2 years were good. BUT now I am going through the menopause phase, severe fluctuating hormones, I am 51 now, so anxiety is back. But they say it gets better. So I will update everyone after this transition.

  4. ursula February 9, 2019 at 3:23 am Reply

    wanted to add nightmaires stopped at 18 months out and the first year I had diarhee for a year!

  5. Cipro2017 February 12, 2019 at 11:58 am Reply

    Dear Ursula,
    after Cipro i saw alot of ugly faces when i closed my eys. It was like hallucination but when i opend my eys these faces gone.
    Panic attacks and insomnia, brainfog and depression, floaters and lights, palpitations… where my daily experiances.

    I will be 22 months out in some days and these symptoms are now better.
    Can you tell me how long it needed to go out of brainfog?

    • ursula February 15, 2019 at 6:07 am Reply

      Hi Cipro2017. I only healed like 80 percent in 3 years, but the anxiety was gone and energy back but never like before but life was good again. The brainfog feeling is still there but do not bother me, so it is reduced. So i took 3 years to get to 80 percent then i decided to eat a good diet, (when i had my strength back at 3 years out) to cook veggies. So I was on Terry Wahls protocol level 2 (9 cups of veggies/fruits p day) it made me feel even better. it took away reflux, snoring, restless legs and stomach bloating. BUT as i think we have more sensitive nervous systems now, after starting this diet, if i ate junk: gluten dairy sugar even yellow cheese or colorants/ preservatives, funny sauces, man made stuff, i had worse sleep that night. I ate this way 2 years BUT then the peri menopause symptoms started 2 years ago on 49, so i got very weak again and anxious and depressed AND severe reflux. because the hormones is now totally out of balance. so waiting on the pause to see if it gets better they say is usually does when hormones level out. So as i have no drive in life at the moment and morning type sickness feeling, i cannot be on a healthy diet (havent got the will power) and the hormones makes you crazy and nausious and then you get eating cravings for carbs also. Till this day i have a cracking neck and stiffness in neck, it sounds like bubblewrap inside my head if i turn my neck. went to chiro, doesnt help. I never could use supplements post mefloquine and still cant, i think my body rejects it or too sensitive or i get detox or something. I cannot even take a epsom salt bath post “floxed”. You can google peri and see 40 symptoms as i am not using hormones to help as i cannot handle it my system takes NOTHING, there are many who gets floored by the symptoms not just a floxie. The reflux one big mess as i cannot drink proton pump inhibators, just chew rennies and gaviscon, BUT i am on little ativan again for peri as peri makes me about bedridden (bad news – do not take it if you can go without it). I do not have floaters but my eyes vision not 100 like it was but not bothering. The depression and anxiety were the biggest hell of all the symptoms.

      • Cipro2017 February 15, 2019 at 1:58 pm Reply

        Thank you Ursula! Its really like beeing very bad floxed.

  6. ursula February 15, 2019 at 6:12 am Reply

    i lost 13kg in 2 months post mefloquine pill

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